ANNUAL REPORT
2013
Presented to the Membership
January 24, 2014
Oregon Hospice Association, Inc.
812 SW Tenth Avenue, Suite 204
Post Office Box 10796
Portland, Oregon 97296-0796
Telephone 503.228.2104
Fax 503.222.4907
Toll Free 888.229.2104
Web Site www.oregonhospice.org
1
Table of Contents
History, Status, Mission, Description, Vision and Goals .............................................................................................3
Board of Directors Report ..........................................................................................................................................5
Treasurer’s Report .....................................................................................................................................................6
Statement of Position as of December 31, 2013........................................................................................................7
Statement of Activities as of December 31, 2013 ......................................................................................................8
2014 Proposed Budget ...............................................................................................................................................9
CEO’s Report ............................................................................................................................................................ 10
Accreditation and Hospice Consultation Services ................................................................................................... 16
Professional Education Report ................................................................................................................................ 17
Professional Education Events ................................................................................................................................ 19
Resource Development Report ............................................................................................................................... 20
Me, Too Report........................................................................................................................................................ 22
Oregon Hospice Directory ....................................................................................................................................... 23
Board of Directors ................................................................................................................................................... 24
Hospice Providers’ Council ...................................................................................................................................... 24
Oregon Hospice Association Staff ........................................................................................................................... 24
2
History, Status, Mission, Description, Vision and Goals
History
The Oregon Hospice Association has served terminally ill Oregonians and their families since its incorporation in
1985. The agency came into being with the merger of two distinct hospice organizations, the Oregon Council of
Hospices and the Hospice Assistance Program, each established in the late 1970’s.
Status
The Oregon Hospice Association is a state-wide, 501(c)(3), public benefit membership organization.
In 2013, 55 hospices were licensed to provide supportive, palliative health care services. In addition to licensed
hospices, 4 Oregon prisons provide end-of-life care services to inmates in their facilities.
Mission
The Oregon Hospice Association is a state-wide public benefit organization helping to ensure Oregonians have
access to high quality hospice and palliative care as they near the end of life.
Description
The Oregon Hospice Association is committed to improving the quality of life for Oregonians at the end of life
and supporting the hospice and palliative care agencies that provide care. The Oregon Hospice Association’s
services include public and professional education, advocacy, research, consultation, accreditation and
leadership.
Vision
The Oregon Hospice Association’s vision is that Oregonians will be able to face the end of their lives knowing
that there is a compassionate, stable, sustaining system of care to provide them with safety, comfort and
assistance with the goal of assuring that their deaths will be the best possible ending.
Goals
Network


Build a strong cooperative network of providers and other resources at state, national and international
levels.
Provide a steady flow of information and communication among existing and developing hospice and
palliative care providers.
3
Research


Coordinate and promote research to improve the care of terminally-ill Oregonians and their families.
Participate in the collection of end of life data.
Education






Provide education to promote a clear understanding of hospice and palliative care to the public and to
stakeholder groups including academic institutions, businesses and other entities.
Provide information and respond to requests about end-of-life choices.
Provide professional education to hospice and palliative care providers and other practitioners of
medicine.
Encourage the completion of Physician Orders for Life-Sustaining Treatment (POLST) forms for all
hospice and palliative care patients at the time of admission.
Offer consultation services to hospice and palliative care agencies and to programs developing end of
life care.
Provide bereavement education and support for children and families through the Me, Too
partnership.
Quality Assurance




Participate in the development and implementation of standards of care at the end of life.
Keep all providers of hospice services aware of new developments in standards;
Provide technical assistance to programs to meet requirements of standards and to comply with
regulations.
Provide accreditation services for hospice programs.
Advocacy


Advocate for high quality hospice and palliative care at the local, regional, national and international levels,
including regulatory agencies, legislative bodies, community leaders and other stakeholders.
Monitor, respond and provide input into health care legislation and regulation relevant to hospice and
palliative care at all levels of government.
Fiscal Health

Sustain financial soundness to support the Oregon Hospice Association’s mission.
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Board of Directors Report
Shanon Rosick, Board Chair
It is my pleasure to present the 2013 Board Chair’s report for Oregon Hospice Association. This is my sixth and
last year on the Board. Being part of this amazing organization and the work that all of you do has been a very
rewarding experience. During my time on the Board, I have come to appreciate the dedication and skill each of
you brings to your organization and to dying Oregonians and their families. I am also grateful for your support
of the Oregon Hospice Association.
2013 brought us the reality of Coordinated Care Organizations, impacts from the Affordable Care Act, and
regulatory agencies going full throttle with change. The challenges keep coming and the impacts on care at the
bedside and for the survivability of your hospice are real. The Oregon Hospice Association continues to be your
voice and advocate here in Oregon and nationally.
