1 Enhancing Registered Nurse Job Readiness and Patient Safety Outcomes Through Clinical Simulation Simulation Scenario End of life: Breaking bad news Adaptation of California Simulation Alliance (CSA) APRIL 2014 University of Ottawa Algonquin College- Woodrofe and Pembroke CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) SECTION I UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News ALL DATA IN THIS SCENARIO IS FICTICIOUS 2 SECTION I SCENARIO OVERVIEW A. Title B. Summary C. Evidence Base SECTION II CURRICULUM INTEGRATION A. Learning objectives 1. Primary 2. Secondary 3. Critical Elements B. Pre-Scenario Learner Activities SECTION III SCENARIO SCRIPT A. Case Summary B. Key Contextual Details C. Scenario Cast D. Patient/Client Profile E. Baseline Patient/Client Simulator State F. Environment/Equipment/Essential Props G. Case Flow/Triggers/Scenario Development SECTION IV APPENDICES A. B. C. D. E. F. G. Health Care Provider Orders Digital Images of Manikin/Milieu Debriefing Guide Instructions for Standardized patients and Participants Dot Not Resuscitate Confirmation Form Medication Administration Records and Nursing Notes Frommelt Attitude Toward Care of the Dying Scale (See RNAO BPG EOL Care) H. Palliative Performance Scale (Version 2) CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) SECTION I UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News ALL DATA IN THIS SCENARIO IS FICTICIOUS 3 SECTION I: SCENARIO OVERVIEW End of Life Care and Breaking Bad News Original Scenario Developer(s): University of Ottawa Diane Alain, Susan Brajtman, Frances Boubonnais-Forthergill, Valérie Fiset, Jeanne Falabi-Bakinde, Monique Maisonneuve. Date - original scenario March 2012 Validation: October 2012 and October 2013 Revision Dates: February 2014 Pilot testing: October 2012 QSEN revision: March 2014 Scenario Title: Estimated Scenario Time: 20 minutes Debriefing time: 20 to 30 minutes Target group: 4th Year BScN Core case: Hospice Palliative Care: End of Life for client dying at home PRACTICE STANDARDS QSEN Competencies Patient Safety Patient Centered Care CNA Position Statement: Providing Nursing Care at the End of Life (2008) CNO Practice Guideline: Guiding decisions in End of Life care (2009) RNAO: Best Practice Guidelines End of Life Care During the Last Days and Hours (2011) CHPCA A Model to Guide Hospice Palliative Care: Based on National Principles and Norms of Practice CASN CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) SECTION I UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News ALL DATA IN THIS SCENARIO IS FICTICIOUS 4 Entry-to-Practice Competencies and Indicators for Registered Nurses Standardized Tools Palliative Performance Scale (Community care Ontario CASN p.18) SPIKES: 6 step strategy for delivering bad news (Baile et al. 2000, p.305-307) Frommelt Attitude Toward Care of the Dying Scale (RNAO: Folmet, K. (1991) American Journal Hospice Palliative Care (Vol. 8, Issue 5)p. 37-43 Brief Summary of Case This is the part B of a two part unfolding scenario that can be used as a single, stand-alone scenario. Case A: Palliative patient – admitted to the oncology unit from the ER with end stage lung cancer. Case B: 55 year old male client is imminently dying of lung cancer with a Palliative Performance Scale (PPS). of 10%. DNR assigned. Client chose to die at home. He is married and spouse is at the bedside. Client has 2 adult children and 3 grand-children who live out of town. One of which arrives at the home just after her/his father passes away. Nurses must provide comfort measures to the dying client and support the spouse during final breaths of life, in addition to breaking bad news to the child who arrives too late to say goodbye. EVIDENCE BASE / REFERENCES (APA Format) Canadian Nurses Association (2013). Position Statement. Providing nursing care at the end of life. Retrieved April 15, 2014, from https://www.cna-aiic.ca/en/search-results?q=2013%20position%20statement College of Nurses of Ontario (2009). Practice guideline. Guiding decisions about end-of-life care. (Nothing more recent as of April 15, 2014) Canadian Association of Schools of Nursing (2011). Palliative and End-of-Life Care Entry-to-Practice Competencies and Indicators for Registered Nurses, Retrieved Feb 3, 20014 from: http://www.casn.ca/en/Palliative_Care_122/items/4.html Registered Nurses Association of Ontario: Best Practice Guidelines (2011) Retrieved Feb 14, 2014, from http://rnao.ca/bpg/guidelines/endoflife-care-during-last-days-and-hours Canadian Hospice Palliative Care Association retrieved Feb. 15, 2014 from http://www.chpca.net/media/7422/a-model-to-guide-hospice-palliative-care-2002-urlupdateaugust2005.pdf Charlton R, Dolman E. (1995) Bereavement: a protocol for primary care. Br J Gen Pract. 