The South East Consortium Community Advisory Committee Special Education Parent Handbook August 2011 The South East Consortium Community Advisory Committee 3434 Marten Avenue San Jose, CA 95148 www.souteastselpa.org This handbook was prepared by the Community Advisory Committee for Special Education, South East Consortium. It was adapted from the Handbook, “Understanding Special Education in PAUSD,” 1996, 3rd edition. Our thanks to Palo Alto CAC for allowing us to create this modified version. South East Consortium School Districts: Alum Rock Berryessa Eastside Evergreen Franklin McKinley Gilroy Milpitas Morgan Hill Mt. Pleasant Oak Grove Orchard The CAC committee wishes to acknowledge the following: Veronica Hoyle-Kent for adapting and editing this handbook. Nancy Birenbaum, Linda McNulty, Lisa Rivaollon and Janice Richason for their contributions to this handbook. Wrights Law and California Department of Education for definitions and procedural guidelines. TABLE OF CONTENTS Letter to Parents page 1 Welcome to Holland page 2 How is My Child Identified? page 3 Determining Eligibility for a Disability page 4 What is an IEP? page 5 Early Childhood Special Education page 7 What is an ITP? page 8 Special Education Resource Contacts at Local Colleges page 8 Exploring the World of Work page 9 Positive Parent-Teacher Communication page 11 Resolving Conflict – Tried and True Approaches page 12 Parents’ Rights page 15 Special Education Programs and Services page 16 Special Needs Legislation page 18 Summertime Can be Fun page 19 Where Else to go for Help page 20 Special Education Acronyms page 23 Special Education Terms page 25 Recommended Websites page 32 Finding Your Voice page 34 Dear Parents, The South East Consortium Community Advisory Committee (CAC) for special education has prepared this handbook as a resource guide for parents of children with special needs. The CAC primarily consists of parents of special education students. Other members may include regular and special education teachers, administrators, and community members. The committee’s work includes support for parents of children with special needs, monthly evening information sessions, and dissemination of important information through an email distribution list. Our CAC also coordinates special needs education and training for parents and educators and special events. SELPA stands for Special Education Local Plan Area. The school districts listed in this manual as well as the County Office of Education cooperate to provide a continuum of programs and services for disabled individuals from birth through 21 years of age. Being fully informed about available resources within the community is a difficult task for all parents. When your child is in special education, the stress of coping with the myriad complicated procedures and services can be overwhelming. It is our hope that this handbook will guide you in sorting through the maze of terms, federal and state laws, and services and resources available so that you can plan your child’s education. We encourage you to join other parents within the CAC. You can contact the CAC by contacting the special education department at your school district’s office and ask for contact information for your current CAC representative. 1 WELCOME TO HOLLAND I am often asked to describe the experience of raising a child with a disability to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this.... When you're going to have a baby, it's like planning a fabulous vacation trip to Italy. You buy a bunch of guidebooks and make your wonderful plans. The coliseum, the Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says, "Welcome to Holland." "HOLLAND???" you say, "What do you mean Holland? I signed up for Italy!! All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland, and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower paced than Italy. Less flashy than Italy. But after you've been there for a while and you catch your breath, you look around and you begin to notice that Holland has windmills. Holland has tulips, Holland even has Rembrandt. But everyone you know is busy coming and going from Italy, and they're all bragging about what a wonderful time they had there. And the rest of your life, you will say, that's where I was supposed to go. That's what I had planned. And the pain of that will never, ever go away, because the loss of that dream is a very significant loss. But if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the lovely things about Holland. Author Unknown 2 HOW IS MY CHILD IDENTIFIED The following flow chart illustrates the way your child could be identified as having special needs once he becomes a student in your school district at age 3 (see page 6 for identification of a younger child): Parent, teacher or other individual expresses concern about child A group of educators (Student Study Team - SST) review concerns and make recommendations for student support* If there is evidence of a disability and regular education cannot provide sufficient support, assessment or evaluation is recommended Evaluation under Section 504 of the Rehabilitation Act Assessment under IDEA (Individuals with Disabilities Act) Meeting is held Meeting is held Not eligible Eligible Not eligible** Eligible Suggestions made for support 504 Plan developed Suggestions made for support IEP is developed *Often parents are involved in the SST, particularly at the elementary level. Sometimes the students themselves are involved. An SST meeting is not required prior to a request for evaluation. **A child who is ineligible under IDEA may nonetheless be eligible under Section 504. Referral A referral to Special Education may be made by a teacher, parent, physician or any other person involved with a student’s educational growth. Service may be provided for a child from birth through age twenty-one. Teachers and parents are encouraged to use the SST process as a first step when they have a concern. Students may be referred for a special education assessment by the SST or by parents, teachers, counselors, principals, school nurses or other persons who have an interest in the child’s welfare. The referral indicates the suspected area(s) of disability, provides school history and documents the modifications that have been tried and proven 3 unsuccessful prior to making a referral. Receipt by the school of the referral officially begins the special education timeline. An assessment plan will be developed and the family contacted within fifteen (15) days. The parent/guardian has fifteen (15) calendar days from the date of receiving the Assessment Plan to consent to the plan and return it to the school staff. Assessment A school representative will contact the parent/guardian and: Review the reasons for assessment Describe the materials and procedures which will be used to obtain information about the child Explain the rights of the parent/guardian and school district related to assessment Determine the student’s primary language and proficiency Describe alternate means, as appropriate Obtain written consent for release of confidential information Arrangements will be made to have your child’s needs evaluated. This will be done through testing and conferences held among those who have worked with your child teachers, nurses, counselors, therapists, psychologists and others. Your written consent and participation will be needed, and evaluation results will be shared with you. This evaluation has three major purposes: To assess needs and gather information about the student To determine eligibility for special education programs and services To recommend the appropriate special education programs and/or related services for the student or other program modifications DETERMINING ELIGIBILITY FOR SPECIAL EDUCATION SERVICES Three main factors are considered: 1. Does your child meet the eligibility criteria for one of the federal categories of disabilities? 2. Does the severity of the disability interfere with your child’s access to the core curriculum? 3. Does your child require specially designed and related services to achieve a free appropriate public education (FAPE) in the Least Restrictive Environment (LRE)? Federal categories of disabilities include the following: autism* hearing impairment specific learning disability deaf-blindness intellectual deficit speech/lang. impairment deafness multiple disabilities traumatic brain injury developmental delay orthopedic impairment visual impairment/blindness emotional disturbance other health impairment established med. disability *The autism spectrum includes: Asperger’s Syndrome, Childhood Disintegrative Disorder, Nonverbal Learning Disorder, Rett’s and Pervasive Development Disorder – Not Otherwise Specified (PDD-NOS). 