Providing Trans-Specific Health Care to Transgender Students in the College Health Setting Michelle Famula MD, UC Davis Nick Gorton MD, Lyon-Martin Health Services Alexandra Hall MD, Cornell Seth Pardo MA, Cornell Overview Brief discussion of gender identity Discussion of Transsexuality Explain the WPATH Standards of Care, and how they can be used to provide needed care Discuss the provision of hormonal and other therapies, as well as primary care Identify resources and strategies for providing and maintaining quality care for transgender students on our campuses Defining the need…A Vignette Rick, 21 yo undergraduate Presented to CAPS for counseling and medication in Summer ’05 Struggled with gender dysphoria, felt he was a male born into a female body Saw CAPS regularly for a year, decided that the appropriate thing for him was to transition Also saw a community therapist with experience in gender dysphoria, who wrote a letter affirming his readiness for hormonal therapy Diagram of Sex and Gender Biological Sex (anatomy, chromosomes, hormones) male intersex female Gender Identity (Sense of Self) man Twospirit/third gender woman Gender Expression (Communication of Gender) masculine androgynous feminine Sexual Orientation (Erotic Response) attracted to women Bisexual/asexual/pansexual attracted to men Biological Sex anatomy, chromosomes, hormones Biological Sex anatomy, chromosomes, hormones Fetal genital differentiation Spectrum in-between 18% of all “congenital anomalies” are differences in genito-urinary tract. 1 in 100 live births are individuals who are not strictly “normal” male or female, and 1 in 1000 will undergo some type of genital surgery. Gender Identity Internal sense of self, may or may not be expressed Only the individual can say for themselves, cannot be “measured” Gender Expression Sexual Orientation / Attraction Diagram of Sex and Gender Biological Sex (anatomy, chromosomes, hormones) male intersex female Gender Identity (Sense of Self) man Twospirit/third gender woman Gender Expression (Communication of Gender) masculine androgynous feminine Sexual Orientation (Erotic Response) attracted to women Bisexual/asexual/pansexual attracted to men “Trans” or Transgender An umbrella term / a spectrum Other terms: Gender Non-Conforming, Gender-Queer Gender identity and/or gender expression differ from the conventional gender expectations for biological males and females OR A gender identity not adequately defined by conventional ideas of male and female. NOTE: Sexual orientation is not in any way a part of this description! How do our trans students define themselves? What is their experience of gender? When “She” graduates as “He”: Trans identity development and navigating sexual boundaries in college Seth T. Pardo, M.A. Department of Human Development Cornell University Ithaca, NY 14853 Study design Questionnaire Recruited individuals who were “gender non-conforming” 299 surveys: 204 were natal females: 170 respondents Mean age 28.6 +/- 9.4 Asked open-ended, “in your own words, how do you describe…” GLBT Centers List-serves Conferences and Meetings Public Events Your gender identity Your daily behavior, dress style, and appearance Asked partner preference (sexual orientation) Asked “at what age, if any, did you first…” Wish to have been born a boy Pass as the other sex Feel a need for surgery/hormones Who is Transgender? Conceptualizations & Expressions Major Identity Domain Domain Description & Sub-domains Sub-Domains Gender Identity Sex- or gender-qualified self. “female,” “woman,” “male,” “man,” “fluid,” “both,” or “neither.” Gender Role & Presentation Qualitative daily behavior, dress style, appearance, and personality terms that reflect traditionally gendered "feminine," "masculine;" or new/other terms like “fluid” or “gender queer”. Sexual Orientation & Partner Preference The self-described erotic attractions or partner preferences “asexual,” “gay,” “bisexual,” “straight,” “lesbian,” “pansexual,” “transgender,” “males,” “men,” “females,” “women,” “queer,” “little or no preference,” some combo*, or new other.** Transitional Status The hormonal or surgical body modifications planned or completed. “pre-op” (i.e. pre-operation), “noho” (i.e. no hormones), “top-surgery,” “bottom surgery,” and “post-op” Gender Identity “Naming” Transgender Gender Identity Androgynist Boi Butch Chameleon Cross-Dresser or Transvestite Diesel Dyke or Dyke Drag King Drag Queen Fem Impersonator Fem Male or Sissy Male Female Female-to-male (FTM) Gender Blender Gender Fuck Hermaphrodite or Intersex Male Queer or Gender Queer Sex Radical Tranny Boy Transgender Transsexual I prefer no label T otal Selections N 23 33 19 6 8 23 13 2 11 2 17 28 88 21 30 6 73 150 10 49 41 55 19 727 (88% of all respondents) That’s about 4 terms per person! In your own words, how do you describe your gender identity? Range of Responses: More Fixed “I identify as female.” “Just male. I feel that we have chosen the most obvious variable (genital appearance) to distinguish between the sexes, but it is not the most accurate. I feel that I am (and always