E-patients and social media
Lee Rainie, Director, Pew Internet Project - @lrainie
10.10.13
Hofstra University
“Tell the truth, and trust the people”
-- Joseph N. Pew, Jr.
http://bit.ly/dUvWe3
http://bit.ly/100qMub
Un-Hippocratic
I SWEAR… I will impart a knowledge of the Art
to my own sons, and those of my teachers,
and to disciples bound by a stipulation and
oath, according to the law of medicine,
but to none others
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Networked Individualism
More important
Differently composed
Perform new functions
Lubricated by social media
Health care implications
Source of caregiving
Second opinions
Providers as “nodes”
Performing in public
But the fundamentals still apply
The last time you had a health issue,
did you get information, care, or
support from…
A doctor or other health care
professional
Friends and family
Others who have the same health
condition
Total
yes
Yes,
Yes,
online offline
Yes,
both
Not a
source
70%
1%
61%
8%
28%
60
1
39
20
39
24
2
15
7
73
Source: Pew Research Center’s Internet & American Life Project, August 7-September 6, 2012 Survey. N=3,014 adults. Margin of
error for internet users (N=2,392) is +/- 2.6 percentage points.
3 tech
revolutions
Digital Revolution 1: Broadband at home - 70% (+10% more
have smartphones) - Internet users overall: 85%
Dial-up
Broadband
100%
70%
80%
60%
40%
Broadband at
home
3%
20%
0%
June
2000
Dial-up
at home
April
2001
March March
2002
2003
April
2004
March March March
2005
2006
2007
April
2008
April
2009
May
2010
Aug
2011
April
2012
May
2013
The % of adult internet users who have looked online in the
last 12 months for information about…
55% Specific disease or medical problem
43 Certain medical treatment or procedure
27 How to lose weight or how to control your weight
Health insurance, including private insurance, Medicare or
25
Medicaid
19 Food safety or recalls
16 Drug safety or recalls
16 A drug you saw advertised
15 Medical test results
14 Caring for an aging relative or friend
12 Pregnancy and childbirth
11 How to reduce your health care costs
20 Any other health issue
72
at least one of the above topics
Digital Revolution 2
Mobile – 91% … smartphone 56% … tablets 34%
326.4
Total U.S.
population:
319 million
2012
Changes in smartphone ownership
100%
80%
56%
60%
48%
46%
40%
41%
35%
35%
17%
20%
12% 9%
0%
Smartphone
May 2011
Other cell phone
February 2012
No cell phone
May 2013
Smartphone ownership by income/age
100%
80%
90%
77%
87%
81%
72%
68%
60%
47%
43%
40%
40%
22%
21%
20%
8%
0%
18-29
Less than $30,000
30-49
$30,000-$74,999
50-64
65+
$75,000 or more
2010
2012
17%
31%
Men
Women
Age
17
16
29*
33*
18-29
30-49
50-64
65+
Race/Ethnicity
29
18
7
8
42*
39*
19*
9
White, non-Hispanic
Black, non-Hispanic
Hispanic
Annual household income
15
19
25
27*
35*
38*
Less than $30,000/yr
$30,000-$49,999
$50,000-$74,999
$75,000+
Education level
15
17
17
22
28*
30*
37*
37*
No high school diploma
High School grad
Some college
College+
16
12
21
20
17
26*
33*
38*
All cell phone owners
Mobile
health info
• 91% of adults own cells
… of them …
• 31% get health information
• 9% get health text messages
--• 56% own smartphones
… of them …
• 19% have health apps
Health apps
All health app users (n=254)
Exercise, fitness, pedometer
38%
or heart rate monitoring
69% track health indicator
31
for themselves or another Diet, food, calorie counter
Weight
12
… of them …
Period or menstrual cycle
7
• 49% of trackers say they
Blood pressure
5
keep track of progress “in
their heads”
WebMD
4
• 34% say they track the data Pregnancy
3
on paper, like in a notebook
Blood sugar or diabetes
2
or journal
Medication management
• 21% say they use some
2
(tracking, alerts, etc)
form of technology to track
their health data – and 7%
Mood
*
use an app.
Sleep
*
Impact of tracking
• 34% of self-trackers say their data collection has
affected a health decision
• 40% of self-trackers say it has led them to ask a
doctor new questions or seek a second opinion
• 46% of self-trackers say it has changed their overall
approach to health
Pew Internet/California HealthCare Foundation survey
Digital Revolution 3
Social networking – 61% of all adults
18-29
100%
30-49
50-64
65+
% of internet users
89%
78%
80%
60%
60%
43%
40%
20% 9%
0% 6%
2005
7%
1%
2006
2007
2008
2009
2010
2011
2012
2013
The Landscape of Social Media Users (among adults)
Use Any Social
Networking Site
Use Facebook
Use Google+
% of internet
users who….
The service is especially appealing to
72%
Adults ages 18-29, women
71%
31%
Women, adults ages 18-29
Higher educated
Adults ages 30-64, higher income,
higher educated
Women, adults under 50, whites,
those with some college education
Adults ages 18-29, African-Americans,
urban residents
Adults ages 18-29, African-Americans,
Latinos, women, urban residents
LinkedIn
22%
Use Pinterest
21%
Use Twitter
18%
Use Instagram
17%
Use Tumblr
6%
Adults ages 18-29
reddit
6%
Men ages 18-29
•54% of online health
searches are conducted
on behalf of someone
else.
•34% of online adults
look at online reviews
80% of online health queries begin at
search engines
11% of SNS users; 8% of Twitter
users get medical info on the sites
•26% in the last 12
months read about or
watched someone else’s
health experience
• 18% have gone online
to find others who might
share the same health
concerns.
Different sources for different needs
How online searches affect decisions (1)
• 60% of e-patients say the information found
online affected a decision about how to treat
an illness or condition.
• 56% say it changed their overall approach to
maintaining their health or the health of
someone they help take care of.
• 53% say it lead them to ask a doctor new
questions, or to get a second opinion from
another doctor.
How online searches affect decisions (2)
• 49% say it changed the way they think about
diet, exercise, or stress management.
• 38% say it affected a decision about whether
to see a doctor.
• 38% say it changed the way they cope with a
chronic condition or manage pain.
What social networks do for patients:
Why physicians can be “nodes”
• Attention – act as sentries
– alerts, social media interventions, pathways
through new influencers
• Assessment – act as trusted, wise companion
– assess the accuracy of info, timeliness of info,
transparency and rigor of info
• Action – act as helpful producers/enablers
– give people outlets for expression, interpretation
of their creations
Health outcomes payoff
• Monitoring
• Interventions and
reinforcement
• Skills training – meds/devices
• Emotional and social support
among peers
• “Information prescriptions”
• Amateur research
contributions – online
recruitment, communities and
clinical trials
Be not
afraid