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Monday Morning Memo, January 25, 2016
WORD or PDF
www.thearcca.org/2.html
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…The Week Ahead
Monday January 25, 2016
The Advisory Council on Alzheimer's Research, Care, and Services will be meeting today from
6 am to 3 pm (PST) in room 6, Building 31 of the National Institutes of Health, 9000 Rockville
Pike, Bethesda, Maryland 20892. “The Advisory Council on Alzheimer's Research, Care, and
Services provides advice on how to prevent or reduce the burden of Alzheimer's disease and
related dementias on people with the disease and their caregivers. During the January
meeting, the Advisory Council will review the process for developing recommendations and
developing the National Plan to Address Alzheimer's Disease, discuss updates to work on
Goals 2 and 3 of the National Plan, and hear updates on a future summit on care. Procedure
and Agenda: This meeting is open to the public. Please allow 45 minutes to go through
security and walk to the meeting room. The meeting will also be webcast at
www.hhs.gov/live.
We’ll be participating with Lanterman Coalition members in meetings with Senator Ricardo
Lara and Assemblymember Tony Thurmond and others to talk about the coalition’s proposal
for a 10% increase for developmental services to stop the collapse of the community system
of supports and services.
We’ll be meeting with the Los Angeles providers group to update this community network on
the latest developments from the Lanterman Coalition advocacy.
Tuesday January 26, 2016
We’ll be participating in the Innovations Conference of the Let’s get Healthy California Task
Force. The conference will “showcase local and statewide innovations that promote the
Triple Aim of better health, better care, and lower cost, and to measure our state’s progress
to meet the six goal areas of the Let’s Get Healthy California Task Force.”
The Lanterman Coalition will be meeting with the governor’s policy representatives in the
Capitol to continue our conversations with the administration on the coalition’s 10%
Campaign and our proposal to save the community developmental services system. The
coalition is also scheduled to meet with four other lawmakers throughout the day and into
the early evening.
The conference planning committee for the 9th Annual Developmental Disabilities Public
Policy Conference, co-chaired by Betsy Katz and Pat Napolielo, will be participating in our
weekly planning. The latest development on the conference is that the hotel is now sold out
for Monday March 7th which is great because that likely means we’ll have several advocates
staying to meet with their representatives on Tuesday March 8th. We recently signed a
contract for an addition block at the Hawthorn Suites (update announcement is scheduled
mid-week).
Wednesday January 27, 2016 - Thursday January 28, 2016
We’ll be participating in a two-day work session with a national team of members from The
Arc network, professionals from Google and staff leadership of The Arc of the United States.
The meeting will take place at the Googleplex in Mountain View California and we’ll focus
on information technology ideas that could help people with intellectual and developmental
disabilities.
Thursday January 28, 2016
The Lanterman Coalition will be participating in high level Senate leadership meetings with
staff and members of both parties.
Friday January 29, 2016
The California Collaboration for Long Term Supports and Services hosted by Jack Hailey of
GACI will be meeting in Sacramento.
We’ll be working with our web development consultant Jon Brown from The Arc US to
update our website and improve the advocates experience with our resources online.
We’ll be meeting with our development consultant from aostrategies to review upcoming
proposal for funding advocacy activities including advocate training program proposals.