have been) male, just a male of the XX variety (rather than XY).” How do you describe your gender identity? Range of Responses: More Fluid “Fluid. I'm definitely queer and find myself going through different phases in my gender identity. Sometimes I feel very male, sometimes I just want to be in a drag, sometimes I feel like a tomboy and sometimes I feel like a girl - not a girly girl, but female. So - if i had to give it one term, Genderqueer.” “I identify as trans, I suppose. There are days when I feel like a boy or like a guy, but there are days when I just don't know what I am, although I'm sure that I'm NOT a girl.” Who is Transgender? Conceptualizations & Expressions Identity Group Facets Gender Identity Gender Presentation Sexual Orientation Transitional Status Total (170; 100%) Female/ Woman female/woman Gender Fluid Gender Transitional anti-binary "transmasculine" (e.g androgynous) spectrum Male/ Man male/man female typed alternating or simultaneous trending masculine male typed "lesbian" or "bisexual" unrestricted unrestricted unrestricted non-op non-op* active consideration active transition 27 (16%) 27 (16%) 27 (16%) 89 (52%) Developmental Milestones Milestone Age Range (years) 1st recognized difference 5 to 7 Earliest transgressions 5 to 7 1st wish to be born male 8 to 11 1st confusion 12 to 15 1st disclosure 16 to 19 1st passing 16 to 19 1st thoughts of transition 20 to 26 Need for hormones / surgery 20 to 26 Pride 27 to 30 Proportion of Respondents by Time & Group Reporting a “Need for Surgery/Hormones” 100 90 Proportion of Respondents (%) 80 70 60 50 40 30 20 10 0 <5 5 to 7 8 to 11 12 to 15 16 to 19 20 to 26 27 to 30 Age Range (years) Female/Woman Male/ Man Gender fluid Gender transitional 31+ Transsexual A subset of transgender, representing one end of the continuum, who are “born into the wrong body”; gender identity is highly discordant with biologic sex, resulting in gender dysphoria and the desire/need to modify the body to reflect the gender identity. Transsexuality Prevalence Etiology Morbidity & Mortality Implications for College Health Diagnosis Treatment Meeting the need in College Health Prevalence of Transsexuality Old statistics based on surgeries: Newer estimate of MtF, based on number of male-tofemale surgeries performed per male US population: 1 in 30,000 for MtF 1 in 100,000 for FtM 1 in 2500 These are individuals who can afford surgery Many individuals never undergo surgery FtM surgery is far less commonly performed At Cornell 19,800 students in Ithaca Dr. Hall currently has 5 trans patients Historically 5-12 students in trans support group 19,800 / 8 = 1 in 2475 This is a young population – many have not yet “come out” or transitioned Prevalence of Transsexuality 160 135 140 120 100 80 60 40 40 32.9 20 9.3 8.2 16 0 Transsexuality Accidental Death Homicide Suicide IDDM Hypothyroidism Prevalence/Incidence rates per 100,000 Adolescents, age 15-19 CDC national Vital Statistics Reports, Vol 56, No 5, Nov 20, 2007 Transsexuality - Etiology Socialization or mental illness - NO ? Part of nature’s variety ? Dissonance in development Gonadal differentiation begins 7th week of gestation External genitalia develop 9th-14th weeks Sexually dimorphic areas of the brain develop and mature from early gestation, beyond birth, into childhood and post-puberty Brain anatomy of gender identity Volume of BST Heterosexual male (bed nucleus of stria terminalis) Heterosexual female Homosexual male in hypothalamus TransWoman (male to female) Zhou et al., A sex difference in the human brain and its relation to transsexuality. Nature. Vol. 378, 2 Nov. 1995 Transsexuality – Morbidity & Mortality - Extrinsic We live in a very strictly gender binary society When a a baby is born… Pink vs blue clothing, décor, bike, backpacks, etc. Identifying documents Medical forms Bathrooms Dorms Little tolerance for any gender variance Homosexuality can be seen as a form of deviance from expected gender role, and is still severely punished by some segments of society Transsexuality – Morbidity & Mortality - Extrinsic 5-fold increased risk of murder 1 in 800 in Netherlands study www.rememberingourdead.org Brandon Teena, Gwen Araujo Harassment Discrimination Home / Family Public Work – still no gender-inclusive ENDA Transsexuality – Morbidity & Mortality - Extrinsic Substandard health/medical care Discrimination by providers (32%*) Tyra Hunter – died after MVA due to EMS discontinuing care and then substandard ER care in Wash DC Fear of discrimination – may not seek care (32%*) Fear of disclosure Due to SES factors, high number of uninsured (47%*) Inadequately trained health personnel *Washington Transgender Needs Assessment Survey, Xavier, 2000 Transsexuality – Morbidity & Mortality - Intrinsic Mental Health Implications Internalized transphobia Gender Dysphoria Suppression of feelings of gender identity Shame, guilt Social isolation Depression Anxiety Social isolation Stress of a highly persecuted minority Transsexuality – Morbidity & Mortality Study n Lundstrom 1984 Kuiper and Cohen-Kettenis 1988 Clements-Nolle 2006 