2 0 1 2 AN N U AL RE P O RT 2012 A NNUA L REPORT THE LIVESTRONG FOUNDATION 2012 ANNUAL REPORT THE LIVESTRONG FOUNDATION 2012 ANNUAL REPORT AFTER 15 YEARS, IT’S OUR TIME. 2 3 Our time to rise above. Our time to renew, remake As one of our supporters stated, “I feel like I’m and reenergize. So let’s take a moment to remind the number one priority for the Foundation. I’m ourselves that we bring the most needed support above all other things to them. There are so many at the most heightened moment to those affected layers to this journey, and they help me rise to the by cancer—from day one. Above all else, they are top … where I can breathe.” our priority. We fight with them to rise above the odds, the expectations and the disease. We all rise above. Together. 2012 A NNUA L REPORT 2 3 OUR COMMUNITY RISES THE PROOF IS IN THE PEOPLE SUPPORT MEANS THE WORLD TO US PAGE 6 PAGE 8 PAGE 16 4 5 6 NEXT STOP: YOUR COMMUNITY CHANGING THE WORLD BY TURNING TALK INTO ACTION PAGE 24 CHANGING MINDS PAGE 36 PAGE 30 7 8 9 FINANCIALS, DONORS AND BOARD AWARDS AND ACCOLADES #STILLSTRONG IN 2013 PAGE 40 PAGE 50 PAGE 51 TABLE OF CONTENTS 4 1 5 2012 A NNUA L REPORT Community. It’s the first word that comes to mind when I think about the Second, we worked on the front lines and across the globe to advance cancer LIVESTRONG Foundation. In 2012, I never felt more strongly about the care. We engaged in public policy matters that affect people with cancer and power of community as we—together with you by our side—faced difficult fought against the cancer stigmas that still exist, hampering life-saving diag- headwinds and uncharted territory. noses and treatment, in many parts of the world. Third, we continued our groundbreaking work to foster ongoing dialogue with cancer patients and Through that and beyond, as we move with excitement into a new, prom- survivors through Foundation research and surveys, and we gained deeper ising and singularly focused era for our Foundation, we have remained insights that inform both our programs and the wider cancer community’s intently focused on what matters: people affected by cancer today and our treatment protocols. Fourth, we worked closely with our many program- mission to improve their lives. Last year, our 15th anniversary, we achieved matic and cause marketing partners to strengthen our financial future, several significant successes that helped us perform at the highest level and expand our efforts and deliver first-rate services for those in need. positioned us to move forward with even greater success. Our accomplishments would not be possible without the steadfast 6 First, thanks to your hard work and support, we surpassed the 2.5-million- commitment of our Chairman Jeff Garvey, our Board of Directors and our people-served milestone by helping a record number of people in 2012 millions of dedicated supporters. Our success has always been derived from through our free, one-on-one cancer support services. Offered in person, people from all walks of life who meet a cancer diagnosis with hope and more by phone and online, these highly personalized, deeply engaged services than a little grit. We are inspired by you to dream bigger and reach further. connect people to treatment options, financial counseling, clinical trial access, fertility preservation, insurance and transportation assistance, Although some things have changed, one thing remains absolutely true: This emotional support and much more. With 14 million Americans living with Foundation doesn’t back down from a challenge. Make no mistake that we cancer now and 4,500 Americans receiving new diagnoses each day, we will forge ahead boldly in 2013 and beyond to continue making a difference know the need is great. Most important, we know it works. Research shows in the lives of people affected by cancer. that addressing the concerns of the whole patient, alongside their medical treatment, produces measurably better outcomes in improved quality of life LIVESTRONG, and prolonged survival. Doug Ulman President and CEO 1 OUR COMMUNITY RISES DOUG’S LETTER 1 | DOUG’S LETTER Dear Friends, 7 2012 A NNUA L REPORT 2 2 | THE PROOF IS IN THE PEOPLE 8 NAVIGATING THE CANCER JOURNEY THE PROOF IS IN THE PEOPLE THIS IS SARAH’S STORY Sarah and her husband were ready. Ready to Sarah and her husband worked with one of our LIVESTRONG.org/Sarah start a family, ready to get back to normal life navigators to help pay for the medications and beyond cancer. Then, the second diagnosis services for freezing embryos. And when her came. Breast cancer. Again. The news was sister-in-law stepped forward to be a surrogate, devastating, and the options were few. their dreams came true. Lily D. was born nine months later. At 31, Sarah chose to have her ovaries removed, her best chance to survive. She thought it meant her Sarah sums it up, “The LIVESTRONG dream of being a parent was over. She was fighting Foundation made what we thought was for her own life now. But when her oncologist impossible … possible.” mentioned the possibility of in vitro fertilization and connected Sarah to the LIVESTRONG Foundation, everything changed. 