Behavioral Support Plan Ken Ward 3-11-09 Rationale for Support The purpose of this plan is to provide a positive and consistent approach for staff to follow when working with Ken. This plan provides information and support strategies that staff may employ to support Ken throughout his day and during times of extreme agitation. Though the plan discusses at length what should be done to support Ken when he is not adaptive, keeping Ken in a safe and adaptive space is where staff should spend the majority of their efforts. Historical Context of Supports Kenny was born to Karen Bryant and Calvin Ward Sr. on June 10, 1986. Past records indicate that he was described as a “super quiet baby” who seemed to be developing normally until his leg was burned with hot water at the age of eighteen months. At that point, he stopped using words and became very “clingy and dependent”. A growth spurt around the age of eight made it more difficult to physically redirect Kenny and the use of food as positive reinforcement during his middle school years contributed to weight and behavioral issues that had to be addressed by his high school support staff. Kenny’s parents separated when he was young and he reportedly stopped having contact with his father around the age of fourteen due to challenging behaviors that he exhibited in the home of Calvin sr. and his new wife. Attempts to re-involve Calvin sr. in Kenny’s life since that time have not been successful. Kenny’s mother Karen was his primary support person for several years and relied on help from her two oldest sons, Calvin Jr. and David Ward, to do so. Calvin Jr. lives nearby to Kenny and Karen and David. Karen’s twin sister Sharon and other relatives live nearby, but are not a source of consistent support due to reservations based on Kenny’s history of aggression toward them. Since then, Kenny’s mother has reduced the frequency of her visits to Ken’s house due to an aggressive incident on Ken’s birthday in 2009. Karen calls Kenny on the phone at least weekly. Essential Strategies Getting to know Ken Ken is non-verbal, and has a limited understanding of verbal communication. Staff are working with Ken to expand upon the signs that he already knows and uses. Ken does not understand complicated sentences, and does not appreciate staff that are “chatty”. Ken likes staff that know and follow his routines, use one word sentences that he understands, and that can reassure him that he is safe when he is feeling out of control. Ken appreciates staff that are willing to “play” with him, even if that may mean periodic moments of mal-adaptive behavior due to over-stimulation. Ken likes to help keep his place clean, and actually has very good manners. Finally, Ken enjoys being with staff that are able to keep Ken’s routines intact while making adjustments according to his mood and energy level. This is the most effective way to communicate to Ken that you are there to help keep him safe and happy, and that you are receptive to his needs. Please see Ken’s Sign Log for more information about signs that will help communicate with Ken. Approach When staff first meet Ken, they should not greet him. On one’s first day, it is essential that staff do not speak at all if possible. The first day staff should be “a fly on the wall” watching the routine, but not attempting to interact with Ken. Staff should never have conversations with each other in front of Ken unless absolutely necessary. If Ken approaches staff, they should avoid direct eye contact, and maintain a heightened awareness of where Ken is. Ken will often lean very closely to new staff, entering their space, when he initially meets them. Ken is curious, and is attempting to judge a new staff’s reaction to him. On subsequent training days, the training staff should make more contact with Ken, but it always needs to be clear to Ken who is working with him. In the past, having two care workers at a time has confused Ken. To avoid confusion, use proximity to Ken to distinguish who is working with him. Observing staff should stand well away from Ken. Care giving staff should stand an arm’s distance from him. The trainer should wear the keys round their neck to further communicate who is working with Ken. To avoid logistical issues, training staff should keep the spare set of keys on them at all times. This avoids staff having to pass keys between them to enter and exit the kitchen if the locks are engaged. A key component to working with Ken is using the icon wallet with him. When Ken solicits the icon wallet, the training staff should always be the one to take the icon and get the requested item. This give and take sets up Ken’s expectation that the new staff will be responsive to his requests. Activities Activities are a good way for new staff to establish a relationship with Ken. Though there are many activities Ken likely enjoys, few of these have yet to be discovered. Ken enjoys new items/activities, but the novelty value often fades quickly. Ken does not enjoy any type of electronic visual media such as computers or televisions. He does enjoy music of nearly any kind. Ken enjoys “dancing” with staff and bouncing on his balance balls to the beat of the music. Ken will periodically roll a ball back and forth with staff. Ken will catch a ball, but will not throw it back. Ken has been known to enjoy doing puzzles, though he has not requested doing a puzzle or attended to it very long in quite some time. Ken has some smaller rubber balls that he has been known to enjoy throwing between his hands, rolling round, and squeezing. Ken enjoys being outdoors, and should be outdoors for some period of time every day, weather permitting. Ken enjoys going on walks of varying length with staff. Ken is a climber and loves playground equipment. He enjoys the odd body positions and counter-force climbing activities present. A timer should be used when Ken is climbing on appropriate surfaces, as he tends to get to the top and then fall asleep which presents a fall risk. A ten minute timer should be set, starting from when Ken reaches the top. Once Ken has come back to the ground, the timer can be reset, and Ken can resume climbing if he so chooses. Ken enjoys doing house work and maintaining his home. Ken has a blue activity bin in the spare bedroom. Activities that can be offered or solicited by Ken are stored in that area. Ken has basketballs that he may either play with in the house, or at the basketball court in the park. Ken enjoys playing “tag”. Staff should only attempt this when Ken is in a good mood, and their relationship with him has a solid basis already. Ken enjoys this activity both at home and in the park. In the community, this should only be done where there is a natural “end” point to the activity such as a tree wall, or building, as getting Ken to stop running can be challenging without such barriers. Staff should never chase Ken near a road. Staff touch Ken on the shoulder, say tag, and then stomp their feet fast and loud. If Ken starts to move a little faster, run after him. Ken will signal excitement and laugh very long after tag sessions. Ken will not chase staff. Tag should not be continued after a