Internet Resources for Your
Kidney Foundation in 2003
and Beyond!
Kim Solez, M.D.
Every Audience Now Diverse!
Because the Internet is now mainstream, many of
you have already solved most of the Internet
related problems in your professional life. So
when it comes to creating resources for a kidney
foundation, you already know the basics of
creating web, email, and chat resources.
Nevertheless there are still many positive
surprises, technology advances which can
greatly enhance kidney foundation activities
which you probably are not aware of, video
conferencing, advanced searching. So this
presentation will have something for everyone!
NKF cyberNephrology Human Centered Computing
Fostering
nephrology’s embrace
of the Internet and
new technology since
1994 with Email and
web resources. ISN
homepage, websites
which allow virtual
attendance at
meetings.
www.cybernephrology.org
www.cyber-medicine.org
Evidence-Based Medicine
Sir Austin Bradford Hill, British Researcher:
"All scientific work is incomplete- whether it be
observational or experimental. All scientific
work is liable to be upset or modified by
advancing knowledge. This does not confer
upon a freedom to ignore the knowledge we
already have, or to postpone the action that it
appears to demand at a given time. Who knows,
asked Robert Browning, but that the world may
end tonight? True, but on available evidence
most of us make ready to commute on the 8:30
next day."
NKF cyberNephrology provides:
Slide 5
Electronic/Internet versions of NKF publications,
professional and patient education and peer support
over the Internet using Email and web resources,
medical textbooks online, hands on workshops,
symposia, videoconferencing, and technology vision
for the future.
It is the embodiment of kidney medicine’s embrace of
technology.
A wealth of offerings for physicians, other nephrology
professionals, and patients and families at:
www.cybernephrology.org
NKF cyberNephrology can assist
your kidney foundation with:
Slide 6
•
Creation of web, email, and chat resources (AIM and
MSN messenger like, or IRC)
•
Recommending links for nephrology resources.
http://www.cybernephrology.org/education/eduPhysicians.htm
•
Recommending searching resources on your web
site.
•
Promotion of the resources you create for your
foundation.
www.cybernephrology.org
But putting matters more simply…
Slide 7
The use of computers and the Internet should be
enjoyable, practical, and productive. Web, email,
chat resources should be easy to create.
If you need help we are there to provide assistance. You
can send us questions at the “contact us” link on
www.cybernephrology.org or at the following Email
addresses:
Janice McDonald jm5@ualberta.ca
Michele Hales
Michele.Hales@UAlberta.CA
Kim Solez, M.D.
Kim.Solez@UAlberta.CA
We can help you create Internet resources specific to
the local language and culture of your own region.
Slide 8
NKF cyberNephrology - A
remarkable NKF innovation!
 In 1996 an NKF think tank recommended the creation
of NKF cyberNephrology, initiated in April 1997.
 Remarkably insightful, no other voluntary heath
organization has had similar technology impact.
Earlier Internet initiatives in other health disciplines dermatology, anesthesiology, and nursing - were
individual or institutional efforts.
 Now as a consequence of this NKF initiative,
nephrology has caught up to and surpassed these
other disciplines, now has Internet resources superior
to those in any other area!
Slide 9
All the More Remarkable Considering
Nephrology’s size vs. all of Medicine
 There are more than 800,000 physicians in the US and
only about 5,000 are practicing renal medicine, so
nephrologists represents only about 0.6% of total US
physicians.
 On the other hand, the cost of end stage kidney disease
care is very high: 18 billion US dollars per annum in
public and private money (source USRDS). This is nearly
2% of the 1 trillion dollar total annual health care budget
of the US and rising rapidly.
Slide 10
Unique Resources for Patients Not Found
In other Specialties
 NEPHKIDS - For parents of children with renal
disease, moderated by pediatric nephrologist.
 KIDNEYDISEASE - For adult patients with kidney
disease, moderated by 10 nephrologists all over the
world!
18 Email discussion groups in all connecting more than
3000 health professionals and patients.
Email Discussion Groups
Slide 11
Email - Best Communication for
Low Bandwidth Situations
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NKF New Technologies Division
 Directed by Gary Green.
 Beautiful new redesign of NKF kidney.org page!
