Carers and Work-Care Reconciliation International Conference University House, University of Leeds Tuesday 13th August 2013 Workshop E, Afternoon session Convergence or Divergence in Family Care between the East and the West: care, work, gender & state Yueh-Ching Chou. Masaya Shimmei & Toshiko Nakano 1. Institute of Health and Welfare Policy, National Yang-Ming University, Taipei, Taiwan 2. Human Care Research Team, Tokyo Metropolitan Institute of Gerontology 3. Faculty of Sociology and Social Work at the Meiji Gakuin University, Tokyo/Yokohama, Japan Outlines 1. Social context/social needs in Taiwan & Japan II. Care needs of older people in Taiwan & Japan III. Disabled child & care IV. Women carers in Taiwan & Japan V. State intervention: Taiwan vs Japan VI. Convergence or divergence VII. Future 2 1. Social context/social needs in Taiwan and Japan: ageing society, low birthrate, women involved in labor market, migrant care worker increased/involved, growth of the immigrant wife family (source: Kroger & Yeandle eds., ch.1, & etc…) Child Birth rate Taiwan Japan Finland UK 0.89 in 2011 1.4 in 2011 1.9 (2010) 1.9 (2010) 18% in 2010 17% in 2010 Older people rate 11% in 2011; 20% in 2026; 23% in 2010 37% in 2051 employment rate of women (16-64 ys) Family structure change Older people live w/family Migrant care worker 54% in 2010 -full-time) 3.5% part-time ? 60% in 2010 67% in 2010 65% in 2010 34% part-time 16% part-time 39% part-time 70% in 1986; 57% in 2005 (Hsueh, 2008) Since 1991: 306 in 1991; 197,854 in 2011 (VS. Japan in 2006/2007; South Korea in 2003) Immigrant wife 324,932 (18.7% of all family (becoming families) in 2009— unpaid family “new family carers” carers) 3 II. Care needs of Older people in Taiwan •4 types LTC service models in Taiwan: family care, institutional care, cared by migrant care worker, home-based and community care •Based on the analysis of the data set conducted by 2005 National Taiwanese Health Interview Survey: n=30,680, 2727 older than 65 and 630 persons of them (23.1%) requiring personal care in daily life (Chou, Pu & Chu, 2012) Taiwan Disabled older people (age; sex) Care by family Mean age=77.7 (SD=7); female: 59.8% (59% single) 74% Care by live in migrant care worker 11.7% (Cost: 500 Euros) Older people use formal service—institution 9.8% (Cost: 1200 Euros) Older people use community and home-based services 4.3% 4 Care needs of Older people in Japan ・about 20% of the aged population are estimated to have needs 4.62 million alzheimer patients aged over 65 (http://www.mhlw.go.jp/stf/shingi/2r98520000033t43-att/2r98520000033t9m.pdf) difficulties in ADL outing work etc daily life 65+ 226.3 99.4 98.1 84.6 Men 209.5 87.6 81.8 64.3 Women 239.5 108.7 110.9 100.4 (National Livelihood Survey, 2010, numbers per 1,000) physical activities 64.3 68.5 60.9 others 27.5 27.2 27.8 Transition of the LTCI system admitted applicants who applied to per evaluation 1,000 Transitio Support Support Care Care Care Care Care Support nal Total level1 level2 level1 level2 level3 level4 level5 category 2003 385 848 536 373 376 360 2,877 2004 493 1,022 605 408 405 390 3,324 2005 584 1,198 567 466 457 432 3,704 2006 659 1,282 582 501 476 443 3,943 2007 706 1,374 616 531 504 445 4,175 2008 519 490 45 868 717 620 526 467 4,251 2009 541 606 2 748 768 679 556 479 4,378 2010 562 639 764 787 709 569 494 4,524 2011 591 631 825 816 688 607 538 4,696 5 (Report of the Long-term Care Insurance Administration, 2012) III. Disabled child & care in Taiwan and Japan lifelong care needs and lifelong carers (Chou, Nakano, et al., 2013) Table 8.1 People with disabilities: number, living arrangements and use of services in Taiwan and Japan (Cited from ch. 8, Kroger & Yeandle ed., 2013) Age / type of disability Number and % of total population Taiwan Japan 1,080,000 5% 96,565 0.4% 7,443,000 6% 547,000 0.4% All with disabilities 93% 93% All under age 18 with disabilities* 97% (i) 94% (ii) 98% All with IDs 93% 77% All with disabilities 7% 7% All under 18 with disabilities* 3% (i) 6% (ii) 2% All with IDs 7% 23% All with disabilities 11% - All under 18 with disabilities 1% - All with IDs 0.7% - All with disabilities All with IDs % living either with family or independently % using residential services % employing a live-in migrant care worker Notes: IDs – intellectual disabilities *For Japan, first figure is for persons under 18 with physical and intellectual disabilities; second figure is for persons under 20 6 with ‘mental disorder’. Japan vs Taiwan: caring for a disabled child 1. a family responsibility; 2. mothers are the primary carers; 3. formal support based on