Xavier 2000 Suicidality Suicide attempt 20% 141 19% FTMs 24% MTFs 515 32% 263 35% 16% Transsexuality – Treatment Efficacy Study Pre-treatment Lundstrom Suicidality 1984 20% Kuiper 1988 Post-treatment 1-2% Suicide attempts 19% FTM 0% FTM 24% MTF 6% MTF Defining the need…Vignette cont. Rick began to live as a male – clothing, hairstyle, pronoun, name Legally changed his name to reflect male gender identity Changed name with the registrar Changed drivers license Defining the need…Vignette cont. Made an appointment with one of our physicians to ask for testosterone rx Researched the topic thoroughly Sent copious reference materials to the physician in advance of the appt for the MD to review Also sent letter from therapist certifying readiness/eligibility Defining the need…Vignette cont. At the appt, patient was told by the physician that s/he could not help him at that time: Had no training in treatment of transsexuality No previous experience, had never done it before No one else was doing it Didn’t have a good understanding of transsexualism / gender dysphoria, therefore couldn’t be confident in assigning him that diagnosis Didn’t have a good understanding of the risks involved Local endocrinologist also couldn’t help, didn’t know any other resources for information, support, or consultation Physician didn’t know where else the patient could go Why the college health provider is the perfect person to prescribe hormones Good understanding of biopsychosocial model We know about identity development Familiarity with hormones Comfortable discussing sexual health, anatomy, sexuality The majority of trans people who will need hormones will need them starting ages 16-26 It’s not technically difficult to do Resources and training are available (here’s some!) Many other college health centers are doing it Strong sense of social justice Our Students Need Us Need for hormones and surgery arises at the same time they are on our campuses Need holistic care, not just endocrinology Trans-specific care is not available in many areas – they have no other local options Economics – student health center may be only place they can afford care Providing trans-specific care illustrates our commitment to diversity, inclusiveness, and social justice Diagnosis Diagnosing Gender Identity Disorder and Transsexualism Listen to the patient Obtain consult of trained mental health provider Exclude other causes Intersex Psychosis Major depressive disorder Dissociative identity disorder Other trans spectrum DSM IV Diagnostic Criteria Gender Identity Disorder A strong and persistent cross-gender identification manifest by a stated desire to be the other sex or to live or be treated as the other sex. A persistent discomfort with his or her sex or sense of inappropriateness in the gender role of that sex manifest by a strong desire to change their physical primary and secondary sex characteristics . DSM IV Diagnostic Criteria Gender Identity Disorder The disturbance is not concurrent with a physical intersex condition. The disturbance causes clinically significant distress or impairment in social, occupational, or other important areas of functioning. ICD-9 Coding for Diagnosis TRANSSEXUALISM (F64.0) Desire to live/be accepted as a member of the opposite sex with a desire to make body congruent with that gender. Identity persistent at least 2 years No mental health or chromosomal/anatomic abnormality DUAL-ROLE TRANSVESTISM (F64.1) GENDER IDENTITY DISORDER OF CHILDHOOD (64.2) Importance of Establishing Diagnostic Criteria for Gender Identity Disorder and Transsexualism Establishing medical standards of care Securing insurance benefit coverage Setting legal rights and responsibilities Supporting research opportunities for medical care improvements Diagnosis – Take Home Listen to the patient – avoid assumptions Important to distinguish gender “nonconformity” from gender “dysphoria” If it’s not clear, if you’re not sure, or if the patient isn’t sure, refer to a provider with more expertise The Care TEAM: Mental Health and Medical Providers MENTAL HEALTH PRACTITIONER ROLE Assess for accurate GID and co-occurring conditions Counsel on medical/mental health care options Assess for and document transition readiness Provide mental health consultation to treatment team Provide mental health care for patient /family PHYSICIAN ROLE Understanding of standards of care, eligibility criteria, readiness requirements and treatment needs Assess for health status and co-occurring conditions Prescribe, monitor and manage trans-care treatment as well as provide routine health and wellness care Provide Medical/Legal documentation as needed Transsexual Treatment Goals To bring physical body more into alignment with person’s sense of self / gender identity in order to relieve gender dysphoria Ability to live in the world in congruence with gender identity, hopefully without harassment For different people, this means differing levels of treatment, spanning behavioral, medical, and surgical options Ideally, something that looks good, feels good, and “works good” Priority