45(397):427-30 Casarett D, Kutner JS, Abrahm J. (2001). End-of-Life Care Consensus Panel. Life after death: a practical approach to grief and bereavement. Ann Intern Med. 134(3): 208-15 Rando TA. (1998). Anticipatory grief: the term is a misnomer but the phenomenon exists. J Palliet Care. 4(12):70-3 Coyle N, Schachter S, Carver AC. (2001). Terminal care and bereavement, Neurol Clin. 19(4):1005-25 CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) SECTION I UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News ALL DATA IN THIS SCENARIO IS FICTICIOUS 5 SECTION II: CURRICULUM INTEGRATION A. SCENARIO LEARNING OBJECTIVES Action verb Content Result The student will use relational and communication skills to support decisions of palliative and end-of-life care on an ongoing basis. The student will integrate knowledge of grief and bereavement to support others from a cross-cultural perspective through an adaptive grieving process. The student will demonstrate accurate assessment with the focus on pain. personal attitudes to provide adequate comfort measures to the dying client. The student will reflect on Competency that may impact care of a dying patient and family members. Demonstrated Attributes Uses relational and therapeutic communication skills to support end-of-life care on an ongoing basis. Provides information and assurance to the patient and family members regarding comfort measures during the last minutes of living. Communicates respectfully, empathetically and compassionately with the PEOL patient and family members by using appropriate and varied therapeutic communication techniques. Integrate knowledge of grief and bereavement to support others from a crosscultural perspective through an adaptive grieving process. Accurately assesses and documents the patient’s and family members’ needs related to loss, grief and bereavement. Identifies individuals experiencing, or at high risk of experiencing, a complicated and/or disenfranchised grief reaction, and discusses, documents and makes appropriate referrals. Uses insights gained from personal experiences of loss, bereavement and grief to provide supportive care to others. CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News Needs Improvement Uses limited therapeutic communication techniques. Choice of words is inappropriate. No assessment of family members’ needs No knowledge of the grieving process 6 Identifies situations when personal beliefs, attitudes and values result in limitations in the ability to be present for the patient and family members experiencing loss, grief and /or bereavement. Demonstrates understanding of grief theories and their application to PEOLC. Demonstrates understanding of the common, normal manifestations of grief (emotional, physical, cognitive, behavioral, spiritual). Demonstrates understanding in individual, social, cultural, and spiritual variables that affect grief. Provides guidance, support, and referrals to bereaved family members and documents actions. Listens, affirms, and responds empathetically and compassionately to the patient and family members working through the tasks of grief and bereavement. Develops the capacity to be in the presence of patient and family member’s suffering. Demonstrate accurate assessment with the focus on pain to provide adequate comfort measures to the dying client. Identifies personal attitudes that may impact care of the dying patient and family members. Chooses appropriate medications/doses for comfort Manages secretions appropriately Provides proper interventions for changes in client’s conditions Limits unnecessary interventions Continues to be caring and loving presence Participates in the post simulation self-assessment activity Contributes to the post simulation debriefing discussion CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News Assessment is incomplete or inaccurate and implementation of comfort measures is absent. Refuses to participate. 