Your daughter has an Eating Disorder, now what? From Ginger Haas, SHS Social Worker We live in a society where thinness seems to be honored and admired. People who are thinner or “in shape” tend to be more readily accepted by others. During the adolescent years friends become an enormous issue. Most youths are greatly influenced by their peers. They are more interested in their friends or having friends than they seem to have been before. It is critical, especially for an adolescent, to feel accepted. Coupling this desire to be accepted with society’s admiration for thinness may add to the development of an eating disorder. There is often no one reason for the development of an eating disorder. Typically it develops subtly and gradually. Occasionally it begins at the onset of a traumatic episode. Because of the progressive nature of an eating disorder it is often difficult for parents, siblings and friends to accept that their daughter or loved one has an eating disorder. People seem to think that it would have been noticed. One of the most important things you as a parent can do to help your child deal with her eating disorder is to focus on solutions rather than analyzing their person or their problem. Eating disorders are commonly broken down into 3 categories – Anorexia Nervosa, Bulimia and Compulsive Overeating. I have briefly described them for you below. Anorexia Nervosa – “Anorexia” in the medical language means a person who does not eat. This is often a factor of surgery or medication. “Anorexia Nervosa” on the other hand includes a psychological component. A person with anorexia nervosa is hungry but she denies the hunger because she is fearful of becoming fat. This fear is usually irrational, but to an anorexic it is real. “Anorexia nervosa is often characterized by self-starvation, food preoccupation and food rituals, compulsive exercising and often an absence of menstrual cycles.”{ANAD} Anorexia can be fatal if it goes untreated. Although many people believe it is a fad what will be outgrown, it is a gamble far too risky to take. Karen Carpenter is an example of how anorexia can kill. One misconception is that an anorexic looks skeletal. This is true in the late stages of anorexia. However, for a person to get to this skeletal point they become involved in anorexic behaviors and thoughts earlier than the physical body portreys. Just because your daughter does not look like a skeleton does not mean she is not anorexic. Bulimia Nervosa – Bulimia is actually a term that means “ox hunger” or “animal hunger.” It essentially refers to a condition where a person rapidly consumes large amounts of food in an unusually short period of time. Today this term has come to include a pattern of purging after consumption of food. Purging may take the form of self-induced vomiting, laxative abuse, fasting for several days, or even overexercising. Bulimia usually begins as a form of weight control for the overeater. In an effort to rid themselves of the uncomfortable feelings of overeating (both physically and emotionally) the bulimic purges. This cycle becomes addictively repetitive because of the relief it brings. Gradually this method of relief is used by the bulimic to also aid in dealing with the stresses and discomforts in life. Progressively what started as a method for relieving the physical feelings (overstuffed) and emotional feelings (guilt of eating that much) has become a method of dealing with life’s problems big and small. A bulimic comes in all shapes and sizes. Some look too thin, others look just right and others tend to look slightly or mederately overweight. They perceive themselves as looking and being much larger than others perceive them as. Compulsive Overeating – a compulsive overeater often eats more than she needs, wants or can comfortably consume. It is her way of handling stress and coping with life’s discomforts. Like the bulimic, the compulsive overeater may binge. Rarely however will the compulsive overeater purge. Remember that we are not talking about obesity. Obesity is defined as a person who is 25 % or more over their ideal body weight. Compulsive overeating refers to a person’s behavior towards food. THE ISSUE OF FOOD Many people I have worked with focus on the “food” in an effort to help their daughter with her eating disorder. It is not about food. If your daughter sits down for the next 5 days and eats a well-balanced, amount-appropriate dinner it does not mean that she has beaten her eating disorder. Remember, for quite awhile now she has mastered the art of keeping this a secret. Although you may not be aware she is purging after a meal it does not mean that she isn’t. Purging takes on several forms. Instead of self-induced vomiting she may starve herself for the next 3 days or overexercise beyond her athletic involvement. She has come to rely on this method as a mechanism for dealing with her insecurities, her pains and emotions. Although it is easier to focus on the food and to fill your house with only low-fat food and eliminate junk food that will NOT help your daughter find a new alternative for coping. So what is next? The first thing I urge you to do is give yourself a hug. Your daughter has worked very hard to keep her eating disorder a secret. She has an invested interest in not being found out. Don’t kick yourself for not noticing it earlier. Hindsight always seems to be 20-20 doesn’t it? Be comforted that your daughter wants to help herself now before things get worse. She may not have shared with you before but she is now! Her first step was to tell you. It is extremely difficult to share a secret that you have worked so hard to preserve. Second, give your daughter a hug. Although she needs your strength in the months and years to follow she needs your unconditional love right now. Every girl I have worked with is so fearful of disappointing her parents with this news. A hug from you is simple way to say I Love You and I Care. Next, don’t ask questions today - wait. Believe me when I tell you… she will not be able to answer them. Most likely you want to know “When did this start?” and “Why 2 did it start?” and perhaps even “Why didn’t you come and talk to me?” Your daughter probably can not pinpoint answers to either of the first two questions. Right