Medical Suppliers Primary Children’s Hospital 100 N Mario Capecchi Dr, Salt Lake City, UT 84132 Phone: (801) 662-1000 Website: http://intermountainhealthcare.org/hospitals/primarychildrens/Pages/home.aspx Utah Department of Health Cannon Health Building 288 North 1460 West Salt Lake City, UT 84116 Phone: (801) 538-6003 Website: http://health.utah.gov/index.html Petersen Medical 1268 South 1380 West Orem, UT 84058 Phone: (801) 373-1010 Website: http://www.petersenmedical.com/ 5434 South 1900 West Roy, UT 84067 Phone: (801) 728-3333 Website: http://www.petersenmedical.com/ Alpine Home Medical 4030 S. State Street Salt Lake City, Utah 84107 Phone: (801) 463-0044 Website: https://alpinehomemedical.com/ Intermountain Healthcare-Home Medical Equipment 2250 South 1300 West Salt Lake City, UT 84119 Phone: (801) 977-9900 1 Toll free: 1-800-527-1118 Website: http://intermountainhealthcare.org/services/homecare/medicalequipment/Pages/home.asp x B in Motion 4030 South State Street Salt Lake City, UT 84107 Phone: (801) 463-0044 Phone: (801) 506-1822 Website: http://binmotion.org CReATE (Citizens Reutilizing Assistive Technology Equipment) 1595 W. 500 S Salt Lake City, UT 84104 Phone: 801-887-9398 Website: http://www.uatpat.org/create Ability Found 5236 S Greenpine Dr. Salt Lake City, UT 84123 Phone: (801) 505-0529 Fax: (801) 261-0923 Toll-Free: 1-877-231-4567 Website: https://www.abilityfound.org/ Computer: The Computer Center for Citizens with Disabilities 1595 West 500 South Salt Lake City, UT 84104 Phone: (801) 887-9533 Toll-Free: (888) 866-5550 Website: http://www.usor.utah.gov/ucat/computers.htm 2 Hospitals/Clinics Offering Pediatric OT Utah State Hospital (Inpatient) 1300 East Center Street Provo, Utah 84606 Phone: (801) 344-4400 Fax: (801) 344-4225 Email: jgierisch@utah.gov Primary Children’s Rehab plus several DBA’s (Inpatient/Outpatient) 100 North Mario Capecchi Drive Suite 4400 Salt Lake City, UT 84113 Phone: (801) 662-4949 Fax: (801) 662-4931 South Davis Community Hospital (Inpatient) 401 S. 400 E. Bountiful, UT 84010 Phone: (801) 295-2361 Life Skills Clinic (University of Utah)(Outpatient) 540 Arapeen Drive Suite 200 Salt Lake City, UT 84108 Phone: (801) 585-6837 Mountainland Rehab (Inpatient) 1755 West 7800 South West Jordan, UT 84084 Phone: (801) 282-2200 Fax: (801) 282-2220 3 Blue Sky Therapeutics, LLC (Outpatient) Jessica Kahn, MS, OTR/L 2760 W. Rasmussen Rd. Summit Center Bldg. D Suite 205/6 Park City, UT 84098 Phone: 435-659-1746 Email: falikahn@gmail.com Just For Kids (Outpatient) Susan Horn OTR/L Phone: (801) 231-9207 Email: susan@otjustforkids.com Website: http://otjustforkids.com 4 Transportation for Children with Disabilities Utah Transit Authority – provide documentation of how a family can determine if they might take the FlexTrans mini bus or have to travel on a regular bus with a child with a disability. You must complete the application process and be certified as eligible before scheduling any Para transit rides. As a “safety-net”, and for eligible riders who have a disability that prevents them from making some or all of their trips on fixed route buses, TRAX light rail and FrontRunner commuter rail services, the UTA offers a shared-ride, curb-to-curb (origin-to-destination) service called Para transit. Para transit service operates in the same areas and during the same days and hours as the fixed route bus and TRAX light rail services. Children under six (6) years of age will be considered for Para transit eligibility based on the functional ability of both the accompanying adult and child (as a team) to use fixed route bus service. When an eligible child is traveling with an adult (who is serving as a personal care attendant), a fare must be paid for the child and the adult attendant rides free. (See UTA Para transit handout for more highlighted information at the end of the transportation section) What are the rules/requirements for traveling on an airline with a child with a disability? It is important that you let the airline know in advance if you require special seating, or if you need wheelchair accommodations. Most airlines have a section on there website to give you information about their policies and procedures about persons traveling with a disability. Delta Airlines • If you have specific questions or you want to speak to someone about a child’s special needs in person, call 800-221-1212. •http://www.delta.com/content/www/en_US/traveling-with-us/special-travelneeds/disabilities.html U.S Airways • Call 800-428-4322 (TDD/TTY 800-245-2966) to book on the phone. Let the reservations agent know about your special needs. • http://www.usairways.com/en-US/traveltools/specialneeds/reservations.html 5 If you have a child that needs transport from home to a local outpatient clinic to receive outpatient OT once/week—who can you refer the family to for transportation? Ute cab company They will take you anywhere you need to go in the salt lake valley. http://www.utecabco.com/ (801) 359-7788 UTA Para transit They will offer curb to curb pick up if you apply and qualify UTA Para transit runs on the same schedule as the regular bus and trax system http://www.rideuta.com/mc/?page=RidingUTA-AccessibilityParatransitServices BrightStar Care Mountainside Caregivers will take your child to appointments and bring him/her back to your home 5320 S 900 E Suite 280 Salt Lake City, UT 84117 Phone: (801) 559-3999 http://www.brightstarcare.com/brightstar-transportation/ 