9 2012 A NNUA L REPORT CANCER HAPPENS TO A PERSON, NOT A NUMBER. EACH PERSON HAS HER JOURNEY, HIS EXPERIENCE, HER FEELINGS, HIS ATTITUDE. FACING THAT JOURNEY IS PRECISELY THE REASON WE PROVIDE FREE CANCER NAVIGATION SERVICES TO HELP THOSE AFFECTED BY CANCER. WE HELP SURVIVORS UNDERSTAND THAT THEY CAN TAKE CONTROL OF THEIR EXPERIENCE. FROM THE PHYSICAL TO THE EMOTIONAL TO THE PRACTICAL, WE PROVIDE A WIDE RANGE OF 10 SUPPORT SERVICES. ASSIST WITH: INSURANCE CHALLENGES SEE OUR NAVIGATION SERVICES STORY lvstr.ng/ar-navservices MEET MELISSA FROM OUR NAVIGATION SERVICES TEAM lvstr.ng/ar-melissa “IT’S DIFFICULT TO HEAR STORIES EVERY DAY WHERE YOU WISH YOU COULD FIX IT, BUT IT’S REWARDING TREATMENT CONCE RNS TO KNOW THAT YOU ARE MAKING A EMOTIONAL AND PEER SUPPORT DIFFERENCE BY PROVIDING A RESOURCE, FERTILITY PRESERVATION BY PROVIDING A LISTENING EAR, BY CLINICAL TRIAL MATCHING 2 | THE PROOF IS IN THE PEOPLE LIVESTRONG NAVIGATION SERVICES LETTING THEM KNOW THEY’RE NOT ALONE AND HELPING THEM FEEL PREPARED FOR WHATEVER THOSE NEXT STEPS MAY BE.” —MELISSA NAVIGATION SERVICES TEAM MELISSA 11 2012 A NNUA L REPORT 2 | THE PROOF IS IN THE PEOPLE 12 11% INCREASE IN 2012, OUR NAVIGATION SERVICES MADE A CLEAR IMPACT: x100 2012 2011 13 $6,000,000 WE DIRECTLY SUPPORTED WE SAW AN 11% INCREASE MORE THAN 15,000 PEOPLE AFFECTED BY CANCER IN NEW CLIENT INTAKE OVER 2011. IN PERSON, BY PHONE AND ONLINE. WE SAVED OUR CLIENTS NEARLY $6,000,000 IN PERSONAL COSTS BY NEGOTIATING DISCOUNTS, MAXIMIZING AVAILABLE MEDICATION PROGRAMS AND OVERTURNING DENIALS FROM INSURANCE COMPANIES. 2012 A NNUA L REPORT FOR US, THE PROOF IS ALWAYS IN THE PEOPLE. NEVER A NUMBER, BUT A NAME. NEVER A STATISTIC, BUT A VOICE. MEET IRAM AND BRIAN. IRAM WATCH IRAM’S STORY AT WATCH BRIAN’S STORY AT LIVESTRONG.org/Iram LIVESTRONG.org/Brian “AS CANCER PATIENTS, IT’S IMPORTANT TO UNDERSTAND 14 “At the time of my diagnosis, I’d been married to my high school sweetheart for nine years. We had a daughter who was about to turn four. In my head, I thought by not talking to my wife about cancer, I was protecting her. My wife filed for divorce shortly after my brain surgery. Sometimes I worry that the way I handled my emotions and ideas about dying, cancer and finances pushed someone I love away. The LIVESTRONG Cancer and Relationships class gave me some perspective. The Foundation connected me with other people who under- “I WAS AFRAID CANCER MEANT I PUSHED SOMEONE I LOVED AWAY.” Brian was a baseball coach, a husband, a friend, but more than anything, THAT WE CAN AND SHOULD HELP he was a man on a mission to spread the word about cancer education and CONTRIBUTE TO THE UNDER- help through the LIVESTRONG Foundation, and we found a hero. Working STANDING AND ERADICATION IN HIS WORDS Brian Rose didn’t mince words, and neither will we. He was an inspiration. OF THIS DISEASE. HOPEFULLY, CLINICAL TRIALS WILL HELP ME DEFEAT CANCER AND MOVE ON WITH MY LIFE. UNDOUBTEDLY, THE RESEARCH 2 | THE PROOF IS IN THE PEOPLE BRIAN ROSE awareness. When Brian was diagnosed with Stage 4 melanoma, he found with our navigation services, Brian received support with insurance, fertility and especially clinical trials. In turn, Brian became an outspoken advocate for not only the Foundation’s work, but for all those affected by cancer, championing his “Fight Like Hell” mantra. In January of 2013, the world lost Brian Rose, but it did not lose his unforgettable spirit and inspiration. Thank you, Brian. We miss you. WILL PAVE A ROAD FOR OTHERS WHO HAVE YET TO BE DIAGNOSED.” stand what I’m going through.” THE JOURNEY WITH THE FOUNDATION BEGINS AT LIVESTRONG.ORG/WECANHELP. 15 2012 A NNUA L REPORT TEAM LIVESTR O N G Barbara Simmons took on one of the biggest challenges of her life in 2012—a LIVESTRONG Foundation challenge known as RAGBRAI. Seven consecutive days of cycling, each day longer than the next, in 100-plus degree heat across Iowa. And, in her opinion, she’s not even a cyclist. Pretty incredible, to say the least, but it’s not the biggest challenge she’s ever faced. 16 She faces her biggest challenge every morning. Day after day. Month after month. Year after year. Surviving almost nine years since cancer stole her husband, Brian, the father of her three children. That’s why Barbara stays motivated every day to take on more and more Foundation events. From running to cycling, fundraising to advocating, Barbara is one of the Foundation’s most passionate supporters. She has single-handedly raised more than $45,000 to help cancer patients today and has spread the Foundation’s mission to thousands of people. 3 SUPPORT MEANS THE WORLD TO US 3 | SUPPORT MEANS THE WORLD TO US BARBARA SIMMONS 17 2012 A NNUA L REPORT “THEY FUNDRAISE. THEY TALK TO THEIR LEARN MORE ABOUT OUR GRASSROOTS VOLUNTEERS ADVOCATES FROM THE ELECTED OFFICIALS ABOUT CANCER-RELATED lvstr.ng/ar-lsleaders GROUND UP THE POWER OF A GRASSROOTS MOVEMENT THAT TRULY HARNESSES THE PASSION OF ITS ADVOCATES IS $500 MIL L ION POLICIES. THEY TALK TO THEIR LOCAL HOSPITARA TALS ABOUT THE IMPORTANT NAVIGATION SERVICES WE OFFER. THEY EDUCATE THEIR AN INSPIRING THING. AS THE NUMBER OF GRASSROOTS SUPPORTERS INCREASED IN 2012, THE LIVESTRONG 18 LEADER PROGRAM ALSO EXPANDED. SINCE OUR INCEPTION, WE HAVE COMMUNITY AND NEIGHBORS ABOUT WHAT RAISED OVER $500 MILLION DOLLARS The Leader program engages volunteers around the world to serve 3 | SUPPORT MEANS THE WORLD TO US GROWING GLOBAL FOR THE FIGHT AGAINST CANCER. WE DO, WHAT OUR MISSION IS AND WHAT WE and inspire cancer survivors. Within their local communities, Leaders promote the Foundation’s navigation services, resources and other key programs; support our advocacy work with important policy and CAN DO TO HELP ANYBODY WHO IS AFFECTED legislation; and fundraise. By supporting our priorities, developing relationships with community leaders and initiating their own activi- BY CANCER.” ties, more communities and individuals are impacted by our mission and services. —TARA GRASSROOTS ENGAGEMENT TEAM 19 2012 A NNUA L REPORT $48 MIL L ION IN 2012, WE ADDED MORE THAN IN 2012, WE RAISED $48 MILLION 830,000 NEW ADVOCATES WHO TO SUPPORT PROGRAMS THAT ASSISTED IN HEIGHTENING AWARE- SERVE PEOPLE AFFECTED BY NESS AND ENGAGED IN PUBLIC CANCER; $23.4 MILLION WERE POLICY MATTERS IMPACTING CONTRIBUTIONS FROM MORE THAN THE CANCER COMMUNITY. 