7 C. PRE-SCENARIO LEARNER ACTIVITIES Prerequisite Competencies Skills/ Attitudes Knowledge Therapeutic communication skills Respect and compassion Stages of grieving: Anticipatory grieving SPIKES 6 step process for delivering bad news Dimensions of family centered care Resources in the community about grieving Signs and symptoms of imminent death Assessment of dying patient Palliative Performance Scale (PPS) Interpret the scale 2. Review of Systems Palliative Performance Scale (PPS) 10% CNS Cardiovascular irregular heart rate; unstable BP Pulmonary crackles all lobes Renal/Hepatic decreased urine output, incontinence Gastrointestinal Constipation Endocrine N/A Heme/Coag N/A Musculoskeletal Bed-bound; weakness Integument Cool extremities; mottling on the arms and legs Developmental Hx N/A Psychiatric Hx N/A Social Hx No drug use; retired construction worker; smoke 1 pack/day for 30 years but stopped 5 years ago; married 30 years Alternative/ Complementary Medicine Hx N/A 3. Current medications Medication allergies: Food/other allergies: Drug Hydromorphone using CADD pump Ondansetron Haloperidol Glycopyrrolate NKDA None Reaction: Reaction: X X Dose 1 mg per hour Route SC Frequency Continuous 8 mg 2 mg 0.2 mg IV or SC IM SC PRN q12h if nausea PRN q12h for agitation PRN q4h SC if secretions CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News 8 4. Laboratory, Diagnostic Study Results - N/A Na: Ca: Hgb: PT ABG-pH: VDRL: K: Mg: Hct: PTT paO2: GBS: Cl: Phos: Plt: INR paCO2: Herpes: CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News HCO3: Glucose: WBC: Troponin: HCO3/BE: HIV: BUN: Cr: HgA1C: ABO Blood Type: BNP: SaO2: Cxr: EKG 9 SECTION III: SCENARIO SCRIPT A. Case summary 55 year old married man and father, has decided to die at home. Spouse has power of attorney and is substitute decision maker. Spouse at bedside and aware of imminent death; has called the children The patient has lost weight and is experiencing general weakness, dyspnea, chronic cough, hemoptysis and decreased urinary output. Patient dies. The child arrives too late to say good bye to father. Student(s) must offer support to spouse and provide news of father’s death to the child as he/she arrives. B. Key contextual details Home environment. Pt is in a bedroom of the family house, dying. Room is dim and soft gospel music is playing. Patient was in palliative care for 2 weeks on the Oncology Unit and has been home for 2 days now. C. Scenario Cast Patient/ Client Family Members M. Fisher Mrs. Fisher Child High fidelity simulator Mid-level simulator Task trainer Hybrid (Blended simulator) X Standardized patients (confederate/actor) Brief Descriptor Confederate/Actor (C/A) or Learner (L) (Optional) Dying client High Fidelity Simulator Spouse at the bedside Actor Arrive too late to say goodbye Actor Primary Nurse Secondary Nurse Clinical Instructor Leads client care Assists primary nurse Resource person Role X D. Student Nurse Student Nurse Sim Facilitator Patient/Client Profile Last name: Fisher First name: Mark Gender: male Age: 55 Ht: 6ft Wt: 150 lbs Code Status: DNR Spiritual Practice: Ethnicity: Primary Language spoken: Catholic Caucasian English and French 1. Past history He was diagnosed 15 months ago and received chemotherapy (Cisplatin and Etoposide) and some thoracic radiation therapy. Was admitted to the oncology unit for cancer recurrence. The prognosis is poor. CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News 10 He stays at the hospital for 2 weeks during which, the client and his family have decided to honor his wish to die at home. The doctor has transferred the patient into palliative service with home care Primary Medical Diagnosis SCLC (small cell lung cancer) 2. Review of Systems CNS Cardiovascular Pulmonary Renal/Hepatic Gastrointestinal Endocrine Heme/Coag Musculoskeletal Integument Developmental Hx Psychiatric Hx Social Hx GCS 7; terminal delirium: extreme restlessness and agitation irregular heart rate; unstable BP (drops as death approaches) crackles all lobes; cheyne-stokes respirations, increase secretions decreased urine output, incontinence Constipation N/A N/A Confined to bed; weakness Cool extremities and discoloured