6 Recreational Programs for Differently Abled Populations 1. Camp Kostopulos 4180 E. Emigration Canyon Road Salt Lake City, UT 84108 Phone: (801) 582-0700 Website: www.campk.org Email: kdf@campk.org Camp Kostopulos host outdoor activities for individuals with disabilities. Provides four types of summer camps: Residential Camp, Day Camp, Travel Trip Camp, and Partner Day Camps. Residential Camp includes riding horses, swimming in a heated pool, fishing in a trout pond, low/high ropes course, climbing wall, arts and crafts, nature, sports, games, and much more.Campers stay in bunk-style cabins with private restrooms, and have 24-hour supervision by our trained staff members. Contact Sami: 801-582-0700 x105 Day Camp is available for campers ages 7-22. Campers arrive at Camp K each morning, and return to their homes each evening. Breakfast, snacks, and lunch are provided. Activities are the same as residential Camp. Travel Trip Camp is available for a small group of campers and staff to travel by van to locations such as Jackson Hole WY, Moab UT, Denver CO, Grand Junction CO, and to many great state and national parks like Yellowstone, Arches, Bryce Canyon, Zion, Coral Reef, Tetons, and many more. All transportation, meals, camping, and park fees are included in the trip package. Partner Day Camp provides kids with disabilities, the opportunity to interact and attend the partner camps with kids that do not have a disability. 2015 partner day camps includes: Bad Dog Arts, National History Museum, Red Butte Gardens, and U of UYouth Education. Community-based and Equestrian programs run year round. Cost: Varies based on program or activity. Financial aid may be available to those that qualify. 7 2. National Ability Center P.O. Box 682799 Park City, Utah 84068 Phone: 435-649-3991 Website: www.discovernac.org Email: info@DiscoverNAC.org Activities: Offers a variety of recreational activities all year long for individuals with disabilities. Some activities include: Nordic skiing, snowboarding, snowshoeing, horseback riding, hippotherapy, indoor rock climbing, swimming, archery, sled hockey, cycling, waterskiing, wakeboarding, kayaking, canoeing, paddle boarding, and challenge course activities. Cost: Provides scholarships to 100% of those who made a request and continue to keep program fees affordable (program fees account for less than 30% of the total cost of programming). 3. SPLORE 774 East 3300 South Suite 105 Salt Lake City, UT 84106 Phone: 801.484.4128 Website: www.splore.org Email: info@splore.org Splore serves children and adults with disabilities and special health care needs, as well as underserved populations such as refugee youth and low-income families. Activities: Cross Country Skiing, Snowshoeing, Indoor Climbing, Outdoor Climbing, Whitewater Rafting, Canoeing, Open Adventure Trips, Rock On Program, and The EVOLVE Project Cost: Varies based on program or activity. Scholarships are awarded based on: availability of funds, amount requested and financial need 8 4. Turn Community Services 295 S 200 E Cedar City, UT 84720 Website: www.turncommunityservices.org Phone: Salt Lake area contact: Eleanor Till: 801-524-8615 Utah County contact: Dave Hennessey: 801-343-3900 Southern Utah contact: Karen Willmott: 435-586-1128 Offers various summer day camp activities and Saturday activities throughout the year for individuals with disabilities. 5. Wasatch Adaptive Sports Snowbird Ski and Summer Resort 9385 S, Snowbird Center Dr. Snowbird, Utah, 84092-9000 Phone: 801-933-2188 Fax: 801.935.8338 Email: info@wasatchadaptivesports.org Activities: Snowboarding, skiing, snowshoeing, bowling, hiking, fishing, road biking, mines and water tours, playground and classes to teach navigation. Cost: Varies based on program. Full or partial scholarships available for those who qualify. 9 Summer Idea List 1. Boys and Girls Club of Murray: offers programs for children with disabilities. Phone: (801) 284-4259 Website: www.bgcsv.org Contact Michael Cox for further information Email: mcox@bgcsv.org 2. Camp Kostopulos: located on 25 acres in Emigration Canyon, Camp Kostopulos provides a host of outdoor adventures for individuals with disabilities. The cost and duration varies based on the program. Phone: (801) 582-0700 Website: www.campk.org 3. Lifelong Learning Center: offers day programs for individuals with disabilities ages 18+. Please check the website for cost and duration of the program. Phone: (801) 746-7251 Website: www.lifelonglearningut.com 4. Murray Greenhouse: offers day programs for individuals with disabilities ages 22+. 6366 South 900 East Murray, UT 84121 Phone: (801) 381-6410 Email: Monica@UtahSelectRealty.com 5. Salt Lake County Adaptive Recreation: offers a variety of programs and activities for individuals with disabilities including: wheelchair rugby, dances, aquatics, ice sledge programs, camps, clinics, basketball, track and field, softball, soccer, bocce, fitness, and more. There are programs for both adults and youth. There are also some sporty summer camps Phone: (801) 561-0075 Website: www.recreation.slco.org/adaptive 6. Social Skills Groups: offers programs for children with Autism Spectrum Disorder or social communication disorder. Groups are designed for children ages 4-10 with the above mentioned disorders. Groups meet 1 day per week for 90 minutes in small groups (6children with 2 therapists), with parent observation and parent-to-parent interaction. University of