few minutes or Ken will become over-stimulated and the activity will cease being fun for either of you. Ken has enjoyed doing water colors and coloring with crayons and markers. Ken will periodically play with legos for a time, and tends to enjoy looking at other children’s toys. There are play materials (such as play dough, floam, glurp etc.) at the house that Ken has been known to enjoy manipulating. Staff remain, however, Ken’s primary source of stimulation. Staff interactive activities include dancing, pushing and pulling to music, joint inputs (from the OT tasks list), and massage. There is a vibrating massager that staff can use to help with massages. In the spring of 2012, Ken’s team plans to purchase a trampoline for Ken to use. Trampolines can be dangerous, and staff should use it at their own risk. A timer should be used during this activity. Please see the trampoline protocol for further details. Please contact your supervisor for other activity ideas and feedback on activities you have done with Ken. His team is always looking for more ways to help Ken enjoy recreational activities. At home Ken receives one to one, 24 hour support with asleep overnights. Ken must be within staff earshot or eyeshot at all times, unless he is in the secure section of the house with the parameter locks engaged. Staff may not leave the premises when Ken is in the house with the parameter locks engaged, though they may be outside the residence for work purposes such as getting the mail or shoveling snow. When staff are outside the house for work purposes, they should be checking on Ken at least every five minutes. Staff should not remain outside the house without Ken for any reason for more than twenty minutes (use the timer) as it can be stressful to Ken. For large tasks such as snow removal, multiple sessions may be required to complete the task. To minimize the need for staff to leave the house without Ken, Ken’s landlord provides lawn care and snow removal services for heavy snows. Light snow removal (less than 2 inches) remain the responsibility of Ken’s staff (there is ice melt in the garage). In the community Staff must always be within an arms length of Ken. When Ken needs to use the restroom, staff must accompany. If staff must use the restroom, Ken must accompany. The best strategy is to have Ken wait in the bathroom stall while staff use the urinal, or to have Ken use the stall next to them when making a bowel movement. Ken must be wearing his backpack while he is in the community, and staff must be carrying the staff cell phone (or their personal cell phone with the appropriate numbers programmed in if they prefer) and the staff backpack with Ken’s additional supplies. Staff must put their hand on Ken’s backpack and say “Street” when crossing the street. Staff should also put their hand on Ken’s backpack when approaching potential stressors or dangerous areas. Ken’s backpack is not to be used as a restraint device, but does provide something to grab onto should Ken attempt to run into traffic etc. Staff should avoid areas that are filled with fast food restaurants and large groups. Ken loves the outdoors, and should be going outside as often as weather permits. Staff should not attempt to take Ken to shopping areas etc. without consulting their supervisor first. Staff may not transport Ken in their personal vehicles alone. If staff choose to transport Ken in their vehicle, another staff must be present as Ken has a history of aggressing toward the person driving the car and attempting to jump out of the car even if that means jumping into the front seat to do so. In any car, Ken must sit in the rear passenger seat with staff in the seat next to him to protect the driver. When driving in a personal vehicle, the use of the child safety lock feature is approved and recommended for the door closest to Ken. It is recommended that Ken wear his backpack across his chest while being transported in cars. This can provide staff with a soft barrier to use to block attempted bites, and to limit Ken’s ability to physically aggress. Staff will need to help Ken with his seat belt, and ensure that he continues to wear it while the car is in motion. Daily Structure Ken’s day is punctuated by several routines. Ken’s routines structure his day, and help him understand his environment and staff expectations. Given Ken’s diagnosises and support needs, it is very important that staff help Ken move through his day by following his routines. The following will provide a brief overview of a typical day in Ken’s life, and procedural instruction for more complicated routines. Please note that no two days are exactly the same, and times for events, with exception of food stations, will vary slightly according to Ken’s mood and level of neurological interference. Though operating too far outside Ken’s schedule greatly increases the probability of a behavioral escalation attempting to follow the schedule too closely on days Ken needs more time may also result in escalation. Staff should treat Ken’s schedule as something to help him through the day, NOT a regime to force upon him. Daily Schedule Ken tends to wake up between 5 a.m. and 8 a.m. As Autism tends to cause chronic sleep disruption, Ken may be awake several hours of the night and lethargic during the day, or vice versa. This schedule presumes Ken woke up around 7 a.m. Monday Wakeup/grooming Staff transition to channels, (FS 1), Meds, initial steam Walk to park/pick-up (FS 2 10a) Skin In home activity FS 3 12:30 Joint inputs & blood kits Walk/FS 4 3:30 trns to CAI, long steam Joint inputs Walk/meds (4:30 FS 5) laundry/ cooking/ cleaning walk Shower/ grooming meds 8 p.m. FS 6 7:45p Tuesday Wakeup/grooming Staff transition to channels, (FS 1), Meds, initial steam Walk to park/pick-up (FS 2 10a) Skin In home activity FS 3 12:30 Joint inputs & blood kits Walk/FS 4 3:30 trns to CAI, long steam Joint inputs Walk/meds (4:30 FS 5) laundry/ cooking/ cleaning walk Shower/ Grooming meds 8 p.m. FS 6 7:45p Wednesday Wakeup/grooming Staff transition to channels, (FS 1), Meds, initial steam Walk to park/pick-up (FS 2 10a) Skin In home activity FS 3 12:30 Joint inputs & blood kits Walk/FS 4 3:30 trns to CAI, long steam Joint inputs Walk/meds (4:30 FS 5) laundry/ cooking/ cleaning walk Shower/ grooming meds 8 p.m. FS 6 7:45p Thursday Wakeup/grooming Staff transition to channels, (FS 1), Meds, initial steam Walk to park/pick-up (FS 2 10a) Skin In home activity FS 3 12:30 Joint inputs & blood kits Walk/FS 4 3:30 trns to CAI, long steam Joint inputs Walk/meds (4:30 FS 5) laundry/ cooking/ cleaning walk Shower/ grooming meds 8 p.m. FS 6 7:45p Friday Wakeup/grooming Staff transition to channels, (FS 1), Meds, initial steam Walk to park/pick-up (FS 2 10a) Skin In home activity FS 3 12:30 Joint inputs & blood kits Walk/FS 4 3:30 trns to CAI, long steam Joint inputs Walk/meds (4:30 FS 5) laundry/ cooking/ cleaning walk Shower/ grooming meds 8 p.m. FS 6 7:45p Lays down to sleep Lays down to sleep Lays down to sleep Lays down to sleep Lays down to sleep Saturday Wake-up 8 a.m. Staff transition to cai, (FS 1), Meds, initial steam Walk Sunday Wake-up 8 a.m. Staff transition to