To: From: Date: RE: RespectAbility Board/Donors Jennifer Laszlo Mizrahi April, 2014 Performance Report on empowering people with disabilities to achieve the American dream Thank you so much for caring about people with disabilities (“PwDs”) and for being a part of our start up as we work to empower people with disabilities to achieve the American dream. RespectAbility is now nine months old and has spent $130K. Thus, it is time to take stock, evaluate our progress to date, and make any needed mid-course corrections. Additionally, we were given temporary free office space and now we are at the juncture where we need to actually move to more permanent and paid office space. Thus, as we look at our own performance metrics, here is a look back and ahead. On June 13, 2013 our board passed a very specific mission for RespectAbility, which is to: 1. Reshape the attitudes of American society so that people with disabilities can more fully participate in and contribute to society, and 2. Empower people with disabilities to achieve as much of the American dream as their abilities and efforts permit. Our business plan and launch outlined a number of specific sectors critical to achieving our goals. Our “theory of change” was very clear and already in our early months we have achieved great things. We have spoken face to face with 32 governors about employment for people with disabilities, seen several of those governors already make dramatic improvements in their policies (i.e. Delaware, Wisconsin, Iowa, Mississippi, North Dakota), are seeing big potential in other states (NY, NJ, IL and others), received important media coverage, completed multiple polls and focus groups, built critical databases of key contacts and hosted multiple educational opportunities including a highly successful event on Capitol Hill with Gov. Jack Markell, Rep. Pete Sessions and MTV Host T.J. Lavin. We launched our first PSA with T.J. Lavin which aired in Washington in CNN, FOX, MSNBC, MTV, CNBC and other networks. We have done two events with the White House, both of which were covered in the media. It is still too early to see employment rates and attitudes overall improve as a result of our work, but we hope to see some future positive movement. New Department of Labor numbers do show, however, that Delaware and Iowa, which are starting to use best practices, have very good new statistics on employment for veterans with disabilities. P a g e 1 | 33 You can refer to our business plan for why we targeted each group. I have put in bold special notes on each sector. 1. Elected Officials, Policy Makers and Government Our most important impact so far has been with governors. We focused on this group because of the leadership of then National Governor’s Association (NGA) chair Gov. Jack Markell, who made this issue a priority in “A Better Bottom Line: Employment for People with Disabilities.” Governors have a tremendous impact on public education and workforce development. Programs such as Project Search (real life work experience done during school hours by students with disabilities ages 19-21) are showing terrific results in leading to employment. We now have an excellent contact point for every governor, and have spoken face-to-face with 32 governors on jobs for people with disabilities. For example, we first met at length with Gov. Scott Walker of WI and his top team on August 2, 2013. In his State of the State Address in January of 2014 he made jobs for people with disabilities one of his top issues and a feature not only of his speech but also of his policies. The same is true of the policies of other governors including Jack Markell (DE), Dennis Daugaard (SD), Terry Branstad (IA), and Phil Bryant (MS). While Gov. Markell’s commitment preceded our work, and in fact we rely very heavily on our partnership with him, we have sponsored other meetings at two National Governors Association events and plan to repeat these again at the next one. We also made visits to NY and NJ to follow up specifically with the top professionals/Cabinet officials on these issues per the direction of Governors Cuomo and Christie, respectively. We are in discussions with teams from Governors in NM, VA, PA, IL, MO, CA, GA, NC and other states as well. See Appendix D for a sample letter that went to governors during our second approach to them. RespectAbility sent our Fellows repeatedly door to door on for days on Capitol Hill to find a point person for each office. In the past eight months we have dramatically expanded our lists of political and policy contacts. We are emailing opportunities and information to more than 900 Hill staff and state officials and have shared these political contact lists with other disability groups who share our agenda. However, our key focus in the public sector has been with governors where we see the most immediate progress taking place. See Appendix E for an update on work with governors across the country. However, it’s not enough for us to know who the players are – they need to know and trust us on disability issues so we can help them be more effective. Like any relationship building with highlevel contacts, it takes time. When we started it was disheartening to find that most disability groups were only working with a handful of offices on the Hill, and that most Capitol Hill and Governors’ offices had not even designated a person within their core staff who would handle disability issues. Therefore, we have also made it a priority to reach out to political consultants. This is because elected officials often do what their political consultants advise them to do, as it generally helps them get re-elected/ elected. We built a list of 300 top political consultants and are sending them P a g e 2 | 33 information including data from our poll that shows that people with disabilities WILL vote on disability issues. Many of the poll questions were designed specifically with these consultants in mind. Doc Sweitzer from our board is an especially important participant on this front as he is a major player inside the American Association of Political Consultants (AAPC), which is the trade association for political consultants. 2. Disability Groups We are now working with dozens of disability groups and are especially close with our host group, the Autism Society, as well as those who have leaders on our Board of Advisors such as NICL and NACDD, plus USBLN, Best Buddies, NFB, and AUCD. Other groups are nervous that our positioning/ framing that “people with disabilities have abilities and can be excellent in the workplace” will undermine the “pity factor” that leads to funding the safety net for people with disabilities. Some have invested heavily in that image and feel it is vital for government benefits to continue. They are concerned that following cuts in SNAP (food stamps), Social Security Disability Insurance (SSDI) (which is already financially due to go bankrupt in 2016) is at risk. We are sensitive to these issues and will do a focus group soon in cooperation with these groups so we can find messages that work across the board. There are about 100 disability leaders in Washington who all seem to know one another and attend each other’s events. We have not had the capacity to get our own work done and show up at many of these events, especially given how far away we are from DC. Because we don’t lobby, we do not sign onto the many lobby letters being circulated. This initially surprised some partners, but has become expected as our SOP. However, we are now asking these same groups to sign onto letters to Governors, political consultants and Hollywood insiders. One of the great successes has been our work with Development Disability Councils (DD Councils) around the country. For example, RespectAbility’s CEO co-keynoted a major rally in Georgia with the DD Council and Gov. Deal. At the rally Gov. Deal made early commitments to make progress on jobs for people with disabilities. See http://www.gcdd.org/component/tags/tag/2-disability-day.html. RespectAbility will be briefing leaders of these groups at their national meeting this weekend. 3. Private Sector We have had a lot of success in highlighting the private sector’s use of disability “stories” in their for-profit marketing TV and web ads. The Guinness beer ad, for example, showed a tremendous, and clever, example of inclusion: a group of guys are playing wheelchair basketball – until it is revealed that only one of the players is a regular wheelchair user. The ad received more than 4 million hits on YouTube. Even better was the Duracell ad created by P&G with Seattle Seahawk’s Derrick Coleman who happens to be deaf. That ad received more than a BILLION impressions on the web, with more than 15 million individual views. It was followed up by another P&G ad, which showcased a paralympian, which has already gotten more than 4 million clicks. RespectAbility showcased these ads widely to get them even more press and traction. Respectability’s CEO published two op-eds on the ads, which got the attention of Derrick Coleman and, as a result, he will be doing an event with RespectAbility in the future at the National Press Club. The White House, concerned at the lack of progress on the employment front has issued new Labor Department 503 rules which go much further in establishing specific guidelines for federal P a g e 3 | 33 contractors and subcontractors to recruit, hire, promote and retain people with disabilities and protected veterans. In addition to drafting plans to ensure and prove their organizations are utilizing at least 7 percent of available individuals with disabilities in their workforces (for veterans, that percentage goes to 8), employers will be required to develop much more in-depth affirmative-action plans, collect and analyze data to ensure their plans are accurate and effective, create training programs to ensure everyone involved in hiring is aware of them, and more. Our partner USBLN is doing an outstanding job with employers as the new 503 regulations create important opportunities. RespectAbility’s President went to CA for the USBLN annual meeting and trained their staff. We are working closely with them and others on their efforts. Still, there is push back from the private sector on what they see as coercion in the 503 regulations. At this moment it is important for the private sector to be exposed to case studies that illustrate employees with disabilities who have enabled companies to make more money. A good example of this is: http://finance.yahoo.com/news/autism-help-land-job00100888.html?soc_src=mediacontentstory. On that front we will soon do a webinar with Lori Golden of Ernst and Young, one of the foremost experts in this field. We will do another in partnership with USBLN. Elite Private Schools: Many private sector hiring decisions are at least initiated by CEOs. Many of the most important companies’ CEOs hail from a small number of elite schools. However, it has come to our attention that most elite private high schools which are feeder schools into the Ivy League, Stanford, GA Tech and other key institutions do not include students and faculty members with obvious disabilities. This is a challenge we intend to address as future CEOs and elected leaders are being denied access to formative experiences with “twice exceptional” (people with disabilities but who are also gifted) peers with disabilities. Why would they want their teams to include people with disabilities if they only see us with pity, and not for the abilities we have? Thus, we plan to do some targeted work with elite schools on this issue in advance of the 2015 25th anniversary of the Americans with Disabilities Act. After all, the talented young Americans who start high school at elite private schools in 2015 will start becoming critical hiring and policy leaders as soon as 2025. 