Running head: UNCERTAINTY Uncertainty Autumn Burns Auburn University/Auburn Montgomery UNCERTAINTY 2 Abstract Walker and Avant’s eight steps for concept analysis are utilized in this paper to obtain the defining attributes of uncertainty. Uncertainty affects many different domains, and more specifically nursing and psychiatry. Three case illustrations, a model case, a borderline case, and a related case, are discussed and demonstrate the relationship between the defining attributes and uncertainty. Implications for nursing practice are educating the patient, spending time with the patient, answering questions the patient might have, and being an advocate for the patient. Understanding the concept of uncertainty and how it affects patients and their families while also adopting suggested interventions could decrease overall uncertainty and increase positive patient outcomes. UNCERTAINTY 3 Uncertainty Uncertainty is simply defined as an incapability to allocate definite values and/or ascertain an exact conclusion for an event. It applies to not only to future events, but those previously determined, and of the unknown. Different areas in which uncertainty may be discussed include philosophy, economics, insurance, sociology, statistics, physician, nursing, and psychology. The differences in uncertainty in each of the many fields it is employed are so subtly diverse that it can be difficult to determine differences. The following discussion will address uncertainty in its entirety, as well as, specifically in the selected fields of nursing and psychology. Identification of the Concept Uncertainty in the specific event of illness is characterized by the failure to attain the meaning for the medical occurrence. Illness uncertainty is developed when a patient is unable to use past experiences to help them cope with a life-changing event (Bailey, et al., 2010). It can include vagueness of the condition or the patient’s identification of the vast indicators about the value and efficiency of the purposed treatment (Mauro, 2010). Due to the vast qualities uncertainty holds it can be interpreted in many different ways. Among the many issues that arise from uncertainty, difficulty in clinical assessment is one of the primary complications. These issues develop from not only patient uncertainty but also from physician uncertainty. In a study by Politi and Legare (2010), the effect of the doubt derived through uncertainty on shared decision -making (SDM) between the patient and general practitioner is observed. In their research the authors assert that SDM is essential and physicians who manage there ambiguity are more likely to promote and participate in SDM. Politi and Legare (2010), using longitudinal data a cross sectional analysis was performed on SDM among UNCERTAINTY 4 primary physicians. The study found that doctors experienced anxiety from uncertainty, as well as, reluctance to reveal uncertainty to patients. Conclusions drawn by the authors state that measuring and observing the reactions of uncertainty by physicians is essential to bettering SDM implementation there in by improving clinical assessment and treatment (Politi & Legare, 2010) The author picked this concept because of how much uncertainty can impact a patient’s outcome. At some point or another most patients will experience some degree of uncertainty. Through this research the author hopes to utilize the knowledge gained to better identify with a patient’s needs and thereby increase positive outcomes for patients and their families. In the Field of Nursing One of the most transcending factors of uncertainty is that it is an inescapable fact of decision-making regardless if it is a decision being made about remodeling a home or patient care. Specifically in the field of nursing, uncertainty is an unfortunate and unavoidable occurrence (Vaismoradi, Salsai, & Ahmadi, 2010). Thompson & Dowding (2001) state that many of nursing decisions and judgments are made from intuition and using their intuition can actually decrease uncertainty. Nurses utilize their intuition, along with their base knowledge, because many times there is not time to consult with a doctor before a decision is made. The major issues that nurses and other healthcare employees encounter are how to make decisions under the pressure of uncertain medical circumstances. Stress in nursing research is predominantly focused on work characteristics that include workload, autonomy, and uncertainty as important determinants of psychological, physiological and behavioral consequences (Vaismoradi, et al., 2010). Uncertainty can effect the environment in such a way that it can lead staff nurses to develop feelings of distress and ambivalence. Nurses also experience feelings of ethical concern due to uncertainty about the optimal course of treatment for patients. Nurses also UNCERTAINTY 5 carry the burden of a patient’s death even if they identified the problem and subsequently the right treatment was taken. This stress can lead to anxiety for future decision-making. Most often the nurse will always wonder what she/he could have done differently. This is a heavy burden to carry as a