Putting the Pieces Together: A Resource Guide for a Series of Workshops on Autism Amanda Sanderson-McBride Professional Project Approval Signature Page We recommend that the professional project by Amanda McBride prepared under our supervision be accepted in partial fulfillment of the requirements for the degree of MASTER of ARTS in TEACHING Tanya Caron, Ph.D., Professional Project Advisor Committee Member Committee Member July 2013 Table of Contents Introduction What Research Shows Parents Need Abstract Note to Teachers 5-7 8-9 10 11 How to Use This Handbook 12 Glossary of Terms 13-16 PECS/What is PECS 17-23 Lesson Plans and Activities 24 Toileting Bathing/Showering Dental Care Medication Management Shopping Cooking 1. Cooking Vocabulary Words 2. Recipe Review 25-28 29-32 33-36 37-41 42-45 46-50 51-52 53 Standards Matrix 54 Strategies for Success 55-57 References 58-59 Appendices Index Community Resources Print Resources Electronic Resources Reproducible Activities Index Reproducible Activities Annotated Bibliography 60 61-64 65-71 72-74 75 76-89 90-121 Introduction 5 The increasing number of Autism Spectrum Disorder (ASD) students within the United States’ school population continues to rise and present challenges to teachers and caregivers. Researchers show that available community resources are abundantly undiscovered and unused. Caregivers of children with ASD often experience difficulty accessing support services and reported a lack of collaboration between agencies working with their child, a lack of information about services and community resources, and a lack of continuity between supports (Haney, 2012). The Council for Exceptional Children (2013) stated that one in every 88 children have Autism Spectrum Disorder (ASD). Autism spectrum disorder or ASD is a disorder of neural development characterized by impaired social interaction and communication, emotional detachment, and repetitive behaviors. Children with ASD are likely not to form normal social relationships. Key characteristics of ASD may include a lack of eye contact, a lack of verbal communication, the inability to comprehend social cues or repetitive fixated behaviors as well as severe tantrums; all of which I have observed in my professional experience As an experienced special education teacher of students with ASD, I have often been asked by caregivers for contact information on local community resources and how to either toilet train their child or take them shopping at a grocery store. This guide for a series of workshops is intended to assist teachers and caregivers of children with ASD with activities that promote self advocacy and academic supports such as transitional choices. 6 Lesson plans for group and individual activities, as well as the use of a portfolio that will contain homework assignments are included. The portfolio assignments are directed towards the child with ASD and their caregiver, and will allow for future insight on personal growth. The caregivers that attend the series of workshops will also gain insight on strategies such as programs that are geared towards children with ASD that will assist them in ensuring their child’s educational strides are met. 7 What Research Shows Parents Need: As the number of children with autism spectrum disorder continues to increase in the United States, so does the necessity for resources for their families. Caregivers and families involved with the extraordinary caretaking demands of a developmentally delayed child are at risk for added stress, social isolation, and reduced feelings of a family unit (Slater & Wikler, 2001). Researchers shows that “Parents of children with autism and families may need help with assessing their situations, reaching out for help in their communities, and using appropriate coping strategies to decrease excessive stress (Hall, 2011). Knowledge of community resources and local support systems can provide caregivers and teachers with current tools to assist students with ASD. Caregivers often rely on their child’s Special Education teacher for information about educational supports within the community, the majority of the caregivers stated that their child’s teacher knew little about availability of outside resources (Haney, 2012).Modifications can be examined and implemented within the school setting as well as the recognition of individual techniques crucial to students and their caregivers gaining success. Collaboration between school staff and outside resources can provide improvements for support systems. Researchers indicated that regular participation in support systems led to more socialization for the child and their families within the community (Truesdale, McConkey, Ferguson, & Roberts, 2006). Researchers further indicated that caregivers that attended support systems and were content with the support received had better coping skills than those caregivers who had little or no support systems set in place (Clifford & Minnes, 2013). Community resources and support systems put in place for 8 children with ASD, their caregivers and families lead to healthier and happier functioning for all involved. Accurate up to date community resources and support systems being put in place are imperative for children with ASD and their families. However, not all support systems are deemed effective. It is imperative that children with ASD and their caregivers determine what models are more effective for their individual needs. 9 Abstract McBride, A. (2013). Putting the pieces together: A resource guide for a series of workshops on autism. (Unpublished master’s professional project). Sierra Nevada College, Incline Village, Nevada. The Council for Exceptional Children (2013) stated that one in every 88 children have Autism Spectrum Disorder (ASD). Researchers indicate that caregivers of children with autism have a high risk of stress, as well as little knowledge of community resources. I created this series of workshops and handbook to ensure that caregivers of children with ASD receive accurate community resources to help alleviate stress. This handbook provides lesson plans that caregivers can use with step by step picture schedules and checklists, as well as a list of community resources, websites and books. The handbook also provides a glimpse of the STAR program designed specifically for children with ASD. All of the elements included target strategies for success and techniques for teaching self advocacy. 10 Note to Teachers Educators strive to meet all of our students’ educational needs. Unfortunately, educators are faced with many difficult challenges when it comes to ensuring proper differentiated instructional strategies. After working closely with fellow colleagues and parents of children with Autism Spectrum Disorder (ASD), I deemed it necessary to provide research on necessary means of support systems within local communities. I designed this guide for workshops to provide both teachers and caregivers of children with ASD with the proper educational strategies and available community resources. I believe that discovering the current local community resources allows everyone involved to live a healthier and happier life both at school and at home. Also, in the Special Education field there is a lot of terminology that sometimes tends to get confusing. The glossary of terms is included to help those of you who may not be familiar with some terminology used throughout this handbook. I hope that teachers and caregivers find this guide useful in educating/rearing a child with ASD. Sincerely and Best Wishes, Amanda McBride 11 How to Use This Handbook A big part of working closely with autistic children is learning strategies that are suitable for each and every one of them. However, the picture exchange communication system (PECS) is a no fail strategy for all autistic students. I have included a PECS handout with each lesson in this handbook, as well as examples of many others that can be used at your discretion. PECS allows the child to know the appropriate steps of simple tasks such as brushing teeth or using the restroom and sets forth expectations. The table of contents will help you discover different strategies such as PECS, strategies for success, different types of resources such as community, print and/or electronic, and several lessons for everyday use. If you are unsure of terminology used throughout, simply refer to the glossary of terms section. The following is included in every lesson for everyday use: Objectives Materials Procedures Independent Practice Activities Strategies for Success Common Core Standards PECS schedules/checklists Autistic children have so much to offer so I invite you to enjoy and use this handbook for what serves you and your family or students. Provide an autistic child an outlet through one of the many different strategies. 12 Glossary Of Terms 13 ACCOMMODATIONS: Techniques and materials that allow individuals with LD to complete school or work tasks with greater ease and effectiveness. Examples include spellcheckers, tape recorders, and expanded time for completing assignments. ASSISTIVE TECHNOLOGY: Equipment that enhances the ability of students and employees to be more efficient and successful. For individuals with LD, computer grammar checkers, an overhead projector used by a teacher, or the audio/visual information delivered through a CDROM would be typical examples. BRAIN INJURY: The physical damage to brain tissue or structure that occurs before, during, or after birth that is verified by EEG, MRI, CAT, or a similar examination, rather than by observation of performance. When caused by an accident, the damage may be called Traumatic Brain Injury (TBI). COLLABORATION: A program model in which the LD teacher demonstrates for or team teaches with the general classroom teacher to help a student with LD be successful in a regular classroom. DIRECT INSTRUCTION: An instructional approach to academic subjects that emphasizes the use of carefully sequenced steps that include demonstration, modeling, guided practice, and independent application. DYSNOMIA: A marked difficulty in remembering names or recalling words needed for oral or written language. DYSPRAXIA: A severe difficulty in performing drawing, writing, buttoning, and other tasks requiring fine motor skill, or in sequencing the necessary movements. LEARNED HELPLESSNESS: A tendency to be a passive learner who depends on others for decisions and guidance. In individuals with LD, continued struggle and failure can heighten this lack of self-confidence. LEARNING MODALITIES: Approaches to assessment or instruction stressing the auditory, visual, or tactile avenues for learning that are dependent upon the individual. LEARNING STRATEGY APPROACHES: Instructional approaches that focus on efficient ways to learn, rather than on curriculum. LEARNING STYLES: Approaches to assessment or instruction emphasizing the variations in temperament, attitude, and preferred manner of tackling a task. Typically considered are styles along the active/passive, reflective/impulsive, or verbal/spatial dimensions. 