4. Faith-Based Groups Faith-based organizations play a major role in American society, leadership and civil rights and are an important component of our work. With both our chair and president being so active in the Jewish community, RespectAbility started with a major focus in the Jewish community. Our president has published approximately two-dozen pieces on disability inclusion in Jewish publications. We have built a strong list of Jewish leaders and email them regularly. We have already done polling in the Jewish community, and our recent poll included many questions that were important to understanding other faith groups as well. We were able to release separate data for Catholics, Protestants, Evangelicals and Jews. We are a part of a coalition with other faith groups being led by Rev. Bill Gaventa of the Boggs Center and Prof. Erik Carter of Vanderbilt. Since our training several months ago, “Abraham’s Tent”, hosted at Temple Beth Ami and attended by 150 Jewish professionals 15, we are seeing significant progress in the Jewish community. Three streams of Judaism (Reform, Conservative, Orthodox) as well as the Jewish Federation of North American and Jewish Council for Public Affairs have all released terrific aspirational goals in terms of inclusion. Now we need to move from “talking the talk” to “walking the walk.” Other people/groups such as Shelley Cohen’s P a g e 4 | 33 Jewish Inclusion Project, the Ruderman Family Foundation, Weinberg Foundation, Butler Foundation, Jewish Funders Network, etc. are also playing major roles. Additionally, there is significantly more media on this topic in the Jewish press, including real traction for the New Normal, a blog of the NY Jewish Week on disability issues in the Jewish community. It already has more than 100,000 unique hits and we publish regularly there as well as in other publications. We have done two events with the White House and both of them were covered in the media. It is our plan to replicate best practices in our outreach to other faith groups in the future. 5. News Media We have built lists of media contacts and are emailing them regularly, but because we have not raised enough money to put paid staff in place, we have not had the capacity to deliver enough stories yet. Perhaps the most influential segment delivered was the CNBC segment we inspired and helped craft: http://video.cnbc.com/gallery/?video=3000193204. We also have seen traction with a special target audience – publications read by human resources managers who are in a position to hire people with disabilities. See http://blog.hreonline.com/2014/02/24/momentum-building-for-putting-disabled-to-work. We did reach out to press at the National Governors Association meeting. We got this good piece: http://www.pewstates.org/projects/stateline/headlines/employing-the-disabled85899495229 as well as several pieces regarding the follow up from our work with Gov. Walker. See https://www.google.com/#q=walker+disability+jobs+wisconsin and http://www.jsonline.com/business/collaboration-promotes-hiring-of-workers-withdisabilities-b99144913z1-232937081.html See section below on all the op-eds published, including in USA Today, Des Moines Register, Milwaukee Journal, Huffington Post and others. In addition, we have met with the NJ Star Ledger editorial board, NPR, The NewsHour and have met twice with a key reporter from USA Today. We have requested meetings with The New York Times and Washington Post editorial boards, both of whom declined that opportunity. However, we have significant traction with one publication on potentially giving them an exclusive on the major study we are doing on inclusion of children with disabilities at the elite private schools that are essentially feeder schools to the Ivy’s and other colleges. 6. Celebrities/Hollywood/Entertainment Media We are extremely fortunate to have three key individuals in our court. The first is leading scriptwriter, Murray Siegel (see http://www.laszlostrategies.com/docs/siegelcv.pdf) who is highly gifted in mind and heart. He has been working with us, with assistance from our own board superstar talent Doc Sweitzer, to produce PSAs featuring major celebrities. The second is reality-TV pioneer Jonathan Murray (see http://www.hollywoodreporter.com/news/bunimmurray-25-years-the-real-world-jonathan-murray-306327) whose exceptional work with Pedro on MTV’s Real World led to public acceptance of people who are HIV positive. He is a major contributor to inclusion of LGBT people on reality TV. His dramatic impact there could be surpassed by his new contributions for the inclusion of PwDs. The third is MTV Host TJ Lavin who stared in a PSA for us and came to Capitol Hill to participate in an event for RespectAbility alongside Gov. Jack Markell, Rep. Pete Session and a Paralympic gold medalist. Dozens of Hill P a g e 5 | 33 staff registered for the event, which was successful. To view the PSA go to www.RespectAbilityUSA.org. We have now sent letters to 300 of the most powerful decision makers in the television and movie industry asking them to include more PwDs in their work as we believe that this would have incredible transformational potential. A copy of our letter to Hollywood/ Television/Film leaders is at the bottom of this document in Appendix A. We are now working to get other disability groups to send letters to these same leaders. Additionally, we will soon be releasing poll data from our poll of 3800 people in the disability community on how they view Hollywood and the news media. 7. Philanthropists We built a list of major philanthropists and sent a letter to more than 900 of them asking them to ensure that the organizations that they support do not discriminate against people with disabilities. Many were surprised to learn that religious organizations are exempt from ADA laws and do discriminate. We have also published op-eds urging the use of the power of the purse for good. See section below. Examples of progress include a meeting between the CEO of the Jewish Federation of Greater Washington (large donor to Charles E. Smith Jewish Day School – CES/JDS), the new CEO of CES/JDS and RespectAbility’s president to explore how this $30 million a year school can become inclusive of more children with disabilities in the future. The school is now working on a new strategic plan that should include welcoming more students with disabilities. The inclusion issue has also become a topic of conversation at the Jewish Funders Network - at least behind the scenes - demonstrating that our strategy of using the golden rule (s/he who has the gold, makes the rules) can have impact when philanthropists tell the groups they fund that they will not fund discrimination in the future. Still, it is important to have both carrots and sticks. The Ruderman Family Foundation has been offering major monetary awards to successful cases/leaders, and RespectAbility has been focusing on monitoring progress. In the future we are looking to do an actual formal scorecard in advance of the 25th Anniversary of the ADA. First Nine Months: More Outcomes In our business plan, we were also very specific in our tactics and goals. They are in regular text below followed by an update on our progress in bolded black. From Respectability’s Business Plan: The team of RespectAbilityUSA believes in “planning our work and working our plan”. Our CEO, with support from other team members, founded and led a successful public policy educational organization in the past. We will build on our proven leadership skills and techniques. In this new organization, however, we seek to improve opportunities and outcomes for people with disabilities and America overall by educating leaders, employers, philanthropists and the media through the use of opinion research, strategic communication, and high quality training and education. Indeed, we seek to focus more on the communications side than any group has ever tried. Our plan of action has three overall objectives for our first year: P a g e 6 | 33 2.1 Create our infrastructure, team, baseline research for messaging and contacts so that we have a platform for education on key disability and independence issues. We signed an agreement with the Autism Society, which gave us a safe and solid “home” to begin our efforts. This also gave us tax deductibility and synergy within their goals. However, now that the Autism Society has received a major new grant, their expansion means we will need to find new office space. In the absence of sufficient funding, we have relied heavily on “fellows” who receive a $250/month transportation stipend and have been critical to the progress we have made over the past nine months. Our previous fellows have been: Kenny Kalman, Hannah Pincus, David Cohen, Hillary Steen, Daphna Oren, Matthew Joyce, Lauren Gilbert and Megan Bachelder. Our current fellows are Evelyn Kelley, Garrett Patterson, Omar Chan, Donald Minor, Pilar Pastor and Liz O’Reilly. Two other fellows started with us but did not complete because of health issues related to their disabilities. Garrett Patterson has played an especially important role as he has been able to volunteer full time for eight months. Likewise Evelyn Kelly has been with us part time that entire period and offered vital writing and web skills. Both are about to go to graduate school, so we will lose them. Other volunteers include Cathy Gildenhorn, Meyrav Wermser and Robin Shaffert. Meagan Buren is paid for her professional public opinion research and strategic work, and Tonya Koslo is paid hourly for bookkeeping and other key administrative tasks. RespectAbility President Jennifer Laszlo Mizrahi is working full time for free. We are operating currently on approximately 6K a month, not including special project costs and mailings. That cost will increase dramatically when we have to pay rent and hopefully be able to afford our first paid staff. Additionally, we will soon launch a new website. Build a database of key decision makers and influentials that can dramatically improve the quality of life for people with disabilities. This includes the President of the United States along with key White House and Administration staff, Members of Congress and the Senate (as well as their key staff members), Governors, Commerce and Labor Secretaries, Presidential candidates, political consultants, media (print, television, radio, columnists, bloggers), key philanthropists, think tanks, journalists, media personalities, celebrities, religious leaders and disability groups. Database