4 Students who have been diagnosed with Dyslexia or Attention Deficit Disorder (ADD) or Attention Deficit Hyperactivity Disorder (ADHD) may qualify for special education services under Other Health Impaired. WHAT IS AN IEP? An IEP is an Individualized Education Plan. It is a legally binding written contract, which sets forth the educational plan for your child. Before the initial IEP meeting, your child should have been assessed and given a variety of tests and evaluations. You have a right to request assessments through the school district at no cost to you. You may request the results be provided to you in advance of the meeting. Results of testing will be reviewed in the IEP meeting. You may consider scheduling an additional IEP meeting to allow sufficient time to review the results or request a separate meeting with the individual assessor(s). If you wish, you can supply your own, privately funded evaluations if you think they would be helpful in creating a learning plan for your child. Follow-up assessments or assessments such as the three year evaluation are also done at no cost to the parent. A student that qualifies for an IEP is also protected against discrimination under Section 504 of the Rehabilitation Act. There are three steps to the IEP process, which coincide with the three parts (A,B,C) of the IEP document: Part A: Covers the present levels of performance and identification of your child's strengths and weaknesses. This portion of the process is ensures the education plan matches your child's assessed needs. Part B: Covers the annual goals. These goals will supplement and modify the general education curriculum. Goals should “SMART” (specific, measurable, achievable, relevant and time-specific). When appropriate, specific short-term objectives may be developed. Part C: Covers the services that will be provided by the district. Since this is a legally enforceable document, all agreed services, special placements, accommodations and educational aids should be clearly written into this part. Frequency and duration of all special education services as well as the percentage of time to be spent in regular and special education are documented in this section. An IEP includes the student’s participation in State Testing and Reporting. For more information on these tests, go to http://star.cde.ca.gov/. Note: For students whose primary language is not English, the IEP must include linguistically appropriate goals, programs and services. The parent is entitled to have 5 reports and the IEP received in their native language. You may request a translator attend the IEP meeting. Who Makes Up the IEP Team? Developing an IEP is a team process. It is not to be done alone. The IEP team consists of: parent(s)/guardian special education staff administrator/designee with knowledge of program options and ability to authorize the implementation of the program regular education teacher or representative assessors other individuals who have knowledge or special expertise regarding the pupil, including related services personnel, as appropriate whenever appropriate, your child - it is standard practice for your child to attend the IEP meeting from the age of 14 onward a parent may also elect to invite additional members for support (such as family member(s) or an advocate) When Does the IEP Team Meet? There are four types of IEP meetings: Initial - The initial IEP meeting includes review of assessments, determination of special education eligibility, preparing educational goals, and designing educational plan. Annual - The annual meeting takes place at least once a year to review your child’s progress, review current goals and update/revise as needed, and evaluate appropriateness of placement and/or services. Tri-ennial - Every third year, the IEP team meets to re-establish eligibility. This can be accomplished in several ways: a review of the records, an overall evaluation, observation, and/or standardized assessments. Any one of these elements can be determined unnecessary and should be discussed in advance. Amendment – An IEP amendment meeting can be called at any time to discuss placement, or update goals. Note: A parent can request a teacher or administrative meeting at any time to address concerns without requesting a formal IEP meeting. What is Expected of Me as a Parent at the IEP? You are an important member of your child’s educational team. You should plan to attend all IEP meeting, in person or via teleconference, if at all possible. Bring your questions and concerns to the meeting. Making a list of these items can ensure all 6 your concerns are addressed. Provide the list ahead of time, to allow other team members to review and prepare suggestions to be discussed at the meeting. Bring all appropriate materials related to your child such as report cards, medical reports, and standardized testing results (it is recommended that you create a running record of your child’s educational history using a 3-ring binder so that you are always prepared). Bring any examples you have to substantiate or support your concerns regarding their education plan. Advise the team if you plan to include additional individuals in your meeting such as a family member or an advocate. You are permitted to audiotape the IEP meeting, provided you give written notice at least 24 hours in advance. Suggested Resource: Parents Helping Parents (408-727-5775) and wrightslaw.com are invaluable resources for helping parents to understand the IEP process. EARLY CHILDHOOD SPECIAL EDUCATION Children between the ages of birth to 3 years with identified special needs are served through an Individualized Family Service Plan (IFSP). This IFSP is implemented through the Early Start Program (ESP), which is operated by the Santa Clara County Office of Education. When a child turns 3 years old, his or her school district becomes responsible for the special education program which is designed through the Individualized Education Program (IEP) process. The school district communicates with ESP and the parent prior to the child’s 3rd birthday, so that an IEP meeting occurs before the child turns 3. An important distinction between the IFSP and the IEP is that the former (IFSP) is designed to meet the needs of the child in the context of the family, and may involve ancillary services for that purpose. In contrast, the IEP is designed to meet the needs of the child that are educationally related. In our SELPA, there are many options for special education services. Services can range from a minimal level of intervention (such as speech/language therapy on a weekly basis) to a more intensive level of intervention (such as a special day class program 4 to 5 days/week). The intervention program is always designed to meet the individualized education needs of the child, and is determined at the IEP meeting. Before your child makes the transition from a preschool program to kindergarten, an IEP meeting to discuss transition is advisable. If your child’s annual IEP is during the spring the transition can be discussed at that time. However, if your child’s annual IEP is in the fall, you should consider requesting an IEP meeting in the spring to discuss the important transition. The child’s progress should be carefully considered to determine the most appropriate placement. The school district will transfer the IEP paperwork to the appropriate site for services to be implemented without delay at the beginning of the kindergarten school year. 7 WHAT IS AN ITP? The goal of transition services is to enable planned movement from secondary education to adult life including employment or post-secondary education. Planning for the transition from school to post-secondary environments should begin before the student leaves the school system. A statement of the needed transition services is called an Individual Transition Plan (ITP). The ITP is required to be prepared and included on the Individualized Education Program (IEP) for a student who has reached the age of 16 (or 15 if the current IEP will be in place on their 16th birthday) and updated annually. Beginning at 16 the ITP will focus on long-term interests and discuss career exploration, workability and or paths for post-secondary education. It must contain a statement of needed services, including involvement of community agencies when appropriate. If your child is not on a diploma track the transition plan extends through their 21st year. At that point, the purpose of the transition plan is to address four areas: functional academics, vocational exploration, independent living and recreation and leisure. Note: Support for this process can be found through Parents Helping Parents (PHP) or the Diagnostic Center of Northern California website. Transfer of Parental Rights at Age of Majority When a child with a disability reaches age 18, all rights transfer to the child unless the child is being conserved. The school district must notify the child and the parents of this transfer at least one year prior to the child’s 18th birthday. SPECIAL EDUCATION RESOURCE CONTACTS AT LOCAL COLLEGES If your child is a junior or senior in high school, be aware that most