Eating Disorders 101: How to Screen, Assess, and Diagnose Students with Eating Disorders The Alliance for Eating Disorders Awareness Joann Hendelman, Ph.D., R.N., FAED, CEDS-S Clinical Director Johanna S. Kandel Founder/CEO Eating Disorders Stats… More than 30 Million Americans are currently battling eating disorders College Students and Eating Disorders 25% of college-aged students have eating disorders (NIMH 2012). College administrators report a 24.3% rise in eating disorder behavior among college students (2010 National Survey of Counseling Center Directors). 91% of women on college campuses have attempted to control their weight through excessive dieting (ANAD) At least three quarters (75%) of college students are dissatisfied with their weight (Soet, J. and T. Sevig, 2006) Less than 20% who screened positive for EDs report receiving treatment on college campuses (Stanford 2013) College Students and Eating Disorders ACHA’s 2010 National College Health Assessment 44% of college women are dieting to lose weight 27% of college men are dieting to lose weight 61% of college women are exercising to lose weight 45% of college men are exercising to lose weight “The mortality rate for those with anorexia nervosa is estimated at 5% per decade… making it one of the leading contributors to excess mortality of any of the psychiatric disorders. Research tells us that anorexia is a brain disease with severe metabolic effects on the entire body. While the symptoms are behavioral, this illness has a biological core, with genetic components, changes in brain activity and neural pathways currently under study.” Thomas Insel, M.D., Director, National Institute of Mental Health, Bethesda, MD, April 2007 Heritability in Anorexia and Bulimia Genetics “We think genes load the gun by creating behavioral susceptibility such as perfectionism or the drive for thinness. Environment then pulls the trigger.” – Walter H. Kaye, M.D. 50 to 80% of cause is genetic AN & BN share common genes AN & BN run in families Contributing Factors Genetics Traumatic experiences Family difficulties Onset of mental illness History of substance abuse History of dieting Sports/activities where weight regulation is demanded Physical illness that causes weight loss Perfectionism Vegetarianism Eating disorders display substantial comorbidity with other mental health disorders. While eating disorders often coexist with other mental health disorders, eating disorders often go undiagnosed and untreated. A low number of sufferers obtain treatment for their eating disorder hence inaccurate measures of incidence (Only 1 in 10). Eating disorders frequently impair the sufferer's home, work, personal, and social life. Binge Eating Disorder is more common than anorexia or bulimia and is commonly associated with severe obesity. Researchers found a surprisingly high rate of anorexia and bulimia among men, representing approximately one fourth of all the cases of each disorder. Eating disorders DO NOT discriminate between age, gender, race and class – NO ONE IS IMMUNE New Trends… Men Women in Midlife Young Children “Which of these trends has the highest percent increase?” Women in Midlife Triggers Desire to remain young in a society that does not let you grow old gracefully. Divorce Rate in the U.S. (50%) Menopause Empty Nest Syndrome Loss (i.e. spouse, parent, child) Eating Disorders that were not treated years prior Males and Eating Disorders • Recent research indicates that 1 in 4 • • • • people with eating disorders is male Rate of men with BED is similar to women Greater tendency to use compulsive exercise rather than purging for weight control. Preferred body image is muscular. Increasing evidence as concerned about body image as women. Eating Disorders in Children 10% of eating disorders clients are < 10 years of age. 119% increase in hospitalizations in children < 12 yrs. Nearly HALF of 3- to 6-year-old girls reported they worry about being fat (Tantleff-Dunn, 2009) Children maturing earlier and earlier Being teased by peers Society’s obsession with thinness OBESITY EDUCATION . EATING