development has consumed a significant amount of our time. Fellows repeatedly went door to door to every Congressional and Senate office to introduce RespectAbility and ask for the contact information of the correct staff person in that office for us to invite to educational programs. We now have more than 900 Hill and Governor contacts. We now have a database for us of more than 300 television leaders. We created lists of major movie studios/leaders, reporters, governors, celebrities with ties to disabilities, Presidential candidates, political consultants, philanthropists, disability groups and more. All of these lists can and will be improved over time. However, we have mailed or emailed all the lists at least once, and in some cases (especially disability groups) multiple times. Complete the legal work to get the group IRS approved and its name trademarked. An P a g e 7 | 33 outstanding board and staff will need to be recruited, and policies established. Basic operational issues such as office space and an accessible website will be set up. We are still finalizing legal application issues to become our own non-profit and have already applied to have our name trademarked. We have recruited an outstanding board of directors and board of advisors. Raise over $1,500,000. The first contributor to the project was Jennifer Laszlo Mizrahi who has donated 70K and worked pro-bono on the project to get it started. At least half of her time working on this project in the year ahead will also be donated. Fundraising has been painful and slow. It is the single biggest obstacle to our success. So far Jennifer Laszlo Mizrahi and others has been working for free and that will need to continue for some time. When we hire one full time professional to manage the fellows inhouse it will free Mizrahi to do other things including face-to-face fundraising and meetings with leaders. Currently we have a total of 182 donors with total donations of $270,731.00 including $70k given by the Mizrahi Family Charitable Trust. The donors are: $50,000 Plus: Mizrahi Family Charitable Trust, Milbank Foundation for Rehabilitation $25,000 to $49,999: Anonymous Donor $10,000 to $24,999: Ruderman Family Foundation, Delman Mortenson Charitable Foundation, J.E. & Z.B. Butler Foundation, Anonymous Donor $5,000 to $9,999: Thomas Sweitzer, Julius and Dorothy Lazarus Foundation, Sklare Family Foundation, Marilyn Einstein/Steve Sim Family Donor Advised Fund $1,000 to $4,999: Alexander Foundation, The Aaron and Cecile Goldman Family Foundation, Combined Jewish Philanthropies William Sapers, Donn Weinberg, Lisa Wallack, Moses and Susan Feldman Fund, Cheri Fox, Jack Belz, Linda Mirels, John and Patricia Laszlo, Holtz Family Trust, Martin and Roberta Goldstein, Einstein-Sim Family Trust, Louis and Robin Zweig, Shelley Cohen, Andy Lappin, Paula & Jerry Gottesman, Jewish Community Foundation of MetroWest NJ, Gary and Esther Polland, Michael Frieze, Margo Sim Gleitman, Nancy Grossman-Samuel, Joanne Hovis, Robert Horwitz, Stanley Tate, Sitirick Family Charitable Fund, and Audrey and Albert Ratner Fund for the Disabled $1-$999: Morton Landowne, Les and Lori Ulanow, Andrew Afflerbach, J Karp, Jaime Bassman, Robert and Arlene Kogod Family Foundation, David Berl, Raymond A. & Vivian G. Bass Family Philanthropic Fund, United Jewish Endowment Fund, Philip and Phyllis Margolius, Steven & Lisa Marcus Abramowitz Family Philanthropic Fund, Alan Dana, Joseph and Selma Sitrick, Seltzer Family Foundation, Neil Schechter, Marty Linsky And Lynn Staley, Howard May, Lainy Lebow-Sachs, Nancy Laszlo, Friedel Family Foundation, Jules Polonetsky, Levy Family Donor Advised Fund, Robert and Elisa Bildner, Zarchary Lanier Charitable Fund, Steve Rabinowitz, Jeffrey Glueck, Elliot and Gail Norry, David Soltz, Karen Sallerson, Betty Kane, Loryn Lesser, Abraham Briloff, Leonore Briloff, Steven Finkelman, Daniel Ross and Mary Loud P a g e 8 | 33 Allen, Bill Gaventa, Robert Gutman, Lesley Israel, Steve Rabinowitz, Lynne Kane, Antonio Godino, Jason Gewirtz, Lesley Israel, Arlene Remz, Linda and Andy Burger, Lisa Derx, Bill Gaventa, Jonathan Goldsmith, Mark Johnson, Eric Schon, Cathy Bolinger, Lawrence Haas, Linda Pogue, Marvin Schotland, Robert Gettlin, Bevery Marcuse and Loris Katten Levy Memorial Donor Advised Fund, Laura Cutler, Linda and Andy Burger, David Landau, Libby Monias, Marlaine Lavine, Ronald and Barbara Pred, Lois Zoller, Sharon Shapiro, Mark Israel, Violette Berger, Catherine Rowen, Noel Schachner, Sol Toder, Eva Steen, Gail Gurin, Gary and Susan Behrend, Noa Meir, Gary Perolman, Paul Kronish, Cecilia Blau, Ariel and Jane Walsh, Andy Gryll, Liselotte Adler, Alan Schlaifer, Mendel Kaplan, Morris Stein, Lawrence Goldberg, Carol Fineblum, Maria Negri, James Price, Sidney Marshall, Robert and Leah Isler, Eugene Brody, Aaron Yaschine, Judy and Jon Rudin, Avi West, Harold Levine, Sandra Turnauer, Martin Weinstein, Marcel Abel Chopineaux, Larry Pollack, Andrew Sharmat, Nathan Geter, Nochum and Hindy Light, Gerald and Renee Silverstein, Irving Newman, Michael Altenberg, Suzanne Parelman, J. Merle and Carla Schulman, Ardis Wexler, Lyon and Sarah Bodzy, Tibor Engel, Melvin and Marilyn Satlof, Jon and Diane Levinson, Alick Mazin, J. Merle and Carla Schulman, Jon and Diane Levinson, Anna Lutsky, Madeline Tannenbaum, Sara Simon, Balkin Products Inc., Leonard Bennett, Gary Peyrot, Norman Davis, Daniel Seftel, Faye Berger, Bruce Waltzer, Irving Kabik, Bertram and Evelyn Klapholtz, Estelle Schutzman, Carol Dukes Dobos, Sandra Lehner, Len Bennett, Faye Berger, Ewa Spanjer, Linda Freud, Florencio Lara, Laurence Lipman, Samuel Liron, Wendy Weisbard, Matt Friedman, Rhonda Lees, Janet Bruner, and Nelson Simon. It is critical to note that almost all these donors are faith-based donors most of whom do not typically fund in the disability sector. Many were giving based on a personal relationship with a member of the RespectAbility team. However, many of these donors have now become more educated on these issues and are really starting to get excited about seeing so much progress in a short time span. Still, we need to quickly identify other donors who are more focused on disability issues/social justice/poverty and civil rights. We already have a list of foundations that fund in those spaces but almost all of them only fund in limited locations and/or direct service. So we will need to develop a donor pool of people who care about these issues but who are not yet involved in them. Fortunately, our first donors listed above are extremely smart and experienced philanthropists, so we will turn to them for ideas in addition to their earlier financial contributions. We hope they will increase their contributions now that they know the issues and we have a proven track record. Year-to-date (2/23/14) paid expenses total $130,626.74. Engage pro-bono and dramatically discounted services of experienced and outstanding strategic communications experts who can help ensure that elected officials, leaders, and members of the media understand the values, goals, and strategic needs that they share with Americans with disabilities. This is happening and was especially true of our summer media and advocacy training on Capitol Hill. We enlisted outstanding speakers who all provided their services for free (see the sessions on our YouTube channel: https://www.youtube.com/results?search_query=respectabilityusa&sm=1). P a g e 9 | 33 A challenge for us has been our Bethesda location, which is very much outside the center of action. It is impossible for RespectAbility’s President to simply have lunch with key people or drop by events as the travel consumes whole day. Given the level of supervision that is needed of our fellows (who come with limited experience for a short period of time and require significant supervision) networking has been hindered. This can be resolved in two ways – raising enough money to hire someone who can lead the team in-house and moving our office to a downtown location. We are currently looking for new space but will be limited by our tight budget. The majority of our work will still be done by our amazing fellows who give of their time and talents every day. Many of our fellows have disabilities and are also very talented, so we live our mission every day. Conduct focus groups of key stakeholders. This includes the “customers” (Americans with disabilities who want/need to be more independent and successful) as well as policy makers (especially those on the political “right” who are highly skeptical of government-led solutions) and other key decision makers/influentials. Special attention will be paid to voters with disabilities in swing states such as Ohio and Florida. To date we have completed three very important focus groups with: People with disabilities who are looking for work; Providers/family members of people with disabilities who are helping their loved one with a disability look for work; and Hill staff/Think tanks from right wing/Republican party. The first two groups were conducted primarily to help us clarify our thinking regarding our major online poll of people with disabilities, their providers and family members. That poll has been completed now and the results published. Our focus group of conservative Washington insiders was critical in framing all of our messages in the media and to leaders on employment for PwDs. It also gave the disability community the capacity to reframe the messages about the disability treaty. We still need to complete the written reports on the other two focus groups and develop a message memo based on the poll. That will be completed soon. Lead focus groups of primary voters from key early states in the Presidential campaign (i.e., New Hampshire) to see what messages will work to persuade them to put issues that have an impact on people with disabilities into their campaign planning voting equation. It is still too early to do this and we don’t yet have the required money. However, we were able to encourage a highly successful project with the Governor of Iowa – a statewide summit on employment for PwDs. We have met with him twice and he is committed on these issues. He is running for re-election and it is likely that he will win another term in office. Conduct three surveys to identify the messages that will win the support of the disability community, American leaders and voters. The first will be an online poll of self-identified Americans with disabilities and their families to find out how they view the issues and where P a g e 10 | 33 their priorities lie. The second will be a national phone poll of registered voters. It will have an oversample of Americans with disabilities and their loved ones. The third will be a phone poll of New Hampshire Presidential primary voters to inject disability issues into the 2014 Presidential campaign. All research will be used to find the best messaging for the disability community and will be shared broadly to dozens of non-profit organizations that champion the causes of people with disabilities, as well as with leaders who are willing to join our cause. Both political parties and all major Presidential candidates will be given equal