HRC Ref ID: 11/833 First NI: Hale Health Research Council of New Zealand Partnership Programme Request for Proposals Full Application Form JV210-Disability Applicants are advised to: 1) read the Partnership Programme Application Guidelines for the Māori living with disability and their whānau RFP for information on completing this form; 2) read the HRC Rules for applicant eligibility criteria and budgetary entitlements; 3) confirm the application due date for electronic files and hardcopies; 4) ensure that the correct version of this application form is used. Incomplete or late applications will not be accepted. Double-click header, replace “surname” with the first named investigator’s surname and add HRC Ref ID. Double-click elsewhere on the form to return to main part of form. This section is completed using a web-based form in EASY. Refer to the Guidelines for guidance as to what is required in this section. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 1 Partnership Programme MODULE 1. GENERAL INFORMATION (completed using web-based form in EASY) HRC Ref ID: 11/833 First NI: Hale MODULE 2. PROPOSED RESEARCH Section 2A – Summary of Proposed Research. Haua Matau Māori Rationale for research: In spite of the introduction of He Korowai Oranga (Māori Health Strategy) and the New Zealand Disability Strategy, Māori health statistics and morbidity rates are disparately poor compared to non-Māori. These disparities extend to Māori living with disability and the access and utilisation of rehabilitation and disability support services. Our goal is to ensure Māori fully utilise disability services in New Zealand. Relevance to RFP: This study will identify access issues for Māori and their whānau to health and disability services. By identifying both the barriers and facilitators of access to health and disability services, recommendations for improvement of accessibility can be made. Research design and methods Design: Within a transformative paradigm, underpinned by the principles of a kaupapa Māori research approach, a mixed methods case study design will be used. In a case study, an entity or a phenomenon is studied in-depth. Data can be collected by a variety of methods and collated to provide a rich description of the case, the narrative of which can be used to drive theory development. In this project, we will study in-depth the phenomenon of Māori living with disability and their whānau accessing health and disability services and supports in a well-bounded region that epitomises rural and small–town New Zealand, namely the Murihiku region. Methods: Stakeholder consultation will be used to identify the health and disability community services and supports presently available for people living with disability within the Murihiku region. Three separate studies will explore how accessible these identified services are for Māori living with a disability and their whānau; identify both the barriers and the facilitators to accessibility; and to make recommendations for improving accessibility: Study 1: Organisational postal survey of accessibility using a structured questionnaire Study 2: Onsite cultural assessment (based on the Guidelines for Cultural Assessment – Māori under the Intellectual Disability (Compulsory Care and Rehabilitation) Act 2003: August 2004) Study 3: Participatory action research, underpinned by the principles of a kaupapa Māori research approach. It is the intent that these recommendations would then be implemented and evaluated in a future PhD study, a study not part of this tender. Study outcomes: The outcomes of this in-depth exploration will be to: Develop an appropriate research framework to collect data relevant to Māori with disability and their whānau, Make recommendations to improve service delivery to Māori and their whānau both locally and nationally, Build research capacity for Māori and Māori with disability within the Murihiku region. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 2 Partnership Programme Aims 1) Identify the health and disability community services and supports presently available for people living with disability within the Murihiku/Southland region. 2) Explore how accessible these identified services are for Māori living with a disability and their whānau; identifying both the barriers and the facilitators to accessibility. 3) Make recommendations for improving accessibility of service delivery for Māori living with a disability and their whānau; recommendations to inform Ministry of Health and Disability policies. 4) Develop an appropriate research framework to collect data relevant to Māori with disability and their whānau. 5) Build research capacity and capability for Māori and Māori with disability within the Murihiku region. HRC Ref ID: 11/833 First NI: Hale Section 2B – Description of Proposed Research There is a 10 page limit for this section. Use the headings as appropriate. Haua Matau Māori Rationale for research Background/ Whakapapa Approximately 17% of New Zealand’s population identify with having some form of disability that impacts on their life (Statistics New Zealand, 2007). The age-standardised disability rate for Māori was 19% (95,700 people) in the 2006 census (Office for Disability Issues and Statistics New Zealand, 2010). The prevalence of disability among Māori increased with age: 61% in the age group 65 years plus, 34% in the 45-64 year age group, 22% aged 25-44 years, 13% aged 1524 years and 15% aged 1-14 years. Mobility disability (11%) and agility (9%) disability are the most common types of disability experienced by Māori adults (Ministry of Health 2004). He Korowai Oranga is reinforced by the New Zealand Disability Strategy (Making a World of Difference / Whakanui Oranga (Ministry of Health, 2001). Underpinning the New Zealand Disability Strategy is a vision of a fully inclusive society: “New Zealand will be inclusive when people with impairments can say they live in a society that highly values our lives and continually enhances our full participation.” Two key objectives of this strategy are (1) to promote participation of disabled Māori and (2) value families, whānau and people providing ongoing support. Furthermore, the National Advisory Committee on Health and Disability report “To have an Ordinary Life” stated: “It is reasonable to assume that Māori adults with an ID will have poorer access to primary health care and secondary health care than non- Māori adults with an ID … There is a paucity of health promotion materials for adults with an ID and even more scarce are health promotion for Māori adults with an ID.”(National Health Committee 2003:153-154). In spite of these fundamental documents, Māori health statistics and morbidity rates are disparately poor compared to non-Māori (Robson and Harris 2007). These disparities extend to Māori living with disability and access and utilisation of rehabilitation and disability support services (Harwood, 2010). For example, Māori were more likely than non-Māori to have a functional disability requiring assistance (14% of all Māori living in households compared with 9% of all non-Māori living in households). Disease and/or illness are the most common cause of disability reported by Māori (with an age-standardised rate of 8400 per 100,000 people living in households) and by non-Māori, but for the latter the age-standardised rate is lower (5500 per 100,000) (Ministry of Health 2004). Furthermore, Māori with disability are more likely to: live in more deprived areas of New Zealand, be unemployed, earn less, and have fewer qualifications. The importance of whānau support for Māori with disability is emphasized by the fact that Māori with disability are less likely than nonMāori with disability to live in residential care facilities (in 2001 only 700 Māori with disability lived in residential care facilitates) (Ministry of Health 2004). JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 3 Partnership Programme The Treaty of Waitangi acknowledges Māori as Tangatawhenua, indigenous people of New Zealand, and reinforces the importance of protecting the wellbeing of Māori, Māori participation in determining processes for best practice, and partnership with non-Māori with these aspirations in mind (Kingi 2007). He Korowai Oranga, New Zealand Ministry of Health’s Māori Health Strategy (Ministry of Health, 2002), has as its intent the support of Māori whānau to optimise health and wellbeing. The outcomes specified by He Korowai Oranga are: 1. That whānau experience physical, spiritual, mental and emotional health and have control over their own destinies; 2. That whānau members live longer and enjoy a better quality of life (than they currently do); 3. That whānau members, including those with disabilities participate in te ao Māori (Māori society) and wider New Zealand society. HRC Ref ID: 11/833 First NI: Hale Jones et al (2006) suggest that health research in the past has largely failed to acknowledge Treaty obligations, ignoring cultural differences and ‘assumed that the Pakeha way of doing things is a norm’. In a qualitative study, Māori with disability identified that Māori specific assessment criteria, access to cultural expertise and input to assessments were highly valued (Ratima et al, 1995), reinforcing the view that acknowledging Māori knowledge and world-views in the delivery of disability support services to Māori is important and may help to bridge the existing inequality gaps in service between Māori and non-Māori. To improve access to disability services and supports for Māori living with disability and their whānau we first need to explore and understand current access. Of pertinence to this proposal is that in Māori concepts of health there is no distinction between health and disability and thus no clear definition of disability. The concept of “wellness” is better understood, and is perceived to be more linked to an individual's ability to contribute to the Iwi and whānau, thus based not on personal performance per se, but performance within a wider community setting (Ministry of Health 2004). Therefore, this proposal views both Māori living with disability and their whānau as entwined and not separate entities. Kaupapa Māori research provides a theoretical framework, based on philosophical values that reflect Māori world views (Pipi et al 2004), that encourages planning, conducting, evaluating and disseminating research in a culturally responsive manner (Lee 2005, Smith 1999). Principles integral to this design are mana (prestige), tapu (restrictions), whakawhanaungatanga (relationship building), iwi/hapu/whānau (responsibility to groups) and tikanga (law) (Bishop 1996). Kaupapa Māori research is centred around elevating mana for Māori. According to this model, researchers should endeavour to identify and respect Māori aspirations for research, and outcomes should benefit all research participants. Many suggest that kaupapa Māori research should be undertaken by Māori who whakapapa (have origins) to the communities (Smith 1999), as this guarantees relationships to be accountable and ongoing. This may not always be possible where Māori population is not high, placing undue pressure on those who whakapapa to the area and limiting research potential. It emphasizes, however, the expectation and responsibility to form and maintain relationships when entering research with Māori and supports developing Māori research capacity (Wilson 2008). Being directed by these principles ensures that the way research is conducted is tika, or carried out correctly, protecting both researchers and participants when studying issues pertaining to Māori (Cram 2001). Our study seeks to meet these aspirations. Our study endeavours to apply the following tikanga Māori protocols (Bryant 2010, Cram 2001, Smith 1999): 1. Aroha ki te tangata-respect for people: we have consulted and worked in close association with Nga Kete Matauranga Pounamu Charitable Trust (Invercargill) in the development of this proposal. Our relationship with Nga Kete Matauranga Pounamu predates the release of this RFP. Our study will have a Research Advisory Group comprising people with disability and their whānua as well as the Kaumatua (elders) identified by local rūnunga. We will ensure during the process of consultation and research planning that the empowerment/mana of the people remains with the people and there is an understanding that if they do choose to participate they deem the kaupapa (agenda) as important. 