Treatment Goal Person is able to live their life in congruence with their gender identity Transition The process of changing one’s appearance and/or body to reflect the true internal gender identity. It can include behavioral, legal, medical, and surgical interventions. Treatment Mental Health Behavioral / Non-Medical Hormonal Surgical Treatment – Mental Health Psychotherapy usually an integral part of tx Enormous stressor of being transsexual Counseling about medical interventions Support for coming-out process Gathering support for transition Deciding what degree of transition is needed for that individual Letters of support for medical and surgical tx Non-Medical Treatment Options Male to Female (MTF) Hair removal Clothing Hairstyle Breast prosthesis Voice training Cosmetics Female to male (FTM) Theatrical facial hair Clothing Hairstyle Breast binding Weight-lifting Padding underwear or penile prosthesis Medical Treatment Background Dr. Harry Benjamin 1885-1986 Pioneer in the field Principles of Dr. Benjamin’s Approach, later codified into “Standards of Care” HBIGDA - WPATH – World Professional Association for Transgender Health www.wpath.org “Triadic Therapy” Real-life Experience / Behavioral treatment Hormonal / Medical treatment Surgery Gradual process from fully reversible, to partially reversible, then irreversible interventions Eligibility requirements often seen as a barrier by patients – meant to be a guideline Readiness Criteria proposed to optimize successful transition and satisfaction goals Can also serve as validation WPATH Standards of Care The Real-Life Experience To maintain full- or part-time employment To function as a student To function in some community-based volunteer activity To undertake some combination of 1-3 To acquire a legal gender-identity appropriate first name To provide documentation that persons other than the therapist know that the patient functions in the desired gender role Adult Transition Sequence: “Triadic Therapy” Psychotherapy or Real Life Experience (RLE) – 3 months Assess and understand underlying ideas and establish diagnosis NOT “treat/cure” the GID RLE: adopting new gender role/presentation in everyday life. RLE assesses transition resolve/readiness NOT diagnosis Documentation: Letter of support for Medical Therapy Medical: Hormone Therapy Continuing Therapy and Real Life Experience – 12 to 24 months Documentation: Letter of support for Surgical Therapy Surgery: Genital Reconstruction/ Surgical Reassignment Medical / Hormonal Treatment WPATH Standards of Care Eligibility Criteria: Age 18 Demonstrable knowledge of the risks and benefits Either A documented real-life experience of at least 3 months A period of psychotherapy, duration specified by counselor, usually a minimum of 3 months Readiness criteria: Further consolidation of gender identity during the Real Life Experience or psychotherapy Progress in mastering other co-morbidities (suicidality, substance abuse) Likely to take hormones in a responsible manner Typical Narrative (following Standards Of Care) Accept your trans identity and seek help Internet, local groups, organizations Find a therapist and get a dx (and letter) 3 month 'Real Life Experience' OR Psychotherapy (duration usually 3+months) Find a physician Start hormone therapy FTM chest surgery can start with HRT >1 year successful – genital surgery Initiating Medical Treatment Getting Started….. Health Maintenance and Screening Health Maintenance and Screening The Two Commandments The Two Commandments Medical Treatments: Fundamentals Set realistic goals What will, might, and won't happen Emphasize primary and preventative care Use the simplest hormonal program that will achieve goals Every option doesn't work for every patient Cost, ease of use, safety Medical Treatments: Fundamentals Patience is a virtue Side effects are in the eye of the beholder Puberty comparison Take a long term outlook – safety and efficacy Baldness Screening: Medical Treatments: Fundamentals Patience is a virtue Side effects are in the eye of the beholder Puberty comparison Take a long term outlook – safety and efficacy Baldness Screening: Medical Treatments: Fundamentals Hormone treatments are one of the easiest parts FTM – Testosterone to normal male dose Dose that masculinizes and stops menses is enough MTF – More difficult because must suppress testosterone production to get best results Anti-androgen(s) – Spironolactone most common in US Estrogens titrated to higher than normal replacement doses for women Medical Treatments: MTF Estrogens at high dose Anti-Androgen 3-5x normal female replacement doses Partially to feminize Partially to better suppress testosterone Spironolactone and others Orchiectomy Results variable Age at starting is important Genetics plays a big part Hormones: MTF - Estrogens Oral - $ IM – Delestrogen $$ Premarin 1.25 – 10mg/d (usual 5-6.25) Estradiol 1-5mg/d (usual 2-4) Ethinyl Estradiol (OCPs) – drug interactions (PIs, P-450) 10-40mg q2weeks Can't easily 'stop' in an emergency when patient immobilized Strohecker's Compounding Pharmacy