UCD Geary Institute, Institiúid Geary UCD, University College Dublin, An Coláiste Ollscoile, Baile Átha Cliath, Belfield, Dublin 4, Ireland Belfield, Baile Átha Cliath 4, Eire T +353 1 716 4637 www.ucd.ie/geary F +353 1 716 1108 E-mail: geary@ucd.ie EVALUATION OF THE OVERALL SUCCESS AND IMPACT OF READY, STEADY, GROW FOR YOUNGBALLYMUN Appendices UCD GEARY INSTITUTE & UCD SCHOOL OF PSYCHOLOGY July 2013 Contents APPENDIX A: READY, STEADY, GROW SERVICE DESIGN AND IMPLEMENTATION ............................................... 3 TIMELINES ............................................................................................................................................................. 3 A.1 A.2 KEY MILESTONES IN THE READY, STEADY, GROW SERVICE DESIGN...................................................................... 3 KEY READY, STEADY, GROW IMPLEMENTATION ACTIVITIES ............................................................................... 4 APPENDIX B: READY, STEADY, GROW LOGIC MODEL ......................................................................................... 9 APPENDIX C: READY, STEADY, GROW IMPLEMENTATION PLAN ....................................................................... 10 APPENDIX D: FURTHER INFORMATION ON THE PCPS ....................................................................................... 22 D.1 D.2 PCPS VISITS........................................................................................................................................... 22 REFERRALS TO COMMUNITY-BASED SERVICES ................................................................................................ 22 APPENDIX E: E.1 E.2 CRITERIA FOR IDENTIFYING SIMILAR PROGRAMMES ........................................................................................ 24 DESCRIPTIVE INFORMATION ON SIMILAR PROGRAMMES .................................................................................. 26 APPENDIX F: F.1: F.2 FURTHER INFORMATION ON SIMILAR PROGRAMMES ................................................................ 24 TECHNICAL AND STATISTICAL TERMINOLOGY ............................................................................. 28 PERMUTATION TESTING............................................................................................................................ 28 READING STATISTICAL TABLES .................................................................................................................... 29 APPENDIX G: FURTHER INFORMATION ON ETHICAL APPROVAL AND CASE STUDY .......................................... 31 DESIGN ................................................................................................................................................................ 31 G.1 G.2 ETHICAL APPROVAL ................................................................................................................................. 31 CASE STUDIES ......................................................................................................................................... 31 APPENDIX H: FURTHER METHODOLOGICAL INFORMATION ON STAKEHOLDER ............................................... 32 INTERVIEWS......................................................................................................................................................... 32 H.1 H.2 H.3 H.4 H.5 H.6 STAKEHOLDER INTERVIEWS METHOD .......................................................................................................... 32 DEVELOPMENT OF INTERVIEW SCHEDULES ................................................................................................... 32 SAMPLING ............................................................................................................................................. 32 PILOT STUDY .......................................................................................................................................... 33 STAKEHOLDER INTERVIEW PROTOCOL ......................................................................................................... 33 STAKEHOLDER INTERVIEW ANALYSIS PROCEDURE .......................................................................................... 33 APPENDIX I: I.1 I.2 SCHEDULE FOR CAPACITY BUILDING INTERVIEWS ............................................................................................ 35 COLLABORATION INTERVIEW SCHEDULE ...................................................................................................... 38 APPENDIX J: J.1 J.2 J.3 APPENDIX L FURTHER METHODOLOGICAL INFORMATION ON STAKEHOLDER SURVEYS ................................ 42 STAKEHOLDER SURVEY METHOD ................................................................................................................ 42 STAKEHOLDER SURVEY SAMPLING .............................................................................................................. 42 SURVEY INSTRUMENT DEVELOPMENT ......................................................................................................... 42 APPENDIX K: Part 5 STAKEHOLDER INTERVIEW SCHEDULES ....................................................................................... 35 SURVEY DESCRIPTION AND SOURCES ........................................................................................ 44 45 STAKEHOLDER SURVEYS ............................................................................................................ 47 i L.1 L.2 SURVEY DISTRIBUTED FEBRUARY 2012........................................................................................................ 47 SURVEY DISTRIBUTED IN OCTOBER 2012 ..................................................................................................... 58 APPENDIX M: STAKEHOLDER SURVEY RESULTS............................................................................................. 72 APPENDIX N: PCPS INSTRUMENTS ............................................................................................................... 91 N.1 N.2 N.3 N.4 N.5 PARENTING STRESS INDEX ........................................................................................................................ 91 PARENTING SENSE OF COMPETENCE ........................................................................................................... 91 STRANGE SITUATION PROCEDURE .............................................................................................................. 92 EARLY CHILD MOTHER INTERACTION CODING SYSTEM (CITMI-R) ................................................................... 93 MANUAL OF DEVELOPMENTAL DIAGNOSIS – GESELL DEVELOPMENTAL SCHEDULES: ............................................ 93 APPENDIX O: ANALYSIS OF PCPS OUTCOMES DATA ..................................................................................... 94 APPENDIX P: PCPS OUTCOMES COMPARISON ANALYSIS ............................................................................. 95 APPENDIX Q : BASELINE CHARACTERISTICS COMPARISON ............................................................................ 96 APPENDIX R: PFL COMPARISON ANALYSES ................................................................................................... 97 APPENDIX S: ADDITIONAL COMPARISON ANALYSES: PCPS TREATMENT GROUP VERSUS PCPS COMPARISON GROUP ........................................................................................................................................ 100 APPENDIX T: SURVEY WITH NON-PARTICIPANTS ........................................................................................ 106 APPENDIX U: ENGAGEMENT AND ATTRITION ANALYSES VARIABLES ......................................................... 114 APPENDIX V: ADDITIONAL TABLES FOR ANALYSES OF PSPCP OUTCOMES ................................................... 115 APPENDIX W: ADDITIONAL ENGAGEMENT AND ATTRITION ANALYSES ...................................................... 129 APPENDIX X: FICTIONAL CASE AND SOURCES ............................................................................................ 137 ii Appendix A: Timelines A.1 2006 2007 Ready, Steady, Grow Service Design and Implementation Key Milestones in the Ready, Steady, Grow Service Design September youngballymun formally launched October The Community Mothers Programme and a Prenatal Parent Support Programme (based on Nurse Family Partnership model) recommended for implementation in youngballymun’s Strategy Submission to OMCYA & AP January Community Mothers – opt not to go into partnership with youngballymun youngballymun undertake a literature review to identify proven models of antenatal and parent support for parents of 0 – 2 year olds youngballymun undertakes a mapping exercise of existing services for parents of 0-2 year olds September The Antenatal and Parent Support Service Design Teams (SDT) established DCU School of Nursing contracted to undertake a local needs and resource assessment. youngballymun carries out focus groups to inform service design 2008 November DCU present the findings of an Audit and Needs Assessment to the SDT December SDT identified the Infant Mental Health Model as a possible approach January youngballymun representatives visit Infant Mental Health Specialists in Cork HSE Contact made with Michigan Association of Infant Mental Health & Dr. Deborah Weatherston March Draft strategic plan developed and presented to the Board – amalgamating Antenatal and Parent Support Services to form on service April Input from Tallaght PCPS staff at SDT May youngballymun representatives visits Tallaght PCPS site. 3 July Contact made with Professor Cerezo PCPS programme developer Negotiations commence with PHN Management to explore integration of PSPCP with PHN service 2009 October SDT meet to review Antenatal Stand of work November Service renamed Ready, Steady, Grow January Redevelopment of Ballymun East Community Centre (for location of PCPS) commences Contract with Professor Cerezo to deliver PCPS Training and provide ongoing implementation support for PCPS Professor Cerezo meeting with PHN team / presents of PCPS 2009 April Initial contract signed with Ballymun Home Support to recruit & appoint RSG Administrator & PCPS Coordinator May 16 day Training of Ballymun Staff in PCPS commences (delivered by Professor Cerezo) June RSG Administrator takes up post (via Ballymun Home Support) August PCPS Coordinator takes up post (via HSE) SLT with the HSE, takes up position as Speech and Language therapist working across the services for 0-5’s July A.2 2009 Ready, Steady, Grow Implementation Team (IT) established Key Ready, Steady, Grow Implementation Activities July Ready, Steady, Grow Implementation Team (IT) established October Hanen You Make the Difference® (6 week staff training course for ECCE practitioners) November Introduction to Infant Mental Health Workshop 4 December PCPS opens in Ballymun Formal launch of Ready Steady, Grow at youngballymun - A Child is Born Conference Infant Mental Health and Child Development Master Class 1 Enhanced Community Based Ante-Natal Service Working Group established by IT 2010 January Infant Mental Health Master Classes by Dr Deborah Weatherston, for practitioners/policy makers2 and parents February Ante-Natal Working Group meet March Integrated Team Building through Dialogue with RSG team Ante-Natal Working Group Meet June Integrated Team Building through Dialogue with RSG team August Preparing for Parenthood Coordinator (PPC) takes up post Advisory Group established to inform on the 1st 6 months of PPC work Infant Mental Health Mentor takes up post September Hanen You Make the Difference® (6 week staff training course)3 commences Follow-up Dialogue event with Ready, Steady, Grow October Hanen You Make the Difference® 9 week parent education programme4 commences Ante-Natal Course commences (PPC & PCT) (4 sessions) 2011 December Infant Mental Health Lunchtime Lecture : IMH Mentor January Infant Mental Health Training ‘A Safe Harbour from Stormy Seas; Supporting the Master classes included presentations on ‘Developing reflection on Infant Mental Health Practice’ by Rochelle Matacz and Catherine Maguire (Cork HSE), ‘Infant Brain Development’ by Professor Stuart Shanker, Distinguished Research Professor , York University Candan, and ‘Social emotional development’ by Professor Cerezo. 2 Title –‘ Keeping the baby in mind in youngballymun. The importance of the early years: building a foundation for social and emotional health’ topics covered include principles & practice of Infant Mental Health, and relationships matter to the promotion of Infant Mental Health. 3 For staff members from across 3 agencies that provide home visiting to parents and young children as part of their service (Ballymun Home Support Service, Lifestart, and Community Mothers). 4 At Geraldstown House. Participants are parents who either previously attended PCPSP or whose children are on the HSE community SLT caseload. Programme delivered by RSG and HSE SLT. 1 5 Ballymun Home Support Team’ commences (4 sessions) February Pilot Baby Massage (PPC) Ante-Natal Course commences (6 sessions) Hanen You Make the Difference® parent programme commences 2011 March Infant Mental Health Clinical Training :Supporting First Relationships (6 sessions) Baby Massage (5 week course) commences May Antenatal Service Provider meeting convened Ante-Natal Course commences (6 sessions) June 0-3 Service Integration Coordinator (PHN role) UCD awarded contract to evaluation RSG youngballymun convenes Infant Mental Health Working Group July Baby Massage (5 week course) commences September Infant Mental Health Training: Foster Parent Training (2 sessions)5 Baby Ballymun6 Baby Massage (5 week course) commences Ante-Natal course commences (5 sessions) Hanen - You Make the Difference® parent programme commences October youngballymun hosts the 1st National Infant Mental Health Practice and Policy Forum Baby Massage (5 week course) commences Hanen - You Make the Difference® parent programme commences November Pregnancy Yoga (PPC) commences Marian O’Flynn & Bonnie Daligga ‘Baby Ballymun’ took place on Tuesday 20th September from 9.30 – 1pm in Axis, the morning included: information from RSG; PHN’s; Community Mothers; 345 on choosing quality preschool; Oral Health; Citizens Advice; Primary Care Team. There were a number of activities: developmental play ran by Lifestart; information workshops on nutrition and talking with your baby; messy play; a parent and baby café; and photograph opportunity. 5 6 6 Baby Massage (5 week course) commences 2012 January Baby Ballymun (Sleep workshop) Baby First Aid Workshop Baby Massage (5 week course) commences Hanen - You Make the Difference® parent programme commences Talk & Play (2 sessions) Infant Mental Health Training: Supports for strengthening families (4 sessions) February Baby Ballymun: Feeding your baby/toddler Workshop Talk & Play (4 sessions) Ante-Natal course commences (5 sessions) Hanen - You Make the Difference® parent programme commences March Baby Ballymun: Toddler behaviour workshop Baby Massage (5 week course) commences Talk & Play (3sessions) 2012 Infant Mental Health Training: Infant Toddler Emotional regulation PCPS Coordination Post ends – she takes up Integrated Service Support post IMH Working Group ends with finalisation of the document A Good Start is Half the Work April Baby Ballymun: Baby Blues Workshop Baby Massage (5 week course) commences Hanen - You Make the Difference® parent programme commences Infant Mental Health Workshop; Post natal depression7 Infant Mental Health Mentor post ends ongoing consultancy arrangement with Mentor May Hanen - You Make the Difference® parent programme commences June Ante-Natal course in the RECO commences (5 sessions) 7 Understanding and working with babies and mums with postnatal depression Workshop co-delivered by HIM Mentor & HSE Senior Psychologist 7 Baby Massage (5 week course) in Women’s Resource Centre commences July Baby Massage (5 week course) commences August Baby Massage (5 week course) commences September Baby Ballymun: Feeding your baby/ toddler Workshop Hanen - You Make the Difference® parent programme commences Pilot of Incredible Years Toddler Programme commences8 Externally facilitated review of PCPS9 PPC located in BRYR10 October Baby Ballymun: Sleeping workshop Ante-Natal Course commences (5 sessions) RSG Infant Mental Health Strategy presented at Institute of Public Health Open Conference, Belfast November Baby Ballymun: Toddler Behavour workshop Infant Mental Health Workshop with Debbie Weatherston: 8 Expansion of follow on parent-child support services post PCPSP through the introduction of the Incredible Years Parent and Toddler programme (IYTP). Fifteen parents recruited for the pilot ITYP starting mid September. The programme is codelivered by a CAFTA trained facilitator (part of the youngballymun Incredible Years team) and Mary Fanning in her role as Integrated Service Support 9 Involved 5 members of the Public Health Nurse Team and Assistant Director of Public Health Nursing; youngballymun’s RSG team and Programme Manager; and the PCPS Programme Developer. The review was very successful and reaffirmed the joint commitment to the programme. Key areas for attention were identified: engaging with vulnerable families; communication – both internal and external; promotion of the programme; and specific practice related areas. 10 Location of the Preparation for Parenthood Coordinator in Ballymun Regional Youth Resource (BRYR) to work collaboratively with What’s Up? (youngballymun’s youth mental health strategy) and to strengthen the supports available to young parents in the community. 8 Appendix B: Ready, Steady, Grow Logic Model 9 Appendix C: Ready, Steady, Grow Implementation Plan 10 11 12 13 14 15 16 17 18 19 20 21 Appendix D: D.1 Further Information on the PCPS PCPS visits The PCPS visits occur when the infant is 3, 5, 7, 12, 15, and 18 months of age. Although these ages are the optimum times for each visit, the programme design allows for boundaries around each age within which the assigned visit can take place. These boundaries are displayed in Table D.1. Table D.1 Age boundaries for PCPS visits Month of visit Age boundary in weeks 3 (13 wks) 10-19 5 (22 wks) 20-32 7 (30 wks) 33-42 12 (52 wks) 48-63 18 (78 wks) 74-86 If an infant starts the programme late (for example, he/she moves into the area at five months and therefore misses the initial three month visit), he or she can still enter the programme at the next visit that best suits his or her age. D.2 Referrals to community-based services RSG liaises with a number of community-based services and these are listed below. 