access to polling data that shows what voters with disabilities care about. We completed a poll of 3800 PwDs and stakeholders. This poll required significant effort to create the right survey instrument and to persuade disability groups to email/Facebook and Tweet the survey to their own house lists. It was very important to share this data first and foremost with disability groups. Key data from the poll was also shared with the media, leaders, etc. The most important outcome was to confirm that PwDs want to work, and verify that they feel capable to succeed. We had a wonderful opportunity to add disability questions to a poll undertaken by Jerusalem U that investigated PwDs issues in the Jewish community. The poll had a sample size of 2607 Jews and received a massive amount of press in the Jewish media. This poll has been very instrumental in encouraging philanthropists to care more about PwDs issues in the faith community. See http://www.respectabilityusa.org/#!poll/c3mu. This followed a poll that the RespectAbility team conducted under Laszlo Strategies for the Foundation for Jewish Camp on disability inclusion. See http://www.jewishcamp.org/research. Become THE source of proven public opinion research on how Americans view people with disabilities and issues that impact them, and which messages work to bring increased support for the rights and opportunities for people with disabilities. Our report on our focus group with staff from Republican Capitol Hill/Think tank offices was very well received by the disability community. It was critically important to share the data of our major poll broadly inside the disability community as well as to leaders. This month we will release another major research memo. Create standard, professional and proven messages for spokespeople and organizations that are committed to promoting the rights and opportunities of Americans with disabilities. This has been a major focus of our work. We have created media and leadership training units, held conference calls and in person training seminars. However, not everyone or every group understands how the use effective messages can save them time/money and increase their positive impact. We also will not feel fully confident in our messages until we have completed a national phone voter survey, which will be expensive to do. We are especially proud of this document: http://www.huffingtonpost.com/jennifer-laszlo-mizrahi/10-tips-to-enable-people_b_4261901.html?1384567793 and all the toolkits on our website to help the disability community be more effective in advocacy efforts. P a g e 11 | 33 - Strengthen partnerships and coalitions between disability groups. Lead intensive personal sessions with the disability community’s key spokespeople to help them conduct winning television interviews. Produce and air television ads on CNN, MSNBC, FOX, and as well as online in the Washington area to highlight the importance of solving problems on disability issues. Ads will use the messages found in the focus groups and polls to win hearts and minds for results-driven public policies that will improve the lives of people with disabilities who want to become independent. RespectAbility was able to secure support from the creator of reality television shows, Jonathan Murray, as well as the scrip writing talents of award-winning Hollywood luminary Murray Siegel and the talent of MTV star and extreme sport champion T.J. Lavin who, due to a major extreme sport accident, was temporarily disabled. See (http://en.wikipedia.org/wiki/T._J._Lavin ). This trio worked together with our team with some additional support from Jack Harzman, to create our first-ever public service ad. The ad can me seen at www.RespectAbilityUSA.org. So far the ad has aired on CNN, MSNBC, FOX, Headline with help from COMCAST. Online it has received 1300 hits so far. See www.RespectAbilityUSA.org. We are eager to do more public service ads. One idea is to do a variation on super talents with disabilities. Here is a version from history. Others would focus on current talents. Script: Ability The screen is black. The sound of Beethoven's music. Dissolve to images of sheet music. ANNOUNCER (voiceover) Beautiful music from a deaf man? Dissolve to a portrait of Ludwig von Beethoven Superimpose text: Ludwig von Beethoven, Hearing Impaired Dissolve through to close up of the Declaration of Independence ANNOUNCER (voiceover) World changing words from someone with dyslexia? Dissolve to a portrait of Thomas Jefferson Superimpose text: Thomas Jefferson, Dyslexia ANNOUNCER (voiceover) P a g e 12 | 33 Generations inspired by a woman who can't see or hear? Dissolve to a portrait of Helen Keller Superimpose text: Helen Keller, Blind and Deaf CELEB ANNOUNCER Isn’t it time to see people with disabilities for the abilities they have? Respect the Ability. Imagine the possibility. Dissolve to logo Create and disseminate regular e-newsletters that will provide expert information, opeds and invitations to relevant training opportunities. This has been a major part of our work as the only way to ensure impact is through constant message repetition. So far there have been 159,012 total opens of our emails. That is, on average, 1,127 per email which is a healthy 12.32% open rate. We also have 4,678 clicks, with an average of 33 clicks /email. A full list of our emails is below in Appendix F. Write and place numerous opinion-editorials on disability topics in publications. Use social media to do outreach via Facebook (especially to policy makers and job creators), Twitter and in commenting online to media coverage on related topics. For a period of time we had a fellow, Lauren Gilbert, who was especially gifted at social media whose work was augmented by our fellow Evelyn Kelley. Evelyn’s talents have now been augmented by Donald Minor. Together they are working with a web pro, Serenity Hanley, on a new website which will launch soon. This website will be blind-accessible with all videos housed on YouTube so they will have captions for the hearing-impaired. So far we have sent 1657 Tweets and we have more than 2300 Twitter followers. We have 343 Friends on Facebook and more than 2500 likes. We post multiple times a day and have a very passionate following. 2.2 Get policy leaders, press and philanthropists the facts and contacts they need to support meaningful progress which can help empower people with disabilities to achieve the American dream of a job, freedom, equal rights and independence. Produce and disseminate direct invitations to 10,000 leaders, campaign consultants, reporters and nationally elected officials to invite them to an educational series and to introduce www.RespectAbilityUSA as a resource for solutions on empowering Americans with disabilities to have a better life. We need to make sure we don’t just know them…they need to know us as a can-do and trusted provider of facts that can help them in their goals of making America a better place. As you can see from the list above, we consistently invite these folks to conference calls and trainings on how to do media/advocacy. We hosted a very successful event with Governor P a g e 13 | 33 Markell. We have promoted the movies ‘CinemAbility,” “A Whole Lott More” and the “Reel Abilities Film Festivals.” We also promoted conferences on disability employment hosted by USBLN/US Chamber of Commerce, hearings on the disability treaty, events in Wisconsin with Gov. Scott Walker and in Iowa with Gov. Terry Brandstad. All of those events were well attended and successful. Help with key planning and design for a major conference on employment for people with disabilities that will be done with Georgetown University and the U.S. Chamber of Commerce. A goal of the event is to have President Obama speak out on this topic, and to get White House Chief of Staff Denis McDonough (a Georgetown alumni) engaged on enabling people with disabilities to have opportunities to achieve the American dream. RespectAbility found the organization of this conference to be too slow paced and switched efforts/focus to the National Governor’s Association meeting in Wisconsin where we were able to meet 1-1 with 16 Governors. We then focused on the NGA event in Washington where we met with many more governors. Design and implement sophisticated site visit tours for top leaders of model programs in disability work in Washington, D.C. and in New Hampshire. The D.C. tours will transport Capitol Hill staffers by bus to do site inspections of successful programs integrating people with disabilities into school inclusion programs, transition services which help people with disabilities get jobs, job and entrepreneur coaching programs which help people with disabilities achieve the American dream of having a job, being independent and more. The tours in New Hampshire will be for potential 2016 Presidential candidates and their staff as well as political reporters. All tours, like all our work, will be non-partisan. This is still a very important which we have yet to begin. However, just hosted two webinars, one with Project Search and one with JFGH’s MOST program. We are hosting a site tour of a Project Search site at the Smithsonian this spring. Recruit at least two-dozen disability groups to sign letters to foundations that encourage them to push for the creation of non-discrimination policies and practices at the organizations that they fund. Letters will also be created and sent to encourage religious institutions to stop hiding behind the ADA exemptions, as every American should have their religious rights. It will also be clear that religious schools, camps, institutions and places of worship should set the example (walk the walk) by being inclusive of people with disabilities. We completed stage 1 of this – we sent a letter from RespectAbility’s President to 400 major donors/foundations in the Jewish community. Press clips about the JFNA’s issues, and about the Pope’s progress were included in that mailing. However, we anticipate that we will be able to distribute a letter from a larger number of disability groups when we have a bigger group of fellows again this summer. For now we have prioritized the letters to governors, Hollywood and political consultants. Initiate media outreach on the broad coalition of disability groups asking funders to stop funding institutions that discriminate. P a g e 14 | 33 So far we have initiated two pieces on this topic – one in JTA and one in e-Jewish Philanthropy. We plan to publish a future piece in the Chronicle of Philanthropy. It is important to note that a copy of the letter that we sent to funders, plus the two press clips, was emailed to all our media lists. Rev. Bill Gaventa, a major thought leader on inclusion in the faith community shared that email with all his lists with an endorsement of our ideas on this front. Encourage elected officials to speak out in favor of improved employment prospects for people with disabilities. A key partner for this will be Governor Jack Markell (DE) who is Chair of the National Governor’s Association. He has made this issue a centerpiece of his tenure (http://www.nga.org/cms/home/about/initiatives-of-nga-chairs/col2-content/main-contentlist/2012-13-nga-chair-gov-jack-marke.html) and