What Do Our Customers Really Want? The Role of Market Research in Planning for a Consumer Health Website Julia Sollenberger Bernie Todd-Smith What do we want to do? Project Mission Provide all the people of the greater Rochester area with the high-quality information and resources they need to make wise lifestyle and healthcare choices so that Rochester can become a healthier community. Primary Partners • Libraries • Medical, Public, School, Academic • Health Agencies/Associations • Healthcare delivery systems • Educational Institutions Health Information Services in Rochester • Current State • Services are at varying levels • Future State • Consistent, high quality services Consistent, High-Quality Health Information • Training • Referral Network • Web-based local health information • Awareness/Publicity • Measuring impact on health status of public Funding for Implementation • NNLM Planning and Implementation Grants • LSTA Grant • CLIC and the City – NNLM “Access to Electronic Health Information” Grant Funding for Implementation •Future Funding •New York State •Federal – Seniors CLIC proposal to be submitted to NLM June 1, 2003 •Local Foundations •Corporations Developing a Community-Wide Approach to Consumer Health It Takes a Long Time to Grow an Apple Tree 1999-2000 Cooperation Established 2001-2002 Cooperative Planning •Expanded services/resources in competing hospitals •Received NLM grants in competing hospitals •Library council’s role as intermediary established •Held Many meetings between hospital librarians •Held More meetings with all groups •Received NNLM, NLM & LSTA Grants •Steering Committee & Teams formed •Held Forum •Awarded Ad Council Roundtable •Commissioned Market Research Study •Hired Project Director 2003-2004 Joint Resources Developed •Benchmarked other programs •Completed Market Research •Website-software, content, usability •Trained public & school librarians, agency staff, school nurses (pilot), senior center staff (pilot) •Submit new grants Seniors CLIC The Future Forum Forum • Held in public library • Two hours • Convened by Deputy Director of County Health Department • Local agencies recruited • Hired professional moderator Forum 96 Attendees Literacy educators, insurers & others Senior Center & Nursing Staff 13% Health Educators/Providers 6% 33% Health Sciences Librarians 7% 9% School Librarians & Nurses 10% Public Librarians 20% Health Agency Staff Website Recommendations from Forum • Features • Address different literacy levels • Usability regularly tested • Useful to disabled, visually impaired • Current • High Quality • Interactive • Culturally sensitive Website Recommendations from Forum •Content •One-stop shopping •Disease and Wellness Information •Support Groups •Complementary Medicine •Non-clinical Information (financial, legal, treatment coordination) •chat rooms Team Formation Website Forum Teams Information Referral Market Research/ Publicity Evaluation Forum Key Accomplishments • Focused our ideas • Identified key players from outside of medical library community Website Recommendations from Forum •Content • Features •One-stop shopping •Support Groups •Complementary Medicine •Disease and Wellness Information •Non-clinical Information •chat rooms Address different literacy levels • Usability regularly tested • Useful to disabled, visually impaired • Current • High Quality • Interactive • Culturally sensitive Forum 96 Attendees Literacy educators, insurers & others Senior Center & Nursing Staff 13% Health Educators/Providers 6% 33% Health Sciences Librarians 7% 9% School Librarians & Nurses 10% Public Librarians 20% Health Agency Staff What’s Missing? Benchmarking Market Survey Objectives • What health issues are of highest interest? • What sources of information have been used? • What is the satisfaction level with these sources? • What are seen as the advantages and disadvantages of using Internet sites for such information? Market Survey Methodology • Random digit dialing • 300 households in Monroe County • Limited to those with Internet access • Screened out those who work in a library, for a health care provider, or for a health insurance company • Surveyed individuals UNLIKE those who attended the Forum Market Survey Demographics • “Typical” User • • • • Age 25-64 (85%) White (88%) Female (61%) Income Level $25,000 – 100,000 (64%) • With Internet Access at Home (87%) Do you use the Internet to look for health information? No 24% 76% Yes How would you rate your overall satisfaction with the availability and quality of health care information in the Rochester area? 3=Fair 15% Don’t 4=Poor