1. Accord 2. Adult Read and Write Scheme 3. Assessment and Intervention Team 4. Assessment of Need 5. Audiology 6. Baby Massage 7. Ballymun Home Support 8. Ballymun Regional Youth Resource 9. Community and Family Training Agency 10. Community Counselling Service 22 11. Community Mental Health Nurse 12. Community Psychology 13. Creche 14. Dietician 15. Drop in Well Mother and Toddler Group 16. Drop in Well 0-12 Months Mother and Baby Group 17. General Community Information 18. Geraldstown House 19. GP 20. Incredible Years School Programme 21. Incredible Years Toddle Programmes 22. Job Centre 23. Mater Child and Adolescent Mental Health Service 24. Mediation Services 25. Mindfulness - HSE 26. Money Advice and Budgeting Service 27. Ophthalmology 28. Parent Programme 29. Parent Workshops (sleeping, feeding, toddler behaviour, baby blues, baby first aid) 30. Physiotherapy 31. Primary Care Adult Psychology 32. Primary Care Child Psychology Referral 33. Public Health Nurse 34. Social Work 35. Speech and Language Therapy 36. Stop Stress – HSE 37. Talk and Play 38. You Make the Difference 39. Young Mothers Group – Women’s Resource Centre 23 Appendix E: E.1 Further Information on Similar Programmes Criteria for identifying similar programmes A literature review was conducted to identify and examine the effectiveness of programmes which were similar to the PCPS. The main criteria for determining whether or not a programme was similar to PCPS were: • Programme age range includes infants/toddlers aged 0-36 months While the PCPS specifically targets children aged 0-18 months, many other programmes that start at or shortly after birth continue until the child is 36 months old. Thus, we have included these programmes in our review. We specifically examine their provision for children up to the age of 18 months. • Programme targets both parents and children and examines similar outcomes to the PCPS The PCPS targets child development and parenting outcomes, therefore it is important to identify similar programmes with comparable outcomes. Early intervention programmes which target both parents and children generally fall into three broad categories: psychoanalytical, cognitive and socio-emotional developmental, and programmes for the assessment and monitoring of mental/physical health. Programme which target parents differ and can include basic parenting advice on nutrition, child health and discipline, as well as providing direct support to the parents themselves. The psychoanalytical and mental/physical health programmes are generally centre-based, while the cognitive and socio-emotional developmental programmes tend to be either centre or home-based, or both. The PCPS falls into both the second and third categories: it has both cognitive and socio-emotional developmental and mental/physical health screening components. While it is not a psychoanalytical programme, it does have a psychological support component, and the D Station is often facilitated by a psychotherapist. Thus, the review includes programmes which target all three dimensions. • Programme is suitable for use in an area of disadvantage, broadly comparable to Ballymun The focus of PCPS is preventive rather than reactive. The PCPS’s sister programme in Spain was initially designed to provide additional developmental support and assessments for children who were at-risk of maltreatment. While all infants born within the Ballymun catchment area are eligible to take part in the PCPS, it is particularly applicable to those in low-income areas where the children are at increased risk of developmental delay compared to their higher socio-economic status counterparts. One of the goals of the programme is to identify any potential physical or emotional developmental difficulties the child may be experiencing. These difficulties, if identified, are generally not addressed directly by the programme, instead the children are referred to other services and, if required, receive ongoing, intensive monitoring via the PCPS’s monthly meetings. In contrast, most centrebased early intervention programmes that target the same age-group as the PCPS are aimed 24 at children who have already been identified as having some form of developmental delay or disadvantage. Thus, the review largely includes targeted programmes. • Programme is administered by trained professionals or para-professionals The PCPS is delivered by professionals (nurses, speech and language therapists, psychologists) who have been specially trained to administer the programme. Some widescale parent and child programmes, particularly those with a home-visiting component, are delivered by trained para-professionals (e.g. the Parent-Child Home Programme). These may be local people who have a wealth of knowledge about the community and its culture, but no professional training. As these programmes are similar in design to the PCPS, we have elected to include them in our review, but we highlight when para-professionals are used instead of professionals. • Programme is either home-based, centre-based or a combination of both Early intervention programmes are usually either centre-based, home-based or occasionally both. Centre-based programmes are more likely to be delivered by professionals, yet tend to target an older age-group. There are a plethora of home-visiting programmes which are preventive in nature, target the 0-18 month age group, and work with both mother and child. Therefore we have chosen to include home visiting programmes in our review of the literature. Note: Researchers are frequently interested in the long-term effects of early intervention programmes, and as a result, programmes which operated several decades ago continue to be studied today such that the long-term outcomes can be monitored. The Nurse-Family Partnership is one such example. Therefore, some of the programmes presented included in the review may have operated a number of years ago, or may have only been implemented in pilot form, but are still considered relevant to the present evaluation. 25 E.2 Descriptive information on similar programmes Programmes comparable to PCPS Programme/ Intervention Early Head Start Target Population Low-income families Age of Children 0-36 months Delivery Type Florida Infant Mental Health Pilot Children at risk of out of home placement because of abuse and/or neglect 0-36 months Centre based with some home visits Brookline Early Education Project All families in the community 3 months before birth Kindergarten Centre based with home visits Health, educational, and social services for parents and children including home visits, parent groups, playgroup and prekindergarten, and health and developmental monitoring. Infant Health Premature 0-36 months Centre based Educational and family Centre based, home visiting and combination of both Intervention Components and Duration Home visiting programmes: Home visits to support child development and parentchild relationship. Bimonthly group sessions to provide opportunities for learning, discussion and social activity Centre programmes: Care and education and home visits twice per year 25 sessions of dyadic therapy including referral to additional services where necessary Outcomes Evidence Base References Better child cognition, language, and socio-emotional development. Parent provided more emotional and learning support, less likely to use negative parenting strategies. Randomised control trial Love et al., 2002. Reduction in reports of abuse/neglect. Improvement in health and developmental status of children and parent child relationship. Improvement in parental responsiveness and decrease in intrusive behaviours. Decrease in reports of caregiver depression. At elementary and second grade: Dose related positive effects for children’s social development and learning skills and strategies. Fewer children exhibiting social or learning difficulties. At 25 year follow up: Superior educational attainment, income, health and well-being. Programme effects for cognition Pre-post design Adams, Osofsky, Hammer, & Graham, 2003. Quasiexperimental design Hauser-Cram, Pierson, Walker, & Tivnan, 1991 as cited in Palfrey et al., 2005. Pierson et al., 1983. Bronson, Pierson, & Tivnan, 1984. Palfrey et al., 2005. Randomised Brooks-Gunn, 26 and Development Programme infants with home visits support services as well as high quality paediatric follow up and referral. The Video Feedback Intervention to Promote Positive Parenting First-time mothers with insecure attachment styles 7-10 months Home visits First-time, low-income mothers 0-24 months Home visits High and low treatment groups: Educational feedback on mother-infant interaction. Information on sensitive parenting. High treatment group only: Discussions about early attachment experiences. Weekly or twice weekly home visits by specially trained nurses Nurse Family Partnership Parent Child Home Program Low-income families 18-36 months Home visits Twice weekly visits by trained para-professionals and behaviour at 36 months. Only heavier low birth weight children showed sustained cognitive gains at an 8 year follow up. Higher maternal sensitivity. No differences in attachment security. control trial Klebanov, Liaw, & Spiker, 1993. McCarton et al., 1997. Randomised control trial Klein Velderman, BakermansKranenburg, Juffer, & van IJzendoorn, 2006. Reductions in child health and developmental problems, including accidents/injuries. Long term gains in both child and maternal outcomes including maternal employment and school readiness. Increased school readiness, including IQ scores and receptive language and a reduction in the need for special education classes in programme graduates. Higher rates of graduation amongst 2 year program graduates, which were comparable with middle class peers and higher than socioeconomic peers Randomised control trial Kitzman, et al., 1997;. Olds, Henderson, Tatelbaum & Chamberlin, 1986. Olds et al., 2002. Randomised control trial Levenstein, 1970. Lazar & Darlington, 1982. Levenstein, Levenstein, Shiminski, & Stolzberg, 1998. 27 Appendix F: F.1: Technical and Statistical Terminology Permutation testing Permutation tests (with 1,000 replications) were used to test for significant differences in characteristics between the two groups. Classical statistical tests rely on the assumption that sample sizes are large, and produce inferences based on p-values that are only valid for large samples. These tests can be unreliable when the sample size is small. As the sample size of the PCPS evaluation is relatively small, the analyses presented here used an alternative approach called permutation-based hypothesis testing, which was developed by Heckman and colleagues (2010). 28 F.2 Reading statistical tables A number of different statistical methods were used in the evaluation. This table provides information on these tests which aid the interpretation of the tables provided in the report. N ‘N’ indicates the number of people who are included in the analysis. n ‘n’ indicates the number of people in individual groups. M ‘M’ indicates the mean. It is the arithmetic average of all values. SD ‘SD’ indicates the standard deviation. It represents the average distance of a set of scores from the mean or average score. Md ‘Md’ indicates the median. The middle value is in a ranked distribution of values, calculated by seeing which value has an equal number of cases above and below it. IQR ‘IQR’ is the interquartile range and represents the range for the middle 50% of values in a rank-ordered distribution. t ‘t’ is the test statistic which compares the mean differences between two groups on an interval- or ratio-level dependent variable. p ‘p’ indicates the significance level of the p-value. A p-value represents the probability that a test statistic is significantly different from the null hypothesis. It shows how likely it is that a treatment group is significantly different from a control group. p<.01, p<.05 ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1%, and 5% level respectively. ns ‘ns’ indicates the variable is not statistically significant. Statistical significance is given when the probability that the null hypothesis is true is low enough to reject the null hypothesis as a plausible explanation for the relationship observed in a sample. Z ‘Z’ indicates the test statistic for the Wilcoxon signed-rank test. The Z-Store represents how many standard deviation intervals a value falls above or below the mean. χ2 ‘χ2’ indicates the test statistic for the Friedman test. It assesses the probability that sampling error explains the relationships you observe between nominallevel variables displayed in cross-tabulation tables. Q ‘Q’ indicates the test statistic for the Cochran test. Friedman χ2 The ‘Friedman’-Test is a non-parametric test for comparing more than two related samples. 29 Cochran Q F ‘Cochran Q’ Test is a nonparametric test examining change in a dichotomous variable across more than two observations. The ‘F’-value is a continuous probability distribution of the ratio of two independent random variables. 2 Eta squared ) is a measure of the magnitude of effect. It can be defined as the proportion of variance associated with or accounted for by each of the main effects, interactions, and error in an ANOVA study. DQ ‘DQ’ defines the development quotient and represents the numeric expression of a child's developmental level as measured by dividing the developmental age by the chronologic age and multiplying by 100. 30 Appendix G: Design G.1 Further Information on Ethical Approval and Case Study Ethical approval A detailed ethical submission to conduct this study was compiled by the research team and approved by the UCD Human Research Ethics Committee: Humanities Subcommittee in May 2011 (Research Ethics Reference Number [RERN]: HS-12-33-Doyle). The requirements of the UCD Human Research Ethics Committee, the Data Protection Acts (1988 and 2003) and the Statistics Act (1993) were fully met in the process evaluation study. Ethical approval was sought and obtained for each individual element of the study as required (RERN: HS-E-11-135-Guerin: professionals’ interviews; HS-E-12-07-Guerin: professionals’ survey; HS-12-122-Guerin, case studies). Ethical approval was also sought for the non-participants’ survey of the programme evaluation (HS-12-33 Doyle). An exemption from ethics approval was received for the evaluation of the PCPS (RERN: HS-E-11-131- Doyle-Guerin). Separate ethical approval was not required for the other elements of the programme evaluation. G.2 Case studies A detailed case study was designed to facilitate a more in-depth understanding of how RSG promotes IMH principles and practices into the existing service structures in Ballymun. The aim of the case study was to further inform our understanding of capacity building, collaboration and early identification and intervention in RSG through the lens of four families by exploring their experiences of RSG and its links with local service organisations. Findings from the stakeholder interviews and surveys suggested that organisations differed in their level of engagement with RSG, and the case studies were designed to investigate this variability, and its potential effects on capacity building, collaboration and early identification. The case studies were designed to draw on multiple stakeholders’ perspectives as well as referral records, incorporating the experiences of each family, the relevant key RSG staff member and the key referral organisation staff member. A number of families were randomly selected through a complex sampling process and were invited to participate in the case studies, however the response rate was unfortunately very low, and to proceed with the study could potentially have compromised the anonymity of the case families. Therefore the research team, guided by the ethical guidelines set out by UCD’s Human Research Ethics Committee and in agreement with youngballymun, elected not to proceed with the case studies. 31 Appendix H: Interviews H.1 Further Methodological Information on Stakeholder Stakeholder Interviews Method Two separate semi-structured interview schedules were developed for the process evaluation. They were based on the literature reviews and examined the areas of capacity building and collaboration respectively. Both schedules also contained a question about early identification and intervention. The aim of the interviews was to conduct an initial investigation into these areas with a small group of service delivery staff in Ballymun, using open-ended research techniques to allow for the emergence of new themes, while also targeting the specific issues identified in the literature on capacity building and collaboration. Once the interview transcripts had been analysed, the findings were used to inform the development of a self-completed survey, to be administered at two time points to professionals working in the Ballymun area. H.2 Development of Interview Schedules The interview schedules were developed using the models from contemporary literature on capacity building (Brown et al., 2001; Crisp et al., 2000) and collaboration (Ahgren, et al., 2009) described in the literature reviews. Capacity building was examined through a systems framework at individual, personnel and organisational level (Brown et al., 2001). There is an element of conceptual overlap between the areas of capacity building and collaboration, but in order to ensure that as much information as possible was gathered from the qualitative interviews, the research team designed two separate interview schedules, one to measure capacity building, thus addressing research question a, and one to measure collaboration, addressing research question b. Questions on early identification and intervention were included in both interview schedules so that research question c) was addressed with both the capacity building and the collaboration interview participants. H.3 Sampling The sample of 30 potential interview participants was drawn from a group of 48 local stakeholders who had attended the IMH training programme provided by youngballymun. The list comprised 10 professionals who were not regularly engaged in local direct service delivery with infants (e.g. programme co-ordinators, adult mental health professionals), 11 professional direct service delivery practitioners working regularly with infants (e.g. public health nurses, speech therapists), and 27 paraprofessional service delivery personnel (all local home support workers). Ten participants were selected randomly from the latter two groups to minimise the potential for bias. Within each of the three groups of ten, participants were then randomly allocated to either the capacity building or collaboration interview. This resulted in a final, invited sample of 15 capacity building and 15 collaboration interviews. Once the sampling frame had been developed, the researchers made initial contact with each potential participant via email, introducing them to the research and explaining that they had been selected to take part in an interview for the evaluation, and that they would be contacted about their participation in the near future. Once this initial contact had been made, the researchers began scheduling the interviews with those who had not opted-out. Each participant was contacted via 32 telephone to schedule an interview and to obtain informed verbal consent. After this, an interview pack was sent via post to each participant. Each pack contained a detailed letter explaining the study and its rationale, an interview topic sheet and consent form. Participants were asked to read this information in advance and bring the consent form to the interview. H.4 Pilot Study The research team conducted pre-pilot interviews with each other to ensure congruence of interviewing styles before formally piloting the research instruments. Interview schedules were then piloted with two participants, both of whom had a strong interest in IMH and a good understanding of the RSG programme. These participants took part in both the capacity building and collaboration interviews. Their comments, observations, and reactions to the interviews were noted, and minor changes were made to each interview schedule as a result. Once the interview schedules had been finalised, the main body of interviews commenced. These interviews took place over the course of two months from October to December 2011. H.5 Stakeholder Interview Protocol Participants were given the option of completing the interviews in their place of work or in a meeting room provided by RSG in the Axis Centre in Ballymun. In cases where neither was possible, the option of a telephone interview was offered. Interviewees were asked to read the information sheet and to read and sign the consent form in advance of the interviews. Upon arrival at the interview venue, the researchers had a brief discussion with each participant to ensure that they had read and understood the information sheet, and invited participants to share any queries or concerns they may have had about the interviews. Once the researcher was satisfied that the participant was fully informed and had signed the consent sheet, the interview commenced. Interviews were recorded on a digital voice recorder and typically lasted approximately 45 minutes, but ranged from 20 minutes to 90 minutes. During the interview process, researchers used techniques to ensure that participants’ views were being accurately captured. Participants’ responses were summarised and reflected back to the participant ensure that they had been correctly understood by the researcher, and a summary of main points was checked at the end providing an opportunity for the interviewee to clarify any points. Participants were systematically debriefed after each interview: each