14 LOCUS OF CONTROL: The tendency to attribute success and difficulties either to internal factors such as effort or to external factors such as chance. Individuals with learning disabilities tend to blame failure on themselves and achievement on luck, leading to frustration and passivity. METACOGNITIVE LEARNING: Instructional approaches emphasizing awareness of the cognitive processes that facilitate one's own learning and its application to academic and work assignments. Typical metacognitive techniques include systematic rehearsal of steps or conscious selection among strategies for completing a task. MULTISENSORY LEARNING: An instructional approach that combines auditory, visual, and tactile elements into a learning task. Tracing sandpaper numbers while saying a number fact aloud would be a multisensory learning activity. NEUROPSYCHOLOGICAL EXAMINATION: A series of tasks that allow observation of performance that is presumed to be related to the intactness of brain function. PERCEPTUAL HANDICAP: Difficulty in accurately processing, organizing, and discriminating among visual, auditory, or tactile information. A person with a perceptual handicap may say that "cap/cup" sound the same or that "b" and "d" look the same. However, glasses or hearing aids do not necessarily indicate a perceptual handicap. PICTURE SCHEDULE: pictures displaying what will happen in a sequence from first to last. PREREFERRAL PROCESS: Procedures in which special and regular teachers develop trial strategies to help a student showing difficulty in learning remain in the regular classroom. RESOURCE PROGRAM: A program model in which a student with LD is in a regular classroom for most of each day, but also receives regularly scheduled individual services in a specialized LD resource classroom. SELF-ADVOCACY: The development of specific skills and understandings that enable children and adults to explain their specific learning disabilities to others and cope positively with the attitudes of peers, parents, teachers, and employers. SPECIFIC LANGUAGE DISABILITY (SLD): A severe difficulty in some aspect of listening, speaking, reading, writing, or spelling, while skills in the other areas are age-appropriate. SPECIFIC LEARNING DISABILITY (SLD): The official term used in federal legislation to refer to difficulty in certain areas of learning, rather than in all areas of learning. 15 SUBTYPE RESEARCH: A recently developed research method that seeks to identify characteristics that are common to specific groups within the larger population of individuals identified as having learning disabilities. TRANSITION: Commonly used to refer to the change from secondary school to postsecondary programs, work, and independent living typical of young adults. 16 PECS (Picture Exchange Communication System) 17 What is PECS (Picture Exchange Communication System)… The following is adapted from: http://www.pecsusa.com/pecs.php According to Andrew S. Bondy, PECS was developed in 1985 as a unique augmentative/alternative communication intervention package for individuals with autism spectrum disorder and related developmental disabilities. PECS does not require complex or expensive materials. It was created with families, educators, and resident care providers in mind, so is readily used in a range of settings. PECS begins by teaching an individual to give a picture of a desired item to a “communicative partner", who immediately honors the exchange as a request. The system goes on to teach discrimination of pictures and how to put them together in sentences. In the more advanced phases, individuals are taught to answer questions and to comment. There are six phases when teaching and learning the PECS program. They are: 1. PHASE I: How to Communicate; Students learn to exchange single pictures for items or activities they really want. 2. PHASE II: Distance and Persistence; Still using single pictures, students learn to generalize this new skill by using it in different places, with different people and across distances. They are also taught to be more persistent communicators. 3. PHASE III: Picture Discrimination; Students learn to select from two or more pictures to ask for their favorite things. These are placed in a communication book—a ring binder with Velcro® strips where pictures are stored and easily removed for communication. 18 4. PHASE IV: Sentence Structure; Students learn to construct simple sentences on a detachable sentence strip using an “I want” picture followed by a picture of the item being requested. 5. PHASE V: Answering Questions; Students learn to use PECS to answer the question, “What do you want?”. 6. PHASE VI: Commenting; Now students are taught to comment in response to questions such as, “What do you see?”, “What do you hear?” and “What is it?”. They learn to make up sentences starting with “I see”, “I hear”, “I feel”, “It is a”, etc. 19 These are a few examples of how a picture schedule could be posted and used: 20 Bus Ride Greeting 21 There are numerous types of PECS: As you can see there are PECS for almost anything ranging from body parts to feelings. You can find just about anything for PECS. More examples can also be found behind every lesson plan/activity in this guide book. 22 PECS examples continued… 23 Lesson Plans and Activities 24 Lesson Plans Topic: •Toileting Purpose: •Proper toileting procedures and participation 1. 2. 3. Daily Living Skills: Toileting Materials: •Picture schedule of proper toileting techniques •Toilet paper/wipes •Gloves •Sink •Soap •Weekly Chart Procedure: Show parents the picture schedule that should be posted in the bathroom and have them encourage their child to view it: • Enter the stall & close the door • Pull pants and underwear down • Sit on the toilet • Use the “restroom” (urination and/or void) • Wipe • Flush • Pull up underwear and then pants • Wash hands with soap • Exit the restroom Discuss with parents and children in attendance each step above and the importance of all steps in order. Explain the importance of parents giving all children regular bathroom breaks. 25 Lesson Plans continued… Independent Practice: •Send a copy of the picture schedule home with parents and/or child. •Have parents or children journal child’s independent toilet usage and steps completed on provided chart. Strategies for Success: •Praise and encouragement for every step child follows and completes correctly. •Allow for extra time during toileting procedure. •Have a reward or token system set in place. Standards: SL.K.5 SL.5.5 CCRA.SL.2 26 Bathroom Use Enter Restroom Pull Pants Down Pants up &Zip Wash Hands Sit and Go Dry Hands Wipe Flush Exit Restroom 27 Bathroom Usage Chart Enter Restroom Pull Pants Down Pants up &Zip Sit and Go Wash Hands Wipe Dry Hands Flush Exit Restroom 28 Lesson Plans Daily Living Skills Bathing/Showering Topic: Proper techniques fro bathing/showering Purpose: •Understanding key body parts to wash •Understanding the importance of cleanliness •Understanding the difference between soap and shampoo Materials: •Picture Schedule of bathing/showering •Dolls •Sink •Shampoo •Soap •Wash Clothes •Towels •Checklist Chart Procedure: 1. Discuss with parents the importance of bathing/showering and the importance of cleanliness. 2. Discuss and identify the key body parts to wash. 3. Model the proper techniques of washing the body with the doll for children in attendance. 29 Lesson Plans Continued… Independent Practice: •Give a picture schedule copy to each parent . Allow the child to view the picture schedule for the proper steps. •Have each child document daily bathing/showering steps on the provided weekly chart. Strategies for Success: Allow the child to discuss how they feel about being clean. Use encouragement and praise. Keep the lesson simple, short and fun. Have a reward or token system set in place. Standards: SL.K.5 SL.5.5 CCRA.SL.2 30 Bathing/Showering Turn water on Get in water Turn water off Shampoo hair Exit &Dry off Soap up body Rinse body off Get dressed 31 Bathing/Showering Chart Turn water on Get in water Turn water off Shampoo hair Exit &Dry off Soap up body Rinse body off Get dressed 32 Lesson Plans Topic & Skill Outcome: •Hygiene •Proper dental techniques Purpose of Lesson: •Familiarize children with proper oral care and dental techniques Daily Living Skills Dental Care Materials: •Dental care video found at: www.mykidsdentistonline.com •Toothbrush •Toothpaste •Dental floss •Mirror •Weekly Chart •Picture Schedule Procedure: 1. Show the video to the parents and other members attending the workshop. Parents and audience members will watch the Dental/Oral care video listed in the materials section. 2. Parents discuss the dental care and flossing observed in the video with the other members of the audience and carry over to home with their child. • Have parents discuss amongst themselves some of the trials they have experienced involving their child’s dental care. • What techniques are successful or unsuccessful? 3. Parents discuss the importance of dental & oral care. Ask the child why it is important that we take care of our mouths. 4. Show children provided picture schedule. 33 Lesson Plans Continued… Independent Practice: •With parental assistance, have child floss and brush their teeth while looking in the mirror. •Have parents assist their child in reporting and documenting their dental care each day on the provided weekly chart. Strategies for Success: •Make it fun to participate in. •Reward and praise positive participation. •Build this lesson into the child’s daily routines and layout expectations allowing extra time for slower children. •Have a reward or token system set in place. Standards: SL.K.5 SL.5.5 CCRA.SL.2 34 Brushing Teeth Pick up Toothbrush Spit Put toothpaste on toothbrush Into Sink Brush Teeth Rinse Mouth Dry face off 35 Adapted from Teachers Friend Publications 36 Lesson Plans Topic: Medication Management Purpose: Safely using medications 1. 