116,000 DONORS WORLDWIDE. 84% 2012 REVENUES CAUSE MARKETING AND LICENSING 10,311,941 21.5% CONTRIBUTIONS $ 8,285,697 17.2% EVENT REVENUE 17,984,188 37.4% MERCHANDISE SALES 2,233,956 4.6% DIVIDENDS AND INTEREST 5,606,874 11.7% IN-KIND REVENUES 3,648,107 7.6% $ 48,070,763 100.0% 3 | SUPPORT MEANS THE WORLD TO US 830,000 The figures on these pages depict the financial activities of the LIVESTRONG Foundation for the 2012 calendar year. Complete copies of the audited financial statements are available upon request from the LIVESTRONG Foundation, 2201 East Sixth Street, Austin, TX 78702, or on our website at LIVESTRONG.org. 2012 FUNCTIONAL EXPENSES 20 21 PROGRAMS $ 37,706,967 84.2% FUNDRAISING 5,340,622 11.9% Activism not only inspires more advocates; This tremendous generosity allows us to provide IN 2012, 84 CENTS OF EVERY MANAGEMENT AND GENERAL 1,749,174 3.9% it also fuels donations. We are humbled by all of our free services and resources like the DOLLAR RAISED WENT DIRECTLY $ 44,796,763 100.0% the impressive number of individual donors LIVESTRONG Guidebook, cancer navigation TO PROGRAMMATIC ACTIVITIES. who give and the support we received from a services and LIVESTRONG at School, among community united by our mission. many others. Since our inception, we have raised more than $500 million dollars for the fight against cancer, and 82% of those funds have gone 2012 PROGRAM ACTIVITIES directly to support our programs and services for survivors. EDUCATION, PROGRAMS AND POLICY $ 19,251,695 51.1% GRANTS 12,450,888 33.0% ADVOCACY 6,004,384 15.9% $ 37,706,967 100.0% 2012 A NNUA L REPORT The most impressive number from 2012 might Steve describes the rest of the 40-day event as a have come in the form of miles. Steve Cannon “journey within a journey.” 40 MARATHONS loves to run like nobody else you know. So much “Uncle Mike ran the rest of that day and many 40 days, but not just for any reason. For those others with me. I ran much of the day on his legs, battling cancer today. knowing he was free from pain and with me, 1,037 MILES N so that he decided to take on 40 marathons in LAKE M ICH IG A smiling every step.” When Steve began his 1,000-plus-mile journey 22 around Lake Michigan, he had no idea just On July 5, 2012, after becoming the first person how personally he would be affected during to run around Lake Michigan, Steve returned the process. On day 20, his mother called him to family and friends having raised $33,000 to to deliver the news that Steve’s Uncle Mike help people affected by cancer. He also returned had stomach cancer. She passed along Uncle with even more passion and drive to continue Mike’s words of encouragement and Steve the fight. In 2013, he has organized the Million continued. But only seven days later, Steve’s Dollar Marathon. His team of more than 100 uncle passed away. His instinct was to stop runners will run across the country, coast to and go home to be with his family, but his coast, to raise awareness about cancer. mother said, “Absolutely not! Uncle Mike 3 | SUPPORT MEANS THE WORLD TO US THE IMPACT OF ONE MAN RUNNING STEVE CANNON FINISHES HIS JOURNEY AROUND LAKE MICHIGAN ALONGSIDE FRIENDS AND FAMILY runs with you now. You finish this.” CHICAGO IN 40 DAYS 23 2012 A NNUA L REPORT 4 SAM lvstr.ng/ar-lsymca Sam and his wife, Sandy, love playing golf Sam described the experience beautifully, “I together. The fresh air, the exercise, the views. could achieve things much more with a personal Sam is especially good at chipping from just trainer who understands the effect of chemo off the green. But when Sam found out that a and radiation than I was ever going to do on my swollen lymph gland was cancerous, he didn’t own. You don’t have to tough it out on your own. realize just how quickly the treatment would There’s a program there to help you regain your bring his life, and Sandy’s, to a halt. confidence and zest for life and to help you know NEXT STOP: YOUR COMMUNITY INVESTING, EXPANDING AND HAVING AN IMPACT THROUGH LOCAL PARTNERSHIPS 4 | NEXT STOP: YOUR COMMUNITY 24 WATCH SAM AND SANDY’S STORY AND THEIR EXPERIENCE WITH LIVESTRONG AT THE YMCA that there is quality life ahead of you.” And based After the radiation, Sam found himself losing on what Sam and Sandy have been up to, some weight, coordination, balance and energy. Sandy quality rounds of golf, too. knew he needed something to start him back on SAM AND SANDY ON THE GOLF COURSE the road to recovery. When she saw a story in the Sam is just one of the many people we’ve helped local paper that the LIVESTRONG Foundation through important programs in local communi- was working with cancer survivors at the YMCA, ties. With our continually growing partnerships she knew the program could change their life. and the Community Impact Project (CIP), we have been able to expand our reach and help raise already successful programs to the next level. 