is willing to do much more to see a positive outcome. A key opportunity is to find leaders who will take on these issues when his term expires. With the help of Gov. Markell we have been able to meet 1-1 with 32 Governors so far but with a limited staff we have not been able to do as much follow through as we would like. However, we were able to help Gov. Scott Walker of Wisconsin, Gov. Terry Brandstad of Iowa, Gov. Phil Bryant of Mississippi and others in various statewide efforts. We recruited volunteers from around the country to push their own governors and trained them in how to succeed. We partnered with Donna Meltzer’s group of DD Councils and she gave us some assistance from her super talented Esme Grant. We were able to do a groundbreaking trip with other disability leaders to NJ to meet with Chris Christie’s team as well as the editorial board of the #1 paper in the state. We have also sent materials to the remaining 18 governors with whom we have yet to meet. In December we met Gov. Cuomo’s designated team. Going forward, our primary focus will be governors who are running for President. We are also focusing on Missouri where Gov. Nixon has committed to next steps, as well as on the Governors of Pennsylvania and Illinois who have also said they will move ahead. Virginia and Maryland pushes are also needed. Work to develop new Capitol Hill champions since Senator Tom Harkin, seen as Washington’s most devoted leader on disability issues, has announced his imminent retirement and Senator Ted Kennedy has died. Outreach to those interested, such as Rep. Cathy McMorris Rodgers, Rep. Pete Sessions, Sen. Mark Kirk, Sen. Elizabeth Warren, Rep. Brad Sherman will be important as each has recently indicated to RespectAbilityUSA’s CEO interest in playing a more substantive role in the future. We have become extremely close to the Congressional teams of Congress people Cathy McMorris Rodgers, Pete Sessions and Brad Sherman. We have ghost written op-eds for each of them on employment for PWDs. One has been published (http://thehill.com/blogs/congress-blog/healthcare/308499-finding-jobs-for-cole-and-hispeers), one is currently under consideration by the LA Times, and two more are in the approval process with the Congresspeople. As noted above, because the location of our office and because we don’t have a permanent office manager, we have not been able to P a g e 15 | 33 spend enough time yet on the Hill. But we do plan to do a major canvass of Capitol Hill prior to the Project Search/Smithsonian event so that they can be invited personally. RespectAbilityUSA’s CEO will also reaching out to Former Senator Rick Santorum and Former Governor Sarah Palin who are both parents to children with disabilities. Each of them has a strong grassroots following but is not yet known for being involved deeply in these issues. However, these groups have strong capacities and reasons to engage in helping people with disabilities “learn to fish” and celebrate their talents and gifts. Former Gov. Palin met, per our request, for a short chat and photo op with disability leaders. We organized a lunch with Ralph Reed, a major conservative leader, and disability leaders. Our CEO was able to speak 1-1 with Former Gov. Jeb Bush and Rep. Paul Ryan – both of whom may run for President. This summer we intend to speak with numerous conservative candidates when they gather at a summit in DC. Design and run a conference on May 2nd in Washington, DC on inclusion for children with disabilities to be welcomed and accommodated in camps and youth educational programs. Cosponsors will include numerous religious organizations as well as Washington Parent magazine. Speakers will include Professor Stuart Schleien and expert Aron Hall. (See http://www.pjll.org/content/tzedek-tirdof-pursuing-justice-may-2-2013) 150 people attended this event and it was a massive success. More than 20 groups cosponsored and the speakers were outstanding. Design and implement a conference on November 3rd in the Washington area on creating welcoming and inclusive faith-based educational and spiritual programs. This did not happen. However, we gathered a group of disability leaders at the Israeli embassy with Amb. Noam Katz and Israeli disability leaders. We also had a forum in our offices with other Israeli disability leaders and Jewish disability leaders. We were able to bring the White House disability liaison, Claudia Gordon, together with Israel’s Nalagaat dead-blind ensemble at the Kennedy Center. Host a series of conference calls and webinars on key topics of empowering people with disabilities. Topics will include best practices in evidence-based therapies, inclusion, transition services, job coaching, housing options, and how science is changing the future for people with disabilities. All of the target decision makers will be invited to these events. We hosted a major conference call with closed captioning but unfortunately the technology kept failing us. Since then we have done training calls on media and advocacy, but they did not have captioning. This has now been resolved and we had successful calls to release poll data. In the next two weeks we will host two calls to showcase best practices on transitioning young people with disabilities from school to work. Following that, we will host a call featuring Lori Golden from Ernst and Young who is an expert on disability employment from the business perspective. P a g e 16 | 33 Showcase concepts for helping people with disabilities to start their own companies and create jobs. This includes hosting a webinar on the creation of micro-enterprise project to provide seed funding for fledging and promising businesses. While we have not done a webinar, we have highlighted a lot of materials on these topics via social media (Facebook, twitter, emails). Soon we will build a toolkit for the web on this topic. 2.3 Give top-level decision makers the ability to make personal connections with people with disabilities and the programs in order to empower them to make these issues a much higher priority. RespectAbilityUSA will have an in-house fellowship program with preference for people with disabilities to learn how to be successful in policy and political skills. RespectAbilityUSA will help place these people in paying jobs in the political and policy sectors so they can be valued members of these teams. We have a very successful fellowship program. Still, it is hard to place people into jobs, as hiring freezes continue everywhere. Even so, all of our fellowship program alumni are far more work-ready than they were before. Some have now moved into competitive employment and others will return to school for graduate work. RespectAbilityUSA.org will also work to place young people with disabilities in political and policy internships and training seminars to engage them in the political process. Currently we are placing them with us. We need a lot more interested people! We have also placed one person with Rep. Brad Sherman. In New Hampshire and at pre-Presidential events/candidate forms RespectAbilityUSA will be present to build relationships with key leaders and journalists. These have not started yet. The best way for leaders, decisions makers and reporters to understand the true “disability story” is for them to see it for themselves as part of developing relationships on tours highlighting key issues. Reporters will get the facts that they need to cover disability issues accurately, and leaders the ability to make smart policies. RespectAbilityUSA will partner with key disability groups to get their help customizing special agendas and trips for leaders and journalists. Each field trip/site visit will have a customized agenda, ensuring that the leaders, decision makers and journalists are shown the facts to highlight ways to help people with disabilities become independent. This is a goal for this summer during Congressional recess. Site visits will be done primarily in two locations: Washington DC for national leaders and New Hampshire for the large group of potential Presidential candidates (many of whom are currently Governors or Senators). P a g e 17 | 33 Publications: RespectAbility’s President and team have published dozens of op-eds on disability issues. The most important op-ed pieces published were: A ghost written piece for a member of Congress that was in the Hill, (See http://thehill.com/blogs/congress-blog/healthcare/308499-finding-jobs-for-cole-and-hispeers) “How to” piece published first by the Autism Society and then adapted for Huffington Post (http://www.huffingtonpost.com/jennifer-laszlo-mizrahi/10-tips-to-enable-people_b_4261901.html?1384567793) and A very important piece in the #1 circulation paper in America, USA Today (see http://www.usatoday.com/story/opinion/2013/09/25/jennifer-laszlo-mizrahi-ondisabilities/2860765/) For the Des Moines Register, where Gov. Brandstad has been making progress: https://www.shreveporttimes.com/article/D2/20140217/OPINION02/302170021/Another -View-Iowa-should-help-disabled-find-work For the Milwaukee Journal-Sentinel where Gov. Walker has been making progress: http://www.jsonline.com/news/opinion/jobs-for-people-with-disabilities-is-vital-forwisconsin-b99178519z1-238969011.html For the Clarion Ledge in Mississippi where Gov. Bryant has been making progress: http://www.clarionledger.com/article/20140121/COL10/301210016/People-disabilitiesdeserve-attention Most of the pieces, however, have been in four publications where Mizrahi has regular ties/columns: Huffington Post (http://www.huffingtonpost.com/jennifer-laszlo-mizrahi). New Normal/NY Jewish Week (see http://www.thejewishweek.com/solr/%22jennifer%20laszlo%22 Times of Israel (see http://blogs.timesofisrael.com/author/jennifer-laszlo-mizrahi) The Washington Jewish Week (see http://washingtonjewishweek.com/?s=Jennifer+laszlo+mizrahi) SUMMARY AND NEXT STEPS Overall, RespectAbility is much further ahead than anticipated on some goals, in particular our work with governors, basic polling, database development and outreach to different constituents. Much of our success is due to the efforts of Gov. Jack Markell in his NGA initiative, plus our Fellows. Many of our challenges are due to lack of funding, our current location outside of Washington DC and lack of a permanent staff person to run the office and supervise/mentor the Fellows. Going forward we will focus programmatically on the following initiatives and events, however, none of this will be possible without funding for office space, a full-time permanent in-house P a g e 18 | 33 staff person to manage the RespectAbility office and supervise/mentor the Fellows. This would free up our President/CEO Jennifer Laszlo Mizrahi to focus on contacts, training, fundraising and taking the steps necessary to propel RespectAbilityUSA’s work to the next level. We also need funds for vital program work, especially the public opinion research and the development of public service ads/materials that can start to change public perceptions of people with disabilities. Public Opinion Research As a strategic communications organization focused on empowering people with