cai, (FS 1), Meds, initial steam Walk Time 7-8 Walk/FS 4 Cooking, Cleaning, portioning, Joint inputs Walk/meds (4:30 FS 5) laundry/ cooking/ cleaning walk Shower/ grooming meds 8 p.m. FS 6 7:45p Lays down to sleep Walk/FS 4 Cooking, Cleaning, portioning, Joint inputs Walk/meds (4:30 FS 5) laundry/ cooking/ cleaning walk Shower/ grooming meds 8 p.m. FS 6 7:45p Lays down to sleep 2-3 3-4 8-9a 910a (FS 2 10a) (FS 2 10a) 10Skin Skin 11 In home In home 11activity activity 12 FS 3 12:30 FS 3 12:30 12-1 Joint inputs Joint inputs 1-2 4-5 5-6 6-7 7-8 8-9 9-10 Routines Food and Eating Food stations Due to Ken’s dietary proclivities, family history of diabetes and tendency to not understand portion control, a series of structured food stations have been developed with consultation from a nutritionist to ensure that Ken is provided with both choice about what he is eating and ample nutrition. Ken is provided with 20 minutes on the timer to complete each food station. Staff should not stand in the room with Ken while he is eating due to his tendency to become cue dependant while eating. Staff should, however, stand in the kitchen where they can see Ken in the reflection on the window, or through the window by the refrigerator. Staff must monitor Ken relatively closely to ensure that he is not choking. Ken tends to eat extremely quickly, moving the plate to his mouth and shoveling food into it as a bulldozer would push dirt. For this reason, all of Ken’s food must be cut into bite sized pieces prior to serving it to him. Food station times should be as consistent as humanly possible given the importance they play to Ken and for keeping him within his structure. After the 20 minute timer has rung, staff should take a wet rag, a dry rag, and the dish bin from under the sink to the table. Staff should then ask Ken to put his dishes in the dish bin and put his ball away. Then ask Ken if he would like to wash or dry holding up both rags. After Ken chooses a rag, begin cleaning the table with Ken by wiping it with the appropriate rag and counting slowly to five as you do so. As verbal stimuli are challenging for Ken, simply tapping your foot five times is generally preferred. Then ask Ken to do the same, counting to five as he scrubs the table. When the table is clean and folded up, staff should ask Ken to sit on the toilet, and the food station is complete. Periodically, Ken will abruptly change this routine with a few variations: folding up the table and bringing the dishes to the staff, bringing just a cup to the staff, or simply leaving the area all together. If Ken chooses to change his routine, that is his choice. Staff should not attempt to force Ken to do it as it is written if he chooses to do it otherwise. Typically, if he leaves the area altogether it is because he needs to use the bathroom prior to the timer being completed. Attempting to make Ken wait for the timer to ring to use the bathroom is inappropriate. When Ken brings just the cup to the staff, he is typically a little extra thirsty and would like an additional cup of water. Simply take the cup, ask Ken to return to the table, bring him some water and complete the routine. This is Ken attempting to communicate, we should encourage this. When Ken folds up the table and brings the dishes to staff, staff should compliment Kenny on taking care of his house. This is Ken showing independence and initiative which is our goal. The table routine is not more important than Ken’s independence and initiative (just wipe the table later). Please note that FS #1 cannot begin prior to 5:30 a.m. and the overnight food station is initiated by Ken and can happen at any time. The issue with giving Ken breakfast prior to 5:30 a.m. is that this signals the start of a morning routine that logistically cannot be followed through on until the appropriate time. New Foods For the last several years, Ken’s team has been working on strategies to introduce new (healthier) foods to Ken, and to increase the variety of foods that he is eating on a daily basis. In the past, several strategies have been attempted to accomplish this with limited results. In February of 2010, Ken’s team decided to use random chance to accomplish what planning had failed to do, resulting in many improvements in Ken’s diet. If staff have ideas for healthy food items Ken may enjoy, please feel free to mention them. If staff have healthy food items in their lunches that they feel Ken may enjoy, they may feel free to offer a small portion of it to Ken with one of his food stations. They are then asked to document the food item and results on Ken’s food chart on the bulletin board. If Ken has enjoyed the healthy food, additional portions of it will be offered to Ken. If Ken refuses the additional portions three times, his initial acceptance of the food item will be considered a fluke. If he accepts the portions of food three times, home staff will attempt to add it to the menu. It is Ken’s team’s goal to have Ken eating a different series of food stations every day of the week. Fruit and Vegetables Ken is not a big fan of fruits and vegetables. Offering them with every meal seems to be helping Ken become accustomed to seeing them, and has definitely helped him try a few things he may not have otherwise. That said, Ken often (99.9% of the time) leaves them untouched on his plate. To prevent excessive waste, staff should store the untouched fruit or vegetable serving in a Tupperware container in the refrigerator between meals so it can be offered at each food station. The unused portion of the fruit or vegetable should be discarded after the final food station of the day. It is important to note that, though Ken will eat both raisins and prunes, he should not be eating or offered more than one serving of each daily. As both are diuretics, overconsumption can be harmful to Ken. The “naked” brand juice Ken consumes three times daily should be measured and metered out carefully. It is not only rich in nutrients, but also calories and expense. Ken’s Food Stations Revised: 10/16/11 FS # 1 ~ 8:30 a.m. 1 cup raisins 1 slice of American cheese 1 bowl of cereal (w/ 1 cup of milk to 1 cup of dry cereal) 4-7 oz “naked” juice 4-7 oz water - offer one cup fruit or veggie -** FS #2 ~ 10:00 a.m. 1 serving oatmeal w/ apple sauce 2 slices of turkey bacon 4-7 oz “naked” juice 4-7 oz water - offer one cup fruit or veggie - FS #3 ~ 12:30 p.m. 1 cup Hamburger Helper 4-7 oz “naked” juice 4-7 oz water - offer one cup fruit or veggie - FS #5 ~ 2:30 p.m. 1 cup Mac & Cheese 4-7 oz water - offer one cup fruit or veggie - FS #5 ~ 4:30 p.m. 1 chicken breast 1 serving of fries (1 large handful) 4-7 oz water - offer one cup fruit or veggie - FS #6 ~ 7:45 p.m. 2 slices of cheese pizza (to equal ¼ pizza) 4-7 oz water - offer one cup fruit or veggie - FS #7 ~ overnight* granola bar 4-7 oz water Meal Preparation For staff safety, and Ken’s, staff will do all cooking prior to the meal without Ken’s assistance in the kitchen. There are five primary food items that must be prepared prior to the meal: Mac & Cheese, Hamburger Helper, Turkey Bacon, pizza, chicken breasts. To prepare Mac & Cheese, follow the instructions on the