The Oregon Hospice Association continues to take a leadership role. We represent you on the National Hospice
& Palliative Care Organization’s Regulatory, Ethics and Governance Committees and the Council of States. We
continue to be a provider of excellent professional education as evidenced by the Professional Practices
Exchange and other training. We advocate for our members and Oregonians with government agencies and in
community partnerships like the Oregon POLST Taskforce to protect and support end-of-life issues. We are a
phone call or an email away to help you with a real-time issue. In short, the Oregon Hospice Association is here
for you and here for Oregonians.
I would like to acknowledge the contributions, support and dedication of the Oregon Hospice Association staff.
DJ and Meg, with support from Denis, Linda and Larlyn undertake a myriad of tasks to support our mission, to
serve you our members and to ensure Oregonians have access to excellent end of life care. I don’t know how so
much gets done with so little FTE! You know in the Wizard of Oz how surprised you were to find that the Great
Oz was just a little guy behind the curtain? That’s kind of like the Oregon Hospice Association’s staff. Small, but
mighty.
I also want to take this opportunity to thank the members of the Oregon Hospice Association’s Board of
Directors. You may not see them often personally, but the impact of their commitment, experience and
strategic thinking are part of the DNA of this organization. I would like to thank our outgoing board members,
Eric Alexander and Glen Patrizio for their outstanding service. Thank you both for your ideas and insights. Just
because your time on the board is ending, don’t think we won’t be contacting you for help in the future. As you
will see from the nominations, we have another outstanding group of candidates for our Board.
The Oregon Hospice Association will continue to focus our efforts to be of service to you – the people who
provide care to Oregonians near the end of life. All of us here are advocates for hospice and palliative care. All
of us are committed to “Improving the quality of life at the end of life”.
I thank you for the opportunity to be affiliated with this outstanding organization and with you.
Shanon Rosick
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Treasurer’s Report
Richard Skyba, Treasurer
I am pleased to present the 2013 Treasurer’s Report. Not only does the Oregon Hospice Association continue to
support excellent hospice and palliative care to Oregonians, the Oregon Hospice Association is financially sound.
The Oregon Hospice Association was the benefactor for several estates during 2013. The impact of those
generous gifts allowed us to make both program and reserve changes.
The Statement of Position demonstrates the Oregon Hospice Association has sufficient cash and investment
reserves to fund ongoing operations. Our 2013 Total Liabilities and Net Assets totaled $298,010, a 12%
improvement over 2012.
The Statement of Activities shows that Support and Revenue was up 20% ($48,645) compared to 2012. The
Statement of Activities also demonstrates that the Oregon Hospice Association continues to tightly monitor
expenses with 2013 expenses about 2% more than 2013 budget.
With bequests and effective oversight, we completed the year with net assets of $40,877.
The Proposed 2014 Budget is realistic. In general, we have budgeted revenue consistent with 2013 actuals and
anticipated 2014 events. Expenses include known changes to operations and projections based on our history.
As you will see, a net income of $4,450 is projected in 2014.
Thank you.
Richard Skyba
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Statement of Position as of December 31, 2013
ASSETS
Cash and Cash Equivalents
$ 178,890
Accounts Receivable
$
12,869
Other Assets
$
3,774
Equipment (net)
$
-
Investments - Long Term
$ 102,477
TOTAL ASSETS
$ 298,010
LIABILITIES & EQUITY
Accounts Payable
$
3,736
Accrued Payroll and Related Liabilities
$
8,891
Accrued Rent
$
3,224
TOTAL LIABILITIES
$
15,850
NET ASSETS
$ 282,160
TOTAL LIABILITIES AND NET
$ 298,010
ASSETS
7
Statement of Activities as of December 31, 2013
Support and Revenue
4000 · Contributions
4200 · Conferences/Meetings
4300 · Services
4400 · Membership
4700 · Special Events
4800 · Investment Income
4900 · Sales Revenue
4960 · Shipping and Handling
4990 · Other Revenue
Total Support and Revenue
Direct Operating Expenses
5000 · Salaries and Related Expenses
6005 - Awards
6005 · Bank Charges/Checks
6015 - Board Expenses
6007 · Credit Card Charges
6022 - Conferences
6025 · Dues and Memberships
6030 · Library/Education
6035 · License, Fees, Permits, Taxes
6045 · Meeting Expenses
6075- Operating/Program Supplies
6080 - Postage/Delivery (Direct)
6090 · Printed Materials
6100 · Professional Services
6110 - Telephone and Internet (Direct)
6200 - Travel Expenses
6300 - Volunteer Expenses
6900 - Miscellaneous Expense
Total Direct Operating Expenses
Overhead Expenses
7000 - Audit Expenses (tax acctnts)
7005 - Depreciation Expense
7010 · Insurance
7020 · Occupancy Expenses
7040 · Office Expense
7050 · Postage/Delivery
7060 - Photocopy Expense
7070 · Telephone
Total Overhead Expenses
Total Expense
Change in Net Assets
$ 139,124
60,470
12,306
74,096
734
600
12