participant received a debriefing sheet which included the project co-ordinator’s contact details should they have any questions or suggestions afterwards. Two participants requested a transcript from their interview and were provided with a fully anonymised document via email. H.6 Stakeholder Interview Analysis Procedure All interviews were transcribed and anonymised using the Irish Qualitative Data Archive anonymisation guidelines (2008) before being uploaded to the Nvivo 9 qualitative data analysis package for analysis. Each transcript was analysed thematically using a combination of inductive and deductive techniques, which allowed for the generation of new themes from each interview as well as the identification of themes present in the research literature. As there is a strong degree of overlap between the areas of capacity building and collaboration, the deductive analysis of each interview was informed by the literature review of both of these areas to ensure that all relevant data was highlighted, regardless of which interview schedule generated the data. 33 Data analysis was conducted initially by two researchers, who divided up the 23 transcripts and began analysing them separately using one developing coding framework. Using the first transcript as a template (Smith & Dunworth, 2003), the researchers examined this transcript and assigned “codes” to the topics under discussion as they arose in the course of the typed interview. Each code represented a small chunk of the transcript which was seen to have meaning to the topics under examination (Boyatzis, 1998, cited in Braun & Clarke, 2006). Once the initial transcript had been coded in this way, the researchers proceeded to code the other transcripts using the first transcript as a template. To ensure quality and rigour of coding, inter-rater reliability was assessed during this initial coding stage. Both researchers analysed one transcript. There was a high level of agreement between the coders, and when researchers disagreed on coding, this was discussed until agreement was reached. After initial coding stage, one researcher then worked towards completing the thematic analysis. In keeping with Braun and Clarke’s method of thematic analysis, as more transcripts were coded, they had an influence on the codes themselves, which were edited and refined accordingly. Wider themes began to emerge at this stage, and the researchers began to house each code within a more structured and defined framework of meaningful themes. As the database of analysed transcripts grew, the themes began to take on a more specific shape. For example, some codes, initially deemed important in their own right, were removed and recategorised under different themed headings. Others were discarded, and others which had initially seemed of little relevance began to assume more meaning in the context of other codes and themes as the analytical process progressed. Once all data had been coded and the framework of themes had been created, the researchers re-examined all of the transcripts, codes and themes in order to further “define and refine” (Braun & Clarke, 2006: p.92) the data and themes into a more meaningful, coherent pattern which gave a fair and comprehensive overall view of the full dataset. 34 Appendix I: I.1 Stakeholder Interview Schedules Schedule for capacity building interviews Part 1: Individual Role ï‚· ï‚· ï‚· What is your current role in relation to the infant mental health aspect of RSG? How long have you been in this role? Can you give a brief overview of your day to day work? o What direct service skills are necessary to do your job? o What personal skills are necessary to do your job? o Do you work alone or as part of a team?  If part of a team, how does that team typically operate? (common office, regular meetings, phone contact, etc) Part 2: RSG ï‚· ï‚· Are you aware of RSG having a defined strategy in relation to IMH? Do you feel that you have been given the resources required to carry out your role effectively in relation to the IMH function of RSG (skills, opportunities, local and systemic knowledge, funding) ? o If not, what would help you to improve? ï‚· Do you feel that the IMH needs of the end users of your service are being met? o How is this being done? Can you give examples? o How do you think the service could be improved? o Are you aware of any quality control measures monitoring the effectiveness of service delivery re IMH in RSG?  What are they? o Do you meet many end users from different cultures within your role?  Is there any facility within your role for dealing with issues which may arise as a result of cultural differences among service users? ï‚· How do you think your role fits within the overall IMH function of RSG? ï‚· Do you feel you have an influence on the way in which RSG is operated? ï‚· Do you feel that there is adequate funding in place in order for RSG to build IMH capacity? Part 3: Capacity Building ï‚· ï‚· ï‚· ï‚· What is your understanding of the term “capacity building” in reference to IMH? Are you aware of any capacity building function of RSG? o Can you tell us about it? o How often does it arise in your day to day work (LS)? o Do you think it’s working (LS)?  Why/why not? Do you actively seek to develop IMH capacity in Ballymun within your role (LS)? o How do you do this? o If you don’t, is something preventing you from doing this? How do you interact with other service providers in RSG: o At the organisational level (meetings, regular updates, etc?)  Do you ever specifically address IMH issues with these organisations (at organisational level)? 35   Do you take any steps to work with these providers to build IMH capacity? If not, is anything specific preventing you from doing this? (resources, local politics, lack of information, lack of support) o On an individual level?  Is there much interaction?  Do you feel you have an open relationship with them? Are there any difficulties?  Do you ever specifically address IMH issues with these individuals?  Do you take any steps to work with these people at an individual level to build IMH capacity? ï‚· How is this done? ï‚· If not, is anything specific preventing you from doing this? (resources, local politics, lack of information, lack of support?) ï‚· Do you feel that RSG have adequate access to the following resources needed for building IMH capacity?  Human resources  Financial Resources  What do you feel would improve RSG’s ability in this regards? Skills / Competencies ï‚· Do you feel that you have the skills and competencies necessary to carry out the work needed in order to build IMH? o Do you feel other people you work with have these skills needed? Organisational Learning ï‚· ï‚· ï‚· ï‚· ï‚· ï‚· Are you aware of any plans in place to assess training needs and plan to address these needs in RSG? To what extent do you get the opportunity to continuously learn and build upon your skills? To what extent do you feel you get to apply new skills to the work of building IMH capacity? Do you feel that you are encouraged and rewarded to ‘ask why’ and put forward new improved ways of doing things? Do you feel that suggestions and ideas are implemented when you suggest them? Policies: What government / local council policies do you feel impact / inform the work of RSG and IMH capacity building? Part 4: The Wider Community ï‚· ï‚· How do you feel Ballymun-based community groups are working together re IMH (LS)? o Is there a sense of working towards a common goal?  If not, what’s preventing this from happening? How do you interact with local groups? o Do you work with local group leaders? o Are there clear roles for partnership and community leaders? o What is the nature of your interaction with them? o How often do you meet them or talk to them? o Do you ever specifically address IMH issues with these leaders? o Do you have a role in helping these leaders to develop capacity for IMH in Ballymun?  How do you do this?  If not, is anything specific preventing you from doing this? (resources, local politics, lack of information, lack of support) o In your opinion, have RSG involved disadvantaged groups in their capacity building activities? 36 o To what extent do you feel cultural differences are taken into account when building capacity? Do you think RSG contribute to a sense of community in the area? Outcomes ï‚· To what extent do you feel the community are changing from being passive to active participants in building IMH capacity? ï‚· To what extent do you feel RSG are addressing the root causes of issues affecting IMH in Ballymun? Part 5: Prior to RSG Implementation ï‚· How were referrals in relation to IMH identified prior to RSG implementation? o How were referrals handled? o How were referrals recorded? ï‚· How and to what extent have processes / ways of working changed since RSG implementation? Part 6: Wrapping Up o ï‚· o o Do you think RSG is succeeding in its capacity building function around IMH? o What factors could help it to improve? What supports have been put in place, in relation to the implementation of IMH principles in the RSG programme? What have been the barriers to IMH principle implementation? Is there anything else you’d like to add? 37 I.2 Collaboration Interview Schedule Part 1: Individual Role ï‚· What is your current role in relation to the infant mental health aspect of Ready Steady Grow? ï‚· How long have you been in this role? ï‚· Can you give a brief overview of your day to day work? o What direct service skills are necessary to do your job? o What personal skills are necessary to do your job? o Do you work alone or as part of a team?  If part of a team, how does that team typically operate? (common office, regular meetings, phone contact, etc) Part 2: RSG ï‚· What is your understanding of the term “Collaboration”? o If interviewee is confused, offer a definition of collaboration? ï‚· Are you aware of RSG having a defined strategy in relation to Collaboration and Integration of services in Ballymun? ï‚· What do you believe the nature of collaborative working in relation to Ready, Steady, Grow to be? o How is this being done? Can you give examples? o How do you think collaboration / integration could be improved? o Do you think it’s working (LS)? ï‚· What in your opinion, have Young Ballymun done to promote collaboration with partners, services and families in the community? ï‚· One of the aims of RSG is the provision of ante- and post-natal services for expectant mothers. This is provided via a number of organisations working in collaboration with each other. In your opinion, has RSG fostered the development of partnerships between these organistions, enabling them to work together? o If so, how has this been done? Part 3: Collaboration 3(a) - Inputs to Collaboration Resources ï‚· ï‚· ï‚· RSG aims to promote IMH organisations in Ballymun to work together in partnership, what extent do you feel the community partnership has sufficient skills and expertise to fulfill its role in the community? Is the community partnership connected to its target populations? o If so, how? o If not, why do you think this is? To what extent do you feel the partnership has the ability to bring people together for meetings and activities? Leadership ï‚· Is leadership defined in the community partnership? 38 ï‚· ï‚· ï‚· How would you rate the strength of leadership in the community partnership? How would you rate the relationship between partnership members and leaders in relation to the following: o respect, o trust, o inclusiveness o openness Are there opportunities for Partnership members to take leadership roles? Participation of Community ï‚· ï‚· ï‚· Do community residents participate in collaborative activities? o Who initiates their participation? (residents, organisations, both?) o How does it work? How diverse is the level of participation of the community? Is it reaching a wide variety of people in terms of ethnic/socio-economic background? o If not, why do you think this is? To what extent do you think the partnership makes efforts to secure funding for community programs? 3(b) - Processes of Collaboration Planning and Implementation ï‚· ï‚· In your opinion, has RSG promoted collaborative and integrated working in the Ballymun Community? o If so, how have they worked with you to build collaboration? o Have any activities taken place to track the progress of collaboration?  If so, what form did they take? (eg. Meetings, communications)  Were they successful? In your opinion, do RSG have a clear vision and objectives for where the community partnership is going? Communication (External) ï‚· ï‚· ï‚· In your opinion, does the Partnership communicate its actions and results with the wider community? o To what extent does the partnership communicate how its actions will address problems that are important to the community? Does the partnership include the views and priorities of the people affected by its work? If so, how? To what extent does the Partnership use media to promote awareness of partnerships goals / accomplishments to a wider audience? Communication (Internal) ï‚· How would you rate communication between members of the partnership? (LS?) o Do you get the opportunity to express your views / opinions? 39 ï‚· To what extent do you feel listened to and heard within the partnership? ï‚· For each question, can you give examples of forms of communication used? o What works / doesn’t work? Learning Organisation ï‚· ï‚· ï‚· To what extent do you get to learn from other partnership members and exchange ideas? To what extent do you get the opportunity to network and chat to members informally before/after/between meetings? How well does the partnership identify new and creative ways of solving problems? Partnership Roles / Ways of working ï‚· Do you feel that both professionals and non professionals get the opportunity for similar responsibility and decision making power within the partnership? ï‚· Do partnership members get the opportunity to choose the roles they play in the partnership? ï‚· To what extent are members aware of each others’ roles and role boundaries? ï‚· To what extent are individuals flexible in their approach to problem solving? ï‚· Does the partnership make use of the skills / knowledge of its members to make an impact in the local community? If so, how is this done? Conflict ï‚· Can you think of any conflicts you have seen between individuals / organisations as part of the collaboration process? o How was this handled? o What worked well? o What did you learn? 3(c) - Intermediate Outcomes of Collaboration Impact on Members ï‚· ï‚· ï‚· ï‚· Do you feel the community partnership has had an impact on your work in the community? o If so, how has it changed? To what extent do you feel the partnership has allowed you to advocate more effectively? What do you feel are the benefits to you / your organisaiton of being involved in the community partnership? What do you feel are the costs to you / your organisation of being involved in the community partnership? 40 ï‚· How happy are you overall with being a member of the partnership? Impact on Community ï‚· To what extent has the community partnership given help to community groups to address and resolve their problems? Impact on Officials ï‚· How would you rate working relationships between elected officials and the partnership? Sustainability ï‚· ï‚· How has the partnership identified strengths and opportunities within its members and provided opportunities for these to be used? To what extent do you feel ownership of the community partnership? Overall Impact ï‚· In your opinion, how has the partnership made progress in meeting its objectives? o What more could be done? Part 4: Prior to RSG Implementation ï‚· ï‚· How were referrals in relation to IMH identified prior to RSG implementation? o How were referrals handled? o How were referrals recorded? How and to what extent have processes / ways of working changed since RSG implementation? Part 5: Wrapping Up o Do you think RSG is succeeding in its collaboration function around RSG (LS)? o What factors could help it to improve? o What do you feel are the major barriers to collaboration within the partnership? o Is there anything else you’d like to add? 41 Appendix J: J.1 Further Methodological Information on Stakeholder Surveys Stakeholder Survey Method The stakeholder survey was developed to examine how Ready, Steady, Grow (RSG) is building the capacity of the service community around the prevention of young children’s health and developmental risk, and how RSG is working in a collaborative and integrated way with partners, services and families in the community. The stakeholder interviews investigated the perceptions of a smaller group of professionals and service delivery staff working in the Ballymun area. The survey was designed to examine issues which were identified as salient in the interviews, and the literature, in a more targeted way with a larger sample. The survey was administered at two time points, in February and October 2012. J.2 Stakeholder Survey Sampling The survey sampling frame was devised by youngballymun and advised on by the research team, in accordance with the data protection guidelines set out by the UCD Human Research Ethics Committee. The sample consisted of 118 individuals, drawn from the areas of health and social care, who worked with parents and children in the Ballymun ABCD electoral region. In keeping with the recommendations of Crisp, Swerissen and Duckett (2000), these participants were purposively selected to ensure that they were representative of different organisational levels, from senior management to frontline staff. Table J2 presents a breakdown of the target sample by profession. Once the sample had been developed, youngballymun contacted each individual, inviting them to opt-out of participation if they so desired. youngballymun then sent the surveys to participants who had not opted out. Table J2. Breakdown of target survey sample by profession Role N Frontline / Support Workers 38 % 32 Supervisors / Management 12 10 Speech & Language Therapy 3 3 Social Work 6 5 Psychology 5 4 Nursing 26 22 J.3 Survey Instrument Development The aim of the semi-structured interviews described in appendix I was to create an index of topics which could be further investigated via the quantitative surveys. Accordingly, some of the survey 42 questions were developed to accurately reflect the most salient themes which arose during the course of the interviews. The remaining questions were based on the themes outlined in the literature around capacity building and collaboration and their inclusion was justified by the interviewees as they generated a good amount of discussion and feedback. A breakdown of the survey sections and their sources is detailed in Appendix K. Where the term “interviews” is listed as the source, it indicates that the question was developed to address a theme that emerged from the semi-structured interviews. Where “literature” is listed, this indicates that the question was based on the literature review. 