disabilities to achieve the American dream, step one for our organization is always public opinion research. To date, RespectAbility’s team has conducted 4 polls on disability issues — one nationwide sample of voters with Stanley Greenberg, PhD of Greenberg Quinlan Rosner Research, one of the landscape of opportunities for children with disabilities at overnight Jewish camps on behalf of the Foundation for Jewish Camps, one of 3,800 Americans (half with disabilities and half loved ones and professionals) on employment, and lastly a poll on faith issues with Jerusalem University. Additionally we have conducted three focus groups in Washington, D.C. of senior Republican Hill and think-tank professionals, working age individuals with disabilities seeking employment and professionals and loved ones of working age people with disabilities. This research provided important insights into the disability community and gave us a glimpse into the real and perceived obstacles to achieving the American dream. However, this is barely the tip of the iceberg. We must conduct additional focus groups with Hill Staff, opinion elite voters, young people, CEOs and small business employers, teachers and administrators, parents of PwDs, and of course PwDs themselves. This qualitative research must be followed by a quantitative study of American voters, conducted with a bi-partisan team so that results can be shared and accepted widely in the halls of Congress and up and down K Street. Paid Fellowship for College Graduates with Disabilities RespectAbility is proud to have a “Nothing about us without us” philosophy and our team has numerous members who are self-advocates with disabilities. We will continue to recruit and train college-educated people with disabilities for placement in policy and media jobs. It is vital to raise money for a day-to-day manager of this program who can mentor young leaders and prepare them for success. Elite Private School Accessibility Numerous studies demonstrate that a disproportional number of the top CEOs and leaders (top employers and policy makers) in America hail from a small group of elite private high schools which are feeder schools into Ivy League universities and other institutions. These schools routinely do not include PwDs in their student bodies or faculties. Leaders entering these schools in 2015, the 25th Anniversary of the ADA, will be America’s leaders starting in approximately 2025. Yet this elite pipeline gives them little to no contact with people with disabilities during their formative years, impacting attitudes and presumably future hiring and other practices. P a g e 19 | 33 We plan to create a “report card” for the top private schools in America so that they can do their own internal strategic plans to become inclusive. To do this, we will develop a questionnaire on inclusion practices in the schools. The questionnaire will include questions such as—is there an inclusion/diversity statement on their website? Are the campuses physically accessible? Are students who are academically qualified excluded based on a disability? How many students with disabilities attend the school? Are qualified faculty with disabilities on the team? We will also conduct focus groups of academic admission officers, heads of schools, and board members from elite preparatory and private schools on inclusion of students with disabilities. We will write, design, and distribute a full formal report on the findings of the “report cards” and research. Creation of public service materials that show the ABILITIES of people with disabilities Our plans going forward include: 1) Winning hearts and minds for inclusion: Focus groups and a poll to test what messages and images will make people WITHOUT disabilities more open, aware, and engaged in supporting inclusion of people WITH disabilities. 2) A picture is worth 1,000 words: Photo contest for best photos to capture people with disabilities included in the workforce and other aspects of life. 3) Public service ads (video/print creation in support of inclusion for people with disabilities) for broad use and also for Jewish Disabilities Awareness Month and beyond. 4) 25th Anniversary of ADA – An Inclusion Scorecard for religious organizations. 5) Library inclusion project- Creating a partnership to encourage the creation and dissemination of children’s books that have themes and characters with disabilities included in normal life. The importance of education and formative images in creating an inclusive community can never be understated. Fundamental to all of this work, however, is the need to have better public opinion research to determine which messages will resonate to those who are not YET with us on inclusion, and who we need for success. In addition to the major initiatives listed above and throughout this document, the following are upcoming events and projects that will be keeping the RespectAbilityUSA team very busy. April Disseminate webinar from events on promising practices with Project Search and FJGH’s MOST Program Release new resource kit for policy makers on employment for people with disabilities Speaking at national disabilities conference Launch new website for RespectAbilityUSA.org National Autism Awareness Month April 7-9 - Disability Advocacy day Release new resource kit for job-seekers with disabilities Release poll numbers on how PwD community views Hollywood and News Media. Event to be done with two members of Congress (one Democrat, one Republican) Event on promising practices for employers with Lori Golden of EY P a g e 20 | 33 Move to new office space? Focus groups of Capitol Hill staff Launch new advocacy program to enable grassroots to write to leaders and editors Invite Hill and Governors’ staffs to Project Search Tour at Smithsonian May May 1 - RespectAbility to address disability issues at major Smithsonian event on ADA May 2-8 - Mental Health Month National Children’s Mental Health Week May 4-9 - National Anxiety and Depression Awareness Week May 12-18 - Mental Health Awareness Week May 19 – 25 - National Schizophrenia Awareness Week May 28 or 29 – Project Search event at Smithsonian Letters from disabilities groups to governors, political consultants, Hollywood, Foundations National Poll of Voters Private school scorecard Last day for key fellows June Summer site visits for Congressional and Governors staff as well as media to best proactive sites June 27 - National Post-Traumatic Stress Disorder Awareness Day National Press Club event with Seattle Seahawk’s Derrick Coleman New PSA on successful people with disabilities Conference call with USBLN/AAPD on Employer Scorecard and best practices Webinar for political consultants and elected officials on how to reach out to voters with disabilities Photo contest for best images of PwDs in integrated work July July 26 - Encourage people/groups to set goals to accomplish, the 25th anniversary of ADA, help create a sense of urgency for senate races next fall National Governors Association meeting in TN RespectAbility National Training on Winning Hearts and Minds for So People with Disabilities Can Achieve the American Dream (to be held in US Capitol) September National Deaf Awareness Month October National Disability Employment Awareness Month ADHD Awareness Month National Down Syndrome Month Rett Syndrome Awareness Month Disability History and Awareness Month Learning Disability Awareness Month October 3 – 9 - Mental Illness Awareness Week (MIAW) October 9 – 15 OCD Awareness Week October 10 - World Mental Health Day P a g e 21 | 33 November Epilepsy Awareness Month November 9 – 15 - Mental Health Wellness Week December December 3 - International Day of Persons with Disability (United Nations) APPENDIX A Letter we sent to Hollywood/Television/Film leaders (below is the TV version) Dear As you are a major thought and culture leader, I am writing to ask for your help to reshape attitudes so that people with disabilities can more fully participate in and contribute to society. We know that by putting people with disabilities on television – in scripted television, reality television, the news and in jobs behind scenes -- you can help empower people with disabilities to achieve as much of the American dream as their abilities and efforts permit. As you know, media plays a critical role in society. In addition to its entertainment and news value, media contributes to the values and ideals that define us; and what we desire to share with our children. What we see, we feel. And what we feel, impacts how we act. What is the media if not to be both a window and a mirror? To shine light in the shadows, to help us see what we might not otherwise see? After all, doesn’t all art aspire to give the viewer an understanding of other lives? We encourage you – just as we encourage businesses in every sector - to recognize the disability but respect the ability. We ask that your work focus on what people with disabilities can do, rather than on what they cannot. We are asking you to use the power of media to help move the needle of perception regarding people with disabilities (PWDs). Orson Welles said, “The enemy of art is the absence of limitations.” And while he wasn’t talking about physical or cognitive limitations, the point is the same. Limitations are, ironically, inspirational. The differences we see in people with disabilities give them strength, insights, and perseverance that they might not otherwise find within themselves. Including characters and real people with disabilities in television shows and the media reveals the essence of our humanity. They offer visual shorthand through images that evoke deep emotions that human bodies and minds are fragile. They are easily damaged, broken, changed. And they remind us, too, that we are all vulnerable; we are all less than perfect. And still, we can all adapt and succeed. But let’s put emotions aside for a moment and focus on the potential economic benefits of including stories about or characters with disabilities in your projects. People with disabilities P a g e 22 | 33 (PWD’s) represent the largest minority group in America. According to the U.S. Census, 56 million Americans have disabilities. A national poll found that 51% of Americans either have a disability or a loved one with a disability. So PWD’s make up a huge number of potential viewers. There are more than 1.2 billion PWDs living worldwide. In the U.S. alone, the Census Bureau found that consumers with disabilities already spend more than $200 billion each year. By showcasing more characters with disabilities and real people with disabilities in the media you help people with disabilities enhance their image and you, in turn, gain more audience share. Sadly, however, 70% of working age Americans with disabilities are out of the workforce – compared to 28% of Americans without disabilities. Your work has the power to help change that. And as PWDs are more included in the workplace, they will become an even larger consumer pool for your work. We hope that you will do even more to hire people with disabilities at your organization – both to be in front of the camera and behind the scenes and they can be amazing