2. He kanohikitea- face to face (‘a face seen’) (Pipi 2004, Mead 2003): to the best of our ability, consultation, planning, research methods and dissemination of findings will be conducted faceto-face to demonstrate respect and a commitment to the research relationship. This is important for building a level of trust and developing essential relationships and allows for intent of the researcher to be determined. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 4 Partnership Programme This study therefore, primarily aims to identify the barriers and facilitators for Māori living with disability accessing disability services and supports, and to make recommendations for improving the accessibility of these services. We will, based on kaupapa Māori research principles, use case study methodology to achieve these aims, and thus, a secondary aim of this study will be to develop an appropriate research framework to collect data relevant to Māori with disability and their whānau, and to build research capacity and capability for Māori and Māori with disability within the Southland region. HRC Ref ID: 11/833 First NI: Hale This study’s design will employ the principles of Kaupapa Māori research, underpinned by a transformative research paradigm (Mertens 2009), to ensure that the study is conducted with respect of Māori ideologies and world-views, resulting in quality research of significance to Māori, aimed to bring about beneficial change. The method of research chosen is that of a case study. In a case study an entity or a phenomenon is studied in-depth. Data can be collected by a variety of methods and collated to provide a rich description of the case, the narrative of which can be used to drive theory development (Merriam, 1998). We will study in-depth the phenomenon of Māori living with disability and their whānau accessing health and disability services and supports in a well-bounded region that epitomises rural and small–town New Zealand. For the location for our case study we have chosen The Murihiku or Southland district of New Zealand as it is a diverse region with an assorted mix of people and land. It has: - A mix of urban, rural and remote rural areas: 23% of the land being intensively farmed and 60% taken up by National Parks and conservation reserves. - A mix of people: of the New Zealand population, 2.3% (90,000 people) live in Murihiku/Southland; 50,000 of whom live in the city of Invercargill. - A good representation of Māori: Māori have lived in the Southland region for over 800 years. Murihiku, the Māori name for Southland, originates from Māori legends and means “the last joint in the tail of the fish that is the South Island”. The Māori ethnic group comprise 11.8% (10,442) of the people in the Southland Region compared with 14.6% for all of New Zealand. (Statistics New Zealand website, 2010). - Ngāi Tahu/Kāi Tahu was the most common affiliation in Murihiku/Southland – 35% of people of Māori descent indicate an affiliation with this Iwi. Ngāpuhi (9.3% of Māori in Murihiku/Southland) and Ngāti Porou (8.5%of Māori in Murihiku/Southland) are the next most common Iwi affiliations. In the Murihiku/Southland region 21% of Māori did not know or did not want to comment on Iwi affiliation (2006 Census). - Te Rūnanga o Ngai Tahu is the Iwi authority and overall representative governing body of Ngai Tahu Whānui being descendents of the Ngai Tahu, Ngati Mamoe and Waitaha tribes. Te Rūnanga o Ngai Tahu is made up of 18 Rūnanga Papatipu, and hold Mana Whenua status for both Otago and Southland regions: Otago district, has three distinct Runanga: Te Runanga o Moeraki (Moeraki), Kāti Huirapa Rūnaka ki Puketeraki (Karitane), and Te Runanga Otakau JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 5 Partnership Programme 3. Titiro, whakarongo…korero- look, listen…speak: we will, within the confines of the research funding, allow time and share experiences with all those involved in the research to allow for the research to occur within comfortable and acceptable time frames. 4. Manaaki ki te tangata-look after people: we will will use a transformative research paradigm (Mertens 2009); thus the research findings will be transparent and relevant to the community, aimed to achieve beneficial change. The research methodology will be underpinned by the key concept of kohu, allowing people living with disability and their whānau to tell their stories, and then together with the researchers, analyse, interpret and make sense of these stories. It is planned that the findings will result in beneficial action for those from whence it came. Additionally, where ever possible, researchers/research assistants from the community will be employed and trained in research skills, thereby perpetuating research beyond the life of this study. 5. Kia tupato- caution: the study will endeavour to observe tikanga, ensuring mutual respect and understanding of all concerned. 6. Kaua takahia te mana o te tangata - do not trample on the mana of people: in this study we are adopting a transformative, action research paradigm (Mertens 2009), in which the “participants” are fully involved and guide all aspects of the research, assisted by the researchers, to ensure the research leads to outcomes the “participants” wish for. 7. Kia ngakau mahaki- be humble, don’t flaunt your knowledge: our research paradigm and methodologies will ensure that Māori knowledge is valued and respected, and that the researchers knowledge will be used to assist and guide the advancement of the community. 8. Whakawhanaungatanga (weaving people together/making connections): our participatory methodology will establish strong sustained relationships between the researchers and the community (Hodgson 2001). HRC Ref ID: 11/833 First NI: Hale (Dunedin). The Murihiku/Southland district has four mana whenua roopu: Awarua Runanga (Bluff), Waihopai Rūnaka (Invercargill), Hokonui Runanga (Gore), and Oraka Aparima Rūnaka (Colac Bay). These bodies have a membership born of blood or whakapapa lineage ties and are all active in the community. In our project we will explore in the Murihiku / Southland region the access for Māori living with disability and their whānau of health and disability services and supports, and identify the barriers and facilitators to access. Our methods to collect data will be informed by a kaupapa Māori approach, and thus although data collection methods have been suggested in this proposal, many methods will not be confirmed until further discussion and consensus with all those involved in the study. Relevance to RFP Our innovative project directly meets the aims of the RFP in that we are proposing a study, which identifies access issues for Māori and their whānau to disability and health services. This research will therefore contribute to better service delivery and improved access to disability services for those living with disability and their whānau; promoting improved health outcomes for Māori. Our study will meet these aims using the case study of the Murihiku/Southland. This is a welldefined area, permitting an achievable study within the one year limit of the tender, yet a diverse region arguably representative of typical rural New Zealand, allowing national recommendations to be made. We are using a mixed methods design to ensure we collect quality evidence via quality research and evaluation. Integral to our proposal is the development of research capability of participating Māori, both with and without disability and their whānau in the study. We have a plan to disseminate the research findings both locally to the people from whence they originated, ensuring tikanga, nationally, and internationally, facilitating research evidence to improve health outcomes for Māori with a disability and their whānau. The aims of our study endeavour to address the five key areas of interest within the precincts of our case study of the Murihiku/Southland region: (1) Analysis of workforce competencies for an effective health and disability workforce – achieved with a postal survey (study 1 below); (2) Quality standards for health and disability services that include cultural competency – achieved with an onsite assessment (study 2 below); (3) Service effectiveness, including reduction of disparities and facilitation of wellness – achieved with a postal survey (study 1 below); (4) The delivery of health and disability services to Māori and their whānau, including access and promotion of services – achieved with all three studies described below; and (5) The health literacy and information needs of Māori with a disability and their whānau – achieved with all three studies described below and with our planning of findings dissemination. The project methodology has been developed with the RFP’s stipulations: it is an innovative study underpinned by kaupapa Māori approach which allows for the development of new methods of data collection. It uses a mixed methods approach, combining systematic review of the literature, quantitative and qualitative methodologies. It has been developed in close partnership with Nga Kete Matauranga Pounamu Charitable Trust (Invercargill). JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 6 Partnership Programme The outcomes of this in-depth exploration will be to: - Develop an appropriate research framework to collect data relevant to Māori with disability and their whānau, - Describe access for Māori living with disability and their whānau of health and disability services and identify the barriers and facilitators to access - Make recommendations to improve disability service delivery both locally and nationally, - Build research capacity and capability for Māori and Māori with disability within the Murihiku/Southland region. HRC Ref ID: 11/833 First NI: Hale Research design and methods The specific aims of our project will be to: 1) Identify the health and disability community services and supports presently available for people living with disability within the Murihiku/Southland region. 