skin, mottling on the legs and arms N/A N/A No drug use; retired factory worker; smoke 1 pack/day for 30 years but stopped 5 years ago; married 30 years Alternative/ Complementary Medicine Hx N/A 3. Current medications Medication allergies: Food/other allergies: NKDA None Drug Hydromorphone using CADD pump Ondansetron Haloperidol Glycopyrrolate Reaction: Reaction: Dose 1 mg/ hour 8 mg 2 mg 0.2 mg Route SC infusion IV or SC IM SC N/A N/A Frequency Continuous PRN q12h if nausea PRN q12h for agitation PRN q4h SC if secretions 4. Laboratory, Diagnostic Study Results: N/A Na: Ca: Hgb: PT ABG-pH: VDRL: K: Mg: Hct: PTT paO2: GBS: Cl: Phos: Plt: INR paCO2: Herpes: CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News HCO3: Glucose: WBC: Troponin: HCO3/BE: HIV: BUN: Cr: HgA1C: ABO Blood Type: BNP: SaO2: Cxr: EKG 11 E. Baseline Simulator/Standardized Patient State (This may vary from the baseline data provided to learners) 1. Initial physical appearance Gender: Male Attire: pajama or regular clothes Alterations in appearance (moulage): client looks pale and has mottling on the arms and legs; no peripheral IV, only Sub-Q sets are left in place for medication administration. ID band present, accurate ID band present, inaccurate ID band absent or not applicable Allergy band present, accurate Allergy band inaccurate Allergy band absent or N/A 2. Initial Vital Signs Monitor display in simulation action room: X No monitor display Monitor on, but no data displayed Program High Fidelity Simulator to reflect the following: BP: systolic 60, HR: 130, irregular; RR: 8 with T: period of apnea; then 40 after 3 palpable CVP: N/A AIRWAY: none Lungs: Sounds/mechanics Heart: min and absent 5 min later when patient dies after 3 min and absent 5 minutes later when patient dies PAS: N/A ETC0²: N/A Left: rales PAD: N/A FHR: N/A Right: rales Monitor on, standard display SpO²: None detected PCWP: N/A Sounds: ECG rhythm: irregular Other: Bowel sounds: Diminished CO: N/A Other: patient’s eyes are closed; he moans from time to time; becomes silent few minutes before death 3. Initial Intravenous line set up Saline lock #1 IV #1 Main Piggyback IV #2 Main Piggyback Site: N/A IV patent (Y/N) Site: N/A Fluid type: N/A Initial rate: N/A IV patent (Y/N) Site: N/A Fluid type: N/A Initial rate: N/A IV patent (Y/N) CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News 12 X Sub-Q –Set: for infusion 100mg Hydromorphone in 100ml 0.9 NaCl via CADD pump For PRN medications Site: abdomen Initial rate: 1mg/hour continuous Patent: Yes Sub-Q set for Abdomen, PRN meds. arm or leg 4. Initial Non-invasive monitors set up X NIBP: N/A ECG First lead:N/A Pulse oximeter: N/A Temp monitor/type: N/A 5. Initial Hemodynamic monitors set up A-line Site: Catheter/tubing Patency (Y/N) 6. Other monitors/devices Foley catheter-N/A Amount: N/A ECG Second lead: N/A Other: CVP Site: PAC Site: Appearance of urine: Epidural catheter: Infusion pump: CADD pump N/A Fetal Heart rate monitor/tocometer: N/A Pump settings: 1mg/hr Internal External Environment, Equipment, Essential props Recommend standardized set ups for each commonly simulated environment 1. Scenario setting: (example: patient room, home, ED, lobby) Room of a house; bed, pillows, chairs, soft spiritual (gospel) music. Wife at bedside. Sim man in bed in semi-fowlers position. 2. Equipment, supplies, monitors (In simulation action room or available in adjacent core storage rooms) X CADD administration X SUB-Q-SET: X CADD Pump set Bedpan/ Urinal IV Infusion pump Nasogastric tube Defibrillator PCA infusion pump X IV fluid Type: 100 ml 0.9% NaCl (normal saline) Foley catheter kit Feeding pump ETT suction catheters Code Cart Epidural infusion pump IV fluid additives: subcutaneous infusion set Straight cath. Kit Pressure bag Oral suction catheters 12-lead ECG Central line Insertion Kit 100 mg Hydromorphone (Hydromorphone 100mg X X Sub-Q-Set for PRN meds X Incentive spirometer Portable suction Chest tube kit Chest tube equip Dressing ∆ equipment Blood product ABO Type: # of units: mixed in 100ml 0.9% NaCl) 3. Respiratory therapy equipment/devices X Nasal cannula Face tent: BVM/Ambu bag Nebulizer tx kit Simple Face Mask: Non re-breather mask Flowmeters (extra supply) CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News 13 4. Documentation and