colleges have special admission procedures available to students in special education. Look for disability and supported education programs or a disability resource center at the college of interest. Here are some special education resource contacts for local schools: Cal Berkeley Disabled Student Program (510) 642-0518 www.dsp.berkeley.edu Canada College Disabled Student Center www.canadacollege.net/student/disabledservices.html (650) 306-3259 College of San Mateo (650) 574-6432 (650) 574-6438 (650) 574-6433 Assistive Technology Ctr. Disability Resource Ctr. Disability Assesment Ctr. www.gocsm.net/dsps De Anza College Educational Diagnostic Center www.deanza.edu/specialed 8 (408) 864-8839 Evergreen Valley College Disabled Student Program www.evc.edu/dsp (408) 270-6447 Foothill College Adaptive Learning Division STEP (Student Tutorial Eval. Program) LD Students (650) 949-7017 (650) 949-7040 or (650) 949-7549 Disabilities Resource Center (408) 848-4865 www.foothill.fhda.edu/al Gavilan College www.gavilan.edu/drc Mission College Disability Instructional Support Center www.missioncollege.org/depts./dsps/DSPS.html (408) 855-5085 Ohlone College Disabled Students Program and Services www.ohlone.edu/org/dsps (510) 659-6079 San Jose City College Disability Support Programs and Services http://www.sjcc.edu/sservices/Programs/DSP/dsp.html (408) 288-3746 San Jose State Univ. Disability Resource Center http://www.drc.sjsu.edu (408) 924-6000 San Francisco State www.sfsu.edu/~dprc Disability Resource Center (415) 338-2472 West Valley College Disability & Educational Support (408) 741-2010 Program www.westvalley.edu/sep EXPLORING THE WORLD OF WORK It is not always apparent how a student’s interests and abilities or likes and dislikes will match up with specific careers. Career assessment is key. In addition, experimentation is often the very beneficial, and gives the student opportunities to experience new settings, learn new skills, discover new abilities, and develop selfconfidence. Experimentation with the world of work can be done in the following ways: 9 Courses in High School Applied Academics Courses - develop insight into the application of knowledge to career activities. Work Experience Program - allows a student to earn credits towards graduation by actually working at a job and earning money. Regional Occupational Program (ROP) - offers a variety of vocational, technical, and semi-professional programs. For more information go to: www.sccoe.org/depts/scrop Workability Program – A training program for special education students ages 16 – 22. It is designed to promote career awareness and exploration while students complete their secondary education program. It provides students with opportunities for job shadowing, paid and non-paid work experience, and on-going support and guidance from vocational personnel. The program is administered by the California Department of Education, Special Education Department. For more information about Workability go to: http://www.cde.ca.gov/sp/se/sr/wrkabltyI.asp For persons with disabilities, statewide, there are local program sites that provide secondary students with an understanding of job-seeking and jobkeeping skills. Frequently referred to as workability, this program has multiple levels beginning with Workability 1: pre-employment skills training and placement. Contact the SCCOE for more information. Volunteer Work Volunteering can be an empowering experience, one which will raise selfesteem and possibly influence the future course of the student’s life. Resources for finding volunteer work: The Volunteer Center of Silicon Valley The San Francisco Bay Area Volunteer Info Ctr. (650) 965-2426 www.vcsv.us www.volunteeringinfo.org Summer Youth Employment Program (NOVA) This program offers direct job placement for special education students throughout Santa Clara County. Jobs are for 6-8 weeks in the summer. Call (408) 730-7640 during the month of April to apply (there is a form to fill out, and an interview). If your child is selected for the program, he is guaranteed a paying job in your area in a government office or nonprofit agency. Learn more at www.youthatwork.org. 10 Dealing with Workplace Accommodations When employing students with physical, sensory, or cognitive disabilities, employers need to be informed of their disability and the necessary accommodations to permit job performance. Employers are not allowed to ask about the accommodations a disabled person would need during the hiring process. It is the responsibility of your child’s Workability coordinator or job coach to meet with a prospective employer and discuss effective methods of communication, mobility, and other matters that will sustain a successful placement. The California Department of Rehabilitation works in partnership with consumers and other stakeholders to provide services and advocacy resulting in employment, independent living and equality for individuals with disabilities. Vocational Rehabilitation services are designed to get Californians with disabilities prepared for employment and can include training, education, transportation and job placement. For more information go to: http://www.rehab.cahwnet.gov/ POSITIVE PARENT-TEACHER COMMUNICATION Effective communication between parent and teacher is essential to the development of a positive relationship and the success of your child’s education. Effective communication requires mutual acceptance, attentiveness and trust. Keeping the lines of communication open is a shared responsibility. Parents and teachers need to respect differences in experience, background, and values. Effective communication requires sufficient time to listen and to respond by sharing ideas. Strategies should be used by both teachers and parents to ensure that open lines of communication are established early, occur frequently, and promote positive interaction between school and home. Such strategies include: Conferences Observations/visits to the classroom Telephone calls Written notes, or a notebook for daily observations or messages Letters Progress reports Certificates of merit for good work and good behavior Some techniques which are helpful in promoting successful interactions and communication include: Creating an atmosphere in which everyone feels comfortable 11 Practicing active and reflective listening. Active listening is trying to understand another’s feelings as well as the content of what is said. Reflective listening involves restating what the speaker has said to clarify and confirm statements Being aware of nonverbal communication Asking for clarification if you don’t understand something Trying to listen to each other without interruption Acknowledging when a disagreement occurs and bringing in appropriate individuals to assist in working out the situation Barriers must be removed for clear communication to take place. Acknowledgment of individual differences, mutual respect, and resolution of conflicts will provide the foundation on which to build effective communication. Ultimately, children will benefit from parents and teachers who support each other in these efforts. RESOLVING CONFLICT The focus of the educational effort should be on the student. Parents, teachers, and others on the IEP team work to develop a cooperative relationship. However, conflicts sometimes arise. Listed below are approaches that have been helpful to parents: Leave your emotions at home. Few people deal comfortably with emotional interactions. Trying to discuss or negotiate with a high level of grief, frustration and/or anger coloring your statements makes it difficult for others to respond to your ideas. Discuss your feelings with a friend, spouse, or the CAC Warmline (contact the special education director at your district office for the telephone number) before you have an important conference. Organize your questions and concerns. It is a good idea to write down your questions and concerns so you can state them clearly at your meeting. Pre-edit them to take out all judgmental language as this may not serve you well. An example of how not to approach the teacher is, “You need to do a better job of controlling my son. I want three hours of behavior intervention a week.” A more appropriate way to speak to the teacher is, “I am concerned about my son’s difficulty controlling his behavior and wonder if we could discuss strategies to improve the situation.” Present your concern and listen to the teacher’s suggestions for dealing with the problem. State your concern(s) and then provide an opportunity for IEP team members to suggest potential solutions. The best solutions result from discussing a number of ideas. Arriving at the conference with specific expectations negates the opportunity to hear other viewpoints and ideas. Take your spouse or a friend with you. The presence of the parent who is less often encountered by the district introduces a fresh perspective to the discussion. If yours is a single-parent family, consider taking a relative or friend along. 