Sunday January 31, 2016
Friends of Children with Special Needs (FCSN) presents Special Needs Talent Showcase,
sponsored by Golden State Warriors (our NBA Champions). “Come spread your invisible
wings and reach for the stars. You can join Special Needs Talent Showcase as an individual
or as a group. All types of performances are welcomed – musical acts, dancing, comedy,
magic acts, martial arts, acrobatics, etc. Participation medals will be awarded to every
contestant. Trophies and prizes will be awarded to all finalists at the Final Competition. All
individuals with developmental disabilities are encouraged to try out and have the chance to
enjoy an extraordinary experience! Preliminary Auditions: Judges: Executive Directors from
2 of the Regional Centers, Javier Zaldivar, and Jim Burton, prominent musician and band
director, David Ladd Anderson, Disability Awareness Day entertainment coordinator and
board member of Music Therapy Association, Jody Wilfong. Date/Time: Sunday, January 31,
2016 at 1pm -5pm (depending on category of entry). Location: FCSN Dream Center 2300
Peralta Blvd Fremont, CA 94536. Final Competition: March 19, 7pm-9:30pm at Santa Clara
Convention Center. Entry Forms: Download attached flyer& entry form or
www.fcsn1996.org. Deadline for Entry: January 16, 2016 deadline will be accepted to
audition. Entry fees: $20 per solo act; $10 per person in a group act. Contact: Kelly at
SNTalentShowcase@gmail.com or 510-739-6900 ext 3318. Ten finalists will advance from the
Preliminary Auditions to compete in the Final Competition. Honorable Mentions will be
selected to perform at the event. The top 3 finalists will win a promotional video, winner’s
trophy and $500 cash, other finalists will receive $100 and trophy of recognition. Tickets
($20 per ticket) to see the Final Competition will be available for purchase January 31, 2016
at the preliminary audition.
…Public Policy Reports
State
Last week the Lanterman Coalition was extremely busy again with high level policy meetings
in the Assembly including Speaker-Elect Anthony Rendon, Ph.D. and committee staff working
on the state budget impacting people with developmental disabilities and their families.
Next week we’ll publish and update and talking points from the Lanterman Coalition. In
addition to several meetings working with legislators to figure the best way forward to get
the developmental services community out of crisis, we also organized a listening session in
the capitol to watch the Governor’s “State of the State” Address to the legislature then held
a rally on the North Steps of the Capitol joined by advocates and legislators to hear their
reactions to the speech. The governor made no mention of developmental services in his
speech and below are a few reactions:
In his article, Gov. Brown urges
steps to end 'zigzag of spend-cutspend' in California, John Meyers
of the Los Angeles Times said,
“In the face of this growing
inequality, California has not
been passive,” he said, arguing
that the roots of the problem
reach far beyond the state’s
borders. Even so, some
Democratic lawmakers
criticized Brown for not
speaking to the needs of
Californians like low-income
seniors and those who are
developmentally disabled…”
Assembly member Toni Atkins, Speaker of the Assembly, said “We expect this year to build
on this pattern, with even more smart budgeting to guard against future economic
downturns while also making important investments – starting early this session with
increasing funding for developmental services.”
Senator Jean Fuller, Republican leader, said “California has more than enough revenue to
fund the vital programs we all feel are necessary…including funding for the developmentally
disabled…”
Senator Jim Nielsen said, “Programs that provide care to the most vulnerable Californians
like Developmentally Disability Services have not been adequately funded.”
Assemblymember Tom Lackey said, It is disappointing that Governor Brown made no
acknowledgement of the need to solve the crisis overtaking Californians with developmental
disabilities. Without providing sufficient funding to sustain community-based programs, we
are at risk of unraveling decades of progress.”
Assemblymember Marc Levine said, “We must fully fund Medi-Cal, in-home supportive
services, and developmental services for those most in need.”
###
National
Disability Policy Seminar 2016
April 11 - 13, 2016
The Renaissance Washington, DC Downtown Hotel
Who Should Attend?
 Self-advocates;
 Parents and family members of individuals with disabilities;
 Board members, staff, trainees, and volunteers for disability organizations;
 State and local public policy committee members;
 Public policy staff; or
 Constituents
During this crucial election season we need you in Washington, D.C. to help us build
bipartisan support on Capitol Hill for high-priority disability issues. When you attend the
Disability Policy Seminar, we'll arm you with all of the information you need to help educate
our Members of Congress and their staff on the priorities of the I/DD community. Then, you
can return to your hometowns with the ability to spread the word, educate new advocates
and reach out to the candidates to help put the needs of people with I/DD front and center
on the campaign trail this year.
Also, sign up for: The Arc US Capitol Insider
###
Bill File
Our bill to help convict criminals who prey on people with developmental disabilities could
be passed by the Assembly and sent to the Senate for further action as early as this week.
Assembly Bill 1272, introduced for us by Assemblywoman Shannon Grove, will require courts
to make reasonable efforts to avoid setting a trial date in a case involving a victim with a
developmental disability when the same prosecutor is scheduled for another trial at the
same time. This will allow district attorneys to assign prosecutors to specialize in these
often-complicated cases.