43 Appendix K: K.1 Survey Description and Sources Part 1 Part 1 of the survey explored perceptions of RSG (Source: interviews). The purpose of this introductory section was to target participants’ understanding of RSG and its target group. It emerged during the course of the interviews that the terms RSG, PCPS and youngballymun were sometimes used interchangeably by some of the participants, therefore was is important when analysing the results of the survey to ensure that all people involved with RSG were aware of how it differed from youngballymun and from the PCPS. The third question provided an indication of the level of involvement that the participant had with youngballymun. These questions were developed from the themes which emerged during the interviews, namely “Confidence in youngballymun” and “Varying levels of engagement”. K.2 Part 2 Part 2 related to participants’ opinions on “infant mental health” (Source: interviews and literature). This section sought to capture whether the participant learned about infant mental health before or after youngballymun began promoting its principles via training sessions. This was based on emergent themes from the interviews, namely “frustration about resources”, “concern about sustainability” and “enthusiasm about infant mental health”. In the course of the interviews it emerged that a number of people had a personal interest in infant mental health and chose to bring it to their roles, despite the lack of any formal requirement to advance infant mental health within the remit of their own position. Questions (e) and (f) were based on the literature around capacity building which highlighted the importance of communication and responsive structures (Saskatoon District Health & Labonte, 1999). The response set for (e) and (f) was derived from the ‘Responsibility Assignment Matrix’; a tool often used in organizations to determine roles and responsibilities for groups of employees (Project Management Institute, 2010). K.3 Part 3 Part 3 sought to examine capacity building by RSG in relation to infant mental health (IMH). It will be outlined on a question-by-question basis: ï‚· ï‚· Question 7: (Source: interviews). During the course of the interviews it emerged that participants felt there were a number of different factors which contributed to capacity building. In this section, the essence of those factors outlined by participants was captured in phrases which represented the emergent themes from these interviews. Question 8: (Source: interviews and literature). Some of the phrases used here represented elements of the interviews, but they were also grounded in the literature. Question 8 (a) referred directly to capacity building by RSG, examining whether participants felt that the training provided by RSG was given to the appropriate people (Hall & Best, 1997), while (b) refers to IMH principles as outlined by Weatherston (2000) and examines whether, on a basic level, practitioners were working in agreement with these principles. 44 ï‚· ï‚· ï‚· K.4 Question 9: (Source: interviews and literature). This question examined possible barriers to capacity building, which MacLellan-Wright and colleagues (2007) claimed was an important factor to measure in any study on capacity building. The suggested barriers were developed from emergent themes in the interviews, namely “frustration about resources”, “concern about sustainability”, “varying levels of engagement” “effective collaboration depends on key factors” and “enthusiasm about infant mental health”. Questions 10 and 11: (Source: interviews and literature). These questions examined participants’ thoughts on and participation in specific training and events provided by RSG in relation to IMH. This was informed by some of the emergent themes in the interviews, namely “enthusiasm about infant mental health” and “confidence in youngballymun”, as well as the literature around learning and training for capacity building purposes (Hall & Best, 1997; Senge, 1990; Seligman, 1990). Questions 12 and 13: (Source: interviews and literature). Questions 12 and 13 were mostly informed by the literature. They investigated leadership, (Goodman et al., 1998) communication (Saskatoon District Health & Labonte, 1999) and strategising (e.g. LaFond, 1995) by RSG from the participants’ perspective. In examining the participants’ perspectives on aspects of how RSG operated, these questions also addressed the wider issue of participation, as outlined by Goodman and colleagues (1998). Part 4 ï‚· Questions 14 – 18: (Source: interviews and literature). These questions sought to investigate whether and how RSG was targeting and engaging the appropriate community members to participate in their programmes. This was in keeping with the research outlined in the literature review (e.g. Bopp et al., 1999; Goodman et al., 1998; Saskatoon District Health & Labonte, 1999), which suggested that leadership and effective community engagement were key capacity building factors. These questions were also strongly informed by the themes which arose from the interview analysis including “confidence in youngballymun”, and “varying levels of engagement.” ï‚· Question 19: (Source: interviews and literature). This question examined communication between RSG and its service users. Communication was identified as an important factor in capacity building (e.g. Goodman et al., 1998; Hawe et al., 2000; Jackson et al., 1999; SDH & Labonte, 1999). The points outlined in Question 19 related to forms of communication identified by participants in the interviews, which were linked to the “varying levels of engagement” theme. K.5 Part 5 Part 5 investigated collaboration between RSG and partners, services and families in Ballymun. ï‚· Question 20: (Source: interviews and literature). These questions were largely based on the literature, as some of the finer details of collaboration which emerged in the interviews were already covered in the previous questions on capacity building. Question 20 investigates aspects of the collaborative process through looking at physical and conceptual resources, which were key elements of the collaboration models outlined by D’Amour et al. (2005). As such Question 20 covered the areas of identifying need in the community and how to address this need 45 ï‚· (Chrislip & Larson, 1994); establishing trust (D’Amour et al., 2005; Lind, 2001); examining levels of engagement including meetings, knowledge sharing and general communication (Hicks et al., 2008; Stichler, 1995), as well as participants’ thoughts on sustainability (e.g. Larson et al., 2002) and conflict (Scott, 2005). The emergent themes from the interviews also mapped well onto these areas: namely “concern about sustainability” and “effective collaboration depends on key factors”. Question 20 (e) was adapted from the ‘Community Capacity Building Tool’ (MacLellanWright et al., 2007) and aimed to track location on the journey towards a sustainable system of infant mental health practice in the community. Question 21: (Source: interviews and literature). This question related to the area of conflict. The presence of conflict (Scott, 2005) and how it is handled (Assael, 1969) were identified as key factors in effective collaboration. 46 Appendix L L.1 Stakeholder Surveys Survey distributed February 2012 47 48 49 50 51 52 53 54 55 56 57 L.2 Survey distributed in October 2012 58 59 60 61 62 63 64 65 66 67 68 69 70 71 Appendix M: Stakeholder Survey Results Table M.1 Respondents’ understanding of the term RSG Response Another name for the Parent-Child Psychological Support Programme Another name for youngballymun Umbrella Term for YB's 0-3 Years Service Missing % (n) 35.0 (14) % (n) 33.3 (6) 12.5 (5) 47.5 (19) 5.0 (2) 0.0 (0) 66.7 (12) 0.0 (0) Table M.2 Respondents’ knowledge of community members’ eligibility for RSG Response RSG is available to all babies living within a defined catchment area RSG is available only to babies living within a defined catchment area who have been identified as “at risk” RSG is available to babies living anywhere in North Dublin, once their parents want them to take part Time 1 % (n) 90.0 (36) 2.5 (1) 7.5 (3) Time 2 % (n) 94.4 (17) 5.6 (1) 0.0 (0) Table M.3 Respondents’ contact with RSG staff Response Daily/Weekly Monthly Regular, Infrequent Fewer than 3 occasions Time 1 Time 2 % (n) 42.5 (17) 20.0 (8) 25.0 (10) % (n) 55.5 (10) 11.1 (2) 22.2 (4) 12.5 (5) 11.11 (2) 72 Table M.4 Respondents’ contact with RSG since February 2012 Response No change Greater level of contact Less contact Missing % (n) 44.4 (8) 38.9 (7) 11.1 (2) 5.6 (1) Table M.5 Respondents’ first encounter with the term ‘Infant Mental Health’ Time 1 Time 2 Response % (n) % (n) I have never heard this term 2.5 (1) 15.0 (6) 17.5 (7) 30.0 (12) 35.0 (14) 5.6 (1) 5.6 (1) 11.1 (2) 44.4 (8) 33.3 (6) In the last month In the last year In the last 3 years Over 3 years ago Table M.6 The occasion when respondents reported last hearing the team ‘Infant Mental Health’ Response % I have never heard of this terma (n) 5.6 (1) In the past week 77.8 (14) In the past month 11.1 (2) 0.0 (0) 5.6 (1) 0.0 (0) In the past six months In the past year Over a year ago Note. a This question was only asked at Time 2. 73 Table M.7 The reported relevance of IMH to respondents’ current roles Time 1 Time 2 Response % % Very Relevant (n) 52.5 (21) 32.5 (13) 2.5 (1) 0.0 (0) 5.0 (2) 7.5 (3) (n) 61.1 (11) 27.8 (5) 0.0 (0) 0.0 (0) 11.1 (2) 0.0 (0) Relevant Neither Irrelevant Very Irrelevant Missing Table M.8 Respondents’ level of agreement with statements relating to IMH Time 1 Time 2 Statement Disagree Neither Agree Disagree Neither Agree a) “I feel Infant Mental Health is an important issue for the Ballymun community as a whole” 2.5% 0.0% 92.5% 0.0% 5.6% 88.9% (n=1) (n=0) (n=37) (n=0) (n=1) (n=16) b) “I am committed to the concept of IMH and to raising awareness of it in Ballymun” 0.0% 0.0% 92.5 % 0.0% 11.1% 83.3% (n=0) (n=0) (n=37) (n=0) (n=2) (n=15) c) “I feel that I can make the time needed to identify and address IMH needs in Ballymun with my current work demands” 25.0% 12.5% 55.0% 27.8% 11.1% 51.1% (n=10) (n=5) (n=22) (n=5) (n=2) (n=9) d) “I want to identify and address IMH needs in Ballymun but simply don’t have the resources right now” 20.0% 27.5% 50.0% 33.3% 16.7% 33.3% (n=8) (n=11) (n=20) (n=6) (n=3) (n=6) 74 Table M.9 Respondents’ reported actual and desired level of involvement in key decisions related to IMH activities To what extent are you involved in key decisions in relation to IMH activities in the community? Not at all Informed Consulted Responsible Missing To what extent do you believe you should be involved in these decisions? Time 1 Time 2 Time 1 Time 2 % % % % (n) 25.0 22.2 (n) (n) 5.0 (n) (10) (4) (2) (1) 40.0 22.2 45.0 16.7 (16) (4) (18) (3) 12.5 16.7 22.5 44.4 (5) (3) (9) (8) 22.5 33.3 27.5 27.8 (9) (6) (11) (5) 0.0 5.6 0.0 5.6 (0) (1) (0) 5.9 (1) 75 Table M.10 Mean and cumulative ranks for respondents’ ratings of factors contributing to successful capacity building in order of importance Time 1 Time 2 Factors contributing to successful capacity building Mean Rank Cumulative Rank Direct training by RSG of frontline staff in Infant Mental Health issues 2.9 1 Rank 3.2 Formal Infant Mental Health knowledge sharing between frontline staff members, both within and between organisations (e.g. through meetings, mailing lists, discussion forums) 3.2 2 3.1 2 Correct identification, targeting and engagement of the service users who are in most need of support 4.0 3a 3.6 4 All stakeholders believing that the changes they make to build capacity will lead to improved outcomes for the service users 4.0 3a 2.9 1 Individuals taking the initiative to form relationships with frontline staff from other organisations and sharing knowledge on a one-toone basis Individuals having a personal interest in infant mental health issues which they choose to pursue within their roles, regardless of training or resources 4.3 4 4.5 5a 4.4 5 4.8 6 RSG being receptive and responsive to feedback from frontline staff in other organisations about issues relevant to IMH 4.5 6 4.5 5a Mean Cumulative Rank 3 Note. a The ranks are tied 76 Table M.11 Respondents’ level of agreement with statements relating to capacity building and IMH Time 1 Time 2 Statement Disagree Neither Agree Disagree Neither Agree a) RSG are building capacity in the right 10.0% (n=4) 10.0% (n=4) 72.5% (n=29) 16.7% (n=3) 11.1% (n=2) 66.6% (n=12) places: they are giving the relevant staff appropriate training to deal with the circumstances they encounter b) When working with service users referred to me by RSG: I. I try to put the baby at the centre of everything and work from there 2.5% (n=1) 10.0% (n=4) 72.5% (n=29) 11.1% (n=2) 5.6% (n=1) 72.2% (n=13) II. My role is to nurture and support the parents, so they can in turn support the baby 2.5% (n=1) 12.5% (n=5) 77.5% (n=31) 5.6% (n=1) 16.7% (n=3) 72.2% (n=13) III. My role is to attend to the parent child relationship 2.5% (n=1) 12.5% (n=5) 75.0% (n=30) 5.6% (n=1) 27.8% (n=5) 66.7% (n=12) IV. I feel that the parent is the expert on the baby 7.5% (n=3) 15.0% (n=6) 75.0% (n=30) 5.6% (n=1) 5.6% (n=1) 83.4% (n=15) V. I feel that I am the expert on the baby 57.5% (n=23) 27.5% (n=11) 10.0% (n=4) 72.3% (n=13) 22.2% (n=4) 5.6% (n=1) VI. The parent is the expert but under certain circumstances I know more than the parent about their baby 22.5% (n=9) 20.0% (n=8) 50.0% (n=20) 33.3% (n=6) 11.1% (n=2) 55.5% (n=10) VII. I am the expert, but under certain circumstances the parent knows more than I do about their baby 27.5% (n=11) 22.5% (n=9) 42.5% (n=17) 50.0% (n=9) 22.2% (n=4) 27.8% (n=5) 77 Table M.12 Mean and cumulative ranks for respondents’ ratings of barriers to capacity building in order of impact Time 1 Barriers Mean Rank Time 2 Cumulative Rank Mean Rank Cumulative Rank A lack of financial resources for issues which might assist with capacity building 2.9 1 3.5 3 A lack of interest in collaboration between organisations 3.7 2 3.4 2 A disconnect between RSG trying to build capacity and organisations embracing of that idea 3.9 3 3.1 1 Difficulty putting theory into practice 4.2 4 4.4 5 Difficulties in individual relationships between service providers at different agencies 4.3 5 3.9 4 A lack of motivation among frontline staff 4.5 6a 4.6 6 A lack of interest in training and up-skilling among frontline staff 4.5 6a 4.7 7 Note. a The ranks are tied 78 Table M.13 Respondents’ attendance at and ratings of RSG meetings/events. Time 1 Time 2 % % (n) (n) 72.5 66.7 (29) (12) 25.0 27.8 (10) (5) 2.5 5.6 (1) (1) 0 0 (0) (0) 0 0 (0) (0) 13.8 8.3 (4) (1) 48.3 41.7 (14) (5) 37.9 50 (11) (6) Attendance at meetings/events Yes No Missing Success of meetings/events attended a Poor Weak Average Good Excellent Note a Percentages are based only on participants who reported that they had attended meetings/events 79 Table M.14 Professionals’ perceptions of IMH training and their current skill level Time 1 Statement Time 2 Disagree Neither Agree Disagree Neither Agree a) IMH training was relevant and has benefited me in my day to day worka 0.0% 11.8% 88.2% 0.0% 0.0% 100% (n=0) (n=2) (n=15) (n=0) (n=0) (n=10) b) IMH training delivery and style was effective 0.0% 5.9% 94.1% 10.0% 0.0% 90.0% (n=0) (n=1) (n=16) (n=1) (n=0) (n=9) c) I have had the opportunity to apply the skills I have learned in IMH training 0.0% 5.9% 94.1% 0.0% 0.0% 100% (n=0) (n=1) (n=16) (n=0) (n=0) (n=10) d) I have been given the opportunity to reflect upon and discuss how I am applying the skills I have learned 11.8% 0.0% 88.2% 10.0% 10.0% 80.0% (n=2) (n=0) (n=15) (n=1) (n=1) (n=8) e) I don’t need any further training from RSG, I feel confident that I have the skills necessary to work with them 70.5% 11.8% 17.7% 90.0% 10.0% 0.0% (n=12) (n=2) (n=3) (n=9) (n=1) (n=0) f) I don’t feel confident in my skills – I would like to receive further training for my work with RSG 35.3% 11.8% 53.0% 60.0% 10.0% 30.0% (n=6) (n=2) (n=9) (n=6) (n=1) (n=3) g) I feel confident in my skills but would like further training from RSG 5.9% 11.8% 82.4% 10.0% 10.0% 80.0% (n=1) (n=2) (n=14) (n=1) (n=1) (n=8) a Note. Percentages are based only on respondents who answered this question 80 Table M.15 Respondents’ perceptions of collaborative activities between RSG and professionals Time 1 Statement Time 2 Disagree Neither Agree Disagree Neither Agree 7.5% 10.0% 70.0% 5.6% 11.1% 83.3% (n=3) (n=4) (n=26) (n=1) (n=2) (n=15) b) RSG are failing to engage the most appropriate service delivery groups in the area c) The leadership from RSG around IMH issues is clearly defined 62.5% 17.5% 10.0% 44.5% 22.2% 16.7% (n=25) (n=7) (n=4) (n=8) (n=4) (n=3) 17.5% 7.5% 65.0% 5.6% 16.7% 77.8% (n=7) (n=3) (n=26) (n=1) (n=3) (n=14) d) RSG has a clearly defined strategy 2.5% 7.5% 80.0% 0.0% 11.1% 88.9% (n=1) (n=3) (n=32) (n=0) (n=2) (n=16) (n=14) (n=5) (n=17) (n=8) (n=6) (n=4) RSG have a clear vision of what they want to achieve in Ballymun 0.0% 2.5% 85.0% 0.0% 0.0% 100% (n=0) (n=1) (n=34) (n=0) (n=0) (n=18) I am aware of efforts being made by RSG to lobby local political figures in relation to IMH issue 17.5% 17.5% 55.0% 16.7% 33.3% 50.0% (n=7) (n=7) (n=22) (n=3) (n=6) (n=9) h) I have been linked to other service providers through RSG 12.5% 15.0% 65.0% 27.8% 16.7% 55.6% (n=5) (n=6) (n=26) (n=5) (n=3) (n=10) i) 12.5% 12.5% 65.0% 16.7% 22.2% 61.1% (n=5) (n=5) (n=26) (n=3) (n=4) (n=11) a) e) f) g) RSG are targeting the right partners in terms of service delivery groups RSG’s success is the direct result of the work of a few committed individuals 35.0% RSG has encouraged me to build upon pre-existing links with other service providers 12.5% 42.5% 44.5% 33.3% 22.2% Table M. 16 Respondents’ ratings of RSG’s influence on their interactions with other service providers Time 1 Time 2 Response % % Positively (n) 70.0 (n) 77.8 (28) (14) 0.0 0.0 (0) (0) 25.0 16.7 (10) (3) 5.0 5.6 (2) (1) Negatively Had no impact Missing Table M.17 Respondents’ perceptions of local parents’ knowledge about RSG 81 Level of Knowledge None Know the name Know it’s related to babies Know it’s related to babies’ development Know it is related to babies’ development and the relationship between caregiver and baby Missing Time 1 Time 2 % % (n) (n) 5.0 5.6 (2) (1) 15.0 11.1 (6) (2) 20.0 11.1 (8) (2) 40.0 44.4 (16) (8) 20.0 16.7 (8) (3) 0.0 11.1 (0) (2) Table M.18 Level of Reach of RSG services Time 1 Time 2 % % (n) (n) I feel RSG is reaching all of the people who need it most 2.5 0.0 (1) (0) I feel RSG is reaching the majority of the people who need it most 22.5 27.8 (9) (5) I feel RSG is reaching some, but not all of the people who need it most 62.5 61.1 (25) (11) I feel RSG is reaching few of the people who need it most 12.5 0.0 (5) (0) Missing 0.0 11.1 (0) (2) Reaching the people who need it most 82 Table M.19 Mean and cumulative ranks for respondents’ ratings of barriers to parental engagement in order of impact Time 1 Time 2 Barriers to parental engagement Mean Rank Cumulative Rank Mean Rank Cumulative Rank There is a culture of non-engagement in families (so people are influenced by negative attitudes of their own parents/siblings) 3.1 1 2.7 1 Parents forget appointments - they need individual reminders and encouragement to attend 3.3 2 3.7 4 Logistical issues (e.g. difficulty arranging babysitters for other children so they can attend a programme, difficulty getting time off work, difficulty getting to the programme site) 3.4 3 4.1 5 There is a culture of mistrust of organisations among parents 3.6 4 3.2 3 Lack of belief among parents about what programmes offered by RSG can actually achieve 3.8 5 4.3 6 There is a culture of non-engagement in the area (so people are influenced by negative attitudes of their neighbours and friends) 3.9 6 3.1 2 Over-representation of similar programmes in the area 6.2 7 6.3 7 83 Table M.20 Respondents’ perceptions of RSG’s engagement diverse groups Time 1 Statement Time 2 Disagree Neither Agree Disagree Neither Agree RSG are facilitating the Early Identification of children’s needsa n/a n/a n/a 0.0% 0.0% 88.9% (n=0) (n=0) (n=16) b) RSG contribute positively to the Early Identification of children’s needsa n/a 0.0% 0.0% 94.4% (n=0) (n=0) (n=17) c) 32.5% 40.0% 20.0% 11.1% 55.6% 22.2% (n=13) (n=16) (n=8) (n=2) (n=10) (n=4) d) RSG are actively attempting to engage members of the Travelling communitya n/a n/a n/a 0.0% 38.9% 50.0% (n=0) (n=7) (n=9) e) RSG have successfully engaged people from international backgrounds 0.0% 25.0% 75.0% 0.0% 11,1% 72.2% (n=0) (n=10) (n=30) (n=0) (n=2) (n=13) RSG are actively attempting to engage people from international backgroundsa n/a n/a n/a 5.6% 22.2% 61.1% (n=1) (n=4) (n=11) RSG have successfully engaged young parentsa n/a 5.6% 11.1% 66.7% (n=1) (n=2) (n=12) 0.0% 0.0% 100% (n=0) (n=0) (n=18) a) f) g) RSG have successfully engaged members of the Travelling community h) RSG are actively attempting to engage young parentsa n/a n/a n/a n/a n/a n/a n/a a Note. Questions a, b, d, f, g and h were only included in the second survey. 