MORTALITY, MORALITY & HONOR: THE END-OF-LIFE PARADIGM DA VINCI’S VITRUVIAN MAN - 1490 VITRUVIUS 25 B.C. THE CIRCLE REPRESENTS THE COSMIC & THE DIVINE Click to edit the outline text format Second Outline Level THE SQUARE, THE EARTHLY & THE SECULAR Third Outline Level Fourth Outline Level Fifth Outline THE GOAL: LINEAR TO CIRCULAR THE LONG FLAT TABLE NO LONGER Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline ANOTHER “DR DEATH ?” MY MANTRA GROW OLDER & DIE YOUNG AS LATE AS POSSIBLE PLAN ON IT PLAN FOR IT Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline AND MY WISH? TO WRITE MY LAST CHAPTER…. AND WHEN IT IS READ, A LONG TIME FROM NOW, HAVE IT BE RECOGNIZED AS A WORK OF NONFICTION Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline A CONSTANT ? OR AN EVER-CHANGING LANDSCAPE ? IF YOU WANT TO HIT A BIRD ON THE WING YOU MUST HAVE YOUR MIND IN FOCUS. YOU MUST HAVE THAT BIRD IN YOUR MIND’S EYE. EVERY GREAT ACHIEVEMENT IS A BIRD ON THE WING. OLIVER WENDELL HOLMES Jr Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline IF YOU A WANT “BEST” READ A “MUST” READ ATUL GAWANDE MD “LETTING GO” Click to edit the outline text format Second Outline Level Third Outline Level NEW YORKER AUG 12, 2010 Fourth Outline Level Fifth Outline WHY NOW ? WHY HERE ? A BIG ISSUE A DIVISIVE ISSUE A “CIVIL” RIGHTS BATTLE What Percent of People Will Eventually Die? AND IT WON’T BE EASY GALLUP’S VALUES AND BELIEFS POLL - MAY ‘10 DWD - PAS 45 % - IT’S MORALLY ACCEPTABLE 32 % - IT’S MORALLY WRONG “IT” THE RIGHT, IN ADULTS OF SOUND MIND, TO EXERCISE CHOICE AND CONTROL FOR THEMSELVES AT THE END OF Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline DOES THIS MAKE A DIFFERENCE ? NATIONWIDE, RECENT POLLS SHOW THAT >70% OF AMERICANS BELIEVE THAT TERMINALLY PATIENTS SHOULD HAVE THE RIGHT TO SELF-ADMINISTER A LETHAL MEDICATION TO ACHIEVE A PEACEFUL DEATH. Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline I KNOW- POLLS ! ‘05 GALLUP 75% SAID YES TO DOCTORS BEING ALLOWED TO HELP THE TERMINALLY ILL DIE Click to edit the outline text format Second Outline Level BUT ONLY 58% SAID YES WHEN THE WORD INCLUDED SUICIDE WAS Third Outline Level Fourth Outline Level Fifth Outline BUT INCREASINGLY THE COURTS AND THE PUBLIC RECOGNIZE THAT TERMINALLY ILL PATIENTS ASKING FOR AID IN DYING ARE NOT “SUICIDAL” AND PROVIDING SUPPORT IS NOT “ASSISTING SUICIDE.” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline SO WHO IS AGAINST PHYSICIAN ASSISTED DEATH ? THREE BROAD CATEGORIES: SANCTITY OF LIFE MUST BE PRESERVED THE SLIPPERY SLOPE MUST BE PREVENTED THE MEDICAL SYSTEM CAN ELIMINATE OR ALLEVIATE END-OF-LIFE SUFFERING Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline WITH ALL DUE RESPECT U.S. CONFERENCE OF BISHOPS –‘11 “ALL PATIENTS – INCLUDING THOSE IN THE SO-CALLED PERSISTENT VEGETATIVE STATE – BE PROVIDED WITH ARTIFICIAL HYDRATION AND NUTRITION IF SUCH CARE COULD EXTEND LIFE, EVEN Click to edit the outline text format Second Outline Level Third Outline Level INDEFINITELY.” Fourth Outline Level Fifth Outline CATHOLIC ETHICAL & RELIGIOUS DIRECTIVES – (CERD’s) “VIRTUE IS