The bill passed the Assembly Public Safety Committee unanimously and, lacking any
opposition at this early stage, is expected to pass the full Assembly without any problems. It
remains to be seen whether it will hit any snags in the Senate or, if it passes there, the
Governor’s Office
We are the sponsor of the bill, which also has the support of the state Judicial Council and
Disability Rights California.
January 25, 2016
ASM - CONSENT CALENDAR 1ST DAY-ASSEMBLY BILLS
#45 AB 54 (Olsen R) Disability access: construction-related accessibility claims: demand
letters. Current Text: Amended: 1/13/2016 pdf html Position: Watch,
Subject: Olmstead Related.
ASM - THIRD READING FILE - ASSEMBLY BILLS
#19 AB 1335 (Atkins D) Building Homes and Jobs Act. Current Text: Amended:
6/3/2015 pdf html Position: Support, Subject: Housing.
SEN - SEN IN CONFERENCE - ASSEMBLY BILLS
#2 ABX2 1 (Bonta D) Medi-Cal: developmental services: funding. Current Text:
Amended: 9/3/2015 pdf html Position: Watch+, Subject: General Systemic, Special
Session.
SEN - SEN IN CONFERENCE
#1 SBX2 2 (Hernandez D) Medi-Cal: developmental services: provider rate increases.
Current Text: Amended: 9/4/2015 pdf html Position: Watch+, Subject: General
Systemic, Special Session.
Project Status Report
Advocacy and Community Organizing Report
Community Organizing and Advocacy Report
We Still Have Hope!
Governor Brown’s State of the State Address was indeed brief. He emphasized the need for
investing in filling highway pot holes and repairing government buildings. But not a word
about people with disabilities, except mentioning his MCO tax and hoping that legislators
will come to an agreement! He is using us as political pawns to get Republican votes to pass
a tax that might offer additional funding to our programs.
But do we give up on the 10%? No way! We will continue to get both Democrat and
Republican legislators to pass a funding bill during this special session to keep our programs
open, even if it means getting enough votes to override his veto. He has submitted his
budget, but they can still make changes. We still have hope!
Articles have appeared and the evening news has reported an incredible phenomenon in
Sacramento! Both the Republicans and SEIU Union representatives are in alignment on the
same issue. Both agree that a 10% budget increase is needed! And why not? Funding services
for people with intellectual and developmental disabilities is not about Partisan Politics. We
haven’t moved the Governor yet, but by non-partisan advocacy, we can still win the battle.
We need to expand our base of support to include not only unions, but other organizations
representing health care, education, transportation, housing and senior services. So my
message this week is that we need to keep organizing more than ever. The war is not over
because we’re not a priority of the Governor. We need to share our stories with passion to
get more people on our side.
“Organizing is futile without the hope and belief that a unified people acting in concert can
win. You gotta believe.” -Stewart Acuff, Community Organizer/Author and Organizing
Director of the National Union of Hospital and Health Care Employees 1199.
Tim Hornbecker, Director of Community Organizing and Advocacy
tim@thearcca.og
…Prevention Activities
January is National Birth Defects Prevention Month. The 2016 theme is “Making Healthy
Choices to Prevent Birth Defects” and encourages women and men to make a PACT for
Prevention before and during pregnancy - Plan Ahead, Avoid Harmful Substances, Choose a
Healthy Lifestyle, Talk to Your Healthcare Provider. The Centers for Disease Control and
Prevention (CDC) report every 4 ½ minutes a baby is born with a major birth defect in the
United States and though not all birth defects are preventable a significant number can be
prevented by making healthy choices. The CDC, the National Birth Defects Prevention
Network along with others encourages health care providers to become active participants in
National Birth Defects Prevention Month by joining the nationwide effort to raise awareness
of birth defects, their causes, and their impact.