nurse knowing that every day at work there is a life in your hands. On the contrary Kamhi (2011) believes that uncertainty might actually enhance a nurses’ ability to adapt to unknown situation because they are more open than a nurse that feels more certain and confident. Kamhi (2011) also believes that as health care workers, it is our duty to inform patients when feeling uncertain about what plan of action to take. Some nurses and practitioners may not want to confess to a patient that they are feeling uncertain because of the fear that a patient may loose confidence and faith in them (Kamhi, 2011). Groopman (2007) disagrees and believes that confiding in a patient about the uncertainty of their illness or treatment options can actually enrich a patient’s experience. It is also suggested that showing uncertainty can allow a patient to better understand and accept when a treatment option fails (Groopman, 2011). In the Field of Psychology Similar to nursing, the field of psychology is also an inevitable environment to uncertainty. Psychological factors arising from uncertainties is often related to medical issues and are due to the increase of stress from being diagnosed with health problems, no matter the severity. In one study, uncertainty was strongly correlated with psychological distress in adolescents newly diagnosed with cancer (Stewart, Mishel, Lynn, & Terhorst, 2010). In children and adolescents that survived cancer there is often the lingering feeling of wondering when the cancer will return (Lee, 2006). Many times in these patients uncertainty about their illness can UNCERTAINTY 6 progress to post traumatic stress symptoms (Lee, 2006). These symptoms can begin to interfere with the patient’s outcomes and can inhibit them living their life, even when cancer free. In a further study by Lin, Yeh, and Mishel (2010) observations showed social support can increase development through uncertainty by lowering parental perplexity and encouraging more coping in cases where children have been diagnosed with cancer. A patient that can rely on a strong support group and who feels loved regardless of the outcome can generally deal with the situations better. A loss of control can also make patients experience high anxiety due to the feeling that they are not involved in the decision making process. In the author’s experience, some younger patients will do whatever they can to regain some control and it can even result in patients not taking their medication. The author has experienced a young female lung transplant patient who stopped taking her immunosuppressant medications because the she was tired of being different and doing what everyone else wanted her to do. The patient ultimately died because she had severe rejection. It is important for patients to be a part of their care and because all patients are different, its important to provide for different ways of coping. The other coping mechanisms, such as religious and spiritual growth were also thought to foster dealing with and surviving an illness (Lin, et al., 2010). Aim of Analysis Furthermore, in this author’s experience, a patient that is newly diagnosed with a life threatening illness does not deal with their diagnosis as well as a patient diagnosed with a chronic illness. It takes a longer time for someone who was seemingly healthy, prior to their hospitalization, to wrap their mind around the new lifestyle that has been forced upon them. It can be difficult for a patient to imagine all of the lifestyle changes that can occur with their new diagnosis. Often patients that arrive in Heart and Lung Transplant Intensive Care Unit are UNCERTAINTY 7 diagnosed with catastrophic illnesses, which result in major life changes. Some of these patients who were normal a week ago, are now told that they have to have a heart transplant or have a left ventricular assist device. Imagine the range of emotions these patients experience. On the other hand, a patient with a chronic illness such as cystic fibrosis, who has lived with the possibility that one day they would have to have a transplant, generally deals with the news with a little less anxiety. Obviously each of these patients has a lot to consider and will have to deal with many emotions, and the author is not implying that either journey is easier than the next. It is by observation the author concludes that patients with a chronic illness often deal with a decline in health better initially than those patients who are diagnosed for the first time. A patient who has been sick their entire life understands their diagnosis and knows what to expect so most of the time, it is less stressful for them. Any uncertainty in a patient causes most patients psychological distress. Uncertainty may be a seemingly simply characteristics, but it has the ability to cause confusion and doubt during any type of event. The term’s very nature makes it an interesting and important concept. Those factors are the reason the author believed this was an essential concept to analysis. By fully understanding this complex idea the author believes that one can better be able to help prevent negative outcomes to situation