442
287,784
143,350
90
1,122
243
127
601
1,707
1,012
169
26,180
2,935
2,685
5,174
11,380
4,394
(115)
201,054
2,495
795
2,544
26,545
3,466
5,097
4,911
45,853
246,907
$ 40,877
8
2014 Proposed Budget
Support and Revenue
4000 · Contributions
4200 · Conferences/Meetings
4300 · Services
4400 · Membership
4700 · Special Events
4800 · Investment Income
4900 · Sales Revenue
4960 · Shipping and Handling
4990 · Other Revenue
Total Support and Revenue
Direct Operating Expenses
5000 · Salaries and Related Expenses
5500 · Payroll Fees
6005 - Awards
6010 · Bank Charges/Checks
6015 - Board Expenses
6007 · Credit Card Charges
6022 - Conferences
6025 · Dues and Memberships
6030 · Library/Education
6035 · License, Fees, Permits, Taxes
6045 · Meeting Expenses
6075- Operating/Program Supplies
6080 - Postage/Delivery (Direct)
6090 · Printed Materials
6100 · Professional Services
6110 - Telephone and Internet (Direct)
6200 - Travel Expenses
6300 - Volunteer Expenses
6900 - Miscellaneous Expense
Total Direct Operating Expenses
Overhead Expenses
7000 - Audit Expenses
7005 - Depreciation Expense
7010 · Insurance
7020 · Occupancy Expenses
7040 · Office Expense
7050 · Postage/Delivery
7060 - Photocopy Expense
7070 · Telephone
7090 · Miscellaneous
Total Overhead Expenses
Total Expense
Change in Net Assets
$ 86,000
60,000
13,800
74,000
21,000
100
600
10
450
255,960
140,940
1,600
90
1,000
250
130
300
1,700
250
200
32,500
3,000
2,550
5,200
14,500
4,400
250
208,860
2,600
26,550
3,500
5,000
5,000
42,650
251,510
$ 4,450
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CEO’s Report
Deborah Whiting Jaques, CEO
It’s always a pleasure to be with all of you. Whether I can see your smiling faces or imagine you sitting around a
conference phone at your hospice, being together this morning for the Oregon Hospice Association’s Annual
Membership Meeting is wonderful.
2013 was one heck of a year. The challenges from a number of fronts were daunting; the need for our services
was a great as ever. When you look back on the year, I hope you can do so with a sense of accomplishment and
satisfaction for the difference you made in Oregonians lives. I certainly do when I consider the contributions
each of you has made in what can only be characterized as difficult times.
Earlier this month The Washington Post ran a story titled “In hospice but not dying”. Reporters Peter Whoriskey
and Dan Keating concluded after research at five large for profit organizations that hospices are draining money
from Medicare and that the Medicare rules make hospice a great place to make money by caring for people who
are not dying. No one at this meeting would agree that hospices are draining Medicare funds. We know
hospice accounts for about 2% of Medicare spending. We also know that hospice improves the quality of life at
the end of life. Moreover, we know that patients and families have better outcomes as a result of our care. We
also know that hospice care saves money by reducing hospital admissions, re-admissions, ICU stays and visits to
the emergency department. The article’s conclusions were false.
2013 also saw San Diego Hospice, a program often held out as one of the best in the nation, declare bankruptcy.
As evidenced by these two incidents, hospice’s public reputation is under assault.
In addition to the public scrutiny, within our programs the work to provide end of life care continued – and
continues – to be complex, challenging and administratively burdensome. Regulatory issues including changes
to valid diagnoses, pharmacy payment and the very scope of the care covered by the hospice Medicare benefit
required our attention last year and will continue to do so this year. Reimbursement reform and the impacts of
the Affordable Care Act and operational changes like the move to ICD-10 required focus, too. The nursing home
pass through was implemented with minimal problems and with 100% reimbursement for all levels of care.
Palliative care, in its various applications and definitions, is a major industry challenge. We face a significant risk
of Hospice becoming a service during the last days of life rather than a comprehensive model for care for the
last months of life. One of our members characterized palliative care as “hospice lite” because the scope of
care, based on the available reimbursement, is limited. The Oregon Hospice Association will continue to
advocate for a reimbursement model that will allow Oregonians - and Americans - the ability to receive the
comprehensive scope of care we in hospice provide along with disease-altering treatment.
Despite these affronts, Oregon’s hospices – all of us together – improve life for Oregonians. Oregon continues to
be one of the states with high hospice usage. Of the Oregonians who died on Medicare in 2012 (our most
recent Medicare data), 53.2% are on hospice. Nationally, hospice usage was 44.4% - nearly 9% less than hospice
usage in Oregon. Oregon does more hospice than do 45 other states. The Hospice Use by State graph also
demonstrates our success and benchmarks Oregon with other states in the nation. And, hospice usage
continues to grow year over year.
It is impressive to see that 24 of 36 counties in Oregon have higher hospice usage than the nation. The Hospice
Deaths by County graph dramatically illustrates this fact.