12 Think in terms of supportive professionals. If your concerns involve the general classroom teacher, approach your child’s special education teacher with a request for assistance in dealing with the difficulty. If your concern involves the special education teacher and your child is also served by other professionals with whom you have a good relationship, consider urging one of these other professionals to raise concerns or make suggestions. Resolve problems at the lowest level possible. This is critical. You will be trusted more in future years if you are seen as a parent willing to work with those closest to the problem. This means you must certainly raise your concerns with the teacher(s) first. If that doesn’t bring about satisfactory resolution, then go to the principal. What if you can’t resolve the problem within these avenues? In this case, contact the Director of Special Education of your district. If you have reached this point, you may wish to seek consultation from others who “know the ropes”: Another special education parent – come out to coffees and socials offered by the CAC to meet others. Ask your CAC chair or Parents Helping Parents for a list of parent volunteers willing to attend with you. Parents Helping Parents (P.H.P.) (408) 727-5775 Schwab Foundation for Learning (650) 655-2410 SELPA Director (408) 223-3776 Work with the School District. All parties have a vested interest in resolving issues before they get to the point of Due Process (discussed below). Resolving matters at the lowest level saves time and money. Both sides working together to reach a mutually acceptable solution preserves the working relationship and builds stronger teams which benefit all our kids. If you wish to exercise your right to Due Process, you will need to contact the Office of Administrative Hearings (OAH). There are two levels by which you can seek remedy: Try “Mediation Only.” If you’ve had difficulty during past IEP meetings, you can discuss having a facilitated IEP meeting with an external facilitator. You may also ask the school district to resolve disputes through mediation or Alternative Dispute Resolution (ADR), which is less adversarial and more expedient than a formal due process or fair hearing. Mediation can only take place when both you and your school district agree to try to resolve the dispute with the help of a neutral mediator. The result will be a legally-binding resolution which will remain in place for one year. 13 Due Process. If you file for Due Process with the Office of Administrative Hearings, you must also notify the district or other involved parties at the same time. The school district is required to attempt to hold a Resolution Session with parents within 15 days of receiving the notification. If the district files for due process, they are not required to hold a resolution session. If the parent refuses to attend the resolution session, they have not met the legal requirements to obtain a due process hearing. However, the school district and parent can MUTUALLY agree to waive the resolution session prior to the due process hearing. If a resolution is not achieved within 30 days, the hearing will be held. The hearing is a more formal trial-like legal proceeding in which both parties are given the opportunity to present evidence and arguments before an Administrative Law Judge (ALJ). The ALJ will issue a written decision which will stand as the formal resolution of the matter. Due Process Procedural Safeguards. You have the right to due process and to request an impartial fair hearing when there is a disagreement between you and the agency/school district on any matter relating to identification, assessment, educational placement of your child, and/or the provision of a free, appropriate public education in the least restrictive environment. Due process is the term used to describe the entire process of filing a complaint against your school district with the intent of resolving the dispute at the hearing. Fair hearing refers to the administrative procedure conducted by the office of the State Superintendent of Public Instruction to resolve the dispute, and may involve representation by counsel, cross examination of witnesses and submission of written or oral testimony, just as in a court trial. The request for a due process hearing must be filed within two years from the date you knew, or had reason to know, of the facts that were the basis of the hearing request. Either party may appeal the outcome of the hearing to a court of competent jurisdiction within 90 days of the hearing. To file for mediation or due process hearing, contact: State Office of Administrative Hearing Special Education Division 2349 Gateway Oaks Drive, Suite 200 Sacramento, CA 95833 Telephone: (916) 263-9880 Fax: (916) 376-6319 www.oah.dgs.ca.gov Filing a Complaint. If you believe your child’s school district was not following special education laws and regulations, you may file a written complaint with the superintendent of a local educational agency (includes any public school district and the County Office of Education) or with the State Superintendent of Public Instruction. For example, you may think that your child’s IEP was not being properly 14 implemented. If you file a complaint with the state, an immediate decision will be made by the State Superintendent of Public Instruction as to whether the state or the local educational agency has jurisdiction over the complaint. In either case, an investigation and written decision will be completed within 60 calendar days of receiving the complaint. You are entitled to appeal the local or state decision within a given time period. To file a written compliance complaint, contact: California Department of Education Special Education Division Procedural Safeguards Referral Service 1430 N Street, Ste. 2401 Sacramento, CA 95814 Telephone: (800) 926-0648 or (916) 319-0880 Fax: (916) 327-3704 Web site: www.cde.ca.gov/sp/se Summary: The following sequence represents the simplest to the most complicated forms of intervention: local intervention mediation or ADR due process or fair hearing filing a complaint Resources with expertise in procedural safeguards include: Community Alliance for Special Education (C.A.S.E.) www.caseadvocacy.org (415) 431-2285 Protection and Advocacy, Inc. (P.A.I.) www.pai-ca.org (800) 776-5746 Generally a decision to proceed to a fair hearing is made only after the other methods to resolve a dispute with the district have failed. PARENT’S RIGHTS Parents of children with disabilities from 3 through 21 years of age have specific educational rights under the Individuals with Disabilities Education Act. These rights are sometimes called Procedural Safeguards. Parents and students over 18 have the right: 15 To participate in the IEP process, and to be informed of all program options and alternatives, both public and nonpublic To receive prior written notice in your native language when the school district initiates a change in the identification, assessment, or educational placement in special education To provide informed, written consent before a child is assessed or provided with any special education services, or before any change in service can occur To refuse to consent to an assessment or the placement of your child in special education To be given an assessment for special education through your local school district at no cost to you, using methods that are not culturally biased or discriminatory To request an Independent Educational Evaluation (IEE) at public expense. This evaluation is specific to the assessment with which the parent disagrees, not a comprehensive assessment beyond the scope of the original assessment. The school district will provide a list of recommended evaluators To submit independent educational assessments at your own cost and discretion To access your child’s educational records To stay in the current program if there is a disagreement about placement until the dispute is resolved To be given a hearing regarding disagreements about an IEP To receive mediation/due process To file a complaint against your school district To be informed of school discipline and alternative placement To be informed of policies regarding children who attend private schools SPECIAL EDUCATION PROGRAMS AND SERVICES The SELPA ensures a continuum of program options to meet the needs of pupils with disabilities to ensure a free appropriate public education (FAPE). The IEP team deter the program or programs that meet the student’s needs in the least restrictive environment (LRE), allowing for maximum interaction with non-disabled peers. The least restrictive environment is that environment which meets your child’s special needs and still allows him/her to participate as much as possible in the general education program. 