www.stroheckersrx.com Transdermal – Estradiol patch $$$ 0.1-0.3mg/day (1-3 patches/week – overlapped) Probably the safest for transwomen predisposed to thrombo-embolic dz (age>40, smoking, FH, etc.) Patient's often wary of starting but some prefer after trying it Hormones: MTF - Estrogens Estrogens - “Mixing E formulations” Some patients prefer – ?psychological effect? Keep track of total dose Lyon-Martin protocol Tom Waddell protocol: www.dph.sf.ca.us/chn/HlthCtrs/HlthCtrDoc s/TransGendprotocols.pdf Tendency for some to increase dose Hormones: MTF - Estrogens Hormones: MTF - Estrogens Hormones: MTF - Estrogens Beneficial effects Breast growth Suppress androgen production Change of body habitus (muscle and fat) Softening of skin Contraindications/Precautions Same as in cis-gender women Individual risk/benefits (MTF get greater benefits r/t mental health than menopausal cis-gender women.) In MTF with absolute CI – at least suppress testosterone Hormones: Estrogens Adverse Effects THROMBOEMBOLIC DISEASE Hepatotoxicity (especially ORAL) – incr TA, adenomas Prolactinoma (if dose is too high) Decreased glucose tolerance Lipid profile Gallbladder Disease Worsening migraine/seizure control Acne Breast Cancer Mood Decreased libido Hormones: MTF – Anti-Androgens Antiandrogens - All Spironolactone 50-200 mg/d divided bid Decrease T production or activity Slow/stop MPB, decreases facial/body hair growth Decrease erections/libido Improve BPH Cheap, reasonably safe Hyper-K+, diuresis, changes in BP, 'just don't like it' Decreased H/H (T erythropoetin) Cyproterone Hormones: MTF – Anti-Androgens 5-α-reductase inhibitors Finasteride, dutasteride, saw palmetto Finasteride (Proscar/Propecia) Stops conversion of T DHT 5mg tabs = $70 for 30 on Drugstore.com (~$40 at online Canadian pharmacies) 1mg tabs = $60 for 30 on Drugstore.com (~$30 at online Canadian pharmacies) Hormones: MTF - Progestins Usually requested for breast growth based on anecdotal evidence of efficacy Decrease total estrogen dose if using progestins No medical need to cycle – emotional needs? Hormones: MTF - Surgery? Stop E two weeks before any immobilizing event (incl SRS) resume a week after ambulating regularly ASA for those with increased risk of TE-dz (and maybe for those without) ASA stopped before surgery! Hormones: MTF - Efficacy What is adequate treatment? Pt outcomes – breast growth (peak 2-3 yrs), changes in skin, hair, fat/muscle, libido The floor – testosterone levels (female range) The roof – prolactin level Hormones: MTF - Monitoring Every Visit BP, Weight, BMI Safety Mental health General screening based on age, organ, gender, and sex appropriate norms Patient education S/Sx of TEDz Healthy Habits Vision changes or lactation Hormones: MTF - Monitoring Clinical monitoring most important Same adverse events in cis-gender pts w/ same meds (use what you know!) Labs 0, 2, & 6 mo initially then (semi)annual or after dose changes CBC, CMP, Lipids Glucose + K Cr Prolactin and T AST/ALT Prolactin Hormones: MTF - Monitoring 1st Pass Metabolism AST/AST Pituitary Adenoma Prolactin Hormones: MTF – Adverse effects Prolactin levels >20 possibly too much (? 'extra' E or other meds) >25 probably too much >30 definitely too much Elevated Prolactin: Stop Estrogens (not anti-androgen) If levels normalize, resume E at lower dose If levels remain high MRI r/o Prolactinoma Hormones: MTF – Adverse effects Elevated LFTs Look for other cause! If due to E, lower dose or stop until LFT normal Medical Treatments: FTM Hormones: FTM Testosterone Injected Esters (cheapest) Cypionate Enanthate Biggest vial is 5ml Slightly more expensive Other forms (not easily obtained in US) 200mg/ml: 1-10ml vials Cheapest - $125 for 10ml (~4mos supply) Intramuscular testosterone undecanoate (Nebido) Higher levels from injected maybe better for earlier transition Hormones: FTM Therapeutic Range 200 mg 2 weeks 100 mg week Steady State Usually achieved after 3-5 T½ T ½ of esters = 8-10 days Therapeutic Range Hormones: FTM Transdermal Expensive: $7 day retail, $1/day compounded Less variable levels Daily administration Risk of inadvertent transfer to others 1%, 5g QD 5%, 1g QD Hormones: FTM - Monitoring Every Visit BP, Weight, BMI Safety Mental health General screening based on age, organ, gender, and sex appropriate norms Patient education Vaginal bleeding Healthy habits Tx available for acne, MPB Medical Treatments: Fundamentals Clinical monitoring most important Same adverse events in cis-gender pts w/ same meds (use what you know!) Labs 0, 2, & 6 mo initially then (semi)annual or p changes Glucose CBC, CMP, Lipids Cr Hgb T (trough) in FTM ALT T Hct Treatment Effects (any delivery...) Nearly immediate Increased sebum and resultant acne Increased sex drive Sometimes – amenorrhea Metabolic changes start Emotional effects of 'finally starting T' Treatment Effects 1-6 months Voice change starts – parallels adolescence Hair growth (and loss) begins: parallels adolescence* Clitoromegaly starts Most amenorrhea (but E only decreases modestly)* Fat and muscle distribution changes Metabolic changes * Gooren, et al. 2008. “Review of studies of androgen treatment of FTM transsexuals: Effects and risks of administration of androgens to females”. Treatment Effects 1-5 Years Voice settles Final fat and muscle redistribution Clitoromegaly maxes Length average 4-5cm (3-7 cm range)1 Volume increases 4-8x2 Greater change in younger patients2 Breast involution? 