Prairie Independent Living Resource Center, Inc. The Voice of PILR December 2015 Volume 14, Issue 4 Chris Owens, Editor Jessica Hutchison, Design Layout *Picture of a little girl elf wearing a Santa hat and dragging a bag full of presents 2016 is just around the corner. On January 15, 2016 PILR will celebrate 19 years of serving Kansans with disabilities. Back then we provided the five core Independent Living Services in three counties. Today the center serves over 50 counties and has a variety of programs and services designed to assist and empower people to live full inclusive lives. We have a dedicated Board and staff, the majority of which are people with significant disabilities. It is our wish that 2016 brings each of you the desire to set new goals; the drive to achieve those goals and make 2016 your most successful year ever. If we at PILR can be of assistance, please contact us. We will be there to provide as much or as little help as you request. On behalf of the Board of Directors and the Staff at Prairie Independent Living Resource Center, Inc., have a blessed holiday season! *Picture of a banner that says Happy New Year New and Improved! PILR’s website has a new look. Thanks to a Recognition Grant from the Kansas Health Foundation, pilr.org has been redesigned and is now quite easy to navigate using your smart phone, tablet or personal computer. Our new site has a blog; check it out frequently to see what’s being posted. We’ll try to make it interesting, informative, and fun; and knowing the PILR staff, there will be some humor too. Let us know what you think. Thank you from the FMS Department We would like to thank all of our consumers who chose us as their Financial Management provider over the years and we hope that we have served you well. We have appreciated your support, cooperation and patience throughout all the many changes over the years with the HCBS waiver programs. We hope that your transition went well and if we can serve you in the future, please do not hesitate to contact us here at Prairie Independent Living Resource Center as we will continue to work with people with disabilities. You will be missed and we wish you the best with your new provider. Happy Holidays!! Jessica, Tyler, Madison, Tammie, and Andy *Picture of Several blue snowflakes in various sizes CALENDAR OF EVENTS December 2015 8th Peer Support Group, 2:00PM-4:00PM, 400 S Main, Pratt, KS 9th Low Vision Support Group, 1:30PM-3:00PM, 101 W. 1st, Hutchinson, KS 22nd Peer Support Group, 2:00PM-4:00PM, 400 S Main, Pratt, KS 24th Christmas Eve, All PILR locations closed 25th Christmas Day, All PILR locations closed January 2016 1st New Year’s Day, All PILR locations closed 5th PILR Board Meeting, 3:00PM-5:00PM, 17 S. Main St., Hutchinson, KS 12th Peer Support Group, 2:00PM-4:00PM, 400 S Main, Pratt, KS 13th Low Vision Support Group, 1:30PM-3:00PM, 101 W 1stAve, Hutchinson, KS 18th Martin Luther King Jr. Day, All PILR locations closed 26th Peer Support Group, 2:00PM-4:00PM, 400 S Main, Pratt, KS February 2016 9th Peer Support Group, 2:00PM-4:00PM, 400 S Main, Pratt, KS 10th Low Vision Support Group, 1:30PM-3:00PM, 101 W 1stAve, Hutchinson, KS 23rd Peer support Group, 2:00PM-4:00PM, 400 S Main, Pratt, KS Loan Closet Are you in need of a walker, rollator, shower chair or other piece of durable medical equipment? If so, give PILR a call as we might be able to meet that need. PILR has durable medical equipment available to loan to people. Some available equipment may include Toilet Seat Risers, Walkers, Wheelchairs, Commodes, Shower Chairs, Cain’s, video magnifiers, etc. We also take donations of gently used equipment. The equipment is loaned to individuals free of charge and is available as long as there is a need. All equipment is not available at all times; please contact our offices for equipment availability. PILR also has limited personal hygiene items available in the Hutchinson Office. K-LOAN PILR offers an Alternative Finance Program through K-LOAN…formally known as KATCO to our Consumers. Heather Jones has completed her training as the South Central Regional Loan Representative and is located in the Hutchinson Office. The program offers low interest Loans on a variety of Assistive Technology devices and equipment as well as recreational, sports, and much more! Contact Heather at extension 240 for more information. DURABLE MEDICAL EQUIPMENT Do you have health equipment you no longer need that could be useful to someone else? If so, consider donating it to PILR. Our consumers need wheelchairs, walkers, rollators, shower seats, CCTVs, video magnifiers, and canes. If you have any of those items you’d like to donate, please call 620-663-3989 or you may drop items off at 17 S Main, Hutchinson. Your donation will be greatly appreciated! WE