Order Forms X Health Care X Med Admin Provider orders Record X Progress Notes Graphic record X Medication Transfer orders reconciliation Nurses’ Notes Dx test reports Actual medical record binder, constructed per institutional guidelines 5. Medications (to be available in sim action room) # Medication Dosage Route Hydromorphone: 1 mg/hr SC 1 2 3 100mg in 100ml 0.9% NaCl Ondansetron 4mg/2ml vials Glycopyrrolate 200mcg (0.2 mg/ml vials continuous 1mg q 12 hr SC PRN 0.2 mg SC PRN CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News H&P Lab Results Anesthesia/PACU record Standing (protocol) orders Code Record Other Describe: ED Record # Medication 4 Haloperidol 5mg/ml vials ICU flow sheet Prenatal record Dosage 2 mg Route IM PRN 14 CASE FLOW / TRIGGERS/ SCENARIO DEVELOPMENT STATES Initiation of Scenario : Client (Clt) is in bed and has Cheyne-stokes breathing with periods of apnea. Clt. has limited response and spouse is at the bedside with nurse(s). Nurse has been involved in family centered care since client arrived home and therefore a rapport has been established previously. STATE / PATIENT STATUS 1. Baseline DESIRED LEARNER ACTIONS & TRIGGERS TO MOVE TO NEXT STATE Operator: Learner Actions Client is in low Fowler’s position, has Cheyne-stokes breathing with periods of apnea. Clt. has limited response (only occasional light moans if attempting to respond to voices. Spouse is at bedside. Facilitator will gradually decrease rate of breathing from 8-0/min over a period of 8 minutes. HR: 130, irregular; then 40 after 3 min and absent 8 min later when patient dies. Triggers: Spouse needs reassurance that client still feels no pain. Spouse is unsure about the irregular breathing that is occurring. RR: 8, with periods of apnea and absent after 8 minutes when patient dies. Assesses signs of no pain and checks CADD pump. Debriefing Points: Signs and symptoms of imminent death as per RNAO guidelines. Communicates to spouse that patient is comfortable. Explain to the spouse that Cheynestokes breathing is normal at this stage and indicates the end is near. Support the patient in letting go. Ask the spouse if there are any rituals, prayers or customs to participate in. CADD Pump at bedside and Hydromorphone 1mg/hr is infusing STATE / PATIENT STATUS 2. Death DESIRED ACTIONS & TRIGGERS TO MOVE TO NEXT STATE Triggers: Learner Actions: Nurse pronounces the client dead. Spouse demonstrates some apprehension about patient’s last breath and looks to the nurse for reassurance. Nurse remains present with spouse at bedside. Confirms that client has passed. Notes the time of pronouncing death to later document. Expresses words of compassion to CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News Debriefing Points: How does being present feel for the nurse? 15 Spouse is crying STATE / PATIENT STATUS 3. Breaking bad news Child arrives to the house and is met at the entrance by the nurse in order for her to notify the child that the parent has already passed away a few minutes ago. Child remains with unresolved disappointment. Spouse is concerned about children not being present but asks the nurse to greet them at the door to warn them before entering the room. spouse. Closes patient’s eyes and asks spouse for permission to place arms in crossed position over chest. DESIRED ACTIONS & TRIGGERS TO MOVE TO NEXT STATE Triggers: Learner Actions: SPIKES: Child is still hopeful that he/she Sets the stage to communicate bad has arrived on time. news to the child. Asks what was communicated when Asks “how is he? Will he know his/her mother called to notify of that I’m here?” imminent death. Give news that father has passed away Child expresses need for saying peacefully. good bye before his passing. Observe emotions and make a connecting statement such as : “ I am sorry about not arriving on time. I know this is not what you wanted.” Child asks to be alone with mother and father. Stays for a couple of minutes and then comes to the nurse and expresses disappointment with timing, that he/she did not have a chance to say goodbye. Scenario End Point: Spouse and child are left alone at the bedside to pray. Suggestions to decrease complexity: Suggestions to increase complexity: CSA REV template (12/15/08; 5/09; 12/09; 4/11; 1/14) Revised COUPN January 2014 UNIVERSITY OF