Utah 10 Speech Language Hearing Clinic 417 Wakara Way, Suite 1112 Salt Lake City, UT 84108 Phone: 801-581-3506 Email: leslie.Calvert@health.utah.edu 7. Specialty Swim Pool and Hydrotherapy Pool Programs: are specialized water treatment programs that include: pediatric early intervention, sensorimotor integration programs, adapted swim programs, hydrotherapy, PNF, Halliwick, and Bad Ragaz. The pool is 90 degrees and adaptive equipment is provided. These programs feature extensively trained, adapted aquatic, early childhood, and special education instructors. Phone: (801) 209-1521 Cost: $15 per half hour session/lesson (state tax deductible) 8. SPLORE: provides outdoor adventures for people with disabilities. The magic of SPLORE is found through the life-enhancing experiences that occur only through their outdoor programs. Phone: (801) 484-4128 Website: www.splore.org Email: info@splore.org 9. UAID (Utah Association for Intellectual Disabilities): Please contact Kathy Scott for information about their summer programs. Phone: (801) 654-8449 Email: uaid.slc@gmail.com 10. Wasatch/Snowbird Adaptive Sports: Programs offered include hiking on barrier free trails, fishing, biking, tram rides, and environmental awareness programs. Phone: (801) 933-2188 Website: www.wasatchadaptivesports.org 11. TURN Community Services offers various activities through their summer day camp. They also offer Saturday Night respite and Saturday activities throughout the year. Phone: (801) 486-3778 Website: http://turncommunityservices.org/ 11. National Ability Center: Offers a variety of recreational activities all year long. during the summer they offer several summer camps for children with disabilities. 11 Post Office Box 682799 Park City, Utah 84068 Phone: (435) 649-3991 Website: http://www.discovernac.org/contact.htm 13. Virginia Tanner Creative Dance Program: offers dance classes for children with disabilities all year including during the summer. Phone: (801) 581-7374 Website: http://www.tannerdance.utah.edu/ 14. Miracle league of Utah, baseball team for children with disabilities. Website: http://www.rmsb.com/Main/note_miracle_league.html 15. The Stable Place: Offers horseback riding lessons for children with and without disabilities. There are private and group lessons available. They also offer a sensory trail where riders can experience sensory stimuli while horseback riding. Phone: (801) 860-3906 Website: http://thestableplaceslc.com/home 16. Granite Peaks Education: offers fun community education classes during the summer for children and young adults with disabilities. Website: http://www.granitepeaks.org/ 17. Independent Living Center: offers a six week summer program for children ages 14-22 with disabilities. It’s starts in mid June, and is only $50.00 for six weeks of fun. The program focus on life skills like cooking, social skills, bus ridding, and much more! The price includes a fun campout. Phone: (801) 466-5565 Website: http://www.uilc.org/about.php for more information. 18. Special Olympics: Offer summer games where individuals with disabilities can compete in a variety of sports including things like cycling, field and track, soccer and softball. You need to apply by April 2010. Phone: (801 ) 363-1111 ex 223 Website: http://www.sout.org/shared/layouts/amazonian.jsp?_event=view&_id=120130_U126500 12 19. You Can Learn: A summer school like program for children with a variety of learning disabilities. Program focus on remediation skills as well as reading comprehension, math skills, and science and history using hands-on activities in a structured classroom setting. Phone: (801) 281-5546 Website: http://www.ucanlearn.net/summer.php or 20. SLCC Summer Reading skills: SLCC offers 5 week long summer reading programs for struggling reader’s grades k-12. They provide individualized attention, group instruction, and engaging materials. Phone: 1-800-964-8888 Website: http://www.slcc.edu/continuinged/youth/ for more information. 21. Spectrum Academy: They offer a six week summer camp for children with high functioning autism. They offer a structured environment focusing on social skills. You can go for just a few weeks or for all six. Phone: 801-936-0318 Website: http://www.spectrumcharter.org/ 22. SEPS Learning Center: Summer school or children with a variety of disabilities. Instructors work on motor, visual, verbal, and social skills. We teach skills in note taking, testing, listening, following instructions, and asking appropriate questions. In addition to regular summer school classes, SEPS Learning Center offers a recreation program that is available through the summer months. Phone: 801-467-2122 Website: Go to http://www.sepslc.com/school.php Classes/Camps UofU Youth Education (PreK- High School Credit) www.youth.utah.edu · Youth Academy of Excellence http://continue.utah.edu/youth/yae/index.php · High School Credit http://continue.utah.edu/youth/results.php?subject=yehs · Club U Camp http://continue.utah.edu/youth/clubucamps/index.php · Computer Tech http://continue.utah.edu/youth/results.php?subject=yetec · Preschool http://continue.utah.edu/youth/results.php?subject=yeprs · ·Creative Arts http://continue.utah.edu/youth/results.php?subject=yeart · ·Filmmaking/Animation http://continue.utah.edu/youth/results.php?subject=yeact · ·Hobbies http://continue.utah.edu/youth/results.php?subject=yeemt · ·Language http://continue.utah.edu/youth/results.php?subject=yelan · ·Music/Movement