DISORDERS EDNOS Anorexia Nervosa Bulimia Nervosa Restricting Type Purging Type Binge/Purge Type Exercise Binge Eating Disorder Eating Disorders Not Otherwise Specified Avoidant/ Restrictive Food Intake Disorder Other Eating Disorders Orthorexia Subsyndromal/ Atypical Symptoms Muscle Dsymorphia Chewing and Spitting Drunkorexia Night Eating Syndrome Diabulimia PICA Anorexia Nervosa: (Self-Starvation) A self-imposed starvation resulting from a distorted body image and an intense fear of gaining weight. Demographics of Anorexia 1% of suburban female teens Bimodal peak of onset: 12-13 years old 17 years old 50% restrictors (limit food and exercise) 50% bulimic subtype: also purge Anorexia Nervosa: (Self-Starvation) Restricting type - dieting, fasting and/or excessive exercise Binge-eating/purging type - vomiting, misuse of laxatives, enemas and/or diuretics; carries greater medical risk. Review of Symptoms: Anorexia Sizeable weight change Disturbed body image Cold intolerance/hypothermia Constipation Loss of muscle mass Depressive symptoms Anxiety Cognitive impairment Dizziness/fainting Loss/delay menses (Amenorrhea) Orthostatic hypotension Self mutilation Sleep disturbance Brittle nails Thinning/dull hair Physical Findings: Anorexia Emaciation Hyperkeratosis Bradycardia Edema Hypothermia Anemia Lanugo Cyanotic hair Dry skin Carotenemia extremities Hypotension Gastroparesis Anorexia: The Dangerous Reality Mortality Anorexia Nervosa has the highest mortality rate among all psychiatric disorders. 10 – 20 % will die ○ Death from cardiac arrest, suicide, starvation, other medical complications Bulimia Nervosa (Binge-Purge) “A disorder in which an individual engages in episodes of bingeing and purging.” Demographics: Bulimia 21% of college-aged women Peak onset: college age Duration before presentation: 5 years Normal weight range 30% hx of obesity 20% hx anorexia Bulimia Nervosa (Binge-Purge) 75% - 85% of individuals with Bulimia are normal weight to overweight Review of Symptoms: Bulimia Average weight w/ weight fluctuation Abdominal pain Self mutilation Feelings of shame and guilt Disturbed body image Depressive symptoms Anxiety Sleep disturbance Dizziness and fainting Bloating/heartburn Fatigue Bowel paralysis Chipmunk facies Physical Findings: Bulimia Normal or Overweight Edema Extremity weakness Hypertensive Parotid enlargement Esophagitis Dental erosions Russell's sign - scars on knuckles Electrolyte imbalance Sore throat Boerhaave Syndrome Dehydration Binge Eating Disorder (Bingeing) “Recurrent episodes of binge eating without the purging behavior of Bulimia Nervosa.” Binge Eating Disorder Recurrent episodes of binge eating with: Eating in discrete period of time an amount of food larger than most people would eat A sense of lack of control over eating during the episode (a feeling that one cannot stop eating or control what or how much one is eating) The binge eating occurs at least once a week for three (3) months. The binge eating episodes are associated with: eating much more rapidly than normal eating until feeling uncomfortably full eating large amounts of food when not feeling physically hungry eating alone because of feeling embarrassed by how much one is eating feeling disgusted with oneself, depressed, or very guilty afterwards Binge Eating Disorder : Physical Findings Overweight or obesity Heart disease Type II diabetes Gallbladder disease Lipid abnormalities Increased BP Osteoarthritis Increased cholesterol Sleep apnea Obesity 30-50% of hospital based obese population have BED 20-30% of patients seeking medical weight loss treatment have BED Treatment issues of obesity with consideration of eating disorders (obesity prevention) Following involvement in an obesity prevention program, 30% of children aged 6-14 displayed one or more behaviors that could be associated with the development of an eating disorder (Science Daily, 2012) Eating Disorders Not Otherwise Specified Significant eating disorder that does not exactly meet criteria for AN or BN Avoidance/Restrictive Food Intake Disorder Persistent disturbance in eating