WOULD APPRECIATE A HELPING HAND! As a non-profit 501(c) 3 organization, PILR relies on generous donations in order to provide services for our consumers. Donations made to PILR go towards providing services, youth projects, and assistance with purchasing equipment for people with disabilities including wheelchairs, ramps, home modifications, and other assistive devices to name a few. As PILR looks to the future, we could use your help to help others. Making your tax deductible donation is easy! You can do one of the following: Visit our website at www.pilr.org and make a donation through PayPal Mail your donation Bring it into the Hutchinson office Name: Address: Telephone: Please make your tax-deductible donation payable to Prairie Independent Living Resource Center, Inc. and send to: Development Office PILR 17 S. Main Hutchinson, KS 67501 Support PILR through: PayPal at www.pilr.org Register with Good Search, Good Shop, or Good Dining Register your amazon account with us on Amazon Smile! Register in our Dillons Community Rewards Thank you!!! A Trip worth Taking Part IV By Roger Frischenmeyer So we are finally on the last leg of our journey and this is where people with disabilities begin to get their voice. Many people with disabilities and allies of people with disabilities were involved in the civil rights movement of the 1960’s, yet when the civil rights act was passed, people with disabilities weren’t protected. What we learned though was that at least under the law, we could have our rights guaranteed. It would take another 25 years before people with disabilities had their rights fully protected by law, but I guess I am getting ahead of myself, so I better put this train in reverse and go back a little so that I can introduce you to a few people who played major roles in this journey. First, I want you to meet Ed Roberts. Ed Roberts was living the normal life of a teenager in the early 1950’s when he became ill with polio. Within earshot of him his mom asked the doctor if Ed was going to live or die and the doctor told her she should hope that he dies because if he didn’t, he would be a vegetable the rest of his life. Ed tried for a while to kill himself which was really difficult since he was in the hospital and paralyzed, but there came a point where he decided he wanted to live. He finally left the hospital and at first attended school by phone, but finally his senior year he started attending in person. He then found out that he wasn’t going to get his diploma because he hadn’t taken drivers education or physical education at which time he and his mom went to the newspapers and got that decision reversed. He then wanted to go to college and again had to advocate for himself as the VR agency told him that they couldn’t help him because he was too disabled to work. Ironically, 15 or so years later, he was the director of that agency. While I could spend a lot more time talking about Ed Roberts I want to introduce you to a couple more people. So here is in my opinion what you need to know about Ed; he did go to college and eventually helped found what we know today as centers for independent living. If you want to know more about him go to YouTube and search for Ed Roberts, there are some good videos there. The next person I want you to meet is Wade Blank. Wade was working in a nursing facility which had a lot of young people as residents. He decided to take some of them to a Grateful Dead concert and was fired from that facility. Wade then started what he called the Atlantis Community which was an early example of a system that provided personal care services in the community. What he found upon starting Atlantis, was that there was no accessible transportation, which led to the formation of the group ADAPT, Americans Disabled for Accessible Public Transportation. On July 5, 1975, the group staged a protest at the corner of Colfax and Broadway, one of the busiest intersections in Denver. Eventually, because of ADAPT, Denver equipped their busses with wheelchair lifts. While ADAPT worked throughout the 1980’s to get accessible public transportation, after the passage of the Americans with Disabilities Act, their focus changed to personal care attendants. ADAPT is now known as American Disabled for Attendant Programs Today. While there were many people who played major roles in working for the equality of people with disabilities, the final person you need to meet is Justin Dart. Justin Dart came from a wealthy Chicago family and he too had polio. He graduated from the University of Houston, but they refused to give him his teaching license because he had a disability. From his graduation until 1967 he founded three different companies, but starting in 1967 he spent the rest of his life in Disability activism. Justin