10
What you cannot see on a graph is the caring and commitment each of your programs demonstrates. From our
interactions, I do. Whether we are discussing with how to grapple with complex clinical issues, trying to
determine how we can provide care to patients who live on mountain tops or are without a care giver and far
away, or how to comply with regulatory requirements, you demonstrate your dedication to the patients and
families you serve and to your employees. I am blown away by your constancy and care. The Oregon Hospice
Association is committed to helping you maintain that level of care. In 2013, we did so in a number of ways.
Education is a focus. As the Education Report outlines in more detail, we provided 12 professional learning
opportunities in 2013.
A highlight each year is the Professional Practices Exchange. Our conference this year was our biggest and most
enthusiastic. Because of our financial position, we were able to pay an honorarium to bring plenary speaker Dr.
Janet Bull to Oregon. Dr. Bull rocked the house. We will seek other such dynamic speakers for our faculty.
Our second year of hosting the Awards Dinner at the PPE was a success by all measures. Pam Matthews,
Executive Director of Willamette Valley Hospice and Oregon Hospice Association Board member, received the
Elizabeth Wessinger Award. Congratulations, Pam! The Dream Team included:
Stephen Kerner, DO, Medical Director – PeaceHealth Peace Harbor Hospice, Florence
Cindy A. Yuille, RN, CHPN - Case Manager –Kaiser Permanente Continuing Care Services, Portland
Renita Sanchez - Lead Hospice Aide – Samaritan Evergreen Hospice, Albany
Dennis Alger - Chaplain – Mt. Hood Hospice, Sandy
John Buono and Shayla (the therapy dog) - Hospice Volunteers –Partners in Care, Bend
Todd Lawrence - Volunteer Coordinator – Housecall Providers, Portland
Kristine Munholland, Ph.D., MSW - Bereavement Coordinator – Kaiser Permanente Continuing Care Svcs
Congratulations to the Dream Team members!
The Oregon Hospice Association is a provider of Continuing Education (CE) Credits. I am pleased to tell you that
in 2014 through a partnership with the Oregon Medical Association we will again be able to offer Continuing
Medical Education (CME) to physicians who attend our education events.
In addition to conferences and seminars, we facilitated various stakeholder fora, like the Hospice Providers’
Council, that provide a way to collaborate and to identify needs and best practices. We lectured at universities
and met with community groups to increase understanding of end of life care. While speaking to groups is
rewarding, our agency’s public benefit mission is never more real than when we talk with real people who need
real help in real time. Whatever else is happening stops for however long it takes when we hear from a person
in need.
The Oregon Hospice Association’s accreditation and consultation services continue to provide support and
assistance to Oregon’s hospices. This Oregon Hospice Association program also improves the quality of care in
our state by providing expert assistance, advice and counsel to Oregon’s hospices. The Accreditation and
Hospice Consultation Services Report includes additional information. An Oregon Hospice Association
11
Accreditation survey fulfills the State’s every three year survey requirement for licensure. Also, if your program
has an Oregon Hospice Association Accreditation Survey, your hospice will likely not see a State Medicare
surveyor for six years. Thank you, Linda Downey and Denis Carnaby for your expertise and dedication to helping
hospices.
The Oregon Hospice Association’s partnership with Providence and Legacy hospices provides support to kids and
their families through the Me, Too program. This long-standing program goes straight to our core objective to
provide bereavement education and support for children and families. Meg McCauley is the Oregon Hospice
Association’s Program Director for Me, Too; her report is included. Thank you, Meg.
Like your agency, the Oregon Hospice Association relies on support from the public. Our various efforts are
another of Meg McCauley’s responsibilities. As the Treasurer’s Report and the Resource Development Report
detail, 2012 included private donations, bequests and fund-raising campaigns. Thank you, Meg, for your efforts
here as well.
The Oregon Hospice Association is your voice in both state and national groups. We represent you in
stakeholder groups like the Oregon POLST Taskforce, AAHPM and national committees like the NHPCO
Regulatory, Ethics and Governance Committees, the Council of States, the Medicaid and Pediatric
Subcommittees and the State Hospice Executives Roundtable (SHOER).
We are also engaged with our congressmen and the Hospice Action Network to advocate for improvements in
end of life care.
As you know, the Martin Luther King Holiday was this week. PBS posted a quote from Dr. King that said, “’Life’s
most persistent and urgent question is: ‘What are you doing for others?’” Certainly those of us who have chosen
hospice and palliative care as our life’s work can say, “I am improving the lives of Oregonians as they near the
end of life.” It is work that calls you each day to reach deep into ourselves to tap into our skills, experience and
humanity. It is work that provides a sense of accomplishment and satisfaction for the difference you make. On
behalf of Meg, Linda, Denis, Larlyn and me, thank you for your contributions to the dying and their families in
our state and to your support of the Oregon Hospice Association.