2. Daily Living Skills Medication Management Materials: •Medication Summary Sheet •Pencil/Pen Procedure: Keep a medication summary • Write down all medications being used including all over the counter medications (i.e., Tylenol or Claritin). • Write down all dosages used. • Write down how all medications should be used and for what they are being used for (i.e., should they be taken with/without food). • If at all possible, fill all of your prescriptions at one pharmacy allowing the Pharmacist to check for any drug interactions. Tips for safe medication use: • Use and carry a medication summary sheet with you at all times. • Try and record side effects if at all possible. • Take/Give medications as prescribed (never more, never less). • Keep all medications including over the counter medications in a safe place out of sight and out of reach of children. • Understand how to prevent over dosage and drug interactions. 37 Lesson Plan: Procedures Continued… 3. Ask the doctor the following: • Is the generic form of a medication ok to take? • When and how should the medication be taken? • Is the medication ok taken with other medications? • What are the known common side effects? • How long is acceptable to use this medication? • When should I notice a difference from this medication? 4. What teachers/parents should expect from students taking medications: • Know which children are taking which medications. • Know how the side effects affect each individual child. 1. Is the child drowsy? 2. Does the child have excessive hunger or thirst? 3. Does the child’s behavior change at certain times of the day? 4. Has the child gained weight? 5. Has the child’s behavior become more aggressive? 38 Lesson Plans Continued… • • Independent Practice: Teachers: Contact your school’s administrator and be sure to receive written guidelines that your school follows for handling and distributing medications. Keep them on file at all times. Make sure to find out who will be giving the medications (if at all during school hours)? Parents: Contact the teacher and school nurse to ensure that all involved in your child’s life have up to date information on current medication usage, as well as Physician’s authorizations. Contact the school secretary to ensure that he/she has up to date parent and emergency contact information in case of emergencies during school hours. Does your child’s school have authorization forms for emergency personal to do their job? Strategies for Success: •Praise and use encouragement •Have a reward or token system set in place. Standards: SL.K.5 SL.5.5 CCRA.SL.2 SL.1 W.K.2 39 Adapted from: http://www.medicalhomeinfo.org/downloads/pdfs/Medication_Summary_Sheet-IL-ICRE.pdf Lesson Plans Daily Living Skills: Shopping List Topic: •Shopping •Organizing Lists Purpose: •Efficient grocery shopping using a list previously made •Knowledge of ingredients already purchased Materials: •Paper •Pencils/Pens •Recipe Card •Picture schedule Procedure: 1. Have parent choose a recipe card. 2. Model proper techniques on how to take inventory of already purchased ingredients. 3. Model how to create a list for necessary ingredients to purchase at the store. 4. Include parents in a role-play in which they are shopping with a recipe to ensure understanding of list making techniques. 42 Lesson Plans Continued… Independent Practice: •Send a recipe card home and have the child create a shopping list. •Have the parents and/or child bring in chosen recipe card and the list made. Strategies for Success: •Use a picture schedule •Keep the shopping lists short, simple and fun, as well as the recipes to choose from. •Give encouragement •Have a reward or token system set in place Standards: SL.K.5 SL.5.5 CCRA.SL.2 W.K.2 SL.1 43 Adapted fromwww.n2y.com Adapted fromwww.n2y.com Lesson Plans Topic: Cooking Purpose: •Learning to cook using a recipe •Measuring ingredients •Using an oven Daily Living Skills Cooking: Materials: •Ingredients for a given recipe •Measuring utensils •Recipe Card •Pot holder •Pan •Oven •Picture Schedule •Pretzel Smores recipe •Ingredient Pictures •Question worksheet Procedure: 1. Share and discuss (with parents) the provided picture schedule. 2. Model how to choose a short and simple recipe card. 3. Discuss how to identify ingredients and necessary over temperatures. 4. Model techniques on oven settings safely. 5. Model how to gather proper ingredients 6. Model accurate measurements and discuss the importance of then allowing children to measure the ingredients with proper techniques. 7. Model mixing the ingredients and discuss the importance of allowing the children to mix the ingredients. 8. Model proper techniques on placing combined ingredients into a pan and baking safely. 46 Independent Practice: •Give parents a recipe and ingredient picture for Pretzel smores and have them share and discuss it with their child. •Give parents and children a cooking picture schedule to discuss and follow. •With parental assistance, have the child make the recipe and document on the question worksheet provided. Strategies for Success: •Use hand over hand modeling when completing a cooking lesson. •Allow for mistakes and mishaps without frustration. •Use a picture schedule for cooking. •Keep the lesson simple, short and fun. •Have a reward or token system set in place. Standards: SL.K.5 SL.5.5 W.K.2 CCRA.SL.2 3MD.A.2 47 Cooking Choose Recipe & Gather Ingredients Measure Bake/Boil/Cook Take food out Stir or Mix Eat 48 Cooking Check List Choose Recipe & Gather Ingredients Bake/Boil/Cook Measure Take food out Stir or Mix Eat 49 Pretzel Smores Recipe 50 Adapted from www.n2y.com 51 Adapted from www.n2y.com 52 Pretzel Smores Adapted from www.n2yom Standards Lesson1: Toileting Lesson 2: Bathing Lesson 3: Dental Care W.K.2 Lesson 4: Medication Management Lesson 5: Shopping Lesson 6: Cooking √ √ √ SL.K.5 √ √ √ √ √ √ SL.5.5 √ √ √ √ √ √ CCRA.SL.2 √ √ √ √ √ √ √ 3MD.A.2 SL.1 √ √ 54 Strategies for Success 55 Strategies for Success: 1. Create a calm and warm environment that is not over stimulating. 2. Create a structured environment that relies on routines and visual cues. 3. When an autistic child is given choices, he or she can become overwhelmed. Give the child limited choices and say, “Pick one.” 4. Always maintain a calm disposition and remain quiet limiting outside noises. 5. Always limit physical contact with an autistic child. When they are ready and willing, they will come to you. 6. Allow autistic children to pace even during work times. They work at their own pace and when forced to pick up the pace they typically will withdraw from the current activity. 7. Give opportunities for social interactions with fellow children. 8. Use picture scheduling for all activities allowing the child to be aware of expectations. 9. Set in place areas that are strictly for the autistic child so he or she has a safe haven to regroup their thoughts and disposition. 10. Use assistive technology when needed for education and communication purposes. 11. Have an intervention plan set in place in the event of tantrums and follow through with it every time a tantrum occurs. 12. Use sensory integration for a relaxing effect. 13. Remain consistent in all that the child does. Follow through with all instructions and expectations set in place. 14. Know what the child’s interests are and build on that. 56 15. Maintain open and positive relationships with all involved in the child’s life. For example, keep the communication open between you and the child’s teacher and/or physician. 16. Know your local community resources. 57 References 58 References Illinois Center for Rehabilitation and Education. (2006). Medication Summary Sheet. Retrieved June 15, 2013, from http://www.medicalhomeinfo.org Lockerson, J. (1992). Learning Disabilities: Glossary of terms. ERIC Digest, #E517. Retrieved from http://www.teachervision.fen.com/learning-disabilities/vocabulary/5332.html News for Special Learners. (2013). Recipe Names. Retrieved June 18, 2013, from http://www.n2y.com/news2you/ PECS-USA. (2013). What is PECS: Picture Exchange Communication Systems. Retrieved June 27, 2013, from http://www.pecsusa.com/pecs.php Teachers Friend Publication. (2013). My Tooth Brushing Chart. Retrieved June 27, 2013, from http://www.smilesandgigglesdentistry.com/fun 59 Appendices Appendix A: Community Resources 61 Appendix B: Print Resources 65 Appendix C: Electronic Resources 72 Appendix D: Reproducible Index 75 Appendix E: Annotated Bibliography 90 60 Northern Nevada Area Community Resources: Resource Creative Possibilities Services Provided: Contact Information: Medical Equipment/Supplies Reno, NV Special Needs & Mental Health Services (775)-424-2888 Able Abilities Group Developmentally Disabled and Reno, NV Special Needs (775)-972-9191 Services/Products Choices For All Developmentally Disabled and Reno, NV Special Needs (775)-324-2322 Services/Products; Job Training Chrysalis Developmentally Disabled and Reno, NV Special Needs (775)-322-6060 Services/Products *Social Services Organization Project Uplift Developmentally Disabled and Reno, NV Special Needs (775)-800-1122 Or Services/Products (775)-737-4225 Advanced Child Behavior Solutions Developmentally Disabled and Reno, NV Special Needs 61 Noble Horizon of NV. Developmentally Disabled and Special Needs Services/Products Sparks, NV Applied Behavior Technologies Developmentally Disabled and Special Needs Services/Products Sparks, NV Ormsby Arc Medical Equipment/Supplies Carson City, NV (775)-358-8290 (775)-354-1620 (775)-882-8520 Educare Carson Medical Equipment/Supplies Carson City, NV (775)-884-2337 Or (775)-882-6955 Eagle Valley Children’s Home Medical Equipment/Supplies Carson City, NV Developmentally Disabled and Special Needs Services/Products (775)-882-1188 Guy Yeaman Professional Dog Training/Therapy Dog traingin/therapy Garnerville, NV Teaching Autistic Children INC. Special Needs Educational Services Grass Valley, CA Nevada Equine Assisted Therapy (N.E.A.T) Equestrian Therapy Reno, NV The Note-Ables Medical Equipment/Supplies (775)-265-4530 (530)-272-1594 (775)-473-5548 Reno, NV (775)-324-5521 Hope Healthcare Services Developmentally Disabled and Reno, NV Special Needs (775)-333-5222 Services/Products 62 Easter Seals of NV. Early Intervention, Occupational Therapy, Speech Therapy, Physical Therapy, and Providers Reno, NV ABA, Therapy Services, Discrete Trial Services, Academic and Behavioral Assessments, and Verbal behavior assistance Carson City, NV Nevada Office of Disability Services Disability Advocacy and Support Organization Carson City, NV. Nevada Assistive Technology Collaborative Support Services Carson