1 Meyer W, et al. 1986 “Physical and hormonal evaluation of transsexual patients: a longitudinal study.” 2 Gooren, et al. 2008. “Review of studies of androgen treatment of FTM transsexuals: Effects and risks of administration of androgens to females”. Do they really shrink? Breast involution? Yes: 23 pts Slagter, et al. 2006. “Effects of Longterm Androgen Administration on Breast Tissue of Female-to-Male Transsexuals.” No: 29 pts Burgess & Shousha. 1993. “An immunohistochemical study of the long-term effects of androgen administration on female-tomale transsexual breast: a comparison with normal female breast and male breast showing gynaecomastia.” Some do, some don't: 2 other studies (14 total) At a minimum the fat decreases with metabolic changes Treatment Effects 5-10 years Final hair growth Androgenic alopecia can happen at any age – and does in 50% of FTMs by 13 years* * Gooren, et al. 2008. “Review of studies of androgen treatment of FTM transsexuals: Effects and risks of administration of androgens to females”. Hormones: FTM – Adverse effects Acne – MC side effect (chest/back) CV - worsening of surrogate endpoints lipids, glucose metabolism, BP Polycythemia (normals for males) Unmask or worsen OSA Enhanced Libido Androgenic alopecia 'Other' hair growth Androgenic Alopecia T 5-α-reductase DHT Finasteride aromatase E aromatase not very active stuff Hormonal Treatments: Is this safe? Van Kesteren P, et al. “Mortality and morbidity in TS subjects treated with cross-sex hormones.” Clin Endo (Oxf). 47(3):337-42.1997. DESIGN: Retrospective, descriptive study @ university teaching hospital that is the national referral center for the Netherlands (serving 16 million people) SUBJECTS: 816 MTF & 293 FTM on HRT for total of 10,152 pt-years OUTCOMES: Mortality and morbidity incidence ratios calculated from the general Dutch population (age and gender-adjusted) Hormonal Treatments: Is this safe? Van Kesteren P, et al. “Mortality and morbidity in TS subjects treated with cross-sex hormones.” Clin Endo (Oxf). 47(3):337-42.1997. 293 FTMs c/w ♀ ???? 10,152 pt years 816 MTFs c/w ♂ ???? Hormonal Treatments: Is this safe? Van Kesteren P, et al. “Mortality and morbidity in TS subjects treated with cross-sex hormones.” Clin Endo (Oxf). 47(3):337-42.1997. MTF/FTM total mortality no higher than general popl'n Largely, observed mortality not r/t hormone treatment VTE was the major complication in MTFs. Fewer cases after the introduction of transdermal E in MTFs over 40. VTE In MTFs increased morbidity from VTE and HIV and increased proportion of mortality due to HIV HIV Hormonal Treatments: Is this safe? Van Kesteren P, et al. “Mortality and morbidity in TS subjects treated with cross-sex hormones.” Clin Endo (Oxf). 47(3):337-42.1997. 293 FTMs c/w ♀ No Increase Morbidity or Mortality 10,152 pt years 816 MTFs c/w ♂ No Increase Mortality Increase morbidity r/t HIV/VTE Hormonal Treatments: Is this safe? Van Kesteren P, et al. “Mortality and morbidity in TS subjects treated with cross-sex hormones.” Clin Endo (Oxf). The absence of 47(3):337-42.1997. evidence is not evidence of absence Hormonal Treatments: Is this safe? Gooren L, et al. “Long term treatment of TSs with hormones: Extensive personal experience.” J Clin Endo & Metab. 93(1):19-25. 2008. Same clinic group as 1997 paper – now 2236 MTF, 876 FTM (1975-2006) Outcome M&M Data, data assessing risks of osteoporosis and cardiovascular disease, cases of hormone sensitive tumors and potential risks Hormonal Treatments: Is this safe? Gooren L, et al. Cardiovascular Risks Analyzed studies of surrogate markers for CVDz in MTF/FTM: Body composition, lipids, insulin sensitivity, vasc function, hemostasis/fibrinolysis, others (HC CRP) Some worsen, some improve, some are unchanged – much of the worsening seem likely due to weight MTF do worse than FTM Hard clinical endpoints show no difference Cardiovascular Disease What really killed the dinosaurs Cardiovascular Disease Screen and treat for modifiable risk factors in all patients Try to get modifiable risk factors under control before starting hormone replacement therapy Be respectful of patient autonomy and the difficulty of modifying certain risk factors Cardiovascular Disease - MTF Estrogen use increases risk for CVDz in cis-gender women Estrogen use in transgender women worsens surrogate markers for CVDz (Gooren et al.) Its a pretty good bet that Estrogen use in transgender women increases risk of CVDz Transdermal estrogen is the least risky (Gooren et al.) Aspirin use may ameliorate some of the increased risk Cardiovascular Disease - MTF Consider treadmill stress in patients with multiple significant risk factors for CVDz prior to starting hormones* Patient education and clinical monitoring for