Caring for Mom A Practical Workbook for Caregivers Diane Moore, Ed.D. Caring for Mom Table of Contents This book is for informational use and is based on the author’s experience. The information in this book should not be considered as a substitute for the advice of a qualified professional in the appropriate field. The author expressly disclaims responsibility for any adverse effects arising from the use or application of the information contained herein. CARING FOR MOM: A PRACTICAL WORKBOOK FOR CAREGIVERS. Copyright ©2012 by Diane Moore. All rights reserved. This book has been uploaded to www.caringformom.org, a caregiving website managed by Diane Moore. The book may be downloaded from the website for free and printed and/or customized for the reader’s personal use. Any forwarding of a downloaded version to another person will be considered a violation of the copyright. For information contact Dr. Diane Moore at diane@caringformom.org HARMONY RODRIGUEZ, MLS “This book is a great help for people at a loss as to how to organize their parent’s affairs! This is a thorough guide to remembering all the balls we juggle for ourselves in day-to-day living, and it supports the caregiver trying to apply that knowledge to their parent’s needs – a very practical guide! “ “I think we are all initially overwhelmed when we start down the caregiver road. I would suggest that a person start with the one system [in the book] that seems the most relevant and gradually work from there. “ CAROL CHAPMAN, M ED. “Your book is amazing! It is so relaxed and conversational. I think it will be a great comfort to people who need it. I can’t wait to share it with my sister and office assistant. Thank you from hundreds who will read and benefit and thank you from me.” Caring for Mom Table of Contents Caring for Mom: A Practical Workbook for Caregivers Table of Contents 1. Introduction 2 2. Taking Care of Yourself 7 a. Self Care Inventory and Planner 9 3. Living “Independently” in the Family Home 11 a. Clothing & Size Information 14 b. Gardener Information 15 c. Grocery List 16 d. House Information 19 e. Media and Communications Information f. Travel List 25 4. Leaving the Family Home 27 a. Furnishings for One Bedroom Apartment in Senior Living Facility 29 b. Disposal of Furnishings and Appliances 31 c. Renting the House 33 d. Sale of the House 36 5. Choosing a Senior Facility 37 a. Initial Visit Checklist 40 b. Comparing Care Facilities – Follow-up Visits 45 c. Summary Comparison Chart for Care Facilities 46 Caring for Mom Table of Contents 6. Address Changes 48 a. Change of Address: Sample letter 50 b. Change of Address to Caregiver’s Address: Sample letter 51 c. Change of Address Master List 52 d. Making Address Labels: Directions for Word 53 7. Living in a Senior Facility 54 a. Visitor List for Resident of a Senior Facility 56 b. Daily Schedule Sample 57 c. Emergency Contact Information 59 d. Notes to Staff (Generic Form) 60 e. Trip Itinerary for Caregiver and Emergency Contact Information 61 8. Doctors and Other Service Providers 62 a. Master Appointment Schedule for Service Providers 65 b. Notes from Doctor’s Visit 67 c. Medical Expenses and Insurance Payments 68 9. Medications and Assistive Devices 69 a. Over the Counter Medicines for Various Symptoms 71 b. Prescriptions Ordering Tracker 72 c. Request to Doctor for Prescription Renewal 74 d. Over the Counter Medications and Vitamins Tracker 75 e. Assistive Devices Tracker 76 10. The Attorney and Legal “Stuff” 77 Caring for Mom Table of Contents 11. Setting up the Finances 80 a. Accessing Accounts – Sample Letter 83 b. Mom’s Sample Budget 84 c. IOU for Reimbursement to Caregiver 86 d. Bill Payment Tracker 87 12. Keeping Track of Important Items and Information 90 a. Location of Important Items and Information 92 b. Income Tax Organizer 98 c. Insurance Policies 100 d. Personal Property Inventory 103 i. Antiques, Artwork, Furnishings, Furs, Jewelry, etc. 103 ii. Cars 104 iii. Pets 105 e. Summary of Important Information 106 13. Preparing for the Inevitable 108 a. Making Final Arrangements 110 b. Death Arrangements Notice to Care Facility 111 c. Places to Notify Upon Death 113 d. Things to Gather Upon Death 115 14. Works Cited 117 Caring for Mom Taking Care of Yourself Preface Many thanks to the caregivers who spent precious time reviewing this book and providing helpful suggestions. They include Gloria Chinea, Dottie Edwards, Ruth Hemming, Jennifer Hendricks, Anita Linton, Linda Moore, Harmony Rodriguez, Dorothy Scovil, Karen Staples, Carol Chapman, Amy Utsunomiya and Joy Uyeki. Thank you to Jim Gilden and Louise Kertesz for the encouragement and to Beverley Simmons for headers and page numbers.. Thank you to Dina Pielaet for donating her time and enabling the book to be published by sharing her special talents in photography, publishing, and technology. A very special thanks to my life partner and mentor in caregiving, Lyn Utsunomiya – counselor extraordinaire!! And finally, thank you, Mom! You’ve spent your life teaching me by word and example. 1 Caring for Mom Taking Care of Yourself Introduction My Mom is ninety-three. Eight years ago I got the call that my father had died suddenly. I flew to their home in Oregon and helped Mom make the funeral arrangements and deal with the paperwork required by various agencies and companies. We talked about her living in the family house with winter weather, no supporting relatives and few friends. She agreed that it would be a good idea to move to a senior mobile home park across the street from my home in Southern California. I immediately went to the Area Agency on Aging office and gathered information on senior services, organizing it into a notebook that would be a “welcome to your new home” book for my Mom. That began a journey that I wouldn’t trade for the world. Yes, it entailed many hours of work and worry on top of the pressures of my job and my life – probably much like those you are experiencing in your life right now. It impacted my family. But it also provided many hours of enjoyment as we worked and played together shopping for groceries, going to the movies, eating a special dinner or knitting on a Sunday afternoon. We got to know one another again in a different way and became fast friends. 2 Caring for Mom Taking Care of Yourself It has been a progressive journey. Since she moved to California Mom has lived in my home, a senior mobile home park, an independent senior living facility, and now she now lives in a senior residential care facility. She has lost weight and lost memory, but, luckily, she has not lost her sense of humor. I take comfort, as may you, in knowing that I am not alone in this venture. Gail Sheehey, in her book Passages in Caregiving: Turning Chaos into Confidence, says nearly 50 million American adults are taking care of their parents, relatives or partners. (10) She goes on to say that “the average family caregiver in the United States is a 48 year-old woman who holds down a paid job. . . One-third of family caregivers are actually on duty forty or more hours a week. Onethird also still have children or grandchildren under the age of eighteen living with them and take care of two or more people, usually parents. Not surprisingly, one-half report a high level of burden and nearly one-half say their own health is fair or poor. And this role lasts for an average of five years. (12) The American Association of Retired Persons (AARP) says that the number is expected to double over the next 25 years. “For many Americans, life at 40, 50 or 60 years old will include care for an aging parent or relative. As the nation grows older, the need for care giving will be as common as the need for child care.” (AARP Hew Hampshire Web site) This book is designed to help you as you take on the role of caregiver. Being an organized person who is juggling many balls, I created a number of systems and check lists to simplify taking care of my mom. I’m sharing them with you in the hope that they will save you many hours of work and frustration. Although I have grouped the systems under headings, you need not read the book in any order, but simply look in the index for the area that will be of help. I 3 Caring for Mom Taking Care of Yourself know implementing the systems looks overwhelming as a whole, but I’ve included all I can think of in order to meet the various needs of different families. Start by choosing just one system that will help you get organized. If you’re the sole caregiver, keep it simple. Then each week choose another system to implement, and before long, you will be saving time, minimizing your frustration, and feeling less stress as you go about the tasks of caregiving. You might be lucky enough to have an extended family to share the care. If you decide to involve your family, Hugh Delehanty and Elinor Ginzler’s book Caring for your Parents: The Complete AARP Guide has a good chapter on how to hold family discussions and share the work. You can find a system for care sharing in the book by Cappy Capossela and Sheila Warnock called Sharing the Care: How to Organize a Group to Care for Someone Who is Seriously Ill. Also, a private, free family scheduling calendar service is available at www.lotsahelpinghands.com. Hoping that various members of your family may take on specific responsibilities, I have duplicated information in some areas so that everyone would have what they need to do their job. I created the check lists found in this book in Microsoft Office Word 2007. They can be used in several ways. You can photocopy them and fill them in by hand, keeping paper copies in your filing system. Or, if you like using the computer, you can copy them to your computer, customize them to your situation, and fill them in, updating them in your computer. (Many of the checklists are in table format. The “Help” section of Word provides instructions on how to add or delete rows and columns to customize your table.) 4 Caring for Mom Taking Care of Yourself At the back of the book, you will find a list of sources that I mention in this book. I did not include an extensive bibliography of resources on caregiving since such lists become obsolete quickly so feel free to use your friendly internet search engine to find up-to-date sources. I can’t resist, however, sharing five books that I think are exceptionally useful. I wish I had read them at the beginning of my caregiving journey. They are the following: 1. Delehanty’s Caring for Your Parents: The Complete AARP Guide which is filled with many anecdotes and practical tips. 2. Johnson’s “Navigating the Health Care System” which is a detailed description of what to expect from a hospital, hospice and nursing home based on personal experience. 3. Loverde’s The Complete Eldercare Planner which helps you to set and prioritize goals, create action plans for each step in the caregiving process. It also lists many resources with an extensive list of web sites at the back. 4. McCullough’s My Mother, Your Mother: Embracing “Slow Medicine,” The Compassionate Approach to Caring for Your Aging Loved Ones which, being written from a doctor’s and caregiver’s perspective, provides much useful information about interacting with the medical community as a caregiver. It focuses on how to provide “slow medicine” care (palliative compassionate care vs. crisis driven medical intervention care) and has a list of “slow medicine” websites in the appendix. 5. Sheehy’s Passages in Caregiving: Turning Chaos into Confidence which focuses on the psychological aspects of the various stages in caregiving. 5 Caring for Mom Taking Care of Yourself 6. Zukerman’s Eldercare for Dummies which, although now somewhat dated, provides hundreds of resources for various aspects of caregiving. It is easy to thumb through and find basic information right when you need it. Finally, I would like to recommend an article by Louise Kertesz entitled “Resources for Caregivers, or, ‘Who has time to read when you’re going through all that stuff?’” which can be found at http://atyourlibrary.org/fitness/resources-caregivers. It is a current select list of websites, US government sites and books on caregiving, having just been written a few months ago. As I provided drafts of this book to caregivers to read and give me feedback, I was surprised that those who were single or in recent relationships said that they would be filling out some of the checklists with information about themselves that friends, new partners or family members could use in the event of their sudden illness or death. So, when you catch your breath, you might think about doing the same for yourself. I struggled with the conventions of naming your parent and yourself throughout the book. I settled on the scenario most familiar to me, a daughter taking care of a mother. Please do not be offended if this does not fit your situation. You have my best wishes as you and your parent go on this journey together. . . . . and don’t forget to laugh along the way. 6 Caring for Mom Taking Care of Yourself Taking Care of Yourself I’m such a typical caregiver – I never thought of starting this book with a chapter on taking care of myself. It took my friend Dorothy, who is on her second stint of caregiving and who is a psychotherapist, to remind me that we need to actively work on taking care of ourselves so we can be our best in the role of caregiver. Actually, Virginia Bell and David Troxel in their book A Dignified Life, back up even further by suggesting that “before assuming responsibility for caring for someone with dementia [or, I would add, any other chronic illness], you should first think about your own health, your attitudes about caregiving, your financial resources and your coping skills. Are you up for the task? There is no shame if your answer is ‘no.’ In fact, realizing this can do the person a great service because you may be able to arrange a caregiving situation that will be more optimal.” (52) Assuming that you inventory your own abilities, family and community resources, and financial resources and determine that you will take on the role of caregiver, one of the most important things that you can do is to also work out a long-term plan to take care of yourself. As Dorothy reminds me, this includes making some leisure time to engage in hobbies, play with friends, exercise, develop our spirituality and do anything that replenishes our reserves. We 7 Caring for Mom Taking Care of Yourself must remember to take our medications and make our doctor appointments. If we’re feeling exhausted or depressed, we need to get some mental health help through a support group, a therapist, a pastor, a counselor or a friend. In sum, without recharging our batteries we are guaranteed to feel resentful and stressed, which can lead to us becoming ill and being unable to optimally fulfill our role. Too often we say there isn’t time, but we have to figure out a way to make time. Local adult day care centers provide respite care. We can ask for help from siblings or our partner to spread out the work. A home aide or a masseuse can come to the home of our parent for an hour or so regularly. Family friends can visit on a regular schedule. Not only will these options free up time for us, but they will also provide new faces and new experiences for our loved one. And finally, Dorothy reminds me not to feel guilty about taking time for myself. I’ve tried to follow her lead by walking early each morning, doing exercises every other day, learning to water color, practicing the ukulele, going out to lunch with friends, and camping once a month. It has taken a lot of organization to do these things, and at times I worry, but I’m a much nicer person to be around, and I’m more patient and effective with Mom because I do them. In this section you will find a self care inventory and planner that will help you to figure out how to incorporate some activities in your life that will give you joy. 8 Caring for Mom Taking Care of Yourself Self Care Inventory and Planner Taking ten minutes to complete the following self care inventory and plan could start you on the road to more enjoyment and less stress as you take control of your life and do some things for yourself. 1. Inventory List below the activities, hobbies, or interests that would refresh you and replenish your reserves as you go about meeting the responsibilities in your life. Then guess the amount of time each would take per week and the approximate cost. Finally, prioritize the activities. I’ve provided you with my sample list. Diane’s Activities Amount of time per week Water color class 3 hours Reading for pleasure 5 hours Practicing Ukulele 2 hours Walk around park in AM 2.5 hours Exercises 3 Attending church 2 Out for lunch with friends 2 Cost per week Priority $25 $20 per novel 0 0 0 $25 donation $17 Your Activities Amount of time Cost per week Priority per week 9 3 6 7 2 4 1 5 Caring for Mom Taking Care of Yourself 1. Plan Take the top priority activity and develop a plan for making the time to do it. This likely will entail looking at your time commitments at work, home and as a caregiver and figuring out a way to free yourself up for just a little bit of time. Get up an hour earlier of you need to. Ask for help if you need to. Say “no” if you need to. Whatever you do, try to do it without guilt, remembering that you are doing it for a worthy purpose. 2. Implement Your Plan Now take whatever steps are required to put your plan into action. If you are feeling unsure about how your plan will work out, commit yourself to try it out for a short period of time after which you will evaluate how it has worked and what impact it has had on you and those around you. 3. If your plan worked as well as mine did, you’re ready to work on your second priority activity, moving down the list as you feel confident and successful. 10 Caring for Mom Living Independently Living “Independently” in the Family Home After becoming a widow at eighty-six, my Mom moved all of her belongings to a mobile home in a senior park across the street from me. She lived independently for several years, paying her own bills, keeping up her files, cooking her own food, walking to exercise and knitting classes at the club house, and doing well with minimal help from me. However, as time progressed and she could no longer drive, Mom depended on me for more and more. I tried to tactfully evaluate her needs, but I’ve since learned that there are professional geriatric care managers who can help you evaluate what help your parent needs at each stage and provide referrals. I found one in my community by going to the website of the National Association of Professional Geriatric Care Managers (www.caremanager.org). At the very least, you should do a regular scan of Mom in her environment to look for signs that she needs help, is unsafe or is being abused, because, if she is like my Mom, she will not ask for help, and she will try to cover up inadequacies. If you are living in another town, holiday visits are a good time to do this unobtrusively. Rosemary McClure wrote an excellent article in the Los Angeles Times, December 18, 2010 entitled “Holiday Visit with a Purpose” in which she lists things to look for in your parent such as confusion, frequent falls, or undernourishment; things to look for if she is being taken care of by others including unexplained bruises or bed sores, recent changes in spending patterns, or being afraid of the caregiver; and resources for help including the Center of Excellence on Elder Abuse and Neglect (www.centeronelderabuse.org). 11 Caring for Mom Living Independently There are many services to help your parent stay at home including such things as in-home or senior concierge services for things like grocery shopping or housekeeping, adult day care, advocacy groups, senior information services, food and nutrition services, transportation, mental health resources, home rehabilitation services, senior centers, support groups, and home health care agencies. You can find many of these services in your yellow pages or through your local Area Agency on Aging office. For example, I had an occupational therapist come to the house and make accommodation and safety suggestions. As a result of this visit, I purchased a Life Line for my Mom so she could summon immediate emergency help by pressing a button on a pendant. This gave us both great peace of mind. After analyzing your parent’s need for help and financial resources, you may decide to hire staff to work in the home on a regular basis. Bell and Troxel have an excellent chapter entitled “Finding Help,” which describes some of the things to take into consideration if you are going to use this option (224-232). From my own perspective, advantages of this option are that there will be no need to move your parent to another location or to disrupt their routine. Some disadvantages are that you will need to make physical accommodations to the home to enable your parent to move around safely. You will also need to determine how to provide staffing – through a home health care service or by becoming your own personnel director and hiring staff yourself which brings its own set of issues including interviewing, hiring, bonding, insuring training, supervising, evaluating, firing, paying, etc. Finally, as your parent becomes housebound the possibility of loneliness, depression, and lack of mental and physical stimulation increase. 12 Caring for Mom Living Independently Another option is to move your parent in with your family or with relatives. Historically, many cultures see this as the preferred way of taking care of the elderly. It has the advantages of providing a number of people to care for and interact with your parent, and it can potentially cost less than other options. Obvious disadvantages include the potential for added stress upon yourself and the family as all adapt to a new member who has many needs. No matter where your parent lives, it is important that you know when there is an emergency and it is vital that you can quickly gain access to her. I call Mom or see her daily to visit and to assess how things are going. Experts in elder abuse suggest that you set up a code phrase that your parent could use in the event that something is wrong and she cannot talk in front of a staff member, salesman, etc. With regard to access, when Mom was living independently, I carried copies of her house and car keys on my key ring, and I kept a plastic access card to her mobile home park gate in my wallet. I had an extra electronic garage door opener in my car. In this section you will find the following check sheets that I created while Mom was living independently to help her shop for clothing and food, keep up the house, and pack for our girls’ overnight trips to San Francisco. a. Clothing & Size Information b. Gardener Information c. Grocery List d. House Information e. Media and Communications Information f. Travel List 13 Caring for Mom Living Independently Clothing & Size Information Revised Date:______________ Item Brand Size Store Item # Description Notes Example: St. John’s Bay 4-10 Penney’s 00873 Cotton blend White Socks 14 Caring for Mom Living Independently Gardener Information Name: ____________________________________________________ Address: ____________________________________________________ ____________________________________________________ Home Phone: _______________________ Cell: ______________________ Day of Week Gardener Works: ________________ Payment Amount: ______________ Payment Due Date(s): ____________ Gardener’s List of Weekly Chores Example 1. 2. 3. 4. 5. 6. 7. Dig up weeds in gravel on side of driveway Do the same on the other side of the house in the gravel along the porch Edge along sidewalk – back and porch side Mow lawn and clean up clippings Dig up weeds in nasturtium bed Take all weeds to garbage dumpster Sweep or blow walks and driveway 15 Caring for Mom Living Independently I helped Mom make a grocery list in preparation for our weekly shopping. I used the following customized grocery list so that I could look back and see when we last purchased something. (When my partner Lyn’s mother passed, we found 42 rolls of toilet paper in her garage. It seems she liked to walk to the store, but didn’t want to carry too much weight.) I grouped items by types; however, you could also organize them by aisle numbers in the store. Most stores have a store directory which lists items alphabetically and notes the aisle. Grocery List Revised Date:____________ .... .... .... .... .... .... Date Shopped Baked Goods Coffee Cake Bread Brownie mix Chips Cookies English muffins Baking supplies Flour Sugar Dairy Butter Cheese, cheddar Cheese, cottage Eggs Ice cream Milk 16 .... .... Caring for Mom Living Independently Yogurt General merchandise Paper towels Laundry Detergent Tissue Toilet paper Groceries Applesauce Coffee Pickles Soups Tea Liquor Beer Wine Meat Bologna Chicken Flank steak Ham Hamburger Liverwurst Pork Salami Salmon Steak Produce Apples Asparagus 17 Caring for Mom Living Independently Bananas Blueberries Broccoli Cabbage Carrots Celery Cucumber Grapes Green onions Lettuce Onions Potatoes, sweet Potatoes, white Radishes Spinach Squash Strawberries Tomatoes Refrigerated/frozen Frozen dinners Ice cream Pot pies Sodas Diet Soda Personal items 18 Caring for Mom Living Independently House Information Address:_________________________________________________________ Approximate Value:_________ Date: ________Appraiser:_________________ Appliance Manuals’ Locations:________________________________________ Homeowner’s Association Name:________________________ Address:______________________ Phone:________________________ Account #:____________________ Monthly Dues:__________________ Date Due:_____________________ Insurance (homeowner’s for fire, etc.) Company: _______________________ Address: _____________________ Phone:__________________________ Policy #: ______________________ Date of Policy:________ Cost:____________ Insured Value: __________________ Date Due: _______________ Amount of Deductible:__________ Riders (for jewelry, etc.):____________ Cost for Riders:________________ Specialized House Insurance (for earthquakes, etc.) Company: _______________________ Address: ______________________ Phone:__________________________ Policy #: ______________________ Date of Policy:________ Cost:____________ Insured Value: __________________ Date Due: _______________ Amount of Deductible:__________ Landlord Name:________________________ Address:______________________ Phone:________________________ Account #:____________________ 19 Caring for Mom Living Independently Monthly Rent:__________________ Date Due:_____________________ Mortgage Mortgage Company:_____________ Address:______________________ ______________________________ Phone:________________________ Account #:____________Date Started: ________Date Ends:___________ Principle Left:______________ Monthly Payment: ___________________ Monthly Payment Due Date: ______Annual Interest Paid:_____________ Neighbor Contact Information Name--------------------- Address--------------------------------------- Phone--- Cell------ Real Estate Taxes -- Parcel #:__________________________________________ Appraised Value _______Bi-annual Cost _______Dates Due:____________ Security Key(s): _____________________________ Location:__________________ Security Company: ____________________ Security Code:______________ Address:_________________________________________________ Phone:________________________ Account #:________________ Cost:__________________________ Date Due:_________________ 20 Caring for Mom Living Independently Upkeep Carpet Cleaning Date: ____________Company:______________________________ Address:________________________________________________ Phone:_________________________________________________ Electrician Name:____________________ Phone:__________________ Address:________________________________________________ Gardener (See Gardener List of Chores Sample Checklist) Name:_________________________ Phone:___________________ Address:_______________________ Schedule:_________________ Cost:__________________________ Due:_____________________ Handy Person Name: _________________ Phone:__________________ Address:________________________________________________ House Cleaner Name:_________________ Phone:__________________ Address:________________________________________________ Schedule:_______________________ Cost: ______Due:_________ Paint Exterior Last Painted:___________ Paint Brand:______________ Type: ________Color Name: ______Trim Color Name:___________ Cost:____________________ Company:_____________________ Phone:__________________ Address:______________________ 21 Caring for Mom Living Independently Paint Interior Last Painted:____________ Paint Brand:_______________ Type: ________Color Name:______ Trim Color Name:___________ Cost:____________________ Company:_____________________ Phone:__________________ Address:______________________ Plumber Name:_______________ Phone:_______________________ Address:________________________________________________ Roof Date Installed:_____________ Company:_____________________ Address:__________________ Phone:________________________ Window Washer Name: __________ Phone:________________________ Address:________________________________________________ Other: Utilities Electric Name:____________________ Account #:_____________________ Phone:____________________ Address:_______________________ Monthly Cost:______________ Due Date:______________________ Garbage Name:____________________ Account #:_____________________ Phone:____________________ Address:_______________________ Monthly Cost:______________ Due Date:______________________ Collection Day/Time________________________________________ 22 Caring for Mom Living Independently Gas Name:____________________ Account #:_____________________ Phone:____________________ Address:_______________________ Monthly Cost:______________ Due Date:______________________ Telephone, TV Cable, etc. (See Media & Communications Checklist) Name:____________________ Account #:_____________________ Phone:____________________ Address:_______________________ Monthly Cost:______________ Due Date:______________________ Water/Sewer Name:____________________ Account #:_____________________ Phone:____________________ Address:_______________________ Monthly Cost:______________ Due Date:______________________ 23 Caring for Mom Living Independently Media & Communications Information Cable/Satellite TV Company:__________________________________________ Address:_______________________ Phone:_______________________ Account #:___________ Cost:___________ Date Due:_______________ Cell Phone Company:_______________________________________________ Address: ______________________Phone:_______________________ Account #:___________ Cost:___________ Date Due:_______________ Cell Phone Security Code:______________________________________ Computer Security Code:____________________________________________ DSL Line (for internet access) Company:________________________________ Address:_______________________ Phone:_______________________ Account #:___________ Cost:___________ Date Due:_______________ Email Address:_______________________ Security Code:__________________ Newspaper:_______________________________________________________ Address:_____________________________________________________ Phone:_________________________ Approx Delivery Time:___________ Account #:____________Cost: __________Date Due:________________ Subscriptions (magazines or on-line) Name---------------- Address-------------------------- Account----- Cost -- Due----- 24 Caring for Mom Living Independently Travel List Revised Date:_________________ Sheehy has some good information on traveling with elders with disabilities (164166.) My Mom and I went on an annual mother/daughter trip to San Francisco where we would shop, have a chocolate ice cream soda, go out to a gourmet restaurant for wine and dinner and laugh ourselves silly. This is the travel list which she used. You might want to customize it. Item Date. . . Date. . . Date. . . Date. . . Date. . . Date. . . . . . . . . Personal Items Body lotion Cane Case for hearing aids Deodorant Extra hearing aid batteries Medications Prescriptions Shampoo Soap Sunglasses & case Sunscreen Tissues Toothbrush Toothpaste Clothing Hat with brim Heavy jacket Light weight jacket Long pants Long sleeved shirts Pajamas Shorts Short sleeve shirts Socks Sweater 25 Caring for Mom Living Independently Underwear Miscellaneous Book Magazine Money Wallet with cards 26 Caring for Mom Leaving the Family Home Leaving the Family Home By age eighty-seven, Mom was beginning to feel lonely in the house by herself. I realized that she was not eating correctly, and that food preparation was becoming more difficult for her. She could no longer garden or keep up with many of the tasks associated with owning a home. I broached the idea of moving to a senior independent living facility where meals, laundry services and housekeeping were provided, but she was not interested. So, knowing how difficult change is for all of us, I waited for the opportune time and suggested we go to visit Sylvia, Mom’s friend who had just moved to such a facility. We had lunch there, and Sylvia gave Mom the grand tour, to no avail. But, before long, Mom decided that she wasn’t going to be able to handle being on her own forever, and as she said, “I’d best get on with it, since I’m not getting any younger.” Our first project was to decide what to keep and eventually move into her one bedroom apartment in a senior residential facility and what to dispose of. That began an emotional time for me. I had no inkling of the attachment I had to still having a family home to go to and to the “things” that filled it, but Mom seemed to be ready for the next stage of her life. She moved into the senior residential facility and within two months was calling it home, praising the food and enjoying the activities. I was so grateful for her flexibility and openness to new things. I took a lesson from her about accepting change and aging gracefully. My friend Beverley told me the story of how she and her three brothers and sisters helped her mother dispose of their parents’ furnishings and heirlooms. Beverley took a picture of each piece, listened to Mom’s story of its history, and wrote up the story, putting it together with the 27 Caring for Mom Leaving the Family Home picture. Her Mom sent the set of pictures to each child and asked them to write her which pieces they wanted. Mom then made her decisions and wrote each child a letter telling him or her what she was giving to them. It worked perfectly, except that when they all arrived at the home to pack it up, they had missed the secret closet that held all the silver, and had to resort to the short straw method to empty it. I developed and used the charts below to help us collect things to move, dispose of furnishings, rent Mom’s mobile home for a time, and eventually sell it. a. Furnishings for One Bedroom Apartment in Senior Living Facility b. Disposal of Furnishings and Appliances c. Renting the House d. Sale of the House 28 Caring for Mom Leaving the Family Home Furnishings for One Bedroom Apartment (Linens and telephone provided) Room Bedroom Item Notes ……………. Bed Pillow Blankets Night stand Flashlight for night stand Night light Lamp for night stand Alarm clock Small dresser Small desk (use 1 dining room chair) Office supplies Bulletin board over desk Wall calendar on bulletin board Telephone book Computer Printer Small file cabinet Framed pictures for throughout house Bath Room Toiletries Scale Drugs First aid supplies Bathtub rubber mat Living Room Comfortable chair or love seat Guest chair Floor lamp Small end table Lamp for end table Wall clock Plants Dining Room Small round table with fold down leaves 3 small scale dining chairs (use one for desk) Placemats or table cloth 29 Caring for Mom Leaving the Family Home Kitchen Small microwave Toaster oven Coffee or tea pot Pot holders Cooking utensils Eating utensils Can opener Dishware Glasses Food storage containers Paper products Dish towel Sponge Dish soap Paper towel holder Small tool kit 30 Caring for Mom Leaving the Family Home Disposal of Furnishings and Appliances A favorite family story is the time my grandparents’ six adult children arrived on a wintry New Jersey Saturday morning to help with their parents’ sorting and packing process. Various items were given to each over the day. Upon leaving, my uncle Ed went to put on his overcoat, only to find that his brother Walt had left a half an hour ago with it over his arm, thinking it was surplus. Listed below are the various ways of disposing of furnishings and appliances. If there is an accumulation of many years of things and several siblings, you might want to make a chart listing the furnishings and appliances in alphabetical order with a code next to each which indicates how it is to be disposed of. (See the sample chart at the end of this page.) Disposal Possibilities: Classified Ad o Who is going to input the item?________________________________________ o Asking Price:_________________________ o Final Price:______________________ Donation to Nonprofit organization o Name:___________________________ o Date & Time of Collection:___________ o Description of Items and Values (for tax deductions, see latest regulations): Dumpster (Note what items they will not take) o Dumpster Rental Company:______________________ Phone:________________________ o Cost:___________ Delivery Date:________________ o Pick up Date:____________ Estate Appraiser who will give you a price to take it all o Name:____________________________ Phone:_________________________ 31 Caring for Mom Leaving the Family Home o Final Price:_________________________ Give away to family and friends (list item and name of recipient) On-line sites such as Craig’s List o Who is going to input the item?________________________________________ o Asking Price:_________________________ o Final Price:______________________ Sample Disposal Chart G=Good Will CL=Craig’s List Item Disposal Value/Price Clothing and Shoes G $200 Refrigerator—GE, 3 years old C L $450 32 Caring for Mom Leaving the Family Home Renting the House My Mom moved from her mobile home into a senior independent living facility. We decided to rent the mobile home for a minimum of a year, using the proceeds to defray the cost of the facility. This gave her some flexibility if she didn’t like senior living, and it gave the real estate market time to increase the value of the home. I rented the home myself, but you might decide to use a management company. Steps in renting it yourself: Determining if you may rent the home: Many senior mobile home parks and condominiums have rules which do not allow you to rent your home. Be sure to check before proceeding.. Preparing the Home Painting Touch Up Cleaning Carpets General House Windows Making Decisions Rental Price Pets Smoking Appliances included? 33 Caring for Mom Leaving the Family Home Advertising Classifieds Fliers On-Line Signs in the windows Choosing a Tenant Application References Lease Who does gardening Who does watering Who pays what utilities Bookkeeping I keep a simple annual chart of income and one of expenses by hand on an accounting ledger. You may choose to set up a Microsoft Office Excel spreadsheet. You will need to total all the columns at the end of the calendar year and bring the records to your tax preparer. My chart looks like the one on the next page. 34 Caring for Mom Leaving the Family Home Rental Ledger Company or Item……….. Elect. Gas Water Sewer Space Gardener Repair & Fire Rent 35 Upkeep Quake Taxes Misc Insur Insur Caring for Mom Leaving the Family Home Sale of the House Selling the house is fairly straightforward once you have chosen a realtor who will guide you through the process. Below are some items to keep track of as you list the house and negotiate the final selling price. Realtor Name:_______________________ Company:_______________________ Phone: ______________________Commission %:____________________ Dates of Contract:______________________ Asking Price:______________ Lowest Acceptable Price:__________________ Escrow Company:____________________ Escrow Account #:_________________ Escrow Officer:_________________________ Phone:__________________ Attorney (if applicable):________________________ Phone:_________________ Date and Time of Appointment:____________________________________ Mover:__________________________________ Phone:____________________ Estimate:_________ Payment Method:_____________ Date:___________ Arrival Date & Time:_____________ Delivery Date & Time:_____________ Appraiser:___________________ Phone:___________ Date will arrive:________ Time:________________ Appraised Value:__________________________ Inspector:_________________ Phone:___________ Date will arrive:___________ Time:________________ Notes:___________________________________ Repair Contractor: ______________________________Phone:_______________ 36 Caring for Mom Leaving the Family Home Date will arrive:_____________ Time:__________ Notes:________________________________________________________ _____________________________________________________________ 37 Caring for Mom Address Changes Choosing a Senior facility Moving from her mobile home to a senior independent living facility was easy since Mom moved to the one that her friend Sylvia had chosen. However, during the time she was there, I decided to do some initial investigation of residential care assisted living and skilled nursing facilities on my own. I thought, correctly as it turned out, that pre-planning for the next stage when not under emotional and time constraints would pay off in a better decision and much less stress when the time came to move again. Each kind of facility provides an array of services. Here are some of the kinds of facilities you might encounter: 1. Senior independent living is living totally independently in an apartment, mobile home or home in a senior community. 