where uncertainty occurs and also to help increase communication about fears, as well as, faults. Three factors that contribute to uncertainty are lack of knowledge, dissimilarity in analysis, and disagreement with evidence (Vaismoradi et al., 2010). A person obtaining partial or inadequate information of an event results in lack of available evidence. Differences in interpretation uncertainty occur due to restrictions in current empirical data. And finally the third category is a by-product of the first and second categories and is due to a struggle in discerning UNCERTAINTY 8 between the persons own lack of knowledge and the limitations of present date knowledge (Vaismoradi et al., 2010). Analysis of the Concept Meleis (2012) describes a concept analysis as a way to expand your idea. Walker and Avant concept analysis process was chosen for this paper. The author will discuss the seven steps and the process of analysis of the information gathered for uncertainty. Uncertainty is a universal and inherent idea that transcends across many different domains. It occurs when someone experiences doubt, a lack of education, lack of control, and lack of family support. Using process analysis, the author will describe the steps in developing the concept of uncertainty. Process of Analysis The author used Walker and Avant’s (2011) eight steps to gain direction and to develop an outline. The eight steps begin with picking a concept, decide on the intention of the aim, distinguish between the many uses of uncertainty, define the characteristics and traits of the concept, pick a model case, determine the additional cases, identify what precedes the concept and what results from the concept, and lastly describe empirical referents (Walker & Avant, 2011). The steps are listed in chronological form but during the process of gaining more information, it may be necessary to revise previously completed steps (Walker & Avant, 2011). Each step was utilized and scrutinized to better develop the structure of this concept analysis paper. This structure fits best with the approach the author was taking to discuss uncertainty and to demonstrate her thoughts associated with it. This analysis will be an in-depth look at the idea of uncertainty and what can be done to promote lowering the negativity it can have on outcomes. Figure 1 depicts a concept map and the physical process of concept analysis as it relates to uncertainty as a concept. UNCERTAINTY 9 Antecedents The events that precede the feelings of uncertainty are called antecedents (Walker & Avant, 2011). These events identified by the author are diagnosis of an illness, other concurrent illnesses, un-education, and anxiety. When newly diagnosed patients are given information that may change their life, it can be hard to handle. Lee (2006) stated that newly diagnosed adolescent cancer patients had higher anxiety and feelings of uncertainty than those that had time to process their diagnosis. These patients had concerns about their health care providers, survival rates, and what kind of pain they would be in (Lee, 2006). Stress can also be linked to symptom suffering and onset (Wallace, 2004). On the other hand, Decker, Haase, and Bell (2007) found that patient that were five or more years from diagnosis of cancer had a higher uncertainty due to their knowledge of the disease. These patients had questions that were unanswered and because of their higher knowledge of their illness, had more anxiety over the potential of relapses (Decker et al., 2007). Wallace (2004) found that patients who had a higher understanding of their illness and treatment options, had a decrease in uncertainty. Attributes When a decision of any nature is being made a person is obligated to choose between multiple alternatives in which each choice displays a variety of attributes that possess a quantitative and qualitative character. Without completely observing and understanding all attributes concerned one can not properly make a decision. In the concept of uncertainty lack of control, fear of unknown, and lack of shared decision making are all attributes. Kamhi (2011) found that patients that were told the truth, even when the doctors themselves were feeling uncertain, was more apt to dealing with stressful situations. These factors whether individually or combined can lead a person to be uncertain about the next steps that will led to a positive UNCERTAINTY 10 outcome within an event. This notion is increased when the event itself has a severe or intense disposition by already creating a naturally stress itself. Patients or families can experience fears of the unknown because of unsure life expectancies of an illness (Lee, 2006). It is also suggested that by giving patients some control of their care and providing them with information about their illness can decrease anxiety and uncertainty they experience (Lee, 2006). Uncertainty can also be caused by patients feeling as if they do not have a say in their care, especially when the patient is an adolescent (Decker et al., 2007). Likewise, breast cancer patients often feel uncertainty after their treatment is complete because of