For more information about National Birth Defect Awareness Month and ways to support
increasing awareness visit:




http://www.nbdpn.org/docs/PACT_Theme_Resources.pdf
http://www.cdc.gov/media/dpk/2013/dpk-birth-defects.html
http://www.cdc.gov/ncbddd/birthdefects/index.html
http://ucp.org/event/national-birth-defects-prevention-month/2016-01-01/
Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org
######
…Upcoming Events
February 18 &19, 2016
It's a New Day... It's a New Life Conference: Preparing for Dramatic Changes in the
Developmental Disabilities System Including Self-Determination Program and New Federal
Mandates for Inclusion at the DoubleTree by Hilton Hotel - Los Angeles Westside
(near LAX Airport), 6161 West Centinela Ave, Culver City, CA 90230. “This statewide
conference is designed for self-advocates, family members, service providers, Regional
Center staff, and other professionals - across ALL developmental disabilities. The
developmental disabilities systems at the state and national levels are experiencing a huge
paradigm shift - a shift away from institutions and segregated settings and a move towards
individuals living, working, and socializing in the general community.” Speakers include: Ari
Ne'eman - Founder and President, Autistic Self Advocacy Network, Washington, DC, leading
self-advocate, Sally Burton-Hoyle - Professor, Eastern Michigan University and expert on
person-centered planning, Jim Knight - Department of Developmental Services (DDS), Dohn
Hoyle - Former Executive Director, The Arc of Michigan and expert on self-determination
and supported decision making.
February 26 - 27, 2016
Cal TASH 33rd Annual Conference and Meeting: Join us in Sacramento for the 33rd Cal TASH
annual conference February 26 - 27, 2016. This two-day conference includes breakout
sessions both days, a Town Hall meeting with CA legislators Friday morning, two keynote
presentations, and the ever-popular Cal-TASH Bash Friday evening complete with food,
music, and good conversation. More registration details:
http://events.r20.constantcontact.com/register/event?oeidk=a07ebvy61onbf82ad5c&llr=zm
nwonoab
March 3-4, 2016
The 15th annual interdisciplinary conference celebrates MAXIMIZING POTENTIAL FOR
INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES, offering a unique update for primary care
and subspecialty health care professionals and others who care for children, youth, and
adults with developmental disabilities and complex health care needs. The 2016 conference
continues to cover topics across the lifespan on a broad range of developmental disabilities
including autism spectrum disorders, Down syndrome, and co-morbidities of dementia and
aging with developmental disabilities. Experts will discuss how systems of care will be
transformed for the 21st century for children and adults with developmental disabilities.
Perspectives of various California departmental spokespersons will provide insight on
planning for improved services to help maximize the potential of people with disabilities. Of
special interest will be discussions of developmental disabilities plus deafness, resources and
treatment modalities, and the development of communication with its implications for
autism spectrum disorders and other disabilities.
March 6, 7, 8, 2016
Save the Date: 9th Annual Developmental Disabilities Public Policy Conference, Holiday Inn
Capitol Plaza, Sacramento, California. Did you miss last year’s conference? Don’t worry,
you can attend it virtually on our website, 2015 Public Policy Conference.
March 19, 2016
Friends of Children with Special Needs (FCSN) presents Special Needs Talent Showcase,
sponsored by Golden State Warriors (our NBA Champions). “Come spread your invisible
wings and reach for the stars. You can join Special Needs Talent Showcase as an individual
or as a group. All types of performances are welcomed – musical acts, dancing, comedy,
magic acts, martial arts, acrobatics, etc. Participation medals will be awarded to every
contestant. Trophies and prizes will be awarded to all finalists at the Final Competition. All
individuals with developmental disabilities are encouraged to try out and have the chance to
enjoy an extraordinary experience! Preliminary Auditions: Judges: Executive Directors from
2 of the Regional Centers, Javier Zaldivar, and Jim Burton, prominent musician and band
director, David Ladd Anderson, Disability Awareness Day entertainment coordinator and
board member of Music Therapy Association, Jody Wilfong. Final Competition: March 19,
7pm-9:30pm at Santa Clara Convention Center. Entry Forms: Download attached flyer&
entry form or www.fcsn1996.org. Contact: Kelly at SNTalentShowcase@gmail.com or 510739-6900 ext 3318. Ten finalists will advance from the Preliminary Auditions to compete in
the Final Competition. Honorable Mentions will be selected to perform at the event. The top
3 finalists will win a promotional video, winner’s trophy and $500 cash, other finalists will
receive $100 and trophy of recognition. Tickets ($20 per ticket) to see the Final
Competition.