25 2012 A NNUA L REPORT P RO JEC T OF FERS FUND ING TO ORGANIZATIONS TO RECREATE PROGRAMS THAT HAVE DEMON- THE CREATIVE CENTER—HOSPITAL nearly $1.4 million in implementation awards to ARTIST-IN-RESIDENCE PROGRAM 90 selected applicants. This is the largest number Since 1994, The Creative Center has been of financial awards we have granted in a single dedicated to bringing the arts to people with year in the 15-year history of the Foundation. The cancer, chronic illness and through all stages of four chosen community programs were: life. This helps them discover their own creative resources while meeting the challenges of diag- STRATED SUCCESS IN SUPPORTING PEOPLE AFFECTED BY CANCER LIVESTRONG AT THE YMCA nosis, treatment and survivorship. We continued to expand LIVESTRONG at the YMCA, a research-based program that offers ADVANCED CERTIFICATION REGION OF THE UNITED STATES. people affected by cancer a safe, supportive FOR PALLIATIVE CARE MEET DEVON FROM THE COMMUNITY PROGRAMS AND ENGAGEMENT TEAM RECREATING PROGRAMS THAT environment to participate in physical and Every cancer patient, from the day of diagnosis, social activities focused on strengthening the has palliative care needs that focus on providing lvstr.ng/ar-program whole person. Participants work with YMCA relief from the symptoms, pain and stress of the staff trained in supportive cancer care to achieve cancer journey. The goal of palliative care is not THE COST OF DEVELOPING their goals such as building muscle mass and only to improve the quality of life for the patient NEW PROGRAMS AND ALLOWS strength; increasing flexibility and endurance; but for the patient’s family as well. Palliative care and improving confidence and self-esteem. integrated into cancer care has been shown to WITHIN ONE CITY, STATE OR ARE PROVEN TO BE EFFECTIVE 26 4 | NEXT STOP: YOUR COMMUNITY T HE CO MMUNITY IM PACT The 2012 Community Impact Project offered HAS ALLOWED US TO ELIMINATE FOR MORE IMMEDIATE IMPLE- improve physical and psychological symptoms, MENTATION TO HELP CANCER PILLARS4LIFE improve caregiver well-being and even prolong SURVIVORS AND THEIR FAMILIES Pillars4Life is a patient/caregiver support survival. Simply put, it’s the kind of care that can TODAY—DIRECTLY SUPPORTING program that has been proven to enhance quality make a difference in a patient’s life today. The of life for cancer patients and allows hospitals Joint Commission’s Advanced Certification for and their social workers to more efficiently Palliative Care is designed to set standards and triage and attend to the psychosocial needs of a acknowledge hospitals providing state-of-the- much greater number of patients. art palliative care services. OUR MISSION. 27 LEARN MORE ABOUT THE COMMUNITY IMPACT PROJECT lvstr.ng/ar-community SINCE OU R COMMUNI T Y, EDUCAT I O N AND MARK ETING PART NER S HI P S BEGAN, MORE TH AN 2 5 0 PROGRAMS HAV E BEEN LAUNC HED IN 47 STATES AND M O R E T HAN $ 4 .5 MILLION HAS BE EN DI S T R I BUT ED. INVESTED $1.4 MILLION TO BRING EXPANDED THE LIVESTRONG AT PROVEN CANCER SUPPORT PROGRAMS THE YMCA PROGRAM TO NEARLY TO 90 SITES ACROSS THE U.S. THROUGH 300 COMMUNITIES SERVING 16,000 THE COMMUNITY IMPACT PROJECT. CANCER SURVIVORS SINCE INCEPTION. AFFECTED MORE THAN 184,000 DEVELOPED NEW CAUSE MARKETING STUDENTS AND TEACHERS WITH THE PARTNERSHIPS WITH CAR2GO, UMB/ L I V E S T R O N G AT SCHOOL PROGRAM. VISA, FACEBOOK AND FTD. 2012 A NNUA L REPORT MARKETING PARTNERSHIP Stephanie Myers found out she had cancer in Enter the LIVESTRONG at School program the 8th grade. She felt isolated. She felt alone at to help students cope with and learn about school. And when she lost her hair from chemo, cancer and understand the impact it has on TWO DAYS OF CLASS students laughed at her. individuals like Stephanie. We touched more than 184,000 students and teachers in 2012. 28 LIVESTRONG AT SCHOOL In addition to expanding our programs, our through our Challenge Series go directly to lvstr.ng/ar-school cause marketing partnerships grew in 2012 our programs and services. And if you’re in as well. One in particular made a big impact the Austin area, be sure to track down one of INSTRUCTION THAT with just a tiny car. car2go is an international the car2go Team LIVESTRONG Challenge- I’VE HAD IN A LONG car-sharing program that sponsored the Team branded vehicles and take a ride in it to benefit LIVESTRONG Challenge Austin. Because of the Foundation. “IT’S PROBABLY THE BEST Andy Miller of the Foundation notes, “Cancer With one in three women and one in two men affects a large percentage of the American in the U.S. facing a cancer diagnosis in their population. It affects their hopes, their dreams, lifetime, children in classrooms everywhere are their relationships. But no one ever teaches you likely to be dealing with cancer right now. The WERE FOCUSED, THEY about that.” LIVESTRONG at School curriculum offers WERE INTERESTED, THEY online lessons for grades K–12 to help students TIME, BECAUSE MY KIDS learn about cancer