2. An independent living facility is an apartment in a senior facility with such things as transportation, meals, housekeeping and recreational activities included. 3. A large residential care assisted living facility is similar with the addition of 24 hour staff and potential assistance with daily activities such as eating, showering or dressing. Some assisted living facilities have special units for residents with dementia, providing special security and services. 4. A small residential care home is an actual house in a neighborhood where a small number of residents are provided the same kinds of services as in a large assisted living facility with 24-hour staff. 38 Caring for Mom Address Changes 5. A skilled nursing facility provides 24-hour skilled nursing care. l learned that Medicare and insurance do not cover all of these living options, so be sure to review your parent’s coverage before making a decision. I also learned from my attorney that when you are signing contracts and paperwork, the facilities will want you to sign an agreement to use an arbitrator in event of a disagreement. She says you do not have to agree to this, and she advises that you not limit your options by doing so. I developed the following check lists in this section and used them as I visited facilities. I’d suggest you do the same and see how impressed the administrators will be when you arrive ready to ask all the right questions. In this section you will find the following: a. Initial Visit Checklist b. Comparing Care Facilities – Follow-up Visits c. Summary Comparison Chart for Care Facilities Looking in the yellow pages, I found that there are local residential care facility “brokers” who will meet with you, determine your needs, and take you to appropriate facilities and homes. I also found web sites such as www.discoverassistedliving.com that list and rate facilities. And, of course, there is help from the traditional research sources including books and magazines such as the article by Avery Comarow in U.S. News & World Report that ranks nursing homes in America (72-82). 39 Caring for Mom Address Changes After I had visited many facilities, I asked Mom if she would like to go with me to some. She turned me down, but we talked about the pros and cons of a large assisted living facility vs. a smaller residential care facility, and she voiced a preference, in the event that we needed one. As it turned out, a year later, mother was suddenly hospitalized, went into full-blown dementia, and we had to quickly find a place to move her. The emotional chaos was unbelievable, and I was so grateful I had done my homework. (She subsequently regained her faculties and abilities, and says she is content with life in her new senior residential care home.) 40 Caring for Mom Address Changes Choosing a Senior Facility Initial Visit Checklist Agency Name: _______________________________________ Phone:__________________ Address: ___________________________________________________________________ __ Contact Person:___________________________ Managing Company:___________________ Date:_____________________ Types of facilities/units available & Number of Rooms in each: Type of Facility # Rooms or beds Cost . . . . . . . . Independent Living Large Assisted Living Memory Care Unit Small Assisted Living Home Skilled Nursing Services included in room costs: Cost for additional services: Move-in deposit: Rate increases over the past 5 years: Waiting list: Do they take long term care insurance? Medicare? 41 Caring for Mom Address Changes Staffing Staff # Day # Night Doctor Registered Nurse Geriatric Nurse Practitioner Licensed Vocational Nurse Medical Assistant Caregiver Dietician Physical Therapist Podiatrist Beautician Social Worker Dentist Audiologist Activity Director Ombudsman Licensed staff/patient ratio day: night: Do they have a training and continuing education program for all staff? Do they do background checks and random drug tests? 42 Caring for Mom Address Changes Do the staff wear nametags? Amount of staff turnover per year: Resident’s Room Size: Amenities: Private bathroom? Do windows open? Layout and size appropriate for wheel chair: Facility Temperature is comfortable: Good lighting: Noise level: Cleanliness of facility: Special features (pool, patio, etc.) Outdoor spaces: Age of facility: # times bought out in recent past: Residents Cleanliness and grooming of residents: Residents are engaged: Staff know their names: Services Daily activity programs: 43 Caring for Mom Address Changes Special programs/activities: Housekeeping services: Laundry services: Pets allowed? How manage meds? How does resident get help in an emergency? Call button, pendant etc? Transportation to doctors, etc.: Wheel chair transfer help? What is typical emergency (ambulance/EMT) response time? Is hospice an option? Dementia Care? Bedridden resident care? Food Food menus: Choice of food? Snacks available? Guests allowed to dine? Emergency Plan Bulletin board with license, evacuation plan, surveys, rights of residents, etc.: Ombudsman: Earthquake, fire plan? 44 Caring for Mom Address Changes For special units How keep residents secure? Policy on restraints: Notes: 45 Caring for Mom Address Changes Choosing a Senior Facility Comparing Care Facilities – Follow-up Visits 1. Results of talk with residents – what do they like and not like about the place with regard to: Staff – o Respectful? Patient? Helpful? Kind? Competent? Gentle? o Same with night staff? Does it feel like home? Food Activities What would you change about the place? 2. Results of talk with staff How do they like working here? Amount of turn-over 3. Results of talk with Administrators Ask to review licensing and certification reports Ask how the facility did on state surveys and/or Area Agency on Aging surveys Ask if any liens or lawsuits have been filed? (County court records will tell you if there have been any lawsuits against the center or the staff that has worked there.) 4. Results from unannounced additional visits 46 Caring for Mom Address Changes 5. Research on complaints and lawsuits Check with local Area Agency on Aging & their long-term ombudsmen’s office Better Business Bureau website will list complaints and issues that people have had with the center in the past Check State Health Dept. reports Choosing a Senior Facility Summary Comparison Chart for Care Facilities (You can give letter grades, use pluses and minuses, or make up system that works for you.) Criteria Facility A Room Cost Deposit Cost for additional services Overall feeling of Facility Room size Private bathroom Outdoor spaces Size of facility Medical staff availability Staffing ratios 47 Facility B Facility C Facility D Facility E Caring for Mom Address Changes Variety of Staffing Types (LVN, RN, etc.) Likeability of Staff Other Other Notes: 48 Caring for Mom Address Changes Address Changes It seems that every couple of years, Mom is moving. After the first move I decided to use the advantages of a computer to set up a system that would make future address changes simpler. To that end, I created an address label file comprised of the addresses for all of the contacts that needed to know about her new address (companies, service providers, organizations, magazines, etc.). I customized the letter found in this section entitled “Change of Address: Sample Letter” which gives her old and new address and phone numbers. Then I mailed a letter to each contact in an envelope with the appropriate address label affixed. In order to track the letters I sent, I filled in the “Change of Address Master List” which would come in handy for the next round of address changes. As time progressed, I took over paying bills and filing. I customized the letter found in this section entitled “Change of Address to Caregiver’s Address: Sample Letter” which explains that I, as a co-trustee, will take over paying bills and gives my address for billing purposes. Thanks to my trusty address label file, I could print out address labels once again with no fuss. I reused the master list to figure out what contacts needed the letter, to track that I had sent them a letter, and to track the address changes. I found that in some cases I needed to send a second letter. Finally, I made a label file for all of the relatives and friends in Mom’s old address book. These came in handy for sending Christmas cards and letters updating people on Mom’s address changes. I also used the labels to create a “rolodex” address file for Mom’s use which was much more legible and flexible than her old address book. 49 Caring for Mom Address Changes In this section you will find the following: a. Change of Address: Sample letter b. Change of Address to Caregiver’s Address: Sample letter c. Change of Address Master List d. Making Address Labels: Directions for Word 50 Caring for Mom Address Changes Change of Address: Sample Letter Date : __________________________ Regarding my account:_______________________________ As of the above date, my address has been changed. My previous address was: Street Address: ______________________________________________ City, State, Zip: ______________________________________________ Phone: ______________________________________________ My new address is: Street Address: ______________________________________________ City, State, Zip: ______________________________________________ Phone: ______________________________________________ Please send all materials to the new address. Thank you for your assistance in this matter. Sincerely, 51 Caring for Mom Address Changes Change of Address to Caregiver’s Address: Sample Letter Date:___________________________ Regarding my account:___________________________________ My daughter, __________________________________, who is a co-trustee, will take over paying my bills effective the date above. To that end, please send any invoices, statements or correspondence to the following address: Name of Parent: ______________________________________________________ C/O Name of Daughter: ______________________________________________________ Street Address: ______________________________________________________ City, State, Zip: ______________________________________________________ Daughter’s Phone: ______________________________________________________ I can be reached in person and will continue living at the following address: Street Address: ______________________________________________________ City, State, Zip:_____________________________ Phone: _________________ Thank you for your assistance in this matter. Sincerely, 52 Caring for Mom Address Changes Change of Address Master List Date Change d Company…… Address……………… . … 53 Phone….. Name of . Contact……… … Accoun t #.......... Caring for Mom Address Changes Making Address Labels: Directions in Microsoft Office Word Sheets of blank address labels that you can purchase at a stationary store are very handy to use to create a physical address book, a rolodex, labels for letters sent to notify people of address changes, etc. Once you have typed the names and addresses into your computer once, you can copy them to a customized sheet of address labels and print them out as often as you want. Your software program should have a program for making address labels. Below are the directions for making address labels in Microsoft Office Word 2007: In Word choose “Mailings” Then choose “Labels” Then choose “Options” Then choose the numbered set that goes with the labels you bought {For Example: Office Depot 612-271 Inkjet Shipping which are 2”x4” labels} Then choose “OK” Then choose “New Document” 54 Caring for Mom Living in a Senior Facility Living in a Senior Facility Once Mom started living in an independent senior facility I found that I needed to be sure that the staff knew how to contact me in an emergency. To that end, whenever I was going to leave town, I provided them with a form that contained my trip itinerary, contact information for me, and contact information for several local people who agreed to be available for non-emergency issues. I provided them with a chart of permanent emergency contacts such as family members and close friends. I also gave them information regarding death arrangements if I were unable to be reached. (See the form “Death Arrangements Notice to Care Facility” found in the chapter entitled, “Preparing for the Inevitable.”) When Mom moved into a residential care facility where she would get care around the clock, she had just gotten out of the hospital and was quite anxious and confused. I thought that having a written daily schedule of typical activities might help her orient to her new life. It was helpful, and I’ve included it in this section along with a form that I use to communicate with the staff. Finally, I found the residential care home wanted a list of approved visitors with notes on who was approved to take Mom from the facility, so I made a chart for that. In