April 11 - 13, 2016
The Disability Policy Seminar 2016 will be held from April 11-13, 2016 at the Renaissance
Washington, DC Downtown Hotel. Who Should Attend? Self-advocates; Parents and family
members of individuals with disabilities; Board members, staff, trainees, and volunteers for
disability organizations; State and local public policy committee members; Public policy
staff; or Constituents. During this crucial election season we need you in Washington, D.C.
to help us build bipartisan support on Capitol Hill for high-priority disability issues. When you
attend the Disability Policy Seminar, we'll arm you with all of the information you need to
help educate our Members of Congress and their staff on the priorities of the I/DD
community. Then, you can return to your hometowns with the ability to spread the word,
educate new advocates and reach out to the candidates to help put the needs of people with
I/DD front and center on the campaign trail this year.
…Recently Released Reports, Studies, etc.
Report to the President
Leveling the Playing Field: Improving Technology Access and Design
for People with Intellectual Disabilities
President Committee for People with Intellectual Disabilities 2015
…Conclusion
Technology can enhance participation of people with ID in elementary and secondary
education, higher education, competitive employment, home ownership, community
living and all other aspects of society. Public-private partnership can be effective in
making available technologies and technological innovations accessible and affordable.
Universally designed technology can benefit all users, including those with ID, and can
provide a market advantage to developers. Clearly, all civil rights protections apply to
technology. The President’s Committee believes that technology must be cognitively
accessible, affordable, and widely available to individuals with ID.
Federal agencies can encourage, work with, and incentivize both the public and private
sectors to develop and promote technologies that:
1. Incorporate universal design principles,
2. Are flexible and adaptable, and
3. Can be personalized and used to match the unique needs and preferences of
individuals with ID
…
…News Articles
Two programs shut down at Bakersfield-ARC
KGET Bakersfield January 22, 2016
By Anne Grazia | annedigrazia@kget.com
BAKERSFIELD, Calif. Bakersfield-ARC, the non-profit that works with the intellectually and
developmentally disabled, says it has to shut down two of its programs in the coming
months, affecting 110 clients and 25 staff members. Fifty-year-old Lisa Ackling knows
everything you need to know about packing cardboard boxes. "I've been here over 32 years. I
started back in 84',"said Ackling. She was only 18 and has spent a majority of her life at
BARC Packaging. "You know I've grown to like these types of jobs because you know I can
handle this type of work, you know it's more my level," said Ackling. She began to cry and
became overwhelmed and when she learned the place she loves the most, is closing next
month. "I'm going to miss coming here a lot and these people are like family here," said
Ackling. Some of Ackling's friends have worked alongside her for over a decade and
appreciate the program much as much as she does. One of her friends told 17 News as she
put together a box, "I love doing this job, it's an awesome job to do".
As 80 clients and 15 staff members work diligently in BARC Packaging, BARC on the Move,
the other department closing its doors has 30 clients and 10 staff members playing games.
BARC on the Move helps the most vulnerable clients like Patricia Orellana's 26-year-old
daughter, Victoria. "To lose the opportunity to have this organization for them, to me it's
really sad," said Orellana. Orellana said doctors told her Victoria would be a vegetable,
BARC on the Move proved them wrong. "She finally was able to walk even in the pacer, to
me that was like wow she, she made it," said Orellana. A common feeling at BARC, that
anyone who walks though the door has a chance at achieving the impossible. BARC
President, Jim Baldwin, said with the lack of state funding hits service providers across
California hard. He said a mandatory 10% increase is needed in the next fiscal year or the
system will collapse. And after Governor Brown's State of the State Address neglected to
mention developmental disabilities and his clients are hurt.
"If Governor Brown was disabled we would care for him, if the governor needed anything and
was disabled like us," said Ackling.