2) Explore how accessible these identified services are for Māori living with a disability and their whānau; identifying both the barriers and the facilitators to accessibility. 3) Make recommendations for improving accessibility of service delivery for Māori living with a disability and their whānau; recommendations which will inform Ministry of Health disability policies. 4) Develop an appropriate research framework to collect data relevant to Māori with disability and their whānau. 5) Build research capacity and capability for Māori and Māori with disability within the Murihiku/Southland region. It is the intent that these recommendations would then be implemented and evaluated in a PhD study, a study which is not part of this tender. To achieve aim 1: To identify the health and disability community services and supports presently available for people living with disability within the Murihiku/Southland region. An emerging Kairangahau Māori or a research assistant will consult with appropriate stakeholders; such as the Murihiku/Southland district and city councils, known health and disability services, appropriate websites, the Ministry of Health and by word-of-mouth to develop a list all organisations that offer a health or disability service or support for people living with disability within the Murihiku/Southland region. (Duration: one month) To achieve aim 2: To explore how accessible these identified organisations are for Māori living with a disability and their whānau, identifying both the barriers and the facilitators to accessibility. We will achieve Aim 2 with three separate studies: Study 1: Literature Review and Survey Design: Based on a systematic review of published international literature and consultation with our Research Advisory Group (this group will be described later) an appropriate questionnaire or questionnaires will be identified to assess the accessibility of organisations catering for Māori living with disability (identified during the stakeholder consultation). More specifically we will use the questionnaire / questionnaires to assess aspects of (1) Analysis of workforce competencies, (2) Quality standards, (3) Service effectiveness (reduction of disparities and facilitation of wellness), (4) Access and promotion of services, and (5) Health literacy and information needs. This questionnaire (or questionnaires) will be posted to all identified organisations with an invitation for them to participate and to complete and return the questionnaire. (Duration: three months) The research question for the systematic review will be: What are the most appropriate questionnaires to assess both disability and indigenous cultural accessibility of health and disability services? Method: This work will be undertaken by two of the emerging Kairangahau Māori under the guidance and assistance of the named researchers and the Research Advisory Group Systematic review: A search strategy will be developed and implemented, in conjunction with University of Otago librarians. Identified will be the databases, search terms, inclusion and JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 7 Partnership Programme Method HRC Ref ID: 11/833 First NI: Hale exclusion criteria and a means of rating the quality of included studies. Searching, paper selection and quality rating will be undertaken by both Kairangahau Māori independently and then compared to ensure a reliable process is undertaken. From this systematic search the questionnaire/s considered to best meet the needs of the accessibility assessment detailed above will be chosen. Survey: Identified organisations will be posted a letter of invitation and explanation and the questionnaire/s to complete. Two follow-up reminders will be sent. Data will be analysed descriptively in terms of means, medians and frequencies. Study 2: Onsite cultural assessment Study 3: Participatory action research study underpinned by a Kaupapa Māori approach This study will run concurrently with Study 2. In this participatory action research study a kaupapa Māori approach will be used to work together with Māori living with a disability and their whānau to explore ways in which we can: (1) Decide on an appropriate research framework to collect relevant data. (2) Find out what the barriers and facilitators are to accessibility in the services they utilise or would like to utilise. (3) Suggest ways in which such services could be made more accessible. The Researchers for Study 3: Guided by our research partners, Nga Kete Matauranga Pounamu Charitable Trust and our Research Advisory Group, Māori living with a disability and their whānau who are willing to work alongside our study’s Māori researchers will be engaged into the research process. This collaborative group will initially discuss and agree on what data needs to be collected, appropriate ways to collect data and who these data should be collected from. Data will then be collected as agreed. The group as a whole will analyse (using a thematic analytical process), interpret and discuss the findings. The group will identify barriers and facilitators to accessibility, and make recommendations as to ways in which accessibility for Māori living with a disability and their whānau to health and disability services can be improved. Method for Study 3: Process: As this is participatory action research the group (as described in the paragraph above) needs to discuss and come to a consensus of how they wish to undertake this study; this will require a number of discussion sessions. The group will then enter into a cyclic process of implementing their method with a couple of participants, reflecting on the implementation, refining the method and implementing it with the next participant/s. Data analysis: As the data collected will mostly likely be qualitative in nature, it will be analysed using the thematic approach of the General Inductive Approach (Thomas, 2006) as this approach answers specific study research questions by identifying the connections between the research objectives and the summary findings derived from the raw data. The analysis embraces findings derived from both the research objectives (deductive) and those arising directly from the analysis of the raw data (inductive). JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 8 Partnership Programme An onsite assessment of accessibility (from both cultural and disability perspectives) will be undertaken with a purposive sample from the identified organisations agreeing to participate. Six to eight organisations will be assessed, the sample strategy ensuring a mix of different size organisations catering for a variety of disabilities. This assessment will be guided by the processes described by the New Zealand Ministry of Health (Guidelines for Cultural Assessment – Māori Under the Intellectual Disability (Compulsory Care and Rehabilitation) Act 2003: August 2004). In accordance with these processes one of the emerging Kairangahau Māori will be trained by the named researchers and the Research Advisory Group in the skills required for such a cultural assessment. The emerging Kairangahau Māori will undertake these assessments. Data will be analysed (in terms of means, medians, frequencies, and thematically as appropriate) and interpreted by the research team and the Research Advisory Group. (Duration: four months) HRC Ref ID: 11/833 First NI: Hale Suggested methods of data collection: Although this is action participatory research, it will be up to the group to decide what methods of data collection they prefer, suggested ways might be: In-depth interviews with Māori living with a disability and their whānau; interviews to be either audio-recorded or video-recorded. The interviewer could be a member of the research team or a Māori person living with a disability or one of their whānau. Focus group discussions that are audio recorded. Again the facilitator of this group could be a member of the research team or a Māori person living with a disability or one of their whānau. Use of photo-voice, in which Māori participants living with a disability take digital photographs with provided cameras of factors they they consider to present or represent barriers or facilitators to accessibility of services/ supports. Interviews with Nga Kete Matauranga Pounamu Charitable Trust Rongoa Providers who provide mirimiri and alternate healing therapies to clients with a disability. Duration: Study 3 will take about 6 months. To achieve aim 3: Make recommendations for how service delivery can become more accessible for Māori with a disability and their whānau. To achieve aims 4and 5: Develop an appropriate research framework to collect data relevant to Māori with disability and their whānau. Build research capacity and capability for Māori and Māori with disability within the Murihiku/Southland region. These aims will be achieved primarily by Study 3. The above research will then be continued beyond the lifespan of the tender as follows: PhD Study This research will continue beyond the time-span of the current tender as a PhD thesis. The Māori PhD candidate will, within the framework of a kaupapa Māori approach, take the ideas and recommendations suggested by Study 3 and implement these changes, evaluate the outcomes and make further recommendations. Scholarship funding for the PhD candidate will be sought, for example from the HRC disability placement scholarship or the University of Otago PhD scholarship. Research Advisory Group This group will comprise people who can provide valuable advice and knowledge to inform the research and will include, but not be limited to: Dr Sue Crengle (a senior Māori health researcher who undertakes Kaupapa Māori research using both qualitative and quantitative methods. Sue is from the Oraka-Aparima runaka in the Murihiku area), Donna-Rose McKay (Director of Disability Information and Support Services, University of Otago) for her expert advice on issues pertaining to disability, people suggested by the Nga Kete Matauranga Pounamu Charitable Trust and their kaumatua and kuia, and Māori living with disability and their whānau. The Group will meet where possible face-to-face and at other times via audio-conference. Building research capacity and capability for Māori and Māori with disability within the Murihiku/Southland region. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 9 Partnership Programme This aim will primarily be achieved by Study 3. However we will also systematically review the international literature (using the same process as described above under Study 1), especially that pertaining to indigenous health and disability, for suggestions and recommendations that might further inform suggestions or refinement of those made in Study 3. (Duration: two months, literature review occurring simultaneously with Studies 1 and 2.) HRC Ref ID: 11/833 First NI: Hale One of the stated main outcomes of this project is to build research capacity and capability for Māori and Māori with disability within the Southland region. We will achieve this by: (1) Recruiting, training, mentoring and supporting three emerging Kairangahau Māori on the study, one of whom lives in Invercargill: Katrina Bryant (Dunedin), Kelly Tikao (Dunedin) and Sandra Stiles (Invercargill) (2) By using a kaupapa Māori approach in Study 3 we will be involving the Nga Kete Matauranga Pounamu Charitable Trust and Māori living with disability and their whānau in the research process as researchers, and thus enabling their research skills and knowledge to grow. (3) By recruiting a Māori PhD candidate to carry the research forward as their PhD thesis. (4) Involvement of local Māori both with and without disability in our Research Advisory Group. Dissemination strategy To ensure appropriate knowledge transfer and to facilitate the contribution of the findings of this research as evidence to improve outcomes for Māori living with a disability and their whānau we suggest the following (although these methods of feedback will be guided by our research partners and participants, as recommended by a kaupapa Māori research approach): (1) Findings will be presented locally to the public in community-based forums, such as hui, workshops, and/or presentations to the four Southland District Runanga, to Nga Kete Matauranga Pounamu Charitable Trust, to organisations participating in the study, to local service providers and the Ngāi Tahu Research Consultation Committee. (2) Reports to the Ministry of Health and other related organisations, such as ACC, to contribute to policy development , such as addressing issues outlined in the New Zealand Health Strategy, He Korowai Oranga, Whakatātaka Tuarua – Māori Health Action Plan 2006-2011, and the New Zealand Disability Strategy. (3) Plain language brochures both in Te Reo Māori and English will be developed and distributed to disability services for their clients. (4) Presentations to health professional organisations, e.g. Physiotherapy NZ, Primary health care organisations. (5) Reports in local media, e.g. media releases in newspapers, disability support service newsletters. (6) Publications in peer reviewed research journals and presentations/posters at research conferences. (7) Reports to HRC and Ministry of Science and Innovation to inform the frameworks for Māori research outlined in Ngā Pou Rangahau Hauora Kia Whakapiki Ake Te Hauora Māori and Vision Matauranga . Track record of the research team relevant to this proposal Associate Professor Leigh Hale is an internationally recognized physiotherapy disability and rehabilitation researcher who has successfully led many externally funded ($1.8M to date) studies. All 49 of her peer reviewed publications are linked with disability and rehabilitation. Leigh has a close relationship with the disability community in Otago and Southland and has been invited by the Stroke Foundation and Multiple Sclerosis Society to present at their southern region JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 10 Partnership Programme It is the intention that the named researchers will guide, advice and organise the whole research project, but the three emerging Kairangahau Māori will be directly involved with participants recruitment, data collection and analysis to enable the growth of their skills and knowledge. The named researchers have been chosen for this study for their expertise disability, qualitative and participatory action research (Hale and Mirfin-Veitch); and rural research (Milosavljevic). The Nga Kete Matauranga Pounamu Charitable Trust and the Research Advisory Group will provide advice and guidance to ensure the research is embedded in a Māori world view. HRC Ref ID: 11/833 First NI: Hale conferences and by the South African Rehabilitation Association to present her research at their 2009 conference. As Principal Investigator, Leigh will be working with other members of the team to facilitate, assist, support, guide, train and mentor the three emerging Kairangahau Māori, research assistants and participants working on this study. This guidance will extend to all aspects of the study including the oversight of the day-to-day administration of the research, ensuring quality assurance and that outcome and reporting requirements are met within the designated timeframes. Leigh will take a lead in developing manuscripts for publication and other forms of dissemination listed above. The Centre of Physiotherapy Research will provide full administrative and technical support. Associate Professor Stephan Milosavljevic is an experienced researcher in clinical and community-based research focussing on identification of injury risk and prevention, effective rehabilitation strategies, rural ergonomics, and occupational biomechanics. Stephan has developed close relationships with local rural communities and is highly regarded in Otago and Southland communities; in particular Stephan has undertaken extensive research with sheep shearers, many of whom are Māori. Stephan supervised a study of a post-graduate student entitled: “Assessing Effective Methods for Dissemination of Recent Shearing Research Findings for to Māori Shearing Workforce.” Stephan has been extremely involved in the community consultation stages, and will contribute to training and guidance, analysis of data, presentation of reports and the development and publication of manuscripts. Emerging Kairangahau Māori Katrina Bryant, Professional Practice Fellow and Māori liaison, School of Physiotherapy, University of Otago Kelly Tikao, Researcher, Donald Beasley Institute, Dunedin Sandra Stiles, Nga Kete Matauranga Pounamu Charitable Trust Disability Advocate Research Partner Nga Kete Matauranga Pounamu (NKMP) Charitable Trust is a not for profit mana whenua kaupapa Maori health & social service provider with 11 years’ service delivery, providing disability info and advocacy, maori mobile nursing, Māori led health promotion, smoking cessation, whanau services, restorative justice and much more. Employing 48 staff of which 98% are Māori the services engages in excess of 32,000 face to face encounters per annum with an active client base of 3,000 plus clients. NKMP has offices in Invercargil and the Wakatipu and extends a whanau ora inspired service delivery within the Southern District Health Board boundaries. NKMP is NZS ISO 9001:2008 accredited with a mission that works to ‘Connect Whanau to resources, Ideas and Energy for Wellbeing and Independence’. Values that personify the agency are upheld Aroha ki te Tangata – having the highest regard for the wellbeing and welfare of mankind. Tracey WrightTawha is the CEO. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 11 Partnership Programme Dr Brigit Mirfin-Veitch has been involved in research and education in the area of intellectual disability (ID) for 16 years and is recognised internationally as having expertise in health and health education for people with ID. She is an experienced qualitative researcher and has a strong commitment to ensuring that disabled people, their families/whānau and supporters, and the disability service sector all have a voice within and through research. Most recently Brigit has been involved in a national, mixed-method study of the ID workforce providing her with a comprehensive knowledge of the ID service sector; including the experiences and views of Māori support workers, that will inform the successful implementation of new recommendations, such as those that will be proposed by this study. HRC Ref ID: 11/833 First NI: Hale MODULE 3. REFERENCES There is no limit to the number of reference pages. Asterisks are to be placed beside applicants’ publications. References JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 12 Partnership Programme Bishop R. 1996. Collaborative Research stories: Whakawhanaungatanga. Dunmore Press, Palmerston North. Bryant K. Research with Maori. Post-graduate assignment, 2010. Cram F. 2001. Rangahau Māori :TonaTika, Tona Porto, in M.Toloch (ed.) Research Ethics in Aotearoa, Longman, Auckland: 35-52. Harwood M. 2010. Rehabilitation and indigenous peoples: the Māori experience. Disability and Rehabilitation; 32(12): 972–977. Hodgson P. 2001. Māori and science. Ministry of Research Science and Technology Hui, WhaiateAraPutaiao o Aotearoa. Wellington. *Jones R, Crengle S, McCreanor T. 2006. How Tikanga guides and protects the research process: insights from the HauoraTane project. Social Policy Journal of New Zealand. 29 (18): 60-78. Kingi T. 2007. The Treaty of Waitangi: a framework for Māori health development. New Zealand Journal of Occupational Therapy. 54(1): 4-10. Lee J. 2005. Māori cultural regeneration: Purakau as pedagogy. Paper presented as part of Centre for research in lifetime learning International conference, Stirling Scotland. Mead H. 2003. Tikanga Māori: Living by Māori Values. Huia Publishers, Wellington. Merriam S. 1998. Qualitative research and case study applications in education. Jossey-Bass, San Francisco, CA. Mertens D. 2009. Transformative Research and Evaluation. The Guilford Press: New York. Ministry of Health.2002. He Korowai Oranga. Wellington: Ministry of Health. Ministry of Health. 2001. The New Zealand Disability Strategy. Making the world of difference, Whakanui Oranganui. Wellington: Ministry of Health. Ministry of Health. 2004. Living with Disability in New Zealand - 10: Māori and Disability. ISBN 0-478-28305-9 National Health Committee. 2003. To Have an 'Ordinary' Life - Kia Whai Oranga 'Noa' : 153 – 154; http://www.nhc.health.govt.nz/moh.nsf/indexcm/nhc-ordinary-life (accessed 7th October 2008) Office for Disability Issues and Statistics New Zealand. 2010. Disability and Māori in New Zealand in 2006: Results from the New Zealand Disability Survey. Wellington: Statistics New Zealand. ISBN 978-0-478-35323-5 (online) Pipi K, Cram F, Hawke R, Huriwai T, Mataki T, Milne M, et al. 2004. A research ethic for studying Māori and iwi provider success. Social Policy Journal of New Zealand. 23(13):141. Ratima MM, Durie MH, Allan GR, Morrison PS, Gillies A, Waldon JA. 1995. He anga whakamana: a framework for the delivery of disability support services for Māori. A report to the Core Services Committee. Wellington: National Advisory Committee on Core Health and Disability Support Services. Robson B, Harris R. (eds) 2007. Hauora: Maori standards of Health IV. A study of the years 2000-2005. Wellington: Te RopuRangahauHauora a EruPomare. Smith, LT. 1999. Decolonising methodologies: research and indigenous peoples. University of Otago Press, Dunedin. Statistics New Zealand website. 