and his wife, Yoshiko, toured the United States twice, at their own expense, asking people with disabilities what they wanted out of their government and country. This information was a large part of what was used to write the Americans with Disabilities Act. While there is so much history that we didn’t event talk about, I hope this trip has helped you realize how fascinating disability history can be. We have made a lot of progress toward equality, but we still have a long way to go. Spend some time on the internet looking at the history of people with disabilities and then decide what your part in that history will be. Dodge City Lunch & Learn On the 19th of November, the Dodge City office was able to hold a Lunch & Learn in the Hampton Room of the Victory Electric building. This was a great opportunity for our small PILR office to network with some great resources in the Dodge City area. It was also a great opportunity for those local resources to really get to know about PILR and what we can offer. We had a total of 15 people attend. During the event Erica, Tasha, Mignon, Chelsey, and Toni were all able to present on various services that PILR offers. There was lots of great discussion afterwards and what seemed like a lot of interest from some of the community members. Every single person that was there wanted to start receiving our quarterly newsletter and most wanted follow-up information from us about PILR services! This was an awesome turn out for us and I, along with the rest of the staff, am so pleased with the interest and support that we are starting to receive from the great community of Dodge City. I cannot wait to see what kind of opportunities this opens up for PILR and our past, present, and future consumers! Thank you to all that were able to attend! *Picture of a snowman tangled up in Christmas lights Dillons Community Rewards A big THANK YOU goes out to Dillons for making this possible! By simply registering your Dillons Plus Card and selecting Prairie Independent Living Resource Center, Inc., as your community partner, Dillons will donate a percentage of your purchases back to PILR! If you already have your card set up to donate to PILR please re-enroll after January 1, 2016! If you are not currently enrolled we would love for you to enroll today! It’s easy to do! Just follow these steps: 1. Go to www.dillons.com/communityrewards and create a Dillons.com account by clicking “Register” in the upper right corner. Enter the requested sign in information – this will require a valid email address, and click “Create Account.” Add your Dillons Plus Card or ALT ID to your account. (Enter the 12-digit number from the back of your Plus card or your 10-digit phone number.) If you already have a registered Dillons Shoppers card, sign in. 2. Once signed in to your Dillons Plus Card account, you can enroll your Dillons Plus card in Community Rewards by scrolling to the bottom of your account summary and clicking ENROLL under Community Rewards. There you can search for Prairie Independent Living Resource Center, Inc. and choose us as your community partner. Once you have found us, click "Save." 3. START SHOPPING!! That’s all there is to it! Just be sure to scan your Dillons Plus Card every time you shop! If you have any questions or need any help enrolling, just call us and we will help you! PILR’s Star of the Month Congratulations to our PILR’s Star of the Month October Star Employee of the Month: Tasha Konrade, the Services Coordinator in the Dodge City and Pratt offices. Tasha has done an excellent job involving PILR in her communities! Thank you, Tasha! November Star Employee of the Month: Chris Owens, our Executive Director. There are so many reasons Chris deserves to be our Star of the Month and PILR would not have been able to accomplish all it has without her! Thank you, Chris! *Picture of Christmas gifts placed with holly and berries, followed by a red bicycle, followed by more gifts with holly and berries The Bicycle Story By Mignon Luckey When I was about 8 years old my sister and I both received bicycles. The difference between the bicycles was that my bike had training wheels and hers did not. I felt left out because my sister and the other neighbor children could ride their bicycles in the street and I had to ride mine on the sidewalk. Some of my friends tried to use their bikes to try to teach me how to ride a bike with no training wheels. They were unsuccessful. One day when I was 11 years old my father took the training wheels off of my bicycle. He and I were determined that I was going to learn to ride a bicycle like my sisters and my friends. One day my parents and my sisters and I were out in our back yard. My father decided that he would show us how he could ride a bike backwards. We all