selective and means -tested ideology 1. according to both the individual person’s level of disability and level of whole family income Coping strategies: Japan: use private services to cope Taiwan: hire migrant care worker (for persons from not low family SES background, they can afford) or family care (develop own strategies as described previous) 1. Japan formal support: moving away from the family and shifting towards the state 1. flexible work; part-time work; 2. employers involved in support; 3. parental care leave for disabled child since 2009; 7 IV. Women carers in Taiwan (Chou, Kröger, Chiao, & Pu, 2012) Based on the data set from the 2006 National Taiwanese Women Survey (at age 16–64, n=6,017) The participants characteristic data: 1. 53% employed, 50% of them work for 8-10 hours 2. 85% of them having a child younger than 12 3. Caregiving hours weekly, Taiwan vs EU: 40 vs 15 hours 1. when compared with non-carers, women carers: 1. family carers did many more hours of housework, 2. poorer, 3. more isolated in terms of leisure activities, 4. lacked emotional support, 5. had a lower level of health and a lower level of family life satisfaction. 2. Most disadvantaged group: non-employed women carers of disabled adults-- Lifelong family carer severely impact the wellbeing 3. work seems to be good for the well-being of these carers in Taiwan 8 Women carers in Japan Age of the Cared Age/Sex of Carers living with the cared total 40 40 ~ 49 50 ~ 59 60 ~ 69 70 ~ 79 80+ Men 40 40 ~ 49 50 ~ 59 60 ~ 69 70 ~ 79 80+ Women 40 40 ~ 49 50 ~ 59 60 ~ 69 70 ~ 79 80+ total 40~64 65~69 70~79 80~89 90+ [100.0] [5.1] [4.7] [25.9] [45.4] [18.8] 100 2.9 8.3 26.6 29.3 20.6 12.3 30.6 1 2.9 6.9 7.5 6 6.3 69.4 1.9 5.4 19.7 21.7 14.5 6 100 14.5 4.2 30.2 42.1 3 6 46.7 7.7 2.5 12.1 22.3 0.2 1.9 53.3 6.8 1.7 18.2 19.9 2.8 4.1 100 9.7 9.7 4.6 57.6 17.5 1 32.9 3.8 1.5 0.3 10.7 16.4 0.3 67.1 6 8.1 4.3 46.9 1.1 0.6 100 2.7 17.3 13.4 15.8 42.6 8.1 33.3 0.7 6.6 3.7 0.5 14.4 7.4 66.7 2 10.7 9.7 15.3 28.2 0.7 100 1.5 6.1 37.4 22.7 13.1 19.3 29.4 0.4 2 9.3 7 1.6 9.1 70.6 1 4.2 28.1 15.6 11.4 10.2 (agg reged) 60+ [97.9] 100 1.8 2.1 23 53.2 13.9 5.9 24.6 0.2 0.5 5.5 13.6 4 0.7 75.4 1.7 1.6 17.5 39.6 9.8 5.2 (agg reged) 65+ [94.8] 100 2.6 8.3 26.3 29.6 20.8 12.3 30.1 0.8 2.8 6.5 7.5 6.1 6.3 69.9 1.8 5.5 19.8 22.1 14.7 6 (agg reged) 75+ [80.3] 100 2.3 8.6 26.4 28.6 21.5 12.6 29.7 0.6 2.9 6.6 6.7 6.3 6.5 70.3 1.7 5.7 19.8 21.8 15.2 6.1 100 1.4 7.5 30.2 26.8 19.5 14.5 28.9 0.3 2.4 7.5 7.2 4 7.4 71.1 1.1 5.1 22.7 19.6 15.5 7.1 (National Livelihood Survey, 2012) 9 V. State intervention Taiwan vs Japan (cited from Kröger and Yeandle (Eds.) (2013) (Chapter 2) Legislation and national policy on carers: Taiwan & Japan JAPAN TAIWAN Japanese Civil Code also states Taiwan’s Civil Code places that lineal kin (blood relatives and responsibility for the care of people siblings) have a duty to support each with disabilities – both children and other, and this includes caring for adults – on lineal family members: people with disabilities. parents, siblings and children. 1995: Childcare and Family Leave Act (Revised) extended to care of ‘other family members’ in addition to childcare, employers recommended to offer family care leave. 1999: Childcare and Family Leave Act (Revised) obliged employers to offer family care leave. 1993: Respite care initially introduced (in ). 1997: Disabled Persons (Respite Care) Act. 10 State intervention: Taiwan vs Japan (cited from Kröger and Yeandle (Eds.) (2013) (Chapter 2) Legislation and national policy on carers: Taiwan & Japan JAPAN 2000: Long Term Care Insurance Act: (includes a family carer support programme. 2001: Family Care Leave extended / amended. 2002: Family Care Leave extended / amended. 2004: Family Care Leave extended / amended. 2005: Family Care Leave extended / amended. TAIWAN 2002: Gender Equality in Employment Act: unpaid leave to care for relatives. 2004: 5 days per year paid care leave (govt. officials only). 2007: Welfare of Disabled People Act: included Special Care Allowance to midor low-income senior citizens. 2007: Welfare of People with Disabilities Act: LAs to co-operate with NGOs on respite/ carers’ services. 2009: Employment Insurance Act: unpaid care leave for carers of family members. 2009: Welfare of Older People Act: LAs to co-operate with NGOs on respite/carers’ services. 