in a way that is age- SHARED OF THEMSELVES appropriate, inspiring and empowering. AND THEY BONDED. I COULDN’T ASK FOR A BETTER RESPONSE.” —BARBARA WOLANSKI TEACHER 4 | NEXT STOP: YOUR COMMUNITY CAR2GO CAUSE LIVESTRONG AT SCHOOL sponsors like car2go, 100% of the funds raised 29 2012 A NNUA L REPORT ACROSS THE GLOBE To this day, Clara Guzman still posts to her daughter’s Facebook page to GLOBAL ANTISTIGMA AND PATIENT EMPOWERMENT share information about cancer. It’s part of a mission that her daughter, Karen, started by being one of the bravest teenagers you’d ever meet. When lvstr.ng/ar-global Karen found out she had cancer, she chose to fight. And share. And speak. And teach. And inspire. And she did it in Mexico, where the stigma of cancer causes many people to do just the opposite. Karen was one of the first public storytellers of Comparte tu Historia, a program launched by the LIVESTRONG Foundation in 2011. Though 30 Karen lost her fight with cancer in 2012, she still battles the stigma of cancer in Mexico today. Her mother has started a foundation in Karen’s memory that educates teenagers against the stigma and misperceptions of cancer and encourages them to spread the word so the silence of cancer can be overcome. This is why we do it. Not only in Mexico, but also in South Africa and now beyond. We continue to strive to create a better global understanding of the disease to help patients today. CLARA GUZMAN 5 CHANGING THE WORLD BY CHANGING MINDS 5 | CHANGING THE WORLD BY CHANGING MINDS TACKLING CANCER STIGMAS 31 2012 A NNUA L REPORT THROUGH SONGS IS GETTING CLOSER lvstr.ng/ar-comparte INDIVIDUALLY, WE’LL FIGHT OUR OWN FIGHT, BUT WE’RE NOT ALONE.” —JOSE “CHEMA” MARTI LYMPHOMA CANCER SURVIVOR, MUSICIAN AND COMPARTE TU HISTORIA STORYTELLER IN 2012, SIGNIFICANT EFFORTS WERE FOCUSED IN FOUR MEXICAN CITIES TO REACH THE PUBLIC. TELEVISION MEDIA REACHED MORE THAN 104 MILLION PEOPLE, SOCIAL MEDIA REACHED OVER 850 THOUSAND MONTHLY, RADIO REACHED 93 MILLION, NEARLY 250 PEOPLE WERE TRAINED AND TO PEOPLE YOU DON’T KNOW WHO ARE GOING THROUGH A SIMILAR SITUATION. 32 WATCH JOSE “CHEMA” MARTI’S STORY AND HIS EXPERIENCE WITH COMPARTE TU HISTORIA SPECIAL EVENTS WERE HELD. ON WORLD CANCER DAY, ONE EVENT GATHJOSE “CHEMA” MARTI ERED MORE THAN SEVEN THOUSAND PEOPLE IN MEXICO CITY’S ZÓCALO. OVERALL, THE RESULTS WERE ASTOUNDING: 76% 70% 42% OF PEOPLE EXPOSED TO THE OF PEOPLE EXPOSED TO THE OF PEOPLE EXPOSED TO THE CAMPAIGN LEARNED SOMETHING CAMPAIGN SAID IT INFLUENCED CAMPAIGN DID SOMETHING NEW ABOUT CANCER. THEM TO TALK MORE OPENLY DIFFERENTLY BECAUSE OF WHAT ABOUT CANCER. THEY LEARNED. 5 | CHANGING THE WORLD BY CHANGING MINDS “TO BE ABLE TO SHARE YOUR EXPERIENCE 33 2012 A NNUA L REPORT PROJECT IN JAPAN With the success seen in South Africa and Mexico, the Foundation announced plans to expand its patient empowerment work to Japan. Along with partner American Cancer Society (ACS) and lead agency Health and Global Policy Institute (HGPI), the Patient Empowerment Project in Japan was born. The announcement was made at the World Cancer Congress during the session, “Innovative Strategies to Empower Survivors in the Global Fight Against Cancer.” The Patient Empowerment Project formally launched in November 2012 34 The goal of the Foundation’s work in Japan is to ultmately create a patient-informed national call to action to grow the cancer patient advocacy movement. with a two-day roundtable in Tokyo that included survivors, health care providers and NGOs. It was designed to amplify the cancer patient’s voice by allowing people to share their stories through testimony in a forum in front of policy makers, media and the public. The goal is to build a grassroots movement that will bring visibility to gaps in cancer control and highlight “I AM A CHILDHOOD CANCER SURVIVOR. I WANT TO MAKE USE OF MY EXPERIENCES FOR OTHER CANCER SURVIVORS. I HAVE BEEN LOOKING FOR THE OPPORTUNITY, AND THE CANCER SURVIVORS’ KEITA FORUM WOULD BE AN IDEAL PLACE 35 TO SHARE MY STORY WITH MANY OTHER PEOPLE.” the need for cancer to be a stronger priority on the country’s health agenda. In December 2013 in Tokyo, the project will reach its pinnacle when a Patient Forum will bring together families, health care providers, government representatives, NGOs and media to listen to patient stories and engage in dialogue about key cancer issues facing patients in Japan. The Forum will be followed by a national call to action on cancer—informed by these patient voices and needs. —KEITA CHILDHOOD CANCER SURVIVOR/NURSING STUDENT 5 | CHANGING THE WORLD BY CHANGING MINDS PATIENT EMPOWERMENT BINZEE GONZALVO ADVOCATE/LEADER With the leadership of people like Binzee Gonzalvo, the “Over Cancer Together” campaign and Patient Empowerment Project are raising awareness of patients’ needs in Japan. 