this section you will find the following: a. Visitor List for Resident in a Senior Facility b. Daily Schedule Sample 55 Caring for Mom Living in a Senior Facility c. Emergency Contact Information d. Notes to Staff (Generic Form) e. Trip Itinerary for Caregiver and Emergency Contact Information 56 Caring for Mom Living in a Senior Facility Visitor List for Resident of a Senior Facility For Name:_____________________________ Room________ Revised Date:_______________ (Asterisked Names May Take Resident from the Facility) Family: Name:_____________________________ Relationship:____________________ Name:_____________________________ Relationship:____________________ Name:_____________________________ Relationship:____________________ Name:_____________________________ Relationship:____________________ Name:_____________________________ Relationship:____________________ Friends: Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Name:_____________________________ Signed: ____________________________ 57 Date:______________________ Caring for Mom Living in a Senior Facility Daily Schedule: Sample The first weeks of living in a new senior residential facility can be confusing and anxiety producing. Having a personal daily schedule posted on a white board in the room can be a comfort. Here is the daily schedule I created for my Mom who is in a residential care facility. Resident’s Individual Schedule Revised Date:_____________ Wake Up Shower Dress Eat Breakfast Read Newspaper Exercise “Class” – Staff helps with exercises given by Physical Therapist Morning Activities – Help with chores such as folding laundry, drying breakfast silverware, pots & pans, folding bibs and lunch napkins, etc. Play a game (dominoes, etc.) Knit 12:00 Lunch Nap Walk Outside (in walker with help of staff) Afternoon Activities Snack Play a game 58 Caring for Mom Living in a Senior Facility Read a novel on the patio Puzzles Crafts Other 5:00 Supper 6:30 TV News 7:00 TV Jeopardy (Channel 7) 7:30 TV Wheel of Fortune (Channel 7) 8:00 Listen to music or read a book 9:00 Bed 59 Caring for Mom Living in a Senior Facility Emergency Contact Information For Name:__________________________________ Room:__________________ Date:_____________________ 1. Relationship:____________________ Name:_______________________ Home Phone:____________________ Cell Phone:____________________ Address:______________________________________________________ 2. Relationship:____________________ Name:_______________________ Home Phone:____________________ Cell Phone:____________________ 3. Relationship:____________________ Name:_______________________ Home Phone:____________________ Cell Phone:____________________ Address:______________________________________________________ 4. Relationship:____________________ Name:_______________________ Home Phone:____________________ Cell Phone:____________________ Address:______________________________________________________ 5. Relationship:____________________ Name:_______________________ Home Phone:____________________ Cell Phone:____________________ Address:______________________________________________________ 6. Relationship:____________________ Name:_______________________ Home Phone:____________________ Cell Phone:____________________ Address:______________________________________________________ 60 Caring for Mom Living in a Senior Facility Notes to Staff Because there are three shifts of staff in a 24-hour staffed facility, I find communication difficult. Using the form below seems to work best since it can be passed from one shift to another. Date:____________________________ Notes to Staff Regarding Name:________________________ Room:___________ From: Name:_________________________ Relationship:___________________ Note: 61 Caring for Mom Living in a Senior Facility When I am going to be out of town, I leave the form below with staff. I explain that the local contact is a friend who is willing to help with non-emergency issues. My mother gets anxious when I’m not in town, so I give her a copy of the form and make sure I call her daily. It’s nice to be needed, but I know there are times when we need to recharge our batteries and get some perspective. I try to give myself permission to do so without guilt, but, as you know, it’s not as easy as it seems. Trip Itinerary and Emergency Contact Information For Name:____________________________________ Room:________________ Date:____________________________ I will be going on a trip from ________________ to _________________________ During that time I can be reached at Phone:_______________________________ Please use the following as local contact person(s) during this time: Name:___________________________ Relationship:_______________________ Home Phone:_____________________ Cell Phone:________________________ Name:___________________________ Relationship:_______________________ Home Phone:_____________________ Cell Phone:________________________ Also, please note there is a complete list of emergency contacts on file. Thank you. Signed:_______________________________ Date:________________________ 62 Caring for Mom Doctors and Other Service Providers Doctors and Other Service Providers As various medical conditions occurred with Mom, I found the need to identify doctors and hospitals, to choose between treatments and to be an advocate for Mom. My work would’ve been less traumatic had I known then to contact www.healthcareadvocates.com for help in finding the best doctors and treatments. (Sheehy 124) I’ve also since found a good chapter entitled “Managing Medical Care” in Loverde’s book The Complete Eldercare Planner which includes good information about what to do if your parent refuses medical help. I recently learned that a local doctor offers “concierge service” which is a fee-based service including house calls and access to the doctor’s cell phone for 24/7 emergency contact. This is expensive, since Medicare and insurance do not pay for the concierge fee, although they do pay their normal rate for any doctor visits or other services. If you are often out of town or living a distance away, it may be worth the expense to know that a doctor will be on-call at all times for emergencies. As I took over setting up appointments and driving Mom to wherever she needed to go, I set up a master appointment schedule listing the name of each service provider, his or her address, when the last appointment was, and when the next one is. I’ve found this invaluable as I keep track of monthly, bimonthly, quarterly, semi-annual, and annual appointments for doctors and various others. I also wrote the appointments on Mom’s calendar for her use and integrated the same on my personal calendar. At the end of the year rather than throw her previous year’s calendar away, 63 Caring for Mom Doctors and Other Service Providers I found it helpful to file it in case I needed to look up something that happened the previous year that I neglected to write down on the master appointment schedule form. I created a doctor’s visit form which listed all the issues to talk about with the doctor. This kept us from forgetting things that needed to be discussed and saved the doctor time, since we were organized and efficient. (Caring for Your Parents has an excellent list of prompts for creating questions for the doctor’s visit on page 36.) I also used the form to take notes on our visit. I gave Mom a copy after each visit and she used these notes to remind herself of what the doctor had said. I also carry in my purse a small notebook in which I note daily changes in Mom’s mental or physical health, reminders to myself about things I need to do in the next several days for her, etc. I consult this when I am preparing for a doctor’s visit with Mom to remind myself of things to discuss. I found that I needed to learn about Medicare, help Mom choose a Medicare Part D drug provider and keep track of medical expenses being paid by Medicare or her supplemental insurance company. [I’ve since learned that Caring for Your Parents has an easy to understand chapter on Medicare entitled, “The Medicare Maze.” (109-123)] I’ve created a form to use in keeping track of medical expenses and insurance payments. It has also come in handy when I need to put Mom’s medical expenses together for income tax purposes. When you go to the doctor for the first time, be sure the doctor has a copy of the following (See the section “The Attorney and Legal ‘Stuff’”): 64 Caring for Mom 1. Doctors and Other Service Providers Durable Power of Attorney for Management of Property and Personal Affairs (which sets up the provisions allowing you to manage your parent's property and personal affairs) 2. Advanced Health Care Directive (which states the end-of life wishes of your parent and allows you and whoever else is named to make health care decisions) Any other more specific forms which state end-of-life wishes. 3. Authorization for Use and Disclosure of Protected Health Information (which authorizes the release of health information and medical records to you and whomever else is named) Finally, you can access a form to keep track of your family member’s personal health record at www.nextstepincare.org/left_top_menu/caregiver_home/ In this section you will find the following: a. Master Appointment Schedule for Service Providers b. Notes from Doctor’s Visit c. Medical Expenses and Insurance Payments 65 Caring for Mom Doctors and Other Service Providers Master Appointment Schedule for Service Providers Revised:________________ Name…………. Type Phone....... Address................... Last Next Appt. Appt. Attorney Audiologist Barber/ Beautician Chiropractor Dentist Dermatologist Occupational Therapist Ophthalmologist Optometrist Orthopedist Pet’s groomer Pet’s Veterinary Doctor Pet’s Walker Pharmacist 66 Caring for Mom Doctors and Other Service Providers Physical Therapist Podiatrist Primary Doctor 67 Caring for Mom Doctors and Other Service Providers Notes from Doctor’s Visit Date of Visit:____________________________ Doctor’s Name:_________________________ Issues to talk about with the doctor: 1.____________________________________________________________ 2.____________________________________________________________ 3.____________________________________________________________ 4.____________________________________________________________ 5.____________________________________________________________ 6.____________________________________________________________ Height:_________________ Weight:_______________________ Blood Pressure:___________________ Temperature:_______________________ Notes: 68 Caring for Mom Doctors and Other Service Providers Medical Expenses and Insurance Payments Date… Provider……. Service……………… Copay Date Medicare Date Insurance Date Patient Date Amount Paid Payment Paid… Payment Paid… Balance Paid… 69 Caring for Mom Medications and Assistive Devices Medications and Assistive Devices While Mom was still living independently, she was able to keep track of her own vitamins and medications. However, when I eventually found that she was missing some medications and doubling up on others, I began setting up her vitamins and medications in plastic boxes that I got from the drug store which had a section for each day of the week. This meant she just had to remember once a day to empty that day’s section of pills. This worked for quite a while, but became quite frustrating when the doctor gave me a sample of a daily patch to improve Mom’s memory. I spent 45 minutes explaining a system that she could use to meet the directive that a patch could not be placed in the same spot within 14 days. In frustration, she finally sent me home saying she would figure it out herself. When I arrived home the phone was ringing. It was my Mom asking what the patches were for. When I told her, “When you stop asking me that question, I’ll know they are working,” she had a good laugh. I not only had to set up the medications, but I also had to remember to order the prescriptions from a mail order company. I developed a prescriptions ordering tracker to help me with this task. I added a section on it for over-the-counter vitamins and minerals that she took as well. Now I knew when to order or purchase everything, and I also had a list to take to the doctor’s visits and hospital, since they inevitably wanted to know everything Mom was taking. 