box. Preparing two boxes at the same time allows for easier measuring (1 whole stick of butter, ½ cup milk). Allow the Mac & Cheese to cool. Take 1 cup measuring cup, 6 Tupperware containers, and matching lids with the Mac & Cheese to Ken’s activity table. Ken should work with staff to portion his food by scooping the food with the measuring cup into the containers. Do not use the word scoop in front of Ken – see physical interventions portion of this plan. To prepare Hamburger Helper, begin by determining if there is precooked ground beef in the box, fridge, or freezer. If there is not precooked ground beef, staff should thaw and cook three pounds of beef. When cooled, portion the beef into three equal sized servings, package and freeze two of the servings. Take the third serving, or the precooked beef, and cook following the directions on the box. Cook one box at a time. Allow the food to cool. Take 1 cup measuring cup, the food, 5 Tupperware containers with matching lids and go to the activity table. Ken should work with staff to portion his food by scooping the food with the measuring cup into the containers. Do not use the word scoop in front of Ken – see physical interventions portion of this plan. To prepare pizza, Grooming With each of the following procedures, you first have Ken do what he needs to do while counting to 5, and then repeat the action yourself while counting to 5. For instance, hand Ken a moist paper towel to wash his forehead, point to his forehead and say “forehead.” Ken may look at you and try to hand the towel back to you. In these instances, point to his forehead again and gently prompt: “Kenny, help.” Ken will then begin to wipe off his forehead. While he is doing that, count: “1 – 2 -3 – 4 – 5”; Then, Ken will hand you the towel back – you repeat the same action (wiping his forehead) and count. Then move on to the next portion of grooming, again having Kenny begin and you follow up. Here is the order you should do things in: 1) Have Kenny sit down on the toilet; Grab one of the balls from the living room to sit on yourself. 2) Get the yellow bag from the care closet (next to the bathroom – key is on the keyring). Also, get a roll of paper towels for face-washing. 3) Have Ken wash his face in the manner described above – in the following order: 1. forehead 2. eyes (closed – first left then right – get the “sleep” out) 3. nose 4. cheeks (first left then right) 5. mouth 6. chin 4) Have Ken brush his teeth using the same counting procedure in this order: 1. top front 2. top back 3. bottom front 4. bottom back 5. left top front 6. left top back 7. left bottom front 8. left bottom back 9. right top front 10. right top back 11. right bottom front 12. right bottom back 13. tongue Finally, place Ken’s finger in the Carmex, and he will apply a layer on his lips. There are gloves in the bottom bathroom drawer. Sleep Ken is supported with asleep overnight staff. Ken will go to sleep generally between 10 p.m. and 11 p.m. As a feature of his disability, Ken’s sleep is often disrupted, and he can be up for several hours during the night. Staff should prepare for overnights with Ken by attempting to get adequate rest prior to arriving in case Ken is awake. If staff are scheduled for extended periods of time at the house and Ken has had a night during which he has been awake for the majority of the time; staff should call their supervisor or on-call supervisor to report that they have not received adequate sleep to continue working with Ken competently. This phone call should be made no more than 3 hours prior to the time at which you anticipate functioning under par due to exhaustion. Replacement staff or supervisor support should arrive prior to that time. Prior to initiating the sleep portion of the shift, staff should close the front door and engage the parameter locks. Staff should push and pull on the front door from inside the residence to ensure that it is locked appropriately. In the past, the door has been “ajar” when the locks have been engaged and Ken has exited the premises without staff. Procedures for elopement are discussed later in this plan. With the kitchen door ajar, engage the parameter locks and enter the kitchen. Close the kitchen door, and engage the parameter locks. Push and pull on this door to ensure that it is locked. If it is locked, staff may enter the staff area at the back of the house where they may sleep. Structure Timer Ken’s timer is the most important tool to structure his day, complete activities, and help him make transitions between activities. Ken’s timer is his watch, calendar and planner rolled into one; it gives Ken a sense of control over his world. Timer durations will vary slightly day to day based on Ken’s mood and ability to move between tasks. The following should be a rough guideline of average times for timers. Additionally, timers should be used any time there is a need to ask Ken to wait, and should always to be used to structure unstructured time. Walks tend to be times when Ken does not work well with a timer, as walk times are more contingent on Ken’s energy level, how many stressors are in his environment, and weather conditions. Also, operations that have defined end times, such as folding laundry and doing blood kits do not necessarily have to be accompanied by a timer. The timer is meant to help Ken understand beginning and end times for activities that have no defined duration. Steam: Initial Steams: 15 minutes Each additional Steam: 2.5 Lowest Steam time: 2.5 minutes Food Stations: 20 minutes Walks: No timer is used Waiting: Ask how long the expected wait will be…more minutes can be discretely added to the timer if needed. Between Activities: 15 minutes of down time on the mat table Skin: 4 minutes of staff lying near Ken, skin conditioning is finished upon completion. Ken will generally attempt to get up half way through; this most often means that he requires the use of the restroom. Shower/Grooming: no timer, natural end point Climbing: 10 minutes from when he gets to the top Blood Kits: no timer, natural end point Down Time: 5 minutes (staff not in the area) Home Modifications and Procedures Ken’s house has been modified in the following ways to ensure that he can live safely in the least restrictive environment possible. Given the nature of Ken’s disabilities and behaviors, some of the modifications made to the house have needed to be authorized by the Dane County Restrictive Measures Committee. The need for these modifications will be reviewed at each of Ken’s team meetings, and all restrictive measures will cease when Ken’s behavior changes in such as way as to make not having these modifications safe. Windows Ken has a history of breaking large and small pieces of glass. Because Ken does not see the danger presented by broken glass, he has sustained severe cuts from handling or walking through broken glass. For this reason, all of the glass windows in Ken’s home have been covered with Lexan, a material that is shatter resistant. All of Ken’s light bulbs are “rhino coated”, shatter resistant bulbs. All plates and drinking cups will be made of shatterproof plastic. All glass mirrors and other glass items