OTTAWA: End of Life Care-Breaking Bad News Leaves the room to allow time for the family with the deceased. Nurse remains nearby. Debriefing Points: Application of SPIKES framework for communicating bad news. 16 APPENDIX A: HEALTH CARE PROVIDER ORDERS Patient Name: Fisher, Mark DOB: 1958-10-01 Age: 55 MRN: 24516789 No Known Allergies Allergies & Sensitivities Date Time 2 days ago 10:00 Diagnosis: Small Cell Lung Cancer (SCLC) HEALTH CARE PROVIDER ORDERS AND SIGNATURE Initiate Hydromorphone (Dilaudid) SC infusion using CADD pump: 1 mg/hr SC continuous infusion Hydromorphone 1mg SC PRN q 1hr for breakthrough pains (bolus via CADD pump) Odansetron 8mg q 12hr IV/SC PRN if nausea Glycopyrrolate 0.2 mg q 4hr SC PRN if secretions Haloperidol 2mg q 12hr IM PRN if agitated Call Physician if prescribed pain medication dosage does not relieve client’s pain Signature France Quirran, MD Tel: 613-562-5800 University of Ottawa: End of Life Care-Breaking Bad News- February 2014 17 APPENDIX B: Digital images of manikin and/or scenario milieu Insert digital photo here Insertdigital digitalphoto photohere of initial Insert scenario set up here Insert digital photo here Insert digital photo here University of Ottawa: End of Life Care-Breaking Bad News- February 2014 18 APPENDIX C: DEBRIEFING GUIDE CASN Competencies Debriefing Materials Objectives Debriefing Questions Frommelt Attitude Toward Care of the Dying Scale Sample Questions for Debriefing Identifies personal attitudes that may impact care of the dying patient and family members. In developing a greater awareness of our attitude toward caring for dying patients, take a few moments to complete the “Frommelt Attitude Toward Care of the Dying Scale” as a self-assessment. 1. What did you learn about yourself by participating in or observing this simulation and in completing the self-assessment? 2. Are there any personal attitudes, beliefs, or values that may result in limitations in providing care and in your ability to be present for the patient and family? Competency: Integrates knowledge of grief and bereavement to support others from a cross-cultural perspective through an adaptive grieving process. 1. Did you feel you had adequate knowledge of grief and bereavement in order to support the family members in this scenario? 2. What cultural considerations came into play as support was provided to the patient or family members? Competency: Uses requisite relational and therapeutic communication skills to support decisions of palliative and end-of-life care on an ongoing basis. 1. Which relational skills were you able to apply effectively and how would you have otherwise improved in this area? 2. How did effective or ineffective communication skills support or deter from using relational skills? 3. In light of the home-care environment, how confident where you in identifying services needed for the patient after death and for the child who arrived too late to say good-bye. Competency: Demonstrate accurate assessment with the focus on pain to provide adequate comfort measures to the dying client. University of Ottawa: End of Life Care-Breaking Bad News- February 2014 19 1. Did you feel you had adequate knowledge and skill to accurately assess the patient’s pain control? 2. Why is this important to a dying patient? Interprofessional Competencies to consider for debriefing scenarios Role Clarification Interprofessional Teamwork Functioning X Patient/Family /Client? Community Collaborative Leadership centered care Interprofessional Communication Sample Questions for Debriefing University of Ottawa: End of Life Care-Breaking Bad News- February 2014 20 APPENDIX D: INSTRUCTIONS TO STANDARDIZED PATIENTS AND PARTICIPANTS I. Instructions to Participants: Mrs. Fischer is at the bedside of her husband who is dying of lung cancer. He was hospitalized for 5 days and returned home once the doctor changed his status to palliative. He has now been home for 2 days. She is very close to her husband and this is and has been very difficult for her. She is his power of attorney and substitute decision maker (make the decisions about care) for her husband. She is 55 years old and they have been married for 30 years and like to travel to see their children and grandchildren who live out of town. She is concerned about what is