PROTECTING & PROLONGING LIFE, OVER ALL VIRTUES, OVERRULING PATIENT CONCERNS ABOUT THEIR QUALITY OF LIFE.” “PATIENTS EXPERIENCING SUFFERING THAT CANNOT BE ALLEVIATED SHOULD BE HELPED TO APPRECIATE THE CHRISTIAN UNDERSTANDING OF REDEMPTIVE SUFFERING.” IRONY TO ANXIETY: 40 % OF HOSPITALS…… Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline THE HIPPOCRATIC OATH ORIGINAL ENGLISH TRANSLATION: “I WILL NOT GIVE A LETHAL DRUG TO ANYONE IF I AM ASKED” Click to edit the outline text format MODERN TRANSLATION: “I WILL REMEMBER THAT THERE IS AN ART TO MEDICINE AS WELL AS SCIENCE, AND THAT WARMTH, SYMPATHY AND UNDERSTANDING MAY OUTWEIGH THE SURGEON’S KNIFE OR CHEMIST’S DRUG” Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline THE MANTRA – THE MYTH DOES PAD, (DWD), CONTRADICT A PHYSICIAN’S RESPONSIBILITY TO PRESERVE LIFE? COMPASSION: THE HUMANE QUALITY OF UNDERSTANDING THE SUFFERING OF OTHERS AND THE DESIRE TO DO SOMETHING ABOUT IT Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline IRONY WHAT WOULD HAPPEN IF THERE WERE NO MORE DEATH ? WE WOULD HAVE NO NEED FOR PROGRESS OR ART, FAITH OR FAME WE WOULD HAVE LITTLE TO DO YET IN THE GREATEST OF IRONIES, HAVE ENDLESS EONS IN WHICH TO DO IT. Click to edit the outline text format Second Outline Level Third Outline Level ACTION WOULD LOSE IT’S PURPOSE, TIME ITS VALUE Fourth Outline Level Fifth Outline THE “SLIPPERY SLOPE” WILL ADVANTAGE BE TAKEN NO, ABSOLUTELY NOT! RATES OF ASSISTANCE IN STATES, COUNTRIES), WHERE DWD IS LEGAL HOW ABSOLUTELY NO BIAS AGAINST HE HE HE HE HE Second Outline Level ELDERLY UNINSURED UNEDUCATED MINORITIES POOR REVERSE SLOPE ? Click to edit the outline text format Third Outline Level THE W & W - THE D & A Fourth Outline Level Fifth Outline AND AS FOR COMPLETE RELIEF LET US ASK WHY PALLIATIVE CARE HAS EMERGED AS A RESPECTED & ESSENTIAL PART OF OUR MEDICAL LANDSCAPE ONLY RECENTLY ! COLORADO SB 102 - 2006 Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline PAIN & COMPASSION (PLEASE REFLECT ON IT) Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline WHAT ARE WE GOOD AT ? OUR MEDICAL SYSTEM IS EXCELLENT AT TRYING TO STAVE OFF DEATH WITH: ICU CARE $5,OOO+/DAY CHEMOTHERAPY $8,OOO/MO SURGERY $5,000/HR BUT ULTIMATELY, THE OWL CALLS OUR NAMES AND NOT SO GOOD AT ? “AGAINST OTHER THINGS IT IS POSSIBLE TO GAIN SECURITY, BUT WHEN IT COMES TO DEATH WE HUMAN BEINGS ALL LIVE IN AN UNWALLED CITY.” Click to edit the outline text format Second Outline Level “NO ONE WANTS TO DIE. EVEN PEOPLE WHO WANT TO GO TO HEAVEN DON’T WANT TO DIE TO GET THERE. YET DEATH IS THE DESTINATION WE ALL SHARE.” Third Outline Level Fourth Outline Level Fifth Outline AND DOES OUR MEDICAL PROFESSION HAVE A PROBLEM WITH THIS ? JENNIFER TEMEL MD – MGH NEJM 2010 (RANDOM ASSIGNMENT OF 151 ADV LUNG CANCER PTS TO “REGULAR CARE OR CARE & EARLY DISCUSSIONS WITH PALLIATIVE CARE GROUP TWO: BETTER QUALIITY OF LIFE & LESS TROUBLESOME SYMPTOMS IN TIME REMAINING PHYSICIANS SHOWED A BETTER APPRECIATION OF PT’S WISHES & WERE MORE LIKELY TO RECOMMEND CARE CONGRUENT WITH THOSE WISHES FAMILIES SHOWED LESS GUILT & DEPRESSION AFTER