have been removed from Ken’s house. Internal Doors Ken has in the past, locked himself in small rooms, such as bathrooms, for extended periods of time while engaging in property destruction. In December of 2008, Ken locked himself in the bathroom in the staff area of the house and broke the toilet and the pipes connecting to it. Aside from causing significant damage to his house, Ken injured himself on broken porcelain and glass from the mirror. For this reason, all internal doors have been removed with exception to Ken’s bedroom door. External Doors Ken has a history of eloping from his home without staff. Given Ken’s inability to recognize dangerous situations, including dangerous cold and snow, a magnetic locking system has been installed on the front door to ensure that Ken cannot leave his home without staff accompaniment. The same type of lock on the kitchen door prevents Ken from entering the kitchen and accessing the back door of the house which does not have a magnetic lock. The parameter locks (magnetic locks, aka restriction locks) must be used any time staff cannot see Ken for any reason. The parameter locks are controlled by a small remote control on the staff key chain. This key ring should be in the possession of staff at all times. Parameter locks should be engaged at all times when staff are outside the house to shovel or retrieve mail, in the rear of the house in the staff area, in the restroom etc. Staff should also use the parameter locks during times when elopement potential is elevated such as when Ken is very agitated, in emotional or physical distress or during overnight hours when Ken a significant elopement history. Though staff should evacuate into kitchen, engaging the parameter locks behind them, when Ken is being physically aggressive; the locks should not be engaged for a period of time longer than twenty minutes without checking on Ken. Parameter locks are not used to force seclusion, they are there to contain Ken in a safe environment while he regains his emotional equilibrium. The parameter locks are linked to the home’s smoke detectors. Should the smoke detectors be activated, the parameter locks automatically disengage so that no one could be inadvertently locked in the home should a fire start. Locked kitchen Ken has a history of having safety related issues in the kitchen. He also has demonstrated not only an inability to determine when he has eaten enough, but also that having access to food can be a significant stressor. For that reason, there is a solid core door between Ken’s living room and kitchen. Ken should not be permitted in the kitchen at any time or any reason. The kitchen door is keyed to the parameter locks. Letting Ken in the kitchen “simply to retrieve what he wants” may seem convenient, but it is not. Letting Ken into the kitchen sets up an expectation that you and other staff cannot follow through on. Do not let Ken in the kitchen. Staff office The door between the kitchen area and the staff area is lockable with a key. This is to ensure that even if Ken gains access to the kitchen area, he cannot access the non-modified staff area of the house. Given the staff area of the house is not modified, it is not a safe environment for Ken. In the past, when Ken has been able to access the staff area, he has destroyed the toilet, broken glass, locked himself in the bathroom, and thrown the chairs through the drywall. Do not let Ken in the staff area of the house for any reason. Furniture All furniture items have been removed from Ken’s house and replaced with durable “mat tables” that are bolted to the floor. Ken has a history of breaking other furniture items during times of stress, and generally tends to be “hard” on these items even when not agitated. Safer furniture, such as bean bag chairs and exercise balls supplement the mat table to meet Ken’s furniture needs. Ken has two tables bolted to the wall that can fold down when not in use. One of these tables is for activities, and the other is for eating. These tables are durable and present less of a danger of being damaged or destroyed because they are foldable. Personal Effects Due to the risk of Ken breaking, throwing, or hitting with small items these items are stored in locked closets. Ken may have access to “knick-knack” type objects upon request. When these items are no longer in use, they should be returned to the locked area from which they came. Stressors and Interventions Staff should work to proactively anticipate and plan for stressors in Ken’s day. The below is a list of known stressors for Ken, and intervention techniques that have worked to help Ken cope with them in the past. Stressors Food - seeing McDonalds - seeing food in trash cans - seeing staff eating preferred food items Parked Cars - Ken will attempt to climb on top of cars - Ken will attempt to enter cars he thinks are unlocked - Ken will lock himself in cars he is able to enter Too much talking - Ken will become increasingly agitated the longer he is subjected to people talking - “chatty staff” Intervention Strategies - keep all food in Ken’s kitchen - do not bring McDonalds to Ken’s - Try to eat when Ken eats - Eat in the staff kitchen - Avoid letting Ken see you eat - Do not go on walks to areas that have many fast-food restaurants - Do not take Ken into food stores - Scan the area more than fifty paces in front of your location while on walks for garbage cans without lids, and trash on the ground - Stick to the food stations - Avoid walking too close to cars that people will exit when Ken is nearby - Avoid parked cars whenever possible - Lock your car doors when at Ken’s - Staff should park on the side of the house nearest the kitchen, where Ken cannot see them entering or exiting their vehicles - - attempt to avoid situations where Ken will be subject to too much talking Do not talk to Ken yourself more than is necessary Move Ken away from people that are talking loudly - Staff changes - Change is stressful for Ken - When staff change, Ken can be confused as to who is working with him - Ken may prefer one staff to another Planned or Unplanned Company - Anyone stopping in at Ken’s can be stressful for him. - Solicitors - Ken’s family - Ken’s team If there is a situation, such as a doctor’s appointment, that necessarily entails a lot of talking; give Ken a PRN before the appointment. - If Ken has been subjected to too much talking, reduce the amount of verbal communication you use - Encourage a steam if you note that he is becoming agitated - Give Ken a “high five” immediately when entering the house - follow through with the food station immediately upon entering the house - use a 15 minute timer on the steam when Ken requests it - resume Ken’s schedule - be consistent with other staff If the company is not Ken’s family: - Ask the company to call your supervisor and schedule and appointment to return. - Let Ken take a 15 minute steam if requested. - Resume Ken’s schedule If the company is Ken’s family: - Be polite to Ken’s family - After they leave use as little verbal communication as possible - Allow Ken to take a 15 minute steam - Give Ken a Risperdal PRN if according to protocol Garbage Cans - Ken