84 Table M.21 Respondents’ perceptions of RSG’s work with parents and other services in the community Time 1 Statement Time 2 Disagree Neither Agree Disagree Neither Agree 12.5% 12.5% 75.0% 16.7% 5.6% 72.2% (n=5) (n=5) (n=30) (n=3) (n=1) (n=13) b) RSG clearly communicates to the people in the community about how it and other service providers will address problems that are important to them c) RSG and other community services provide adequate support to parents in order to help them attend appointments related to IMH 7.5% 25.0% 62.5% 11.1% 27.8% 55.6% (n=3) (n=10) (n=25) (n=2) (n=5) (n=10) 10.0% 12.5% 75.0% 5.6% 22.2% 66.7% (n=4) (n=5) (n=30) (n=1) (n=4) (n=12) d) Parents who attend RSG-related services have a sense of trust and feel that they are in good hands e) I have noticed parents in the community becoming more proactive in relation to addressing IMH issues f) Current RSG service users are engaging sufficiently with services in relation to IMH g) RSG works effectively with partners to be able to respond to the IMH needs of the community 0.0% 17.5% 80.0% 0.0% 11.1% 83.3% (n=0) (n=7) (n=32) (n=0) (n=2) (n=15) 15.0% 37.5% 45.0% 16.7% 33.3% 44.5% (n=6) (n=15) (n=18) (n=3) (n=6) (n=8) 10.0% 30.0% 55.0% 16.7% 38.9% 33.3% (n=4) (n=12) (n=22) (n=3) (n=7) (n=6) 5.0% 22.5% 70.0% 5.6% 16.7% 66.7% (n=2) (n=9) (n=28) (n=1) (n=3) (n=12) h) RSG works together with service providers to maintain relationships with parents in relation to IMH 10.0% 10.0% 77.5% 0.0% 22.2% 72.2% (n=4) (n=4) (n=31) (n=0) (n=4) (n=13) a) RSG promotes its services effectively to parents in the community 85 Table M.22 Mean and cumulative ranks for respondents’ ratings of communication methods used to promote IMH services in order of effectiveness Time 1 Barriers Mean Rank Time 2 Cumulative Rank Mean Rank Cumulative Rank Word of mouth 1.8 1 1.7 1 Scheduled home visits by frontline staff 3.0 2 3.3 3 Informal door to door visits by frontline staff 3.8 3 3.9 4 Text messages 4.0 4 3.1 2 Letters 4.2 5a 4.5 5 Posters / Flyers 4.2 5a 4.6 6 Emails 6.1 6 6.2 7 Note. a The ranks are tied 86 Table M.23 Respondents perceptions of RSG’s collaboration with partners, services, and families in Ballymun Time 1 Statement Time 2 Disagree Neither Agree Disagree Neither Agree I feel that the number of common goals and objectives outweighs the number of conflicting goals and objectives between RSG and my organisation 12.5% 12.5% 62.5% 5.6% 22.2% 55.6% (n=5) (n=5) (n=25) (n=1) (n=4) (n=10) b) As a service community, we have identified what we need to achieve in relation to IMH in the community 15.0% 17.5% 65.0% 11.1% 27.8% 61.1% (n=6) (n=7) (n=26) (n=2) (n=5) (n=11) c) 12.5% 2.5% 82.5% 5.6% 16.7% 77.8% (n=5) (n=1) (n=33) (n=1) (n=3) (n=14) d) RSG has been able to correctly identify how different programmes in the community relate to the problems the partnership is trying to address 7.5% 27.5% 62.5% 5.6% 44.4% 44.4% (n=3) (n=11) (n=25) (n=1) (n=8) (n=8) e) RSG works with a diverse range of professionals and organisations in relation to IMH 0.0% 5.0% 92.5% 5.6% 0.0% 94.4% (n=0) (n=2) (n=37) (n=1) (n=0) (n=17) I have sufficient linkages with RSG to facilitate engagement, assessment, support and intervention with parents in relation to IMH 17.5% 17.5% 57.5% 11.1% 22.2% 50.0% (n=7) (n=7) (n=23) (n=2) (n=4) (n=9) a) f) Service providers working together in the community generally trust one another 87 Table M.23 (Continued) Time 1 Time 2 Statement Disagree Neither Agree Disagree Neither Agree g) 5.0% 10.0% 82.5% 0.0% 22.2% 77.8% (n=2) (n=4) (n=33) (n=0) (n=4) (n=14) h) I feel communicated to and informed in relation to IMH activities in the community 20.0% 7.5% 70.0% 0.0% 11.1% 83.3% (n=8) (n=3) (n=28) (n=0) (n=2) (n=15) i) I feel that my organisation is on the outside when it comes to initiatives, activities and supports in relation to IMH 47.5% 20.0% 25.0% 66.7% 11.1% 16.7% (n=19) (n=8) (n=10) (n=12) (n=2) (n=3) Organisations communicate with one another about IMH independently of RSG 27.5% 32.5% 37.5% 33.3% 33.3% 33.3% (n=11) (n=13) (n=15) (n=6) (n=6) (n=6) I feel that service providers share knowledge effectively in relation to IMH in the community 22.5% 27.5% 40.0% 27.8% 27.8% 33.3% (n=9) (n=11) (n=16) (n=5) (n=5) (n=6) The work that RSG is currently doing in the community is sustainable in the long term 12.5% 12.5% 70.0% 0.0% 22.2% 66.7% (n=5) (n=5) (n=28) (n=0) (n=4) (n=12) m) RSG has effective methods for handling conflict between service providers when working together towards promoting IMH in the community 10.0% 40.0% 45.0% 5.6% 50.0% 44.4% (n=4) (n=16) (n=18) (n=1) (n=9) (n=8) j) k) l) I feel that meetings and events in relation to IMH are addressing pressing issues and are worthwhile Table M.24 Respondents’ perceptions of RSG’s progress in embedding a system of IMH risk identification into the service community. Just started On the road Nearly there We’re there Missing Time 1 Time 2 % % (n) (n) 22.5 5.6 (9) (1) 47.5 72.2 (19) (13) 25.0 16.7 (10) (3) 5.0 0.0 (2) (0) 0.0 5.6 (0) (0) 88 Table M.25 Mean and cumulative ranks for respondents’ ratings of causes of conflict between organisations in order of relevance Time 1 Conflicts Mean Rank Time 2 Cumulative Rank Mean Rank Cumulative Rank Resources 1.9 1 2.0 1 Responsibilities / Referrals 2.4 2 2.7 3 Individuals’ fear of losing power /autonomy regarding their roles 2.8 3 2.5 2 Personality clashes 3.7 4 4.3 5 A historic of conflict 3.8 5 3.3 4 Open ended questions. The second survey also offered respondents the opportunity to provide additional comments relating to capacity building, collaboration, and early identification of IMH problems. Seven professionals offered responses on capacity building. Two respondents referred positively to the work of RSG, in raising awareness around IMH (n =1), and being valued by stakeholders (n =1). Another professional described RSG’s work as a “work in progress”. The remaining respondents alluded to the need for specific changes including: expanding the catchment area (n = 1), reaching out more to early years practitioners (n =1), helping organisations to revaluate and change their working practices (n =1), and linking with and focusing on young mothers as young people as well as parents (n =1). In relation to collaborative working, three respondents referred to the positive contribution of RSG in this area, with the work of the integration facilitator and PCPS/PHN teams receiving particular mention. Another professional identified the role of the IMH study group in enhancing collaborative working. Also, while one respondent linked collaboration to a significant change in service provision for 0-3s, another respondent indicated that case loads and low staffing resources were inhibiting her organisation’s ability to work collaboratively with RSG. Four participants offered additional comments on early identification. One respondent provided a negative appraisal by stating that RSG was still missing the most vulnerable families. Two participants commented on positive impacts, with one participant noting changes on PHN early identification practice, and the other describing RSG’s assessment and intervention work as “groundbreaking and essential”. The fourth respondent pointed to improvements that could be made by RSG by tailoring its work to other organisations’ needs and skills in promoting parental engagement. 89 Four professionals identified changes/developments in the RSG service. Changes included RSG’s development into an area-based IMH strategy (n =3), changes in organisational roles (n =1), and the development of programmes, training, capacity building, and services’ impact on policy makers (n =1). For one respondent the changes she identified had not had impacted on her practice. However, another participant noted that the clearer IMH framework had allowed her to audit progress and make plans for addressing outstanding gaps. In relation to changes outside of RSG four professionals described increased work demands (e.g. reductions in staffing and higher case loads), with two of these professionals detailing the negative impact of these changes on their work. In contrast, two professionals noted changes in work practices that had links to IMH (e.g. introducing continuity of care in early years setting) with both indicating that these changes allowed for greater collaboration with RSG. One practitioner also stated that the IMH study group had become more focused. 90 Appendix N: PCPS Instruments The following instruments are collected by the PCPS during the course of programme delivery. N.1 Parenting Stress Index The Parenting Stress Index Short Form (PSI/SF; Abidin, 1995) is administered at the introductory visit (IV) and the 15 month visit. It provides a total score (36 items, α = .93) and three subscales measuring potential factors related to Parenting Stress – parental distress, parent-child dysfunctional interaction and difficult child. It provides an overall parenting stress score in addition to scores for each of the three subscales, each containing 12 items. The Parental distress subscale measures parents’ level of distress regarding her perception of her parenting role. The Parent-child Dysfunctional Interaction subscale considers the mother’s perception of the quality of her interactions with the child. The Difficult Child subscale measures the behavioural characteristics of the child, as perceived by the mother. The PSI-SF also contains a measure of defensive responding (Abidin, 1995). The parent is presented with each of the 36 items and asked to indicate his/her level of agreement with each item across a 5 point Likert scale. A response of ‘strongly agree’ is scored as 1 and strongly disagree is scored 5, with possible scoring range of 36 to 180. A lower overall score is indicative of higher levels of self reported stress. Subscales are calculated by summing the responses to items that comprise each subscale. The overall PSI score is a summation of all subscales: difficult child (12 items, α = .87), parenting distress (12 items, α = .87), and parent-child dysfunctional interactions (12 items, α = .89). The test–retest, and internal consistency reliability of the PSI on various scales ranges from 0.68 to 0.84. N.2 Parenting Sense of Competence The Parenting Sense of Competence Scale (Adapted) (PSOC; Gibaud-Wallston & Wandersman, 1978) is administered at the IV and at the 15 month visit. It is a 17-item questionnaire which measures overall parenting sense of competence and includes two subscales : feelings of satisfaction and efficacy in the parenting role. Scores from six-item likert scales are summed to give a total score for Parenting Sense of Competence. Parental satisfaction is measured by nine of the items and parental self-efficacy is measured by eight items which are reverse-scored. The authors (Gibaud-Wallston & Wandersman, 1978) report six week test-retest correlations of .46 to .82. Acceptable levels of internal consistency have been reported for the total, Satisfaction, and Efficacy scales (α = .79, .75, and .76 respectively; Johnston & Mash, 1989). 91 The reliability of the PSI/SF and the PSOC at each time point is listed in table N.1: Table N.1 Cronbach alphas for PSI/SF and PSOC scales PSI/SF Scale N Alpha Total PSI/SF (3 months) 298 0.91 Parental Distress (3 months) 298 0.83 Parent Child Dysfunctional Interaction (3 months) 298 0.86 Difficult Child (3 months) 298 0.86 Total PSI/SF (15 months) 183 0.93 Parental Distress (15 months) 183 0.90 Parent Child Dysfunctional Interaction (15 months) 183 0.85 Difficult Child (15 months) 183 0.87 Total PSOC (3 months) 301 0.75 Efficacy (3 months) 301 0.66 Satisfaction (3 months) 301 0.69 Total PSOC (15 months) 182 0.85 Efficacy (15 months) 182 0.79 Satisfaction (15 months) 182 0.81 PSI/SF PSOC N.3 Strange Situation Procedure Children’s attachment is measured at the 15 month visit, using the Strange Situation Procedure (Ainsworth et al., 1978). This test consists of assessing the infant’s reaction over the course of a number of short separations from and subsequent reunions with its parent, while a stranger also comes and goes from the room. There are 8 specific episodes over a course of twenty minutes which involve a combination of the parent and stranger interacting with or not interacting with the infant, and the infant being left alone briefly. The test is based on the assumption that the child’s reactions are an indication of the infant’s expectations of the parent’s availability and responsiveness to him/her, and whether or not these anticipated parental reactions give the baby a sense of security and trust. Coders analyse a recording of the infant’s behaviour at set times during the test and assign a score on four different behaviours: proximity seeking, contact seeking and maintenance, resistance and avoidance. An overall attachment type is then given to the child. A secure classification indicates that the child can trust the mother during and after times of adversity, i.e. when separated and then reunited. An insecure classification, such as insecure-ambivalent or insecure-avoidant suggests that 92 the child may be unsure of whether or not to trust the parent. Coding on this instrument was managed by Profession M. Angeles Cerezo and was conducted by an offsite team. Only the final scores of secure or insecure were available to the research team. N.4 Early Child Mother Interaction Coding System (CITMI-R) For this assessment, the parent is invited to engage in four minutes of uninterrupted, sequential free play with the child when the nurse leaves the station temporarily. Their interaction is visually recorded and is subsequently analysed on a number of different dimensions in order to examine the quality and nature of the parent’s response to the child during this time is coded. Coders analyse parent and child interaction in two categories – “interaction” when the child chooses to engage the parent in play, and “non-interaction” when the child is playing alone and does not attempt to directly engage the parent. The parent’s incidences of sensitive, intrusive, protective or disengaged behaviour towards their child are recorded for “interaction”. When measuring the incidence of noninteraction, the same measures are used however the disengaged measure is omitted. Sensitive behaviours correspond to parental attunement with the child and are desirable. Behaviours which are intrusive, protective or disengaged are undesirable and may indicate parents who are less attuned to their baby’s needs (Cerezo et al. 1986: in Cerezo, 2000). Coders undergo 18 hours of training where the coder’s level of reliability with a pre-scored key is calculated using kappa coefficient (Cerezo, 1991, as cited by M. A. Cerezo, personal communication, July 20, 2012). The scale has been shown to have good content validity and criterion validity (Trenado, Pons-Salvador, & Cerezo, 2001, as cited by M. A. Cerezo, personal communication, July 20, 2012). N.5 Manual of Developmental Diagnosis – Gesell Developmental Schedules: The child’s development is assessed through the administration of the Revised Gesell Developmental Schedules at Station C at each programme visits except 15 months. The Gesell Developmental Schedules were developed by Dr. Arnold Gesell in 1925 in the USA. They were revised in 1974 by Knoblock and Pasamanick and again in 1980 by Knobloch, Stevens and Malone – this is the version employed by the current programme. The scales list target behaviours grouped under five main developmental fields: adaptive (alertness, intelligence, constructive exploration), gross motor (balance, sitting, locomotion, postural reactions), fine motor (manual dexterity), language (facial expression, gestures, vocalisations) and personal-social (feeding, playing, toilet training). An overall global development age is also obtained which is based on an average of the five developmental fields. Each behaviour is marked (+ or -) as either observed (seen by the assessor) or history (parent has observed the behaviour in the past). Scores are determined by the presence or absence of specific behaviours characteristic of children of a certain chronological age (CA). The presence or absence of behaviours form the basis for a developmental age (DA) which can then be expressed as a Developmental Quotient (DA/CA x 100). 93 Appendix O: Analysis of PCPS Outcomes Data Initially, the data were examined to determine its accuracy and whether the variables were normally distributed. First, to ensure accuracy, the original data were proofread against the PASW data file. In addition, the plausibility of the data was inspected by examining the minimum and maximum values of all variables. The means and standard deviations of continuous variables were also inspected. It was ensured that all values were within the plausible range. Second, missing data were considered. Individual mean imputation was used for scales where one or two items were missing. Missing values were replaced by the average of the completed items of the scale. This method was chosen over other methods such as Multiple Imputation (MI) since it has been found to produce high correlation coefficients with real data, and to perform comparably as accurately as other methods (Tabachnick & Fidell, 2007). It also has the advantage of ease of interpretability (Shrive, Stuart, Quan, & Ghali, 2006). Missing data in scales were assessed and where one or two items were missing, individual mean imputation was performed. The reliability of the scales were examined by calculating the Cronbach alpha (α) of each scale, the most frequently used indicator of internal consistency. All scales had coefficients of greater than 0.7, and were therefore considered to be reliable. Third, in order to assess whether variables were normally distributed, frequency histograms and Q-Q plots of each variable were visually inspected. In addition, z-scores for skew and kurtosis were calculated. Skewness relates to the degree and direction of symmetry of a distribution and kurtosis relates to the peakedness of a distribution. Variables with a skew or kurtosis z-score greater than an absolute value of 3.29 were considered non-normal, as recommended by Tabachnick and Fidell (2007) and Field (2009). 94 Appendix P: PCPS Outcomes Comparison Analysis As the sample size of the PCPS and PFL comparison groups was relatively small, all the analyses comparing the baseline characteristics and the outcomes of the two groups used permutation-based hypothesis testing. This approach has been found to be appropriate for small samples and was used to analyse data for a similar evaluation of the Perry Preschool Program by Heckman and colleagues (Heckman, Moon, Pinto, Savelyev, & Yatiz 2010). A permutation test gives accurate p-values even when the sample sizes are small and sampling distribution is skewed as they do not rely on parametric assumptions (Marozzi, 2002). A permutation test is a method whereby the outcome of interest is tested for significance by comparing the original sample to multiple, random permutations of the data. In practice, the permutation testing procedure compares a test statistic computed on the original (pre-permutation) data with a distribution of test statistics computed on re-samplings of that data. First, the relationship between measures is observed and a test statistic is calculated. Then, the data are shuffled multiple times (i.e., 10,000) to examine whether the observed relationship is likely to occur by chance. The p-value for a permutation test is computed as the fraction of re-sampled data which yield a test statistic greater (or less, depending on the direction of the test) than that yielded by the original data. If the fraction is small, we know that the original statistic is an unlikely outcome. The differences between the two groups were tested using both unconditional and conditional permutation analysis. Conditional permutation analysis controls for differences in underlying characteristics between the two groups. For additional robustness, the propensity score matching technique was also employed when comparing the outcomes of the two groups. The radius method with a caliper set at 0.01 was used to match individuals in the PCPS group to those in the comparison group. This method was preferred over nearest neighbour matching as it was most successful at reducing bias in the comparison. The idea is to get as close a match as possible on underlying characteristics before examining any differences between the groups on the two instruments of interest. Finally, multiple hypothesis testing was used which allows us to test for the joint significance of multiple outcomes at the same time, thus minimising the likelihood of finding treatment effects that are false. The multiple hypothesis method that we use is called the stepdown procedure. To illustrate the stepdown procedure, consider the null hypothesis of no treatment effect for a set of, say, K outcomes jointly. The complement of the joint null hypothesis is the hypothesis that there exists at least one hypothesis out of K that we reject. We applied the analysis of Romano and Wolf (2005) and its extension by Heckman et al. (2010). Their methods control for overall error rates for vectors of hypotheses using the family-wise error rate (FWER), the probability of yielding one or more false positives out of a set of hypotheses tests, as a criterion. 