70 Caring for Mom Medications and Assistive Devices Since this tracker had everything in one place, it allowed the doctor to review it and make sure that there were no drugs which would interfere with others. To that same end, I asked the doctor for suggestions for over-the-counter medicines for the various everyday ailments that Mom got sporadically. (To my dismay, I found out that the aspirin that she had been taking for aches interfered with a prescription arthritis medication that she took daily.) I made a chart listing each symptom and appropriate treatments. Later, this was very helpful to the staff at the residential care facility. Assistive devices are everything from canes and walkers to raised toilet seats. It’s a good idea to try out different types before making a purchasing decision. I was able to borrow a walker and raised toilet seat for up to six months from my local chapter of the Easter Seal Society. You might ask around for similar organizations in your community. If you can’t borrow an item, you might consider renting it from a medical supply store. When it came time to return the items, I went on a hunt of our downtown thrift stores to purchase “gently used” items that I had borrowed or rented. I created a chart to keep track of borrowed and rented items. In this section you will find the following: a. Over the Counter Medicines for Various Symptoms b. Prescriptions Ordering Tracker c. Request to Doctor for Prescription Renewal d. Over the Counter Medications and Vitamins Tracker e. Assistive Devices Tracker 71 Caring for Mom Medications and Assistive Devices Over the Counter Medicines for Various Symptoms Instructions from Doctor: ________________________ Date:_________________ Symptoms and appropriate treatments Constipation: Cough, Nasal Stuffiness and/or Chest Congestion: Diarrhea and/or Nausea: Fever: Hay Fever/Allergy: Sore muscles: Sore throat: See the Doctor if you have any of the following: 72 Caring for Mom Medications and Assistive Devices Prescriptions Ordering Tracker Prescriptions Dose Dose Dose Drug Name. . . . AM PM EVE . . . Use. . . . . . .. # pills In bottle # Refill RX #. . . . refills after . . Company or Drug Store Information: Name:_________________________ Address:_________________________________ Phone:_____________________ Name:_________________________ Address:_________________________________ Phone:_____________________ 73 Company Phone………. Or Drug Store Caring for Mom Medications and Assistive Devices Name:_________________________ Address:_________________________________ Phone:_____________________ Name:_________________________ Address:_________________________________ Phone:_____________________ Patient Reorder Information: Birth Date:__________________ Credit Card Number :___________________________ Expiration Date:_____________ Prescription Insurance ID Number:________________________________________ 74 Caring for Mom Medications and Assistive Devices Request to Doctor for Prescription Renewal Date: ______________________ To: Dr._____________________________________ From: _______________________________________ Subject: Renewal of Prescription for (Name of Patient):___________________ Please renew a prescription for (Name of Medication):_____________________ You can fax it to (Name of Pharmacy):__________________________________ at FAX Number: _______________or call at Phone Number:________________ They require that the prescription include the following information: Name of Patient: ___________________ Date of Birth: ______________________ Member ID #:_______________________ Mailing Address: _________________________________________________ Phone: ___________________________ Please let me know when it has been sent in. Thank you. Caregiver’s Name:_______________________________ E Mail Address:_________________________________ Phone:________________________________________ 75 Caring for Mom Medications and Assistive Devices Over the Counter Medications and Vitamins Tracker Dose Dose Dose Name. . . . . . . . . Use. . . . . . . …….. # pills Date Store. . . . AM PM EVE In bot- Purtle chased Drug Store Information: Name:___________________________________ Address:_________________________________ Phone:__________________________________ Name:___________________________________ Address:_________________________________ Phone:__________________________________ Name:__________________________________ Address:_________________________________ Phone:__________________________________ 76 Caring for Mom Medications and Assistive Devices Assistive Devices Tracker Item Source Date Checked Out Source Information: Name:__________________________________ Address:_________________________________ Phone:__________________________________ Name:__________________________________ Address:_________________________________ Phone:__________________________________ Name:__________________________________ Address:_________________________________ Phone:__________________________________ 77 Notes on Item’s Condition Date to be Returned Caring for Mom The Attorney and Legal Stuff The Attorney and Legal “Stuff” Luckily my Mom and I went to an attorney together while she was still able to think clearly, so she was able to understand and sign all the documents which were required to enable me to take care of her and her finances. Trying to be helpful, our attorney even told Mom how she could get a limited use driving license. I was hoping that her hearing aids were not working properly, but she heard it all just fine. Later, I had to ask the doctor to tell her that she should no longer be driving. She took it well, and I breathed a sigh of relief. There are attorneys who specialize in elder issues. To find one you can call the National Academy of Elder Law Attorneys, Inc. (NAELA) at (703) 942-5711 or enter your zip code into their on-line directory at www.naela.org/member/directory (Sheehy 293) You will need to talk with your attorney about your unique situation and the laws applicable in your state. Basically, you should have the following drawn up, signed, and notarized. Leave the original with the attorney and keep a copy in your files. Give copies of #3, #4 and #5 below to your doctor and hospital. 1. A Revocable Living Trust (which allows the assets to be inherited without being tied up in probate court) You will also want to talk with the attorney about the maximum amount that can be inherited without paying taxes on the inheritance. There are ways to protect money above the maximum amount. 78 Caring for Mom The Attorney and Legal Stuff 2. A Will (which states who will inherit what) 3. Durable Power of Attorney for Management of Property and Personal Affairs (which sets up the provisions allowing you to manage your parent's property and personal affairs) 4. Advanced Health Care Directive (which states the end-of life wishes of your parent and allows you and whoever else is named to make health care decisions) Give a copy to the doctors and hospital. Your state may have a form that is more detailed. California just created the form “Physician Orders for Life-Sustaining Treatment” (POLST) which spells out the patient’s wishes regarding CPR, medical interventions and artificially administered nutrition. Even more detailed is the pamphlet created by Aging with Dignity entitled “Five Wishes.” It includes the patient’s wishes for who will make medical decisions when the patient can’t, the kind of medical treatment they want or don’t want, how comfortable they want to be, how they want people to treat them, and what they want their loved ones to know. In any case, the more detailed the directive, the better for the patient, the doctor and the caregiver. 5. Authorization for Use and Disclosure of Protected Health Information (which authorizes the release of health information and medical records to you and whomever else is named) 6. Certification and Abstract of Trust Agreement (Many companies asking for a copy of the trust will accept this one page abstract in its place.) Your attorney will tell you such things as which accounts to put in the name of the trust, how to 79 Caring for Mom The Attorney and Legal Stuff list beneficiaries on accounts, how to set up checking and credit card accounts so that you can write checks and get account information, and how to sign as your parent's legal trustee. 80 Caring for Mom Setting Up the Finances Setting up the Finances There came a time when I needed to take over paying bills, keeping records, filing and helping Mom make financial decisions. Luckily, Mom and I had been to the attorney, so with the “Durable Power of Attorney for Management of Property and Personal Affairs” in hand, I was allowed to manage Mom’s property. I created a letter from Mom (see “Accessing Accounts – Sample Letter”) that I sent along with a “Change of Address to Caregiver’s Address” form to various banks and companies, informing them that I would now be paying her bills. Note that financial institutions usually require a copy of the power of attorney. I was now ready to create a budget so we would know what the yearly expenses and income were. I spent hours going over Mom’s expenses and income to create an annual budget. As a “depression child” she was a saver who constantly worried about money. I went over the budget many times, showing her that she would be solvent until she was 110 years old, but she still didn’t believe me. So I asked if we could review her budget with Pat, a friend of mine who is financially savvy, and Mom agreed. Pat blessed the budget without a change, and Mom continues to tell me how smart Pat is. As I began creating the budget, I estimated a figure for the upcoming year’s expenses by reviewing Mom’s check register and credit card statements for the past year and summing up all items that were not one-time expenses. I added to that any additional anticipated expenses for the upcoming year and added a “miscellaneous” expense factor for good measure. 81 Caring for Mom Setting Up the Finances In estimating a figure for the upcoming year’s income, I added Mom’s social security payments and her draw from her retirement fund account. Your parent may also have such things as stock dividends, income tax refunds, income from rent on a home or savings interest. To determine Mom’s solvency over the next ten years, I projected her income and matched it with the average cost of a nursing home (the most expensive living arrangements we might ever have to use) over the next ten years. I didn’t take into consideration inflation, figuring income would likely rise while costs rise, although I know they do not rise at the same rate. I calculated the budget with an adding machine, pencil and a yellow pad, but you might find it easier to create an Excel spreadsheet. In this section you will find Mom’s sample annual budget. The book Caring for Your Parents has an example of a monthly income and expense sheet and one for calculating net worth. (202-203) In researching last year’s expenses I found boxes of old papers, filed and unfiled, that I needed to sort through. As I started to toss things it dawned on me that there were items of information on them that could be used by ID thieves, so I retrieved and cross-shredded them. I find as I purchase various everyday items for Mom from the grocery store, etc. that I wind up using my own money because there are a few of her things mixed in with mine. I keep track of these expenses using an IOU sheet found in this section and reimburse myself monthly. I file the IOU in case there is ever a question about the checks written by me to me. 82 Caring for Mom Setting Up the Finances Once I had the authority to pay bills and a budget to know how much I had to work with, I took over payment of Mom’s bills, setting up a free credit union checking account for bill paying and another one for her personal use. Both of our names are on the accounts so either of us can write checks. I have her social security check electronically deposited to the bill account. I created a bill payment tracker chart which allowed me to track expenses. If you compare it to Mom’s Sample Budget, you will see they are basically the same. At the end of the year, I use it to refine next year’s budget. In this section you will find the following: a. Accessing Accounts – Sample Letter b. Mom’s Sample Budget c. IOU for Reimbursement to Caregiver d. Bill Payment Tracker 83 Caring for Mom Setting Up the Finances Accessing Accounts: Sample Letter This is a sample letter to a bank initiating power of attorney for bill paying. This will enable you to pay your parent’s bills. Parent’s Name c/o Daughter’s Name Street Address City, State, Zip Daughter’s Phone and/or E Mail Bank Name:__________________________________________________ Street Address:_______________________________________________ City:_________________________ State:___________ Zip:__________ August 17, 2009 Dear Sirs and Madams: I would like to have my daughter, _____________________, listed on your records as my power of attorney who can deal with you as needed regarding my Visa account #____________________________________________________. To that end, I have enclosed the appropriate pages of my Durable Power of Attorney for Management of Property and Personal Affairs. Thank you. Sincerely, Parent’s Name 84 Caring for Mom Setting Up the Finances Mom’s Sample Budget Revised January 1 EXPENSES Schedule Payee Due Date Closing Date Estimated Amount Total Monthly Residential Care Home Fee Master Card 1 Phone 14 Church Misc Total Monthly Expenses 1 & 15 Medical Insurance 1/1 Newspaper 10 $4,500 16 th previous month 14 th previous month $300 [drugs, etc.] APPROXIMATE $28 $40 $200 *$5,068 MonthX12= $60,816 Jan 1 st previous month $543 $543 Jan 2/15 $29 $29 Feb 4/10 $350 $1,200 $1,550 Mar Feb Mar Accountant Income Taxes April Medical Insurance Newspaper 4/1 1 st previous month $543 4/15 $29 $ 572 April 0 May Newspaper 6/15 $29 $29 June Liability Insurance Medical Insurance 7/1 May June July 7/1 1 st previous month 1 st previous month Aug 85 $125 $543 $668 July Caring for Mom Setting Up the Finances Newspaper 8/15 $29 $29 Aug 0 Sept Medical Insurance Newspaper 10/1 10/15 $29 $572 Oct 0 Nov Newspaper 12/15 $29 $29 Dec Sept Oct 1 st previous Month $543 Nov Dec TOTAL YEARLY EXPENSE $64,837 INCOME INCOME SOURCE DATE MONTHLY AMOUNT ANNUAL TOTAL 3rd Social Security Draw on Retirement Fund Account 15th $990 $11,880 $5,000 $60,000 Total Annual $71,880 BUDGET SUMMARY Annual Income Annual Expenses $71,880 64,837 $ 7,043 Amount left for additional miscellaneous expenses 86 Caring for Mom Setting Up the Finances IOU for Reimbursement to Caregiver I purchase things for Mom with my money. I keep the following IOU list of expenses, pay myself from her check book at the end of the month, and file the list in case anyone in the future should question the monthly checks. The list is in Microsoft Office Word table format, but you could save yourself adding up the total each month by creating it in Excel. Month:________ Year:_________ IOU Amount Date…… Item Description……………………….