has been known to use garbage cans as food sources, and become frustrated when he is not able to eat/drink what he finds - Given the speed Ken eats/drinks it is nearly impossible to get whatever he picks out of the trash away from him prior to him eating/drinking it - - - Attempt to avoid walking too close to garbage cans Keep Ken’s garbage cans where he cannot see them at home If Ken fishes a food product out of the garbage can, move him away from the garbage can If Ken fishes a beverage out of the garbage can, move him away from the garbage can Scoop Ken past the garbage can Toileting - Ken can become extremely frustrated when he needs to use the bathroom, but is not being prompted - Ken can become extremely frustrated when he is out in the community and is told that he cannot go to the bathroom where he is standing - - - Restricted areas - Ken points to go to the basement - Ken points to go to the kitchen - Ken points to go to the staff area - Ken attempts to grab the keys from staff - Ken attempts to push his way into the kitchen - Ken attempts to enter the house from the rear door - Ken attempts to enter another house, yard, or vehicle - Under Stimulation - Ken gets bored and does not know how to deal with this emotion - Ken has been isolated too long - Ken has not had sufficiently stimulating activities during the day - Ken is becoming agitated and the bathroom has already been offered - Ken will fluctuate between over stimulation and under stimulation throughout the day Over Stimulation - Ken has had too much stimulation during the day - There is too much noise - There are too many distractions - Staff expectations are too high due to neurological interference - Ken will fluctuate between over stimulation and under stimulation throughout the day - - - - - - - when it is not an option to avoid them Plan ahead Ask Ken to sit down every time he uses the restroom Prompt Ken to go to the restroom at least four times during any eight hour period Always prompt Ken to use the restroom prior to leaving the house with him If Ken is becoming agitated and there does not appear to be a clear antecedent event, offer the restroom Be aware of Ken’s agitation level If Ken has attempted to push his way into the kitchen, engage the parameter locks If Ken is attempting to enter a restricted area from outside the house, end the activity and return to the secure area within Ken’s house If Ken is attempting to grab the keys, but them in your REAR pocket ~ he will continue to grab at them if he knows where they are, including a front pocket Always pay close attention to Ken’s behavior Determine if he is under stimulated or over stimulated by attempting to offer activities Turn on the radio Dance with Ken Go on a walk If Ken seems to become frustrated by offered activities, he is likely over stimulated Always pay close attention to Ken’s behavior Turn off the radio Increase your distance from Ken Give Ken a “down time” timer and leave the area If training, remove yourself from the area for a few minutes Family Contact - Ken loves his family, and does not want them to leave - Ken hopes his family will have fastfood - Due to the amount of emotions Ken feels when he sees his family, Ken becomes over-stimulated - Ken is not yet fully adjusted to life in his own residence - ABC Gum - Ken has trouble identifying when he is done chewing his gum - Ken may want the same piece of gum back after he has spit it out - Ken will throw his gum in the toilet and then put it back in his mouth - Ken will throw is gum in the trash and then pick it out - - - If possible, Ken should be given a Risperdal PRN prior to prolonged contact with his family Allow Ken time to relax & stabilize in a steam Offer activities Ken will signal that he is done with the gum by playing with it with his fingers, or attempting to offer it to staff Ask Ken where it goes Direct Ken to the bathroom Ask Ken to place the gum in the toilet Ask Ken to flush the toilet Say “It’s gone” Approved Physical Intervention Techniques The following is a list of physical intervention techniques that have been approved by the Dane County Restrictive Measures Board and Ken’s support team on 1/13/09. Please note that this list is comprehensive, and the use of unauthorized techniques can be considered abuse depending on the circumstances. Staff should always choose intervention strategies that are the least restrictive possible given the situation, and should attempt other interventions in favor of physical interventions whenever possible. Detailed explanations will be included for more complicated interventions. All staff working with Ken should attend MTC training through the Waisman Center to be trained in the use of the following techniques. Please contact your supervisor with questions. - evacuation hit block kick block use of ordinary objects as shields hold release choke release bite release protective posture safe distancing techniques scooping bulldoze bear hug Backpack escort One person escort - Two person escort Definitions Evacuation Evacuation refers to leaving a potentially dangerous situation as possible. “Fleeing with dignity”. Evacuation is the best technique to use with Ken. Evacuation cannot be used in the community due to the risk of elopement. When possible, staff should remove themselves to the locked kitchen when Ken has physically aggressed, and stay in the locked kitchen until it is safe for them to return to the common areas. Protective Posture Assume a proactive stance when Ken is in emotional distress to be ready for possible physical distress. Staff should raise their arms to protect their head (using forearm like a shield), feet shoulder distance apart, knees slightly bent, one foot slightly ahead of the otherfingers are together but not in a fist. Safety distancing This is the area where staff are the safest. The safety zone is the area that is an arm’s length distance from Ken and slightly behind him. Using the protective posture and safety zone in conjunction will provide make it significantly more difficult to be hit, kicked, head butted, bitten or charged. Scooping When staff are walking with Ken and a potentially stressful or dangerous situation/area is identified, and the area/situation cannot be avoided, scooping is used to help Ken through the area as quickly as possible. Staff should place one hand on Ken’s back or backpack strap and apply resistance to Ken’s back while walking faster. Staff should say the word “scoop” to Ken prior to applying resistance to ensure Ken is prepared and reduce the risk of him stumbling. Bulldoze Using the protective posture, move into Ken’s space, pressing him backward and away from a dangerous situation. When he has moved enough to hold him in position for a 3 count, then move away. Bulldozing may also be used when Ken is attempting to charge past staff into an unsafe situation. Bulldozing Ken when he is standing in front of staff is not recommended, and should only be used in an emergency situation. Bear hug Standing behind Ken, staff should sweep their arms over Ken’s head and upper torso to the bottom of his rib cage pinning his arms against his body. This intervention should be used to