2011: Accessed14.04.2011. http://www.stats.govt.nz/Census/2006CensusHomePage/QuickStats/AboutAPlace/SnapShot.a spx?type=region&ParentID=&tab=Culturaldiversity&id=1000015. Statistics New Zealand. 2007. The 2006 Disability Survey. ISBN 978-0478-31501-1. www.stats.govt.nz Thomas D.2006. A General Inductive Approach for Analysing Qualitative Evaluation Data American Journal of Evaluation 27 (2): 237-246 HRC Ref ID: 11/833 First NI: Hale Wilson D. 2008. Should non-Māori research and write about Māori? There is a role for nonMāori nurse researchers, as long as they respect and observe Māori processes, and work collaboratively with the appropriate people. Kai Tiaki: Nursing New Zealand: 20-22. Partnership Programme JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 13 HRC Ref ID: 11/833 First NI: Hale MODULE 4. RELEVANCE OF RESEARCH TO MAORI 1. How might your research contribute to the health needs of Maori? What is the health significance and context of this research to Maori? Discuss the incidence or prevalence in Maori, or indicate if not known to be significantly different from the general population. Approximately 17% of New Zealand’s population identify with having some form of disability that impacts on their life (Statistics New Zealand, 2007). The age-standardised disability rate for Māori was 19% (95,700 people) in the 2006 census (Office for Disability Issues and Statistics New Zealand, 2010). The prevalence of disability among Māori increased with age: 61% in the age group 65 years plus, 34% in the 45-64 year age group, 22% aged 25-44 years, 13% aged 1524 years and 15% aged 1-14 years. Mobility disability (11%) and agility (9%) disability are the most common types of disability experienced by Māori adults (Ministry of Health 2004). This study focuses on Māori living with disability and their whānau and thus will have a direct and relevant impact on the health needs of Māori. Assoc Prof Leigh Hale and Dr Brigit Mirfin-Veitch are experienced disability researchers, very familiar with transformative and qualitative research methodologies. Assoc Prof Stephan Milosavljevic has extensive research experience in rural research; extremely relevant to a district such as Murihiku /Southland. It is acknowledged that these three aforementioned researchers are not Māori however they have formed over time a strong relationship with the Nga Kete Matauranga Pounamu Charitable Trust and are including a Research Advisory Group. 3. Identify the Maori groups consulted regarding this application and why and how they were selected. Iwi/hapu/Maori organisation as investigator Iwi group Maori health researchers Nga Kete Matauranga Pounamu Charitable Trust. The CEO of this Trust, Tracey Wright-Tawha, met Assoc Prof Stephan Milosavljevic at the 2010 HRC Hui Whakapiripiri in Rotorua. Tracey invited continued communication with regards to mutual research endeavours. Stephan Milosavljevic and Leigh Hale met with Tracey and her colleagues on a number of occasions to further explore avenues of mutual interest and collaborations eventuating in this proposal for this HRC tender. Ngāi Tahu Research Consultation Committee – all research undertaken at the University of Otago consults with this committee which provides insight and valuable advice. Assoc Prof Jo Baxter, Associate Dean (Māori), Preventive and Social Medicine, Dunedin Medical School, University of Otago. Katrina Bryant, Māori Liaison Officer, School of Physiotherapy, University of Otago. Dr Sue Crengle, Director, Tōmaiora Māori Health Research Centre and Senior Lecturer Medical at FMHS, University of Auckland. Maori health group Other Maori group 4. Describe the process used with the above groups in the development of this application, their recommendations, and if they will have a role in the further development and/or implementation of this research project, or indicate if not applicable. Append any documentation resulting from that consultation. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 14 Partnership Programme 2. Describe the competency (e.g. cultural, relevant training, networks) of the research team to undertake the proposed research. HRC Ref ID: 11/833 First NI: Hale We are still awaiting feedback from the Ngāi Tahu Research Consultation Committee. Assoc Prof Jo Baxter and Katrina Bryant stressed and explained appropriate engagement with Māori in research, valuable advice which we have endeavoured to follow. Dr Crengle has provided feedback on the application and will continue to be involved as a member of the advisory group. 5. If there are Maori participants in the project, how has tikanga been incorporated into the methodology? For example, what culturally appropriate methods will be used to recruit, how is data from Maori to be collected, stored and analysed? Tikanga is integral to this study - please see details in the above proposal 6. Will this study lead to the development of Maori specific research methods? If so, please discuss. We are using a transformative research paradigm based on the principles of kaupapa Māori research. We will be guided by our “participants” as to which methods of data collection and data analysis they wish to use and this process will lead to the development of Māori specific research methods To ensure appropriate knowledge transfer and to facilitate the contribution of the findings of this research as evidence to improve outcomes for Māori living with a disability and their whānau, we suggest the following (although these methods of feedback will be guided by our research partners and participants, as recommended by a kaupapa Māori research approach): Findings will be presented locally to the public in community-based forums, such as presentations to the four Southland District Runanga, Nga Kete Matauranga Pounamu Charitable Trust, to organisations participating in the study, to local service providers and the Ngāi Tahu Research Consultation Committee. Plain language brochures both in Te Reo Māori and English will be developed and distributed to disability services for their clients. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 15 Partnership Programme 7. How, when and to what Maori groups, will the researchers actively disseminate research results? HRC Ref ID: 11/833 First NI: Hale MODULE 5. CONTRACT INFORMATION AND BUDGET Use the HRC Excel Spreadsheets ‘JV210budget.xls’ for Sections 5A – 5D. For the hardcopy of the application: Attach a printout of the spreadsheet Sections 5A-5D (Contract Information (Objectives and Milestones), Budget, MoU Budget(s) and FTE Summary) after this page of the application form. Ensure any page breaks are logically placed to facilitate review. For the electronic copy of the application: Upload the electronic file, when submitting the application Word file to the HRC Electronic Application System (EASY). Note required file name convention. Partnership Programme JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 16 HRC Ref ID: 11/833 First NI: Hale Section 5E – Justification of Expenses Justification of Research Staff (as listed in budget) Justify the role of all staff (named and un-named). These may be research assistants, technicians, medical staff, interviewers, support staff or similar, whose names or position titles are listed in the budget under “Research Staff” and who have specific FTE involvements. Un-named post-doctoral fellows should also be justified here. Note: if staff are different from the Expression of Interest, justify the change. Associate Professor Leigh Hale is PI on this project and will work with other members of the team to facilitate, assist, support, guide, train and mentor the emerging Kairangahau Māori and participants working on this study. This guidance will extend to all aspects of the study including the oversight of the day-to-day administration of the research, ensuring quality assurance and that outcome and reporting requirements are met within the designated timeframes. Leigh will take a lead in developing manuscripts for publication and other forms of dissemination listed above. Associate Professor Stephan Milosavljevic has been extremely involved in the community consultation stages, and will contribute to training and guidance, analysis of data, presentation of reports and the development and publication of manuscripts. Emerging Kairangahau Māori (Māori Researchers) The two emerging Kairangahau Māori, Katrina Bryant and Kelly Tikao, will work together with Sandra Stiles, an Invercargill-based emerging Kairangahau Māori, to run the day-to-day business of the research – the systematic reviews, the stakeholder consultation, survey, and the action participatory study meetings, data collection and analysis. Justification of Working Expenses and Casual Staff (as listed in budget): Masters (by Thesis) Stipends Master stipends for Emerging Kairangahau x 2 ($13,000 per stipend) Research Partners Nga Kete Matauranga Pounamu Charitable Trust: $5,223 Working Expenses Travel and Accommodation: $7,540 Travel of research staff to Invercargill and other locations in Southland x 10 visits: Car hire for 2 days: $120 plus petrol $100 x 10 visits = $2,200 Accommodation for one night x 10 visits: $120 x 2 people x 10 visits: $2,400 Travel in Southland by Kairangahau Māori – to stakeholders, organisations, participants: Car hire for 20 days: $120 plus petrol $80 x 10 visits = $2,000 Two visits by Sue Crengle to Invercargill: $350 air ticket plus $120 one night accommodation x 2 visits = $940 JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 17 Partnership Programme Dr Brigit Mirfin-Veitch will play an extremely important role in advising on recruitment, consenting and working with both participants and service organisations in this study. She will be provide valuable input to the planning and implementing of studies and in analysing data, especially that of the participatory action research study. HRC Ref ID: 11/833 Meetings: First NI: Hale $700 Hire of meetings rooms: $10/hour x 2 hours x 10 meetings = $200 Catering for meetings = $500 Software licenses: $236 $236 for NVivo license for qualitative data analysis Photocopying: Questionnaires Data collection sheets Consent and information sheets $183 60 brochures of research findings (2 pages), A4 printed @ $0.90* per double-sided A4 Papers for systematic reviews (50 pages), A4 printed @ $0.90* per double-sided A4 Intra-library accessing of papers = $30 (* internal rates for printing/photocopying) Stationery/Postage: $300 $100 for files, clipboards, CD disks for back-up $200 Local postage Communications: $392 $100 for toll calls. 