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50%
40%
30%
20%
0%
19.7%
60%
58.9%
55.5%
55.1%
54.8%
54.7%
53.2%
52.1%
52.1%
50.9%
50.0%
48.0%
47.9%
47.3%
46.8%
46.7%
46.4%
46.1%
46.0%
45.9%
45.7%
44.4%
44.4%
44.3%
44.2%
44.1%
43.6%
43.2%
43.2%
42.6%
42.6%
42.2%
42.1%
42.0%
41.7%
41.6%
41.5%
41.3%
40.9%
40.4%
39.3%
39.0%
38.3%
37.6%
35.6%
35.5%
34.1%
31.0%
30.3%
28.7%
28.4%
27.9%
70%
Arizona 1
Utah 2
Iowa 3
Delaware 4
Florida 5
Oregon 6
Rhode Island 7
Colorado 8
Michigan 9
Ohio 10
Texas 11
Georgia 12
Wisconsin 13
Nebraska 14
Kansas 15
Idaho 16
Missouri 17
South Carolina 18
Minnesota 19
New Mexico 20
Louisiana 21
National
Illinois 22
Pennsylvania 23
Oklahoma 24
Nevada 25
Washington 26
North Carolina 27
Maine 28
New Hampshire 29
Massachusetts 30
Montana 31
Alabama 32
Connecticut 33
New Jersey 34
Arkansas 35
California 36
Indiana 37
Maryland 38
Tennessee 39
Virginia 40
Hawaii 41
West Virginia 42
Kentucky 43
Mississippi 44
South Dakota 45
District of Columbia 46
Vermont 47
New York 48
Wyoming 49
North Dakota 50
Alaska 51
Hospice Use by State: Medicare Hospice Deaths/Total Medicare Deaths – 2012
Oregon: #6
53.2%
10%
13
0%
10%
5.4%
30%
20%
Wallowa
Gilliam
Lake
Wheeler
Harney
Morrow
25.0%
26.3%
27.8%
32.7%
34.8%
36.1%
Umatilla
37.0%
38.5%
Curry
Coos
39.4%
Grant
Clatsop
41.1%
40.0%
Tillamook
44.4%
44.7%
Douglas
National
45.1%
46.0%
Klamath
45.0%
47.1%
Wasco
Union
47.1%
Malheur
Baker
48.3%
47.3%
50.2%
Lane
Lincoln
51.1%
Hood River
Josephine
53.2%
Linn
52.1%
55.2%
Sherman
Multnomah
55.6%
Yamhill
State
56.7%
56.1%
Jefferson
57.1%
57.9%
Washington
Jackson
58.7%
Columbia
60.6%
59.3%
Clackamas
60.8%
Marion
Benton
62.8%
40%
Polk
50%
63.9%
60%
Crook
65.3%
70%
Deschutes
Hospice Use by County: Medicare Hospice Deaths/Total Medicare Deaths - 2012
80%
14
2012 Demographics & Hospice Utilization
Oregon
Population
National
3,899,353
313,878,238
32,171
2,512,991
706,296
52,209,911
26,410
2,022,574
Medicare Hospice Beneficiary Admissions
18,557
70.3% of Medicare deaths
1,257,735
62% of Medicare deaths
Medicare Hospice Beneficiary Deaths
14,051
53.2% of Medicare deaths
897,379
44.4% of Medicare deaths
Medicare Hospice Total Days of Care
1,094,885 Days
89,817,308 Days
59 Days
25 Days
71 Days
25 Days
$185,338,124
$9,988
$14,882,743,293
$11,842
Total Deaths
Medicare Beneficiaries
Medicare Beneficiary Deaths
Medicare Hospice Mean Days/Beneficiary
Medicare Hospice Median Days/Beneficiary
Medicare Hospice Total Payments
Medicare Hospice Mean Payment/Beneficiary
15
Accreditation and Hospice Consultation Services
Denis Carnaby, Hospice Consultant
Linda Downey, RN, MSHA, Hospice Consultant
The Oregon Hospice Association's Accreditation and Consultation Services continue to provide accreditation
surveys, technical assistance and more in depth consultation services to hospices who provide care in Oregon.
The Oregon Hospice Association works closely with the other OHA – the Oregon Health Authority. The Oregon
Health Authority’s Health Care Regulation & Quality Improvement (HCRQI) group experienced significant
turnover in 2013 which required relationship building and coordination.
The Oregon Hospice Association is authorized as an accrediting body by the Oregon Health Authority. Our
surveys fulfill the state licensure survey requirement. Once a hospice has achieved accreditation, the HCRQI
department surveyors are notified. In addition to fulfilling the licensure survey requirement, an Oregon Hospice
Association accreditation survey can be a valuable process to identify strengths and weaknesses in an agency's
overall quality of care and operations. An Oregon Hospice Association accreditation survey is performed by
professionals who have direct hospice experience. Being able to schedule a survey at your convenience is an
added benefit. Detailed information is included on our website, www.oregonhospice.org.
Technical assistance continues to be utilized by many hospices. If you have a question that can be answered via
a short email, you can direct those to either of us. More in depth assistance such as advice about a specific
issue, chart reviews, policy assistance or a review/opinion about a program can be provided under our
consultation services. We can discuss your issue and give you a cost and time estimate.
In 2013, the Oregon Hospice Association offered an internship to a Linfield University RN to BSN student.