THE DEATH. GROUP TWO LIVED A LITTLE LONGER TOO (2.7M) MORE ? - THE KEATING STUDY (CANCER 15 2010) NANCY L KEATING MD, MPH HARVARD MEDICAL SCHOOL BY QUESTIONAIRRE, (4,000+ PHYSICIANS CARING FOR CANCER PATIENTS LOOKED AT TIMING OF DISCUSSIONS ON 1. ACCURATE PROGNOSIS 2.WISH FOR “DNR” 3. NEED FOR HOSPICE 4. PREFERRED SITE OF DEATH CONCLUSIONS: MOST PHYSICIANS REPORT THEY WOULD NOT DISCUSS END-OF-LIFE OPTIONS WITH TERMINALLY ILL PATIENTS WHO ARE FEELING WELL. “THERE WILL BE TIME FOR THAT LATER.” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline A DOUBLE STANDARD ? “WHY DOCTORS DIE DIFFERENTLY” Click to edit the outline text format KEN MURRAY CAP - FAMILY MEDICINE UNIV SO CAL WSJ 3/10/12 Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline HONESTY – THE BEST POLICY ? HEALTH AFFAIRS JOURNAL FEB, 2012 POLL OF 2000 MD’s Click to edit the outline text format Second Outline Level MORE THAN HALF HAD FRAMED A PROGNOSIS IN A MORE POSITIVE Third Outline Level Fourth Outline Level Fifth Outline SIGNS OF CHANGE ? 2011 SURVEY BY THE REGENCE FOUNDATION ON BEHALF OF THE NATIONAL JOURNAL FOUND THE 96% OF MD’s BELIEVE IT’S MORE IMPORTANT TO IMPROVE PATIENT’S QUALITY OF LIFE THAN TO PROLONG THEIR LIVES. Click to edit the outline text format Second Outline Level Third Outline Level 79% OF MD’s SURVEYED SAID: “U.S. SPENDS FAR TOO MUCH TRYING TO EXTEND LIVES” Fourth Outline Level Fifth Outline ALZHEIMER’S DISEASE “A DEGENERATIVE DISEASE THAT IS 100% INCURABLE AND 100% FATAL, WHICH ROBS ITS VICTIMS OF MEMORY, JUDGEMENT & DIGNITY, LEAVING THEM UNABLE TO CARE FOR THEMSELVES, AND DESTROYING THEIR BRAIN AND THEIR DIGNITY, OFTEN DEPLETING THE RESOURCES OF THEIR CAREGIVERS AND THEIR FAMILIES – BOTH EMOTIONALLY & FINANCIALLY. JUSTICE SANDRA DAY O’CONNOR OCTOBER 27TH, 2010 NY TIMES Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline AND A SOBERING THOUGHT STARTING ON JAN 1, OUR 79 MILLION STRONG BABY BOOM GENERATION WILL BE TURNING 65 AT THE RATE OF Click to edit the outline text format 1 EVERY 8 SECONDS ! AND THE REALITY IS THAT THE INCIDENCE OF DEMENTIA DOUBLES EVERY FIVE YEARS AFTER 65 Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline KAREN KEHL – Am J Hosp & PC “MOVING TOWARD PEACE” A GOOD DEATH BEING COMFORTABLE BEING IN CONTROL HAVING A SENSE OF CLOSURE MAKING MOST OF RELATIONSHIPS HAVING FAMILY INVOLVED Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline IN WHICH IS THERE TIME FOR… Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline MORTALITY, MORALITY & HONOR CHOICES AT THE END OF LIFE THE SEMINAL CASE KAREN ANN QUINLAN - 1976 CHRONIC VEGATATIVE STATE Click to edit the outline text format PARENTS REQUEST “WITHDRAWAL” NJ SUPREME COURT RULES IN FAVOR OF THE “RIGHT TO REFUSE ARTIFICIAL VENTILATION” Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline KAREN ANN QUINLAN - 1954-1985 THE FATHER, A FIRM CATHOLIC, AND THE ASSIGNED GUARDIAN, WAS A POSITVE FORCE IN THIS CASE, FOR ADDRESSING HIS CONSCIENCE AND MOTIVATIONS THE FIRST CASE ABOUT THEOLOGY, BIOETHICS, EUTHANASIA, LEGAL GUARDIANSHIP AND CIVIL RIGHTS POSITIVES: BIOETHICS COMMITTEES