talents who can help you go from strength to strength. PWDs should be represented in media in ways that reflect the real world and the progress we hope to make in it. While their stories are inspiring and fascinating, how much better to normalize disability into the fabric of every story: When the audience is accustomed to seeing an office worker who happens to be blind or a teacher who uses a wheelchair on the big screen, they cannot help but being more accepting of people with disabilities in their lives and workplaces. Movies have shown some strong successes. Why are Dustin Hoffman's portrayals of Ratso Rizzo in Midnight Cowboy or Raymond Babbitt in Rainman seared in our memories? Why is it impossible to forget Daniel Day-Lewis as Christy Brown in My Left Foot? Who doesn't remember - and love Tom Hanks as Forrest Gump? How did Thomas Horn as the young Oskar Schell in Incredibly Close and Extremely Loud give unexpected raw emotional depth to the story? Actors love playing these characters because people with disabilities learn to transcend the limitations their minds and bodies impose to discover a depth and humanity that makes them both more complex and simpler than first impressions suggest. Because of the way they experience the world, people with disabilities are often so very exciting. But rather than urge you to produce more movies or documentaries about people with disabilities as a central focus, we envision a day when you cast actors or create roles without regard to their "differentness" but because of the "uniqueness" borne of the strength and power their disabilities endow them with. Indeed, television’s Michael Fox's Parkinson and on Homeland Claire Danes' Carrie Mathison's bipolar disorder are central to both their characters and their shows' stories, the fact that Al Robhins on CSI lost both legs in an accident or the stiff, hesitant gait Michael Emerson gives Harold Finch on Person of Interest, contestant Justin LeBlanc on Lifetime’s Project Runway are not the focus makes these portrayals more powerful. They are simply doing their job, living their lives, confronting the world as ordinary people. We celebrate Fox with Glee, Sundance Channel with Push Girls and others. But they are too few and far between on television. Still, your audiences have seen people like them in the market, at the park, in your neighborhood. They could be your brother, your sister, your mother or father... They might even be you. People with disabilities are everywhere around us. And if what we watch is meant to be a heightened reflection of the real world they should be in our television shows and movies, too. P a g e 23 | 33 We are advocates for people with disabilities; we hope you, too, will be advocates for this underrepresented, underutilized, but ultimately all too human cohort. No art passes our conscience in the way film does, and goes directly to our feelings, deep down into the dark rooms of our souls. - Ingmar Bergman With one television show or film you can do so much to change the world's ideas about, reactions to, and perceptions of people with disabilities. Image how much impact your shows will have when a person with a disability is just another character. Right now we are doing a poll of 3,000 PWDs and have included some questions about how they are portrayed/covered in entertainment and the news media. I will share the results with you when they come out. Thanks for your consideration! Sincerely, Jennifer Laszlo Mizrahi President, RespectAbilityUSA P.S. I would welcome a chance to meet with you anytime you are in Washington. Meanwhile, please let me know if I can ever be of help to you as you think about the inclusion of PWDs in your work – either in front of the camera or in roles behind it. People with disabilities have real talents and are ready for the task! APPENDIX B Letter sent to Political Consultants Dear Political Consultant, As a political consultant your top goal is for your clients to win elections. But did you know that 20% of Americans have a disability and that 51% of likely voters either have a disability or a close friend or family member with a disability? These are voters you should be speaking with – and we will help you do it for FREE. RespectAbilityUSA is a brand new non-partisan, non-profit organization that understands that ALL Americans want to achieve the American dream. This includes Americans with physical, mental health, intellectual and sensory disabilities. RespectAbilityUSA works with stakeholders across the political and disability advocacy fields. We know that the Americans with Disabilities Act changed the architecture so Americans with disabilities have more opportunities. But what it did not change was attitudes. That is where we would like your partnership. When you do political polling, please add to your demographics a question to ask if the person has a disability or a close friend or family member with a disability. When your clients make their campaign P a g e 24 | 33 websites – encourage them to make it blind accessible. With new apps, blind people can read everything on websites that are set up correctly. When you make TV /web ads, include closed captioning which is now very fast, easy and cheap to do. If you need help on any of this, don’t hesitate to contact me! Currently 70% of Americans with disabilities who are working age are outside of the work force. Our top goal is for Americans with disabilities to have jobs so they can get hands up instead of hand-outs. The National Governors Association has made this a top policy agenda item, and this week we were able to meet one on one with 16 of America’s governors (some of whom may be your clients). Stay up to date with the latest developments in regards to issues affecting this crucial constituency. Visit our website www.respectabilityusa.org. “Like” us on Facebook. Follow us on Twitter. Also, please contact me with any comments, suggestions, or questions at JenniferM@respectabilityusa.org and (240) 744-7546. Let’s work together to ensure each American has the access and opportunity to achieve the American dream regardless of ability. All the best, Jennifer Laszlo Mizrahi President, www.RespectAbilityUSA.org APPENDIX C Letter to Funders asking them not to fund discrimination Dear (insert name) Happy Holidays! I am writing to you as an advocate and a fellow funder of non-profits. Earlier I sent you a letter for funding for RespectAbilityUSA, which works to empower people with disabilities (PWDs) to achieve the American dream. Now I am writing you about something that won’t cost you a penny – but will help raise awareness for people with disabilities. I am asking you to add a few simple questions to your grant applications about inclusion of people with disabilities. I am not telling you how to spend your philanthropic dollars. You have every right to give to every cause you deem worthy, but by mentioning any or all of the following sample questions enclosed you have an opportunity to create a ripple effect of consciousness-raising about inclusion and civil rights of people with disabilities in numerous organizations throughout the world. Talk about bang for your buck! Here you get to proactively help the cause of inclusion without it costing you a penny! Now, you might ask, isn’t it already illegal to discriminate against people with disabilities? Well, actually, religious organizations are EXEMPT from the Americans with Disabilities Act. Sadly, people with disabilities are regularly denied access to religious schools, places of worship, camps and activities. Some organizations are doing outstanding work, but often it is in segregated programs and separate is not equal. Our family foundation followed the lead of The Ruderman Family Foundation, J.E. & Z.B. Butler Foundation and others who ask a series of questions which I have enclosed. I have P a g e 25 | 33 published literally dozens of op-eds that specify what discrimination is going on and what can be done about it. I would be very happy to speak with you at any time. My number is 202 365 0787. Thanks for your consideration! Sincerely, Jennifer Laszlo Mizrahi President, RespectAbilityUSA Co-founder/director, Mizrahi Family Charitable Trust (done through Vanguard Free way to promote civil and equal rights! Questions for you to ask to all the non-profit organizations you fund: In a total of no more than two pages, please answer the following questions. Please attach any relevant sample policies. 1. Does your organization have policies and/or programs that support meaningful inclusion of people with disabilities at all levels? If yes, please describe; if not, please indicate efforts underway to develop them. 2. Does your organization have a disability advisory committee / inclusion committee? If so, please describe; if not, please indicate efforts underway to develop one. 3. Will the program or project include people with disabilities? Will ALL people with any kind of disability be welcomed to participate? If not, why not? If so, how do you plan to identify, reach, and welcome them? 4. Do other programs in your organization include people with disabilities? Please discuss, including if they are served in a segregated way, or if they are included in with the general population. 5. Describe the accessibility of your offices to people with physical disabilities. 6. Describe the accessibility of your website to people with hearing and vision impairments. 7. Do you employ individuals who have disabilities? If so, what are their jobs? Do they receive the same compensation and benefits as all other employees in like positions? If not, please describe all remedial efforts underway. 