504 Plan: Students with disabilities that do not require specialized instruction but whose disability substantially limits participation in one or more life activities may qualify for a 504 Plan. The 504 Plan is implemented in a general education program that provides for modifications or accommodations in the general education setting. Related Services: Instruction, aides, services and related supports that are necessary for the child to benefit from his or her instructional program. These services may be provided in various settings within the school site and are based on the student’s assessed needs. These services may include (but are not limited to): transportation, 16 and such developmental, corrective, and other supportive services (including speechlanguage pathology and audiology services, interpreting services, psychological services, physical and occupational therapy, recreation, including therapeutic recreation, social work services, school nurse services designed to enable an individual with exceptional needs to receive a free appropriate public education as described in the individualized education program of the child, counseling services, orientation and mobility services. These items must be deemed educationally necessary. For a complete description and definition of related services see Section 1401(26) of title 20 of the U.S. State Code and Section 300.34 of Title 34 of the Code of Federal Regulations. Supplementary Aids and Services: Aids, services, and other supports that are provided in regular education classes or other education-related settings and in extracurricular and nonacademic settings, to enable individuals with exceptional needs to be educated with nondisabled children to the maximum extent appropriate. This may include (but is not limited to): Aide Support, Assistive Technology, Homework Modifications, Preferential Seating, Teacher and Parent Training. Full Inclusion: Special education students who qualify for special day classes may be fully included in a general education classroom with the assistance of an aide or other classroom accommodations/modifications as determined by the IEP team. Resource Specialist Services: This service provides instructional support for students who are assigned to the general education classroom teacher(s) for a majority of the school day. Resource Specialist Services include: assessment, educational planning, consultation/training with parents and school staff, coordination of services within the school (case management), and specialized instruction. Special Day Classes: A special day class may be recommended when the student requires specifically designed instruction for the majority of his or her day. Placement in a special day class does not limit or restrict participation in the general education program (mainstreaming) for part of the day. Students in a special day class will be provided with an educational program as specified by their IEP and will receive the same amount of instructional program time as their same-aged peers. Out of District: Students may also be served in a program in a neighboring district or regional program, county program should that program best meet the student’s needs. Inter-district transfers are subject to approval by both sending and receiving districts. Regional Program: Programs and services that are not provided at every school site but may be available to students within a defined area. Regional programs may be found within a Selpa member district. Regional programs are not available for all disability categories. 17 County Programs: Santa Clara County Office of Education operates programs for students with more intensive needs which cannot be met within the SELPA district’s programs. Non-Public, Nonsectarian School and Agencies: Students whose unique needs cannot be met by the school district can be placed in a nonpublic, nonsectarian state certified program. The program is paid for by the school district and ensures that the child receives appropriate special educational instruction and services. Non-public placements must be discussed and determined appropriate by the IEP team. Parents who choose to make private school placements outside of the IEP process may be deemed responsible for the expense. When a student’s educational needs cannot be met in a public or non-public school, a residential program may be considered. Home & Hospital: Students who are unable to attend school due to physical disabilities or other reasons may be served by the school district at the hospital, school or through a special home teaching program designed specifically for that student. SPECIAL NEEDS LEGISLATION Americans with Disabilities Act of 1990 (ADA): A civil rights law which prohibits discrimination solely on the basis of disability in employment, public services, and accommodations. Assembly Bill 602: This legislation passed in 1997 determines the funding process for special education within the state. This model provides funds based on the number of students within the district, not the number of disabled students. Elementary and Secondary Education Act (ESEA): Emphasizes equal access to education, high standards and accountability. It authorizes federally funded education programs that are administered by the states. In 2002, Congress amended ESEA and reauthorized it as NCLB. Individuals with Disabilities Education Act (IDEA): The Individuals with Disabilities Education Act (IDEA) is a law ensuring services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to eligible infants, toddlers, children and youth with disabilities. Infants and toddlers with disabilities (birth-2) and their families receive early intervention services under IDEA Part C. Children and youth (ages 3-21) receive special education and related services under IDEA Part B. IDEA ’04: Reauthorization of IDEA, which broadened requirements for addressing student needs as well as for assessment and dispute resolution. Changes include, 18 time requirements for assessment completion and development of IEP, IEP team participants, dispute resolution requirements and addressing student’s functional needs (i.e. social skills, self care, etc) in addition to their academic requirements. For IDEA regulations (Public Law 108-46) go to ed.gov/offices/OSERS/IDEA/index. No Child Left Behind Act (NCLB): NCLB includes requirements regarding parental involvement, highly-qualified teachers, evidence-based instruction and instructional methodology, tutoring and supplemental educational services, and school district report cards. More information is available at wrightslaw.com/nclb and idea.ed.gov. Public Law 94-142 - The Education for All Handicapped Children Act of 1975 is federal legislation governing the education of all handicapped. It mandates that all U.S. public schools must provide a free, appropriate public education and related services to all handicapped children. Public Law 99-457 - This federal law signed in 1986 extended the rights and protections of PL94-142 to handicapped children ages 3 through 5 years. Part H of this law sets forth Early Intervention services required for children birth through 2 years and their families. They require services because they experience developmental delays or have a diagnosed physical or mental condition that may result in developmental delays. Public Law 101-476 - This federal legislation known as "Individuals with Disabilities Education Act" (IDEA) was signed in October of 1990. It re- authorized the discretionary programs of PL 94-142 and included transition as part of the IEP process and assistive technology as a needed support. Public Law 105-17 - This federal legislation, signed in June 1997, re-authorized IDEA. Substantial changes were made with respect to student discipline, alternative placement, and unilateral private school placements. Additional requirements (effective July 1, 1998) were added to the IEP process. Section 504 of the Rehabilitation Act of 1973: This general education mandate requires that all agencies receiving federal funds provide an individualized program of accommodations and modifications for any student who has a disability that severely hampers their ability to learn. The district follows all federal guidelines for identification, evaluation of students, and development of a plan if appropriate. SUMMERTIME CAN BE FUN The approach of summer can bring on mixed feelings when we wonder what summer experiences we can provide for our child with special needs. It is a good idea to start looking for summer programs by March as they fill up quickly. Keep in mind that you can look for programs outside your immediate residential area. You may find terrific programs in surrounding communities. Suggestions for where to look for programs 19 include Parents Helping Parents (PHP), schwablearning.org, thelighthouseproject.com, YMCA, Bay Area Parent newspaper, Parks and Recreation programs, and Therapeutic Recreation Programs. You can also network with other parents, or with professionals that work with your child (e.g., speech, occupational, physical