Dudley Borough Healthcare Forum Thursday 18th June 2015 Feedback Key points raised– Keeping Dudley Happy Each table had 4 activities to complete and were asked to feedback one key point from all of their discussions: We need to bridge the gap between leaving school and being an adult. The service should be unified so it is not split into 2. People need to feel a valued member of society and we need to be mindful of others and their issues. We need good neighbours Carers need support and sometimes they need more help. Family and friends are important There needs to be service integration and communication from cradle to the grave Better education for young people from all settings including training for teachers We are lucky in Dudley but services need to be accessible by all We need the right thing at the right time for everybody and everyone’s needs are different Society has changed – everyone is always on their phones. We need to spread human kindness and remember what it is like to feel well Peer to peer support for carers and a street triage approach to prevent a crisis Questions/statements raised at meeting: Q: East Coseley Big Local – the CCG said that we would move towards locality based services and we would integrate services but it’s been decentralised. The CCG should make caring decisions and not clinical ones. Clinics in Coseley have been moved to Sedgley yet Coseley needs them more. we want local services for local people. A: We do care and that’s why we are trying to make changes. Our approach is about wrapping care around the patient and we are trying to unpick the issues to make the improvements. The issues are complex and it will take time but we are committed. Q: Dementia care/support is down to carers rather than CCG. We need more support and information and why can’t GPs have all of the information? A: It’s about working together. There are over 1000 voluntary organisations in Dudley and it is difficult for one person to know all of these. We would like to develop a hub for emotional health and wellbeing and they will have all of the knowledge and referrals could be made by anybody. There is also a Community Information Point network that is organised by Healthwatch Dudley and the Council. In addition we have Locality Link Workers and GPs can refer patients to the link workers for further help and support. Q: It would be good if all GP surgeries to sign up to the scheme and have a champion, either staff or a volunteer to run if from the practice. Q: I run a blog and I know that people can suffer in silence. A: we will be running future events – this is just the start. Feedback What keeps you happy and feeling well? What defines the term “happy” by person Feel valued and wanted Feel appreciated by people and communities Having promise and hope for the future Feel appreciated by family Social interaction in the above areas Feel validated by family Support and tolerance of family and friends and general communities Thankful for what I have The impact of other people Positive physical environment for example housing area’s. “Improving a living situation” Feeling listened to Success breath success, making effort to improve things See a future Each day has a meaning You’ve got a purpose Good news day, every day! Peer to peer support Having someone to talk to when you’re alone Care co-ordinator informing and advising me Social circle – friends/family Healthy bank balance – support activities Physical activity Church Work/learning Training Volunteering/positive contribution Gardening and keeping busy Being physically well Being pain free Knowing family are well and happy – no worries Partners/other half Food Financial stability Home – somewhere warm and comfortable Support Close community – this is rare! Communication – personal! People don’t speak to each other Exercise Accessibility to everything Stability Feeling well keeps me happy Social contact Physical health impacts on mental health Addressing problems Knowing where to get help when needed Recognising symptoms and dealing with them Having resources (e.g. money and food) Length of issues Groups o Trip out o Pensioners convention Friendships Independences Physical wellness – well enough to do things Pensioners o Important to stratify o Mobile/agile o Isolated but capable o Housebound individuals Children o What makes them happy? o Allow them some freedom to be children o Too many targets for them to achieve o Person centred care Choice and options Financial awareness Debt awareness Housing, finance, employment Less stress Controlling diabetes Employment Control of own testing Feeling valued Belonging Support networks Control of your own destiny Security Nature A pint Helping others Owning the problem Less democracy Count your blessings Spreading human kindness Keeping active Take time out for yourself Every day provides a new start Helping others Putting a smile on the face of others What do you value most when you’re not well? Telephone call asking how you are People doing things Support from family and friends Reliance on other people to support you To be valued, stay on the radar Professional support Positive social interaction Someone to talk to/listen to me Understanding from others, empathy, compassion, show emotion Appreciated by others on how you’re dealt with Hot drink/cold drink – food makes up happy To feel like somebody cares about us Somebody to ask if you’re OK Support people to deal with how they feel Treat people with sensitivity Someone to talk to Peers Sharing experiences Family and relationships Friends Working My animals Fast medical response Having someone with me Hope that I will get well Supportive GP and access to them Comfort Access to help and support – GP and nurse Understanding GP/nurse A GP who is aware of issues and is sympathetic Consistency Second/different opinions Family and friends – in person/on phone Previous experience of recovery Support Responsiveness Recognition of issues and needs relevant to the situation Understanding Drugs and alcohol Inspiring people/role models Space and time NHS Support Stress balls therapy – punch bag Recognising you’re ill Someone to offload to Lucozade Having a rest Remembering how it is to be well Knowledge that it will pass Quiet time Sympathy Empathy What's the best way for you to get information about helping yourself Websites – specific sites Talking to someone (face to face, telephone, self-talk, e-mail, twitter, blog, live chat) Open, honest and upfront – always available GP out of hours messages In GP surgery Card with contact/advice details App/twitter A&E Media- radio Google – can have negatives Speak to others on an online forum Doctor – should be the option to see a doctor Pharmacy Ensure the information is accurate A trustworthy source/reliable source Human contact Self help themselves Libraries and telephone directories/updated list Ask family and friends – pass information down to a younger generation Reliable local newsletters Libraries need more information Trusted staff member – professional Internet Follow up after treatment Attending forums such as this Local health centre (GP) Covered in schools – how to keep well Via Dudley CI, mind rethink GPs Self help organisations Community centres Community channel from dudley council Documentaries/health programmes TV Fellow sufferers, support groups Newspapers/newsletters Patient panels Education – start young with children Food banks Mother/toddler groups Supermarket notice boards Post office notice boards Directories Radio Citizens advice bureau Why not include a mental health check aswell as a physical health check Screening Support worker/ key worker Dedicated young people area of website Social media Neighbours Condition specific directory Community hub facilities Faith groups Word of mouth PPG Community information points Wellbeing charity/service Community information champions Church – meditation What would you change or what would you like to see in place in Dudley? Bring more awareness into education from a younger age More freedom for teachers to tackle hot issues Support for a more holistic approach to people’s health More time for people/professionals to talk to Raise awareness and understanding See mental health as any other health issue No postcode lottery More support for carers – peer to peer groups Interest in things like care for carers More budget for services in voluntary sector – mind/rethink More education and breaking down stigma Communities ‘understanding conditions’ More integration between CCG/Public health/local authority/voluntary organisations More publicity of what is happening with integration as public are not aware More pastoral support for vulnerable- through schools/colleges/youth centres?? Education – part of curriculum More support services – prior to diagnosis (early intervention) A rapid response – a crisis prevention rather than intervention More people to talk to A more joined up service – interlinked professionals. (a new model of care) Something to bridge the gap between leaving school and becoming an adult? o Scrap the 2 services CAMHS & Adult mental health and just have one! A continuation of care when you become 18 Mental health nurse should be in every practice Publicity of specialist GPs – so you know who to go to Better communities – working out for each other Better education for yourselves o Schools o Youth centres o Youth organisations More welcoming GP surgery and health centre Timely help – be seen when you need it Training for receptionists or recognising problems Better advertising of what’s available Training for teachers by CCG on mental health Services need to be in place and suitable if more people are to be helped and diagnosed The situation of UCC is not ideal, from A&E you then have to go and find it – long walk! Signposting not clear once you get to a & e Clerical staff should not be asking you what’s wrong it should be professionals Too many titles Want continuity of care No demarcation between male and female GPs Need more homegrown nurses kick out the degree More hands of training Telephone prescription ordering More home visits from GPs Waiting time for therapies Mental health services at acute settings Remedial therapy Mental health stigma not helpful Longer appointments for those that need to talk to someone Consideration of more training in medical school Free and timely services GP practice – open door policy Fair share of the budget for mental health Sharing/providing information GPs improved recognition/diagnosis of mental health problems Systems/processes/pathways Promoting mental health in schools 1 key point: I feel a valued member of society