The Fitzpatrick Building
188-194 York Way
London, N7 9AS
West Midlands Regional Meeting
11th March 2014
MINUTES
Present
Tina Swani (TS) CHAIR
John Bawden (JB)
Beverley Ballinger (BB)
Lizzie Chambers (LC)
Candy Cooley (CC)
Josephine Dorling (JD)
Christine Green (CG)
Elizabeth Hancock (EH)
Peter Holliday (PH)
Mark Jackson (MJ)
Stevan Jackson (SJ)
Pippa Knight (PK)
Dr Emer McKenna (EMc)
Katie Mitchell (KM)
Terry Osborne (TO)
Duncan Phimister (DP)
David Pratt (DP)
Michaela Quinn (MQ)
Ann Smallman (AS)
Nicky West (NW)
John Woodall (JW)
CEO Birmingham St Mary’s Hospice
Chairman, St Richards
Associate Macmillan Development Mgr, Macmillan
Exec Director, UK Transition Taskforce, Acorns
Chairman, Primrose Hospice
Snr Nurse Trainer & Comp Therapist, John Taylor Hospice
Marie Curie Cancer Care
CEO, Mary Ann Evans Hospice
CEO, St Giles Hospice
CEO, St Richards
CEO, Mary Stevens Hospice
Campden Home Nursing
Consultant in Palliative Care, Douglas Macmillan Hospice
Head of Community Investment, John Taylor Hospice
CEO, Kemp Hospice
Chairman, Mary Ann Evans Hospice
Snr Mgr Development & Influence, Myton Hospice
Strategic Planning & Business Mgr, DMH
Head of Care Services, Acorns Black Country
CEO, St Michaels Hospice
Chairman, The Mary Stevens Hospice
Apologies
Patience Adaimensha
Emma Aspinall
Teresa Bailey
Julie Gander
Jackie Kelly
Jeremy Kirk
Kate Lee
June Patel
Jean Luc-Priez
Sarah Riches
Debbie Talbot
Fiona Taylor
Manager, Arboretum Nursing Home
Director of Care Services, Acorns Children’s Hospice
End of Life Facilitator, Alexandra Hospital
GSF Lead Nurse, Arboretum Nursing Home
Director of Care Services, Katharine House Hospice
NIHR Clinical Research Network, West Midlands
CEO, Myton Hospice
Care Director, St Richards Hospice
CEO & Company Secretary, Lench’s Trust
NCPC WM Regional Representative & St Giles Hospice
Medical Director, Birmingham St Mary’s Hospice
Macmillan Development Manager (Birmingham & Solihull)
1.
2.
Agenda Item
Welcome and Apologies
TS welcomed all to the meeting and introductions were made. Apologies were noted
as above.
Minutes of the Last Meeting Held on 10th September 2014
The minutes were agreed as a true and accurate record
NCPC West Midlands Regional Meeting/March2015/Minutes
Page 1 of 4
Action
3.
Matters Arising
3.1 Feedback from Collaboration Event
TS discussed the enclosed minutes and summary of the workshop. The group
were asked to consider if it would be worthwhile to hold a similar type of event on a
regular basis. In general it was felt the event had been a very valuable experience
with good opportunities to share experiences and explore issues. All were in
agreement to continue to hold this type of event yearly. TS highlighted the
possible cost implications involved in holding a larger event and suggested forming
a small working group to look at organising an event and costs involved. SJ, CC
and MJ offered involvement from their respective hospices.
SC was asked to liaise with the NCPC regarding involvement with such an event.
The group were asked to for ideas for topics to be discussed at the event and the
following suggestions were made:
 Bereavement
 Dementia Care
 Transitional Care and enablement working with patients/families
 Looking at sustainability to 2020 and beyond
Please email any further suggestions for topics or recommendations of speakers to
Kate Lee and Donna Godding
3.2 Transition Taskforce Newsletter & Meeting Update
Please see LC presentation below:
NCPC - Lizzie Chambers - Short_Transition_Taskforce_Presentation.pdf
The group acknowledged the importance of all organisations working together to
combine skills, knowledge and experience and if was felt organisations should be
engaged with adolescents from an earlier age to help to improve the transition
experience and build trust between adult services and families. LC stressed the
tiniest differences can make a huge difference and encouraged more collaborative
working with external organisations e.g. housing orgs.