City, NV State Education Agency Rural Representative Support Services Nevada Bureau of Early Intervention Services Early Intervention Center for Advanced Learning (775)-322-6555 (775)-841-5000 (775-687-4452 (775)-687-4452 Carson City, NV (775)-687-5162 Reno, NV (775)-688-1341 Carson City, NV (775)-987-0101 Family Health Services Family Counseling Carson City, NV (775)-684-4285 Nevada Department of Health Services Support Services Sierra Regional Center Supported living, Jobs/day Training, Respite Care, Family Preservation, & Clinical Services Carson City, NV (775)-684-4400 Sparks, NV (775)-688-1930 63 Crisis Line 24 hours, 7 days, 365 days assistance 1-800-273-8255 Notes 64 Print Resources Wrightslaw: Special Education Law Author: Peter W.D. Wright & Pamela Darr Wright 50 Ways to Support Your Child’s Special Education Author: Terri Mauro Raising Sebastien Author: Choo Kah Ying Too Loud Too Bright Too Fast Too Tight Author: Sharon Heller 65 Print Resources A Treasure Chest of Behavioral Strategies for Individuals with Autism Author: Beth Fouse, Ph.D. & Maria Wheeler, M.Ed Thinking in Pictures: My Life with Autism Author: Temple Grandin The Social Success Workbook for Teens Author: Barbara Cooper, MPS & Nancy Widdows, MS Preparing for Life: Author: Dr. Jed Baker 66 Print Resources Adolescents on the Autism Spectrum Author: Chantal Sicile-Kira The Best Book on Raising Autistic Children Author: Colleen Moore Autism- A practical Guide for Parents and Teachers Author: Prithvi Perepa 1001 Great Ideas for Teaching & Raising Children with Autism or Asperger’s Author: Ellen Notbohm & Veronica Zysk 67 Print Resources Ten Things Every child with Autism Wish You Knew Author: Ellen Notbohm Chicken Soup for the Soul: Raising Kids on the Spectrum Author: Dr. Rebecca Landa, Mary Beth Marsden, Nancy Burrows & Amy Newmark 101 Games and Activities for Children with Autism Spectrum Disorder and Sensory Disorders Author; Tara Delaney, MS, O.T.R Engaging Autism Author; Stanley I. Greenspan & Serena Wieder 68 Print Resources Changing the Course of Autism Author: Bryan Jepson, M.D. Teaching Social Communication to Children with Autism Author: Brooke Ingersoll & Anna Dvortcsak Ready, Set, Potty! Author: Brenda Batts Keys to Presenting the Child with Autism Author: Marlene Targ Brill 69 Print Resources Steps to Independence Author: Bruce L. Baker & Alan J. Brightman Raising a Child with Autism Author: Shira Richman What You Can Do Right Now to Help Your Child with Autism Author: Jonathan Levy ADHD & Autism Cookbook Author: Pamela J. Compart & Dana Laake 70 Print Resources Louder than Words Author: Jenny McCarthy Carly’s Voice Author: Carly Fleischman & Arthur Fleischman Autism Encyclopedia Author: Janice Janzen & Amanda Boutot Autism Spectrum Disorders: Foundations, Characteristics, and Effective Strategies Author: Amanda Boutot & Brenda Smith Myles 71 Electronic Resources http://starautismsupport.com/social-communication http://www.difflearn.com/product/458/verbal_behavior http://www.autismawarenessonline.com/ http://www.helpguide.org/mental/autism_spectrum.htm http://www.nichd.nih.gov/health/topics/autism/conditioninfo/Pages/default.aspx http://www.autismhelp.info/ http://www.autismspeaks.org/family-services/resource-library/websites-families http://www.autismsupportnetwork.com/ http://www.autism-society.org/ http://www.cdc.gov/ncbddd/autism/links.html http://babybumblebee.com/Children-With-Autism/ 72 Electronic Resources http://www.autismweb.com/ http://www.autism.com/ http://nationalautismassociation.org/ http://scautismhelp.com/ http://facesforkids.org/ http://kidshealth.org/kid/health_problems/brain/autism.html https://theautismsite.greatergood.com/store/aut/site http://www.familiesforautism.org/ http://www.child-autism-parent-cafe.com/ http://www.theautspot.com/ http://mhds.state.nv.us/index.php?option=com_content&view=article&id=56&Itemid=64 73 Electronic Resources http://www.aconv.org/ http://www.rainweb.org/ http://www.liliclairefoundation.org/Reno%20Center.html http://www.unr.edu/psych/behavior/training_opportunities_autism.html http://nnasa.org/ http://www.nevadaautism.org/ http://www.mdjunction.com/autism http://www.autismsupportdaily.com/ http://voices.yahoo.com/online-support-groups-forums-parents-raising-2527849.html?cat=25 http://www.babble.com/baby/autism-guide-spectrum-disorders-pdd-asd/autism-guide-awarenessresources-support-group-services/ 74 Appendix D: Reproducible Handouts Toileting Picture Schedule 75 Toileting Checklist 76 Bathing Picture Schedule 77 Bathing Checklist 78 Brushing Teeth Picture Schedule 79 My Tooth Brushing Chart 80 Medication Summary Sheet 81 Shopping List in Pictures 82 Blank Shopping List 83 Cooking Picture Schedule 84 Cooking Checklist 85 Cooking Vocabulary Words 86-87 Recipe Review 88 75 Bathroom Use Enter Restroom Pull Pants Down Pants up &Zip Wash Hands Sit and Go Dry Hands Wipe Flush Exit Restroom 76 Bathroom Use Enter Restroom Pull Pants Down Pants up &Zip Wash Hands Sit and Go Dry Hands Wipe Flush Exit Restroom 77 Bathing/Showering Turn water on Get in water Turn water off Shampoo hair Exit &Dry off Soap up body Rinse body off Get dressed 78 Bathing/Showering Turn water on Get in water Turn water off Shampoo hair Exit &Dry off Soap up body Rinse body off Get dressed 79 Brushing Teeth Pick up Toothbrush Spit Put toothpaste on toothbrush Into Sink Brush Teeth Rinse Mouth Dry face off 80 81 Adapted from: http://www.medicalhomeinfo.org/downloads/pdfs/Medication_Summary_Sheet-IL-ICRE.pdf 82 Adapted from www.news2you.com 83 Adapted fromwww.news2you.com 84 Cooking Choose Recipe & Gather Ingredients Measure Bake/Boil/Cook Take food out Stir or Mix Eat 85 Cooking Check List Choose Recipe & Gather Ingredients Bake/Boil/Cook Measure Take food out Stir or Mix Eat 86 Adapted from www.news2you.com 87 Adapted from www.news2you.com 88 Recipe Review Pretzel Smores Adapted from www.new2you.com 89 Annotated Bibliography Bowman, J., Butcher, R., & Dolby, S. (2011). Respite care needs for families of children with life-limiting conditions. Nursing Children and Young People, 23, 14-19. The authors of this empirical research study examined the tools necessary in assisting families of children with life-limiting conditions. The authors also examined a framework guide that would ensure proper allocations were in place for respite programs and visits. The authors further examined if the families were more content with the programs they identified as helpful over their healthcare provider’s choice. The participants of this study consisted of 10 families that all had a child with a life-limiting condition. They participants were asked to complete a questionnaire that questioned whether or not they were content with their current program, whether or not they felt their family could benefit from a comprehensive booklet on local resources, whether or not they had chosen their program versus their healthcare provider doing such, and whether or not the families felt involved in the decision making within their programs. The results indicated that when the families chose their own programs based on their perceived needs, they were more content than when a healthcare provider chose for them. The results also indicated that respite programs were most beneficial when they provided a standardized framework for each individual need of a patient and their family. Teachers can utilize this research study by understanding the basic needs of individual families of children with life-limiting conditions. Teachers need to have an understanding of the families’ perceived outcome for their child. Teachers can further 90 Annotated Bibliography utilize this study by initiating relationships with their families of children with lifelimiting conditions as well as with local outside agencies. Cappe, E., Wolff, M., Bobet, R., & Adrien, J. (2011). Quality of life: A key to consider in the evaluation of adjustments in parents of children with autism spectrum disorders and in the development of relevant support and assistance programs. Quality of Life Research, 20, 1279-1294. doi: 10.1007/s11136-011-9861-3 The authors of this empirical research study examined the quality of life of parents of autistic children. The authors further examined the wide variations in symptoms of autistic children and the psychological impacts for the parents. The authors of this empirical research study also explored the need for more psycho-educational programs for parents of autistic children. The participants consisted of 160 parents that were asked to complete a battery of questionnaires. The questionnaires included questions about the family’s living situations, social support systems, coping strategies, and overall perceived quality of life. The results of this research study showed that the more emotional parents possessed feelings of guilt and had self perceived lower quality of lives as well as higher levels of stress. The results also indicated that the parents that demonstrated better coping strategies had better relationships with their children with autism. 91 Annotated Bibliography Teachers can utilize this research study to employ support systems for children with autism. Teachers can assist families and children with autism by choosing psychoeducational programs and curricula that better fit individual needs. Teachers can be utilized within the social circle as well. Clifford, T., & Minnes, P. (2013). Who participates in support groups for parents of children with autism spectrum disorder: The roles of beliefs and coping styles. Journal of Autism and Developmental Disorders, 43, 179-187. doi: 10.1007/s10803-012-1561-5 The authors of this empirical research study explored the benefits of support groups for parents of children with autism. The authors further explored the satisfaction parents felt using their current versus former support groups. The authors also explored the difficulties entailed in discovering satisfactory support groups for parents of children with autism. The participants consisted of 149 parents of children with autism. The participants were asked to complete an online questionnaire regarding their beliefs about local support groups that they had attended. The results indicated that the parents who were satisfied with their local support groups had better coping skills than those parents who were dissatisfied. The results also indicated that the current support groups were more beneficial than former support groups. 