MIAMI CTSI
Community Engagement and
Cultural Diversity (CECD)
Program Leadership
Olveen Carrasquillo, M.D., M.P.H.
Professor of Medicine & Public Health Sciences
Chief, Division of General Internal Medicine
Director, Health Services Research & Policy
Erin Kobetz, Ph.D., M.P.H.
Assoc. Prof., Dept. of Public Health Sciences
Director, Disparities & Community Outreach, SCCC
Director, Jay Weiss Institute for Health Equity, SCCC
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Aim #1
Foster long-term participatory academiccommunity collaborations & assist UM
investigators, students & community
partners in conducting community-based
and culturally competent research
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Aim 1: Foster long-term participatory
academic-community collaborations
Progress to date
150 discrete events of support by CECD Core to UM Faculty, partners
8 local partners with strong engagement
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Health Choice Network-FL: research collaborations (U54, RO1, GE, FL-DOH), training Community Health
Workers (CHW) for research/community partnerships
Health Council of South Florida (HCSF): bi-directional boards, reviewer of K12 applications, conferences
Miami-Dade Health Action Network (MD-HAN): recruitment of minorities into clinical trials/research, colead CHW Workgroup and annual regional symposia
Area Health Education Center: Boards, DOH CRC screening and provider of smoking cessation sites
FL Community Health Workers Coalition: co-lead group, provided panel presentations
FL Health Equity Research Institute (HERI): reviewed applications, provided program planning, training
and presentations
San Juan Bosco Clinic: provided CHW core competency trainings and is a participant recruitment site
for a K12 investigator
Connect Familias: provided teaching support to 1 of 3 national evaluation site on diabetes (NDEP-CDC)
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Funding SUCCESS Stories
• UM
– Neurology: U54 Stroke Disparities Center, MDR01
– Psychology: K23, recruitment component
– CTSI: K12, recruitment component
• Community Partners
– Miami Dade Area Health Education Center
• OMH: CRC FIT, over 1,000 screened
– Health Choice Network
• GE (Cervical Cancer), Bristol-Meyers (DM), PCORI-CDRN
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T4 SUCCESS Stories
• Created certification for new health (and research)
worker category in Florida
– Community Partners: Clinical Services
– Research: Recruitment and Retention
– Led statewide CHW Coalition / federal, OMH
– Technical assistance, curriculum, training and
leadership for both clinical and research settings
– FL. Certification Board approval of CHW Certification!!
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17th state in US to do so
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RFA: Recruitment Innovation Centers
• RICs promote innovation and efficiency in
participant recruitment into multi-site studies
• Use of the EMR at subsets of CTSA hubs to
estimate the number of potential participants
who meet the trial entry criteria
• Development of recruitment tools and
strategies that can support connecting
participants with potential trial opportunities
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CEDC Strengths
• Expertise in recruitment minorities into clinical
trials (and the population!)
• Leadership and expertise in using CHWs to recruit
patients from community and clinic settings
• Consolidated UM webpage for recruitment into
UM clinical trials (in Spanish!!)
– www.miamictsi.org/pacientes
• Community based infrastructure for guidance,
input, oversight and finding dissemination for
clinical trials
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Community Advisory Network
Hialeah CAB
American Cancer Society
Citrus Health Network
City of Hialeah, Parks Department
Lions Club of Hialeah
Health Choice Network of Florida
Hialeah Chamber of Commerce
Miami Dade Schools
Salvation Army
Liberty City CAB
The Beautiful Gate
Belafonte TACOLCY Center
Curley’s House Hope Relief & Food Bank
Empower U
FIU Stempel School of Public Health
Florida Health Miami Dade County
God’s Amazing Grace Outreach Ministries
Jessie Trice Community Health Center
Liberty City Trust
Liberty Square Resident Council
New Horizons Comm. Mental Health Center
Project Hope, Inner City Youth
South Dade CAB
Catholic Charities of America
Community Health of South Florida (CHI)
Goulds Coalition of Ministers & Lay People
Health Choice Network of Florida
Planned Parenthood of South Florida
Sembrando Flores Compassionate Care Ministries
West Perrine Christian Association
Little Haiti CAB
Community Leadership Board
American Cancer Society
The Beautiful Gate Cancer Resource Center
Cancer Support Community Greater Miami
Catalyst Miami
Citrus Health Network
Community Health of South Florida (CHI)
ConnectFamilias
Center for Haitian Studies
FIU Stempel School of Public Health and Social Work
Florida Breast Cancer Foundation
Florida Health -Miami Dade County
Florida Society of Oncology Social Workers
Health Choice Network of Florida
Health Council of South Florida
Leukemia and Lymphoma Society
Liberty City Development Corporation
Liberty Square Resident Council
Liga Contra el Cancer
Miami Dade Area Health Education Center (AHEC)
Miami Dade College School of Nursing
Miami Gardens Commission for Women
Mujer, Inc.