ADVANCE DIRECTIVES Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline TERRI SHAIVO – CVS – 1990-’05 ESSENTIALLY, A TRAGEDY: OF PERSONAL LIVES OF THE LAW OF POLITICS ULTIMATELY, AN EMBARRASSMENT ( READ “USING TERRI”) Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline ‘87, ’89, ’91: OREGON WRITES LEGISLATION GRANTING INDIVIDUAL OPTIONS FOR ENDOF-LIFE (SS FRANK ROBERTS) NO BILL LEAVES COMMITTEE Click to edit the outline text format THE HISTORY OF END-OF-LIFE Second Outline Level STATES CHOICES IN THE UNITED ROBERTS DIES A HARSH DEATH AT HOME AT LEAST – OCT ‘93 ‘94 OREGON PASSES VOTER INITIATIVE TO ALLOW DWD (51 TO 49 %) (SIGNED INTO LAW BY ROBERT’S WIFE & GOVERNOR, BARBARA ROBERTS) Third Outline Level Fourth Outline Level Fifth Outline INTERCONNECTIONS APRIL, ‘93, AT THE PEAK OF THE AIDS EPIDEMIC, ACTIVISTS ESTABLISH “COMPASSION IN DYING” IN SEATTLE, WASHINGTON, PUBLICALLY DECLARING THEIR INTENTION TO COUNSEL MENTALLY COMPETENT, TERMINALLY ILL PATIENTS ON AID-IN-DYING. PUBLISHED WERE SPECIFIC ELIGIBILITY CRITERIA, GUIDELINES AND SAFEGUARDS AND VOLUNTEERS TO ATTEND DEATH. A MEDICAL MODEL EVOLVES WITH CLIENT ASSESSMENT, PROFESSIONAL REFERRALS, AN INTERDISCIPLINARY TEAM OF VOLUNTEERS AND SELF-ADMINISTERED MEDICATION. JUNE, 1997 Click to edit the outline text format Second Outline Level Third Outline Level “THROUGHOUT THE NATION, AMERICANS Fourth Outline Level ARE ENGAGED IN Fifth AN EARNEST AND PROOutline Level FOUND DEBATE ABOUT THE MORALITY, Sixth LEGALITY AND PRACTICALITY OF PHYOutline Level SICIAN AID IN DYING. OUR HOLDING Seventh Outline PERMITS THIS DEBATE TO CONTINUE, Level Eighth AS IT SHOULD IN A DEMOCRATIC Outline SOCIETY.” Level Ninth Outline LevelClick to edit Master text styles Facts on Use of Oregon Law Median Age 70 (25-96) White - 97.5% Sex - 53.1% Male - 46.9% Female Education - 67% had attended college Suffering from cancer - 81.8% Enrolled in hospice - 87.8% Insurance - 98.2% 94% died at home OREGON AT 14 YEARS I CONTEND NO “SLIPPERY SLOPE” Click to edit the outline text format BUT AN AGING POPULATION WITH MORE CHRONIC DISEASE AND MORE KNOWLEDGE Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline “REASONS FOR ‘CHOICE’” LOSING AUTONOMY CANNOT ENGAGE IN PLEASURABLE ACTIVITIES 89.9 % 87.4 % Click to edit the outline text format LOSING CONTROL OF BODILY FUNCTIONS 58.7 % BURDEN TO FRIENDS INADEQUATE PAIN CONTROL 39.3 % 23.9 % FINANCIAL CONSIDERATIONS 2.8 % Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline THE “HOW TO” A TERMINALLY ILL, COGNITIVELY Click to edit the SOUND ADULT, MAY OBTAIN A Rx FOR Aoutline text format LETHAL DOSE OF MEDICINE, PROVIDED Second Outline THE PATIENT: Level 1. 2. 3. 