Linfield required a project so a research study of Oregon hospices’ fall reduction programs was done and the
results were reported at the Professional Practices Exchange. Falls were a topic that repeatedly came up in
Provider Council so it seemed appropriate. We send a big thank you to all of the hospice programs who kindly
participated in this study. If you have topics that you think are suitable for a future student, please let us know.
It continues to be a pleasure to serve the members of the Oregon Hospice Association.
Thank you.
Denis Carnaby and Linda Downey
16
Professional Education Report
Deborah Whiting Jaques, CEO
Education is one of the key elements included in the Oregon Hospice Association’s goals. The goals for education
include:






Provide education to promote a clear understanding of hospice and palliative care to the public and to
stakeholder groups including academic institutions, businesses and other entities.
Provide information and respond to requests about end-of-life choices.
Provide professional education to hospice and palliative care providers and other practitioners of
medicine.
Encourage the completion of Physician Orders for Life-Sustaining Treatment (POLST) forms for all
hospice and palliative care patients at the time of admission.
Offer consultation services to hospice and palliative care agencies and to programs developing end of
life care.
Provide bereavement education and support for children and families through the Me, Too partnership.
The Oregon Hospice Association strives to present training that meets the ever-changing and comprehensive
needs of hospice members. A summary of the 2013 professional education is provided with this report.
The theme for 2013 Professional Practice Exchange (PPE) was “INSPIRE”. Nearly 200 hospice professionals,
exhibitors and sponsors gathered in Bend in early October to network, learn, and to re-ignite our inspiration in
our work. Plenary speakers were truly inspiring. Kristin Crusoe, a professor at the OHSU School of Nursing
presented Appreciative Inquiry philosophy opened the conference. Dr. Janet Bull, the Chief Medical Officer at
Four Seasons Hospice and Assistant professor at Duke University Medical Center presented two sessions that
focused on Debility, Failure to Thrive and other Diagnosis Dilemmas and the Art and Science of Prognostication.
From the evaluations, after 3 hours with Dr. Bull attendees still wanted more. Other excellent faculty, most
from our member hospices, filled clinical and leadership tracks and brought discipline-specific training to our
attendees. It was a very successful conference as measured by both evaluations and hugs.
The Oregon Hospice Association in partnership with Dignity Memorial, Providence Hospice, Legacy Hospice and
Kaiser Permanente Continuing Care Services sponsored a site for the 2013 Hospice Foundation of America’s
Living with Grief Program whose theme was supporting Veterans. The Providence Willamette Falls Community
Center was the perfect location for this very well attended event. Thank you, Providence, for hosting us! Also,
we thank our partners for their ongoing support that enables us to provide this education annually at no charge
for attendees.
Based on input from hospices, the Oregon Hospice Association again partnered with the Washington State
Hospice & Palliative Care Organization to host a two-day spring intensive “Regulatory Update: The New Norm”.
The two-day conference featured nationally known expert and NHPCO Vice President Compliance & Regulatory
Leadership Judi Lund Person who provided detailed regulatory status and Anne Koepsell, RN, BSN, MHA, CLNC
and WSHPCO Executive Director who provided a Conditions of Participation boot camp. The conference was
well evaluated by attendees.
Hospices’ needs are routinely discussed at both the Hospice Providers Council and the Hospice & Palliative
Medicine Providers’ Forum. These groups meet and identify educational needs, strategies, and technical issues
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which arise in the course of providing hospice care. The Education Committee takes the identified needs to
create events for each year. The 2013 Education Committee members included:
Linda Downey, RN, MSHA
Oregon Hospice Association,
Barbara Farmer, RN, CHPCA
Willamette Valley Hospice,
Barb Hansen, RN, MA, CWON
Samaritan Evergreen Hospice
Pam Matthews, RN, BSN, CHCE
Willamette Valley Hospice and Oregon Hospice Association Board of Directors
Susan Mulligan, RN, BSN
Kaiser Permanente – Continuing Care Services and Oregon Hospice Association Board of Directors
Micky Shields
Benton Hospice Service, Hospice Providers’ Council Chair and Oregon Hospice Association Board of Directors (ex
officio)
Mary Shockey, RN
St. Charles Hospice – Prinveville/Madras
Robyn Tatom
Partners in Care and Hospice Providers’ Council Co-Chair
We thank these dedicated individuals for their contributions!
In addition to professional education, the Oregon Hospice Association provides public education to community
members like churches, and academic entities like Portland State University and Portland Community College.
We are also a source of education for people who call us with a specific, real-time need for personal help with
an end-of-life issue. We are happy to be a place in a busy world where there is time to listen, empathize, and
problem solve.
The Oregon Hospice Association has been a member of the Oregon POLST Taskforce since its convening over
twenty years ago. We continue to work with stakeholder groups from around the state to ensure that
Oregonians’ end of life wishes are known and respected.
Education deliverables fulfilled by the Me, Too and the Accreditation and Consultation programs are included in
the CEO, Me, Too and Accreditation and Consultation Reports.