The group discussed personal budgets, the complexities surrounding funding and
the potential negative impact of personal budgets on charitable fundraising. LC
directed the group to the resources available on the website around personal
budgets and advised there was also information available for commissioners. The
group also discussed the difference in respite care in an adult setting and how this
could impact on younger patients and their families.
TS on behalf of the group thanked LC for her informative presentation
3.3 Change in Chair
TS reminded the group she was resigning and thanked everyone for their
contribution during her term as Chair. Kate Lee will be taking over this role as
from today’s meeting.
4.
Feedback from the National Council Regional Meeting (Simon Chapman)
Please see SC presentation below:
NCPC - Simon Chapman - Douglas Macmillan Hospice 2015.pdf
NCPC West Midlands Regional Meeting/March2015/Minutes
Page 2 of 4
SJ/CC/
MJ
SC
Key points:
 The Choice review was explicitly around adults
 The Public Health Approaches to EoL care toolkit is available via the NCPC
website
 Dying Matters Week – thanks to all for your support. The theme this year is talk,
plan, live
 Palliative Care Currency – NCPC continues to work closely with Hospice UK and
Sue Ryder for answers on decisions awaited. The third version of the Developing
Palliative Care Funding was published in February and this will be used for the
trials in 2015/16
TS thanked SC for his presentation
The meeting was adjourned for refreshments from 11:25 – 11:45
5.
The New Pathfinder Communities (Simon Chapman)
Please see SC presentation contained within agenda item 4
6.
Mental Health and End of Life Care (Tina Swani)
The group were asked to divide into four groups to share their experiences of working
with mental health patients who are at end of life. The groups were then invited to
feedback to the whole meeting. Key points included:
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7.
The needs of dementia patients has been included to some level when developing
future strategies
Dementia can be the ‘elephant’ in the room when discussing EoL care
EoL care may not be necessarily the right models for patients with dementia.
Perhaps look at maximising expertise for patients at their place of home and what
this model would look like for hospices
John Taylor Hospice are looking at maximising H@H care for patients at home and
what modifications would be required to the current building for dementia patients
Hospices need to recognise they are not experts in dementia however they have a
role in training staff in EoL care. It is about sharing hospice care skillset with other
organisations
Birmingham St Mary’s Hospice held an event on Mental Health day recognising the
expertise / experience in the local community. The event brought together many
organisations e.g. the community health trust, and local housing groups. 10
recommendations were identified for the group to take forward
Dementia was identified as a challenge/priority by the government in 2012 with
some EoL care challenges identified in the Prime Minister Challenge for 2020
How Competitive Tendering Processes are Impacting
The group were invited to share their experiences of competitive tendering.
Mary Stevens Hospice had recently been involved in a tender process through an
alliance formed with Compton Hospices. SJ reported the completion of the PQQ had
taken some considerable time. The tender was eventually withdrawn by the CCGs for
reasons unknown however it has been re-launched today. Representatives from the
Hospice Consortium were attending the launch event and SJ would feed back further
at the next meeting.
It was felt that tendering processes can be very unclear and at times extremely
frustrating with the amount of effort involved being disproportionate compared to the
minimum amount of funding which may be received. However the group
acknowledged Hospices will need to become more involved in competitive tendering
processes in the future in particular with local authorities if Hospices are looking to
widen their services beyond what Hospices have traditionally offered
NCPC West Midlands Regional Meeting/March2015/Minutes
Page 3 of 4
8.
9.
Any Other Business
8.1 Minimum Data Set – Reminder to forward your responses please asap
Meeting closed 12:30pm
Date of Next Meeting
Wednesday 9th September 2015 at St Giles Hospice
NCPC West Midlands Regional Meeting/March2015/Minutes
Page 4 of 4