SEXUAL MINORITY HEALTH & HEALTHCARE January 20, 2016 • • Lynn Hunt, MD Clinical Professor of Pediatrics, UC Irvine Chair, Section on LGBT Health and Wellness American Academy of Pediatrics Learning Objectives • Review terminology and definitions for various sexual minority populations • Develop an understanding of LGBTQI health disparities and their causes • Speak with a diverse group of individuals from LGBTIQ communities; have your questions answered in a safe and respectful environment • Review your own unconscious assumptions or biases • Think about ways to improve the climate for LGBTQI people in your own environment. Terms and Definitions: LGBTQQIAA …& other initials Lesbian, Gay, Bisexual, Transgender, Intersex, Queer/Questioning Asexual/Agender • LGBTIQA shorthand way to describe sexual and gender minorities • Diversity within each group • 3 main concepts • Sexual orientation • Gender identity • Intersex Terms and Definitions • Sex: biological markers associated with males and females – anatomy, chromosomes • Gender: refers to attitudes, feelings, and behaviors that a culture associates with either males or females Terms and Definitions • Sexual Orientation: refers to an individual’s enduring pattern of physical, romantic, emotional and/or spiritual attraction toward other persons. • Gender Identity: A person’s internal, deeply felt sense of knowledge of being male, female, something else or in between. Terms and Definitions • Intersex: refers to a person whose body is not typically male or female, or whose anatomy is not concordant with genetic sex. Terms and Definitions • Gender Expression: Outward expression of maleness or femaleness or other. Characteristics and behaviors such as appearance, dress and speech patterns, that are perceived as masculine or feminine. Terms and Definitions Gender variant/non-conforming • Refers to people whose gender expression is different from what society expects for a male or female Terms and Definitions Gender expansive/creative Terms and Definitions: Sexual Orientation • Lesbian, Gay, Bisexual: besides describing sexual orientation, are sexual identities. • Often associated with mainstream western culture. These labels may not be used by other ethnic/racial minorities or younger people. Terms and Definitions: Gender Identity Transgender • Umbrella term that can describe a broad range of people who experience or express their gender differently from what people expect (gender nonconforming). • Commonly used to describe people who experience and live in a gender different from the sex assigned to them at birth. Transgender • FTM / Transmen assigned female at birth and transition to a male gender identity • MTF / Transwomen assigned male at birth and transition to a female gender identity. • Cisgenger a person who is not transgender Terms and Definitions Intersex • Also called DSD: “Differences of Sex Development” • May be apparent in the newborn period, puberty, or later • Very much of an umbrella term for dozens of conditions Terms and Definitions: Q can be for Questioning • An individual that is exploring or becoming more aware of their gender identity or sexual orientation Q can be for Queer • Traditionally a pejorative term, queer has been appropriated by some GLBT people to describe themselves. • Some value the term for its defiance and because it can be inclusive of the entire LGBT community. Terms and Definitions A is for Agenger/Asexual • Gender neutral, genderless • Low or absent interest in sexual relationships A is for Ally • A person who respects sexual diversity, acts to challenge homophobic or transphobic remarks and behaviors, and explores and understands these forms of bias within oneself. • Can be straight or cisgender or not Sexual Humanity: NON-Binary • Human beings express their sexual orientation and gender identity in a variety of ways considered a spectrum. • Intersex conditions illustrate that sex is also on a spectrum • Sexual orientation or gender identity are in not predicted by chromosomes, anatomy or hormonal status. • Sexual orientation and gender identity are not rigidly static – often fluid. SEX Genetic: XY Anatomic: Male Many Variations Female GENDER Identity: Man Gender Queer, Agender, Trans* Woman Expression/Role: Masculine XXY XY X Androgenous XX Feminine SEXUALITY Attraction: Same Sex Both Opposite Sex Behavior: Same Sex Both, None Opposite Sex Identity (label): Lesbian, Gayl Bisexual, Pansexual, Queer Straight How many people are we talking about? Epidemiology • Measurement challenges (IOM 2011 report) • Self-identity? • Behavior? • Stigmatized - Hidden (in plain sight) Gallup October 2012 "Do you, personally, identify as lesbian, gay, bisexual, or transgender?“ (June – Sept) • 3.5% said yes • 4.5% declined to answer • 6.5% Youth (18-29) • 8.3% Young women (18-29) • Racial minorities more likely to answer “yes” • Black 40% more • Asian 35% more • Hispanic 25% more DSD incidence • Depends on how you measure: • ANY variation from “typical” • “Medically significant” / Socially significant • Age at which conditions become apparent • Multiple diagnoses; variable presentations • Range from 1/100 to 1/20,000 for different conditions • “About as common as being born a natural redhead” 3-5% is a lot of people! Population of Oregon and Washington combined Population Asian Americans Discrimination Is Legal in Many States • In June 2015 thousands of LGBT people across the US gained the freedom to marry…. • But in July 52% of LGBT were at risk for being • • • fired from their job kicked out of their home denied access to doctor’s offices or restaurants Employment and Housing Public Accommodation School Anti-bullying Laws Conversion Therapy The State of Transgender California Transgender Law Center 2009 • 5 years since passage of anti-discrimination law • Respondents twice as likely to have college degree as general population • • • • 70% reported workplace discrimination Twice as likely to be living in poverty 20% had been homeless 30% avoided needed healthcare LGBTQ Health Disparities • Discrimination/Stigma Associated health risks • Access • Quality Disparities & Antecedents • Most LGBTQ youth are resilient and develop into healthy adults • As a group increased risk for depression, suicide attempts, smoking, substance use, homelessness, and risky sexual behavior. • Important to understand the key mediators of adverse health outcomes Health Disparities - Stigma • No health risk conferred by being LGBT per se • Findings are similar to research with other minority populations • Daily stressors caused by stigma and discrimination can lead to adverse mental and physical health outcomes Health Disparities - Stigma • Internalized stigma can cause self-harm and unhealthy risk-taking behaviors • Those who are victimized or perceive discrimination are more vulnerable • Reported disparities • • • • Depression Smoking Substance use Suicide attempts • • • • HIV/STIs Type and presentation of cancers Overweight or eating disorders Diabetes and other chronic conditions Bullying • LGBT youth (or kids thought to be gay) are 3 times more likely to be bullied • In the last year LGBT students: • • • • 74% verbally harassed 49% experienced electronic harassment 36% physically harassed 16% physically assaulted Impact of Discrimination LGBT students who experienced LGBT-related discrimination at school were: • More than three times as likely to have missed school in the past month as those who had not • Had lower GPAs than their peers (3.0 vs. 3.3) • Had lower self-esteem and higher levels of depression. Homelessness • LGBTQ youth are significantly overrepresented among homeless youth. • 40 percent of homeless or at-risk youths identify as gay or transgender Top 3 reasons for homelessness among LGBTQ Youth Violence • Experiences of violence and victimization are frequent for LGBT individuals, with long-lasting effects on the individual and the community. Healthy People 2020 • 22% of all hate crimes (vs 5% population) • LGBT homicides 2014 • 80% transgender women • 55% percent people of color • 35% gay/bi men Suicide Risk • LGB youth 3-4 times more likely to attempt suicide than their heterosexual peers. • 41% of transgender respondents reported attempting suicide (vs. 1.6% of the general population) Importance of Acceptance: Resilience Higher rates of family rejection during adolescence impact health of young adults • 8 ½ times more likely to have attempted suicide • 9 times more likely to report high levels of depression • 3 ½ times more likely to use illegal drugs • 3 ½ times more likely to have engaged in unprotected sex compared with peers from families with no or low levels of family rejection Ryan, Pediatrics 2009 LGBT Health Disparities 85 80 Heterosexual LGB Trans 75 70 65 60 Excellent or Very Good Health Well-Being Index Scores Gallup-Healthways Well-Being Index 2014 64 Non-LGBT 63 LGBT 62 61 60 59 58 57 56 55 54 National adults Men Women Access to Care • Less likely to feel welcome or comfortable in healthcare setting • Lower income after controlling for education • Historical lack of federal marriage benefits • Trans care has been specifically excluded from insurance coverage Insurance Status Quality of Care Healthcare Disparities: Quality •National survey of lesbians found that less than half (47%) reported that a healthcare provider had ever inquired about their sexuality •Only 28% or trans* were out to all of their medical providers •Missed opportunities to support patients •Missed opportunities for risk assessment and counseling regarding risk reduction Quality of Care 2009 Patient Survey of Provider Behaviors 30 25 20 15 10 5 0 LGB Trans Refused Needed Care Harsh Language Physically Rough Faces of Discrimination in Healthcare Faces of Discrimination in Healthcare How Can Healthcare Be More Welcoming? LGBT-Friendly Hospitals Joint Commission 2010 • May not refuse care • Must prohibit discrimination, regardless of local law • Recognize same-sex partners as the patient’s family • Intake forms (or electronic record) should be inclusive of LGBT patients and families • Hospitals should use a transgender patient’s preferred name even if not the legal name Human Rights Campaign • • • Annual online survey Healthcare organizations rate themselves on a number of measures regarding equitable, inclusive care LGBT Americans can find healthcare organizations with a demonstrated commitment to their care. HEI 2014 Participants Efforts to improve LGBT health include: • Appropriately inquiring about and being supportive of a patient’s sexual orientation to enhance the patient-provider interaction and regular use of care. Welcoming Healthcare Professionals • Aware of assumptions or biases • Avoid the assume that everyone is heterosexual or cis-gender. Open to differences. • Use gender neutral language when taking a social or sexual history • Ask open ended questions • Who lives at home with you? • Are you in a relationship? What Else? • Use language patient requests • chosen name • preferred pronoun • labels for patient or partner Other LGBT-Friendly Ideas • Visual symbols to signal welcoming environment • Post anti-discrimination policies Resources • The LGBT Center OC – local LGBTQ resource center in Santa Ana • GLMA (health professionals for equality in healthcare) – provider directory that any interested health professional can join • The Trevor Project – crisis intervention and suicide prevention services • Fenway Institute – online education • Human Rights Campaign – large civil rights organization Thank You! What Would You Do? • You are volunteering in a hospital or clinic. You overhear health providers making fun of the appearance and demeanor of recent who patient who may be transgender. • How would you feel? • How would you respond?