http://continue.utah.edu/youth/results.php?subject=yemus 13 · ·Science/Math http://continue.utah.edu/youth/results.php?subject=yesci · ·Sports/Recreation http://continue.utah.edu/youth/results.php?subject=yespr Uof UTheatre (5-18 yo) http://www.youththeatre.utah.edu/Classes_Registration.html Uof U School of Computing Camps http://www.cs.utah.edu/camps/ · The GREAT Summer Camp (8th-10th) http://www.cs.utah.edu/camps/great/overview/ Six one-week sessions to choose from - GREAT Summer Camp is about having fun while learning amazing tools to unleash your creativity. The first part of the week will teach you how to build and tell a story in your own interactive 3D world. The second part of the week will have you working together in teams building robots to compete in a robot showdown. Together, GREAT is about learning how computer science approaches to problem solving can lead to creative and exciting applications. UofU School of Medicine Outreach http://medicine.utah.edu/diversity/activities/docs.htm · Math Camps - http://www.math.utah.edu/outreach/ · Math Circle http://www.math.utah.edu/mathcircle/ · Murray Summer Programs http://www.murrayschools.org/wworks/parents_communityeducation.shtml · Granite Peaks Community Education http://www.granitepeaks.org/ Utah Museum of Natural History Camps (K-9th) - http://www.umnh.utah.edu/summer Salt Lake Community College · SLICK Science (11-14 yo) http://www.slcc.edu/campusevents/Science.pdf · Youth (7th-12th) - http://www.slcc.edu/earlycollegeprep/grades7-12.asp Westminster College Summer Camps http://www.westminstercollege.edu/camps/ · AWE+SUM Summer Camp for 8th grade girls - $50 https://www.westminstercollege.edu/camps/index.cfm?parent=1425&detail=4568&conte Write On! Workshop at Westminster College (2nd-8th) http://www.writeonworkshops.com/ Clark Planetarium Summer Camp (12-17 yo) - How to Build and Use a Telescope http://www.clarkplanetarium.org/ The Little Gym-offers summer camps for children with a variety of themes. Go to http://www.thelittlegym.com/Pages/kids-camps.aspx for more information Teen Writer's Conference @ Weber State (13-19 yo) http://www.teenwritersconference.com/1.html 14 Realms of Inquiry Summer Camps (5-12 y - open to all) http://www.realmsofinquiry.org/index.php?option=com_content&view=category&layout =blog&id=35&Itemid=49 Superior Aquatics-Offers swim lessons at Fremont pool. Call Crystal at 801-637-7140 Camp Invention - multiple Utah locations https://register.campinvention.org/eforumnihf/webpages/MainPage.aspx Christa McAuliffe Space Education Center (Alpine School District) (7-17) has summer day and overnight camps open to all. www.spacecamputah.org Rowland Hall Summer Rocks (6th-8th): 28 Sports Camps and Mini Classes for 'Tweens taught by Rowland Hall Faculty and Coaches. Everything from science and pottery to creative writing and high ropes course adventure to acting and social skills. Open to students from across the region! Most classes are offered in a.m. or p.m. slots and are 3 to 5 days in length.. www.rowlandhallsummer.org Abrakadoodle: Crayola provides specialty materials & curriculum for this PreK- 12yo program at site around the state. "Abrakadoodle provides remarkable art classes, art camps and art parties and special events for children ages twenty months to twelve years old at schools, community centers and other convenient locations. The Abrakadoodle mobile art education program is one of the most popular creativity programs in the world providing innovative art classes, art camps and art parties to tens of thousands of children across the country since 2003." http://www.abrakadoodle.com/ut01/ Higher Ground Learning: "Higher Ground Learning is a creative learning center for all ages, providing students with educational alternatives that stimulate the intellect and imagination. From one-on-one instruction to our workshops and classes, we specialize in innovative and experiential curricula, giving each student a chance to explore his or her interests, develop life skills, and experience the passion of learning. http://www.highergroundlearning.com/ Bytes of Brilliance: Camp is for girls age 12–17. Participants will: 1. Program in VisualBasic 2. Program robots 3. Program computer games. Download flyer here. Utah Museum of Natural History: UMNH Summer Camp offers children a chance to explore subjects ranging from rocks to space, from water to sound, from the ecosystems in their own backyards! UMNH Camps are taught by experienced UMNH Science Educators. Kids are learning while having fun! http://www.umnh.utah.edu/summer2009. Wasatch Kids Camp: Offers a summer camp experience for kids of all backgrounds. Call 801-828-7142 or go to http://www.wasatchkidscamps.com/ for more information. 