The Oregon Hospice Association will continue to offer a wide range of educational services that are available,
accessible and affordable to hospices serving Oregonians. We are grateful to all of you who contributed in the
planning, execution or attendance at our educational offerings.
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Professional Education Events
Date
Title
Location
Hours
Attendance
10/1-2
Professional Practices Exchange
Seventh
Mountain Resort,
14 CE
200
Hospice Providers’ Council
Hospice & Palliative Medicine Providers’
Forum
Bend
Bereavement Coordinators’ Coalition
Volunteer Coordinators’ Consortium
7/19
Hospice Providers’ Council
Lower Columbia
Hospice, Astoria
4/18
Hospice Foundation of America Living with
Grief Program: “Improving Care for
Veterans Facing Illness and Death”
Providence
Willamette Falls
Community
Education
Center, Oregon
City
4/2
Hospice Providers Council
Willamette
Valley Hospice,
Hospice Billers Forum
10
CE via
HFA
143
15
Salem
3/18-19
“Regulatory Update: The New Norm”
(In partnership with the Washington State
Hospice & Palliative Care Organization)
1/25
Annual Meeting
Hospice Providers’ Council
The Heathman
Lodge,
Vancouver, WA
Oregon Hospice
Association,
Portland
12 CE
98
35
19
Resource Development Report
Meg McCauley, Resource Development Director
Memorial Day Campaign
Number of Contributors
65
Number of Memorials
239
Net Income
$2,237
In celebration of Memorial Day, the Oregon Hospice Association invites the public to honor and remember
friends, loved ones, veterans, statesmen, and other important people who have died. Contributions to Oregon
Hospice Association made in honor and memory of individuals are posted on Memorial Tributes page on our
website (www.oregonhospice.org).
We offer our thanks to our contributors for continuing to support our campaign efforts, and also to Tim
Bergmann and Dora Papay for their time designing and posting memorials to this web page over the years.
Thanks also to Moda Health for their printing and mailing services.
Portland Marathon
Number of Contributors
Number of Names on T-Shirt
Number of Shirts Distributed
Net Income
55
55
30
$5,042
October 6, 2013 marked the 17th year of the Oregon Hospice Association’s involvement and participation in the
Portland Marathon. Each year, we invite and encourage athletes to participate in any Portland Marathon event
and raise money for the Oregon Hospice Association. There were 55 names of individuals being honored and
remembered on the 2013 commemorative t-shirt. NIKE generously contributed the commemorative t-shirts,
Moda Health provided printing and mailing services and Bergmann Design Studio again contributed the fantastic
t-shirt design.
We continue to honor the memory and vision of former Oregon Hospice Association board member Bernie
Reed, who made it possible for the agency to become one of the charities of the Portland Marathon back in
1996. Even though he died in 2000, his legacy lives on.
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Light Up a Life
Number of Contributors
Net Income
235
$16,007
Light Up a Life has been the Oregon Hospice Association’s largest direct mail fundraising campaign each year.
Many of the hospice provider programs throughout the state participate in Light Up a Life, too. People can
support hospice by purchasing symbolic “lights” on area holiday hospice trees in honor and memory of friends
and loved ones. Most hospice providers have special events surrounding Light Up a Life; Tree Lighting
Ceremonies and Name Reading Ceremonies can be found in almost every community in Oregon. Since 1996,
Moda Health has generously supported the statewide hospice Light Up a Life campaign, making it possible for
hospice providers to have well-designed mailing materials ready to send pre-winter holiday season and
providing programs with event assistance if needed. Bergmann Design Studio has provided Oregon’s hospice
providers and the Oregon Hospice Association pro-bono design services for this campaign since 1998.
Thanks again to all who continue to support the Oregon Hospice Association and to Moda Health for their
continued support and sponsorship of this annual holiday campaign.
Noteworthy Activity
Bequests
Unsolicited Donations
$ 61,971
$10,510
In addition to the fundraising campaigns, the Oregon Hospice Association received 3 bequests during 2013, as
well as unsolicited income throughout the year.
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Me, Too Report
Meg McCauley, Program Director
Me, Too is co-sponsored by Legacy Hospice Services, the Oregon Hospice Association and Providence Portland
Hospice Programs and provides grief support services to children and families. Groups alternated between eastand west-side locations (Providence Portland Hospice and Legacy Meridian Park Health Education Center,
respectively).
Me, Too held 2 groups throughout 2013, a late winter group at Legacy Meridian Park Health Education Center
and a fall group at Providence Portland Hospice. Between 5-15 families receive support at each 8-week session.
Adequate and appropriate space for holding groups is an ongoing issue. As the program moves into 2014,
options for easily workable space will continue to be [evaluated??] looked at.
Legacy Hospice and Providence Portland Hospice continued their financial sponsorship and clinician support,
and the Oregon Hospice Association provided administrative coordination of Me, Too throughout the year. The
Me, Too program also received grant funding from the Juan Young Trust/Eastern Division for support of groups
held on the east side of the Willamette River.