95 Appendix Q : Baseline Characteristics Comparison Table Q.1: Comparisons of PCPS baseline characteristics with PFL Control (CT), PFL Low Treatment, and Combined PFL Control + Low Treatment baseline characteristics PCPS CT P* PFL Low Treatment P* Low + CT P* M (SD) M (SD) PCPS/CT M (SD) PCPS/PFL Low M (SD) PCPS/Low+CT Economic Problems 0.49 (0.50) 0.48 (0.50) ns 0.55 (0.50) ns 0.51 (0.50) ns Planned Pregnancy 0.56 (0.5) 0.48 (0.50) ns 0.30 (0.46) <.01 0.39 (0.49) <.01 No. of Other Children 0.95 (1.21) 1.11 (1.35) ns 0.91 (1.15) ns 1.01 (1.25) ns Mother’s Age 29.17 (6.22) 27.28 (6.20) <.01 25.30 (5.99) <.01 26.28 (6.16) <.01 Mother Low Education 0.29 (0.45) 0.25 (0.44) ns 0.40 (0.49) <.05 0.33 (0.47) ns Mother Unemployed 0.42 (0.50) 0.37 (0.49) ns 0.41 (0.49) ns 0.39 (0.49) ns Mother Breastfed 0.24 (0.43) 0.32 (0.47) ns 0.22 (0.42) ns 0.27 (0.45) ns Irish Mother 0.74 (0.44) 0.95 (0.22) <.01 0.99 (0.10) <.01 0.97 (0.17) <.01 Parenting Stress (Mother) 65.64 (15.52) 63.98 (16.99) ns 64.3 (16.18) ns 64.14 (16.53) ns Father’s Age 31.2 (6.43) 29.45 (7.28) <.05 27.58 (7.33) <.01 28.50 (7.35) <.01 Father Low Education 0.35 (0.48) 0.38 (0.49) ns 0.48 (0.50) <.05 0.43 (0.50) ns Father Unemployed 0.39 (0.49) 0.31 (0.47) ns 0.31 (0.47) ns 0.31 (0.46) ns Low BW 0.10 (0.30) 0.06 (0.23) ns 0.10 (0.30) ns 0.08 (0.27) ns Male 0.50 (0.50) 0.51 (0.50) ns 0.36 (0.48) <.05 0.43 (0.50) ns Note. *P’ indicates the p value. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. ‘ns’ indicates the variable is not statistically significant. 96 Appendix R: PFL Comparison Analyses Table R.1 PCPS versus PFL Comparison Group Controls for: mother’s age, father’s age, nationality N (ntreatment / ncontrol)a Treatment M (SD) Control M P (SD) Communication 6 Months 297 (213/84) 100.01 15.05 98.98 13.61 ns 12 Months 266 (184/82) 99.83 14.38 101.80 14.04 ns 18 Months 279 (208/71) 99.90 15.03 99.39 14.22 ns Gross Motor 6 Months 297 (213/84) 99.92 15.08 100.04 15.48 ns 12 Months 266 (184/82) 101.28 13.23 101.29 13.70 ns 18 Months 279 (208/71) 99.98 15.08 102.50 13.09 ns Fine Motor 6 Months 297 (213/84) 99.97 15.06 100.16 14.77 ns 12 Months 266 (184/82) 99.73 15.38 101.03 13.37 ns 18 Months 279 (208/71) 99.89 14.98 101.69 12.98 ns Problem Solving 6 Months 297 (213/84) 99.92 15.08 100.43 13.69 ns 12 Months 266 (184/82) 100.14 14.76 101.57 13.82 ns 18 Months 279 (208/71) 99.99 15.02 100.12 13.65 ns Personal & Social 6 Months 297 (213/84) 100.01 15.10 101.64 14.00 ns 12 Months 266 (184/82) 99.56 15.33 100.76 14.63 ns 18 Months 279 (208/71) 100.08 15.08 100.65 14.18 ns Global 6 Months 297 (213/84) 100.00 15.00 102.00 16.57 ns 12 Months 266 (184/82) 99.89 15.08 101.85 13.83 ns 279 (208/71) 100.00 15.00 101.32 12.45 ns 18 Months a Note. treatment’ denotes the PCPS sample and ‘control’ denotes the PFL comparison group. 97 Table R.2 PCPS versus PFL Low Treatment Group Controls for: mother’s age, father’s age, planned pregnancy, nationality, mother’s education, father’s education N (ntreatment / ncontrol)a Treatment M (SD) Control M P (SD) Communication 6 Months 303 (213/90) 100.01 15.05 99.31 16.23 ns 12 Months 267 (184/83) 99.83 14.38 99.32 15.32 ns 18 Months 281 (208/73) 99.90 15.03 100.18 15.92 ns Gross Motor 6 Months 303 (213/90) 99.92 15.08 98.69 15.37 ns 12 Months 267 (184/83) 101.28 13.13 98.78 15.61 ns 18 Months 281 (208/73) 99.98 15.08 96.52 20.33 ns Fine Motor 6 Months 303 (213/90) 99.97 15.05 100.37 15.70 ns 12 Months 267 (184/83) 99.73 15.38 97.47 16.98 ns 18 Months 281 (208/73) 99.89 14.98 98.41 15.94 ns Problem Solving 6 Months 303 (213/90) 99.92 15.08 100.33 16.07 ns 12 Months 267 (184/83) 100.14 14.76 99.17 16.40 ns 18 Months 281 (208/73) 99.99 15.02 99.63 14.93 ns Personal & Social 6 Months 303 (213/90) 100.01 15.10 98.77 16.30 ns 12 Months 267 (184/83) 99.56 15.33 98.59 16.45 ns 18 Months 281 (208/73) 100.08 15.08 98.54 16.58 ns Global 6 Months 303 (213/90) 100.00 15.00 99.26 15.74 ns 12 Months 267 (184/83) 99.89 15.08 98.09 16.60 ns 281 (208/73) 100 15 97.95 17.67 ns 18 Months a Note. treatment’ denotes the PCPS sample and ‘control’ denotes the PFL low treatment group. 98 Table R.3. PCPS versus PFL Comparison & Low Treatment Groups Controls for: Mother’s age, father’s age, nationality, planned pregnancy N (ntreatment / ncontrol)a Treatment M (SD) Control M P (SD) Communication 6 Months 387 (213/174) 100.01 15.05 99.15 14.98 ns 12 Months 349 (184/165) 99.83 14.38 100.55 14.71 ns 18 Months 352 (208/144) 99.90 15.03 99.79 15.06 ns Gross Motor 6 Months 387 (213/174) 99.92 15.08 99.34 15.40 ns 12 Months 349 (184/165) 101.28 13.13 100.03 14.70 ns 18 Months 352 (208/144) 99.98 15.08 99.47 17.35 ns Fine Motor 6 Months 387 (213/174) 99.97 15.05 100.27 15.21 ns 12 Months 349 (184/165) 99.73 15.38 99.24 15.35 ns 18 Months 352 (208/144) 99.89 14.98 100.02 14.60 ns Problem Solving 6 Months 387 (213/174) 99.92 15.08 100.38 14.93 ns 12 Months 349 (184/165) 100.14 14.76 100.36 15.18 ns 18 Months 352 (208/144) 99.99 15.02 99.87 14.27 ns Personal & Social 6 Months 387 (213/174) 100.01 15.10 100.16 15.26 ns 12 Months 349 (184/165) 99.56 15.33 99.67 15.56 ns 18 Months 352 (208/144) 100.08 15.08 99.58 15.42 ns Global 6 Months 387 (213/174) 100.00 15.00 100.58 16.16 ns 12 Months 349 (184/165) 99.89 15.08 99.96 15.36 ns 18 Months 352 (208/144) 100 15 99.62 15.36 ns Note. a treatment’ denotes the PCPS sample and ‘control’ denotes the PFL comparison and low treatment groups. 99 Appendix S: Additional comparison analyses: PCPS treatment group versus PCPS Comparison group Introduction & Methodology Previous analyses on the impact of the PCPS examined changes in the outcomes of the PCPS participants over time and a comparison of the outcomes of the PCPS participants to the outcomes of a group of socio-demographically similar families from another community who did not receive PCPS. The first set of findings may not be causally attributed to the programme as there may have been other factors affecting the outcomes over time that were unrelated to the programme, and the second set of findings may be limited by their reliance one equivalent measures across both groups child development. The present analysis compared the outcomes of PCPS participants who joined the programme at the 3 month visit and completed the 18 month visit to the outcomes of PCPS participants who joined the programme between the 15 and 18 month visit. When PCPS first began, parents of all children under the age of 18 months were invited to join the programme regardless of their infant’s age. For example, if an infant was 16 months old when the programme started operating in November 2009, they were eligible to join the programme and receive the 18 month visit. We identified 24 such participants who were eligible for the 15 and 18 month visit, or the 18 month visit only. These participants had the initial introductory visit (known as the “IV”) where baseline measures of family circumstances and parental well-being were recorded. All of these participants then received at least 1 programme visit. Thirteen participants received 1 programme visit, two received 2 programme visits, eight received 1 programme visit and 1 additional visit, and one received 1 programme visit and 1 additional visit. As this group did not self-select into a less intensive version of PCPS, it serves as a useful comparison for participants who were eligible for all six programme visits. For the purposes of this analysis we refer to the participants who joined the programme when their infants were 3 months old and were still in the programme when their infants were 18 months old as the ‘PCPS treatment group’. We refer to those who joined the programme when their infants were between 15 and 18 months as the ‘PCPS comparison group’. The analysis proceeded in two steps. First, as baseline data from the IV were available for both groups, two-tailed permutation tests were used to test for statistically significant differences between the PCPS treatment and PCPS comparison groups in terms of standard socio-demographic and health measures. Second, onetailed permutation tests were used to compare the 15 and 18 month outcomes of the PCPS treatment and the PCPS comparison groups to determine programme impact. Parent outcomes were measured at 15 months (Parental Stress Index/Short Form (PSI/SF); Parental Sense of Competence (PSOC)) and child outcomes were measured at 18 months (Gesell Developmental Schedules). We hypothesised that the parent and child outcomes of the treatment group who were eligible for all programme visits would be better than the outcomes of the comparison group who joined the programme at the latter stages. 100 Results Comparison of Baseline Characteristics Table S.1 compared the baseline characteristics of the PCPS treatment group and PCPS comparison group. It shows that there were no statistical differences across the two groups on any of the demographic, economic, and health outcomes considered. This indicated that the groups were equivalent regarding their baseline characteristics before they started receiving the programme, thus any observed differences between the two groups at 15 and 18 months may be attributed to PCPS rather than any underlying characteristics of the families. Table S.1 PCPS Treatment group versus PCPS Comparison group results: Baseline Demographics and Health Indicators Baseline Age of mother Age of father Teenage mother More than 3 children Single parent Irish family Mother 3rd level education Father 3rd level education Mother unemployed Father unemployed Economic problems Mother health problems affecting parenting Father health problems affecting parenting Low birth weight baby Premature baby Normal delivery Breastfed nPCPS/ ncomp PCPS treatment group PCPCP P value comparison M SD M 211/24 211/21 211/23 211/24 211/24 211/21 208/24 181/20 210/24 177/21 211/24 209/24 29.45 27.73 -0.07 -0.10 -0.36 0.74 0.33 0.33 -0.39 -0.36 -0.45 -0.26 6.27 11.73 0.26 0.31 0.48 0.44 0.47 0.47 0.49 0.48 0.50 0.44 28.38 29.76 -0.04 -0.08 -0.29 0.62 0.42 0.45 -0.58 -0.48 -0.42 -0.29 5.16 4.94 0.21 0.28 0.46 0.50 0.50 0.51 0.50 0.51 0.50 0.46 ns ns ns ns ns ns ns ns ns ns ns ns 181/20 -0.18 0.38 -0.15 0.37 ns 211/23 211/23 211/23 205/24 -0.10 -0.06 0.70 0.28 0.30 0.24 0.46 0.45 -0.22 0.00 0.74 0.25 0.42 0.00 0.45 0.44 group SD ns ns ns ns Note: N = sample size; M = mean; SD = standard deviation; p = p value indicating statistical significance from a two -tailed permutation test with 10,000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. Comparison of Parent Outcomes Tables S.2-4 compares the parent outcomes of the PCPS treatment group and the PCPS comparison group. When these outcomes were measured at 15 months for participants in both groups, the comparison group had not yet received any of the PCPS, while the treatment group had been in the programme since 3 months. 101 As evident in Table S.2, the treatment group had significantly lower parenting stress levels, as measured by the Parenting Stress Index (PSI), compared to the comparison group (p<0.05). This result was primarily driven by a lower score on the Difficult Child subscale which assesses how easy a parent finds managing their child’s behaviour. Table S.2 PCPS Treatment group versus PCPS Comparison group results: Parenting Stress Index (PSI) - Defensive Responding Included 15 Months nPCPS/ ncomp PCPS treatment group M SD PCPCP P value comparison M Total Stress Parental Distress Parent-Child Dysfunctional Interaction 176/18 176/18 61.18 23.15 15.16 7.01 SD group 68.56 16.60 25.67 10.03 176/18 16.76 4.73 18.28 4.94 p<.05 ns ns Difficult Child 176/18 21.28 6.54 24.61 5.45 p<.05 Note: N = sample size; M = mean; SD = standard deviation; p = p value indicating statistical significance from a one-tailed permutation test with 10,000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. The PSI/SF also includes a scale to measure defensive responding, which is used to identify parents who may be trying to respond to a question in a way that makes them look more favourable to the researcher. Parents who score high on this scale may be trying to minimise any problems, stress, or negativity in their relationship with their child. Therefore the analysis was repeated by omitting these participants and the results are reported in Table S.3. In the repeated analysis, the significant change in the overall levels of parenting stress and the Difficult Child subscale were no longer observed. Table S.3 PCPS Treatment group versus PCPS Comparison group results: Parenting Stress index (PSI) - Defensive Responding Excluded 15 Months nPCPS/ ncomp PCPS treatment group PCPCP P value comparison M SD M Total Stress Parental Distress Parent-Child Dysfunctional Interaction 124/14 124/14 68.02 26.44 12.20 5.56 SD group 73.57 15.13 28.79 9.02 124/14 18.26 4.76 19.71 4.63 ns Difficult Child 124/14 23.32 6.32 25.07 5.82 ns ns ns Note: N = sample size; M = mean; SD = standard deviation; p = p value indicating statistical significance from a one-tailed permutation test with 10,000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. 102 Parenting self-esteem was measured using the Parental Sense of Competence Scale (PSOC). Table S.4 demonstrates that there were no significant differences between participants in the PCPS treatment group and the PCPS comparison group on either the total score or the two subscales. Table S.4 PCPS Treatment group versus PCPS Comparison group results: Parental Sense of Competence Scale (PSOC) 15 Months nPCPS/ ncomp PCPS treatment group PCPCP P value comparison Total PSOC Parental Efficacy Parental Satisfaction 174/18 174/18 174/18 M SD 73.45 31.27 42.18 10.19 5.21 6.61 M SD group 70.44 10.53 30.44 5.62 40.00 6.15 ns ns ns Note: N = sample size; M = mean; SD = standard deviation; p = p value indicating statistical significance from a one-tailed permutation test with 10,000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. Comparison of Child Outcomes Tables S.5-6 compare the child outcomes of the PCPS treatment group and the PCPS comparison group which were measured when the children were 18 months of age. At this stage the comparison group had received at least one programme visit, while the treatment group had been in the programme since 3 months. Child development was assessed through the administration of the Gesell Developmental Schedules at the 18 month programme visit. A development quotient (DQ) was obtained for each child using the following developmental fields: global (overall), adaptive (alertness, intelligence, constructive exploration), gross motor (balance, sitting, locomotion, postural reactions), fine motor (manual dexterity), language (facial expression, gestures, vocalisations) and personal-social (feeding, playing, toilet training). The DQ expresses the norm of the child’s development with a DQ of 100 indicating that the child is exactly on target for their age and a DQ of 85 and above indicating normal development. A DQ below 85 indicates a developmental delay. Table S.5 shows that there were no differences in the PCPS treatment and comparison group DQ scores at 18 months. Table 6 shows that children in the PCPS treatment group were less at risk of non-normal development regarding gross motor skills (p<.05) compared to children in the comparison group. No other differences were observed. 103 Table S.5 PCPS Treatment group versus PCPS Comparison group results: Developmental Quotient Scores 18 Months nPCPS/ ncomp PCPS treatment group PCPCP P value comparison Global DQ Adaptive DQ Gross Motor DQ Fine Motor DQ Language DQ Personal & Social DQ 208/23 211/24 211/24 211/24 202/24 211/24 M SD 94.55 92.68 96.91 93.73 0.35 93.67 9.41 11.03 11.22 12.02 0.48 10.20 M SD group 94.60 13.60 92.55 14.07 95.36 15.32 94.47 13.45 0.25 0.44 94.03 13.35 ns ns ns ns ns ns Note: N = sample size; M = mean; SD = standard deviation; p = p value indicating statistical significance from a one-tailed permutation test with 10,000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. Table S.6 PCPS Treatment group versus PCPS Comparison group results: Developmental Quotient Cutoff Scores (<85) 18 Months Global cutoff Adaptive cutoff Gross Motor cutoff Fine Motor cutoff Language cutoff Personal & Social cutoff nPCPS/ ncomp 202/23 205/24 210/24 207/24 202/24 204/24 PCPS treatment group PCPCP P value comparison M SD M 0.12 0.20 0.10 0.17 0.35 0.14 0.32 0.40 0.31 0.38 0.48 0.35 0.17 0.25 0.25 0.13 0.25 0.13 group SD 0.39 0.44 0.44 0.34 0.44 0.34 ns ns p<.05 ns ns ns Note: N = sample size; M = mean; SD = standard deviation; p = p value indicating statistical significance from a one-tailed permutation test with 10,000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. Summary The aim of this additional analysis was to assess the impact of the full PCPS to a less intensive version of the programme which focused on the last one or two programme visits. There was little evidence that the full PCPS had an impact on improving parenting stress and parental self-competence. While there was some evidence that parents who received the programme up to 15 months found it easier to manage their child’s behaviour than those who just joined the programme at 15 months, this result did not remain when parents who responded defensively were removed from the analysis. Similarly, there is little evidence that the full PCPS had an impact on improving child development. While the programme had limited impact on overall adaptive, fine motor, language, and personal-social 104 development, children who received the full programme were less at risk of delayed gross motor skills. Thus overall, the more intensive programme did not improve parental wellbeing or child development compared to the less intensive version. A significant caveat to this additional analysis is that it is based on a comparison of a large treatment group (>200) and a relatively small comparison group (~24), thus caution must be applied when interpreting the results from this analysis. 