15 Camp Great Salt Lake: Great Salt Lake Institute invites you to spend a few days as a scientist examining this extreme environment. How does the lake harness sunlight? What lab techniques can we use to detect life? Do the brine shrimp really look like Sea Monkeys? Get wet and get salty in this inland sea exploration. Sponsored in part by a grant from Utah's WIRED (Workforce Innovation in Regional Economic Development) http://www.westminstercollege.edu/great_salt_lake_institute/index.cfm?parent=8713 Salt Lake County Library http://www.slco.lib.ut.us/ · Kid Links: http://www.slco.lib.ut.us/kids_page.htm · Teen Links: http://www.slco.lib.ut.us/teen/teen_index.htm · Language Study: http://www.slco.lib.ut.us/database_languages.htm · Calendar: http://www.slco.lib.ut.us/progs.htm Park District http://www.slcgov.com/publicservices/parks/ Utah Families "No More Bored Kids Calendar" http://www.utahdiscovery.com/uf/calendar.php Go City Kids upcoming events calendar http://gocitykids.parentsconnect.com/region/salt-lake-city-ut-usa Find a Museum: http://museums.utah.gov/find_a_museum/region.php?sort=name Museums have FREE Days - http://www.utah.com/museums/ Play Giant Chess @ Gallivan Center while listening to a free lunch concert - you can checkout the large pieces at the ?? (Marni A) http://www.slcgov.com/PublicServices/Gallivan/lunchbunch.html Our whole family likes to go downtown for the Concerts in the Park at the Brigham Young Memorial Park (State Street and 2nd Ave). June-August Tuesday and Friday nights. Bring few blankets/camp chairs - This is not a religious program, the concerts are clean family fun! http://www.lds.org/placestovisit/location/0,10634,1894-1-1-1,00.html Science Experiments are fun! Get a FREE Experiment of the Week emailed from Robert Krampf or visit his site. http://krampf.com/members/ or FREE tele-classes + resources from Aurora Lipper at http://www.superchargedscience.com/freestuff.htm Letterboxing is a fun free activity. It is like getting a treasure map and looking for a hidden treasure. There are letterboxes all over the United States. The website has all the instructions of how to get started and on your way. There are a wide variety of adventures to suit all ages. http://letterboxing.org/ This is a good alternative for geo cashing for those who don't have GSP receivers. Start your own 4H Club! Kids K-12 can join an open club (6th-9th community clubs or the Dog Training Club) or create one with 5 kids (from 3 families) at your school or in 16 your neighborhood – 4H provides training and curriculum to parent volunteers who lead the group – dues are $1 (covers insurance). Wow! Not just horses and livestock, 4H offers opportunities in everything from robotics to mock legislature to cooking to dog training. 17 Government Resources for Children with Disabilities 1. DSPD—Division of Services for People with Disabilities 195 North 1950 West Salt Lake City, UT 84116 Phone: 1-844-275-3773 Fax: 801-583-4279 Email: dspd@utah.gov Website: www.dspd.utah.gov The mission of DPSD is to promote opportunities and provide support for persons with disabilities to lead self-determined lives by overseeing home and community-based services. DSPD services are uniquely tailored to each person and family. DSPD lists many resources for parents such as professional parent supports, residential habilitation supports and respite care. Additional community resources for parents include: American Association of Intellectual and Developmental Disabilities, People First Utah, Utah Disability Law Center, Utah Registry of Autism and Developmental Disabilities, Utah Family-to-Family Network, Utah Parent Center, Utah Sibling Leadership Network, and U.S. Social Security Administration. DSPD is an invaluable resource that help parents are families find resources to help a child become more independent and increase quality of life. This division of services can help the family become an advocate for the child and help him or her receive the best care possible. 2. IDEA—Individuals with Disabilities Education Act www.utahparentcenter.org/resources/laws/ideas The Individuals with Disabilities Education Act (IDEA) is a law that ensures services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to eligible infants, toddlers, children, and youth with disabilities. Six Important Principles Covered in IDEA Free appropriate public education (FAPE): Special education and related services are available to eligible children with disabilities age 3 to 22 and are to be provided at no cost to the parents. Educational programs and services are specially designed and reflect the child’s individual educational needs and work in conjunction with the Individualized Education Plan (IEP). FAPE applies to all 18 qualifying children with disabilities, including children who have been suspended or expelled from school Appropriate Evaluation: Gathers accurate information to determine eligibility or continued eligibility. The evaluation identifies the student’s educational needs and strengths; then, an individualized education program is designed to respond to the student’s needs. Individualized Education Program (IEP): The IEP is a legally binding, written document that outlines the special education program, services, and related services based on the child’s educational needs. Least Restrictive Environment (LRE): The environment where the student can receive an appropriate education designed to meet his or her special education needs while still being educated with nondisabled peers to the maximum extent appropriate. Parent and student participation in decision making: Parents must be given the opportunity to play a central role in the planning and decision-making regarding their child’s education. Further, parents must have the opportunity to participate in meetings regarding identification, evaluation, educational placement and the provision of FAPE to the student. Procedural due process: There are safeguards designed to protect the rights of the parents and their children with disabilities. Further, it gives families and schools a mechanism for resolving disputes. Early Intervention Early Intervention falls under