92 Annotated Bibliography Teachers can utilize this research study by attaining current information on local support groups for parents of children with autism. Teachers can further attain current up to date techniques that will be beneficial in aiding students with autism. Teachers and parents can work closely together to provide a more successful outlook for children with autism. Cohen, S. (2011). Providing services to students with autism spectrum disorder. Journal of Visual Impairments and Blindness, 105, 325-329 The author of this theoretical research article examined the increasing number of children being diagnosed with Autism Spectrum Disorder (ASD) in the United States. The author further examined the believed causes of ASD. The author also examined benefits of early intervention of children with ASD. The author discussed the increasing number of children being diagnosed with ASD in the United States and the fact that it is becoming an epidemic. She discussed the belief that there is a greater sense of ASD awareness, a wider use of diagnostic tools and an increase in environmental factors leading to the increase in ASD diagnoses. The author discussed the importance of early intervention in children with ASD and the association with more positive outcomes for the child and his or her family. Teachers can utilize this research to further understand the importance of early intervention programs for students with ASD. Teachers can also assist parents of children 93 Annotated Bibliography with ASD in finding proper programs suitable for their individual needs. Teachers can utilize this research within their classrooms to enhance overall awareness of ASD. Coolican, J., Smith, I.M., & Bryson, S.E. (2010). Brief parent training in pivotal response treatment for preschoolers with autism. Journal of Child Psychology and Psychiatry, 51, 1321–1330. doi:10.1111/j.1469-7610.2010.02326.x The authors of this empirical research study explored the importance of early treatment of autism as a health priority. The authors further explored access to healthcare providers and treatment programs for children with autism. The authors finally explored parent training programs to determine if they sufficed as an interim while children with autism waited to be seen by health care providers. The participants were eight preschoolers and their parents. Parents received four months of training in a basic behavioral treatment program and were assessed 2 weeks, and 2 and 4 months into the program. During the first month of training, trainers modeled appropriate techniques with each of the eight preschool participants. The remainder of the training program consisted of the parents implementing techniques they had learned previously. The results indicated that a delay to access of healthcare could be detrimental to the communication development of children with autism. The results also indicated that parent training programs can be an effective intervention while remaining on waiting lists. 94 Annotated Bibliography Teachers can utilize this research study by assisting parents in choosing educational training options. Training programs mentioned in this research study implement techniques that assist children in communication skills. Teachers can further utilize this research study to optimize their ability to familiarize themselves with outside resources. Fletcher, P.C., Markoulakis, R., & Bryden, P.J. (2012). The costs of caring for a child with an autism spectrum disorder. Issues in Comprehensive Pediatric Nursing, 35, 45-69. doi: 10.3109/01460862.2012.645407 The authors of this empirical research study examined the experiences of female caregivers of children with an autism spectrum disorder. The authors also examined the costs of caring for children with an autism spectrum disorder. The authors further examined the effects on female caregivers of children with an autism spectrum disorder. The participants consisted of an undisclosed number of married females that were caregivers of children with an autism spectrum disorder. The participants were all given questionnaires that pertained to demographics and the well being of the female caregivers prior and after the diagnosis of a child with an autism spectrum disorder. The results indicated that the costs of caring for a child with an autism spectrum disorder placed a strain on each family member leading to the lack of funds for vacation and educational 95 Annotated Bibliography purposes. The results also indicated that female caregivers’ health was compromised due to stress and financial factors. Teachers can utilize this research study by becoming an advocate for families of children with an autism spectrum disorder. Teachers can use this research study to employ support systems for the families. Providing proper support systems can assist in building relationships among all community members. Gardner, E., & Iarocci, G. (2012). Unhappy (and happy) in their own way; A developmental psychopathology perspective on quality of life for families living with developmental disability with and without autism. Research in Developmental Disabilities, 33, 2177-2192. The authors of this theoretical research article examined the problems and risks of living with a child with autism. The authors also examined the resiliency and adaptation of families of children with autism. The authors further examined the similarities between individuals with autism and family outcomes. The authors discussed the importance of a family’s quality of life. They discussed the need to develop a psychopathology perspective for families living with a child with autism. The authors further suggested that perceptions on families of children with autism share the same commonalities as those families of typical children; each individual within a family influences family goals and dynamics despite disabilities. 96 Annotated Bibliography Teachers can utilize this research to better create relationships with all families of students within their classrooms. Teachers can also utilize this research by understanding the importance of all family units and the jobs that each individual play within their household. Teachers can utilize this research also by being aware that all families are similar. Gosney, J.E., Stormna, D., Geving, M., & Hui Lui, Y. (2009). Operation housecall: A family-centered pediatric residency experience. Clinical Pediatrics, 48, 780-783. doi: 10.1177/0009922809332688 The authors of this empirical research study developed and explored a program named, “Operation Housecall.” The authors examined challenges that families of children with developmentally disabilities encounter within healthcare. The authors further examined effective practices and available resources for families of children with developmentally disabled children. The participants of this study consisted of Pediatric residents at the University of San Diego that were in their second year of training. The participants were instructed to gain a better understanding of challenges families of developmentally disabled children encounter. The participants were also taught how to effectively access community resources and integrate them into educating families. The results indicated that 72% of the participants felt as though they gained enough knowledge to pass the information on to families of developmentally disabled children. The results also indicated that time 97 Annotated Bibliography restraints healthcare providers face hinder the full ability to gain an understanding of individual needs for each patient. Teachers can utilize this research to better gain an understanding of time restraints healthcare providers face. Teachers can create an evaluation questionnaire to assist them in better understanding families’ needs. Teachers can also implement ideas that focus on individual needs of developmentally disabled children. Grether, J., Rosen, N.J., Smith, K.S., & Croen, L.A. (2009). Investigation of shifts in autism reporting in the California department of developmental services. Journal of Autism and Developmental Disorders, 39, 1412-1419. doi: 10.1007/s10803009-0754-z The authors of this empirical research study explored the increasing number of children diagnosed with autism. They also explored the coding system that the Department of Developmental services used in the state of California. The authors further explored qualifying characteristics of autism. The participants consisted of two sample groups; the first consisted of 700 children with autism and the second consisted of 480 typical children. The children’s parents were interviewed and asked if researchers were allowed to examine their child’s medical file. The researchers examined all 1180 medical files to determine if any correlations existed in misclassifications of children with autism. The results indicated that when the shift in developmental disorder coding was created in the state of 98 Annotated Bibliography California, the number of children with autism increased by 87%. The results also indicated that 6% of files examined misclassified some children leading to a later diagnosis of autism. Teachers can utilize this research to understand the prevalence of autism in their students. Teachers also can utilize this research study to better gain an understanding of the classifications of autism. Once the classifications of autism are understood, teachers and support staff can better build curricula that apply to each student’s individual needs. Hall, H.R., & Graff, J.C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Comprehensive Pediatric Nursing, 34, 4-25. doi: 10.3109/01460862.2011.555270 The authors of this empirical research study explored the levels of stress of families with children with autism. The authors further explored appropriate techniques to decrease levels of stress in families of children with autism. The authors examined inappropriate referrals from professionals for family support. The participants consisted of 75 parents of children with autism. All of the participants were asked to complete the Coping Health Inventory for Parents, the Family Support Scale, the Parenting Stress Index-Short Form, and the Vineland Adaptive Behavior Scales; all of which assisted in explaining to the researchers the families’ abilities to cope and the child with autism’s ability to adapt his or her behavior in certain 99 Annotated Bibliography situations. The results of this research study showed that children that had low levels of adaptive behavior in the areas of socialization and daily living skills with the inability to adapt well lead highly to family stress levels