now she is nervous. She just revealed a BIG secret and is nervous that she has destroyed any relationship you have shared. That is why she did not disclose to you earlier. She does to want to disappoint or hurt you. If she knew why she had developed an eating disorder she would have included the reason when she told you she had an eating disorder. To be bombarded with unanswerable questions is going to build walls between the two of you right now. However difficult, try not to ask questions today. Write them down and save them. Another scary aspect for your daughter is how this revelation about her disorder will change things. Your daughter has invested a great deal of effort in keeping her disorder a secret. To now become the focus of the family is nerve wrecking. Several kids I have worked with use this as their excuse not to tell their parents. They do not want the spotlights to shine on them every moment they are home. They are not looking for everyone’s eyes to follow their every move, especially at and after meals. I know you want to give your daughter all the attention she needs and deserves right now (and always.) As challenging as it is, try not to treat her as different. SHE is not any different today than she was yesterday. The only difference is that you have learned about a new side to her. Don’t hesitate to tell her your feelings, acknowledge your care and concern. Simply don’t go overboard or walk on eggshells around her. Together you and your daughter will get through this. Now that the secret is out in the open you can help your daughter and yourself. As mentioned earlier, your daughter does not know why she has this eating disorder. To help answer these questions she needs to go on a voyage of self-discovery. This is not easy task. As with any voyage, she will coast over peaceful waters and grab a life jacket when the turbulent waters surface. For her sake she needs to find someone “safe” to help her. As children we want the love and pride of our parents. This usually continues into adulthood doesn’t it? This is one reason a person outside of the family often offers more safety to your daughter. It eliminates or lessens the fear of rejection. No matter how close of a relationship you share with your daughter I urge you to let her talk with someone outside the family, preferably a therapist who has training in eating disorders. I have worked with many therapists in our community that are skilled in dealing with eating disorders. In addition to the referral I can give you ANAD (National Association of Anorexia Nervosa & Associated Disorders) can also provide you with a list. A good therapist will want your involvement in the therapy. As your daughter learns more about herself she may be able to begin sharing it with you and thus answer some of those questions you have. This involvement is another opportunity for you to show your daughter your support and your unconditional love. My experience has shown that the kids often want you to set up the initial appointment for them. Ask your daughter if she has a preference of a male or female therapist. From there you can find a therapist for them. Many people need to talk with their insurance companies to learn what benefits they have or who their insurance will cover. Once you have a list, call the therapists. Spend time on the phone with each of them. Typically 3 your gut will tell you if the person on the other end can build a rapport with your daughter. Another point I’d like to point out is, as your daughter begins to voyage over those turbulent waters she may try to retreat by stopping therapy. This is not uncommon. Most of us do not like to deal with uncomfortable issues. Try to encourage her to continue. A good compromise may be to make her appointments less frequent. Also remember, that when times are good therapy is used to plan for the handling of future bad times. I’ve seen far too many families stop the counseling “because everything was better.” I wish they had continued so that the next bad time to arise wouldn’t have been so difficult. If you have concerns that the therapy is not going well, make an appointment to see the therapist and share this concern with them. It usually takes 3-6 weeks for people to build a strong enough rapport and trust. Don’t assume it isn’t working while your daughter is still learning getting to know and trust her therapist. Another professional you should make an appointment with is your daughter’s pediatrician or internist. Tell them that your daughter has disclosed that she has an eating disorder and you would like a consult. In speaking with other physicians I have come to understand the importance of blood work. Blood tests will inform the doctor and you of your daughter’s internal health. Although lab tests do not reveal everything information about electrolyte imbalance etc. is helpful. It may also indicate what type of program will best suit your daughter right now. Unfortunately not all doctors are current with all aspects of eating disorders. Be prepared to ask them to look at certain things or to request tests. It will be helpful for you to meet with the doctor to share your concerns. Allow your daughter some time alone with the doctor to share hers as well. Some girls are more open when their parents are not within earshot. Also, ask about her menstrual cycle. Women need enough body fat to support their menstrual cycle. Be thorough with understanding why she does not have her period before putting her on the birth control pill to regulate her cycle. She might not have her period because her body is sending her the message it needs more body fat to work! I appreciate the time you gave to listen to your daughter. I admire parents who work together for the sake of their children. Unlike the common cold, an eating disorder can kill. It may take months or years. The sooner treatment can begin the sooner your daughter can learn more effective and safer coping techniques. Please do not hesitate to call me with ANY concerns or questions you may have. Your daughter and I thank you for caring about her and loving her. Sincerely, Ginger Haas MSW, LSW (847) 755-4636 Schaumburg High School Social Worker Eating Disorders Support Group Facilitator Graduate Certificate in Eating Disorders 4