signs and symptoms of vascular events Be especially cautious in first two years of hormone treatments (Gooren et al.) *if reasonable given patient's situation Cardiovascular Disease - FTM Testoeterone use in transgender men worsens surrogate markers for CVDz, but not as bad as estrogen in MTFs (Gooren et al.) It is possible that testosterone use in transgender men increases risk of CVDz Motivate patients to take care of modifiable risk factors Cardiovascular Disease - FTM Consider treadmill stress in patients with significant risk factors for CVDz prior to starting hormones* Patient education and clinical monitoring for signs and symptoms of vascular events *if reasonable given patient's situation CVDz Risks: Hypertension Blood pressure at every visit for FTM and MTF Both exogenous estrogen and testosterone can cause increases in blood pressure In MTF patients with hypertension, spironolactone should be part of treatment if tolerated CVDz Risks: Dyslipidemia Annual fasting lipids in FTM and MTF Target LDL < 130 if no other risk factors Higher peak serum levels worsen lipids in both If hyperlipidemia exists Transdermal or weekly IM T in FTMs Transdermal (especially if elevated TGs) CVDz Risks: Diabetes Annual fasting glucose in FTM and MTF Both exogenous estrogen and testosterone worsen glucose tolerance (Gooren et al.) Both exogenous estrogen and testosterone cause weight gain (Gooren et al.) Transgender men with PCOS are at increased risk of DM-2 DM-2 or DM-1 are not contraindications to HRT CVDz Risks: Smoking LGBT communities have greater rates of smoking, alcohol, and drug abuse Bar culture Targeted marketing Vulnerable youth Smoking is a greater risk in MTFs due to risk of DVTs with estrogen supplementation Hormonal Treatments: Is this safe? Gooren L, et al. Hormone Dependent Tumors Lactotroph Adenoma Rare Check PROLACTIN Prostate Cancer Prostatectomy is not a part of SRS Screen based on the organs present Withdrawal of testosterone may decrease but doesn't eliminate the risk of BPH and malignancy Hormonal Treatments: Is this safe? Digital Rectal Exam is a little different Cancer – Breast MTF Risk increases with Age Estrogen duration > 5 years Progestagen exposure Positive FH Obesity Consider mammogram for age > 50 + other risk factor Weigh risks and benefits of mammography Augmentation and silicone pumping impair sensitivity Cancer – Vaginal MTF Case reports of neovaginal condyloma and one case of neovaginal dysplasia In patients with penile inversion vaginoplasty and history of genital warts or HPV positivity or exposure to HPV consider vaginal paps HPV assay???? Hormonal Treatments: Is this safe? Gooren L, et al. Hormone Dependent Tumors Breast cancer FTM Reported in 1 case 10 years after mastectomy Mastectomy reduces but doesn't eliminate risk Some injected testosterone is aromatized to estrogen Family history Pre-op mammo and post-op path???? Hormonal Treatments: Is this safe? Gooren L, et al. Gynecologic Tumors Gynecologic Tumors Cervical Ovarian Endometrial Gynecologic Cancer risks in FTMs 4 + ??? ??? Gynecologic Cancer risks in FTMs Normal Hyperplasia Dysplasia F T M ??? P If C infrequent O periods S Cancer ENDOMETRIAL CANCER Gynecologic Cancer risks in FTMs Gynecologic Cancer risks in FTMs Cervical Cancer Risk Reduction from Pap Smears 100 90 80 70 60 50 40 30 20 10 0 Never Every 10 yr Every 5 yr Every 3 yr Every 2 yr Every year IARC Working Group on Evaluation of Cervical Cancer Screening Programmes. Screening for squamous cervical cancer: duration of low risk after negative results of cervical cytology and its implication for screening policies. Br Med J. 1986;293:659-664. Gynecologic Cancer risks in FTMs Gynecologic Cancer risks in FTMs Cancer – Cervical FTM Consider HPV testing if very difficult paps Testosterone induces atrophy: tell the pathologist! Consider hysterectomy as alternative if greater surveillance needed in pts with extreme difficulty with paps (ex high grade SIL) Osteoporosis Vitamin D, Calcium and Exercise for anyone Gonadectomy increases risk Osteoporosis – MTF Pre-Orchiectomy – no different than risk of cis-gender men Post-Orchiectomy Continue hormones permanently unless good CI If estrogen CI'd use Ca and Vit D and screen for osteoporosis If present treat osteoporosis/osteopenia as in cis-gender women Osteoporosis – FTM Pre-Oophorectomy Screen as cis-gender women Effect of T uncertain If on provera > 5 years risk may be increased Post-Oophorectomy Continue hormones permanently unless good CI If T contraindicated, consider bisphosphonates If T contraindicated (or patient on lower dose or off for substantial periods) consider earlier screening Hormonal Treatments: Is this safe? Gooren L, et al. “Long term treatment of TSs with hormones: Extensive personal experience.” J Clin Endo & Metab. 93(1):19-25. 