therapists, teachers, resource specialists). Don’t forget about Extended School Year (ESY). A child with special needs does not only qualify when remediation is necessary. Functional deficiencies should also be considered and discussed with the IEP team. WHERE ELSE TO GO FOR HELP Braille and Talking Book Library 900 N. 1st Street Sacramento, CA 95814 www.library.ca.gov/html/pubser05.cfm 1-800-952-5666 C.A.S.E. (Community Alliance for Special Education) (415) 431-2285 Legal & paralegal representation & counseling, information, referrals, student and parent rights. www.caseadvocacy.org CCS – California Children’s Service Occupational/physical therapy for medically eligible children www.dhs.ca.gov/pcfh/cms/ccs (408) 793-6200 Center for Independence of the Disabled Promotes independence for people with disabilities www.cidbelmont.org (650) 595-0783 CHADD (Children with Attention Deficit Disorder) Information & support group for adults and parents of children with ADD & ADHD 957 Colorado Ave. Palo Alto www.chaddnorcal.org (650) 949-5472 Children’s Health Council Diagnostic Center for Children 650 Clark Way Palo Alto, CA 94304 www.chconline.org (650) 688-3625 20 Diagnostic Center, Northern California Diagnostic Center for Children 39100 Gallaudet Drive Fremont, CA 94538 (510) 794-2500 Family & Children Services 950 W. Julian St. San Jose, CA 95126 www.fcservices.org Learning Disabilities Association of California (LDA-CA) Parent information and support www.ldaca.org (408) 292-9353 Mental Health Hotline Volunteer service for crisis and suicide (408) 683-2482 Parents Helping Parents A family resource center for children with special needs www.php.com (408) 727-5775 Recording for the Blind & Dyslexic (lending library) 488 W. Charleston Palo Alto, CA Audiotapes for the blind and dyslexic www.rfbd.org 1-866-493-3717 (Toll Free) Santa Clara County Mental Health Services Offers mental health services for low income, Medi-Cal, non-insured etc. www.sccgov.org/portal/site/mhd 1-800-704-0900 Santa Clara County Office of Education www.sccoe.k12.ca.us (408) 223-3740 Santa Clara County Dept. of Child Support Services www.scc-dcss.org (408) 922-1400 Santa Clara Valley Blind Center Services for the blind & visually impaired www.visionbeyondsight.org (408) 295-4016 SCCBA Lawyer Referral Service Provide low cost initial consultation www.sccba.com (408) 287-2557 Schwab Foundation (formerly PERC) (650) 655-2410 21 (650) 969-0908 Information & resources for parents of children with learning differences www.schwablearning.org South East Consortium for Special Education (SELPA) www.southeastselpa.org (408) 223-3771 YWCA www.ywca.org (408) 295-4011 Mediation Programs Alternative Dispute Resolution www.southeastselpa.org California Coalition for Community Mediation www.camediation.org California Association of Human Relations Organizations www.cahro.org/html/conflict_mediation.html Office of Human Relations of Santa Clara County www.sccdrps.org San Jose Dispute Resolution Services Office of Human Relations 70 West Hedding Street San Jose, CA 95127 (408) 792-2314 22 SPECIAL EDUCATION ACRONYMS Federal Classifications (13) The following categories list the disabilities which are recognized in federal law: AUT Autism D Deaf DB Deaf-Blind ED Emotional Disturbance HI Hearing Impairment MR Mental Retardation MH Multiply Handicapped OHI Other Health Impaired OI Orthopedically Impaired SLD Specific Learning Disability SLI Speech and Language Impaired TBI Traumatic Brain Injury VI Visually Impaired Other Acronyms In addition to the federal categories, you will often hear professionals and parents use other terms to talk about special education needs. These classifications include: 504 ABA ADA ADD ADHD ALJ APE AS ASD AYP Section 504 of The Rehabilitation Act of 1973 Applied Behavioral Analysis Americans with Disabilities Act Attention Deficit Disorder Attention Deficit Hyperactivity Disorder Administrative Law Judge Adaptive Physical Education Asperger’s Syndrome Autistic Spectrum Disorder Average Yearly Progress 23 BD BICM BIP BSP CAHSEE CCS CDE CMH COE CP DD DHH DIS DSM-V ED ELL EMH ESD ESEA ESL ESY FAA FAPE FBA FERPA GATE HH ID LD NLD/NVLD PDD PDD-NOS RTI SELPA SH Behavior Disorder Behavior Intervention Case Manager Behavior Intervention Plan Behavior Support Plan California High School Exit Exam California Department of Children’s Services California Department of Education County Department of Mental Health County Office of Education Cerebral Palsy Developmentally Delayed Deaf/Hard of Hearing Designated Instructional Services Diagnostic & Statistical Manual of Mental Disorders – 5th Edition Emotionally Disturbed English Language Learner Educationally Mentally Handicapped Extended School Day Elementary and Secondary Education Act English as a Second Language Extended School Year Functional Analysis Assessment Free Appropriate Public Education Functional Behavioral Assessment Family Education Rights & Privacy Act Gifted and Talented Education Hard of Hearing Intellectually Delayed Learning Disabled Nonverbal Learning Disability Pervasive Development Disorder Pervasive Development Disorder – Not Otherwise Specified Response to Intervention Special Education Local Plan Area Severely Handicapped 24 TERMS Academic Skills - Refers to ability in subjects such as thinking, reading, writing, math, social studies, science. Accommodations – Adjustments for student with disabilities in instruction or student output that minimize the impact of the disability but do not fundamentally alter or lower course standards or expectations. Achievement Test - Measures what a child has already learned. Adaptive Behavior - The levels and skills of a person across the various settings experienced. This is broader than just the intellectual component of an IQ test. Annual Goal - A statement that describes what a child with a disability can reasonably be expected to accomplish within a twelve-month period in the child’s special education program. There should be a direct relationship between the annual goals and the present levels of educational performance. Aphasic - Having an acquired language disorder caused by brain damage with complete or partial impairment of language comprehension, formulation and use. Articulation - The process of executing movements of the speech organs (tongue, lips, jaw, and vocal folds) to produce speech sounds. Assessment - Assessment is a way of identifying the nature and causes of a student's difficulties. Assessment may include observation, formal and informal testing, and identification. Assistive Technology – Any item, piece of equipment or product system, that is used to increase, maintain, or improve the functional capabilities of a child with a disability. Assistive Technology Services - Any service that directly assists an individual with a disability in the selection, acquisition, or use of an assistive technology device. Audiological Exam - A test of a person's hearing ability. Autism - A behavioral condition usually characterized by extreme withdrawal and lack of language and communications skills. Lack of affect, self-stimulation, self- abuse, and aggressive behavior are sometimes present in autistic individuals. Baseline Performance – To establish goals and monitor progress toward those goals, a staring-point performance measurement is determined for academic and functional skills. 25 Behavioral Intervention Plan – Written, specific, purposeful, and organized plan which describes positive behavioral interventions and other strategies that will be implemented to address goals for a student’s social, emotional, and behavioral development. For students whose behavior prompts disciplinary action by the school, the behavioral intervention plan addresses behavior(s) of concern that led to conducting a functional behavioral assessment. Behavior Modification - A process for changing behavior through reinforcement and/or consequence. Benchmarks – Levels of academic performance used as checkpoints to monitor progress toward performance goals and/or academic standards. Blind - Visual acuity of 20/200 or less in the better eye after the best possible correction with glasses or contact lenses or vision restricted to a field of 20 degrees or less. Child Find – Requirement that states identify, locate and evaluate children with specific needs and determine which children are receiving special education and related services. Cognition - Analytical or logical thinking; comprehension or understanding. Consent – Requirement that the parents be fully informed of all information that relates to any action that school wants to take about the child. Consent is voluntary and may be revoked at any time. Content Standards – Describe the goals for individual student achievement. They specify what students should know and be able to do in identified disciplines or subject areas. Communicatively Handicapped - Those students who are deaf, deaf-blind, severely hearing impaired, severely language handicapped or who have language and speech disabilities. Community Advisory Committee - A group of parents, agency and school representatives, and other concerned citizens who advise the SELPA (Special Education Local Plan Area) on matters related to special education. Continuum of Services – For preschool children, ages three through five, means the availability of different types of settings where specialized services may be delivered; for school-age children means the availability of different types of education environments. 