part C of IDEA. Infants and toddlers with disabilities (birth-2) are eligible for early intervention services. Early Intervention is family-centered, multidisciplinary, comprehensive and community-based. The specific services for a child are written in the Individualized Service Family Plan (IFSP) which is based on the concerns and priorities of the family. Early Intervention programs conduct transition planning to move eligible children from early intervention to preschool programs. The planning is implemented at least 90 days before the child turns three years of age. Federal and Utah Guidelines for IEP 1. Revise general requirements for the content of IEPs. As used in Part 300, the term individualized education program or IEP means a written statement for each child with a disability that is developed, reviewed, and revised in a meeting in accordance with 34 CFR 300.320 through 300.324, and that must include: • A statement of the child's present levels of academic achievement and functional performance… • A statement of measurable annual goals, including academic and functional goals designed to: o Meet the child's needs that result from the child's disability to enable the child to be 19 involved in and make progress in the general education curriculum; and o Meet each of the child's other educational needs that result from the child's disability; • For children with disabilities who take alternate assessments aligned to alternate achievement standards, a description of benchmarks or short-term objectives; • A description of: o How the child's progress toward meeting the annual goals described in 34 CFR 300.320(a)(2) will be measured; and o When periodic reports on the progress the child is making toward meeting the annual goals (such as through the use of quarterly or other periodic reports, concurrent with the issuance of report cards) will be provided; • A statement of the special education and related services and supplementary aids and services, based on peer-reviewed research to the extent practicable, to be provided to the child, or on behalf of the child… • A statement of any individual appropriate accommodations that are necessary to measure the academic achievement and functional performance of the child on State and district wide assessments consistent with section 612(a)(16) of the Act; and if the IEP Team determines that the child must take an alternate assessment instead of a particular regular State or district wide assessment of student achievement, a statement of why the child cannot participate in the regular assessment and why the particular alternate assessment selected is appropriate for the child…. [34 CFR 300.320(a)] [20 U.S.C. 1414(d)(1)(A)(i)] 2. Revise requirements for the content of IEPs relating to transition services. Beginning not later than the first IEP to be in effect when the child turns 16, or younger if determined appropriate by the IEP Team, and updated annually thereafter, the IEP must include: • Appropriate measurable postsecondary goals based upon age-appropriate transition assessments related to training, education, employment, and, where appropriate, independent living skills; and • The transition services (including courses of study) needed to assist the child in reaching those goals. [34 CFR 300.320(b)] [20 U.S.C. 1414(d)(1)(A)(i)(VIII)(aa) and (bb)] 3. Clarify requirements regarding transfer of rights. Beginning not later than one year before the child reaches the age of majority under State law, the IEP must include a statement that the child has been informed of the child’s rights under Part B of the Act, if any, that will transfer to the child on reaching the age of majority under 34 CFR 300.520. [34 CFR 300.320(c)] [20 U.S.C. 1414(d)(1)(A)(i)(VIII)(cc)] 20 4. Include a rule of construction regarding the content of IEPs. Nothing in 34 CFR 300.320 shall be construed to require: • That additional information be included in a child’s IEP beyond what is explicitly required in section 614 of the Act; or • The IEP Team to include information under one component of a child’s IEP that is already contained under another component of the child’s IEP. [34 CFR 300.320(d)] [20 U.S.C. 1414(d)(1)(A)(ii)] 5. Set forth requirements for IEPs when children with disabilities transfer from one public agency to another. If a child with a disability (who had an IEP that was in effect in a previous public agency in the same State) transfers to a new public agency in the same State, and enrolls in a new school within the same school year, the new public agency (in consultation with the parents) must provide a free appropriate public education (FAPE) to the child (including services comparable to those described in the child’s IEP from the previous public agency), until the new public agency either: • Adopts the child’s IEP from the previous public agency; or • Develops, adopts, and implements a new IEP that meets the applicable requirements in 34 CFR 300.320 through 300.324. [34 CFR 300.323(e)] [20 U.S.C. 1414(d)(2)(C)(i)(I)] If a child with a disability (who had an IEP that was in effect in a previous public agency in another State) transfers to a public agency in a new State, and enrolls in a new school within the same school year, the new public agency (in consultation with the parents) must provide the child with FAPE (including services comparable to those described in the child’s IEP from the previous public agency), until the new public