feelings of detachment from medical personnel (Sammarco & Konecny, 2010). Nursing is already a very stressful environment and when it is coupled with the addition of uncertainty, it can lead to a fear of being wrong. Consequences A concept results in a consequence or outcome and may help point to new research ideas and views (Walker & Avant, 2011). The author examined the outcomes for uncertainty and determined several factors from the literature reviewed. The consequences identified for uncertainty are insecurity, anxiety, withdrawal and loneliness, lack of faith in treatment, and anxiety about having to rely on others. Insecurity often plagues the average person and this is often amplified in patients with a life changing illness. Women with chronic heart failure displayed feelings of insecurity about their declining bodily functions (Burstrom, Brannstrom, Boman, & Strandberg, 2011). These women also felt lonely and felt guilty about their family having to take care of them (Burstrom et al., 2011). Heart failure is often very erratic and uncontrollable which also lead to the women feeling fear and anxiety (Burstrom et al., 2011). A patient may wonder what will happen in the future and have anxiety about the unpredictable nature of their illness (Pritchard, 2011). The loss of control over their body made the women fear UNCERTAINTY 11 for the future, and even death. Heart failure symptoms can present in many different ways and because of this, it can sometimes be misdiagnosed. Patients may feel as though they are being brushed off and not taken seriously. When patients feel as though their complaints are not being heard it can result in a lack of faith in health care (Burstrom et al., 2011). Empirical Referents and Measurement Tools Empirical referents are not used to directly measure the concept but are utilized to distinguish between the attributes (Walker & Avant, 2011). They are helpful in discriminating between ideas because they are connected to the foundation of the concept. The empirical referents identified for uncertainty are lack of shared decision-making, loss of control, fear of the unknown, and anxiety. Empirical referents can be measured by qualitative or quantitative methods. Qualitative methods are subjective and could be measured by having a patient fill out a questionnaire or simply in a face-to-face interview (Leithner et al., 2006). Quantitative methods are more objective and can measured by scales such as the Hospital Anxiety and Depression Scale (HADS). The measurement tool utilized for anxiety is the (HADS) (Pritchard, 2011). It takes approximately two to five minutes to complete and is composed of two sections, one for anxiety and one for depression. Each question is given a score of zero to three and then added up at the end of the tool. A score of greater than eleven means that patient is at high risk for anxiety and depression, a score of eight to ten are at borderline risk, and less than seven are normal. Mishel’s Uncertainty in Illness Scale was utilized to determine the level of uncertainty patients were feeling (Decker et al., 2007). This scale is made up of two or four components. For the purpose of determining uncertainty in this paper, the author will use the two-component scale. This scale is divided into two groups, ambiguity and complexity (Decker et al., 2007). UNCERTAINTY 12 Ambiguity is made of sixteen questions that are connected to illness and complexity is made up of twelve questions that are about their view of treatment and health care (Decker et al., 2007). These questions are graded on a one to five scale with one being strongly agrees and five being strongly disagrees (Decker et al., 2007). The questions are scored with the highest score meaning high uncertainty (Decker et al., 2007). Case Illustrations The author will discuss three cases, a model case, a borderline case, and a related case that exhibits attributes of uncertainty. The model case is an example that embodies the concept of uncertainty and will contain all of the attributes of uncertainty (Walker & Avant, 2011). The borderline case will contain the majority of the attributes of uncertainty but will be unlike the model case in some way (Walker & Avant, 2011). Unlike either of the previous cases, the related case may only contain some of the attributes of uncertainty but is still linked with the concept. The author will discuss examples of each case and how each relates to the concept of uncertainty. Model Case. A 32-year-old woman was admitted to Heart and Lung Transplant Intensive Care Unit (HTICU) via critical care transport. She presented with post-partum cardiomyopathy from an outside hospital. She came to the emergency room with complaints of shortness of breathe and fatigue. Post-partum cardiomyopathy was diagnosed by chest x-ray and echocardiogram and she was then transferred to University Hospital at Birmingham (UAB) for further evaluation. Upon arrival the patient was lethargic and was hemodynamically unstable. The physicians informed the family that the patient would need emergent surgery to place a left ventricular assist device (LVAD). UNCERTAINTY 13 There are many factors