and low coping skills of parents. Teachers can utilize this research study to better understand the crucial need for family support in families of children with autism. Teachers can build socialization tools and daily living skills into their daily curriculum to ensure advancement for autistic students. Teachers can also ensure parents that provided up to date tools are being used to enhance curriculum in the classroom. Haney, M.R. (2012). After school care for children on the autism spectrum. Journal of Child and Family Studies, 21, 466-473. doi: 10.1007/s.10826-011-9500-1 The author of this empirical research study explored the need for after school programs for children with autism. The author further examined experiences by parents of children with autism in current after school programs. The author explored the benefits after school programs and the interactions with typically developed peers can have on children with autism. The participants of this study consisted of 55 parents of children with autism. The participants were asked to anonymously complete surveys and return within one month. The results indicated that 69% of the participants expressed interest in having their autistic child attend a typical after school program. The results also indicated that only 100 Annotated Bibliography 60% of teachers of the children with autism whose parents participated in the survey study were knowledgeable about other after school programs in their communities. Teachers can utilize this research study by equipping themselves with knowledge of outside resources within their communities. Teachers can also utilize this research study by providing parents with the proper support necessary to aid in educating children with autism to their fullest potential. Relationships can be built among all community members. Krauss. M.W., Seltzer, M.M., & Jacobson, H.T. (2005). Adults with autism living at home or in non-family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49, 111-124. doi: 10.1111/j.13652788.2004.00599.x The authors of this empirical research study explored the residential status of adult children with autism living in residential facilities. The authors further explored the impact of mothers of adult children with autism living at home. The authors examined relationships between mothers and their adult children with autism in both residential living facilities and those living at home. The participants consisted of 133 mothers of adult children aged 22 or older. Questionnaires were given to the participants regarding positive and negative perceptions of their child’s living arrangements. Participants were also asked how often they communicated with their adult child with autism and if they were satisfied with the 101 Annotated Bibliography current living arrangement choice. The results of this research study found that mothers co-residing with the adult children with autism felt a greater benefit and satisfaction than mothers of adult children with autism that resided in residential facilities. The results also indicated that mothers of adult children with autism that resided in residential facilities felt responsible for negativity in their child’s life. Teachers can utilize this research study by providing parents with the proper tools of choice making suitable for individual families. Teachers can equip families with outside resources that may assist them is allowing adult children with autism to reside at home longer. Teachers can utilize this research study by gaining knowledge of sensitivity as well. Kroeger, K., & Sorensen, R. (2010). A parent training model for toilet training children with autism. Journal of Intellectual Disability Research, 54, 556-567. doi: 10.1111/j.1365-2788.2010.01286.x The authors of this empirical research study explored the efficacy of the typical toilet training protocols used for children with autism. They further explored present data on training times and history of failed toilet training attempts. The authors examined the use of the Azrin and Foxx method. The participants were two small boys aged 4 and 6. One of which, the 4 year old, had never been toilet trained; the other, the 6 year old, had several failed attempts at toilet training after his parents had attempted the typical training protocols and still had yet to gain continence. The results of the study found that the Azrin and Foxx method designed 102 Annotated Bibliography for children with autism successfully toilet trained the 4 year old that had never experienced any other model of training prior within ten days. The 6 year old that had prior training only took five days to successfully gain continence. The results showed that social involvement and demonstration of parent satisfaction were deemed necessary in valid models of toilet training despite the disabilities within children. Teachers can utilize this research by helping parents to understand that their patience and demonstration of satisfaction plays a key part in toilet training. This research can help determine a necessary understanding that the sooner children with autism become toilet trained, the sooner they can join the typical classrooms and general populations without hesitations. Teachers can utilize this research study to recognize that despite disabilities, children can be toilet trained with proper tools. Ling Ling, T., Davenport, R., & Schmiege, C. (2012). Supporting siblings of children with autism spectrum disorders. Early Childhood Education Journal, 40, 47-54. doi: 10.1007/s10643-011-0488-3 The authors of this empirical research study examined the importance of early intervention programs for children with autism. They further examined the lack of support systems for the siblings of children with autism. The authors further examined the relationships between children with autism and their siblings. The participants consisted of 30 sets of siblings of children with autism. The participants were interviewed and asked questions such as their perceptions on their sibling relationships, their attitudes towards their autistic sibling, and their overall 103 Annotated Bibliography perceptions of their autistic sibling. The results indicated that a majority of the siblings worried about their autistic sibling’s future. The results also indicated that siblings of children with autism were found to be more socially and emotionally developed than siblings of typical children. Teachers can utilize this study to further understand the importance of early intervention programs with their communities. Teachers can also utilize this study by gaining a sense of understanding that each student has different needs. Teachers’ relationships with parents of children with autism are imperative in understanding individual needs. Meelard, D.F., & Lancaster, P.E. (2005). Incorporating adult community services in students’ transition planning. Remedial and Special Education, 24, 359-368. The authors of this theoretical research study explored past outcomes of postschool activities for students with learning disabilities. The authors also explored past linkages between school personnel and outside agencies. The authors further explored ways that school personnel and outside agencies could work together to enhance successful transitions for students with disabilities. The authors discussed policies, procedures, and practices set in place in school settings. They discussed the need for alternate services available to students and school personnel to assist in successful transition planning. The authors further discussed the importance of vocational rehabilitation services for students that may not fall under the 104 Annotated Bibliography safe zone of the Individuals with Disabilities Education Act which provides related services to children with special needs. They also discussed the importance of equipping school personnel with proper tools and models of transition plans already in place. Teachers and school personnel can utilize this research to further their awareness of local outside agencies for transition planning purposes. School personnel can also become more aware of trainings offered to ease students in their post-school outcomes. Teachers can further utilize this research to build students curricula towards post-school activities. Memari, A.H., Ziaee, V., Beygi, S., Moshayedi, P., & Mirfazeli, F.S. (2012). Overuse of psychotropic medications among children and adolescents with autism spectrum disorders: Perspective from a developing country. Research in Developmental Disabilities, 33, 563-569. The authors of the empirical research studied the current use of psychotropic drugs among children with autism. The authors further studied the benefits from the use of psychotropic drugs. The authors examined the overuse of psychotropic drugs. The participants consisted of 345 Iranians aged seven to fourteen that had currently used psychotropic drugs for their autism. The participants and their families were then interviewed to determine if there were benefits from the use of psychotropic drugs. Past clinical and medicinal histories were retrieved from physicians for all of the 105 Annotated Bibliography participants. The results indicated that there were significant changes in the participants aged nine thru twelve years of age that used psychotropic drugs. The results also indicated that the older the child, the more severe the child’s intellectual disability would appear after use of psychotropic drug use. Teachers can utilize this research study by gaining a better understanding of their students’ abilities during use of psychotropic drug use. Teachers can assist families in providing an understanding environment for students with autism. Teachers can further utilize this research study by building educational curriculum based on individual needs of students. Mulligan, J., Steel, L., Macculloch, R., & Nicholas, D. (2010). Evaluation of an information resource for parents of children with autism spectrum disorder. The National Autistic Society, 14, 113-126. doi: 342570.1362-3613 The authors of this empirical research study evaluated information based on accessibility, usefulness, and accuracy gained from thirteen participants to develop a parent resource handbook for parents with Autism Spectrum Disorder. They further examined supportive correspondences already set in place in the participants’ local communities. The authors further requested resources for future developments. The participants were nine mothers and four doctors of Autism Spectrum