200 mins p.a. based on 50c per minute calls. $52 for audio-conferencing. Audio-conference rates are $13 per hour. Regular meetings conducted via audio-conference to discuss issues, problems, and progress with staff will be required. We have allowed for 4 hours of audio-conferencing. $240 for reimbursement of Invercargill based Kairangahau Māori for personal internet set-up for project usage at a rate of $10 per month for 12 months. Materials/Consumables $1,455 $275 - Digital Dictaphones x 2 for in-depth interviews $50 - AAA Lithium batteries x 8 $600 x 2 Digital cameras $500 - Digital video cameras x 1 $30 - DVDs x 30 Transcription costs $1,500 $25 x 3 hours x 20 interviews JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 18 Partnership Programme Printing/Library $300 HRC Ref ID: 11/833 First NI: Hale Section 5F – Previous/Current contracts List previous / current contracts (up to five). Final HRC reports may be made available to Assessing Committees. Funding Agency Title of Research Investigators Start date and duration Total Value Nature of support (1 sentence) If HRC contract, was Final Report filed? If not, why? Funding Agency Title of Research Funding Agency Title of Research Investigators Start date and duration Total Value Nature of support (1 sentence) If HRC contract, was Final Report filed? If not, why? Funding Agency Title of Research Investigators Start date and duration Total Value Nature of support (1 sentence) If HRC contract, was Final Report filed? If not, why? Funding Agency Title of Research Investigators Start date and duration Total Value Nature of support (1 sentence) If HRC contract, was Final Report filed? If not, why? University of Otago Innovation in Teaching (CALT) grant Innovation in rehabilitation technology: development of a studentdriven educational website for people with chronic conditions L Hale, J Conroy, C Smith, H Mulligan, C Higgs 2010 – one year $19,983 Grant-in-aid for salary and expenses. N/A School of Physiotherapy Research Development Award Advancing research in falls prevention for older adults and people with an intellectual disability L Hale 2009 – one year $22,000 Grant-in-aid for salary and expenses. N/A Lottery Health Aqua Aerobics to improve physical function and falls risk in older adults with lower extremity osteoarthritis L Hale, D Waters, P Herbison 2008 - 2010 $70,413 Full costs (minus overheads) for salary and expenses N/A HRC Feasibility grant Incidence of and risk factors for falls in adults with intellectual disability. L Hale, A Bray, MC Robertson 2006 – 2008 $119,085 Full costs Yes JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 19 Partnership Programme Investigators Start date and duration Total Value Nature of support (1 sentence) If HRC contract, was Final Report filed? If not, why? University of Otago Research Grant Blue Prescription: physiotherapy activity support package for chronic disability L Hale, G Treharne, H Mulligan, C Smith 2010 – one year $ 45,000 Grant-in-aid for salary and expenses. N/A HRC Ref ID: 11/833 First NI: Hale Section 5G – Other Support List other research applications awaiting decision (including those to the HRC). Applicants must advise the HRC of the outcome of other research applications through their Research Office. Copy and paste as required for additional pending applications. Other Research Applications Awaiting Decision: N/A Funding Agency Title Named Investigators Start Date and Duration Total Value Date of Outcome Areas of Overlap with this Application Co-Funding: What other agencies or end-users have been approached or committed to joint or partial funding of this research? None JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 20 Partnership Programme Funding Agency Title Named Investigators Start Date and Duration Total Value Date of Outcome Areas of Overlap with this Application HRC Ref ID: 11/833 First NI: Hale Section 5H – Supporting Documents Index Please list below all memoranda of understanding (MoU) or sub-contracts and letters of collaboration. Please note that Appendices can only be included with the permission of the HRC. Memoranda of Understanding/Subcontracts List below all memoranda of understanding (MoU) or sub-contracts. Once this table has been completed, please annotate each document with the appropriate reference number from the table below (e.g. S01) and the appropriate HRC Ref ID (e.g. 11/123). Press enter on the outside of the last row to create an additional row. Person (if applicable) Brigit Mirfin-Veitch Tracey Wright-Tawha $ value (if applicable) $9,775 $5,223 Letters of Collaboration List below letters of collaboration for this research which outline material or actual support. Once this table has been completed, please annotate each document with the appropriate reference number (e.g. L01) and the appropriate HRC Ref ID (e.g. 11/123). Press enter on the outside of the last row to create an additional row. Letters of collaboration Ref. Organisation L 01. Person (if applicable) JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL $ value (if applicable) 21 Partnership Programme MoU/subcontracts Ref. Organisation S 01. Donald Beasley Institute S 02. Nga Kete Matauranga Pounamu Charitable Trust HRC Ref ID: 11/833 First NI: Hale MODULE 6. NZ RS&T STANDARD CV PART 1 1a. Personal details Full name Assoc Prof Leigh Anne Hale Present position Associate Dean of Research and Associate Professor Organisation/Employer School of Physiotherapy, University of Otago Contact Address School of Physiotherapy PO Box 56 Dunedin Post code 9054 Work telephone 03 479 5425 Mobile 021 2666 244 Email leigh.hale@otago.ac.nz Personal website (if applicable) University of the Witwatersrand, RSA University of the Witwatersrand University of Cape Town, RSA 1c. Professional positions held 2010 – present: Editor, New Zealand Journal of Physiotherapy 2009 – present: Associate Dean of Research, Physiotherapy, University of Otago 2006 – present: Senior Lecturer, School of Physiotherapy, University of Otago 2000 – 2005: Lecturer, School of Physiotherapy, University of Otago 1992 – 2000: Lecturer, Physiotherapy, University of the Witwatersrand; 1990 – 1991: Part-time lecturer, Physiotherapy,University of the Witwatersrand 1988 – 1991: Senior Physiotherapist, Johannesburg Hospital 1987 – 1988: Private physiotherapy practice, Flora Clinic, Johannesburg 1984 – 1987: Physiotherapist, Groote Schuur Hospital, Cape Town 1d. Present research/professional speciality Neurological and community-based rehabilitation, falls prevention using both qualitative and quantitative methodology (with people with multiple sclerosis, stroke, Parkinson’s disease, intellectual disability, older adults, diabetes) 1e. Total years research experience 18 years 1f. Professional distinctions and memberships (including honours, prizes, scholarships, boards or governance roles, etc) 2008–present Committee member, Otago Medical School Research Society 2008-present A Fellow of the NZ College of Physiotherapy 2007 Nominated for the OUSA's 2007 Supervisor of the Year award 2006-present Advanced Practitioner (Neurology) NZ College of Physiotherapy 2006-2010 Member, Editorial Committee, NZ Journal of Physiotherapy 2004-present Curriculum Auditor, NZ Physiotherapy Board 2004-present Member, NZ Rehabilitation Association 2000-present Member, NZ Society of Physiotherapy 2000-present Registered member NZ Board of Physiotherapy Grants: JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 22 Partnership Programme 1b. Academic qualifications 2002 Ph.D 1993 M.Sc Physiotherapy 1982 B.Sc Physiotherapy HRC Ref ID: 11/833 2010 HRC Project grant – on reserve list: “Occurrence and risk factors for fall in the intellectually disabled”: $785,325 (Investigators: L Hale, B Mirfin-Veitch, J Dockerty, MC Robertson, P Herbison, R Stancliffe) 2010 BRCSS II: Seeding Social Science Research Initiatives (SSSRI): “An examination of social impact of SAYGO”: $5,000 (Investigators: D Waters, L Hale, L Robertson, B Hale) 2009 University of Otago Research Grant: “Blue Prescription: physiotherapy activity support package for chronic disability”: $ 45,000 (Investigators: L Hale, G Trehrane, H Mulligan, C Smith) 2009 University of Otago Innovation in Teaching (CALT) grant: “Innovation in rehabilitation technology: development of a student-driven educational website for people with chronic conditions”: $19,983 (Investigators: L: Hale, J Conroy, C Smith, H Mulligan, C Higgs) 2009 School of Physiotherapy, Research Development Award, “Advancing research in falls prevention for older adults and people with an intellectual disability”: $22,000 (Investigator: L Hale) 2008 Lottery Health, “Aqua Aerobics to improve physical function and falls risk in older adults with lower extremity osteoarthritis”: $70,413 (Investigators: L Hale, D Waters, P Herbison) 2008: ACC Contestable Funding Round, “An Evaluation of the ACC Steady as You Go Fall Prevention Programme”: $178,570 (D Waters, L Hale, P Herbison) 2007: NZSP Scholarship Trust Award, “Exploring falls in people with intellectual disability”, $2,923. (Investigator: L Hale) 2006: HRC – feasibility grant: “Incidence of and risk factors for falls in adults with intellectual disability”: $119,085 (Investigators: L Hale, A Bray; MC Robertson). 2005: ACC, “An evaluation of the ACC Tai Chi Programme for the elderly”: $528,396 (Investigators: D Taylor, L Hale, K McPherson, D Waters, N Wilson). 2005: University of Otago Research Grant: “Reliability of the RT3 accelerometer to measure activity in people with neurological dysfunction”: $20,000. (Investigator: L Hale) 2005: University of Otago Innovation in Teaching (CALT) grant: “Preventing falls in people with intellectual disability: an innovative clinical placement combining theory, practice and research”: $10,000 (Investigators: L Hale, K Donovan). 2004: New Zealand Society of Physiotherapy, “Balance in people with intellectual disabilities”: $4,200.00 (Investigators: L Hale, A Bray; A Littman). 2001: HRC Project grant, "Interventions to prevent falls and injury in elderly people with impaired vision": $900,000. (Investigators: J Campbell, MC Robertson, SJ La Grow, NM Kerse, GF Sanderson, RJ Jacobs, DM Sharp, LA Hale). 