26 Coordination Fine Motor - Pertains to the use of small muscle groups (writing, picking up small objects). Gross Motor - Pertains to the use of large muscle group (jumping, running). Visual Motor - The ability to relate vision to body movement. Course of Study – A general statement that identifies the career path that is based on the student’s vision and his or her needs, interests, and preferences. Deaf - Inability to use hearing to understand speech, even with a hearing aid. Designated Instructional Services (DIS) - Services provided by specialists in addition to other general education or special programs, such as speech and language therapy, physical or occupational therapy. Developmental Delay - A delay in one or more of the four developmental areas: cognitive, physical, psychological, or self-help skills. District Standards – District goals for student achievement and performance that can be measured by measuring the improvement of students’ skills in reading, writing, speaking, listening, mathematics, reasoning, studying, and technological literacy. District-wide Assessment – A large-scale academic achievement assessment. Due Process – Formal set of policies and procedures to be implemented by schools and districts for children in special education programs. It is intended to insure that children with disabilities receive Free Appropriate Public Education. Dyslexia - A symbol processing difficulty; affects visual reception of words. Emotionally Disturbed - A condition characterized by an inability to build or maintain satisfactory interpersonal relationships with others, inappropriate types of behavior or feelings under normal circumstances, and/or a general pervasive mood of unhappiness or depression. Entitlement: From age 3 to 22, students who have been found eligible for special education, and who have not earned a high school diploma, are entitled to those services needed in order for them to benefit from their FAPE. Extended School Year Services – Special education and related services that are provided to a child with a disability beyond the normal school year of the public agency; in accordance with the child’s IEP; and at no cost to the parents of the child. Free and Appropriate Public Education (FAPE): A key provision of the Federal Education for all Handicapped Children Act (PL94-142) that entitles handicapped children to schooling at no charge to their parents. This education must also be under public supervision, meet state standards and be appropriate to the child’s needs. 27 Functional Behavioral Assessment – Assessment that enhances an understanding of the purpose and function of a student’s behaviors and subsequently provides information that leads to interventions and needed supports. General Curriculum – A description of the standards and benchmarks adopted by an LEA or schools within an LEA that applies to ALL children. It is applicable to children with disabilities as well as nondisabled children and related to the content of the curriculum and not to the setting in which it is used. It is the basis of planning instruction for all students. Grade Equivalent - The score a student makes on an achievement test, translated into a standard score which can then be compared to the typical score for students at that grade level (e.g. a "grade equivalent" score of 6.5 represents the score made by the average student who has been in the sixth grade for 5 months). Individual with Exceptional Needs (IWEN) - A handicapped pupil whose educational needs cannot be met by general education classroom teacher with modification of the general education school program and who requires special instruction and/or services. Excluded are the children whose need are due solely or primarily to unfamiliarity with the English language or to cultural, environmental or behavioral differences. Individualized Education Plan (IEP) - A written statement, developed by staff members and parents as a practical plan for instruction and delivery of service to individuals with exceptional needs. It includes goals, objectives, and services based on the needs of the student. IEP Team - A team comprised of the parent(s), teacher, administrator and others as appropriate who meet to plan education services suited to the needs of the student. Inclusion – Special education students who normally qualify for a more restrictive environment (such as Special Day Class or Resource Class), but whose IEP indicate they would be better served in a regular classroom with the assistance of an aide or other classroom modifications and/or accommodations for a portion or all of the school day. Also referred to as mainstreaming. Independent Educational Evaluation (IEE) – The parents of a child with a disability have the right to obtain an independent educational evaluation. Each public agency must provide to parents information about where an IEE may be obtained at no cost to the parents. The evaluation is to be conducted by a qualified examiner who is not employed by the public agency responsible for the education of the child. Intellectually Delayed (ID) - Significantly delayed intellectual development with deficits in adaptive behavior. 28 IQ Test - A standardized series of questions and/or tasks designed to measure abilities - how a student thinks, reasons, problem solves, learns new information, remembers. Many IQ tests rely heavily on use or understanding of spoken language. African-American families should be aware that some IQ tests (WISC) have been found to be culturally biased. A California court decision prohibits the use of IQ tests for assessing African-American pupils to determine their placement in special education programs and requires alternative means of assessment. Learning Disability - A condition which affects the way people with normal intelligence select, retain, and express information. Least Restrictive Environment (LRE): To the maximum extent possible, children with disabilities are educated with children who are not disabled. Special classes, separate schooling, or other removal of children with disabilities from the regular educational environment occurs only when the nature of the disability of the child is such that education in regular classes with the use of supplementary aids and services cannot be achieved satisfactorily. Limited English Proficiency – Is when an individual’s primary language is something other than English. Local Plan for Special Education: A plan, developed by schools and the community, that describes how the responsible local agency will implement the California Master Plan for Special Education. Low Incidence Disability - A disability that occurs relatively infrequently in the general population. In particular, used to refer to deaf, blind, orthopedically handicapped, and deaf-blind. Mainstreaming - The planned interaction between the special education student and general education school population that is appropriate to the needs of both. Master Plan (California Master Plan for Special Education): Approved in 1974, it establishes a comprehensive system for delivering special education services to exceptional children. It describes program components and creates the responsible local agency structure which moves key educational decisions from state to the local level. (Senate Bill 1870) Modifications – Adjustments for students with disabilities in instruction or student output that minimize the impact of the disability but fundamentally alter or lower course standards or expectations. Multi-Handicapped - Students with a combination of disabilities (such as mental retardation and deafness) which cause severe educational difficulties. 