that arise due to this situation. Life after a LVAD is quite different and such a dramatic life style change. The patient can never be left alone, the patient can not take a bath, the patient has a driveline that exists through their abdominal wall, and the patient will always have to be aware of the device. The device has to always be hooked to two sources of battery power, and for this reason it makes it difficult to just maintain every day tasks. This patient in particular had a tough time adjusting to her new life. She did not choose to get the device, even though she understood that her family had to make the choice to keep her alive, no matter the cost. She feared for the future, whether or not she could have anymore children, whether or not she would ever get rid of this device, or whether or not she would ever lead a normal life. She was not married and wondered if anyone would ever love her with a machine hanging off of her body. She felt as if she lost total control of her body and her life. The antecedents that she experienced were un-education and diagnosis of an illness. Since she had previously been healthy, being diagnosed with a life threatening illness was hard for her to adjust to. She was really sick when she was admitted and therefore did not get the teaching on the device or get to talk any patient that had a device, and because of this she felt like she was in the dark. Her feelings of the fear of the unknown, fear of the future, lack of shared decision making, and anxiety were attributes and empirical referents identified for uncertainty. The outcomes of her situation resulted in her exhibiting insecurity about having this machine attached to her body, anxiety and fear about her future with the device, and worried that her family would feel burdened by her. She was afraid that because she required so much attention and care that no one would ever love her, leaving her feeling lonely. The HADS tool was used on this patient to determine her level of anxiety. She took the test and scored a fifteen, indicating that she was at a high risk for anxiety and depression. Since UNCERTAINTY 14 this is an attribute of uncertainty, it was also decided to use Mishel’s Uncertainty in Illness Scale. She scored high on that scale, indicating she had a high level of uncertainty. This case is ideal and contains all of the characteristics identified in this paper. Borderline Case. A 63-year-old man was admitted with a congestive heart failure exacerbation. He was evaluated for medical management versus LVAD. While the tests were being conducted he was started on a Primacor drip. After the tests were complete, the patient was noted to be eligible for a LVAD. The doctors presented him with all of the data from his tests, such as a right heart catheterization, and told him that he would need the device. The patient felt so much better since being started on the Primacor drip and did not understand why he needed the LVAD. The doctors explained that even though he felt fine right now that did not mean he would feel fine tomorrow. They also explained that if he did not get the device and his health rapidly declined, then he may not be eligible or if he did get the device he may not have a good recovery. The patient was given the choice on whether or not to proceed with surgery or to be discharged home on intravenous Primacor therapy. The patient exhibited fears of the unknown regarding his health. If he went home and got really sick, he may not survive the surgery, and on the other hand, he did not want to deal with the lifestyle change of the LVAD. He did feel like he was involved in the decision making process, which made his outcome more positive. He felt like even though it was his decision that he still was losing control of everything. The antecedents the he experienced are diagnosis of an illness and he did not experience un-education. Due to his stable health, he was given a video to watch about the device, patients with the device came and spoke to him, and LVAD coordinators brought the equipment around UNCERTAINTY 15 so that he could see how it worked. Some of the attributes and empirical referents that he experienced matched the attributes for uncertainty. These attributes and empirical referents that matched were a loss of control fear of the unknown, and anxiety. He did not experience lack of shared decision-making because he was given the opportunity to make the decision about whether or not to get the device or go home on a Primacor drip. The outcomes the patient experienced resulting from uncertainty was insecurity, anxiety, and anxiety about having to rely on others. The HADS scale indicated that the patient was a borderline case for anxiety and depression. The Mishel’s Uncertainty in Illness Scale was also preformed. The scale revealed that the patient had a high level of uncertainty but not as high as the model case patient. This patient demonstrates a clear connection to uncertainty and contains most of the characteristics identified in this paper. Related Case. A 45-year-old woman was admitted with increased shortness of breath and was referred from her cardiologist to