agency: • Conducts an evaluation pursuant to 34 CFR 300.304 through 300.306 (if determined to be necessary by the new public agency); and • Develops, adopts, and implements a new IEP, if appropriate, that meets the applicable requirements in 34 CFR 300.320 through 300.324. [34 CFR 300.323(f)] [20 U.S.C. 1414(d)(2)(C)(i)(II)] To facilitate the transition for a child described in 34 CFR 300.323(e) and (f): • The new public agency in which the child enrolls must take reasonable steps to promptly obtain the child’s records, including the IEP and supporting documents and any other records relating to the provision of special education or related services to the child, from the previous public agency in which the child was enrolled, pursuant to 34 CFR 99.31(a)(2) [Family Educational Rights and Privacy Act regulations regarding conditions under which prior consent is not required to disclose information]; and 21 • The previous public agency in which the child was enrolled must take reasonable steps to promptly respond to the request from the new public agency. [34 CFR 300.323(g)] [20 U.S.C. 1414(d)(2)(C)(ii)] www.idea.ed.gov Utah Guidelines for IFSP Individualized Family Service Plans (IFSPs) An Individualized Family Service Plan (IFSP) is the plan that Early Intervention providers develop with families to guide the delivery of services. IFSPs are based on an in-depth assessment of the child’s needs and the needs and concerns of the family. It contains 1) goals for the child, 2) services the child will receive to help him or her achieve the goals and 3) how the family, with support from professionals, can help the child reach the goals. Services available through the IFSP are usually provided in the child’s home. Changes in the federal Individuals with Disabilities Education Act (IDEA), however, state that services are to be provided in the child’s “natural environment”. This could include a child care setting, preschool or other community setting in which young children without disabilities would typically be found. An IFSP is a document or written plan. The term “IFSP” also refers to the process of determining what services a young child with disabilities needs. It uses an “interagency” approach by involving representatives of several agencies (usually education, health and human services) and other resources that can help the child and family. A “service coordinator” is assigned to assist the child’s family through the IFSP process. www.utahparentcenter.org/resources/ei 3. DCFS—Division of Child and Family Services Child and Family Services Department of Human Services 195 North 1950 West Salt Lake City, UT 84119 Phone: 801-583-4100 Fax: 801-583-3993 Email: carolmiller@utah.gov Website: dcfs.utah.gov/contact The Division of Child and Family Services protects children from abuse, neglect, or dependency, and serves family members who may experience violence in the home. 22 DCFS supports preventative services and education to families to assist them in protecting their children through programs such as, Community Based Child Abuse Prevention, Promoting Safe and Stable Families, and state Crisis Nursery Funding. Funding provides parents with parenting classes, evidence-based home visitation programs, statewide community and school-based education presentations, support to grandparents raising grandchildren, and 14 Crisis Nurseries across the state. Crisis Nurseries provide up to 72 hours of free care to children under the age of 12 as well as planned respite. DCFS also provides programs and services such as in-home services, domestic violence, kinship care, foster care, adoption, transition to adult living, and interstate compact. When a child or family should be referred to DCFS As a healthcare practitioner, you are required by law to notify the nearest office of Child and Family Services, a peace officer, or a law enforcement agency if you have reason to believe a child has been subjected to abuse, neglect, or dependency. Abuse, neglect, or dependency of a child can be physical, emotional, or sexual. 4. Utah Baby Watch Early Intervention Mailing Address: Baby Watch Early Intervention PO Box 144720 Salt Lake City, UT 84114-4720 Physical Address: 3760 S. Highland Dr. RM 403 Salt Lake City, UT 84106 Phone: 801-273-2998 Toll-Free: 1-800-961-4226 Fax: 801-274-0042 Email: babywatch@utah.gov Website: www.utahbabywatch.org 5. Head Start 1307 South 900 West Salt Lake City, UT 84104 Phone: 801-977-1122 Fax: 801-977-3929 Email: etmurray@slcap.org Website: www.saltlakeheadstart.org 23 Legal Resources for Families Needing Assistance 1. Disability Law Center of Utah 205 North 400 West Salt Lake City, Utah 84103 Phone: 801-363-1347 Toll-Free: 1-800-662-9080 Fax: 801-363-1437 Website: http://disabilitylawcenter.org/ Intake Hours: Mon – Fri: 9AM – 4PM The Disability Law Center’s mission is “To enforce and strengthen laws that protect the opportunities, choices and legal rights of people with disabilities in Utah.” An example of services provided is listed below: Education- work to ensure all Utah students with disabilities have available, appropriate public education designed to meet their unique needs. Housing- help to ensure people with disabilities, have access to and opportunities to rent or own, homes and apartments in their community. Voting Rights- protects the rights of citizens with disabilities, ensuring the opportunity to fully participate in the voting process. Accessibility- ensure that people with disabilities have full access to private businesses and to government facilities, programs and services. Civil Rights- work to protect and advance the civil rights of people with disabilities and help people with disabilities when their rights have been violated. Employment- work to safeguard the rights of people with disabilities in a range of work environments and to ensure all Utahns with disabilities have equal employment opportunities. 