happening with her husband and is often tearful. She has questions about his care and why things are happening so fast. University of Ottawa: End of Life Care-Breaking Bad News- February 2014 21 APPENDIX D: Instructions to Standardized Patients and Participants (Continued) II. Instructions to Mrs. Fisher You are Mr. Fisher’s wife. Your husband is dying of lung cancer. He was hospitalized for 5 days and returned home once the doctor changed his status to palliative. He has now been home for 2 days. You are very close to your husband and this is very difficult for you. You are the power of attorney and substitute decision maker (make the decisions about care) for your husband. You are 55 years old and have been married for 30 years and travel to see your children and grandchildren. You are concerned about what is happening with your husband and are tearful. You have questions about his care and why things are happening certain ways. You are scared to touch him and you do not know if you have to call your children because you are wandering how long he will be like this. The Current Situation: It is currently 10 am at home. You are at your husband’s bedside. Your husband is deteriorating but you are not sure what is happening. You ask questions about the sounds and behaviors of your husband. You want the nurse to support you and communicate effectively that support to you. PROMPT 1 (immediately): Touching mannequins arm gently saying “I am here for you Mark” Ask students “is he in pain.” Ask mannequin “Honey, are you in pain?” PROMPT 2 (by 3-4 minutes): Your husband’s breathing will be more difficult ask the nurse “What is happening?” “Why is he breathing like that and he sounds congested… do we need to sit him up more?” Be concerned but not loud. State “He is so pale.” “Why is he not answering me?” PROMPT 3 (by 5-6 minutes): “I noticed he is picking at the sheets. He is so restless... Is that normal? Is he okay?” Is this it” Tearful but not loud or over the top. PROMPT 4 (by 6-10 minutes): “Is he going to die now?” “What should I do?” ”Should I call my children?” ”My daughter is on her way here” PROMPT 5 Client dies. “Is he gone now?” “What do I do next?” “Why did this have to happen to him?” Crying softly. University of Ottawa: End of Life Care-Breaking Bad News- February 2014 22 PROMPT 5 (end) Your daughter arrives at the house 10 min after you called her. You said to her, crying softly: “he is gone; he is gone now and I don’t know what to do; I feel so lost” You hug your daughter and you both sit down and cry quietly. University of Ottawa: End of Life Care-Breaking Bad News- February 2014 23 APPENDIX D: Instructions to Standardized Patients and Participants (Cont) III. Instructions to the Daughter You arrive at your parents’ house, just 10 minutes after your mother called you. You were met at the door by the nurse. PROMPT 1 (immediately) You ask the nurse: “What is going on?” “Where is my mom?” “How is he? Will he know that I’m here?” If the nurse does not say anything, ask: “Is my dad……gone?” You rushed to your father’s bedside and your mother is sitting crying and another studentnurse is at the bedside comforting her. PROMPT 2: (at your father’s bedside) “Oh Mom, he is gone!” “I did not even have a chance to say a final goodbye!” “I tried to get here as fast as I could and as soon as you called me Mom!” You cry and hug your mom, you feel horrible because your father died and you were not there during the last minutes of his life. PROMPT 3: “I didn’t know it was going to happen so quickly?” “I was already on my way here when Mom called” “I feel so bad because I was not able to be here when my Dad took his last breath” “I wanted be with him and to tell him how much I love him one more time” “I feel horrible” “What do we do now?” You both cry softly, looking at the student-nurses for answers. PROMPT 4 (end of scenario): “What do we do now?” “When do we call Kelly’s Funeral Home?” University of Ottawa: End of Life Care-Breaking Bad News- February 2014 24 APPENDIX E: DO NOT RESCUSCITATE ORDER FORM APPENDIX F: MEDICATION ADMINISTRATION RECORD APPENDIX G: FROMMELT ATTITUDE TOWARD CARE OF THE DYING SCALE (SEE RNAO BPG EOL CARE) APPENDIX H: PALLIATIVE PERFORMANCE SCALE (Version 2) University of Ottawa: End of Life Care-Breaking Bad News- February 2014