4. HAS BEEN ADVISED OF OTHER OPTIONS HAS MADE TWO VERBAL APPEALS / 15D HAS MADE A WRITTEN REQUEST WITNESSED BY TWO WHO ARE NOT CARETAKERS OR FAMILY 5. ORAL, NOT IV MEDS / HELIUM Third Outline Level Fourth Outline Level Fifth Outline OUR GOVERNMENT IN MEDICINE OBAMA CARE & “DEATH PANELS” FROM AN OFTEN CITED PROVISION OF THE UNPASSED BILL WHICH WOULD HAVE AUTHORIZED MEDICARE REIMBURSEMENT FOR PHYSICIANS WHO WOULD PROVIDE VOLUNTARY COUNSELING ABOUT SUCH SUBJECTS AS PATIENT & FAMILY WISHES, LIVING WILLS, AD’s…………..CHOICES…….. AT THE END OF LIFE Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline AH…. WHAT TO MAKE OF IT BETSEY McCOUGHEY VP CANDIDATE PALIN “MY PARENTS & MY BABY WITH DOWN’S SYNDROME WILL HAVE TO STAND IN FRONT OF OBAMA’S DEATH PANAL SO BORED BUREAUCRATS CAN DECIDE, BASED ON SUBJECTIVE JUDGEMENT, ON THEIR ‘LEVEL OF PRODUCTIVITY IN SOCIETY’, WHETHER THEY ARE WORTHY OF HEALTH CARE.” “NULLIUS IN VERBA” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline THE FALLOUT STUDIES SHOWED THAT 30 TO 45 % OF AMERICANS Click to edit the outline text format Second Outline Level BELIEVED THIS RHETORIC Third Outline Level Fourth Outline Level Fifth Outline MORE GOVERNMENT JANUARY 1, 2012 – CREATION OF “INDEPENDENCE AT HOME ORGANIZATIONS” – GROUPS OF DOCTORS & NURSES TO Rx PTS AT HOME & INCENTIVES TO MAKE THAT WORK APPEALING. PAID FOR BY SAVINGS FROM DIMINISHING HOSPITAL STAYS AND PROCEDURES Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline AND AGAIN ? IN THE AHCA, IN 2014, THE INDEPENDENT PAYMENT ADVISORY BOARD, (IPAB), MAKES RECOMMENDATIONS ON COST SAVINGS, YET IS EXPRESSLY PROHIBITED FROM TAKING ANY ACTION WHICH WOULD RATION CARE. BUT………….. Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline AN INTERESTING POLL FIFTY-THREE % OF AMERICANS WOULD JUST AS SOON SEE THE HEALTH CARE BILL REPEALED. FORTY-THREE % SUPPORT IT. OF INTEREST, 70% OF THE 53% OPPOSED, FAVOR 2/3 OF THE BULLETS CONTAINED IN THE BILL. Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline THERE’S AN ARGUMENT ANY CENTRALLY ADMINISTERED HEALTH-CARE SYSTEM WILL, INEVITABLY, MAKE “COST-MINDED JUDGEMENTS ABOUT WHAT TYPES OF CARE” SHOULD BE PROVIDED TO WHICH CATEGORIES OF PATIENT ALREADY HAPPENING ARIZONA: THE STATE CUT OFF REIMBURSEMENTS FOR ORGAN-TRANSPLANTS FOR THE POOR Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline NEVER TALK ABOUT THE COST (BUT BE REMINDED) 25 %OF ALL MEDICARE SPENDING IS FOR THE 5 %OF PATIENTS WHO ARE IN THE FINAL YEAR OF LIFE, AND MOST OF THAT MONEY GOES FOR CARE IN THEIR LAST MONTHS OF LIFE WITH LITTLE BENEFIT IN TERMS OF LONGEVITY OR QUALITY OF LIFE. (ABOUT 60 BILLION) AND THE PSYCHOLOGICAL, PHYSICAL AND FISCAL COST TO FAMILIES ? OF COURSE, WE DON’T KNOW IT’S THE LAST MONTHS Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline CURRENTLY THE LEGAL RIGHT OF EVERY CITIZEN IN EVERY STATE A COMPETENT ADULT PATIENT HAS THE RIGHT TO REFUSE UNWANTED MEDICAL TREATMENT THAT COULD INCLUDE DIALYSIS, SURGERY, BLOOD TRANSFUSIONS, ANTIBIOTICS AND ARTIFICIAL LIFE SUPPORT, EVEN WHEN REFUSAL MIGHT LEAD TO DEATH. THIS RIGHT EXISTS EVEN IF THE PATIENT IS NOT TERMINALLY ILL. Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline WHAT ABOUT OUR CITIZENRY ? “DO YOU APPROVE OR DISAPPROVE OF LAWS THAT LET PATIENTS DECIDE ABOUT BEING KEPT ALIVE THROUGH MEDICAL TREATMENT?” 