2. Calvin Curtis Attorney at Law, PLLC 299 S Main St., Ste. 1300 Salt Lake City, UT 84111 Phone: 385-282-4342 Email: Info@curtiselderlaw.com 24 Website: http://www.curtiselderlaw.com/index.php Legal solutions for families, elders and persons with disabilities. Utah's premier law firm for elder law issues and special needs trusts. They help clients obtain Medicaid and other assistance to help a spouse or parent pay for nursing home care. They provide estate planning services and special needs trusts to individuals with disabilities and to families with children with disabilities. 3. Utah Disability Law- Law Office of David W. Parker, P.C. Lexington Square 6007 South Redwood Road Salt Lake City, UT 84123 Phone: 801-328-5600 Toll Free: 877-773-5600 Fax: 801-328-5651 Website: http://www.utahdisabilitylaw.com/ Social Security disability is the focus of the Law Office of David W. Parker, P.C. in Salt Lake City, Utah. Their focus is driven by a sincere desire to help people whose medical conditions prevent them from gainful employment. 4. Clyde Snow & Sessions, PC 201 South Main Street Salt Lake City, UT 84111-2216 Phone: 801-322-2516 Fax: 801.521.6280 Email: info@clydesnow.com Website: http://www.clydesnow.com/ A highly rated Law Firm established in 1951 practicing Americans with Disabilities Act law. 5. Van Cott, Bagley, Cornwall & McCarthy, P.C. 36 South State Street, Suite 1900, P.O. Box 45340, Salt Lake City, UT 84111-1478 Phone: 801-532-3333 Toll Free: (800) 540-4691 Fax: (801) 534-0058 Website: www.vancott.com Van Cott is a nationally recognized law firm with a long history of excellence and professional leadership in the Intermountain West and practices the Americans with Disabilities Act law. 25 Additional Resources Support groups for children or parents of various pediatric disabilities The Family Support Center o Offers a FREE personalized and confidential program for an overwhelmed parent o Please call Rachel Pratt at 801-955-9110 (ext. 107) for more information o Address: (multiple locations) 1760 West 4805 South, Taylorsville, UT 84129 o Phone: (801) 955-9110 o http://www.familysupportcenter.org/FamilyMentors.php Parents Anonymous o Parents Anonymous Program is a family-strengthening program utilizing mutual support, parent leadership (seeking solutions and becoming empowered), and shared leadership to achieve personal growth, improve family functioning and achieve parental resilience. o Address: 11675 S. Nate Lane, Draper, UT 84020 o Phone: (801) 707-0075 o http://parentsanonymous.org/ Utah Family Voices o All about supporting families with special needs and is run by parents of children with special needs o Address: 230 West 200 South Suite 1101, Salt Lake City, UT 84101 o Phone: (801) 584-8236 o http://www.utahfamilyvoices.org/ Utah Parent Center o Helps parents help their children with disabilities o This is Utah’s Parent Training and Information Center (PTI). This organization can offer families with children who have disabilities information about their child, early intervention, school services, therapy, local policies, transportation and much more. o Address: Royal Wood Office Plaza, 230 W 200 S #1101, Salt Lake City, UT 84101 o Phone: (801) 272-1051 o http://www.utahparentcenter.org/ 26 ***Utah Parent Center has a document with pages of resources for parents and family support that is autism specific. It is a very helpful and informational document with many resources. This is the link: o http://www.utahparentcenter.org/wp-content/uploads/2013/01/Parent-andFamily-Supports-Autism-Specific.pdf Below are two Autism Specific support groups in Utah. Many more are listed at the link above. Easy to Love, Hard to Raise o To provide a place for parents and family members to meet monthly and share experience, strength, give hope and awareness, to other families who have similar experiences raising children with ASD, ADD/ADHD, SPD, Anxiety and other mental health, developmental or behavioral struggles. Through sharing in this experience of raising these ‘hard to raise’ kids, we grow stronger and more resilient. o Address: 1695 East, 330 South, SLC, UT o http://utaheasytolove.blogspot.com Carmen B. Pingree Center for Children with Autism o This center offers parent training classes and sibling support groups for children with autism. o Address: 780 South Guardsman Way, Salt Lake City, UT 84108 o Phone: (801) 581-0194 o www.carmenbpingree.com Online support groups: Our-Kids o Online support group for caregivers working with children with physical or mental disabilities and delays o http://www.our-kids.org/oknoframe.html National Parent Helpline o http://www.nationalparenthelpline.org/ Additional resources: Allies with Families Division of Community and Family Health Services Family Resource Library Medical Home Portal UPC Caregiver E-journal 27 o http://content.yudu.com/Library/A1rxfs/UPCCaregivereJournal/resour ces/index.htm?referrerUrl=http%3A%2F%2Fwww.utahparentcenter.or g%2Fresources%2Fcaregivers%2F 28