……………………………………… Total Paid by Check #_________ 87 Caring for Mom Setting Up the Finances Bill Payment Tracker Monthly Bills Payee…………….. Closing Due Amount Date Date Date Date Date Date Date Date Date Date Date Date Paid Paid Paid Paid Paid Paid Paid Paid Paid Paid 88 Caring for Mom Setting Up the Finances Bill Payment Tracker Non-Regular Bills Payee…………….. Closing Due Amount Date Date Date Date Date Date Date Date Date Date Date Paid Paid Paid Paid Paid Paid Paid Paid Paid Jan Feb Mar April May 89 Caring for Mom Setting Up the Finances Payee…………….. Closing Due Amount Date Date Date Date Date Date Date Date Date Date Date Paid Paid Paid Paid Paid Paid Paid Paid Paid June July Aug Sept Oct Nov Dec 90 Caring for Mom Keeping Track of Important Items and Information Keeping track of important items and information Taking over another person’s “life” is not easy. All of the zillion details you take for granted in your own life – who are your insurance companies, where are the policies, where do you keep the paid invoices, when are they due – become part of a frustrating Easter egg hunt when you begin paying bills and making decisions for your parent. I began by creating a master list of important items and information. As I found each piece of information, I added it to the list and coded where each could be found – in the attorney’s office, in the file at the house, at a relative’s house, in the safe, in a safety deposit box, in her wallet, etc. I simultaneously set up alphabetical files for the file cabinet. By using the master list of important items and information, I can access anything quickly and effortlessly. I also customized an income tax organizer which lists all of the information specific to Mom’s taxes that I need to collect and bring to the tax accountant. I found a number of insurance policies that come due at different times – car, drug, health, house, vision, etc. – and I was continually searching for policies and due dates, so I created a master list of insurance policies including pertinent information on each policy. I added the due dates to the bill payment tracker and the amounts to the annual budget. Because Mom had some items of personal property such as antiques, artwork, furnishings, furs, and jewelry that were of value, I created an inventory form for these. I also took pictures of each and put them in the safe in case of theft or fire. I had major items appraised and put them 91 Caring for Mom Keeping Track of Important Items and Information on an insurance rider. Finally, Mom wants specific items to go to various family members so I noted that on the inventory. When she was still driving, I collected all the information on her car and put it on a form so I now knew when to get her tires rotated, what pressure should be in her tires, etc. Although Mom no longer had her cocker spaniel, I developed a pet form that you can use to track important information for your parent’s pet. Finally, there were some pieces of important information that I needed to provide family members in the event that I was out of town and an emergency arose. I put these on the “Summary of Important Information” form and noted who received it and when, so I could give them an updated form periodically. In this section, you will find the following: a. Location of important items and information b. Income Tax Organizer c. Insurance Policies d. Personal Property Inventory 1. Antiques, Artwork, Furnishings, Furs, Jewelry, etc. 2. Cars 3. Pets e. Summary of Important Information 92 Caring for Mom Keeping Track of Important Items and Information Location of Important Items and Information Important items and information such as credit cards, paid invoices, a will or jewelry might be found in one of the following locations: Attorney’s Office (See Column 1 in table below) Name:_________________________Phone:______________________________ Address:___________________________________________________________ File(s) in House (See Column 2 in table below) Location:___________________________________________________________ Relative’s House (See Column 3 in table below) Name:_________________________Phone:______________________________ Address:___________________________________________________________ Safe (See Column 4 in table below) Location of Safe: Location of Code for Safe: Location of Key for Safe: Safety Deposit Box (See Column 5 in table below) Number:______________________ Location of Key(s):____________________ Bank Name:___________________ Phone:_____________________________ Address:___________________________________________________________ Hours of Operation:__________________________________________________ Wallet (See Column 6 in table below) Other (See Column 7 in table below) 93 Caring for Mom Keeping Track of Important Items and Information List each item and check the box which indicates its location in the checklist below. Location of Important Items and Information Checklist Item---------------------------------------------------- 1--- 2--- 3--- 4--- 5--- 6--- 7--- 94 Caring for Mom Keeping Track of Important Items and Information Possible Important Information Items to list in table above: Address Changes checklist Advanced Health Care Directive Attorney Notes Authorization for Use and Disclosure of Protected Health Information Bank or Credit Union Statements Bill Payment Tracker Birth Certificate Budget Calendars – Old Cash Car Registration Credit Card Bills Cell Phone Company Certification and Abstract of Trust Agreement Choosing a Senior Facility checklist Clothing and Size Information Chart Credit Cards Death Arrangement Paperwork Death Certificate of Spouse Disposal of Furnishing and Appliances Sheet Divorce Paperwork 95 Caring for Mom Keeping Track of Important Items and Information Driver’s License Drug Receipts Emergency Contact Information Family Misc. (Pictures, Letters, etc.) Gardener Information Sheet Grocery List Checklist Guarantees for items purchased Handicapped Plaque Information Handicapped Plaque Location Home Purchase/Sale Information Hospital Receipts House Information Sheet Identification Card Income Tax Organizer Chart Income Tax Receipts for Current Year Income Tax Records Last 7 years Insurance Policy – Car Insurance Policy –Dental Insurance Policy –Drug Insurance Policy –Health (Medicare Supplemental) Insurance Policy –Homeowner’s (Fire, etc.) Insurance Policy –House (Earthquake, etc.) 96 Caring for Mom Keeping Track of Important Items and Information Insurance Policy –Liability Insurance Policy – Life Insurance Policy –Long Term Care Insurance Policy –Medicare Insurance Policy –Pet Insurance Policy –Vision IOU for Reimbursement to Caregiver Chart Jewelry Appraisals and Receipts Jewelry Location Living Will Magazine Subscriptions Manuals for Appliances Marriage Certificate Master Appointment Schedule for Service Providers Master Card Bills Media and Communications Checklist Medical Expenses and Insurance Payments Tracker Medicare Information Medication and Assistive Devices Checklist Miscellaneous Mortgage Paper Work Newspaper Bills 97 Caring for Mom Keeping Track of Important Items and Information Notes from Doctor’s Visits Passport Personal Property Inventory Paycheck Stubs Phone Company Bills Powers of Attorney (for Healthcare, etc.) Real Estate Tax Information Rental Agreement Renting the House Check list Sale of House Paper Work Senior Residence Financial Receipts and Contracts Senior Residence Notes to Staff Social Security Card Summary of Important Information Travel List Trust Visiting Nurses Information Visitor List for Resident of a Senior Facility Voter Registration Wallet Contents Photocopy Wallet Will 98 Caring for Mom Keeping Track of Important Items and Information Income Tax Organizer Although we have an accountant, it’s my job to organize Mom’s tax information and records preparatory to our tax appointment. Since it’s a miserable job, I put on my favorite music and promise myself an ice cream sundae upon completion. I have created a simple organizing system, making an index card for each topic below. Then I go through the files, putting appropriate records with each index card. Once the records are grouped by topics, I fill in the tax accountant’s worksheet and attach whatever documentation is required. 1099’s Dividends and distributions from Stocks and Bonds State income tax refund Credit Union Bank Other W-2 Wage and Tax Statement from Social Security Gross Federal Tax State Tax Other Receipts Adaptive Devices (Llifeline, Walker, etc.) Attorney Fees Credit Card statements Dentist Doctor 99 Caring for Mom Keeping Track of Important Items and Information Donations Drugs Glasses Hearing Aids & Batteries Medical Expenses – mileage Medicare Part D premiums Property Taxes Refund state taxes Rental Records Stock, Bond, Mutual Fund Accounts Tax preparation previous year Other Revised Date: ________________________________ 100 Caring for Mom Keeping Track of Important Items and Information Insurance Policies Car Insurance Company: _________________________ Agent: _________________________ Policy #: ___________________________ Phone: ________________________ Address: ____________________________________ Date Due:______________ Type (comprehensive, etc):____________ Deductible: ____________________ Dental Insurance Company: __________________________ Policy #: _______________________ Co-Pay Amount Per Office Visit: _________ Phone: ________________________ Address: _________________________________ _ Date Due:________________ Health Insurance (Might be a policy to supplement Medicare) Company: __________________________ Policy #: _______________________ Co-Pay Amount Per Office Visit: _________ Phone: ________________________ Address: ___________________________________ Date Due:_______________ House or Renter’s Insurance Homeowner’s or Renter’s Insurance Company: _______________________ Address: _____________________ Phone:__________________________ Policy #: ______________________ Date of Policy:________ Cost:____________ Insured Value: __________________ Date Due: _______________ Amount of Deductible:__________ Riders (for jewelry, etc.):____________ Cost for Riders:________________ 101 Caring for Mom Keeping Track of Important Items and Information Specialized House Insurance (for earthquakes, etc.) Company: _______________________ Address: ______________________ Phone:__________________________ Policy #: ______________________ Date of Policy:________ Cost:____________ Insured Value: __________________ Date Due: _______________ Amount of Deductible:__________ Liability Insurance Company: _______________________ Address: ______________________ Phone:__________________________ Policy #: ______________________ Date of Policy:________ Cost:____________ Insured Value: __________________ Date Due: _______________ Amount of Deductible:__________ Long Term Care Insurance Company: _______________________ Address: ______________________ Phone:__________________________ Policy #: ______________________ Date of Policy:________ Cost:____________ Insured Value: __________________ Date Due: _______________ Amount of Deductible:__________ Medicare Insurance Part A & B Policy #:__________________________________________ Medicare Insurance Part D (Drug) Company: _______________________ Address: ______________________ Phone:__________________________ Policy #: ______________________ Date of Policy:________ Cost:____________ 102 Date Due: _______________ Caring for Mom Keeping Track of Important Items and Information Pet Insurance Company: __________________________ Policy #: _______________________ Co-Pay Amount Per Office Visit: _________ Phone: ________________________ Address: __________________________________ Date Due:________________ Vision Insurance Company: __________________________ Policy #: _______________________ Co-Pay Amount Per Office Visit: _________ Phone: ________________________ Address: __________________________________ Date Due:________________ Other: 103 Caring for Mom Keeping Track of Important Items and Information Personal Property Inventory -- Antiques, Artwork, Furnishings, Furs, Jewelry, etc. Take pictures of all furnishings and special items. Item-------------- Description and Location--------------- Approx Person to Inherit Value + If Designated + If you have the item appraised, include the appraisal date & appraiser contact information. Also consider getting a rider on the home insurance policy to cover the item. (See Insurance Checklist) 104 Caring for Mom Keeping Track of Important Items and Information Personal Property -- Cars Car Year: _________________ Brand: __________________Model:______________ Color: ________________ VIN:_____________________ Dealership Purchased from: __________________________________ Address:__________________________________________________ Phone:___________________ License Plate #:_______________________Location(s) of keys:______________ Location of Registration Paperwork: ___________________________________ Due Date: _____________ Insurance (See Insurance Checklist) Company:__________________________ Policy Number:__________________ Type of Gasoline Used:______________________ Weight of Oil:_____________ Mechanic’s Name:_____________________ Address:_____________________________________Phone:_________________ Location of Maintenance Diary:_______________________________________________ Tire Pressure:_______________ Tire Company:___________________ Tire Brand: _________________ Last Purchased:_________________ Rotation Date: _____________ Mileage at Rotation:______________ Notes: 105 Caring for Mom Keeping Track of Important Items and Information Personal Property--Pets Pet(s) Name:______________________________ License #:______________________ Description:_________________________ Birth Date:______________________ Vet Name:__________________________ Address:_______________________ Phone:_________________________ Office Hours:____________________ Pet Emergency Clinic:_________________ Address:_______________________ Phone:_________________________ Office Hours:___________________ Groomer:__________________________ Address:_______________________ Phone:_________________________ Description of Service:____________ Schedule:_______________________ Cost:__________________________ Dog Walker: ________________________ Address:_______________________ Phone:_________________________ Description of Service:___________ Schedule:______________________ Cost:__________________________ Food & Vitamins Name Amount Given AM Amount Given PM Where Purchased? What For? Date Given Date Due Immunizations Name 106 Caring for Mom Keeping Track of Important Items and Information Summary of Important Information revised Date______ I keep this summary of important information handy at all times and take it with me on trips. You never know when you might receive an emergency phone call and need the information. Starred items are those that I provide to the Residential Care Facility. *Attorney: Name, Phone Number, Address ___________________________________________________________________ ___________________________________________________________________ Birth Date : _______________________________________________________ *Clergy: Name, Phone Number, Address ___________________________________________________________________ ___________________________________________________________________ *Death Arrangements Name of Funeral Home, Phone Number, Address _____________________________________________________________ _____________________________________________________________ *Dentist Name:__________________________ Phone:_____________________ Address:_________________________________________________________ *Doctor (Primary) Name:_______________________ Phone:_________________ Address:_________________________________________________________ Driver’s License or ID Card #:_______________________ Medical Insurance – See wallet for cards Medicare #: _______________________________ Supplemental Health Insurance o Name: _____________________________ 107 Caring for Mom Keeping Track of Important Items and Information o Policy #: ____________________________ o Phone #:____________________________ Medicare Part D Drug Provider – See wallet for card o Name: _____________________________ o Policy #: ____________________________ o Phone #:____________________________ *Medications – See separate list for complete listing Social Security Number: ________________________ Wallet Contents – List and attach photo copies: ___________________________________________________________________ ___________________________________________________________________ ___________________________________________________________________ _________________________________ 108 Caring for Mom Preparing for the Inevitable Preparing for the Inevitable When my Dad died, I had no preparation for the emotional tidal wave that would overcome me. At the same time, I had to make all the arrangements and deal with mountains of paper work and phone calls to get everything settled. I spent many frustrating hours trying to find accounts, lists of people to contact, and a myriad of other little pieces of information that were necessary to tie up loose ends. I decided that the next time I would be as prepared as possible. To that end, I have discussed with Mom her wishes in relation to such things as hospice, end of life care (documented in the Advanced Health Care Directive), an obituary, a religious service, burial ceremony, etc. and we have prepaid for her cremation. I’ve since found an excellent section in Rachelle Zukerman’s Eldercare for Dummies entitled “Ensuring a Good Death,” that lets you know what to expect during the death process. I found a section which lists the tasks that you need to do to settle financial affairs after the death of your loved one particularly helpful, and I plan to use it as a template. (318-319) Zukerman says you should collect all the things I’ve listed in the chapter entitled “Keeping Track of Important Items and Information”; notify insurance companies, Social Security, the Veteran’s Administration, past employers, the bank (and I would add any appropriate investment companies); cancel credit cards, clubs (and I would add subscriptions); list all debts; contact the probate court to begin the probate process (and I would add contact the family attorney who should have the original copy of the will and trust). I found that I needed six official copies of the death certificate to accomplish the above, but you may want to get up to ten copies to be on the safe side. You can always order extra copies, but it takes time. 109 Caring for Mom Preparing for the Inevitable In this section you will find “Making Final Arrangements” which includes the questions that I asked as I chose a funeral home or crematorium. Delehanty’s book Caring for Your Parents has an informative chapter on these topics as well on pages 157-171. I’ve also included a form to inform the care facility of the final arrangements I’ve made in the event that they have trouble contacting me while I’m traveling. You will also find two charts entitled “Paces to Notify Upon Death” and “Things to Gather Upon Death” which I created recently upon the death of a good friend. Finally, I know that having the pages in this book filled out and in one place means that I have all of the information I could possibly need at my finger tips as I negotiate final arrangements. 110 Caring for Mom Preparing for the Inevitable Making Final Arrangements Although it is difficult, discussing funeral arrangements ahead of time with your parent assures that you will be fulfilling her wishes when the time comes. If you both feel comfortable making arrangements now, you will be able to make decisions without having to do so under emotional turmoil and pressure. Following are some questions you might ask as you discuss arrangements with a funeral home or crematorium. 1. What is the cost for each service provided? 2. Can we complete paperwork and leave it on file to allow for your immediate response whenever death occurs? 3. Do we have to pay up front? If not, what are the advantages of doing so? 4. If we pay up front, what happens if you go out of business? 5. Assuming you pick up the deceased, what happens if they die out of the state or out of the country? 6. Do you cremate on the premises? Within what time frame? 7. How do I go about making arrangements for a cemetery plot? 111 Caring for Mom Preparing for the Inevitable Death Arrangements Notice to Care Facility Date: ___________________ To: Name of Care Facility: ______________________________________ From: Your Name and Relationship:_________________________________ Subject: Arrangements Regarding Future Demise of Name of person (and room number if in a facility):___________________________________________ If Name of Person:___________________________ were to pass away while at your facility, please do the following: Assuming I am home, please call me at home number:__________________ or cell number:_________________________________________________ If I am traveling during this time, I have left you an itinerary with my contact information. If you cannot reach me, please contact person’s name and relationship:______________________________________________ at home :(___) __________________ or cell: (___) ______________________ If I cannot be reached immediately, please call Name of Funeral Home:________________________________________________________ at Phone Number:____________________________________ Signed paper work is in their office, located at: _______________________ They are available 24 hours a day, 7 days a week. They will pick up and transfer Name of Person: ____________________________ to their facility. Sincerely, (Your Name) 112 Caring for Mom Places to Notify Upon Death (Alphabetical) Those in bold face often require a certified death certificate. Date Notified Accountant or tax preparer * Air mileage accounts Attorney ** Auto insurance company Bank – Checking and Savings accounts *** Brokerage Companies for stocks and bonds Cell phone company Computer related components – DSL provider E mail accounts, I tunes, etc. Credit cards – cancel unless you’re named on the account and want to keep it Dentist and other health care professionals Dept of Motor Vehicles -- Auto registration (transfer title to survivor) Driver’s license Employer – yours and spouse’s Financial advisor Funeral director 113 Death Certificate Sent Notes Caring for Mom Health insurance company Insurance agent (also change beneficiaries on your insurance policies and update names of insured) Investments – Mutual Funds, 401’s, Annuities, etc. IRA custodians or trustees regarding designated beneficiaries and post-death distribution options IRS Landlord Life Insurance Companies Long term care insurance company Magazine subscriptions Medicare Mortgage company Past employers regarding pension plans Pension Plans Real Estate Official for deed, title, etc. Social Security **** Stock broker Storage Company Trust Accounts Veteran’s Association – May get burial expense allocation Workplace ***** 114 Caring for Mom *Other things to do *Talk to accountant or tax preparer about need to file estate tax, inheritance tax, federal and state income taxes for deceased for the year of death, separate income tax returns for trusts, changes in real estate taxes. ** Talk to attorney about filing will with probate court and need to file on any out of state real estate, updating and revising your own will, appointing a new executor for the remaining estate *** Re-title jointly held bank accounts and other assets such as cars, stocks, bonds, real estate ****Report the death to Social Security by calling 1-800-772-1213. If benefits were being directly deposited to bank, ask bank to return funds received for the month of death to Social Security. Return any social security checks that come by mail. Check if eligible for death benefit and survivor’s benefits. *****Workplace -- Make arrangements to collect belongings, salary and vacation or sick pay owed, ask about continuing health insurance coverage and potential survivor’s benefits 115 Caring for Mom Things to Gather Upon Death (Alphabetical) Item Location. . . . . Notes. . . . . Automobile and boat registrations Bank records: Bank or Credit union statements Certificates of deposit Money-market account statements Outstanding loan statements Safety deposit box records and keys (change ownership of box) Belongings from workplace Birth certificate Credit cards Death certificates (certified copies) Deed to cemetery plot Funeral Plans including proof of prepayment for services Insurance Policies : Accidental death & dismemberment insurance Annuities Auto credit life insurance Credit card insurance Individual and group life insurance Mortgage insurance 116 Caring for Mom Investment records: Annuity statements Bonds Stocks Marriage certificate Military discharge papers Papers of authenticity for valuables such as art, jewelry Pension and profit-sharing plan statements – 401K, IRA, etc. Real Estate Records: Deed and deed of trust Mortgage contract Promissory notes Property appraisal Real estate tax notices Registration for car, boat, etc. Social security card Tax returns Trust Will 117 Caring for Mom Works Cited AARP New Hampshire. April 20, 2010. Prepare to Care: A Planning Guide for Families. [http://www.aarp.org/relationships/caregiving/info.-042010/prepare to care.html] Bell, Virginia and David Troxel. A Dignified Life: The Best Friends Approach to Alzheimer’s Care, A Guide for Family Caregivers. Deerfield Beach, FL: Health Professions Press, Inc, 2002. Capassela, Cappy and Sheila Warnock. Sharing the Care: How to Organize a Group to Care for Someone Who is Seriously Ill. New York: Fireside, 1995. Comarow, Avery. “Taking The Measure of the Latest Rankings: How Thousand of Homes Were Assessed and 173 Were Selected for this Issue.” U.S. News & World Report, Feb. 2010: 72-82. Delehanty, Hugh and Elinor Ginzler. Caring for Your Parents: The Complete AARP Guide. New York: Sterling Publishing Company, 2005. Johnson, Paulette. “Navigating the Health Care System,” The Monitor, Autumn 2011: 1-4. [www.vcccdra.org/html.newsletter.html] Kertesz, Louise. “Resources for Caregivers, or, ‘Who has time to read when you’re going through all that stuff?’” [http://atyourlibrary.org/fitness/resourcescaregivers] Loverde, Joy. The Complete Eldercare Planner, Second Edition: Where to Start, Which Questions to Ask, and How to Find Help. New York: Three Rivers Press, 2009. McCullough, Dennis. My Mother, Your Mother: Embracing “Slow Medicine”— The Compassionate Approach to Caring for Your Aged Loved Ones. New York: Harper Collins Publishers, 2009. Sheehey, Gail. Passages in Caregiving: Turning Chaos into Confidence. New York: Harper Collilns, 2010. 118 Caring for Mom Zukerman, Rachelle. Eldercare for Dummies. Hoboken, NJ: Wiley Publishing, Inc., 2003. 119 Caring for Mom About the Author Diane Moore has a doctorate in educational management and has worked as a Dean at Ventura College for twenty years. Three years before retirement she became a caregiver for her elderly mother. She used her knowledge of management theory and the management skills she developed over the years to create systems that would make caregiving as effortless and enjoyable as possible. For the past eight years she has researched the field, consulted with many caregivers to get their advice, and refined the systems as she cares for her mother. Now she is ready to share them with you, in the hopes that using them will ease your burden and enhance your life and that of your loved one. 120