leading to Weight loss/inadequate growth Significant nutritional deficiency Dependence on tube feeding/nutritional supplements Impaired psycho-social functioning/inability to eat with others Exclusions Lack of food, cultural practice Other medical/psychological issues Irrational fear of weight & shape = eating disorder Other Types of Eating Disorders Orthorexia Muscle Dysmorphia Drunkorexia PICA Diabulimia Orthorexia Coined in 1997 by Steven Bratman, MD Defined as an obsession with "healthy or righteous eating.” It often begins with someone's simple and genuine desire to live a healthy lifestyle. The severe restrictive nature of orthorexia could easily morph into anorexia. Can result after major illness Muscle Dysmorphia Obsess/worry about being small, underdeveloped, and/or underweight. Many are obsessed with having the perfect physique and are addicted to lifting weights. Muscle-bound, but believe their muscles are inadequate. Steroid abuse, unnecessary plastic surgery, and even suicide. Drunkorexia A non medical term, for the practice of swapping food calories for those in alcohol. Statistics suggest that 30% of 18-24 year olds skip food in order to drink more. Also known as a mixture of alcoholism, bulimia and anorexia Prominent among young college women who skip meals so they can get drunk at night and not worry about the calories PICA (as an Eating Disorder) Pica is disorder in which a person has a strong desire to eat, lick, or chew non-food items in lieu of eating caloric foods. Persistent eating of nonnutritive substances for a period of at least 1 month. The eating of nonnutritive substances is inappropriate to the developmental level. Diabulimia: Type 1 Diabetes "Diabulimia" is used to describe people with diabetes that manipulate their intake of insulin in order to temporarily alter their weight. "Diabulimia" is extremely serious Doubled rate of physical toll taken on the body than diabetes or an eating disorder alone. Manipulation of ketone levels may result in dehydration, kidney dysfunction, and blindness. 40% mortality rate. Warning!!! Do NOT ask your patient if they are manipulating their insulin in order to lose weight. You do not want to teach them a ‘trick!’ Screening Questions Do you feel big/small in your body? When/what did you last eat? What did you eat yesterday? Do you have forbidden foods? What is your ideal body weight? How often do you weigh yourself? Have you lost/gained weight within the last 3 months? What has your weight range been? Do you make yourself sick (i.e. purge) when you feel uncomfortably full? Do you binge? What constitutes a binge for you? Do you eat when you’re hungry and stop when you are full? Do you worry you have lost control over how much you eat? Would you say that food/ food thoughts dominate your life? What is your exercise regimen? Be mindful when screening not to ignore males!! Evaluation of patients with eating disorders History: Weight/diet history Exercise regimen Menstrual history Compensatory behaviors: & pattern Body image disturbance Eating habits laxative, diuretic, diet pills/stimulants, ipecac use Suicidal ideations Psychiatric history Binge eating & ○ including - family history of purging behaviors Current & past medications Substance abuse disordered eating, addictive disorders, depression, anxiety, etc. Sexual history Evaluation Continued Physical exam: Systems: Heent: Vitals ○ Body temperature ○ Heart rate ○ Blood pressure ○ Height & weight Perimyolysis Heart: Cardiac arrhythmias Heart palpitations Chest pain Dental caries Chipped teeth Mouth sores Sialadenosis Evaluation Continued Physical exam: Endocrine Amenorrhea/irregular menses Loss of libido Decreased bone density Osteoporosis Infertility Poor glucose control & diabetic ketoacidosis (in diabetics) Skin Dry skin Brittle nails Carotenemia Pigmentation Hair loss/thinning Lanugo hair Russell’s sign Poor wound healing Evaluation Continued Labs/Studies EKG CBC w/ diff Full thyroid panel (T², T³, T , TSH) Urinalysis; specific gravity, sodium Bone density scan Complete metabolic profile Full chemistry amylase