2012 A NNUA L REPORT SURVIVORSHIP RESEARCH A special member of the Foundation’s family is that when primary treatment ends, the cancer our Director of Research, Ruth Rechis, a cancer journey does not. After treatment, many cancer survivor herself. She knows just how critical our survivors experience physical, emotional and mission is to help improve the lives of people practical concerns, but they don’t always receive affected by cancer. And she knows how to do the help they need. something about it. That’s why throughout 2012, the LIVESTRONG 36 Ruth notes, “We do research to understand what Foundation continued advancing the Essential people need, and then we create programs to Elements of Survivorship Care initiative. After help them. The work that we do is immediately the Foundation worked to build consensus translated into people’s lives.” Our flagship among key stakeholders on the essential survey was conducted from June to December of elements of survivorship care in 2011, in 2012 2012, results of which will help us to determine the Foundation and the LIVESTRONG our plans moving forward. Survivorship Center of Excellence Network refined the definitions of the 20 Essential This direct approach to research helped us lead Elements. Included were specific recommenda- the way in the cancer community’s conversation tions and examples of basic and enriched about survivorship care. There are approximately levels of survivorship care. Additionally, the 14 million cancer survivors alive in the United Foundation awarded Network Directors at the States today, and that number is expected to grow Fred Hutchinson Cancer Research Center to to more than 18 million by 2020. As a result of lead the Network in a collaborative research innovative research, improved detection, access project to develop a cohort of young adult cancer to care and treatment, and a focus on life after survivors and test the impact of providing the treatment ends, more people are surviving cancer essential elements of care to them. than ever before. However, it has become clear RAISING THE MEET RUTH RECHIS, DIRECTOR OF RESEARCH BAR FOR CANCER lvstr.ng/ar-research COMMUNITY LEARN MORE ABOUT ESSENTIAL ELEMENTS DIALOGUE, NEAR lvstr.ng/ar-care AND FAR 6 TURNING TALK INTO ACTION 6 | TURNING TALK INTO ACTION ACTING ON OUR 37 2012 A NNUA L REPORT REDUCING PAIN IN HAITI Hand in hand with barriers like stigma come lack of access to quality Haiti has experienced more than its fair share of tragedies over medical care and pain relief for many of the 28 million people affected by time, making it one of the least developed countries in most need of cancer throughout the world. The Foundation has worked tirelessly at the community-based programs and services. Recent disasters have only national and global levels to help promote a shift in policy and funding— compounded local health emergencies. 6 | TURNING TALK INTO ACTION EXPANDING ACCESS TO CARE away from the traditional disease-centric approach and towards strengthening health systems that serve all the people. The partnership between the Foundation, PIH and GAPRI is expanding the ongoing cancer initiative to further address pain management and 38 In August 2012, the Foundation announced a $500,000 commitment and palliative care for underserved cancer patients in the country. The Pain- entered into a three-year joint initiative with the Union for International Free Hospital Initiative is providing education for patients and staff, raising Cancer Control (UICC)—Expanding Global Access to Essential Medicines motivation and awareness, documenting pain levels, improving access to and Technologies. The Foundation and UICC set ambitious, but achievable, essential pain medicines and communicating the impact of these efforts. targets for essential medicines. We have developed a replicable, cost- The focus is on motivating clinicians to evaluate and treat pain by using effective model for improving access to pain relief in collaboration with campaign-style materials and routine pain assessments by staff nurses. Partners in Health (PIH) and the Global Access to Pain Relief Initiative Project staff offer continuing medical education programs for clinicians and (GAPRI), beginning with two hospitals in Haiti. nurses and distribute reference and training materials, including pain treatment guides and prescribing information, to equip each clinician with the tools to effectively apply standard treatment guidelines for pain treatment. The staff of the first two hospitals involved, St. Marc’s and Cange, have already noted significant improvement in patient experiences, and the initiative is building a case for replicating the model across the country. 39 2012 A NNUA L REPORT 7 The figures on these pages depict the financial activities of the LIVESTRONG Foundation for the 2012 calendar year. Complete copies of the audited financial statements are available upon request from the LIVESTRONG Foundation, 2201 East Sixth Street, Austin, TX 78702, or on our website at LIVESTRONG.org. ASSETS CASH AND CASH EQUIVALENTS LIABILITIES AND NET ASSETS $ 29,990,299 LIABILITIES INVESTMENT SECURITIES 18,694,052 ACCOUNTS PAYABLE AND ACCRUED EXPENSES ENDOWMENT FUNDS AND INVESTMENTS 37,744,046 GRANTS PAYABLE 2,231,821 ACCOUNTS RECEIVABLE 9,407,430 DEFERRED REVENUE 1,236,920 DEPOSITS, PREPAIDS AND INTANGIBLE ASSETS 1,924,515 TOTAL LIABILITIES $ 1,704,837 7 | FINANCIALS, DONORS AND BOARD 40 FINANCIALS, DONORS AND BOARD LIVESTRONG FOUNDATION STATEMENT OF FINANCIAL POSITION $ 5,173,578 INVENTORY2,259,901 PROPERTY AND EQUIPMENT, NET TOTAL ASSETS 11,857,247 $1 06,703,912 NET ASSETS UNRESTRICTED 41 $87,023,297 TEMPORARILY RESTRICTED 8,376,416 PERMANENTLY RESTRICTED 11,304,199 TOTAL NET ASSETS $1 06,703,912 TOTAL LIABILITIES AND NET ASSETS $111,877,490 2012 A NNUA L REPORT AMERICAN CENTURY INVESTMENTS ENDOWMENT FUND $490,060 