84% APPROVE PEW RESEARCH CENTER ’01-’05 Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline WHO’S SIDE ARE YOU ON? (IS IT NOT PART OF OUR LEGAL DNA?) “THE ROOT PREMISE IS THE CONCEPT, FUNDAMENTAL IN THE AMERICAN Click to edit the outline text format JURISPRUDENCE SYSTEM THAT EVERY HUMAN BEING OF ADULT YEARS AND SOUND MIND HAS A RIGHT TO DETERMINE WHAT SHALL BE DONE WITH HIS OWN BODY.” JUSTICE BENJAMIN CARDOZO NY COURT OF APPEALS 1914 (US SUPREME COURT 1932-38) Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline A DEVIL’S ADVOCATE – MAY I ? A FEW THOUGHTS ON END-OF-LIFE PLANNING Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline STEPHEN JAY GOULD BROOKLYN/HARVARD PALEONTOLOGIST ‘85 ESSAY:« THE MEDIAN & THE Click MESSAGE » to edit the outline text format Dx; ABDOM MESOTHELIOMA - ‘85 THE LITERATURE: BRUTAL (8MO’s) BUT THE CURVE BEYOND THE MEDIAN WITH A LONG, ALBEIT, SLENDER TAIL INTERESTED GOULD Second Outline Level Third Outline Level GOULD GETS SURGERY & CHEMO - AND TWENTY YEARS – D ‘02 Fourth Outline Level Fifth Outline A NATURALIST SPEAKS “IT HAS BECOME, IN MY VIEW, A BIT TOO TRENDY TO REGARD ACCEPTANCE OF DEATH AS SOMETHING TANTAMOUNT TO INTRINSIC DUTY. OF COURSE I AGREE WITH THE PREACHER IN ECCLESIASTES THAT THERE IS A TIME TO LIVE AND A TIME TO DIE, AND WHEN MY SKEIN RUNS OUT I HOPE TO FACE THE END CALMLY AND IN MY OWN WAY. FOR MOST SITUATIONS, THOUGH, I PREFER THE MARTIAL VIEW THAT DEATH IS THE ULTIMATE ENEMY AND I FIND NOTHING REPROACHABLE IN THOSE WHO ‘RAGE MIGHTILY AGAINST THE DYING OF THE LIGHT.’” STEPHEN JAY GOULD 1985 SO WHAT IS IT WE REALLY WANT SIMPLY, NOTHING MORE THAN YOU WANT CHOICE AND CONTROL AT THE END! HENCE: ADVANCE Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline AD’S & THE ULLYSES PACT A FREELY MADE DECISION THAT IS INTENDED TO BIND ONESELF IN THE FUTURE IN MEDICINE, WITH AD’s & LW’s, THERE EXISTS CONTROVERSY OVER WHETHER DECISIONS MADE BY ONE IN ONE STATE OF HEALTH CAN BIND ONE IN ANOTHER WHEN AM “I” NOT “ME” ? Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline COMPASSION & CHOICES WHO WE ARE AND Click to edit the outline text format WHY YOU SHOULD GET TO KNOW US Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline ABOUT US Compassion & Choices is the oldest and largest nonprofit organization advocating for comprehensive end-of-life care and treatment options. Founded in 1980 as the Hemlock Society, and merged with Compassion in Dying in 2004, over the years the organization has grown, become more mainstream and now focuses on improving care and expanding choice at the end of life. A YOUNG ORGANIZATION – WITH TIMELESS CHALLANGES 1980 – HEMLOCK SOCIETY 2003 – FOUNDER, DH, LEAVES TO FORM “FINAL EXIT” 2004 – “COMPASSION & CHOICES” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline Eligibility for Services Clients need not be members Clients need not be “terminally ill” Services may include referral to other specialists, organizations, or officials We never charge for services DYING USED TO BE ACCOMPANIED BY A PRESCRIBED SET OF CUSTOMS REAFFIRM ONE’S FAITH REPENT ONE’S SINS LET GO OF WORDLY AFFAIRS LAST WORDS AND A COMFORT TO ALL A WORD ABOUT HOSPICE BRITISH MD – DAME CICELY SAUNDERS 1940’S ST. CHRISTOPER’S – LONDON 1964 YALE SCHOOL OF NURSING THE CONNECTICUTT HOSPICE 1974 “WE DO NOT HAVE