UAB. She was being evaluated for heart transplant versus LVAD. Her tests showed that she was eligible for both procedures and the doctors gave her the choice. They told her that she could go home on Primacor infusion and wait for a transplant or she could get the LVAD and build her strength. In the past other patients that were really deconditioned recovered slowly from LVAD surgery. Even though they recovered slower than the average patient, the device gave them time they may not of had to wait on a transplant. Often patients that get a LVAD also build up their body and do better once they are transplanted. She chose to go ahead and get the LVAD. She felt good about her decision because she had plenty of time to discuss her options and to make an informed decision. She talked with patients that already had a UNCERTAINTY 16 LVAD and was able to see what her life would be like living with an assist device. Even though she felt good about her decision, she still had some fears for her future. She wondered how painful surgery would be and how her family would respond to the demands of the LVAD program. Since she was able to make her own decision about which route to take, she felt confident that the LVAD was the right choice for her. The antecedents that she experienced prior to uncertainty were diagnosis of an illness and un-education. At first she was not sure what to expect, but once she had all of the information in front of her and she was taught about each procedure, she was sure that she wanted to get the LVAD. The attributes and empirical referents that were identified in her case are anxiety. She did not experience the other attributes and empirical referents related to uncertainty, such as; lack of shared decision-making, loss of control, and fear of the unknown. She was able to have the final say as to which procedure she would have and felt as though the doctors listened to what she needed, which allowed her to have some control. The outcomes experienced as a result of uncertainty are insecurity and anxiety. She felt confident that she and her family were told about what to expect and what kind of life style change that it would be, which allowed everyone to be prepared. The patient completed the HADS to determine her level of anxiety and depression. Her results showed that she was a low borderline case for anxiety and depression. She was also asked to perform the Mishel’s Uncertainty in Illness Scale. That scale determined that while she exhibited high uncertainty, it was less than the other two cases, model and borderline. This case is related to uncertainty but does not contain all of the characteristics of uncertainty. Analysis Summary UNCERTAINTY 17 Using the eight steps as defined by Walker and Avant (2011), one can identify a process to develop a concept. These eight steps, choosing a concept, determine the aim, pinpoint all uses of the concept, define the attributes, discover a model case, identify borderline, related, contrary, invented, and illegitimate cases, define antecedents and consequences, and determine empirical referents, are used to revise and enhance a concept (Walker & Avant, 2011). This process is ever changing and also serves to obtain the defining attributes of a concept (Walker & Avant, 2011). Ultimately the process of concept analysis can decrease ambiguity and clarify interpretations of everyday nursing practice (Falan, 2010). Implications/Application to Nursing Practice Uncertainty impacts most everyone, from all walks of life, at some point or another. For example, nurses deal with having uncertainty with difficult decision-making, patients deal with uncertainty when diagnosed with a life threatening illness, and physicians deal with uncertainty when they are unsure what course of action to take when treating a patient. Nurses touch lives when they can pull from previous experiences or emotions that can better help them understand what their patient is going through. In this case, because most everyone has experienced uncertainty, a nurse can utilize past experiences to adjust patient care to better accommodate a patient experiencing uncertainty. Some interventions that could decrease a patient’s anxiety and feelings of uncertainty are educating the patient, spending time with a patient, answer questions the patient might have, and being an advocate for the patient. As previously stated, Wallace (2004) found that as a patient became more educated about their illness, uncertainty decreased. As a nurse on Heart Transplant Intensive Care Unit (HTICU), the author understands that educating patients about their illness is an important part of recovery. University Hospital at Birmingham utilizes patient education UNCERTAINTY 18 sheets that are given to patients when they are prescribed new medications or are diagnosed with a new illness. On HTICU a pharmacist teaches heart transplant patients their new medications and before they can leave the hospital, they have to be checked off. This is an example of educating patient to decrease any uncertainty and allowing patients to take control of the situation. Sometimes it is necessary to spend a little extra time with