2008. Conclusion: “It is clear now that sex reassignment of TSs benefits their well-being, although suicide rates remain high. Cross-sex hormone administration to TSs is acceptably safe in the short and medium term. However, potentially adverse effects in the longer term are presently unknown. The data, although limited, of surrogate markers of CVDz and the reports of cancer in transsexuals leave room for cautious optimism. But true insights can only come from close monitoring and thorough reporting of adverse effects in the literature. Sexually Transmitted Diseases Risk is determined by behaviors and partners Risk is not determined by identity Ask sexual health questions based on behaviors while respecting identity Example: A transwomen who has sex with men is heterosexual but is at greater risk if: She is the receptive partner in anal intercourse Her partner has or had sex with men She feels pressure to have unprotected sex due to fear of rejection or desire to express love for her partner Sexually Transmitted Diseases HIV Hepatitis A, B, C Syphilis Gonorrhea, Chlamydia, Trichomoniasis HPV Herpes I and II What about regret ??? Pfäfflin, F., & Junge, A. (1998). Sex reassignment – Thirty years of international follow-up studies; SRS: A comprehensive review, 1961-1991 Düsseldorf , Germany: Symposion Publishing. 74 f/u studies and 8 reviews published b/w 19611991 Less than 1% long term regret in over 400 FTMs 1.5% regret in over 1000 MTFs Compare with regret rates for gastric bypass, breast recon after mastectomy, surgical sterilization Studies after 1991 show lower rates of regret (and found risk of regret correlates well with surgical success.) Is it effective? Suicidality decreased from 20-30% pretreatment to 3% post treatment Decreased depressive symptoms, improved social functioning, regrets rare And you be the judge.... Surgical Treatments Non-Genital Surgery Transwomen Transmen Facial Feminization Rhinoplasty Facial bone reduction Blepharoplasty Face lift Breast Augmentation Thyroid chondroplasty (trach shave) Voice modification Suction lipoplasty Chest Reconstruction b/l mastectomy Nipple grafting Re-contouring Liposuction Facial Feminization Surgery (FFS) Facial Feminization Surgery Chest Reconstruction Genital Surgery Options Transwomen Orchiectomy SRS/GRS Transmen Clitoral release / Metoidioplasty Urethroplasty Scrotoplasty Testicular Implants Phalloplasty Vaginectomy Hyst/BSO SRS/GRS for Transwomen Removal of testes and scrotum Creation of vagina using “penile inversion” Re-positioning of urethra Creation of clitoris and labia Requires post-op dilations to maintain neovagina Often require lubricant for intercourse Can get vaginitis like any other women SRS/GRS Vaginoplasty & Labiaplasty Metoidioplasty Creates a small neo-phallus Freeing of the hypertrophied glans clitoris from suspensory ligaments Repositioning to more superior location +/- liposuction of mons area +/- bulking up on glans with other tissues +/- scrotoplasty, testicular implants, and urethroplasty Some patients will use topical 2% testosterone and/or clitoral pumps to increase size of glans in preparation for genital surgery Metaidoioplasty (before) MtF Transsexuals - TransWomen FtM Transsexuals - TransMen Trans-Specific Care in the College Health Setting Safe, supportive environment at health center Sensitivity training / education for all staff Use correct pronouns, preferred names Don’t make assumptions – ask Don’t be intrusive Keep prejudices to yourself Rethink forms, i.e. asking for gender M/F Trans-Specific Care in the College Health Setting Support and Advocacy LGBT resource center or equivalent Housing, registrar, name changes Community LGBT groups Online LGBT groups Knowledgeable mental health providers Within the health/counseling center In the area Trans-Specific Care in the College Health Setting Medical Care Routine health maintenance: care for the anatomy Hormone Prescription and Monitoring Peri-Surgical Care At the health center In the community Letters Pre-Op exams – be sure to thoroughly examine the anatomy which will be altered Post-Op Wound care – suture removal, pulling drains, assessing healing Surgery Know who the surgeons are, call them if questions Trans-Specific Care in the College Health Setting Insurance Coverage AMA Resolution 122 www.ama-assn.org/ama1/pub/upload/mm/471/122.doc Meeting the Student Need Cornell UC Davis All-Staff Training on Gender Identity Yes yes Physician initiates and monitors hormonal tx yes yes Nurses administer injections and teach pts to selfinject yes yes Follow the WPATH Standards of Care yes yes Provide pre-and post-surgical care yes yes Pharmacy stocks / special orders hormones, syringes, needles, and sharps boxes yes yes Physician has ongoing relationship with LGBT Center yes yes SHIP Covers medical care and counseling yes yes SHIP covers surgical treatments Not yet yes Counselor trained in gender identity yes Not yet Campus Trans Support group yes Not yet Trans info on website yes Not yet Trans-Specific Care in the College Health Setting You can do this. It’s the right thing to do. Lots of resources available Not technically difficult To NOT provide proven effective medical therapy is discriminatory You will improve your patients lives immeasurably. Thank you! Questions! msfamula@ucdavis.edu nick@lyon-martin.org amh89@cornell.edu seth.pardo@cornell.edu