IN HONOR OF JAMES “JIMMY” BAUMOEL $ 34,388 KAWAJA/HOLCOMBE FUND $ 66,287 ANDREA LEIGH TOMLINSON—PLANET CANCER FUND IN HONOR OF KATHLEEN B. AND JAMES N. SHERWIN KAYA KNERLY LIVESTRONG FOUNDATION ENDOWMENT FUND RISE ABOVE IT (RAI), IN MEMORY OF COLIN O’DONOGHUE $ 26,156 30,455 RONETTE ESPINOZA MEMORIAL FUND 29,083 KEIZO SHIMANO MEMORIAL FUND 30,983 RYAN PHUA MEMORIAL FUND 556,064 KENNEDY/MARSHALL ENDOWMENT FUND 138,386 STEPHANIE ROBINS MEMORIAL FUND 673,978 SUSAN E. KUHN, CYRUS T. WINGATE AND SEVILLA M. TREVISANI AND THOMAS P. TREVISANI, II FAMILY FUND 1,206,286 333,240 BARBARA DUNGEY MEMORIAL FUND 27,142 BETSY H. SCHOFIELD MEMORIAL FUND 956,119 CHRISTINE PRATT MEMORIAL FUND 30,025 COXE FAMILY FUND 1,196,521 42 41,336 IN HONOR OF KEVIN “K2” KERWIN 27,563 IN HONOR OF LAWRENCE “LARRY” S. DOLIN 27,930 IN HONOR OF MICHAEL R. HENRY 30,883 IN HONOR OF RAINBOW BABIES AND CHILDREN’S HOSPITAL, CLEVELAND, OH 31,605 CVCCA—PARKER’S TEAM 61,765 DAN L. JONES AND JANET GIFFORD NORTH ENDOWMENT 30,224 IN HONOR OF RENEE NICHOLAS 40,710 DANA JAY LESNEVER MEMORIAL FUND 44,908 IN HONOR OF SHARON MOONEY 34,323 DAVID KNAGGS ENDOWMENT 54,964 IN HONOR OF STEPHEN M. O’LEARY IN HONOR OF THE STAFF OF THE LIVESTRONG FOUNDATION DELL CHILDREN’S HOSPITAL GIFT IN HONOR OF SANDRA ARAGONA 299,954 DICK DYHRMAN MEMORIAL 37,252 IN HONOR OF THOMAS F. SLATER ELIZABETH LAUSMANN JACOBS MEMORIAL FUND 27,902 IN HONOR OF WESLEY EDWARDS LARRY AND DR. NANCY O’REILLY, LAURAN, LEIGH, RAGAN FAMILY FUND 1,612,325 LEANNE JONES LIVESTRONG MEMORIAL FUND 30,883 26,645 LYDIA HUNTER-REAY MEMORIAL FUND 27,577 THE ARMSTRONG FAMILY FUND 247,062 MARSHALL G. LUTZ ENDOWMENT FUND 55,888 THE BILL PASSEY FAMILY FUND MARTHA SOUTHERN HIRSCH MEMORIAL FUND 30,883 THE HAMILTON JORDAN FUND 108,090 106,400 MCKINNON FAMILY FUND 29,468 THE LEE FAMILY FUND THE ROLLINS FAMILY FUND 207,887 30,523 75,653 33,971 MCPHAIL FAMILY ENDOWMENT 26,502 31,595 MICHAEL W. LOTZ MEMORIAL FUND 105,545 THE SOPHIA KOLEVICH REMEMBRANCE FUND 32,210 NIKE ENDOWMENT FUND 110,764 THE ULMAN FAMILY ENDOWMENT 36,769 OAKLEY ENDOWMENT FUND 576,095 THE WADE F. B. THOMPSON ENDOWMENT FUND 110,764 GUPTA FAMILY FUND 29,083 JEANNETTE J. JEHL MEMORIAL FUND 109,036 HAMMER FAMILY FUND 42,417 HECHT FUND 26,960 JENNIFER SMITH COLLISON AND WARD SMITH MEMORIAL FUND 31,347 IN HONOR OF BETTY OTTER-NICKERSON 59,112 KAREN AND EVERETT COOK ENDOWMENT FUND 304,246 PLEDGED AND UNDESIGNATED 63,050 PLEDGED, PAID AND UNDESIGNATED 8,343 RADIOSHACK ENDOWMENT FUND 110,764 THE WOOD/BRAUNSTEIN FAMILY FUND UNDESIGNATED ENDOWMENT FUNDS 25,480 7 | FINANCIALS, DONORS AND BOARD NAMED AND ENDOWED SPECIAL PURPOSE FUNDS 224,371 43 2012 A NNUA L REPORT 7 SOCIETY Closed on December 31, 2002, the Founder’s Circle brought together The 7 Society recognizes individuals and organizations who have made an entrepreneurial stewards who understood our passion and made a differ- extraordinary financial commitment to the LIVESTRONG Foundation. ence through donations of $500,000 or more. The LIVESTRONG Each member of this group has a cumulative giving commitment totaling Foundation honors these individuals in perpetuity for their generosity $1 million or more to the global fight against cancer. and continued support. 44 ANONYMOUS CRAIG G. MALLOY ANONYMOUS ARAGONA FAMILY FOUNDATION JEAN M. SCHULER NIKE THE ARMSTRONG FAMILY ANDREW T. SHEEHAN MIKE AND CAROL SHERWIN AMERICAN CENTURY INVESTMENTS TENCH COXE AND SIMONE OTUS-COXE MRS. JANE FRAZIER JEFF AND BONITA GARVEY STEVE HICKS AND DONNA STOCKTON-HICKS JAMES C. KENNEDY KRAMER FOUNDATION BRAD A. SILVERBERG ANGELA AND MORTON TOPFER E. LEE WALKER AND JENNIFER VICKERS THOMAS WEISEL WINDFALL FOUNDATION LAURA AND CASEY WASSERMAN ANONYMOUS AMD ELIZABETH AND BLAINE ROLLINS LANCE ARMSTRONG GENENTECH O’REILLY FAMILY FOUNDATION RADIOSHACK EVE AND ELLIS SHORT MOVEMBER OAKLEY 24 HOURS OF BOOTY SANDRA AND JOE ARAGONA SCOTT AND KATIE SCHOFIELD ENCH COXE AND SIMONE OTUS-COXE DEMAND MEDIA BONITA AND JEFF GARVEY TREK CAROL AND MIKE SHERWIN 4 YELLOW FOUNDATION NAV SOOCH 7 | FINANCIALS, DONORS AND BOARD FOUNDER’S CIRCLE JOHNSON HEALTH TECH 45 2012 A NNUA L REPORT The President’s Circle is a unique giving CANDICE AND BRENT AARON FITZGIBBON FAMILY FUND THE KELLY BROTHERS JEFF AND JERI MULDER KOZO SHIMANO HOUSEHOLD society that capitalizes on the Foundation’s APRIL, JEREMY AND JAKE ANDERSON WILL AND LAURENS FLANAGAN JERRY AND ANGIE KELLEY DR. CRAIG AND ELLEN NICHOLS ALEXANDER AND IRENE SHOGHI mission-focused opportunities. Members of JUDD APATOW AND LESLIE MANN MARIA AND SANDY FLESCHMAN BOB KIESENDAHL CHARLIE AND MARY BETH O’REILLY SILVER OAK CELLARS/TWOMEY CELLARS the President’s Circle give unrestricted “venture THE ARMSTRONG FAMILY AMY AND JERRY FROSTICK BART AND BARBARA KNAGGS BETTY OTTER-NICKERSON LYDIA AND MICHAEL SLABY funds” which will be targeted at opportunities RICHARD C. BARKER THE GAROFALO FAMILY JOSIE E. KNIGHT KATIE AND KYLE OUDT SPAW FAMILY FOUNDATION where other funding is not always readily avail- MARLA BOMMARITO-CROUCH MICHAEL GOLDBERG SUSAN AND MARK KOLMAN AMBER AND TONY PAQUETTE THE STAPLETON FAMILY able. Unrestricted gifts, which may be used at the DOUG AND MARY BOWDEN GOOCH FAMILY LAURA AND STUART LITWIN BILL PASSEY SURVIVOR SUMMIT 2012 discretion of the president, are especially JEFF CASTELAZ AND JO ANN THRAIKILL LAURA AND MORRIS GOTTESMAN KIMI LOTZ AND LISA