patients that are experiencing uncertainty. This can provide reassurance and establish a rapport with a patient that might otherwise feel alone. Allowing the patient to voice their concerns can also promote communication between patients and the medical staff. This time can also be used to find out the needs and questions of the patient. Often times patients do not think of questions until after the physician leaves, and so communicating with the patient can allow the nurse to fill the communication gap to ensure the patient is receiving the best care possible. Understanding the concept of uncertainty and how it affects patients and their families while also adopting suggested interventions could decrease overall uncertainty and increase positive patient outcomes. UNCERTAINTY 19 References Baily, D.E., Barroso, J., Muir, A.J., Sloane, R., Richmond, J., McHutchison, J., et al. (2010). Patients with chronic hepatitis c undergoing watchful waiting: Exploring trajectories of illness uncertainty and fatigue. Research in Nursing & Health. 33(5), 465473. doi:10.1002/nur.20397 Burstrom, M., Brannstrom, M., Boman, K., & Strandberg, G. (2011). Life experiences of security and insecurity among women with chronic heart failure. Journal of Advanced Nursing, 1-10. doi:10.1111/j.1365-2648.2011.05782.x Decker, C., Haase, J., & Bell, C. (2007). Uncertainty in adolescents and young adults with cancer. Oncology Nursing Forum, 34(3), 681-688. Falan, S. (2010). Concept analysis of similarity applied to nursing diagnoses: Implications for educators. International Journal of Nursing Terminologies and Classifications, 21(4), 144-155. doi:10.1111/j.1744-618x.2010.01163.x Groopman, J. (2007). How Doctors Think. New York, NY: Houghton Mifflin. Kamhi, A.G. (2011). Balancing certainty and uncertainty in clinical practice. Language, Speech, and Hearing in Schools, 42, 59-64. doi:10.1044/0161-1461(2009/09-0034) Lee, Y. (2006). The relationship between uncertainty and posttraumatic stress in survivors of childhood cancer. Journal of Nursing Research Taiwan Nurses Association, 14(2), 133142. Leithner, K., Assem-Hilger, E., Fischer-Kern, M., Loffler-Stastka, H., Thein, R., & PonocnySeliger, E. (2006). Prenatal Diagnosis, 26(10), 931-937. doi:10.1002/pd.1529 Lin, Y., Yeh, C.H. & Mishel, M.H. (2010). Evaluation of a conceptual model based on Mishel’s theories of uncertainty in illness in a sample of taiwanese parents of children with UNCERTAINTY 20 cancer: A cross-sectional questionnaire survey. International Journal of Nursing Studies, 47(12), 1510-1524. Doi:10.1016/j.ijnurstu.2010.05.009 Mauro, A.M., (2010). Long-term follow-up study of uncertainty and psychological adjustment a among implantable cardioverter defibrillator recipients. International Journal of Nursing Studies, 47(19), 1080-1088. Meleis, A.I. (2012). Theoretical nursing: Development & progress, 5th ed. Philadelphia, PA: Wolters Kluwer/Lippincott, Williams & Wilkins. Politi, M. C. & Legare, F. (2010). Physicians reactions to uncertainty in the context of shared decision making. Patient Education and Counseling, 80(2), 155-157. Pritchard, M.J. (2011). Using the hospital anxiety and depression scale in surgical patients. Nursing Standard, 25(34), 35-41. Sammarco, A. & Konecny, L.M. (2010). Quality of life, social support, and uncertainty among Latina and Caucasian breast cancer survivors: A comparative study. Oncology Nursing Forum, 37(1), 93-99. doi:10.1188/10.ONF.93-99 Stewart, J. L., Mishel, M.H., Lynn, M.R., Terhorst, L. (2010). Test of a conceptual model of uncertainty in children and adolescents with cancer. Research in Nursing & Health, 33(1), 179-191. Thompson, C. & Dowling, D. (2001). Responding to uncertainty in nursing practice. International Journal of Nursing Studies, 38(5), 609-615. doi:10.1016/s0020-7489(00)00103-6 Vaismoradi, M., Salsai M., Ahmadi, F. (2010). Nurses’ experiences of uncertainty in clinical practice: A descriptive study. Journal of Advanced Nursing, 67(5), 991-999. Walker, L.O., & Avant, K.C. (2011). Strategies for Theory Construction in Nursing (5th ed.). Upper Saddler River, NJ: Pearson Prentice Hall. UNCERTAINTY 21 Wallace, M. (2004). Finding more meaning: The antecedents of uncertainty revisited. Journal of Clinical Nursing, 14(7), 863-868. UNCERTAINTY 22 Figure 1 Uncertainty as a concept Definition Uncertainty Antecedents Uncertainty results in consequences All must be there for a model example Nursing Consequences AIM Psychology Attributes The related case may only exhibit one of the attributes Related case Measure Attributes Empirical Referents The borderline case Exhibits most, but not all of the attributes Borderline case Model Case The model case possesses all of the attributes LEGEND For cases Represents the relationship of the model case and the attributes of uncertainty. The model case will exhibit all of the attributes Demonstrates the relationship between attributes and the borderline case. The borderline case will exhibit most of the attributes, but not all of them Demonstrates the relationship between attributes and the related case. This case is connected to the concept but does not display all of the attributes.