 Chronic kidney disease K/DOQI guidelines now
available electronically through efforts of NKF
cyberNephrology
Slide 20
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New Technologies Division
NKF (New York team) (800) 622-9010
Gary Green
Anthony Della Camera
Brian Robilotta
garyg@kidney.org
anthonyd@kidney.org
brianr@kidney.org
Gordon Brown
gordonb@kidney.org
Dawn Maruna
dawnm@kidney.org
Slide 22
Extending Internet knowledge from
nephrology to medicine in general!
Slide 23
 cyberMedicine - New Medicine http://www.cybermedicine.org
 Discipline upgrade from other areas which can learn
from nephrology - Critical Care Medicine
 cyberMedicine as part of the technology future search strategies - efficient information retrieval,
future of technology and the human spirit.
Slide 24
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Internet Now Mainstream Searching - A Wonderful
World Out There!
General Search Tools
http://www.alltheweb.com/
Currently searching 3,151,743,117 web
pages
http://www.google.com/
Google - Searching 3,307,998,701 web
pages
Searching Web Pages of the
Past - “Wayback Machine”
http://www.archive.org/
Search 11 billion pages of the Wayback
Machine
The Internet Archive is building a digital
library of Internet sites and other cultural
artifacts in digital form. Like a paper library,
provides free access to researchers,
historians, scholars, and the general public.
Searching The “Invisible Web”
Database pages and pages with a ? In the
URL are excluded from standard searches.
Search engine databases are created by robot
programs called spiders, computer robot programs
that crawl the web seeking search engine content.
These spiders crawl or navigate the Web by
following the links in the web pages that are already
in the database of their parent search engine. If
there is no link to a page, a spider cannot "see" it.
They lack the ability to type or think of any string of
characters. They not only lack fingers for typing, but
also lack a brain capable of judgment.
Searching The “Invisible Web”
One can seach the Invisible Web using the following tools:
http://lii.org/
http://www.academicinfo.net/
http://www.completeplanet.com/
Internet Video Conferencing Remote Collaboration/
Education/Telemedicine
Video conferencing/
Telemedicine/Telepathology The
near future of medical
education and practice!
Internet video-conferencing affordable. There
are two practical ways to establish this:
1. Dedicated videoconferencing equipment from
Sony or Polycom using Internet2/Abilene
“research” Internet with guaranteed
bandwidth.
2. Desktop videoconferencing using iSight and
iChatAV on Macintosh G4 or G5 computers.
Slide 34
Internet2 International Memorandum of
Understanding Partners
Europe-Middle East
ARNES (Slovenia)
BELNET (Belgium)
CARNET (Croatia)
CESnet (Czech Republic)
DANTE (Europe)
DFN-Verein (Germany)
GIP RENATER (France)
GRNET (Greece)
HEAnet (Ireland)
HUNGARNET (Hungary)
INFN-GARR (Italy)
Israel-IUCC (Israel)
NORDUnet (Nordic Countries)
POL-34 (Poland)
RCST (Portugal)
RedIRIS (Spain)
RESTENA (Luxembourg)
SANET (Slovakia)
Stichting SURF (Netherlands)
SWITCH (Switzerland)
TERENA (Europe)
JISC, UKERNA (United Kingdom)
Asia-Pacific
AAIREP (Australia)
APAN (Asia-Pacific)
APAN-KR (Korea)
APRU (Asia-Pacific)
CERNET, CSTNET, NSFCNET (China)
JAIRC (Japan)
JUCC (Hong Kong)
NECTEC / UNINET (Thailand)
SingAREN (Singapore)
TAnet2 (Taiwan)
Americas
CANARIE (Canada)
CEDIA (Ecuador)
CNTI (Venezuela)
CRNET (Costa Rica)
CUDI (Mexico)
REUNA (Chile)
RETINA (Argentina)
RNP2 (Brazil)
SENACYT (Panama)
No Arab or African Countries
with Internet2 networks!