Serum magnesium/glucose/electrolytes Amenorrhea evaluation Evaluation Continued Special Circumstances (e.g. clients <15% IBW) Chest x-ray Complement 3 24 hour creatinine clearance Uric acid Brain scan Echocardiogram Skin testing for immune functioning DXA scan (amenorrhea 6+ months) Estradiol level (or testosterone in males) ANA, amylase, lipase, LH, FSH, prolactin UGI+/-SBFT Laboratory Clues Low Glucose = Poor nutrition High Glucose = Insulin omission Low Potassium = Vomiting, laxatives, etc Low Chloride = Vomiting High Chloride = Laxatives High Blood Bicarbonate = Vomiting Low Blood Bicarbonate = Laxatives High Blood Urea Nitrogen = Dehydration Laboratory Clues High Creatinine = Dehydration Low Calcium = Poor nutrition at expense of bone Low Phosphate = Poor nutrition or refeeding Low Magnesium = Poor nutrition or laxatives High Amaylase = Vomiting, pancreatitis High Lipase = Pancreatitis High Total Bilirubin = Liver dysfunction High Total Protein/Albumin = Malnutrition Occasional Lab Findings Hormones Low Estradiol (Females) Low Testosterone (Males) Lipids: anything goes High Cholesterol = Short term starvation Low Cholesterol = Long term starvation “Sick euthyroid” Low T4, normal TSH Electrocardiogram Usually normal Bradycardia or other arrhythmias Signs of hypokalemia Low voltage changes Prolonged QTc – Greater than 440 Occasional ST-segment depression Criteria for Hospitalization Weight more than 25% below IBW Bradycardia < 50 BPM Temperature < 96 degrees F (< 35.6 C) Hypotension < 80/50 mm Hg Orthostasis > 20 BMP Hypokalemia < 3 Renal failure ECG abnormalities Failure in outpatient intervention Suicidality Role of the Practitioner Selling patients treatment they don’t want for a problem they don’t think they have Do’s Motivational Interviewing: Offer empathy Roll with the resistance Avoid accusations/arguing/ pressuring Ask open ended questions Listen reflectively Affirm/validate Summarize Don’ts Do not believe all patient reports are accurate Do not tell an underweight person with ED’s to “just eat” or they are “lucky” to be thin Do not tell an overweight person to just stop eating Do not expect this will go away with time DON’T DELAY with early onset ED symptoms Clinic Culture Weighing Office staff must be trained to use standardized protocols to record consistent, reliable measurements Scale should be located in a private area Client should be weighed backwards to avoid revealing their true weight to them (Blind weights) Be aware that clients may drink extra fluids (water- loading), put weight in pockets/rocks in underwear, and/or wear layers of extra clothing before being weighed Clinic Culture Weighing Never leave chart unattended – and do not vocalize number or share whether it’s up/down Comments about weight should be minimized and made discretely Clinic Culture When words have unintentional meanings “Healthy” Fat Gained weight Out of Control “Look Better” Fat Gained weight Out of Control “You look very nice today” Fat Gained weight Out of Control Clinic Culture They Said What??? “If you have an eating disorder, then why aren’t you skinnier?” “So what? An eating disorder? I’ve had one of those…This is all your choice. Some people have real problems.” “You’re a guy, and guys don’t get eating disorders.” “No you don’t have an eating disorder…you’re not that skinny and your teeth are not yellow.” “I had an eating disorder when I was younger, but I weighed much less than you do now.” “You can starve yourself, and binge and purge as much as you want as long as you take vitamins, and don’t hit your head when you pass out. You’ll grow out of this stage eventually.” Hostile Recovery Environment We are In A Hostile Recovery Environment Pervasive on college campuses Glamorization/encouragement of the illness Thinness = control, popularity, success, relational connection Fat = out of control, shunned, failure, relational rejection Readily available and legal drug of choice War on Obesity Questions? For more information, please call: The Alliance for Eating Disorders Awareness (866) 662-1235 www.allianceforeatingdisorders.com