1g. Total number of peer reviewed publications and patents Journal articles 45 Books, book chapters, books edited 1 Conference proceedings 41 JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL Patents Nil 23 Partnership Programme First NI: Hale HRC Ref ID: 11/833 First NI: Hale PART 2 2a. Research publications and dissemination JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 24 Partnership Programme Peer-reviewed journal articles Hale L, McIlraith L, Miller M, Stanley Clarke T, George R. (2010). The inter-rater reliability of the modified Gait Abnormality Rating Scale for use with people with intellectual disability. Journal of Intellectual & Developmental Disability, 35 (2): 1–16 Hendrick PA, Milosavljevic S, Bell ML, Hale L, Hurley DA, McDonough SM, Melloh M, Baxter GD. (2009). Does Physical Activity Change Predict Functional Recovery in Low Back Pain? Protocol for a Prospective Cohort Study. BMC Musculoskeletal Disorders, 10:136. Waters DL, Grant AM, Herbison P, Hale L, Goulding A. (2009). Osteoporosis and Gait and Balance Disturbances in Older Sarcopenic-obese New Zealanders. Osteoporosis International DOI 10.1007/s00198-009-0947-5 Hutton L R , Frame R J, Maggo H K, Shirakawa H, Mulligan H, Waters D, Hale L. (2009(. Perceptions of physical activity in falls risk elderly. New Zealand Journal of Physiotherapy, 37 (2): 85-92. Tarawhiti L, Waters D, Goulding A, Jones L, Hale L. (2009). Sarcopenic-obesity with polypharmacy is associated with gait and balance disturbances in older adults. New Zealand Medical Student Journal, 9: 19 - 25 Hale L, Miller R, Barach A, Skinner M, Gray A. (2009). Learning effects on the NeuroComEquiTest Balance Master® Motor Control Test in adults with intellectual disability. Journal of Intellectual & Developmental Disability, 34 (1): 1-6 Hale L; Pal J; Becker I. (2008). Measuring free-living physical activity in people with and without neurological dysfunction with a tri-axial accelerometer. Archives of Physical Medicine and Rehabilitation, 89 (9): 1765-1771. Waters D, Hale L. (2007). Improved Step Test Performance in Healthy Older Adults Following a 12-Week Aqua-Aerobics Programme. International Journal of Therapy and Rehabilitation, 14 (12): 538-543. Hale L, Bray A, Littman A. (2007). Assessing the balance capabilities of people with profound intellectual disabilities who have experienced a fall. Journal of Intellectual Disability Research, 51 (4): 260-268 Campbell AJ, Robertson MC, La Grow SJ, Kerse NM, Sanderson GF, Jacobs RJ, Sharp DM, Hale LA. (2005). Randomised controlled trial of prevention of falls in people aged ≥75 with severe visual impairment: the VIP trial. British Medical Journal, 331, 817 – 820. Peer reviewed books, book chapters, books edited Hale L, Crocker A, Tasker D. The expansion of community-based physiotherapy. Chapter 11:139 – 150. In Higgs J, Smith M, Webb G, Skinner M. Contexts of Physiotherapy. 2009. Churchill Livingstone: Australia. Refereed conference proceedings Hale L. “Doing it in a group is much more fun”: the value of community-based group fall prevention programmes. Health Research Division Forum, Wellington, September 2009 (Invited speaker) Waters D, Hale L, Herbison P, Robertson L, Hale B. An ACC Evaluation of Age Concern Otago “Steady as you Go” Strength and Balance Classes. NZ Association of Gerontology in Auckland October 2009 (invited presentation) Hale L. Fall prevention programmes. Invited key note speaker at the SA Neurorehabilitation Conference, Johannesburg, August 2009 Hale L, Pal J, Mirfin-Veitch B. Falls and potential risk factors in people with intellectual disability – preliminary results. Symposium Title: Falls and Adults with Intellectual Disability, Asia IASSID Conference, Singapore, June 2009 Waters D, Hale L, Grant AM, Herbison P, Goulding A. Comparable improvements in gait and balance across different body composition phenotypes following 20 weeks of Tai Chi or seated exercise. Conference of the American Geriatric Society. Chicago 2009 Hale L, Waters D. Doing it in a group is much more fun than just doing it at home”: the value of community-based group fall prevention programmes.” Invited speakers at the AUT/MOH/ACC Falls Conference, Queenstown, April 2009 Hale L. Preventing falls in people with intellectual disability: an innovative clinical placement combining theory, practice and research. Spotlight Conference, University of Otago, Dunedin, November 2008. Spotlight on Tertiary Teaching and Learning: Colloquium for the Southern Region’ November 19‐20, 2008, hedc.otago.ac.nz/.../spotlight/Programme/extraParagraphs/0/document/Spotlight%20Booklet%20 Nov608.pdf - 09 Apr 2009, page 17. Hale L, Bray A, Littmann A, Miller R, Barach A, Gray A, Skinner M. A balancing act: the challenge HRC Ref ID: 11/833 of assessing balance in people with intellectual disability. 13th IASSID Conference, Cape Town, August 2008. Journal of Intellectual Disability Research, 2008, 52 (8/9): 749 Pal J, Hale L, Bray A, Dockerty J, Robertson C, Claydon L. Falls in people with intellectual disability – a pilot study.13th IASSID Conference, Cape Town, August 2008 Journal of Intellectual Disability Research, 2008, 52 (8/9): 749. [J Pal is one of my international students] Hale L. “I just fell over – keeping people with an intellectual disability moving safely.” Biannual Congress of the NZ Society of Physiotherapy, Dunedin, 18-20 April 2008. New Zealand Journal of Physiotherapy – July 2008, Vol. 36 (2); 81. (For NZ Physiotherapy College fellowship requirements). Waters DL, Grant AM, Herbison P, Hale L, Goulding A. Gait and balance disturbances in older adults with sarcopenic-obesity. Experimental Biology (formerly called FASEB). Aging and Chronic Disease Mini-symposium. San Diego, California USA, April. The FASEB Journal. 2008; 22: 442.7. Waters DL, Goulding A, Herbison P, Grant A, Hale L .The combined influence of bone, muscle and fat on gait, balance and falls in older adults. 17th Annual Meeting of the Australian and New Zealand Bone and Mineral Society, 9 – 12 September 2007, Queenstown, New Zealand. Conference proceedings, pg 60 (http://www.anzbms.org.au/resources/asm/ASM2007_abstracts.pdf) Hale, L., Bray, A., Littmann, A. Assessing the balance capabilities of people with intellectual disabilities who have experienced a fall. Biannual Congress of the NZ Society of Physiotherapy, Auckland. New Zealand Journal of Physiotherapy (2006) 34 (2): 106 Pal J, Hale L, Claydon L, Bray A, Dockerty J, Robertson C. Falls in adults with intellectual disability: an update. NZASID Annual Conference 2007, Wellington. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 25 Partnership Programme First NI: Hale HRC Ref ID: 11/833 First NI: Hale PART 1 1a. Personal details Full name Dr Stephan Milosavljevic Present position Associate Professor Organisation/Employer School of Physiotherapy, University of Otago Contact Address PO BOX 56 Work telephone Email Personal website (if applicable) Dunedin Mobile 03 479 7193 stephan.milosavljevic@otago.ac.nz Not applicable Post code 9016 1b. Academic qualifications 2004, PhD, University of Otago 1998, MMPhty, University of Otago 1985, PGDip(Manips), Curtin 1975, BAppSc(Physio), Curtin 1e. Total years research experience 12years 1f. Professional distinctions and memberships (including honours, prizes, scholarships, boards or governance roles, etc) 2000 Best Conference Poster at international conference – International Federation Of Orthopaedic Manipulative Therapists (IFOMT) - Perth, Western Australia 2005 Vernon Willey Trust Research Fellowship. Cumulative Loads on the Body in Wool Harvesting 2008 – 2009 Research Committee (Chair) 2008 School representative on Divisional research committee 2007 – present Head AMOCK Research Group 2006 Research Administration Support Review – School of Physiotherapy 2004-present School of Physiotherapy representative and advisor to Physiotherapy discussion group on changes to Physiotherapy requirements under the terms of the HPCA Act 2004. 2001 – present Postgraduate Programme Committee (Chair 2003-2007) 2001 – present School of Physiotherapy representative and advisor to Schools Accreditation Committee and Audit team of the Physiotherapists Registration Board of NZ 2001 – 2005 Research Committee (Chair 2003-2006) JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 26 Partnership Programme 1c. Professional positions held 2010 Associate Professor, School of Physiotherapy, University of Otago 1996–2009, Senior lecturer, School of Physiotherapy, University of Otago 2007–2009, Head of AMOCK Research Group, Centre for Physiotherapy Research, University of Otago 2008 Associate Dean Research, School of Physiotherapy, University of Otago 2003-2007 Associate Dean Research & Postgraduate Studies, School of Physiotherapy, University of Otago 2001-2003 Team leader Musculoskeletal, School of Physiotherapy, University of Otago 1994-1996 Part time (0.5) Clinical Lecturer Post Graduate Physiotherapy Programmes University of Otago 1993 Contracted part time Clinical Lecturer. Post Graduate Diploma in Manipulative Physiotherapy. University of Otago 1990 – 1992 Part time Clinical Supervisor - Final year clinical placement Conjoint Undergraduate Physiotherapy Programme - University of Otago 1984-1996 Part time private practitioner Balclutha 1982-1993 Charge Physiotherapist Balclutha Hospital 1979-1982 Charge Physiotherapist and private practitioner Scottsdale Tasmania 1977-1978 Staff Physiotherapist Fremantle Hospital Western Australia 1975-1976 Staff Physiotherapist Gore Hospital 1d. Present research/professional speciality Occupational Biomechanics, Rural Ergonomics, Manual Therapy HRC Ref ID: 11/833 1g. Total number of peer reviewed publications and patents First NI: Hale Journal articles 38 Books, book chapters, books edited 6 Conference proceedings Patents 17 0 JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 27 Partnership Programme PART 2 2a. Research publications and dissemination Peer-reviewed journal articles 1. Milosavljevic S, Gregory DE, Pal P, Carman AB, Milburn PD, Callaghan JP. (2011) The influence of skill and low back pain on trunk postures and low back loads of wool handlers. Applied Ergonomics (In press). 2. Ribeiro DC, Sole G, Abbott JH, Milosavljevic S. (2011) A rationale for the provision of extrinsic feedback towards management of low back pain. Manual Therapy (In press) 3. Milosavljevic S; McBride DI; Bagheri N; Vasiljev RM; Carman AB; Rehn B; Moore D. (2011) Factors associated with quad bike loss of control events (LCEs) in agriculture. International Journal of Industrial Ergonomics (In press). 4. Ribeiro DC, Sole G, Abbott JH, Milosavljevic S. (2011) Extrinsic feedback and management of low back pain: A critical review of the literature. Manual Therapy (In press). 5. Sole G, Milosavljevic S, Nicholson H, Sullivan SJ. (2011) Selective Strength Loss and Decreased EMG Activity in Hamstring Injuries. Journal of Orthopaedic and Sports Physical Therapy (In press). 6. Milosavljevic S, McBride DI, Bagheri N, Vasiljev R, Mani R, Carman AB, Rehn B. 2011. Exposure to whole body vibration and mechanical shock: a field study of quad bike use in agriculture. Annals of Occupational Hygiene (In press). 7. Hendrick PA, Milosavljevic S, Bell ML, Hale L, Hurley DA, McDonough SA, Ryan B, Baxter D. (2010) The relationship between physical activity and low back pain outcomes: A systematic review of observational studies. European Spine Journal (In press). 8. Dean SG, Hudson S, Hay-Smith EJ, Milosavljevic S. (2010) Rural Workers’ Experiences of Low Back Pain: Exploring Why They Continue to Work. Journal of Occupational Rehabilitation (In press). 9. Mani R, Milosavljevic S, Sullivan SJ. (2011) The influence of body mass on whole-body vibration when using quad bikes in a rural work setting. The Ergonomics Open Journal.4, 1-9. 10. Mani R, Milosavljevic S, Sullivan SJ. (2010) The Effect of Occupational Whole Body Vibration on Standing Balance: A Systematic Review. International Journal of Industrial Ergonomics. 