BELNET (Belgium)
CARNET (Croatia)
CESnet (Czech Republic)
DANTE (Europe)
DFN-Verein (Germany)
GIP RENATER (France)
GRNET (Greece)
HEAnet (Ireland)
HUNGARNET (Hungary)
INFN-GARR (Italy)
Israel-IUCC (Israel)
NORDUnet (Nordic Countries)
POL-34 (Poland)
RCST (Portugal)
RedIRIS (Spain)
RESTENA (Luxembourg)
SANET (Slovakia)
Stichting SURF (Netherlands)
SWITCH (Switzerland)
TERENA (Europe)
JISC, UKERNA (United Kingdom)
AAIREP (Australia)
APAN (Asia-Pacific)
APAN-KR (Korea)
APRU (Asia-Pacific)
CERNET, CSTNET, NSFCNET
(China)
JAIRC (Japan)
JUCC (Hong Kong)
NECTEC / UNINET (Thailand)
SingAREN (Singapore)
TAnet2 (Taiwan)
CANARIE (Canada)
CEDIA (Ecuador)
CNTI (Venezuela)
CRNET (Costa Rica)
CUDI (Mexico)
REUNA (Chile)
RETINA (Argentina)
RNP2 (Brazil)
SENACYT (Panama
Dedicated Internet VideoConferencing Equipment
Practical Now in Many Regions.
Slide 37
CA*net 4 Architecture: 22.5 Gbps!
CANARIE
GigaPOP
ORAN DWDM
Carrier DWDM
Edmonton
Saskatoon
St. John’s
Calgary Regina
Quebec
Winnipeg
Charlottetown
Thunder Bay
Victoria
Sudbury
Vancouver
CANARIE
Optical switches
Seattle
Montreal
Ottawa
Fredericton
Chicago
New York
CA*net 4 node
Possible future CA*net 4 node
Toronto
Windsor
Halifax
Slide 39
Many connections via Pacific Northwest
Gigapop system in Seattle
Slide 40
NORDUnet is the Nordic Internet
highway to research and education
networks in Denmark, Finland,
Iceland, Norway and Sweden.
Connects to the European
research and education network
GÉANT at 10Gbit/s.
Slide 41
The
AmericasPATH
network
connects
Argentina
(RETINA), Brazil
(RNP2), Chile
(REUNA2), São
Paulo, Brazil
(ANSP), and
Venezuela
(REACCIUN)
1Gbps
Slide 42
RBNet
Russian Backbone Network; the primary science and education
network of the Russian Federation 155Mbps
NaukaNet
An NSF-funded High
Performance International
Internet Services (HPIIS)
project managed by the
National Center for
Supercomputing
Applications at the
University of Illinois at
Urbana-Champaign to
facilitate the connection of
the Russian RBNet network
to U.S. and international
research and education
networks.
In 2003-2004 iSight and iChatAV
on Mac G4/G5 computers practical in most areas of world.
Slide 44
Wireless Connectivity - Not Just for
Landlubbers Anymore!
BALTIC SEA MAKING WAVES Now travelers in the Scandinavian region
(which has long been in the forefront of wireless technology)
can get wi-fi while crossing the Baltic Sea. Passengers on
Silja ferries running between Helsinki, Stockholm and Tallinn, Estonia,
log on for free while seated near the bar.
Slide 45
Wireless Connectivity - Many
applications within hospital practice
BOSTON DOCTORS WITHOUT BORDERS
Physicians at Beth Israel Deaconess Medical Center in Boston use wireless
handhelds and laptops to submit prescriptions, r ead laboratory results and
view X rays and ultrasounds. Above, an emergency -room doctor checks a
PDA equipped with a plug-in wi-fi card .
Slide 46
Wireless Connectivity - An important
focus of national connectivity initiatives.
KRAKOW HIP TO BE SQUARE
For decades, visitors to Krakow's main city square have admired the historic
buildings, browsed the souvenir stands and sipped coffee at the many
outdoor cafés. This year, for the first time, they get to browse online for freethanks to a nationwide effort to bring wi-fi to Poland .
NKF cyber
Nephrology Visioning the
future!
Medicine of the Future
New Medicine Individualized Medicine
But putting matters more simply…
Slide 49
The use of computers and the Internet should be enjoyable,
practical, and productive. Web, email, chat resources should
be easy to create.
If you need help we are there to provide assistance. You can send
us questions at the “contact us” link on
www.cybernephrology.org or at the following Email addresses:
Janice McDonald jm5@ualberta.ca
Michele Hales
Michele.Hales@UAlberta.CA
Kim Solez, M.D.
Kim.Solez@UAlberta.CA
We can help you create Internet resources specific to local needs,
language and culture of your own region.