stop Ken from hitting staff while moving him to a safer environment. A protective posture must be maintained from behind Ken, tucking your head off to the side, to avoid head butts. Modified backpack escort When Ken is crossing the road, or staff identify a potential stressor in the community, place one hand on the strap of Ken’s backpack. Backpack escort Place one hand on the strap of Ken’s backpack and the other on his upper arm. Backpack escorts should be used when Ken is attempting to “bolt” or elope in the community. The backpack escort is used to help guide Ken to a safe location or away from potential or actual dangers. One-person escort Staff place one hand (thumbs tucked against your palms) on the inside of Ken’s upper arm and the other on the outside of his opposite shoulder to guide him to a safer area. Two-person escort This intervention is used when there are two staff present, and a one-person escort is not safe due to Ken’s behavior and Ken is in immediate risk of being injured due to unsafe conditions i.e. he is in the road etc. The two-person escort is executed by placing one hand between Ken’s arm and body, grasping his upper arm, and placing the other hand on Ken’s wrist. Both staff should hold onto Ken in this manner, walking slightly behind him with their hip pointed to Ken’s hip. Staff should use this escort to guide Ken out of danger releasing immediately upon entering an area safe enough to release him or use a one-person escort. Behavioral Challenges and Intervention Strategies It is important to note that Ken’s patterns of aggression are not premeditated. Though Ken can be very physically aggressive with staff and objects, this behavior is generally motivated by either the intention to remove a barrier (staff or items) between Ken and what he wants, or reflexive as in the case of Ken hitting staff when they attempt to move him away from such objects. Ken’s ability to communicate is very limited, and his team believes that much of his aggression is caused by being unable to adequately communicate his needs and desires to staff. Ken tends to slap at staff with over head “swats” instead of throwing coordinated punches. Ken tends to be physically aggressive in “bursts” rather than “attacks”, meaning that there is not a series of coordinated strikes intended to injure staff. Instead, there are one to two swats, generally not lasting longer than staff are between Ken and the item/area he is attempting to access. Immediately after Ken has calmed down, he will attempt to make contact with staff to reinforce his relationship with staff. This is a great time to give Ken a high 5 instead of avoiding him or becoming intimidated by him. It is important to note that Ken gives clear warning signals of distress, and will most times, provide staff with many indicators that he is beginning to feel unsafe or out of control. For instance, Ken will often request the use of the icon wallet to receive a stabilizer during times of stress. Often, Ken’s ability to cope with these stresses are contingent upon the ability of his staff to determine what he is requesting and to comply with that request. That said, some instances of physical aggression are unavoidable no matter the efforts of his staff. The list of behavioral challenges is far from comprehensive, intending instead to highlight specific behavioral challenges that staff will find most challenging. A definition of the behavior will be included as will examples of the behavior, possible intervention strategies, examples of when it may occur and how often staff can expect to see the behavior. Behavioral Challenges Physical aggression: Intervention strategies - maintain calm - hitting biting kicking slapping pushing pulling Examples of when it may occur - When Ken has been over or understimulated for an extended period of time - When staff are making demands of Ken that are not consistent with his mood and level of neurological interference - When significant stressors are encountered and immediate dissimulation is not possible - As a reflex action when staff are forced to say no to Ken - As a reflex action when staff have placed themselves between Ken and a desired object Behavioral Challenges Elopement - Ken attempts to leave his home without staff present - Ken attempts to run away from staff when they are in the community - maintain a safe distance prepare to defend attempt to remove possible stressors use approved techniques attempt to remove yourself into the secure kitchen if you feel unsafe - Offer Ken a PRN according to the protocol for use - Call for back-up if you feel the situation is becoming unsafe, unmanageable, or if you feel yourself starting to loose emotional equilibrium. Frequency Ken will have low level instances of physical aggression (a single hit or slap) on a weekly basis. Ken will have an instance of prolonged intense physical aggression (lasting more than 20 minutes uninterrupted) about once a month. Intervention strategies - maintain calm - Ensure that the front door is closed tightly prior to going to sleep for the night - If in the community, use a backpack escort to remove Ken to a safe location - If a backpack escort is not possible due to continued aggression use a one person escort to remove Ken to a safe location - If a one person escort is not possible, call for back-up and use a bear hug to help keep Ken from endangering himself while waiting for additional support staff - If Ken has eloped during sleep hours Examples of when it may occur - Ken can attempt to elope almost any time he feels that he can leave his home when staff are not attending him - Ken can attempt to elope in the community when staff are attempting to redirect Ken away from an object he desires - Ken can attempt to elope when he sees an item or destination that he desires Behavioral Challenges Verbal Agitation - Ken will engage in long periods of time during emotional distress in which he will scream and yell Examples of when it may occur - Ken will engage in verbal agitation when he is emotionally distressed due to some source of stress that he is not able to cope with. Though he may physically aggress at this point, it is not a guarantee. - Ken will engage in verbal agitation to show frustration at not being able to communicate needs and desires - Ken will engage in verbal agitation when he is not able to execute desired activities or when staff indicate that he cannot do something or other time during which staff are not directly aware of when Ken may have eloped, OR if Ken’s whereabouts have been unknown for a period of 30 minutes or longer, please call 911 and inform them that there is a vulnerable adult whose whereabouts are unknown. Frequency Ken has successfully eloped twice from his home in the last year when staff thought the front door was secure and it was not. Ken will attempt to elope any time his motivation to reach and object is high, or the external controls presented by staff and the parameter locks are low. It can be noted that Ken has historically eloped out of windows. Intervention strategies - Maintain calm - Maintain a defensive posture - Be aware that Ken may physically aggress quickly at this