29 Norms - Information, provided by the test maker, about "normal" or typical performance on the test. Individual test scores can be compared to the typical score made by other persons in the same age group or grade level. Objectives - The expected performance in any given area after instruction. Orthopedically Handicapped - Students with physical impairments resulting from disease (such as polio), conditions such as cerebral palsy, from amputations or birth defects that are so severe as to interfere with their educational performance. Parent Rights: All parents need to be aware of the rights guaranteed to them under PL94-142. Some of the rights include confidentiality, due process, fair evaluations, least restrictive environment, and parent participation. (See Procedural Safeguards) Performance Standards – Standards that specify how good is good enough and describe at least three levels of student performance. The federal Elementary and Secondary Education Act (ESEA) requires that at least three levels of performance be established to assist in determining which students have or have not achieved a satisfactory or proficient level of performance for reading and mathematics. Districts may decide to provide more than three performance levels. Present Level of Educational Performance – Is a summary statement that describes the student’s current achievement in the areas of need as determined by an assessment. Prior Written Notice – Required written notice to parents when school proposes to initiate or change, or refuses to change, the identification, evaluation or educational placement of the child. Push-In Services – Services are sent into the classroom the student attends. These services may be provided to support the student or the teacher. Pull-Out Services – The student is removed from the classroom to receive supplemental services. Raw Score - The total points earned on any given test. Related Services – Developmental, corrective, and other services that are necessary to assist an individual with a disability to benefit from special education. Resource Specialist - A teacher who has had additional preparation in the field of special education and general education and who works with students, teachers, parents and support staff to provide students with a complete educational program according to their individual IEPs. 30 Resource Specialist Program - A program that provides instruction and services for those individuals with exceptional needs assigned to general education classroom for the majority of the school day. Response to Intervention (RTI) – A multi-tiered intervention system that integrates assessment and intervention to ensure academic achievement and/or reduce inappropriate behaviors. Students who are at risk are identified and evidence-based interventions are used. The student’s progress is monitored, and interventions are intensified depending on student’s responsiveness. Through this process, students with learning disabilities may be identified. RTI supports the mandate of Least Restrictive Environment. Review and Revision of the IEP - Each agency shall initiate and conduct meetings to review each eligible individual’s IEP periodically and, if appropriate, revise its provision. A meeting must be held for this purpose at least once a year. Scaled Score - Translation of the raw score into a score, which would typically, range from 1-19, with 10 being average. A deviation of 3 points would represent a significant difference. Severely Handicapped - A special education program serving the severely developmentally disabled with intensive educational needs. Short-term Objectives – Measurable, intermediate steps between a student’s present level of educational performance and the annual goals of the student. Special Day Class - Public school classes that provide services to students with more intensive needs than can be met by the general education school program or Resource Specialist Program. Students are enrolled in the special class for a majority of the school day and are grouped according to their instructional needs. Special Education – Specially designed instruction, at no cost to the parents, to meet the unique needs of a child with a disability. Special Education Local Plan Area (SELPA) – The Selpa ensures a continuum of special education services to address the needs of all children with disabilities within a specified geographic region. Standard – A clear statement that expresses what students are expected to know and be able to do. Standard Deviation - The extent to which a score varies from the mean score (average) for the group. (The numerical value of one standard deviation unit is different from test to test.) 31 Standardization - The determination of what children know or can do at a particular age by testing large numbers of children and collecting statistical data based on answers. Many tests are standardized on white, middle-class children who are ablebodied and native English speaking For children not having these characteristics, the validity of their scores could be questionable. Standard Score - Translation of the raw scores into a score which has similar meaning regardless of age level (e.g., if a scale of 0-100 is used, a scaled score of 50 is average, regardless of whether its obtained by a 6 year old or 12 year old). Supplementary Aids and Services – Services provided in order for an eligible individual to be served in the general education classroom environment, which may include short-term specially designed instruction; interpreters; readers for individuals with visual impairments; special education assistants; special education assistants for individuals with physical disabilities for assistance in and about school, and for transportation; and specialized or modified instructionally related equipment for use in the school. Transition – A coordinated set of activities for a student with a disability that is designed with an outcome-oriented process, that promotes movement from school to post-school activities, including post-secondary education, vocational training, integrated employment (included supported employment), continuing an adult education, adult services, independent living, or community participation. A transition plan should be in place as part of the IEP by the student’s 16th birthday. Validity - The extent to which a test actually measures what it is intended to measure. PARENT RECOMMENDED WEBSITES Advocacy copaa.org Council of Parent Attorneys and Advocates fape.org Families and Advocates Partnership for Education pacer.org Parent Advocacy Coalition willowtreefoundation.org Non-profit Providing Advocacy Services wrightslaw.com Special Ed. Law and Advocacy Tools for Parents and Educators Autism/PDD/Asperger’s Syndrome aboutautismlaw.com autism.org autism-society.org autismspeaks.org morgancenter.org The Morgan Center rdiconnect.com Relationship Development Intervention for ASD thehelpgroup.org 32 Bipolar Disorder bpchildren.com Bipolar Disorder bpchildresearch.org Juvenile Bipolar Research Foundation bpkids.org Child & Adolescent Bipolar Foundation Nonverbal Learning Disorder nldline.com nldontheweb.org Special Education/Individuals with Disabilities Information dredf.org Disability Rights Education and Defense Fund, Inc. ed.gov/offices/OSERS/OSEP Ofc. Of Special Ed. & Rehabilitative Services ed.gov/nclb No Child Left Behind Act ed.gov/policy/gen/guid/fpco/ferpa/parents Privacy of Student Records fapeonline.org The Free Appropriate Public Education Site iep4u.com IEP Goals & Objectives ld.org National Center for Learning Disabilities ldonline.org Learning Disabilities nichcy.org National Dissemination Center for Children with Disabilities pai-ca.org/pubs/401601.html Special Ed. Rights & Responsibilities for CA reedmartin.com Special Education Rights tash.org Special Education Rights usdoj.gov/crt/ada/adahom1.html Info on Americans with Disabilities Act Tools & Training abledata.com Assistive Technology Information allkindsofminds.org Mel Levine (Understanding Learning Differences) dcn-cde.ca.gov The Diagnostic Center, Northern California difflearn.com Different Roads to Learning explosivechild.com Center for Collaborative Problem Solving lindamoodbell.com Learning Processes schoolbehavior.com Awareness, Empathy & Skills socialthinking.com Michelle Garcia Winner’s Center for Social Thinking socialskillstrainingproject.com Jed Baker teacch.com Visual Learning thelighthouseproject.com Occupational Therapy Services Publishers freespirit.com Free Spirit Publishing specialneeds.com Special Needs Project (Books/Tapes/Videos/DVDs) Sensory Processing Disorder out-of-sync-child.com Sensory Processing Disorder sinetwork.org Sensory Processing Disorder 33 FINDING YOUR VOICE Now that you have educated yourself as to your rights and responsibilities as a parent of a special needs child, we encourage you to use your voice to continue to improve the special education. Advocacy for your child does not end at the school site. It is a life-long pursuit. Special Education has evolved to where we are today through the advocacy of parents over the past five decades. Here’s what you can do: Start your own parent support group Attend your district’s parent advisory committee. If your district doesn’t have one, talk to district personnel to start one Become a board appointed CAC rep to the Selpa Contact your Selpa to participate in the annual Sacramento Legislative Day Participate on your School Site Council to represent the special education community Organize parents in your community for letter-writing campaigns and legislator visits regarding key issues and special education legislation. Unite on specific issues for the common good. Together, your voices are louder and more likely to be heard 34