Disabled students deserve more protection from the state
San Francisco Chronicle Editorial January 19, 2016
Unnamed student seen being hit and taken to the floor by unnamed staff member in freeze
frame of SnapChat videos taken at Tobinworld II special needs school in Antioch. Shortly
after a video surfaced showing a teacher’s aide at Tobinworld II, an Antioch special
education school, hitting a 9-year-old child in the face while her co-workers restrained him,
the state Department of Education ordered reforms to the school’s staff training. Disability
rights advocates responded by telling the education department that it’s not enough. The
organizations — Disability Rights California, Disability Rights Education and Defense Fund,
and the American Civil Liberties Union — sent the Education Department a furious Jan. 15
letter accusing the Education Department of failing to meet its “basic obligations” to
children with disabilities.
Far from being an isolated Tobinworld event, the letter alleges, abusive practices happen
frequently in special education schools — and the education department hasn’t done enough
to stop it. “Despite formal complaints, media reports, and multiple lawsuits — costing our
public schools millions of dollars — the California Department of Education has no proper
system to monitor the treatment of students with disabilities, investigate and resolve
complaints, or provide meaningful technical assistance — all steps that are mandated by
federal and state law,” wrote the organizations. State education department spokesman
Peter Tira told us: “The California Department of Education puts safety first. We vigorously
carry out our role in monitoring nonpublic schools that contract with school districts to
educate special needs students.” Asked if such incidents were regular occurrences at
Tobinworld, Executive Director Judy Weber said: “Physical restraint holds are not common.”
But recent history suggests something much less comforting than these responses.
Over the last few years, school districts in Antioch and Brentwood have settled for millions
of dollars in various disabled-student abuse cases. Tobinworld itself was sued in 2014 by a
mother who alleged her 7-year-old was regularly abused by staff members, after which the
state temporarily suspended the certifications at two Tobinworld schools.
The Education Department needs to take a more proactive approach to these problems. A
system to monitor and investigate abusive treatment of the state’s most vulnerable
students, as these organizations are demanding, is the absolute least that it must do.
It also needs to explain why it hasn’t done more to correct an appalling pattern at
Tobinworld.
The reforms the state has demanded for Tobinworld II include ensuring that every employee
receives annual child abuse reporter training and the development of a thorough “positive
behavior implementation training program.” Considering the record, that sounds like too
little and too late. Californians should be outraged that, once again, individuals with
developmental disabilities and their families are being shortchanged in Gov. Jerry Brown’s
budget. The governor has proposed a tax on health plans that could generate funds for the
developmental disability system, but passage is uncertain and the revenue is far from
adequate to restore the $1 billion in funding cuts since 2008. With a $3.6 billion surplus
factored into the budget, the money is available to restore the $1.1 billion in funding for
services and support desperately needed for individuals with developmental disabilities.
Obviously, people with developmental disabilities are not a priority for Brown.
Gov. Brown needs to increase funding for developmentally disabled
San Francisco Chronicle January 19, 2016
By Bryan Neider is CEO of Gatepath, a Bay Area nonprofit serving children, youth and
adults with special needs and disabilities for 95 years. Jenni Moran is the executive
director of Desert Haven Enterprises
The proposed 2016-17 state budget earmarks $80 million for one year to fund a couple of
minimally used programs, but it does nothing to address the needs of more than 90 percent
of Californians with such developmental disabilities as autism, cerebral palsy and Down
syndrome who receive support and services not included in the governor’s proposal.
The governor is being disingenuous by coupling any relief to those with developmental
disabilities with a new tax that has little likelihood of passing in the Assembly. Health plans
have nothing to do with underfunded services for this population. California spends less than
any other state to support individuals with developmental disabilities. Reimbursement rates
for caregivers and service providers have been frozen since 1996, while at the same time the
cost of living across the state has increased. According to the governor’s own Department of
Developmental Services, nearly 25,000 state and local support and service providers in
California have closed since 2011. At this rate, there will be no providers supporting children
with special needs and disabilities in the state by 2025. If California does not implement an
across-the-board 10 percent restoration of funding in 2016, an estimated 302,000 children,
youth and adults with developmental disabilities will lose crucial services.