Disorder children. The mothers all were selected from a broad range of socioeconomic 106 Annotated Bibliography statuses and community settings, and half of them were single parents. All of the participants were asked to review a draft of the handbook within one month and then provide their feedback. They were all brought together to discuss whether or not their overall impressions of the book were helpful, if the content was accurate, if they felt it was easy to navigate through, and if it elicited feelings of hope or not. The results of the study found that a majority of parents and doctors preferred having a colorful hard copy of the handbook, but also liked the idea of having online accessibility. All participants deemed the handbook accurate and highly necessary to distribute widely across the United States for educational purposes. Teachers can utilize this research to further understand their students with autism. By providing hands-on real life data collected, teachers can utilize this handbook as a tool for answers. Teachers can utilize this research study by developing relationships with outside resources such as providers in the community. Murphy, C.M., & Verden, C.E. (2012). Supporting families of individuals with autism spectrum disorders: Developing a university-based respite care program. Journal of Positive Behavior Interventions, 15, 16-25. doi: 10.1177/1098300712436845 The authors of this empirical research study explored the need for a community resource program referred to as a university-based respite care program. The authors further explored the characteristics needed for implementation and planning of a 107 Annotated Bibliography university-based respite care program. The authors examined the outcome of a respite care program for families of children with autism. The participants consisted of 215 families that requested respite care services. The participants were asked to apply for a discrete trial of a respite care program within their community and commit to 20 months. Individuals from the families of participants that portrayed aggressive behavior or self-injurious behaviors were ultimately asked to resign from the program. The results indicated that by the end of the 20 month discrete trial of the respite care program, only 189 families remained successfully. The results also indicated that the need for respite care programs in every community would be beneficial for families as a means of proper support and relief. Teachers can utilize this research by gaining awareness of local respite care programs. Teachers can also utilize this research by equipping themselves with the proper tools and volunteering as respite care workers. Teachers and families both can utilize this research study by gaining knowledge of sensitivity for all participants involved. Palmer, R.F., Blanchard, S., Jean, Carlos. R. & Mandell, D.S. (2005). School district resources and identification of children with autistic disorder. American Journal of Public Health, 95, 125-130. doi: 10.2105-AJPH.2003.023077 The authors of this empirical research study explored the effects that communities and school district resources played in identifying children with autism disorder in Texas. 108 Annotated Bibliography They further explored if costs played a role in identifying children with autism and if community revenues were affected. The authors discussed implications in the lack of identification of children with autism disorder. Data were collected from all 1,040 school districts within the state of Texas, which contained nearly four million students enrolled in grades Kindergarten through twelfth. Data were also collected on teacher salaries, as well as budgeted revenues from capital project funds. The results determined that the higher the district and community revenues, the higher the identification of children with autism disorder. Teachers can utilize this study by implementing successful behavioral intervention programs to ensure that children with autism disorder do not qualify for behavioral disorders other than autism disorder. This research can assist teachers in educating parents that negative behaviors are not always appropriate and necessary testing is imperative. Teachers can also utilize this study by advocating for their students. Rice, M.L., Warren, S.F., & Betz, S.K. (2005). Language of symptoms of developmental language disorders. Applied Psycholinguistics, 26, 7-27. doi: 10.1017.S0142716405050034 The authors of this theoretical research article explored past studies on syntactic abilities and comparisons/deficits between cognitive delays amongst disabilities to determine whether or not there were correlations. The authors further discussed the lack 109 Annotated Bibliography of genetic investigations within each disability further leading to an incomplete comparison. The authors discussed the importance of a required need in the field of early language development primarily before the age of one. They discussed the need for a precise description of clinical diagnosis to better understand the commonalities that occurred across genetic conditions because of the fact that many children were placed in the autism spectrum disorder due to a lack of nonverbal communication. The authors further suggested that it is highly necessary to determine the underlying cause to better understand these neurocognitive and genetic factors. Teachers can utilize this research to further understand comparisons/contrasts among their special education students. Students with cognitive delays may have language delays as well and teachers can utilize this research study by including visual/audio aids in all areas of curriculum planned. Schultz, T.R., Schmidt, C.T., & Stichter, J.P. (2011). A review of parent education programs for parents of children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 26(2), 96-104. doi: 10.1177/1088357610397346 The authors of this empirical research studied the current educational programs available for parents with Autism Spectrum Disorder. They further examined the lack of formal evaluation of those programs already set in place and set out to determine key 110 Annotated Bibliography characteristics that parents deemed necessary and valid. The authors wanted to discover proper procedures to educate parents. The participants consisted of three authors that reviewed 30 different Autism Spectrum Disorder journals that spanned out from 20 years ago. These participants, who were the three authors, were given guided questions to think of as they read the 30 journal articles, such as what models of teaching were found in many parent educational programs, were the programs connected in any way to child intervention programs, and who and how are the current programs evaluated? The results indicated that 30 out of 30 of the current programs were not evaluated in an effective manner nor did they provide evidence of validity in educating parents about Autism Spectrum Disorder. Teachers can utilize this research by assisting parents in choosing educational programs wisely. Teachers can assist parents with knowledge of proper evaluating questions for those programs chosen. While utilizing provided tools, parents and teachers understand key characteristics of current implementation and evaluation of current programs. Slater, M.A., & Wikler, L. (2001). Normalized family resources for families with a developmentally disabled child. Social Work, 9, 385-391. The authors of this theoretical research article discussed the number of developmentally disabled children placed in institutions and foster homes. The authors also discussed the lessening of support systems for alternate out-of-home placements 111 Annotated Bibliography available to developmentally disabled children. The authors further discussed the importance of support systems being put in place. The authors suggested that individual and family support systems lead to more positive participation within the mainstream population. They suggested that family support systems lead to healthier and happier family relationships in which all members involved feel a sense of autonomy. The authors further suggested that without positive support systems put in place developmentally disabled children tend to be placed in outof-home settings which lead to a lessened number of available out-of-home facilities. Teachers can utilize this research to further equip themselves with local support systems that will assist developmentally disabled children and their families. Recognizing the need for support systems for students is crucial in helping them gain success. Teachers can utilize ideas presented in this research to better focus on the needs of each individual student. Solomon, A., & Chung, B. (2012). Understanding autism: How family therapists can support parents of children with autism spectrum disorders. Family Process, 51, 250-264. doi: 10.1111/j.1545-5300.2012.01399.x. The authors of this theoretical research article examined the increasing numbers of children diagnosed with autism. The authors further examined causing factors of 112 Annotated Bibliography chronic and acute stressors of parenting children with autism. The authors also examined the need for family therapists to have updated information on autism. The authors suggested that one in every 91 children in the United States have been diagnosed with autism and that number continues to increase. The authors further suggested that with the increasing number of children with autism being diagnosed the need for family therapy is pertinent, and that in many case families have been turned away because therapists are unable to follow through with comprehensive treatment plans. Finally, the authors suggested that having a child with autism creates stress factors and challenges in families and family therapists should play an important role in advocacy. Teachers can utilize this research by equipping themselves with knowledge on autism and appropriate family therapists within the community. Teachers can also utilize this research by building relationships with families of students with autism to enhance a school support system. Emotional and academic support can be taken from this research and utilized within the school community. 