watched him ride the bike backwards down the hill by our house. We all thought it was funny. I asked him if he would teach me how to ride my bike. He helped me on the bike and gave me instructions on how to keep the bicycle wheels straight for my first ride. After many tries and falls off of the bike, I learned how to ride the bicycle. My parents suggested that I just ride the bike around the block. I am sure that the neighbors had a good laugh watching me trying to keep my wheels straight and at times falling off of the bike. When I was 13 we celebrated Christmas with my mother’s parents. After everyone had received their gifts I was given a note to go into the kitchen. When I went into the kitchen I found a brand new red bicycle without training wheels. I was allowed to ride the new bicycle in my grandparent’s neighborhood; their street was made of sand and gravel. That was a different experience when I fell off of the bicycle. My bicycle skills improved and I was able to ride my bicycle several blocks to my friend’s house. One day the tires on both of our bicycles were low. We went to a gas station down the street from her house to get air in our bicycle tires. She rode her bicycle back home. I rode my bike back home on Wyatt Earp Blvd., which is a major highway through Dodge City. I made it home without falling off my bike. The moral to this story is, if you fall, get back up and keep on trying because you can make it. Giving Thanks PILR would like to thank the employees from ALCOA for their generous donation of time and money to assist us with furthering our mission of working for the inclusion of people with disabilities. ALCOA staff assisted us with a Delta Dental Grant by putting together bags of toothbrushes, toothpaste and floss. Other staff have volunteered to participate in 3rd Thursday, and even helped our consumers move. We greatly appreciate the support of ALCOA and their employees. PILR would like to thank the members of the Volunteer Center of Reno County. The volunteers help us so much and always do it with a smile; we couldn’t do as much as we do if it weren’t for them! PILR would also like to thank every person that has donated to us this year. Your donation, no matter the size, helps us further our mission and is greatly appreciated! Another Successful Disability Mentoring Day! Prairie Independent Living Resource Center would like to give a huge “thank you” to the following business and people for donating money, promotional items, and acting as mentors for our Disability Mentoring Days in Hutchinson and Pratt. Your help allowed almost 300 high school students with disabilities the opportunity to learn about a career they may pursue after graduation and we appreciate your support! Conrade Insurance Amerigroup Sunflower United Health Care Brian Teichmann, AHIS 1st National Bank Pools Plus, Inc. Stephanie Guthrie Betty Pinkston Frances Garcia Roger Frischenmeyer Chris and Dan Owens Diane Marshall David Sieg Carrellen Lewis Kohl’s Associates in Action RSVP K-Mart Target City Beverage Nex-Tech Wireless Sugar Sweets Baking Taco Johns Delta Dental Hutchinson Community College KFC Wendy’s McDonalds Hutchinson Regional Medical Center Hutchinson Clinic People’s Bank & Trust Walmart Rona Cellers Chrisi Cobb Ray and Edith Wingert Kanza Coop Sanford’s Computer works Walmart Dr. Todd Esau, DDS First United Methodist Church Dr. Jon Austin, Hutchinson Small Animal Hospital Gale Wall Photography Hatch Studio Kathy Moore Dale’s Northgate Dillons Marketplace The Alley Tractor Supply Company Westlake Hardware South Lucky Kid, Ad-Aspera Radio K-HUT Radio The Hutchinson News Reno County Landfill Performance Auto Sutton Kaufman Hadley Daycare HCC Athletic Department Mrs. Johanning, South Hutchinson Elementary Mrs. Krehbiel, South Hutchinson Elementary Luke McConnaughy, Upper Edge Realty Miller Home Builders SADVC Ward Davis Builders Sidney’s Hairdressing College Mrs. Pappenfus, Plum Creek Elementary Thomas Stanton, Deputy District Attorney Applebee’s Carlos O’Kelly’s Cool Beans Hutchinson Animal Shelter Hutchinson Zoo Pizza Ranch Serendipity Cupcakes Golf Pro Shop Hutchinson Fire Department Hutchinson Traffic Department Hutchinson Water Treatment Plant Hutchinson Police Department Ken’s Pizza Candy Lane Preschool Reno County Head Start Electrex Strataca, Kansas Underground Salt Museum Mid Kansas Cooperative Shep Chevrolet Good Vibrations Midway Chevrolet Midwest Ford Mike’s Auto Hastings Kmart Hutchinson Public Library Mrs. Justice, Hutchinson High School Mrs. Fairbanks, HMS-8 Mrs. Baldetti, HMS-8 Mrs. Hollinger, Holy Cross Grade School Mrs. Dennison, Morgan Elementary Mrs. Frederick, Morgan Elementary Mrs. Hard, Morgan Elementary Mrs. Winters, Morgan Elementary Dr. Chambers, CKVC Reno County Health Department Reno County