These include:
•Developmental screenings, critical early intervention services, school readiness
programs, inclusive preschools, special educational programs or physical, speech and
occupational therapies.
•Day-to-day support for adults such as transportation, vocational assessment and
training, supported-living programs, job coaching, job placement, courses in social
skills, educational enrichment, personal health, safety, and community involvement.
•Training for parents on how to care for their child. Support groups, peer-to-peer
support networks, mentor programs, educational programs and developmental care
resources will evaporate.
We are proud that we have been able to provide services to thousands of people in the
community in spite of state budget cuts and freezes over the past two decades. However,
the state needs to act now. We support a 10 percent across-the-board restoration of
funding, and 5 percent annual increases to address the incredibly high cost of living in
California and to account for 10 percent growth in the number of individuals needing
services. As the state’s economy improved, we hoped to see a commitment from our elected
officials to restore and stabilize services. We ask that the governor and our legislators work
together to rescue the failing state system, which since 1977 has promised to serve those
with developmental disabilities. We should all be embarrassed that the richest state in the
nation is last in support of individuals with developmental disabilities. Change will come only
with an outcry from the public. Please help us continue our mission of empowering people
with special needs to achieve their full potential. Tweet @JerryBrownGov. Use
#MakeJerryCare.
…Funding Opportunities
The following grant opportunity postings were made on the Grants.gov Find Opportunities service:
HHS - Department of Health and Human Services Administration for Children and Families
Administration for Children and Families – OCC Tribal Maternal, Infant, and Early Childhood
Home Visiting Program: Implementation and Expansion Grants
http://www.grants.gov/web/grants/view-opportunity.html?oppId=281116
HHS - Department of Health and Human Services Administration for Children and Families
Administration for Children and Families – OCC Tribal Maternal, Infant, and Early Childhood
Home Visiting Program: Development and Implementation Grants
http://www.grants.gov/web/grants/view-opportunity.html?oppId=281122
HHS - Department of Health and Human Services Centers for Disease Control and Prevention
CSELS National Syndromic Surveillance Program Community of Practice Modification
http://www.grants.gov/web/grants/view-opportunity.html?oppId=280388
EDD - Department of Education Office of Postsecondary Education (OPE): Talent Search
Program FDA Number 84.044AModification 1 http://www.grants.gov/web/grants/viewopportunity.html?oppId=280664
HHS - Department of Health and Human Services Office of the Assistant Secretary for Health
Announcement of the Availability of Funds for Phase I Research on Research Integrity
Modification 3 http://www.grants.gov/web/grants/view-opportunity.html?oppId=280999
HHS - Department of Health and Human Services Substance Abuse and Mental Health
Services Admin Screening, Brief Intervention, and Referral to Treatment Grants (Short Title:
SBIRT)Modification 1 http://www.grants.gov/web/grants/viewopportunity.html?oppId=280615
HUD - Department of Housing and Urban Development Supportive Services Demonstration for
Elderly Households in HUD-Assisted Multifamily Housing Grant
http://www.grants.gov/web/grants/view-opportunity.html?oppId=281074
HHS - Department of Health and Human Services Centers for Disease Control and Prevention
NCIPC Core State Violence and Injury Prevention Program (Core SVIPP) Modification
http://www.grants.gov/web/grants/view-opportunity.html?oppId=280410
HHS - Department of Health and Human Services Centers for Disease Control and Prevention
State Public Health Actions to Prevent and Control Diabetes, Heart Disease, Obesity, and
Associated Risk Factors and Promote School Health—financed in part by fiscal year 016
Prevention and Public Health Funds. Modification 2
http://www.grants.gov/web/grants/view-opportunity.html?oppId=281046
…Career Ladder
The Arc of California posts job announcements in the Career Ladder section every week because we
would like to contribute to steering quality candidates to professional positions that support people
with disabilities and we are trying to communicate to Direct Support Professionals that there is a real
“career ladder” in their chosen profession.