8. Please describe how you educate your Board of Directors or Trustees and other stakeholders and leaders about serving and partnering with people with disabilities. Thank you! P a g e 26 | 33 For information contact: Jennifer Laszlo Mizrahi, President, www.RespectAbilityUSA.org 202 365 0787 or JenniferM@RespectAbilityUSA.org APPENDIX D Letters to Governors requesting a first meeting at the NGA event Dear Governor …… On behalf of RespectAbilityUSA, Autism Society of America, The National Federation of the Blind, Best Buddies International and USBLN we are writing to request a meeting when you are next in Washington. We were at the recent NGA meeting and met 1-1 with 16 of your colleagues, Governors from others states. As we did not yet get to meet with you yet, we want to request a meeting when you are next in Washington. We endorse the new ideas by the National Governors Association, “A Better Bottom Line: Employing People with Disabilities,” and hereby ask you to do much more to enable Americans with disabilities to achieve the American dream – a real job at a real wage. Sadly, while the Americans with Disabilities Act (ADA) has helped society, the percentage of Americans with disabilities who are outside the workforce is exactly the same as it was before the ADA was passed in 1990 (70%). Thus your efforts on this front are vital. We know that under your leadership your state can enable Americans with disabilities to have the ability to achieve independence, dignity, community and more. We sincerely hope you will host a statewide summit on disability employment that includes companies, people with disabilities, non-profits, faith leaders, media, government, philanthropists etc. The goal of the summit would be to start a process that involves all the sectors to break the deadlock of poor performance by meaningful public-private partnerships and new thinking. We also urge you to: Make specific commitments to improving the numbers of people with disabilities who are employed in a real job for a real wage, as well as for disability owned businesses to be created and expanded through best practices, state procurement and other policies. Support a change in focus from a failed system of “from cradle to dependency” to “from cradle to job and independence” thinking. This “Employment First” thinking P a g e 27 | 33 means that public school and other services, including transition efforts, must be geared toward successful employment opportunities and that schools be measured on their success. For your disability jobs/new business summit to create a public-private partnership/task force reporting directly to you in order to achieve specific employment goals both in your own hires and outside of the public sector. Use your office and leadership to promote progress through personal statements/opeds/media events on this issue. We hope that you will focus on employment issues not only during disability awareness month but throughout the year as well. This is important not only for hiring people with disabilities but also for empowering them to start their own companies. Hold people accountable for better outcomes in the public and private sectors so people with disabilities in their state can be empowered to achieve the American dream. We celebrate the new toolkit offered by the National Governor's Association (see (http://ci.nga.org/cms/home/1213/index) and hope you will both follow its recommendations in full and will call on us if you need any information and/or support. America cannot afford to have more than 10 million Americans sit at home on the sidelines when they can help make America stronger – and want to work. Keeping a disability unemployment compensation system that costs taxpayers $450 billion a year is financially unsustainable. As a nation we need people with disabilities, especially young people with disabilities, in the competitive workforce at fair, competitive wages. Every American who can work should be encouraged to do so. We know that the next NGA initiative is America Works: Education and Training for Tomorrow’s Jobs. We hope that this new initiative will include people with disabilities and that with this work we will only go from strength to strength. We hereby look forward to meeting with you when you are next in Washington, D.C and offer our support and help on this work. Thank you for your leadership on this and other issues. We look forward to working with you and your team in the future. Sincerely, Jennifer Laszlo Mizrahi, President, RespectAbilityUSA.org Scott Badesch, President, Autism Society of America Jill Houghton, Executive Director, USBLN John Pare, Executive Director for Advocacy and Government Relations, National Federation of the Blind Lisa Derx, Vice President, Best Buddies International APPENDIX E Update on Governors’ Work on Employment of PwDs Since the NGA report came out, the speed in which some of the governors are moving is outstanding. For example: • Governor Scott Walker (R-WI) quickly improved policies and practices and made it a key point in his State of the State address. He has expanded to 20 Project Search sites in his state, P a g e 28 | 33 which will help young people with disabilities go straight into jobs instead of a life of dependency. He has become a role model for expansion of opportunities for people with disabilities. • Gov. Dennis Daugaard (SD) did the same in his State of the State address and has created a very specific plan to move ahead. Both of Gov. Daugaard’s parents are deaf, he has a special understanding of these issues. • Iowa’s Governor Terry Brandstad has been working with Sen. Tom Harkin on solutions. He hosted a statewide summit on jobs for people with disabilities and is working systematically to make progress possible. • Governor Rick Scott (FL) recommended and the Florida Legislature approved $500,000 this year to fund job internships and Supported Employment for people with developmental disabilities. This is in addition to programs that provide job coaches to more than 3,000 people with developmental disabilities. • Governor Jerry Brown’s California Department of Rehabilitation (DOR) is sharing best practices that were initiated through membership on the CSAVR National Employment Team (NET) — which works with employers to meet their business needs in the hiring and retention of individuals with disabilities. The DOR is engaged in many promising practices which have positively impacted the employment of people with disabilities, including new partnerships with Lowe’s and Safeway. • Governor Pat Quinn of Illinois started “employment first policies.” • Governor Nathan Deal of Georgia committed to focus on employment for PwDs at a rally with the Georgia Council on Developmental Disabilities (http://www.gcdd.org/component/tags/tag/2-disability-day.html). Governor Markell of DE and his team are the farthest along. The state helped bring together the IT firm CAI and an international organization called Specialisterne, which is dedicated to employment of individuals with autism. CAI is committed to hiring people who have autism for more than 3% of its workforce by 2015, recognizing that these individuals are especially qualified for technology roles. The Governor has advanced the Specialisterne model within his administration and several departments have hired or are actively recruiting through Specialisterne. Governor Markell’s initiative created a major spark in Delaware’s Department of Labor with an increase of 8.6 % of individuals with disabilities becoming actively employed from 2011 to 2013 and Delaware is utilizing options available through the Medicaid program to expand community resources and services to create Pathways to Employment. The Health Care Association made up of Delaware’s hospitals has signed on to the Governor’s initiative and is developing internships, expanding Project Search and building recruitment from these efforts into employment. APPENDIX F BLAST EMAILS The completed list of RespectAbility’s blast emails is below. There have been 159,012 total opens, P a g e 29 | 33 1,127 per email, 12.32% open rate, 4,678 clicks, and 33 clicks /email: DATE EMAIL BLAST TITLE 3/20/2014 Do you know of free or cheap office space in DC area? We’re looking… 3/18/2014 Invite to two free events on jobs for people with disabilities 3/16/2014 Lots going on! Keeing you in the loop… 3/14/2014 RespectAbility Congratulates JCPA: Unanimously Passes Inclusion for People with Disabilities 3/12/2014 Congratulations to Gov. Bryant and Mississippi for standing up for people with disabilities! 3/5/2014 Will you be in Miami? I’d love to see you! 2/27/2014 Can you help us recruit terrific young leaders for this fellowship? 2/26/2014 Can you share this public service ad with your grassroots? 2/25/2014 Invite to events at JFN conference 2/21/2014 NGA Meeting: Governors making key progress on jobs for people with disabilities 2/18/2014 Reminder: Conference Call Today 2/17/2014 I hope you’ll join us for these 2/15/2014 MTV’s TJ Lavin, Gov. Jack Markell, Rep. Pete Sessions, Rep. Brad Sherman and Gold Medalist Matt Cowdrey Join RespectAbilityUSA 2/14/2014 Invite to JDAM Conference call on Inclusion in the Jewish Community 2/13/2014 Invite to events at JFN conference 2/13/2014 Urgent request: Can you please take a minute to make a difference? 2/11/2014 TJ Lavin Stars in New PSA on disability 2/5/2014 Lots of news! 2/5/2014 Invite to event with celeb & elected officials – NOTE TIME CHANGE 2/2/2014 POLL + 56 Million Americans with disabilities will win the Super Bowl! 2/1/2014 Don’t miss out – GREAT movies! 2/1/2014 Before you watch the Super Bowl… check this out… P a g e 30 | 33 1/30/2014 New Poll on faith in disability community released 1/28/2014 State of the Union, big news plus 100K award 1/27/2014 Invite to session with Gov. Markell, TJ Lavin and Rep. Pete Sessions 1/21/2014 10 Tips to Enable People with Disabilities to Get Jobs 1/15/2014 Open letter to elected officials, public servants and political consultants 1/14/2014 Invite to session with Gov. Markell and Rep. Pete Sessions 1/10/2014 Poll release at 1:30 ET Today 1/8/2014 You’re Invited: January 10th Free Webinar – New Poll of 3800 people in disability community on jobs for people with disabilities 1/8/2014 Breaking News: Call today at 2 pm on 9/11 Disability Fraud & Jobs for PWDs 1/7/2014 Please see my oped on Jobs for People with Disabilities 1/7/2014 Woo Hoo! Something to warm you up on a cold day! 12/30/2013 Yes, this is a shameless fundraising appeal… last chance for a 2013 tax deduction too! 12/29/2013 I’ve already sent you 2 emails on this… I hope 3 is a charm… sorry to be a nudge! 12/27/2013 This holiday, help people with disabilities achieve the American dream 12/22/2013 Make sure your donations don’t fund hate and discrimination! 12/20/2013 Happy Holidays from RespectAbility 12/10/2013 Hate crimes DOUBLED! Organ transplant denied to child with disability! 11/29/2013 This holiday, can you be a hero? 11/26/2013 Happy Holidays and More! 11/25/2013 Request to put more people disabilities (PWDs) in your work on TV! 11/24/2013 Can you help us recruit terrific young leaders for this fellowship? 11/22/2013 I already sent you 2 emails on this... here's hoping 3 times is a charm! 11/17/2013 Reminder... hate to be a nag P a g e 31 | 33 11/14/2013 If you donate to charities (especially faith-based ones), read this! 11/13/2013 Very important survey – your help is needed! 11/12/2013 Can you help on this? 11/10/2013 Good news from Washington...REALLY! 11/6/2013 Your opinion wanted in new poll! 11/1/2013 Free Media and Advocacy Training by Phone 10/31/2013 Can you be a hero today? 10/30/2013 Last chance to have your donation doubled with JFN matching grant 10/28/2013 Free Media and Advocacy Training by Phone 10/23/2013 Can you join us for breakfast tomorrow? 10/21/2013 Two great events – including Ben Affleck and Jamie Foxx 10/18/2013 Three great events! 10/17/2013 Good news from Washington (Really, I mean it) 10/16/2013 Can you join me for this? 10/14/2013 Free lunch with the Governor 10/11/2013 Free lunch with the Governor 10/9/2013 PEW Poll and helping keep Jews Jewish… 10/8/2013 Did you see 60 Minutes? Now get the REAL scandal… 10/8/2013 Special Event Invitation with the Governor and More 10/7/2013 Special Event Invitation with the Governor 9/30/2013 Washington may be shutting down…but we're going strong… 9/26/2013 600 leaders to gather to discuss employment for people with disabilities 9/25/2013 My piece in USA Today today 9/23/2013 How to call a child with a disability 9/19/2013 Invite to free fundraising and media training next week 9/18/2013 Wisconsin Summit P a g e 32 | 33 9/18/2013 USBLN Media Advisory 9/15/2013 Can you do this? P a g e 33 | 33