TO CURE TO HEAL” US MD – ELISABETH KUBLER-ROSS “ON DEATH AND DYING” FIVE STAGES OF GRIEF “IT HAS BROUGHT DEATH OUT OF THE DARKNESS” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline HOSPICE - A COMFORT TO ALL ? MEDICARE COSTS FOR HOSPICE HAVE INCREASED MORE THAN IN ANY OTHER HEALTH CARE SECTOR ‘05 TO ‘10 – 70% !! IN 2010, 42% OF DEATHS OCCURRED IN HOSPICES (22% IN ICU’s) Click to edit the outline text format Second Outline Level Third Outline Level MEDICARE PAYS FOR 84% OF ALL HOSPICE PATIENTS (<6 MOS & ACCEPTANCE) Fourth Outline Level Fifth Outline “AMERICAN” HOSPICE PROBLEMS ON THE HORIZON ? HOSPICE NOW A $4.5 BILLION PER YEAR INDUSTRY 40% OF HOSPICES ARE NOW “FOR PROFIT” Click to edit the outline text format Second Outline Level AND COSTS ? 29% HIGHER/PT Third Outline Level AND NOW ? FRAUD ? LAWSUITS ? Fourth Outline Level Fifth Outline IS THERE ANY CHANCE THAT WE CAN COME Click to edit the outline text format TOGETHER AND ALL BE OF ONE “MIND” - BE IT Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline CAN IT BE DONE ? YES, IF WE RECOGNIZE THAT…. “EVERY GREAT ACHIEVEMENT IS A BIRD ON THE WING.” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline JOHANN WOLFGANG von GOETHE “AS LONG AS YOU ARE NOT AWARE OF THE CONTINUAL LAW OF DIE AND BE AGAIN, YOU ARE MERELY A VAGUE GUEST ON A DARK EARTH.” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline HEMINGWAY - 1960 “THE WORST DEATH FOR ANYONE IS TO LOSE THE CENTER OF HIS BEING, THE THING HE REALLY IS” Click to edit the outline text format Second Outline Level IS THERE A TIME AND A PLACE HERE TO SAY………………… 2011 - 22% OF DEATHS OCCURRED IN AN ICU Third Outline Level Fourth Outline Level Fifth Outline THE GRATEFUL DEAD STANDING IN A SHAFT OF LIGHT Click to edit the outline text format RISING UP TO PARADISE, I KNOW I’M GONNA SHINE Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline ACCEPTANCE OF DEATH WHEN IT ARRIVES IS ONE THING, BUT TO ALLOW IT TO UPSTAGE THE JOYS OF LIVING IS INGRATITUDE LIFE – A CIRCLE OR A LINE ? “ I LIVE MY LIFE IN WIDENING CIRCLES THAT REACH OUT ACROSS THE WORLD. I WILL NOT COMPLETE THIS LAST ONE, BUT I GIVE MYSELF TO IT” Click to edit the outline text format Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline MORTALITY AND MORALITY HONOR CHOICE AT THE END OF LIFE SO THE QUESTION IS NOT “WILL I DIE?” Click to edit the outline text format BUT Second Outline Level “WHEN AND HOW?” Third Outline Level Fourth Outline Level Fifth NO, LIFE & DEATH ARE NOT “THE FLAT Outline THERE ARE TWO KINDS OF LIGHT THOSE THAT GLOW AND ILLUMINATE Click to edit the outline text format AND THOSE THAT GLARE AND OBSCURE Second Outline Level Third Outline Level Fourth Outline Level Fifth Outline “NOT A SHRED OF EVIDENCE EXISTS IN FAVOR OF THE ARGUMENT THAT LIFE IS SERIOUS, THOUGH IT IS OFTEN HARD AND EVEN TERRIBLE. SINCE EVERYTHING ENDS UP BADLY FOR US, IN THE INESCAPABLE CATASTROPHE OF DEATH, IT SEEMS OBVIOUS THAT THE FIRST RULE OF LIFE IS TO HAVE A GOOD TIME; AND THE SECOND RULE OF LIFE IS TO HURT AS FEW PEOPLE AS POSSIBLE IN THE COURSE OF DOING SO. THERE IS NO THIRD RULE.”