Jobs Page Links: Click Here
Executive Director
TASH’s Executive Director serves as the public presence and chief strategy officer for this
exciting, progressive, and values-based organization. TASH is seeking a candidate who can
find solutions where others see dead ends; believes in the capacity and human rights of
people for whom TASH advocates; and who finds this leadership opportunity in a social
justice advocacy organization personally and professional motivating. The Executive Director
works with and coordinates TASH’s priority activities with the Board of Directors, Chapters,
and TASH Committees. The Executive Director is responsible for translating the association’s
mission into action through collaboration with both internal and external constituencies,
advocacy, and education. Ability to travel is an essential part of the Executive Director’s
duties, as is the ability to communicate powerfully about the organization’s mission. The
Executive Director is responsible for all organizational functions, including supervising &
evaluating staff, and reports directly to the Executive Board. This is a full-time, at-will
position.
Deputy Executive Director
The Deputy Executive Director position is responsible for assisting the Executive Director in
all aspects of the operational management and advocacy efforts of the County Behavioral
Health Directors Association of California (CBHDA). The position reports to the CBHDA
Executive Director, and supervises assigned analysts and support staff.
Program Director, The Arc US’s Center for Special Education Advocacy
The Director will be responsible for managing the start-up and ongoing operation of The Arc’s new
Center for Special Education Advocacy (TheArc@School). The focus of this new Center will be to
advance the practice of lay advocacy in special education, thereby helping students with intellectual
and developmental disabilities to realize the promise of a free, appropriate public education in the
least restrictive environment as guaranteed by Federal and State law. The goal of the Center is to
improve the educational experience for special education students while in school, increasing rates
of graduation with high school diplomas and improving post-secondary outcomes, including
employment, college or continuing education and community living.
Executive Director at Minnesota Department of Human Services
This position will provide executive leadership, oversight, and direction for Community Based
Services, a major segment of the Department of Human Services’ Direct Treatment and Care
program, to ensure quality person-centered care, treatment and training are provided to individuals
supported.
Manager, Advocacy & Government Affairs
The Manager of Advocacy and Government Affairs will foster and cultivate relationships with rare
disease patients and patient organizations as well as federal and state government officials. This role
is designed to empower and engage patient advocates to achieve legislative victories on behalf of
the rare disease community. The Manager will be responsible for assisting with legislative activities
(advocacy and lobbying), writing and disseminating action alerts, and managing monthly legislative
calls and newsletters. This position will perform relevant administrative tasks when needed and may
need to support other projects, depending on the Foundation’s requirements.
Fiscal Analyst
The Association of Regional Center Agencies (ARCA) has an opening for a Fiscal Analyst. The position
requires a minimum of 5 years experience working as a senior accountant, fiscal analyst, controller,
or in a related field. Experience coordinating information technology (IT) projects and IT support.
Experience in developmental services or the non-profit sector preferred. This position will remain
open until it is filled. Interested candidates are encouraged to send their resume and salary history
to Sally Williams at swilliams@arcanet.org. The Fiscal Analyst performs general budgeting and
accounting functions for the ARCA office; coordinates training and support to the Chief Financial
Officers of the member regional centers; provides analyses of various data and information; analyzes
budget documents, regulations, and legislation for fiscal and administrative impact to regional
centers; and prepares fiscal reports for use by the agency, ARCA Board of Directors, and the
Department of Developmental Services.
Program Manager
The Program Manager for the Community Mental Health Agencies Provides a variety of program
management, administrative and clerical support to the Association. Duties include
researching/compiling information; coordinating calls, meetings and committees for the Association;
maintains electronic files and data; generates and formats meeting and committee reports, and
other documents using full range of software skills including spreadsheets, word processing, desk top
publishing, presentation software, data base management; assumes responsibilities for special
projects; attends board meetings and committees for administrative support; researches and
analyzes data to develop reports for management decision-making. In addition, this position
Legislative Advocate
The American Civil Liberties Union of California (ACLU-CA) seeks an outgoing, results-driven, and
experienced advocate who is passionate about advancing many of the most important – and
sometimes controversial – struggles for civil rights and liberties in our state.
Director of Public Policy
The Director of Public Policy strategically guides the California Child Care Resource and referral
Network (The Network) and its member agencies in budget and legislative analysis and in public
policy education and advocacy efforts. This position requires the employee to be present in
Sacramento approximately 80% of the time.
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