Appraiser Wild Mustang Program, Hutchinson Correctional Facility Reno County Area Transportation Spangles Emanuel Lutheran Church If only we were like Rudolph By Roger Frischenmeyer The weather has recently turned from comfortable fall to less comfortable winter. Much of this area is now recovering from a major ice storm. It is also the holiday season and my favorite time of the year. I love almost everything about this time of year, from the hustle and bustle of shopping, to the food, so much good food, to my favorite part of the holiday season, the music. Though there is so much good music this time of the year, one of my favorite songs is Rudolph the Red Nosed Reindeer. You remember the story about Rudolph, because he was different, everyone made fun of him and wouldn’t let him play the reindeer games. The song didn’t mention this but if you watched the movie, his parents hid his red nose and tried to make him just like the rest of the reindeer. Eventually, according to the movie, he was so ashamed of his red nose that he ran away to the island of misfit toys. In many ways, Rudolph was very much like many people that we work with here at PILR. He was ashamed of being different. He was ashamed of his disability. I have done a lot of training over the years with youth and the one thing I almost always find is that they, because of sometimes hidden and other time’s not so hidden messages, are almost always ashamed that they have disabilities. Often times they, just like Rudolph, try to escape and hide their difference. For Rudolph to begin accepting himself he needed support and someone to tell him his difference was ok. He found that in Santa. Not only did Santa help Rudolph accept his difference, but he gave him a way to use that difference to improve his community. PILR tries to be that Santa for people with disabilities. We try to help them understand that their disability is only one part of who they are and they should be proud of every part of them. We also try to assist them to find ways to get involved in their community if they would like. We can learn a lot of lessons from Rudolph, about accepting differences, respecting others, and tolerance, but the most important lesson we can learn from Rudolph is that no matter the difference, everyone has something they can offer to their community, and their community is better when they accept that contribution. *Picture of Santa and Rudolph the Red Nosed Reindeer standing arm in arm Welcome to PILR! Please help me welcome two new members to PILR’s Board of Directors. Bonnie Loyd and Cammie Rumback have just joined the Board. I am excited to begin working with them as we move PILR into 2016. Our offices have also had the pleasure of working with the local SER programs. We have Faye Harrison in Pratt and Roberta Whitebread and Sharon Flemming in Hutch. It is a pleasure to work with this program and we are pleased to welcome these women into our offices and we are very grateful for all they do! PILR Staff ~Hutchinson~ Chris Owens, Executive Director Andy Reichart, Assistant Director Tammy Fuhr, Independent Living Specialist Jessica Hutchison, Administrative Assistant Lowell Schrag, Receptionist Erica Rivera, Independent Living Services Coordinator Roger Frischenmeyer, Independent Living Specialist Heather Jones, Independent Living Specialist Dan Owens, Employment Specialist Sharon Engelland, Receptionist Cindy Daniels, Employment Specialist Tammie Fletchall, Accounting Coordinator Tyler Patterson, Payroll and Billing Specialist Megan Hayse, Independent Living Specialist ~Pratt~ Stan Hendershot, Independent Living Specialist Chelsey Rose, Employment Specialist Linda Adelhardt, I&R Specialist ~Dodge City~ Tasha Konrade, Services Coordinator Mignon Luckey, Independent Living Specialist The Board of Directors Dave Mullins-President Stephanie Guthrie-Vice President Carrellen Lewis-Treasurer David Sieg Frances Garcia Carlota Ponds Betty Pinkston Bonnie Lloyd Cammie Rumback Prairie Independent Living Resource Center, Inc. 17 South Main Hutchinson, Kansas 67501 PHONE: (620) 663-3989 1-888-715-6818 FAX: (620) 663-4711 VIDEO PHONE: (620) 860-0140 E-MAIL: Website: info@pilr.org pilr.org PILR - PRATT 103 West 2nd Pratt, Kansas 67124 PHONE: (620) 672-9600 PILR – Dodge City 2601 Central #LL19 Dodge City, KS 67801 PHONE: (620) 371-7690 Letters to the editor are welcome. Please mail to Chris Owens at: PILR, 17 South Main, Hutchinson, Kansas 67501 The editor reserves the right to edit or omit letters. Views stated in this column are not necessarily the views of PILR. PILR receives funding from Rehabilitation Services Administration, U.S. Department of Education, grants, contracts, and fees for services. Private donations are welcomed. PILR is an Equal Opportunity Employer and Service Provider.