Know 4% 3% 2=Good 55% 1=Excellent 23% Note: Overall Satisfaction Increases with age Percent of those who have a need for the following types of information frequently or occasionally Obtaining information on how to stay healthy, such as exercise or nutrition 69% Learning about a specific disease, illness, or injuries 65% 55% Getting definitions of medical terms Learning about drugs and natural remedies 49% Finding information about aging or senior citizens health issues 36% Calendar of local events related to health and wellness 30% 14% Finding support groups 0% 20% 40% 60% 80% 100% Use of Internet to obtain this kind of Information Obtaining information on how to stay healthy, such as exercise or nutrition 37% Learning about a specific disease, illness, or injuries 58% Getting definitions of medical terms 62% Learning about drugs and natural remedies 42% Finding information about aging or senior citizens health issues 30% Calendar of local events related to health and wellness 13% 20% Finding support groups 0% 20% 40% 60% 80% 100% Percentage of those who had a need for this kind of information who used the Internet to find it Learning about a specific disease, illness, or injury Where did you obtain this information? 80% 58% 60% 40% 29% 20% 7% 3% 2% 1% 0% Internet Health care professional Others Library Health Other related organization person response Learning about a specific disease, illness, or injury: In the FUTURE, where would you go to get this kind of information? 80% 63% 58% 60% 40% 40% 29% 20% 7% 0% Internet Health care professional 12% 8% Others 3% Library related response 2% 4% Health organization 1% 3% Other person Calendar of local events Related to health and Wellness Where did you obtain this information? 100% 80% 60% 49% 40% 19% 20% 15% 13% 4% 0% Others Health Health care organization professional Internet Other person 0% Library related response Finding Support Groups Where did you obtain this information? 100% 80% 60% 40% 36% 24% 20% 20% 16% 4% 0% 0% Health care Others professional Internet Health organization Other person Library related response What internet sites do you use for health information? No specific site/don’t know 27% Use search engine 20% WebMD 14% Yahoo 9% Google 9% MSN 4% AOL 3% 0% 10% 15% 20% 25% 30% Other sites mentioned (No more that 3 mentions) • Medical • Health Central • American Medical Association • UMIM • Dogpile • ASHA • Discovery Channel • Blue Cross • United Health • Dr. Coop • Heart • Road Runner • NEJM • • • • • • • • • • • • • Men's Health Metlife Blue Choice Health Care Provider Fitness Medline Plus Aetna American Health Network Mayo Clinic Dr. Dean Edell Health Link Medix Walgreens What do you like about using the Internet to get information about health related Issues? Easy/fast/convenient 66% Amount/variety of information 26% 11% Can use at home Don’t have to bother Dr./others 7% 5% Privacy 0% 20% 40% 60% 80% 100% What do you dislike about using the Internet to get information about health related issues? Dislike nothing 67% Sorting through lots of information 23% 20% Accuracy concerns 7% Slow Lacks human interaction 5% Popup ads 3% 0% 20% 40% 60% 80% 100% Our conclusions • Results substantiate our plans to build a local website for health information • Many are satisfied with the information they get from the Internet, but there is room for improvement • Wellness information more important than we thought Conclusions • Two areas where Internet not already well used • Calendar of local events • Finding support groups These are exactly the information gaps that could be filled by a localized, well known Internet site. Conclusions • No one Internet health site dominates • CLIC-on-Health could establish itself as the widely recognized website of choice among Rochesterians, since THE POSITION IS VACANT! Future Plans for Market Research • Good baseline data for evaluation purposes • Plan to repeat this survey several years into the future • Will we have made a difference??? • That’s our intent! Let’s have some fun – Survey Out-takes • “I go to government sites like AMA and APA” • “It’s that they would use the big doctor talk, and I would say, uh huh, okay, whatever…” More Out Takes • What Internet site did you use to obtain info on how to stay healthy, such as nutrition or exercise? • www.dentbaseball.com • Where did you obtain info on local events related to health and wellness? • The Bicycle Shop Even more Out Takes • What is your favorite site for health information? • Clubmed.com And Finally… • What site do you use for health information? “I don’t know. I just click on health”