113 Annotated Bibliography Stahmer, A.C. (2007). The basic structure of community early intervention programs for children with autism: Provider descriptions. Journal of Autism and Developmental Disorders, 37, 1344-1354. doi: 10.1007/s10803-006-0284The author of this empirical research study explored the effective elements of early intervention programs for children with autism. The author further explored therapies included in early intervention programs. The author examined some programs already structured to determine necessary areas of improvements. The participants consisted of 80 early intervention providers and 10 experts that designed intervention programs. Qualitative methods via telephone interviews were used to investigate the techniques used by early intervention providers working with children with autism. The results indicated that only 47% of providers collaborated with surrounding preschools to provide assistance and training. The results also indicated that the earliest possible start to treatment was paramount. Teachers can utilize this research study to assist in creating strategies that are useful to children with autism. System improvements for the future can be done through training seminars which will assist teachers and their paraprofessionals in the field of autism. Teachers can utilize this research study by taking the initiative to collaborate with outside resources such as providers. 114 Annotated Bibliography Stock, S.E., Davies, D.K., Wehmeyer, M.L., & Lachapelle, Y. (2011). Emerging new practices in technology to support independent community access for people with intellectual and cognitive disabilities. Neuro Rehabilitation, 28, 261-269. doi: 10.3233/NRE-2011-0654 The authors of this empirical research study explored emerging practices related to community access for individuals with intellectual and cognitive disabilities. They further examined attitudes and actions by families of individuals with intellectual and cognitive disabilities. The authors explored future technological prospects for community access for all individuals. The participants of this study consisted of 26 individuals with cognitive disabilities. All of the participants were given a software prototype operating as a global positioning system that acted as a personal assistant. Without prior knowledge of the intended destinations, participants used the systems to travel routes on a city bus and were instructed to exit the bus at specific locations. The results indicated that 24 out of the 26 participants exited the bus at the correct locations. Teachers can utilize this study within their classrooms to aid in developing a curriculum that enhances technology. The use of visual and audio aids can support students of all levels including those with cognitive disabilities. Incorporating technology during community outings enhances future independence for students. 115 Annotated Bibliography Suppo, J., & Floyd. K. (2012). Parent training for families who have children with autism. Rural Special Education Quarterly, 31(2), 12-26. The authors of this theoretical research article examined the literature on parent training for parents of children autism. The authors further examined the discrepancy between the need for services and the availability of services. The authors also examined the need for parents to receive proper training for the purpose of acting as family facilitators. The authors suggested that one in every 110 children in the United States have been diagnosed with autism. The authors further suggested that families that participated in training programs have more satisfaction in their overall relationships as a family unit. Finally, the authors suggested that access to parent training programs provides a more positive and consistent outcome for the entire family and parent training programs that also create social groups for other families of children with autism leading to overall satisfaction in life. Teachers can utilize this research by equipping themselves with current and local community resources. Teachers can also utilize this research by assisting families with proper resources within their communities. Academic support can then be taken to enhance educational goals for children with autism. 116 Annotated Bibliography Truesdale-Kennedy, M., McConkey, R., Ferguson, P., & Roberts, P. (2006). An evaluation of a family-centered support service for children with a significant learning disability. Child Care in Practice, 12, 377-390. doi: 10.1080/13575270600863291. The authors of this empirical research study evaluated newly developed family centers to identify the impact that children with significant learning disabilities have on their families. The authors also evaluated the effectiveness of family centers and specific tools used. The authors further evaluated the health of families that used family centers. The participants consisted of 19 families, all of which had a child with a significant learning disability. Demographic information was collected from all of the participants as well as health stressors and family functioning. The participants also were questioned on recent support systems they partook in. The results indicated that the more support the families had the healthier that family was. The families that received more support had healthier and happier functioning. The results also indicated that regular participation in support systems led to more socialization for both the child and their families within the community. Teachers can utilize this research study to examine modifications made for children with significant learning disabilities. Teachers can also utilize this research study to assist families with support systems within the school setting. Teachers can implement different ideas to assist both students and their families that focus strictly on their individual needs. 117 Annotated Bibliography Watson, R., Parr, J.R., Joyce, C., May, C., & LeCouteut, A.S. (2011). Models of transitional care for young people with complex health needs. Child: Care, Health and Development, 37, 780-791. doi: 10.1111/j.1365-2214.2011.01293.x The authors of this empirical research article explored the complex health needs for individuals with autism. The authors further explored the need for transitional services for individuals with autism. The authors examined the evaluation of transitional services from childhood to adult health services and the implementation of the programs. The data were collected from 350 articles regarding transitional service providers. Interviews were conducted as well as reviews of policies for implementation of transitional services. The authors investigated whether the transitional services had been evaluated. The results of this research found that publications were either descriptions of new service provisions or that little evaluation services had been implemented. The results further indicated a lack of evidence of best practices and evaluations in place for transitional services to be effective. The lack of effective transitional services and effective evaluations of them lead to families and patients straying from proper care according to the authors. Teachers can utilize this research study by assisting families and students in selecting proper transitional services within the school community. Starting at the age of 14 a teacher can create a plan for the future for students based on their strengths and likes. Teachers can utilize this research study also but providing tools to parents and students to better plan out future choices such as transitional services. 118 Annotated Bibliography Wentz, E., Nyden, A., & Krevers, B. (2012). Development of an internet-based support and coaching model for adolescents and young adults with ADHD and autism spectrum disorder. European Child & Adolescent Psychiatry, 21, 611-622. doi: 10.1007/s00787-012-0297-2 The authors of this empirical research study examined support systems for adolescents with Autism Spectrum Disorder (ASD). They examined the models and techniques deemed necessary to benefit the support systems. The authors further discovered proper procedures to assist adolescents with coping skills. The participants consisted of 10 adolescents with autism. The participants were asked to complete questionnaires before and after participating in an eight week support program online. The results indicated higher self esteem and self fulfillment were established after the eight week program was complete. The results also indicated that the program was even more beneficial when complemented with other self help skills. The results further indicated the importance of support systems set in place for adolescents with autism. Teachers can utilize this research study by examining what support systems are set in place within their school communities, as well as within their own classrooms. Teachers can also utilize this research by assisting adolescent students with individual goals and objectives that are tangible for their needs. 119 Annotated Bibliography Wilkinson, D. A., Best, C. A., Minshew, N. J. & Strauss, M.S. (2010). Memory awareness for faces in individuals with autism. Journal of Autism and Developmental Disorders, 40, 1371- 1377. doi: 10.1007/s10803-010-0995-x The authors of this empirical research study explored memory awareness during a facial recognition task assessment. They further explored the differences between children with autism and typical children during the facial recognition task assessment to determine memory awareness between the two groups. The authors examined metacognitive deficits in children with autism. The participants were 18 high-functioning children with autism and 13 typically developed children all aged 9-17 years old, as well as 16 high-functioning autistic adults and 15 typically developed adults aged 18-45 years old. Testing occurred in a quiet room in which the face recognition task assessment consisted of a presentation of faces and a test afterwards of the participants’ memory. The results showed that certainty levels reflected performances for all participants in this study. The results also determined that individuals with autism had deficits in metacognition monitoring leading to significantly lower awareness in accuracy in face recognition task assessments. Teachers can utilize this study to further explore strategies in implementing metacognitive monitoring within their classrooms. By providing examples of appropriate social interactions, teachers enable autistic students to better gain an understanding of self awareness and appropriate social behaviors. Teachers can also utilize this study within 120 Annotated Bibliography their classrooms to enhance overall performance levels to eliminate overcompensations of impairments. 121