11 VI. Convergence in the East and West -I based on 4 concepts: care, work, gender & state who are carers? Family care=woman care, mother care, daughter care, female spouse care? Women are primary family carers regardless being employed or nonemployed? Different types of care responsibility: Carer/parents/mother of young children? Carer/spouse/children/daughter/daughter-in-law of older people Carer/parents/mother of disabled children-- lifelong carer carer of double care responsibilities Paid work is good for carers? The most disadvantaged carers: non-employed carers (of disabled family members) (majority studies focus on employed women and carers/parents/employed mothers of young children) Solution: family care, migrant care worker, use of private/for-profit services based on SES; thus social equality reduced 12 Divergence in the East and West-II East (e.g. East Asia) West (e.g. Northern or Western Europe) Women employment rate lower higher Childbirth rate lower higher Population ageing process quicker Slower (e.g. France) (e.g. Taiwan); ageing society indeed--Japan Family care, still a family issue? Childcare is a public issue!! Family care for older people and disabled family members is also a public issue? Care and work reconciliation is a Care and work reconciliation is an old new issue? issue? Conflict of lifelong care and work neglected? Full-time work: 40 hours weekly EU: less than 40 hours? Caregiving hours weekly: 40 hours EU: 15 hours weekly (e.g. Taiwan) Less demanded? Both paid work and caregiving demanded heavier among carers/women 13 Divergence in the East and West-II East (e.g. East Asia) West (e.g. Northern or Western Europe) Needs of women carers: Emotional Instrumental > emotional support? > instrumental support? Taiwan State: Selective, meanstested— Japan State: universal (e.g., LTCI) and selective (e.g., mother carers of disabled children) (Kroger, 2003): childcare: strong universalism eldercare: weak universalism disabled people care: modified universalism? Familistic welfare regime combined Nordic: move to liberalism? liberalism (Ochiai, 2009) Family wage model move to ‘universal breadwinner’ model move to ‘universal breadwinner’ model? (e.g., ‘universal caregiver’ model? (e.g. Sweden) Japan) (Fraser, 2000) Family care = weak woman care=strong public care? Family care=strong woman care=weak public care? 14 VII. Future: East & West The East: low childbirth rate, ageing society, women involved in labour force; keep moving from family care to market purchasing ? The West: social investment for social equality and inclusion between social classes, ethnic groups, men & women? or privatizing welfare state? increasing the gap between different classes and ethnic groups? the East & the West: ◦ Care recipients: quality of care/life, quality of ‘ageing in place’ improved ◦ Carers/women: well-being promoted ◦ What can we do for the issues: care, work, gender & state? 15 References: 1. 2. 3. 4. Chou,Yueh-Ching, Toshiko Nakano, Heng-Hao Chang and LiFang Liang (2013). Parent-carers in Taiwan and Japan: lifelong caring responsibilities within a familistic welfare system. In T. Kroger & S. Yeandle (Eds.) Combining paid work and family care: Policies and experiences in international perspective (chapter 8). Bristol: Policy Press. Teppo Kröger and Sue Yeandle (Eds.) (2013) Combining paid work and family care: Policies and experiences in international perspective, Bristol: Policy Press. Chou,Yueh-Ching, Fu, Li-yeh, & Chang, H. H. (2013). Making work fit care: reconciliation strategies used by working mothers of adults with intellectual disabilities. Journal of Applied Research in Intellectual Disability, 26, 133-145. Chou,Yueh-Ching, Fu, Li-yeh, Pu, Cheng-yun & Chang, H. H. (2012e). Difficulties of work-care reconciliation: Employed and non-employed mothers of children with intellectual disabilities. Journal of Intellectual and Developmental Disability, 37(3), 260-268. 16 5. Chou,Yueh-Ching, Kröger, Teppo, Chiao, Chi,& Pu, Cheng-yun (2012f). Well-being among employed and non-employed caregiving women in Taiwan. International Journal of Social Welfare, 22, 164-174. 6. Chou,Yueh-Ching, Fu, Li-yeh, Kröger, Teppo & Chiu, R. Y. (2011b). Job satisfaction and quality of life among home care workers: a comparison of home care workers who are and who are not informal carers. International Psychogeriatrics, 11 (23), 814-825. 7. Chou,Yueh-Ching, Pu, Cheng-yun, Kröger, Teppo & Fu, Li-yeh (2010b). Caring, employment and quality of life: comparison of employed and nonemployed mothers of adults with intellectual disability. American Journal on Intellectual and Developmental Disabilities (AJMR/AJIDD), 115(5), 406-420. 8. Kröger, Teppo (2003) Universalism in Social Care for Older People in Finland: Weak and Still Getting Weaker. Nordisk Sosialt Arbeid: Tidsskrift for sosialarbeidere i Norden 23 (1), 30-34. 17