In addition to the granting and sponsoring agencies and Legacy Meridian Park HEC, thanks are also extended to
Governing Board and Operations Committee members Barb Farmer, Gail Mueller, Jane Brandes, Deborah
Whiting Jaques, Heather Hill, Jennifer Traeger, Jacquelyn Love and Petya Ilcheva and to the professional and
volunteer facilitators for their time and commitment to this important program.
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Oregon’s Hospice Directory
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Samaritan Evergreen Hospice in Albany
ACH Hospice & Palliative Care Services in
Ashland
Lower Columbia Hospice in Astoria
Heart 'n Home Hospice & Palliative Care, LLC in
Baker City, Bend, Fruitland (ID), LaGrande,
LaPine
Gentiva Hospice in Beaverton & Salem
Providence St. Vincent Hospice & Palliative Care
in Beaverton, Hood River, Portland, The Dalles
Partners in Care in Bend
St. Charles Hospice in Bend, Madras, Prineville
Coastal Home Health/Hospice in Brookings, Gold
Beach, Port Orford
Harney County Hospice in Burns
Bristol Hospice in Clackamas
Pacific Home Health & Hospice in Coos Bay,
Springfield
South Coast Hospice in Coos Bay
Benton Hospice Service, Inc. in Corvallis
Cascade Health Solutions: Hospice in Eugene
Hospice of Sacred Heart in Eugene
Signature Hospice in Eugene, Keizer, Tigard
Peace Health Peace Harbor Hospice in Florence
Lovejoy Hospice in Grants Pass
Pioneer Memorial Home Health & Hospice in
Heppner
Vange John Memorial Hospice in Hermiston
Care Partners in Hillsboro
Heart of Hospice in Hood River, The Dalles
Blue Mountain Hospice in John Day
High Desert Hospice in Klamath Falls
Klamath Hospice in Klamath Falls
Grande Ronde Hospital Home Care Services in
LaGrande
Lakeview Home Health & Hospice in Lakeview
Samaritan North Lincoln Hospice in Lincoln City
Community Home Health & Hospice in
Longview, Vancouver (WA)
Legacy Hospice in McMinnville, Portland
Asante Hospice in Medford
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Providence Hospice in Medford
Legacy Hospice in Meridian (ID)
Guardian Home Care & Hospice in Nampa
Samaritan Pacific Hospice in Newport
St. Alphonsus Hospice in Ontario
XL Hospice in Payette (ID)
St. Anthony Hospital Hospice in Pendleton
Adventist Health Hospice in Portland, Tillamook
Comfort Hospice in Portland
Hospice Care of the Northwest in Portland,
Salem
Housecall Providers in Portland
Kaiser Hospice & Palliative Care in Portland
Legacy Hopewell House Hospice in Portland
Portland VA Medical Center Community Health
Office in Portland
Pinnacle Hospice in Portland
Serenity Palliative Care & Hospice in Portland
Hospice of Redmond, Sisters in Redmond
Amedisys Hospice in Roseburg
Mercy Hospice in Roseburg
Willamette Valley Hospice in Salem
Mt. Hood Hospice in Sandy
PeaceHealth Hospice Southwest in Vancouver
Jonathan M. Wainwright Memorial VA Medical
Center in Walla Walla
Walla Walla Community Hospice in Walla Walla
End of Life Care – Correctional Institutions:
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Eastern Oregon Correctional Institution in
Pendleton
Oregon State Penitentiary Hospice Program in
Salem
Two Rivers Correctional Institution in Umatilla
Coffee Creek Correctional Facility in Wilsonville
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Board of Directors
Eric Alexander, CEO, Partners in Care, Bend
Jane Brandes, RN, MSN, Director of Hospice, Providence Hospice, Portland
Traci Coleman, COO, Reliant Behavioral Health, Portland
Gwen Dayton, JD, Oregon Medical Association, Portland (Chair Elect)
Carol Kast, LCSW, Portland
Pam Matthews, RN, BSN, CHCE, Executive Director, Willamette Valley Hospice in Salem
Susan Mulligan, RN, BSN, Kaiser Permanente Continuing Care, Portland (Secretary)
Tracie Murphy, The ODS Companies, Portland
Glen Patrizio, MD, Hood River
Shanon Rosick, Portland (Chair)
Richard Skyba, LifeMap, Portland (Treasurer)
Cheryl Valentine, RN, Community Health Center, White City
Ryan Weller, LCSW, ACHPSW, Department of Veterans Affairs, Portland
Hospice Providers’ Council
Micky Shields, Benton Hospice Service, Corvallis (Chair)
Robyn Tatom, Partners in Care, Bend (Co-Chair)
Oregon Hospice Association Staff
Deborah Whiting Jaques, CEO
Meg McCauley, Resource Development Director, and Me, Too Program Director
Denis Carnaby, Hospice Consultant
Linda Downey, RN, MSHA, Hospice Consultant
Larlyn Fitzpatrick, Bookkeeper
24