105 Appendix T: Survey with Non-Participants 106 107 108 109 110 111 112 113 Appendix U: Engagement and Attrition Analyses Variables Table U.1 Characteristics examined as potentially influencing engagement and attrition Variable Family Single Parent Economic Problems Planned pregnancy Number of other children the mother has Irish Family Mother Age of Mother Mother is unemployed Mother 3rd Level qualification Breastfed Health problems (Mother) PSI Raw Score PSOC Raw Score Father Age of Father Father 3rd Level qualification Health problems (Father) Description As described Programme staff assess whether participants have economic problems or not by considering their occupation / employment status Indicates whether or not the pregnancy was planned The number of children the mother has, excluding the child in the programme Indicates whether or not both parents are Irish Mother’s chronological age As described Mother has at least a 3rd Level qualification Indicates if the mother has ever breastfed the child Indicates if any health problems which may affect parenting were reported by the mother during the initial interview PSI refers to parents’ self-reported level of stress as per the Parenting Stress Index (PSI) PSOC refers to parents’ self-reported level of competence as per the Parenting Sense of Competence Scale (PSOC). As described Father has at least a 3rd Level qualification Indicates if any health problems which may affect parenting were reported by the father during the initial interview Father Unemployed Child As described Low Birth Weight (< 3%ile) A child is considered low birth weight if they are lighter than 95% of their cohort at birth Child is Male As described 114 Appendix V: Additional tables for analyses of PSPCP outcomes Table V.2 Changes in CITMI-R interaction and non-interaction scores between 3 and 12 months Parent-child Interaction N Wilcoxon T p Interaction - Sensitivity 57 5.59 n.s. Interaction - Protective 56 27.70 <0.001 Interaction - Disengaged 52 2.11 n.s. Interaction - Intrusive 56 18.98 <0.001 Non Interaction - Sensitivity 57 34.76 <0.001 Non Interaction- Protective 55 8.46 <0.05 Non Interaction - Intrusive 55 5.75 n.s. 115 Table V.3 Wilcoxon signed ranks tests comparing CITMI-R interaction scores between 3 and 12 months. Parent-child Interaction Z P (2-tailed) Interaction - Sensitivity 3 – 5 months 3 - 7 months 3 - 12 months 5 - 7 months 5 – 12 months 7 – 12 months Interaction – Protective -2.545 -1.689 -.881 -1.142 -1.856 -.873 .011 .091 .378 .253 .063 .383 3 – 5 months 3 - 7 months 3 - 12 months 5 - 7 months 5 – 12 months 7 – 12 months Interaction – Disengaged -1.399 -2.854 -4.113 -1.735 -3.506 -1.641 .162 .004* .000* .083 .000* .101 3 – 5 months 3 - 7 months 3 - 12 months 5 - 7 months 5 – 12 months 7 – 12 months Interaction – Intrusive -.556 -.556 -1.131 .000 -.577 -.577 .579 .579 .258 1.000 .564 .564 -.883 -1.633 -4.096 -1.356 -3.830 -3.248 .377 .102 .000* .175 .000* .001* 3 – 5 months 3 - 7 months 3 - 12 months 5 - 7 months 5 – 12 months 7 – 12 months Note. Bonferroni-adjusted significance level = 0.008 116 Table V.4 Post-hoc Wilcoxon signed ranks tests comparing CITMI-R non-interaction scores between 3 and 12 months. Parent-child Interaction Z P (2-tailed) Non-Interaction - Sensitivity 3 – 5 months 3 - 7 months 3 - 12 months 5 - 7 months 5 – 12 months 7 – 12 months Non-Interaction – Protective -2.227 -4.095 -4.813 -2.749 -3.328 -1.011 .026 .000** .000** .006* .001* .312 3 – 5 months 3 - 7 months 3 - 12 months 5 - 7 months 5 – 12 months 7 – 12 months Non-Interaction – Intrusive -1.844 -.700 -.713 -.774 -1.800 -1.756 .065 .484 .476 .439 .072 .079 -.775 -.659 -.928 -.768 -1.722 -1.806 .439 .510 .354 .443 .085 .071 3 – 5 months 3 - 7 months 3 - 12 months 5 - 7 months 5 – 12 months 7 – 12 months Note. Bonferroni-adjusted significance level = 0.008 117 Table V.5 Changes in CITMI-R interaction and non-interaction scores between 5 and 18 months Parent-child Interaction N Wilcoxon T p Interaction - Sensitivity 158 5.59 n.s. Interaction - Protective 154 27.70 <0.001 Interaction - Disengaged 151 2.11 n.s. Interaction - Intrusive 158 18.98 <0.001 Non Interaction - Sensitivity 158 65.21 <0.001 Non Interaction- Protective 156 7.94 <0.05 Non Interaction - Intrusive 157 18.23 <0.001 Table V.6 Post-hoc Wilcoxon signed ranks tests comparing CITMI-R interaction scores between 5 and 12 months. Parent-child Interaction Z P (2-tailed) Interaction - Sensitivity 5 - 7 months 5 – 12 months 7 – 12 months Interaction – Protective -1.270 -1.860 -.676 .204 .063 .499 5 - 7 months 5 – 12 months 7 – 12 months Interaction – Disengaged -3.907 -6.122 -3.066 .000** .000** .002* 5 - 7 months 5 – 12 months 7 – 12 months Interaction – Intrusive -.172 -.742 -.687 .863 .458 .492 5 - 7 months -4.126 .000** 5 – 12 months -8.433 .000** 7 – 12 months -6.164 .000** Note. Bonferroni-adjusted significance level = 0.017 118 Table V.7 Post-hoc Wilcoxon signed ranks tests comparing CITMI-R non-interaction scores between 5 and 12 months. Parent-child Interaction Z P (2-tailed) Non-interaction - Sensitivity 5 - 7 months 5 – 12 months 7 – 12 months Non-interaction – Protective -5.059 -7.558 -3.687 .000** .000** .000** 5 - 7 months 5 – 12 months 7 – 12 months Non-interaction – Intrusive -1.721 -3.206 -1.955 .085 .001* .051 5 - 7 months -1.191 .234 5 – 12 months -3.332 .001** 7 – 12 months -2.538 .011* Note. Bonferroni-adjusted significance level = 0.017 Table V.8 Post-hoc Wilcoxon signed ranks tests comparing global DQs between 3 and 18 months. Global DQ Z P (2-tailed) 3 - 5 months -1.378 .168 3 - 7 months -1.931 .053 3 - 12 months -.661 .508 3 - 18 months -.469 .639 5 – 7 months -.544 .587 5 - 12 months -1.209 .227 5 - 18 months -1.575 .115 7 - 12 months -2.325 .020 7 – 18 months -1.987 .047 12 - 18 months -.591 .555 Note. Bonferroni-adjusted significance level = 0.005 Table V.9 Post-hoc Wilcoxon signed ranks tests comparing global DQs between 5 and 18 months. Global DQ Z P (2-tailed) 5 – 7 months -.374 .708 5 - 12 months -3.995 .000** 5 - 18 months -3.380 .001* 7 - 12 months -4.949 .000** 7 – 18 months -3.347 .001* 12 - 18 months -.301 .763 Note. Bonferroni-adjusted significance level = 0.008 119 Table V.10 Post-hoc Wilcoxon signed ranks tests comparing adaptive DQs between 3 and 18 months. Adaptive DQ Z P (2-tailed) 3 - 5 months -.975 .330 3 - 7 months -2.282 .022 3 - 12 months -1.154 .249 3 - 18 months -.731 .465 5 – 7 months -1.397 .163 5 - 12 months -.047 .963 5 - 18 months -.572 .567 7 - 12 months -2.512 .012 7 – 18 months -1.997 .046 12 - 18 months -.581 .561 Note. Bonferroni-adjusted significance level = 0.005 Table V.11 Post-hoc Wilcoxon signed ranks tests comparing adaptive DQs between 5 and 18 months. Adaptive DQ Z P (2-tailed) 5 – 7 months -.770 .441 5 - 12 months -3.057 .002* 5 - 18 months -2.463 .014 7 - 12 months -4.706 .000** 7 – 18 months -3.190 .001* 12 - 18 months -.204 .839 Note. Bonferroni-adjusted significance level = 0.008 Table V.12 Post-hoc Wilcoxon signed ranks tests comparing gross motor DQs between 3 and 18 months. Gross motor DQ Z P (2-tailed) 3 - 5 months -1.075 .283 3 - 7 months -.546 .585 3 - 12 months -1.466 .143 3 - 18 months -1.457 .145 5 – 7 months -.173 .863 5 - 12 months -.738 .461 5 - 18 months -2.167 .030 7 - 12 months -1.494 .135 7 – 18 months -2.614 .009 12 - 18 months -3.634 .000* Note. Bonferroni-adjusted significance level = 0.005 120 Table V.13 Post-hoc Wilcoxon signed ranks tests comparing gross motor DQs between 5 and 18 months. Gross motor DQ Z P (2-tailed) 5 – 7 months -1.748 .080 5 - 12 months -1.621 .105 5 - 18 months -2.612 .009 7 - 12 months -.147 .883 7 – 18 months -4.507 .000* 12 - 18 months -5.114 .000* Note. Bonferroni-adjusted significance level = 0.008 Table V.14 Post-hoc Wilcoxon signed ranks tests comparing fine motor DQs between 3 and 18 months. Fine motor DQ Z P (2-tailed) 3 - 5 months -2.636 .008 3 - 7 months -3.646 .000* 3 - 12 months -3.242 .001* 3 - 18 months -1.994 .046 5 – 7 months -1.621 .105 5 - 12 months -.028 .978 5 - 18 months -.619 .536 7 - 12 months -2.231 .026 7 – 18 months -1.967 .049 12 - 18 months -1.020 .308 Note. Bonferroni-adjusted significance level = 0.005 Table V.15 Post-hoc Wilcoxon signed ranks tests comparing fine motor DQs between 5 and 18 months. Fine motor DQ Z P (2-tailed) 5 – 7 months -2.334 .020 5 - 12 months -.907 .364 5 - 18 months -1.087 .277 7 - 12 months -4.646 .000* 7 – 18 months -2.916 .004* 12 - 18 months -.143 .886 Note. Bonferroni-adjusted significance level = 0.008 121 Table V.16 Post-hoc Wilcoxon signed ranks tests comparing language DQs between 3 and 18 months. Language DQ Z P (2-tailed) 3 - 5 months -1.279 .201 3 - 7 months -.656 .512 3 - 12 months -.082 .935 3 - 18 months -2.750 .006 5 – 7 months -1.181 .238 5 - 12 months -2.067 .039 5 - 18 months -4.071 .000* 7 - 12 months -1.466 .143 7 – 18 months -4.517 .000* 12 - 18 months -3.907 .000* Note. Bonferroni-adjusted significance level = 0.005 Table V.17 Post-hoc Wilcoxon signed ranks tests comparing language DQs between 5 and 18 months. Language DQ Z P (2-tailed) 5 – 7 months -2.763 .006* 5 - 12 months -5.798 .000* 5 - 18 months -7.674 .000* 7 - 12 months -4.070 .000* 7 – 18 months -7.793 .000* 12 - 18 months -5.898 .000* Note. Bonferroni-adjusted significance level = 0.008 Table V.18 Post-hoc Wilcoxon signed ranks tests comparing personal and social DQs between 3 and 18 months. Personal and social DQ Z P (2-tailed) 3 - 5 months -2.477 .013 3 - 7 months -2.147 .032 3 - 12 months -1.703 .089 3 - 18 months -.018 .985 5 – 7 months -.965 .334 5 - 12 months -.974 .330 5 - 18 months -2.577 .010 7 - 12 months -.146 .884 7 – 18 months -2.386 .017 12 - 18 months -2.623 .009 Note. Bonferroni-adjusted significance level = 0.005 122 Table V.19 Post-hoc Wilcoxon signed ranks tests comparing personal and social DQs between 5 and 18 months. Personal and social DQ Z P (2-tailed) 5 – 7 months -2.842 .004* 5 - 12 months -2.150 .032 5 - 18 months -5.292 .000* 7 - 12 months -.854 .393 7 – 18 months -3.736 .000* 12 - 18 months -4.153 .000* Note. Bonferroni-adjusted significance level = 0.008 123 Table V.20: Dosage effects and child development and parent-child interaction Control for 3month scores Control for 5month scores p N Beta Control for 5month scores, mother’s education & number of other children N Beta p N Beta p Global DQ 65 0.12 .210 163 0.15 0.044 161 0.15 0.062 Adaptive DQ 65 0.17 .186 167 0.19 0.009 165 0.18 0.016 Gross motor DQ 66 -0.05 .716 167 0.06 0.393 165 0.05 0.492 Fine motor DQ 66 0.19 .128 167 0.09 0.235 165 0.08 0.308 Language DQ 66 0.02 .897 166 0.18 0.013 164 0.17 0.028 Personal & social DQ 66 -0.04 .751 169 -0.10 0.178 167 -0.12 0.096 Interaction – sensitive (s) 65 -.07 .595 164 .02 .809 162 .03 .725 Interaction – intrusive (t) 64 -.63 .000 164 -.33 .000 162 -.31 .000 Interaction – protective (p) 65 -.45 .000 164 -.22 .004 162 -.23 .003 Interaction – disengaged (f) 60 -.51 .000 159 -.16 .042 157 -.16 .047 Non-interaction – sensitive 65 -.12 .341 164 -.06 .412 162 -.03 .702 Non-interaction – intrusive (t) 63 -.53 .000 163 -.31 .000 161 -.30 .000 Non-interaction – protective (p) 63 -.43 .000 164 -.17 .023 162 -.19 .018 Child development Parent-child interaction 124 Table V.21: Average number of visits for attachment types Average number of visits N Insecureavoidant Insecureambivalent Secure P 200 4.75 5.09 4.88 ns Table V.22: Dosage effects and attachment Control for 5-month scores, mother’s education & number of other children No controls N Beta p N Beta p Secure vs insecure avoidant 200 -.15 0.455 198 -.09 0.685 Secure vs insecure ambivalent 200 .29 0.315 198 .32 0.273 Attachment 125 Table V.23 Association between gender, mother’s education, nationality of family and PSI/SF scores Male/Female High/Low mother’s education Irish/Non-Irish family N β p N β p N β p Total PSI 174 0.01 n.s. 172 0.01 n.s. 174 -0.05 n.s. Parental Distress 179 -0.03 n.s. 177 -0.04 n.s. 179 0.01 n.s. Parent child dysfunctional interaction 178 0.02 n.s. 176 0.07 n.s. 178 -0.18 .007** Difficult child 180 0.06 n.s. 178 0.02 n.s. 180 -0.02 n.s. Table V.24 Association between gender, mother’s education, nationality of family and PSOC scores Male/Female High/Low mother’s education Irish/Non-Irish family N β p N β p N β p Total PSOC 178 -0.10 n.s. 176 0.09 n.s. 178 -0.06 n.s. Efficacy 178 -0.10 n.s. 176 0.06 n.s. 178 -0.05 n.s. Satisfaction 178 -0.07 n.s. 176 0.08 n.s. 178 -0.05 n.s. 126 Table V.25 Association between gender, mother’s education, nationality of family and changes in CITMI-R scores between 3 and 15 months High/Low mother’s education Male/Female Irish/Non-Irish family F p η2 F p η2 F p η2 Interaction - Sensitivity 4.83 <0.05 0.08 0.89 n.s. 0.02 1.18 n.s. 0.02 Interaction - Protective 0.50 n.s. 0.01 0.78 n.s. 0.02 0.30 n.s. 0.01 Interaction - Disengaged 0.75 n.s. 0.02 1.67 n.s. 0.03 1.42 n.s. 0.03 Interaction - Intrusive 1.00 n.s. 0.02 0.47 n.s. 0.01 0.53 n.s. 0.01 Non Interaction - Sensitivity 0.07 n.s. 0.00 0.89 n.s. 0.02 0.15 n.s. 0.00 Non Interaction- Protective 1.53 n.s. 0.03 0.29 n.s. 0.01 0.66 n.s. 0.01 Non Interaction - Intrusive 0.43 n.s. 0.01 0.78 n.s. 0.02 0.02 n.s. 0.00 Table V.26 Association between gender, mother’s education, nationality of family and changes in CITMI-R scores between 5 and 15 months High/Low mother’s education Male/Female Irish/Non-Irish family F p η2 F p η2 F p η2 Interaction - Sensitivity 0.81 n.s. 0.01 2.04 n.s. 0.01 3.76 n.s. 0.02 Interaction - Protective 0.83 n.s. 0.01 1.70 n.s. 0.01 0.28 n.s. 0.00 Interaction - Disengaged 0.35 n.s. 0.00 2.20 n.s. 0.02 0.52 n.s. 0.00 Interaction - Intrusive 0.54 n.s. 0.00 3.95 <0.05 0.03 1.66 n.s. 0.01 Non Interaction - Sensitivity 3.34 n.s. 0.02 0.01 n.s. 0.00 0.01 n.s. 0.00 Non Interaction- Protective 5.28 <0.05 0.03 0.68 n.s. 0.00 0.16 n.s. 0.00 Non Interaction - Intrusive 0.66 n.s. 0.00 2.41 n.s. 0.02 0.16 n.s. 0.00 127 Table V.27 Association between gender, mother’s education, nationality of family and changes in developmental quotients (DQs) between 3 and 18 months High/Low mother’s education Male/Female Irish/Non-Irish family F p η2 F p η2 F p η2 Global DQ 1.24 n.s. 0.03 0.00 n.s. 0.00 0.29 n.s. 0.01 Adaptive DQ 1.37 n.s. 0.03 0.05 n.s. 0.00 0.10 n.s. 0.00 Gross motor DQ 0.01 n.s. 0.00 0.23 n.s. 0.01 0.44 n.s. 0.01 Fine motor DQ 0.71 n.s. 0.01 0.04 n.s. 0.00 0.33 n.s. 0.01 Language DQ 0.28 n.s. 0.01 0.13 n.s. 0.00 0.07 n.s. 0.00 Personal & social DQ 0.25 n.s. 0.01 0.07 n.s. 0.00 0.03 n.s. 0.00 Developmental Quotient (DQ) Table V.28 Association between gender, mother’s education, nationality of family and changes in DQs between 5 and 18 months High/Low mother’s education Male/Female Irish/Non-Irish family F p η2 F p η2 F p η2 Global DQ 0.00 n.s. 0.00 0.15 n.s. 0.00 0.70 n.s. 0.01 Adaptive DQ 0.18 n.s. 0.00 0.13 n.s. 0.00 1.96 n.s. 0.01 Gross motor DQ 1.17 n.s. 0.01 0.24 n.s. 0.00 0.46 n.s. 0.00 Fine motor DQ 0.00 n.s. 0.00 0.11 n.s. 0.00 1.47 n.s. 0.01 Language DQ 0.28 n.s. 0.00 0.92 n.s. 0.01 2.61 n.s. 0.02 Personal & social DQ 0.00 n.s. 0.00 0.04 n.s. 0.00 1.15 n.s. 0.01 Developmental Quotient (DQ) 128 Appendix W: Additional engagement and attrition analyses Engagement and attrition can be calculated a number of different ways. In the final report, the level of engagement in PCPS was examined by assessing programme attendance, looking at how many participants attended the introductory visit only, one visit, two visits and so on. Meanwhile attrition was investigated by comparing those who had attended 3 or more visits (defined by Cerezo (2003) as programme completers with those who had attended less than 3 visits. Alternative analyses of engagement and attrition were also carried out and are presented below. Total Number of Missed Visits: Table W.1 reports the mean number of missed visits for each of the mother, father, family and child binary characteristics. This is an alternative method of calculating programme engagement. T tests were conducted to test for statistically significant differences in levels of engagement between each category. The table also reports the relationship between the continuous family, parent and child characteristics and the total number of visits missed. Parents with economic problems missed more visits on average (p<.05) - the average number of missed visits for those who reported economic problems was 2.12 missed visits, compared to 1.62 missed visits for those who did not report economic problems. Parents missed more visits on average if the pregnancy had been unplanned (p<.01), missing an average of 2.18 visits compared with 1.63 missed visits when the pregnancy had been planned. Participants who reported maternal unemployment missed more visits on average (p<.05), reporting an average of 2.17 missed visits, compared to 1.63 when the mother was in employment. Higher-level maternal education (p<.01) and breastfeeding (p<.01) were both associated with fewer missed visits. On the paternal side, reported health problems were associated with fewer visits (p<.01). The bivariate regressions indicated that the number of other children in the family was significantly positively related to the number of missed visits (p<.05). In other words, children with siblings were more likely to miss visits than those without siblings. There were no significant differences for the other characteristics. When looking at the multivariate analysis, only one variable – number of other siblings – had an independent impact on the number of missed visits. 129 Table W.1: Associations between binary and continuous family, parental and child characteristics and total number of missed visits N Yes (nyes / nno) M No (SD) P M (SD) Family Characteristics Single Parent 333 (123/210) 1.95 (1.90) 1.81 (1.85) ns Economic Problems 333 (162/171) 2.12 (1.92) 1.62 (1.79) <.05 Planned Pregnancy 332 (187/145) 1.63 (1.73) 2.18 (2.0) <.01 Irish Family 332 (239/93) 1.87 (1.89) 1.84 (1.82) ns Mother's Characteristics Health Problems Mother 329 (89/240) 1.92 (1.81) 1.83 (1.89) ns rd Mother 3 level Education 327 (93/234) 1.39 (1.64) 2.04 (1.93) <.01 Mother Unemployed 330 (139/191) 2.17 (1.97) 1.63 (1.75) <.05 Breastfed 324 (79/245) 1.37 (1.63) 2.04 (1.91) <.01 Father's Characteristics rd Father 3 Level Education 283 (87/196) 1.67 (1.71) 1.92 (1.95) ns Unemployed Father 282 (110/172) 2.1 (1.89) 1.76 (1.87) ns Health Problems Father 289 (46/243) 1.33 (1.51) 2.00 (1.94) <.01 Child Characteristics Male Child 333 (165/168) 1.83 (1.79) 1.9 (1.95) ns Low Birth Weight 333 (32/301) 2.03 (1.96) 1.84 (1.86) ns Continuous measures N Relationship M (SD) P Mother’s Age 331 - 29.17 (6.21) ns Number of other children mother has 333 + 0.95 (1.21) <.01 Father’s Age 293 - 31.2 (6.43) ns PSI Total 298 + 65.64 (15.52) ns Parent Sense of Competence 301 - 71.98 (8.95) ns Note. ‘N’ indicates the sample size. ‘n’ indicates size individual groupings within the overall sample. ‘M’ indicates the mean. ‘SD’ indicates the standard deviation. ‘P’ indicates the p value. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1% and 5% level respectively. ‘ns’ indicates the variable is not statistically significant 130 Participants who attended all visits versus those who did not attend all visits: Another way of calculating programme engagement was to compare attendance at all visits to attendance at less than all visits. A binary variable was created to indicate participants who attended all visits versus those who did not attend all visits. Permutation tests (with 1,000 replications) were used to test for significant differences in characteristics between the two groups. Table W.2 shows that people who attended all visits reported significantly less economic problems than those who did not attend all visits (p<.05), and families with fewer children were more likely to attend all visits on average than those with more children (p<.01). There were no significant differences for the remaining characteristics. 131 Table W.2: Permutation tests comparing the characteristics of children, parents and families who attended all visits versus those who did not Variables Attended all Visits Did not attend all Visits P N Mean (SD) N Mean (SD) Single Parent 98 0.35 (0.48) 235 0.38 (0.49) ns Economic Problems 98 0.39 (0.49) 235 0.53 (0.5) <.05 Planned pregnancy 97 0.61 (0.49) 235 0.55 (0.5) ns Irish Family 98 0.71 (0.45) 234 0.72 (0.49) ns Age of Mother 97 29.01 (5.85) 234 29.24 (6.38) ns Health problems of parent which may affect parenting (Mother) 97 0.21 (0.41) 232 0.30 (0.46) ns Mother has at least 3rd Level or Postgrad. qualification 96 0.37 (0.48) 231 0.25 (0.44) ns Mother Unemployed 97 0.35 (0.48) 233 0.45 (0.5) ns Does the mother breastfeed 93 0.31 (0.47) 231 0.22 (0.41) ns Number of other children the mother has 98 0.65 (0.92) 235 1.08 (1.3) <.01 PSI Total 90 65.89 (16.28) 208 65.53 (15.21) ns PSOC Total 92 71.40 (8.53) 209 72.23 (9.13) ns Age of Father 88 31.31 (6.27) 205 31.16 (6.51) ns Health problems of parent which may affect parenting (Father) 86 0.2 (0.4) 203 0.14 (0.35) ns Father has at least 3rd Level or Postgrad. qualification 87 0.29 (0.46) 196 0.32 (0.47) ns Father Unemployed 83 0.33 (0.47) 199 0.42 (0.49) ns Child is Male 98 0.47 (0.5) 235 0.51 (0.5) ns Low Birth Weight (< 3%ile) 98 0.08 (0.28) 235 0.10 (0.30) ns Family Characteristics Mother Characteristics Father Characteristics Notes: ‘N’ indicates the sample size. ‘M’ indicates the mean. ‘SD’ indicates the standard deviation. ‘P’ indicates the p value from a permutation test with 1000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1%, and 5% level respectively. Child Characteristics 132 Attrition Analyses: Attrition was examined using three different variables. The results of the statistical tests comparing the characteristics of the attrition and non-attrition groups using Permutation tests are presented in Tables W.3, W.4 and W.5. In Table W.3 attrition is defined as missing the 18 month visit. Statistical differences were found between the two groups on two measures. Families who missed the 18 month visit were more likely to have had an unplanned pregnancy (p<.05) and to have mothers with less than third-level education (p<.05) than those who attended the 18 month visit. None of the remaining characteristics predicted attrition. In Table W.4 attrition is defined as missing two consecutive visits. Families who missed two consecutive visits statistically differed from those who did not miss two consecutive visits in several ways. Firstly, the pregnancy was less likely to have been planned (p<.01) and the family were more likely to experience economic problems (p<.05). Secondly, maternal characteristics were associated with missing consecutive visits; third-level education (p<.05) and breastfeeding (p<.01) were negatively associated while maternal unemployment (p<.05), number of other children (p<.01) and the parental stress score (p<.05) were positively associated with missing consecutive visits. Finally, on the paternal side, only unemployment was positively associated with missing consecutive visits (p<.05). Table W.5 compares characteristics of completers and non-completers, where completion is defined as attending 3 or more visits (Cerezo, 2003). Families who were deemed completers differed statistically from non-completers in a number of ways. Completers had fewer economic problems (p<.05) and were more likely to have planned pregnancies (p<.01). Unemployed mothers (p<.01) and fathers (p<.05) were significantly less likely to complete. Nursing mothers (p<.01) and mothers with third level education (p<.01) were more likely to be completers. And finally, mothers who completed the programme had significantly lower Parenting Stress scores than non-completers (p<.01). Our multivariate analysis shows the importance of maternal education as an indicator of attrition. Those with third level education were less like to miss the final visit (p<0.1) and more likely to attend at least three visits (p<0.1). Breastfeeding is also shown to be a predictor of attending three or more visits (p<0.5) and finally, Parental Stress is associated with a lower likelihood of attending three or more visits (p<0.5). 