GOYNE MONA PATEL effective in helping to promote our mission DENNIS AND CHRIS CAVNER CINDY AND BILL GRAF SPENCER AND SUSAN LUEDERS RISE ABOVE IT (RAI) PETER TAPSCOTT AND PATT BAENEN-TAPSCOTT and position the LIVESTRONG Foundation WENDY CHIOJI THE GRIFFETH FAMILY ALEXANDRA AND ROBBIE ROBINETTE ANTHONY S. TORTORELLI as a global leader in the fight against cancer. PATRICK CONNELL BOB, KIM, SHAYNA, AND JOSH HAMMER REBECCA L. AND JOHN F. LUMANN III BRUCE LUTZ THE TRONSTEIN FAMILY TIFFANY CRAVEN THE HAYES-LATTIN FAMILY THE MALLOY FAMILY JOE C. ROSS DR. AND MRS. COREY ROTHROCK DOUG ULMAN CHRISOPHER SACCA UROLOGY AUSTIN BOB AND CATHIE SALIPANTE SUZANNE AND MARC WINKELMAN STEPHEN SAUNDERS STEVEN AND HEATHER WOLF SCOTT AND KATIE SCHOFIELD JACK AND CARI WOOD THE SEACH FAMILY JULIAN YAP CHRIS AND CARA DODSON SCOTT HENDLER AND LULU FLORES SCOTT AND JENNIFER DONALDSON PHILIPPE G. HILLS AND DAVID W. HANSON THE DONZIGER FAMILY LYDIA HUNTER-REAY RYAN DUNGEY TOM AND ELIZABETH KAPLAN JAMES W. AND RICHELLE FATHEREE KAWAJA/HOLCOMBE FAMILY FUND DRS. MARCY AND PETER MANN FAMILY MARK AND ANNIE MCKINNON MILEPOINT ANDY MILLER AND BRIAN STEPHENS ADAM AND CAMILLE MOORE 7 | FINANCIALS, DONORS AND BOARD 46 PRESIDENT’S CIRCLE 47 2012 A NNUA L REPORT OFFICERS BOARD MEMBERS CHAIRMAN AND FOUNDING CHAIR CANDICE AARON,* CHICAGO, IL JEFFERY C. GARVEY, AUSTIN, TX VICE CHAIR MICHAEL SHERWIN, CLEVELAND, OH SECRETARY 48 BLAINE P. ROLLINS, DENVER, CO TREASURER AMELIE G. RAMIREZ, DR. P.H., SAN ANTONIO, TX EXECUTIVE COMMITTEE MEMBERS JOSEPH C. ARAGONA, AUSTIN, TX DAVID JOHNSON, M.D., DALLAS, TX J. DENNIS CAVNER, AUSTIN, TX 7 | FINANCIALS, DONORS AND BOARD LIVESTRONG FOUNDATION BOARD OF DIRECTORS JULIAN DAY, FORT WORTH, TX HAROLD P. FREEMAN, M.D., NEW YORK, NY SANJAY GUPTA, M.D., ATLANTA, GA MARK MCKINNON, AUSTIN, TX CRAIG NICHOLS, M.D., PORTLAND, OR JEREMIAH ROBINS,* SAN DIEGO, CA & SHANGHAI, CHINA MITCHELL STOLLER, WASHINGTON, DC E. LEE WALKER, AUSTIN, TX * Elected December 2012 49 2012 A NNUA L REPORT 8 FOR IN 2012” 4/4 STAR RATING FROM CHARITY NAVIGATOR INVITED TO PARTICIPATE IN THE CRITICAL POLICY DISCUSSIONS OF THE INSTITUTE OF MEDICINE’S NATIONAL CANCER POLICY FORUM NATIONAL HEALTH INFORMATION AWARDS—GOLD AWARD HONORING THE NATION’S BEST CONSUMER HEALTH PROGRAMS AND MATERIALS WEB HEALTH AWARDS—SILVER AWARD HONORING THE BEST DIGITAL HEALTH RESOURCES PUBLIC RELATIONS SOCIETY OF AMERICA PR PROFESSIONAL OF THE YEAR* NOMINATED FOR PUBLIC RELATIONS SOCIETY OF AMERICA SILVER ANVIL AWARD* FINALIST FOR URBAN LAND INSTITUTE GLOBAL AWARDS FOR EXCELLENCE * Awarded in 2013 for work completed in 2012 At the LIVESTRONG Foundation, our mission is to inspire and empower 2013 and beyond are no different. Over the course of the next three years, we people affected by cancer today. We do this by striving to fundamentally will focus on the following priorities: change the expectations and experience of living with cancer. As an organization, we don’t believe in doing things the way they’ve always been done. 9 We approach our mission from more than one angle: we develop and deploy ENSURE ANYONE AFFECTED BY CANCER HAS ACCESS TO programs that provide direct service to those who need it while advocating PATIENT-CENTERED NAVIGATION SERVICES 9 | #STILLSTRONG IN 2013 50 AWARDS AND ACCOLADES ONE OF THE NONPROFIT TIMES’ “50 BEST NONPROFITS TO WORK at the global, federal and state levels for legislation that will improve the lives of cancer survivors. ELEVATE THE PATIENT’S VOICE TO FUNDAMENTALLY CHANGE THE WAY CANCER IS EXPERIENCED AND UNDERSTOOD ENGAGE COMMUNITIES TO COLLABORATIVELY AND COMPREHENSIVELY IMPLEMENT PATIENT-CENTERED APPROACHES THAT POSITIVELY IMPACT PEOPLE AFFECTED BY CANCER #STILLSTRONG IN 2013 CREATE THE FOREMOST BRAND ASSOCIATION WITH LIVING LIFE TO THE FULLEST IN THE FACE OF CANCER 51 2012 A NNUA L REPORT Thank you so much for taking the time to learn about the Foundation’s Y O U R F R I E N D S AT T H E progress and our continued focus on our mission to help those affected L I V E S T R O N G F O U N D AT I O N by cancer today. Your partnership, investment and support inspire us 9 | #STILLSTRONG IN 2013 THANK YOU and allow us to change the world as a community. We look forward to updating you regularly on our accomplishments which simply would not be possible without you. Mission. Above all else. 52 53 2012 A NNUA L REPORT MIKE AMANN Mike Amann led the design of the Annual Report you’re reading right now. And he screen printed the cover, with its layers of meaning. Mike is not just a graphic designer but also a new father, a husband, a son, a brother, a friend, a warrior and an inspiration. Mike is fighting a vicious neuroendocrine cancer right now and was doing so throughout the entire design process of this book. Chemo on Mondays, hospital visits far 54 too often, surgeries scheduled for after this book is printed. Didn’t matter. He showed up to his studio in Covington, Kentucky, every day he could, with Juno the Doberman by his side. His passion for telling LIVESTRONG stories through his art rose to the top. His craftsmanship outdueled cancer every day of the week. And his drive doesn’t stop there, as Mike will be taking on his cancer with a breakthrough surgical approach that will help educate the cancer medical community for the future. This is Mike Amann. And this is what LIVESTRONG is all about.