Opa Locka Community Development Corporation
Planned Parenthood of South Florida & Treasure
Coast
Sembrando Flores Compassionate Care Ministry
St. John Bosco Clinic
South Florida Cancer Association
Univ. of Miami AHEC
YWCA of Greater Miami
Rev 12/9/14
Center for Haitian Studies
Edison Adult Education Program
Fanm Ayisyen Nan Miyami
Haitian American Nurses Assn. of Florida
Lespi Enterprises.
Little Haiti Health Center
Memorial Highway Baptist Church
Miami-Dade College School of Nursing
Planned Parenthood of Greater Miami
Sant La Haitian Neighborhood Center
Voodoo Association in Miami
Overtown Wellness Coalition
Overtown Community Oversight Board
Overtown Neighborhood Enhancement Team
Overtown Optimist Club
Community Work Training Program, Inc.
Urgent, Inc.
Miami-Dade Public Library
Miami Kitchen Gardens
Urban GreenWorks
Happy Children of Overtown
Lotus House Shelter
Overtown Youth Center
Touching Miami With Love
Local & State Partnerships
Consortium for a Healthier Miami Dade
Florida Community Health Worker Coalition
Florida Cancer Control & Research Advisory Board
Florida Cancer Plan Council
Miami Dade Health Action Network
Southeast Florida Cancer Control Collaborative
EMR Identifiers
• Race and ethnicity identifier fields in the
Electronic Medical Record using NIH criteria
I’M IN: Recruitment of Minorities
Multi-Stakeholder campaign to improve
health by increasing diversity in clinical trial
participation
 Pharma and National minority quality forum
 With HCSF coordinate County wide events
I’m IN: community engagement
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Coordinated two county community stakeholders meetings
Speakers: Marisel Losa/HCSF, Dr. Salvo Alesci PhRMA, and Dr. J Wright, CTSI
Print: Miami Herald article on recruitment Hispanics into diabetes trials
Radio interview: Cadena Azul 1550 AM to share the importance of the I’m In
campaign, recruitment of Latinos in clinical trials.
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Findings Dissemination: HCHS-SOL
• Outreach, co-hosted events at Latino health fairs
• Radio Spanish interviews on study results and translation into
community needs
• Dissemination of HCHS-SOL findings Community and Patient
Booklet (bilingual)
• Working on CEU module for CHWs/promotores based on SOL
data from JAMA articles, simple fact sheets
CEDC Opportunities
• Partnership of UM, UF, FSU, and HCN to facilitate
conduct of statewide pragmatic and implementation
science clinical trials
• Placement of limited EMR datasets from patients in
select clinical sites into a One Florida Data Trust using an
honest broker system
• Interface queries for linkages to other data
– e.g. Medicaid, cancer registry
• Consent2Share: Pts willing be contacted to be enrolled
in clinical trials
• Conduct multi site smoking cessation study using this
infrastructure
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Ideas/ Thoughts UM as a RIC?
• Promote innovation and efficiency in use of
EMRs for participant recruitment into multisite studies
• Innovative recruitment tools and strategies
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