American Association on Health
and Disability
Roberta Carlin, MS, JD
Executive Director
rcarlin@aahd.us
www.aahd.us
What is the Mission of AAHD?
Advance Health Promotion and Wellness Initiatives
for Children and Adults with Disabilities
Research -Education - Public Awareness - Advocacy
Federal – State - Community
What is AAHD?
National Cross – Disability & Public Health
Organization
Eliminate Health Disparities
Reduce Incidence of Secondary Conditions
Community Inclusion and Full Accessibility
Who are AAHD Members?
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Disability Researchers
Public Health Professionals
Disability Organizations
State Health Departments
Policy Analysts
Healthcare Providers
People with Disabilities
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What are AAHD Programs?
AAHD Website – www.aahd.us
AAHD Health Promotion Resource Center
AAHD Public Policy Center
Disability and Health Journal
Disability and Health in the News
AAHD Regional/State Liaisons
AAHD Scholarship Program
Disability & Health Journal
www.disabilityandhealthjnl.com
How Did AAHD Receive Funding in 2014?
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AAHD Memberships
Government Contracts (CDC)
Universities (USC, UNH, UAB - NCHPAD)
Private Contracts (Susan G. Komen,
Christopher and Dana Reeve Foundation,
Robert Wood Johnson Foundation, NCOA)
• Private Donations
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AAHD Website
Health Promotion Resource Center
Health Promotion Resource Center
Sample Abstract Topics (50+)
Accessibility
Aging
Autism
Depression
Exercise
Nutrition
Social Determinants of Health
Abstracts
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AAHD Initiatives
Sample AAHD Initiatives
Project Accessibility USA
www.project-accessibility-usa.org/Home.htm
National Disability Navigator Resource Collaborative
www.nationaldisabilitynavigator.org
NCHPAD – National Center on Physical Activity and Disability
www.nchpad.org
Disability Research and Dissemination Center
www.disabilityresearchcenter.com
Commit to Inclusion
www.committoinclusion.org
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AAHD Dissemination
Targeted Dissemination
Strategies
Broad Social Media Techniques
Multiple List Serves
Webinars
Issue Briefs
Partner Collaborations
Helping People with Disabilities
Get the Health Coverage They Need
Presenter: Karl D. Cooper, Esq.
American Association on Health and Disability
Inclusive Health Coalition
December 18, 2014
What is the NDNRC?
The National Disability Navigator Resource Collaborative (NDNRC)
is an initiative of seven national cross-disability organizations in
order to provide disability information and support to navigators
and other enrollment specialists as they assist consumers with
enrollment through the Affordable Care Act insurance
marketplaces.
Who is the NDNRC?
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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NDNRC Partners
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Mission Statement
The mission of the National Disability Navigator Resource
Collaborative (NDNRC) is to provide cross-disability
information and support to Navigators and other
enrollment specialists thereby ensuring people with
disabilities receive accurate information when selecting
and enrolling in insurance through the Affordable Care
Act Marketplaces.
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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NDNRC Home Page
www.nationaldisabilitynavigator.org
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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NDNRC Home Page
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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State Pages
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Resources & Links
CATEGORIES
• Enrollment Resources – Disability Specific
• Enrollment Resources – Mental Health and Behavioral Health
• Enrollment Resources – Populations with Special Health Care
Needs
• Enrollment Resources – ACA Marketplace and Medicare
• Enrollment Resources – ACA Marketplace and Medicaid
• Enrollment Resources – Overview
• Enrollment Statistics
• Affordable Care Act (ACA) Resources – Government
• Affordable Care Act (ACA) Enrollment Resources
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Disability Guide
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Disability Guide
Table of Contents
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Introduction
What Are the Purposes of the Supplemental Disability Guide?
Key Questions for Navigators
Who Are People with Disabilities?
What Problems and Barriers Have People with Disabilities Historically
Encountered Obtaining Healthcare Insurance?
How Do Disability Rights Laws Affect the Operation of the Marketplace?
What Do Navigators Need to Know about Disability?
How Is Medicaid Eligibility Being Determined for People with Disabilities?
Scenarios
What Types of Accommodations Should Navigators Know about?
NDNRC Fact Sheets
Resources
Glossary
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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16 FACT SHEETS
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Comparing Health Plans’ Benefits and Coverage Summaries
Getting and Using Health Plan Evidence of Coverage
Using Health Plan Customer Service
Rehabilitation and Habilitation Services and Devices
Prescription Medication Benefits
Supporting Collaborations Between Navigators, Connectors and
Assisters, and Local Disability and Affinity Organizations
Mental Health and Substance Abuse Parity
Medically Frail Status as an Exemption to Receiving Medicaid
Alternative Benefit Plan with Essential Health Benefits
Streamlined Marketplace Application Process
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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16 FACT SHEETS
10. Medical Supplies Benefits
11. Civil Rights of People with Disabilities under the Americans with
Disabilities Act and Section 504 and Section 508 of the
Rehabilitation Act
12. Process for Medicaid Eligibility
13. Referral and Resource Lists
14. Information for People on Medicaid Home and CommunityBased Services Waiver Waiting Lists
15. Medicaid Buy-In
16. Information for Veterans Regarding Department of Veterans
Affairs Healthcare*
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Health Insurance Jeopardy!
It’s not about the answer.
It’s about asking the right question!
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Year One Observations
NEEDS BY DISABILITY CATEGORY
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Deaf and Hard of Hearing
Children with Special Health Care Needs
Behavioral Health (Mental Health and Substance Use Disorder)
Prescription Drug Formularies
Rehabilitation and Habilitation Therapies
Durable Medical Equipment and Assistive Technologies
Coverage for Individuals Newly Receiving SSDI
Enrollment Accessibility
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Year Two New Fact Sheets
16. Renewals & Redeterminations
17. Moving from Coverage-to-Care for People
with Disabilities
18. Meeting the Communication Needs of
Specific Disability Populations
19. Disability Etiquette
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Year Two New Fact Sheets
POPULATION SPECIFIC
What to Know When Assisting a Consumer with:
• Autism Spectrum Disorder
• Child with Special Health Care Needs
• Intellectual Disability
• Mental Illness
• Multiple Sclerosis
• Paralysis
• Information for Veterans Regarding
Department of Veterans Affairs Healthcare*
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Community Outreach Collaboratives
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Rhode Island Parent Information Network, Cranston, RI
Center for Independence of the Disabled, NY, New York, NY
NAMI Southwest Pennsylvania, Pittsburgh, PA
Lakeshore Foundation, Birmingham, AL
Family Voices Indiana, Indianapolis, IN
Wayne State University, Detroit, MI
University of New Mexico Center for Development and Disability,
Albuquerque, NM
8. NAMI Kansas, Topeka, KS
9. Family Voices Colorado, Centennial, CO
10.North Dakota Center for Persons with Disabilities at Minot State
University in partnership with Family Voices of North Dakota,
Minot, ND
11.PAVE Family to Family Health Information Center, Tacoma, WA
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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How to stay involved
• Sign up to receive NDNRC updates:
http://www.nationaldisabilitynavigator.org/
• Sign up for AAHD’s newsletter:
http://www.aahd.us/contact/
• Check out AAHD’s Resource Center:
http://www.aahd.us/resource-center/
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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Contact Us
American Association on Health and Disability
110 N. Washington St., Suite 328-J
Rockville, MD 20850
Phone: (301) 545-6140
Roberta Carlin, MS, JD
rcarlin@aahd.us
Karl D. Cooper, Esq.
kcooper@aahd.us
National Disability Navigator Resource Collaborative
A project of the American Association on Health and Disability
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