133 Table W.3: Association between Attrition and Participant Characteristics: Missed 18 month visit Variables Non-Attrition Attrition P N Mean SD N Mean SD Single Parent 213 0.36 (0.48) 120 0.39 (0.49) ns Economic Problems 213 0.45 (0.5) 120 0.55 (0.5) ns Planned pregnancy 212 0.61 (0.49) 120 0.48 (0.5) <.05 Irish Family 213 0.74 (0.44) 119 0.69 (0.47) ns Age of Mother 212 29.56 (6.1) 119 28.49 (6.39) ns Health problems of parent which may affect parenting (Mother) 211 0.27 (0.44) 118 0.28 (0.45) ns Mother has at least 3rd Level or Postgrad. qualification 210 0.33 (0.47) 117 0.2 (0.4) <.05 Mother Unemployed 212 0.39 (0.49) 118 0.48 (0.5) ns Does the mother breastfeed 207 0.29 (0.45) 117 0.17 (0.38) ns Number of other children the mother has 213 0.9 (1.12) 120 1.05 (1.37) ns PSI Total 197 64.73 (15.86) 101 67.42 (14.75) ns PSOC Total 198 72.09 (8.7) 103 71.77 (9.43) ns Age of Father 188 31.5 (6.16) 105 30.88 (6.88) ns Father has at least 3rd Level or Postgrad. qualification 183 0.33 (0.47) 100 0.27 (0.45) ns Health problems of parent which may affect parenting (Father) 183 0.18 (0.39) 106 0.12 (0.33) ns Father Unemployed 179 0.36 (0.48) 103 0.44 (0.5) ns Child is Male 102 0.46 (0.5) 231 0.51 (0.5) ns Low Birth Weight (< 3%ile) 213 0.1 (0.3) 120 0.09 (0.29) ns Family Characteristics Mother Characteristics Notes: ‘N’ indicates the sample size. ‘M’ indicates the mean. ‘SD’ indicates the standard deviation. ‘P’ indicates the p value from a permutation test with 1000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1%, and 5% level respectively. Father Characteristics Child Characteristics 134 Table W.4: Association between Attrition and Participant Characteristics: Missed 2 consecutive visits Variables Non-Attrition Attrition P N Mean SD N Mean SD Single Parent 189 0.36 0.48 144 0.39 0.49 ns Economic Problems 189 0.42 (0.5) 144 0.57 (.5) <.05 Planned Pregnancy 188 0.63 (0.49) 144 0.48 (0.5) <.01 Irish Family 189 0.75 (0.44) 143 0.69 (0.47) ns Age of Mother 188 29.19 (6.08) 143 29.15 (6.41) ns Health problems of parent which may affect parenting (Mother) 187 0.25 (0.43) 142 0.3 (0.46) ns Mother has at least 3rd Level or Postgrad. qualification 187 0.33 (0.47) 140 0.22 (0.42) <.05 Mother Unemployed 188 0.37 (0.49) 142 0.49 (0.5) <.05 Does the mother breastfeed 183 0.31 (0.46) 141 0.16 (0.37) <.01 Number of other children the mother has 189 0.76 (1.01) 144 1.2 (1.4) <.01 PSI Total 175 64.12 (15.51) 123 67.8 (15.33) <.05 PSOC Total 176 72.54 (8.61) 125 71.18 (9.38) ns Age of Father 168 30.89 (6.19) 125 31.62 (6.74) ns Father has at least 3rd Level or Postgrad. qualification 163 0.31 (0.46) 120 0.31 (0.46) ns Health problems of parent which may affect parenting (Father) 164 0.19 (0.39) 125 0.12 (0.33) ns Father Unemployed 161 0.33 (0.47) 121 0.47 (0.5) <.05 Child is Male 189 0.51 (0.5) 144 0.48 (0.5) ns Low Birth Weight (< 3%ile) 189 0.08 (0.27) 144 .12 (.32) ns Family Characteristics Mother Characteristics Notes: ‘N’ indicates the sample size. ‘M’ indicates the mean. ‘SD’ indicates the standard deviation. ‘P’ indicates the p value from a permutation test with 1000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1%, and 5% level respectively. Father Characteristics Child Characteristics 135 Table W.5: Association between Programme Completion and Participant Characteristics: Completed 3 or more visits Variables Non-Completed Completed P N Mean SD N Mean SD Single Parent 102 0.42 (0.5) 231 .35 (0.48) ns Economic Problems 102 0.58 (0.5) 231 0.44 (0.5) <.05 Planned pregnancy 102 0.45 (0.5) 230 0.61 (0.49) <.01 Irish Family 101 0.73 (0.44) 231 0.71 (0.45) ns Age of Mother 101 28.47 (6.65) 230 29.48 (6.0) ns Health problems of parent which may affect parenting (Mother) 100 0.27 (0.45) 229 0.27 (0.45) ns Mother has at least 3rd Level or Postgrad. qualification 99 0.17 (0.38) 228 0.33 (0.47) <.01 Mother Unemployed 100 0.54 (0.50) 230 0.37 (0.48) <.01 Does the mother breastfeed 99 0.12 (0.39) 225 0.30 (0.33) <.01 Number of other children the mother has 102 1.08 (1.45) 231 0.90 (1.09) ns PSI Total 88 69.33 (15.84) 210 64.1 (15.16) <.01 PSOC Total 89 70.65 (9.6) 212 72.53 (8.61) ) ns Age of Father 90 30.63 (7.02) 203 31.45 (6.15) ns Father has at least 3rd Level or Postgrad. qualification 85 0.26 (0.44) 198 0.33 (0.47) ns Health problems of parent which may affect parenting (Father) 91 0.11 (0.31) 198 0.18 (0.39) ns Father Unemployed 88 0.48 (0.50) 194 0.35 (0.48) <.05 Child is Male 102 0.46 (0.50) 231 0.51 (0.50) ns Low Birth Weight (< 3%ile) 102 0.11 (0.31) 231 0.09 (0.29) ns Family Characteristics Mother Characteristics Father Characteristics Notes: ‘N’ indicates the sample size. ‘M’ indicates the mean. ‘SD’ indicates the standard deviation. ‘P’ indicates the p value from a permutation test with 1000 replications. ‘ns’ indicates the variable is not statistically significant. ‘p<.01’ and ‘p<.05’ indicate that the test is statistically significant at the 1%, and 5% level respectively. Child Characteristics 136 Appendix X: Fictional Case and Sources This appendix contains the composite case created from combining some of the findings from the evaluation to create a fictional account of the typical RSG child. The table below the account illustrates the source of each facet of the story. Sophie’s Story Sophie is a little girl from Ballymun. Her mother, Ciara, is 29 and was born in Ireland. Ciara completed her Leaving Cert and is now in paid employment, and she has another child, Sophie’s 5-year old brother. Ciara had a normal delivery with Sophie, who was a healthy birth weight. Sophie was 4 months old when her mam brought her to her first visit at the PCPS centre. Ciara had received a letter about the PCPS from Ready, Steady, Grow, and had also heard about it from her local public health nurse. There were a few things about the PCPS that Ciara was unsure of from reading the letter, such as why they wanted to video herself and Sophie playing together. However, when she arrived at her introductory visit the reason for this was fully explained and she decided that she would like herself and Sophie to take part in the programme. At Ciara’s introductory visit, the co-ordinator who works on the programme told her about the PCPS and explained that Ciara and Sophie would see three different people at each of the six programme visits. She asked Ciara a little bit about herself, Sophie, and their family and completed some questionnaires to measure Ciara’s stress and how she felt about being a parent. She noted that Ciara had normal levels of stress related to her parenting role at this time. Over the course of the next year and a half, Sophie attended 4 of the 6 scheduled programme visits. Unfortunately she had to miss two visits as Ciara could not find a babysitter for Sophie’s brother. At each visit, the nurse conducted developmental checks on Sophie to monitor her growth, height, weight and general physical health, and assess her developmental progress to make sure they identified any problems with her development as soon as possible. Ciara was delighted to hear that Sophie’s gross motor skills were improving over time. The nurse told Ciara that, while they were still within the normal range, Sophie’s global, adaptive, fine motor, personal and social, and language skills were decreasing over time in relation to expected levels of development. She gave Ciara some tips about what she could do to help Sophie’s development in these areas. As well as the developmental checks, the nurse also asked Ciara to play with Sophie at each visit. The nurse videotaped them playing, and used the recording to give Ciara encouragement and tips on how she and Sophie could get the most out of their playtime. From this Ciara learned to give Sophie space to explore and play, while following Sophie’s lead. The nurse also checked in with Ciara on how things were going for her and how she felt about being a parent. 137 Sophie’s second last visit was a little different from the previous visits as the nurse did a special assessment to check Sophie’s attachment to her mother. The assessment showed that Sophie was securely attached to her mother, which highlighted that she had a sense of trust and security in her relationship with Ciara and knew her mother was there if she needed her. At her final visit, a member of the PCPS staff noticed that Sophie’s speech and language skills were still not developing as they should be, and suggested that Sophie should be referred to a speech and language therapist to make sure everything was ok. Ciara agreed to this and the nurse made the referral for her. The speech and language therapist, Lucy, got in touch with Ciara after talking to the PCPS nurse and scheduled an appointment to meet Sophie. Lucy was very busy as she had a heavy caseload and resources were a problem for her. She was in regular contact with RSG about referrals, and had attended one of their training sessions but she could not go to the next one as she had too much work to do. She was disappointed about this as she wants to establish relationships with the other service providers in Ballymun, and felt that the training arranged by RSG would provide a good opportunity for her to collaborate with people working in the area. Lucy was interested in IMH and had a basic understanding of it, so she wanted to do more IMH training in the future and perhaps join the IMH study group. After assessing Sophie, Lucy reassured Ciara that Sophie’s difficulties with language were minor and developed a simple programme to address them, which involved returning to her for a follow-up appointment. Ciara was relieved. By the last programme visit, Ciara felt in control of her parenting skills and was less stressed about her role as a parent than she had been when she came for her initial introductory visit over a year ago. She felt good about herself as a mam. Ciara was really satisfied with the programme. She really liked the regular developmental check-ups that Sophie was getting, and she was already recommending the programme to her friends and family. She was allowed to take home a copy of the video of herself and Sophie playing, and was delighted to see how Sophie had grown up over the course of the last 18 months. The reason for this was fully explained and she decided that she would like herself and Sophie to take part in the programme. 138 Statement: Rationale for inclusion11: Sophie is a little girl from Ballymun. Her mother, Ciara, is 29 and was born in Ireland. Ciara completed her Leaving Cert and is now in paid employment, and she has another child, Sophie’s 5-year old brother. Ciara had a normal delivery with Sophie, who was a healthy birth weight. Sophie was 4 months old when her mam brought her to her first visit at the PCPS centre. The male/female ratio of PCPS infants is 49.55%/50.45% Ciara had received a letter about the PCPS from Ready, Steady, Grow, and had also heard about it from her local public health nurse. There were a few things about the PCPS that Ciara was unsure of from reading the letter, such as why they wanted to video herself and Sophie playing together. Ciara and Sophie would see three different people at each of the six programme visits. The nurse asked Ciara a little bit about herself, Sophie and their family and completed some questionnaires with Ciara to measure her stress and how she felt about being a parent. The nurse noted that Ciara had normal levels of stress related to her parenting role at this time. Over the course of the next year and a half, Sophie attended 4 of The average age of PCPS12 mothers is 29 years old 73.49% of mothers are Irish 42.8% of mothers had Leaving Cert only (this is the highest proportion for any given category) 53.92% of mothers are in paid employment 53% of mothers had at least one other child 69.4% of deliveries listed as normal 9.6% of PCPS children were specifically highlighted as being Low Birth Weight The average age of an infant’s first attendance at PCPS is 4 months (3.7 months). Most infants are brought to their first PCPS visit by their mothers only; fathers attended the first visit in 47/333 cases. RSG send a letter of invitation to parents of all babies born within the catchment area. The local PHN is also asked to inform parents about PSPCP. From the non-participating parents survey the majority (59.1%) of respondents indicated that they first heard of the PCPS from the Public Health Nurse followed by letter of invitation (36.4%). Video recording was highlighted as a concern about the programme by two non-participating parents13. Each programme visit involves visits to 3 separate stations, run by 3 different people. Some questionnaires are administered at the IV, including the PSI/SF and the PSOC. 90% of mothers have stress levels within the normal range at the IV (this includes defensively responding parents). The programme runs for approximately 18 months from the IV (shortly after birth) to the final programme visit, at 18 months 11 All data refer to the present sample of 333. All references to “mothers” refer to PCPSP mothers in the present sample of 333. 13 Although this was not the leading reason for non-participation, it was seen as being a good example of a question/concern that parents might have about the programme. 12 139 the 6 scheduled programme visits. Unfortunately she had to miss two visits because Ciara could not find a babysitter for Sophie’s brother. Ciara was delighted to hear that Sophie’s gross motor skills were improving over time. The nurse told Ciara that, while they were still within the normal range, Sophie’s global, adaptive, fine motor, personal and social, and language skills were decreasing over time in relation to expected levels of development. The assessment showed that Sophie was securely attached to her mother which indicated that she had a sense of trust and security in her relationship with Ciara and knew her mother was there if she needed her. At her final visit, the nurse noticed that Sophie’s speech and language skills still were not developing as they should be, and suggested that Sophie should be referred to a speech and language therapist to make sure everything was ok. Ciara agreed to this and the nurse made the referral for her Lucy was very busy as she had a heavy caseload and resources were a problem for her. She was in regular contact with RSG about referrals, and had attended one of their training of age. The average programme attendance is 3.59 visits (engagement analysis, section 5.5). The number of other children in the family is an independent predictor of engagement Significant improvements over the course of the Programme were observed for gross motor (p<0.001) development. There were significant decreases in global (p<0.001), adaptive (p<0.01), language (p<0.001), fine motor (p<0.01) development. and personal and social development (p<0.001) over the course of the programme. At the 15 month visit, 73.5% of children in the programme were classified as being securely attached through the Strange Situation procedure 12.6% of families were referred to monthly meetings14. At the final programme visit, developmental delays were most frequent for language development (35%). Language developmental delays is also a predictor of referral to a monthly meeting (p<.01). Ratings of organisations’ engagement with RSG, carried out for the case study, identified SLT as a highly engaged organisation. Fifteen children from the evaluation sample were referred to SLT services. Stakeholder Interviews: Relevant theme: Frustration about resources Stakeholder Surveys: A considerable proportion of participants indicated that they wanted to identify and address IMH needs in Ballymun, but they simply did not have the resources (Time 1: 50%; Time 2: 33%). Stakeholder Interviews: Relevant theme: Infant mental health training is well received; frustration about resources. Stakeholder Surveys: Resources are also rated as the top barrier 14 Although this does not represent the majority of PCPSP children, monthly meetings were included to illustrate this aspect of the programme and to give the reader a sense of RSG’s relationship with the wider service community. 140 sessions but she could not go to the next one as she had too much work to do. She was disappointed about this as she would like to establish relationships with the other service providers in Ballymun, and felt that the training arranged by RSG would provide a good opportunity for her to meet people working in the area. Lucy was interested in IMH and had a basic understanding of it, so she wanted to do more IMH training in the future and perhaps join the IMH study group. By the last programme visit, Ciara felt in control of her parenting skills and was less stressed about her role as a parent than she had been when she came for her initial interview over a year ago. She felt good about herself as a mam. Ciara was really satisfied with the programme. She really liked the regular developmental check-ups that Sophie was getting, and she was already recommending the programme to her friends and family. to capacity building. Stakeholder Interviews: Relevant theme: effective collaboration depends on key factors; specific sub- theme: having the opportunity to meet at events Stakeholder Surveys: Only one third of respondents agreed that organisations communicate with one another outside of RSG. Stakeholder Interviews: Relevant themes: Enthusiasm about IMH; people want to learn more; IMH study group Stakeholder Surveys: The majority of respondents indicated that they were committed to the concept of IMH and that it was an important issue for Ballymun. PSI/SF sub-scales show decreased parental distress and parentchild dysfunctional interaction over the course of the programme. PSOC scores slightly increased over time (p<0.05), indicating a higher level of parenting self-esteem upon completion of the programme. Scores on the subscales ‘Efficacy’ and ‘Satisfaction’ also increased (p<0.05), which signifies greater feelings of parental efficacy and satisfaction. Anonymous self-report User Satisfaction Survey Findings: 94% of respondents very satisfied with the regular developmental check-up that PCPS conducted with their babies. 99% of respondents would recommend the programme to other mothers. 141