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Promoting Health and Self-Advocacy for Persons with Intellectual and Developmental

Disabilities: A Service-Learning Pilot Project for Community Health Education Students

Debra L. Fetherman, Ph.D., MCHES, ACSM-HFS

INTRODUCTION

 Adults with intellectual and developmental disabilities (IDD) are socioeconomically disadvantaged, experience poorer health outcomes and have unmet healthcare needs.

 These adults are more likely to die of preventable causes and to die at an earlier age.

 Community health educators are called to address the health inequities and health disparities facing our nation.

 Service-learning (SL) creates relevant experiences in which students can learn firsthand about and serve this vulnerable population.

OBJECTIVES

 This SL pilot project was designed to:

 Increase the health awareness and health self-advocacy skills of adults with IDD.

 Develop student competencies in two

Certified Health Education Specialist, Areas of Responsibility, VI. Serve as a Health

Education Resources Person and VII.

Communicate and Advocate for Health and

Health Education.

 Student Learning Outcomes (SLO), students will be able to:

SLO 1: Serve as a health education resource person.

SLO 2: Communicate and advocate for health and health education.

SLO 3: Describe how they can be a

“person for others” in their role as a community health educator.

 Poster presentation objectives:

 Identify the critical phases of a University

SL project for adults with IDD.

 Describe the effectiveness of a University

SL Project for adults with IDD.

 Identify the learning outcomes of a

University SL project for community health education students.

METHODS

 Junior-level health education majors (N=21) participated in a 12-week SL project.

 Adults with IDD (N=11) in intermediate care

(n=2), family aid (n=4) and community living

(n=5) were recruited through their support professional.

 Groups of 2 – 3 students were matched with an IDD adults. Three students were matched individually.

 Students reviewed 5 lessons from Vitale,

Levitz and Crimmins (2007) My Health My

Choice My Responsibility training program.

 Adults received 3-5 individualized health sessions.

 All adults received sessions on physical activity and nutrition.

PHASE

Orientation Week

1-4

Assessment/

Collaboration

Week 4-5

Planning/

Development

Week 5-6

HIPAA Training video, quiz

& acknowledgement form

Review AAIDD website

Overview SL site

Social Media Policy

Tour SL site

Overview health session objectives

Student group meetings

Meet with assigned adult/support staff

Review adult profile

Student group meetings

Review health session objectives and assessment

Implementation

Week 7-11

Students conduct 3-5 health sessions with adult

Evaluation

Week 9, Week

12

SL PROJECT SUMMARY

ASSIGNMENT

Class discussion meeting

Mural Project

SL time sheet

SLO

Measurement

Pre-SL

Reflection

Assignment,

Letter to Myself

N/A

N/A

Reflection journal entries each session

3 mural images

Mural class activity

Post-Reflection

Assignment,

Letter to Myself

Area of Learning

Meaning of SL

Experience

LEARNING THEMES

Theme

Care for others’ health by working together

Connect and engage through person’s personality and likes as motivators and distractors

What did you learn? Get out of comfort zone

Know on a personal level

Need to learn how to work with all persons

Understand limits and respect desires

Taking charge is not always best method

What did you learn about yourself?

What did you learn about others?

Enjoyed

Smart enough

Need to be more confident

Can be creative and connect

Have patience

Can overcome fear and anxiety

Open to my suggestions

To show interest in others

Respectful and patient

Meet abilities and capabilities

Loves interaction

Different difficulties and barriers

How did you learn? Observations

Trial and Error

Listening

Why does it matter? To find the best way to connect with others

Help others advocate for their own health to live to fullest capacity

Health is important

All people matter

RESULTS

Area

Professional Themes

Theme

Role as Health

Education Resource

Person

Use sound, factual information

Create trusted, credible relationship

Provide opportunities to learn in individualized, creative ways

Use adaptable examples, activities and options

Follow, direct and guide

Create comfortable, fun environment

Ability to

Communicate and

Advocate for Health and Health Education

Role as a “person for others” in the community health education profession

Be clear, simple and fun

Be passionate and relatable

Pay attention to how learning is taking place

Acknowledge interests and opinions

Spark interest

Explain importance of health

Tailor to individual

Communicate based on individual needs

Involve patient

CONCLUSION

• The orientation and assessment phases were critical to the students’ understanding of the SL project.

• The project created relevant experiences where students learned effectively about: 1) the health education profession and 2) serving adults with IDD.

• The project evaluation could be improved by assessing the pre and post health awareness and health self-advocacy skills of the adults served.

REFERENCES

Cashman, S.B., & Siefer, S.D. (2008). Service-learning, An integral part of undergraduate public health. American Journal

of Preventive Medicine, 35(3), 273-278.

Champagne, N. (2006). Using the NCHEC areas of responsibility to assess service-learning outcome in undergraduate health education students. American Journal of Health Education,

37(3), 137-145.

Drum, C.E., Krahn G.L., & Bersani, H. (2009). Disability and

Public Health. Washington, DC: American Association on

Intellectual and Developmental Disabilities.

Housman, J., Meeney, K.S., Wilcox, M., & Cavazos, A. (2012).

Impact of service-learning on health education students’ cultural competence. American Journal of Health Education,

43(5), 269-278.

McMenamin, R., McGrath, M., Cantillon, P., & MacFarlene, A.

(2014). Training socially responsive health care graduates: Is service learning an effective educational approach? Medical

Teacher, 36(4), 291-307.

Nehring, W.M. (2005). Health Promotion for Persons with

Intellectual and Developmental Disabilities: The State of

Scientific Evidence. Washington, DC: American Association on

Intellectual and Developmental Disabilities.

Sabo, S., deZapien, J., Teufel-Shone, N., Rosales, C., Bergsma,

L., & Taren, D. (2015). Service learning: A vehicle for building health equity and eliminating health disparities. American

Journal of Public Health, 105(S1), S38-S43.

Vitale, M., Levitz, M., & Crimmins, D. (2007). My health, my choice, my responsibility: A training program on health selfadvocacy. Valhalla, NY: Westchester Institute for Human

Development.

ACKNOWLEDGEMENTS

Thank you to the Community Health Education students and adults that participated in this SL project and pilot study.

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