point - Attempt to determine what is causing Ken emotional distress - See stressors section for possible causes and interventions - If in the community, end the activity and return to Ken’s house as quickly as possible. Frequency Ken will engage in verbal agitation several times a month. Though duration is extremely variable from an isolated outburst to several hours, the average instance is about thirty minutes. he wishes to do. Behavioral Challenges Property Destruction - Ken will break furniture - Ken will hit or kick walls - Ken will run into objects with his body - Ken will pull apart objects that are secured to the house such as the toilet and trim around doors. - Ken will attempt to destroy barriers between him and what he wants Examples of when it may occur - Ken will engage in property destruction when there is barrier between him and what he wants - Ken will engage in property destruction when he is frustrated or stressed and is hitting things to demonstrate this - Ken will engage in property destruction when he perceives the object as the source of his stress or frustration - Ken is just really hard on things even when he is not upset. It is important to know how Ken is feeling to distinguish between these accidental Intervention strategies - Maintain calm - Maintain a defensive posture - Be aware that Ken may physically aggress quickly at this point - Attempt to determine what is causing Ken emotional distress - See stressors section for possible causes and interventions - If in the community, end the activity and return to Ken’s house as quickly as possible. - Remove broken objects and items that Ken may be able to injure himself or others with - Attempt to remove items that are more breakable or that could be used for weapons - If Ken is attempting to damage something that is immobile and potentially dangerous to him physically or financially such as a parked car or furnace, remove Ken using approved techniques to a safer location - Offer Ken a PRN according to protocol if other interventions do not work. - Ensure that Ken has not injured himself after he has calmed Frequency Ken will engage in property destruction about once every other day. Given the majority of his house is not breakable; damages are only incurred about once a month. damages and deliberate ones. Behavioral Challenges Self Injurious Behavior - Ken will bite himself - Ken will pick at his arms Examples of when it may occur - Ken will pick at his arms or bite himself when he is stressed. Intervention strategies - Redirect Ken to other activities - Offer gum or straws - Apply bandages Frequency - Ken will pick his skin daily - Ken bites himself rarely Continuum of Support Adaptive Stress influenced Behavior Behavior Smiles Requests stabilizer Dances Requests steam Completes routines with minimal prompting Initiates high 5 w/ staff Emotional distress Behavior Flicks fingers under nose and makes noise Makes distress vocalization Ken may be fatigued after physical escalations sleep Bites staff Engages in property destruction Does not follow routines Has flat affect Increased facial expressivity Behavior Hits (slaps) staff Recovery Behavior Kicks staff Makes louder vocalizations Requests many steams Giggles Physical distress Does not acknowledge staff requests Points to “restricted areas” or keys Attempts to blow past staff or bolt into restricted areas or away from staff in community Attempts to elope Lays in closet for extended periods of time Attempts to take keys from staff Ken may be uncertain about his connection with staff Ken may not be aware of where he is in his routines Ken may still show signs of agitation May requests steams or time in his closet to process and destimulate. Resume activities as if nothing happened Check Ken to ensure that he has not injured himself Reinforce Redirect Reduce Execute routines as prescribed by plan Reduce stimulation if over-stimulated Stimulation Seek out and avoid stressors Offer activity if under-stimulated Verbal communication Offer activities as appropriate Offer stabilizer Eye contact Reduce expectations If in the community, end the activity and return home Remove Ken from the community to his home Expectations Use an initial steam timer of 5 minutes Use an initial steam timer of 10 minutes Maintain a defensive posture Use approved physical intervention techniques as needed Prepare to cope with physical aggression Yourself from the situation if at home: engage parameter locks and go into the kitchen Use an initial steam timer of 15:00 minutes Hold Ken’s backpack strap in community Re-establish Provide Ken with hand taps to re-establish his connection to staff Slowly resume routines Remain prepared for Ken to reescalate Provide Ken with opportunities to rest Use an initial steam timer of 5 minutes Your self from the situation by evacuating into the quiet room Administer Ken’s Risperdal PRN per protocol Use a steam timer of 20 minutes * Ken does not demonstrate typical diffusion behavior such as declining aggression etc. He tends to move directly from physical aggression to recovery. Behavioral Data Collection: In an effort to better understand Ken’s behaviors and to determine that his behavioral supports are tailored and appropriate, the following data will be collected (see attached copy). Instances of verbal aggression, physical aggression, property destruction and elopement will be recorded including the number of minutes that it lasted. On the chart PA will represent physical aggression, VA verbal aggression, E elopement, SI for self injury, and PD for property destruction. Please note that property destruction will only be considered those instances that damages were actually sustained by some item. Place a check mark in the box corresponding to behavior you have witnessed. In the intervention category, please include what the effective intervention was. If there was really nothing that effected behavioral change or cessation, please note that. Review This plan will be reviewed as a part of Ken’s team meetings and as needed. As the plan is always a work in progress, it is important to communicate changes in behavior and alternate intervention strategies to your supervisor. Ken’s support team has reviewed this plan and agreed that it should be followed when working with Ken. Approvals: _____________________________ County Case Manager Date ______________________________ Residential Service Coordinator Date _____________________________ Behavioral Consultant Date ______________________________ Director of Program Services Date _____________________________ Legal Guardian Date ______________________________ Vocational Case Manager Date Behavioral Data Collection for Ken Month:____________________________ Date PA PD E VA SI Duration Intervention Staff initials Staff Sign off Sheet I have been given the opportunity to read and ask questions about Ken’s behavioral support plan. I understand the plan, and agree to follow the guidelines it presents. I know that I can contact my supervisor with questions in the future should they arise. _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date _______________________________ Signature _____________________ Date