40 (6), 698-709 11. Abou Hassan J, Milosavljevic S, Carman AB. (2010) Can postural modification reduce kinetic and kinematic loading during the bowing postures of Islamic prayer? Ergonomics 53, (12), 1446–1454 12. Hendrick, P., Te Wake, A.M., Tikkisetty, A.S., Wulff, L., Yap, C., Milosavljevic, S. (2010) The effectiveness of walking as an intervention for low back pain: A systematic review. European Spine Journal. 19(10),1613-20 13. Sole C, Milosavljevic S, Sole G, Sullivan SJ. (2010) Exploring a model of asymmetric shoe wear on lower limb performance. Physical Therapy in Sport. 11(2): 60-65. 14. Hendrick PA, Boyd T, Low O, Takarangi K, Paterson M, Claydon L, Milosavljevic S. (2010) Construct validity of the RT3 accelerometer: a comparison of ground and treadmill walking at self selected speeds. Journal of Rehabilitation, Research and Development. 47(2): 157-168. 15. Milosavljevic S ,Bergman F, Carman AB, Rehn B. (2009) All-terrain vehicle use in agriculture: Exposure to whole body vibration and mechanical shocks. Applied Ergonomics. 41(4): 530535. 16. Intolo P, Carman AB, Baxter GD, Milosavljevic S, Abbott JH. (2010) The Spineangel®: examining the validity and reliability of a novel treatment device for quantifying spinal mobility. Manual Therapy. 15(2): 160-166. 17. Perry MA, Hendrick PA, Hale L, Baxter GD, Milosavljevic S, Dean SG, McDonough SM, Hurley DA. (2009) Utility of the RT3 triaxial accelerometer in free living: an investigation of adherence and data loss. Applied Ergonomics. 41(3): 469-476. 18. Carman AB, Gillespie S, Jones K, Mackay J, Wallis G, Milosavljevic S. (2010) All terrain vehicle (ATV) pitch, roll, velocity and loss of control history in agriculture. Ergonomics,53(1): 18-29. 19. Pal P, Milosavljevic S, Gregory DE, Carman AB, Callaghan JP. (2010) The influence of skill and low back pain on trunk postures and low back loads of sheep shearers. Ergonomics, 53(1):65-73. 20. Gregory DE, Pal P, Carman AB, Milosavljevic S, Callaghan JP. (2009) The effect of skill on HRC Ref ID: 11/833 21. 22. 23. 24. First NI: Hale shoulder postures and moments of force in the wool harvesting industry. International Journal of Occupational Safety and Ergonomics, 15(4):409-418.. Hendrick PA, Milosavljevic S, Bell ML, Hale L, Hurley DA, McDonough SM, Melloh M, Baxter GD. (2009) Does Physical Activity Change Predict Functional Recovery in Low Back Pain? Protocol for a Prospective Cohort Study. BMC Musculoskeletal Disorders 10: number 136. Intolo P, Milosavljevic S, Munn J, Baxter GD, Carman AB, Pal P (2009) The effect of age on lumbar motion: a systematic review. Manual Therapy,14(6):596–604. Gregory DE, Laughton C, Carman AB, Milosavljevic S, Callaghan JP. (2009) Trunk Postures and Peak and Cumulative Low Back Kinetics During Upright Posture Sheep Shearing. Ergonomics,.52(12):1576–1583. Bussey M, Bell M, Milosavljevic S (2009) The influence of hip abduction and external rotation on sacro-iliac motion. Manual Therapy, 14(5): 520-525. 25. Bussey M, Milosavljevic S, Bell M (2009) Sex differences in the pattern of innominate motion during passive hip abduction and external rotation. Manual Therapy, 14(5): 514-519. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 28 Partnership Programme 26. Hendrick PA, Bell ML, Bagge JP, Milosavljevic S. (2009) Can accelerometry discriminate levels of activity? Ergonomics. 52(8):1019 — 1025. 27. Pal P, Gregory D, Milosavljevic S, Carman A, Callaghan J. (2008) A literature review of low back injury risk in wool harvesting. Australian & New Zealand Journal of Occupational Health and Safety. 24(5): 435-453. 28. Sole G, Milosavljevic S, Sullivan SJ, Nicholson H. (2008) Running-related hamstring injuries: a neuromuscular approach. Physical Therapy Reviews.13(2): 102-108. 29. Milosavljevic S, Bain D, Pal P, Johnson G. (2008) Hip and lumbar continuous motion characteristics during extension and return in young healthy males. European Spine Journal. 17: 122-128. 30. Gregory D, Milosavljevic S, Pal P, Callaghan J. (2008) An examination of shoulder kinematics and kinetics when using a commercial trunk harness while sheep shearing. Applied Ergonomics. 39: 29-35. 31. Sole G, Hamren J, Milosavljevic S, Nicholson H, Sullivan SJ. (2007) Test-retest reliability of isokinetic knee extension and flexion. Archives of Physical Medicine and Rehabilitation, 88:626-31. 32. Pal P, Milosavljevic S, Sole G, Johnson G. (2007) Hip and lumbar continuous motion characteristics during flexion and return in young healthy males. European Spine Journal. 16: 741-747. 33. Harlick J, Milosavljevic S. Milburn PD (2007) Palpation identification of the lumbar spine. Manual Therapy, 12(1), 56-62. 34. Hickey B, Milosavljevic S, Bell M, Milburn P. (2007) The inter-rater reliability of manipulative physiotherapists in visually determining the presence of shoulder symptoms. Manual Therapy,12(3), 263-270. 35. Milosavljevic S. Carman AB, Schneiders AG, Milburn PD Wilson BD (2007). Three dimensional spinal motion of a rural occupation at risk of injury. Applied Ergonomics, 38(3), 299–306. 36. Gregory D, Milosavljevic S, Callaghan J. (2006) Quantifying low back peak and cumulative load in open and senior sheep shearers in New Zealand: Examining the effects of a trunk harness. Ergonomics 49(10), 968 – 981. 37. Milosavljevic S, Milburn PD & Knox BW. (2005). The influence of occupation on sagittal lumbar motion and posture. Ergonomics 48(6), 657-667. 38. Milosavljevic S. Carman AB, Milburn PD Wilson BD & Davidson PL (2004). The influence of a back support harness on spinal forces during sheep shearing. Ergonomics 47(11), 12081225. Peer reviewed books, book chapters, books edited 1. Milosavljevic S, McBride D, Bagheri N, Moore D, Carman AB, Vasiljev RM, Rehn B. (2010) Farmers & Quad bikes: Vibrations, Shocks, and Loss of Vehicle Control. Centre for Physiotherapy Research. University of Otago. ISBN 978-0-473-16653-3. 2. Sluka K, Milosavljevic S. (2009) Pain Mechanisms and Management for the Physical Therapist: Chapter 10 – Manual Therapy. IASP Press. ISBN-13 978-0-931092-77-0 3. Croker A, Bent A, Milosavljevic S (2008) Chapter 12 - Working in rural and remote physiotherapy: Contexts in Physiotherapy Practice. Elsevier Science. ISBN 978-0-7295-38862 4. Lovelock K, Lilley R, McBride D, Milosavljevic S, Yates H, Cryer C. (2009) Effective Occupational Health Interventions in Agriculture. Risk factors for occupational injury and disease in agriculture in North America, Europe and Australasia; A Review of the Literature (Report No.1). Injury Prevention Research Unit, Department of Preventive and Social HRC Ref ID: 11/833 First NI: Hale TV3 Interview and Media commentary April 2010 http://www.3news.co.nz/Otago-researchshows-why-quad-bikes-so-dangerous/tabid/309/articleID/151980/Default.aspx Radio New Zealand National Programme – Interviewed for CheckPoint 19th April 2010 Quad bike rollover http://www.radionz.co.nz/search?mode=results&queries_all_query=milosavljevic JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 29 Partnership Programme Medicine, University of Otago. ISBN: 0-908958-73-00 5. Lilley R, Cryer C, McBride D, Lovelock K, Morgaine K, Milosavljevic S, Davidson P. (2009) Effective Occupational Health Interventions in Agriculture. An international literature review of primary interventions designed to reduce injury and disease in agriculture. (Report No.2). Injury Prevention Research Unit, Department of Preventive and Social Medicine, University of Otago. ISBN: 0-908958-71-4 6. Cryer C, Lovelock K, Lilley R, Davidson P, Davie G, Samaranayaka A, McBride D, Milosavljevic S, Morgaine K. (2009). Effective Occupational Health Interventions in Agriculture. A report of a survey of risk factors and exposures on farms (Report No.3). Injury Prevention Research Unit, Department of Preventive and Social Medicine, University of Otago. ISBN: 0-908958-72-2 Refereed conference proceedings 1. Sole G., Nicholson H., Milosavljevic S., Sullivan S.J. Clinical assessment of the isokinetic torque curve to determine consequences of hamstring injuries. New Zealand Sports Medicine Conference. 2008 2. Sole G, Gray A, Milosavljevic S, Nicholson H, Sullivan SJ. Altered muscle activation of hamstrings muscles following posterior thigh injury. 6th Interdisciplinary World Congress on Low Back and Pelvic Pain. 2007. Pgs 293. 3. Milosavljevic S, Pal P, Carman AB, Gregory DE, Carman AB, Bell ML, Callaghan JP. The influence of personal factors, skill and productivity in an occupation at risk of LBP. Proceedings of the New Zealand Manipulative Physiotherapists Association Biennial Scientific Conference 2007. Pgs 46-47. 4. Milosavljevic S, Carman A, Pal P. All terrain vehicle vibration exposure in New Zealand. Proceedings of the 14th Biennial Conference for the Canadian Society of Biomechanics. Waterloo, Ontario, Canada. 2006. Pgs 79. 5. Milosavljevic S, Carman AB, Milburn PD, Wilson BD, Davidson P. An occupation at risk – a biomechanical analysis. Proceedings of the 8th Scientific Conference of the International Federation of Orthopaedic Manipulative Therapists (IFOMT). Cape Town South Africa. International Federation of Orthopaedic Manipulative Therapists. 2004. Pgs 62 – 65. 6. Fritsvold T, Moore A, Chong A & Milosavljevic S. Digerud online GIS: Developing on online community GIS resource in the Frogn municipal district of Norway. Proceedings of the Spatial Information Research Centre’s 16th Colloquium. Dunedin. Spatial Information Research Centre. 2004. Pgs 93-95. 7. Milosavljevic S. Understanding injury risk in a rural workforce: helping to move it forward. New Zealand Society of Physiotherapists: Physiotherapy – Keeps you Moving. Dunedin, New Zealand. 2008. Other forms of dissemination (reports for clients, technical reports, popular press, etc) University of Otago press release April 2010 – Otago researchers reveal danger factors behind quad bike accidents. http://www.otago.ac.nz/news/news/otago008118.html HRC Ref ID: 11/833 First NI: Hale PART 1 1a. Personal details Full name Dr Brigit Frances Mirfin-Veitch Present position Director Organisation/Employer Donald Beasley Institute Contact Address P O Box 6189 Dunedin Work telephone Email Personal website (if applicable) Mobile 03 4792 162 bmirfin-veitch@donaldbeasley.org.nz http:/www.donaldbeasley.org.nz Post code 027 4792012 9059 1b. Academic qualifications BA, Sociology, University of Canterbury BA (Hons), History, University of Canterbury PhD, Education, University of Otago 1c. Professional positions held 1993 - 1994 1996 - 1996 1994 - 2005 2005 - 2007 2007 – > 2010 – > Health Assistant, New Zealand Family Planning Assn. Researcher, Maths and Stats Department, University of Otago Senior Researcher, Donald Beasley Institute Assistant Director, Donald Beasley Institute. Director, Donald Beasley Institute. Honorary Senior Lecturer, School of Physiotherapy, University of Otago. 1d. Present research/professional speciality I commenced my career in 1994 as a new graduate and have spent the past 16 years committed to research and education in the area of intellectual disability. Within the broad field of intellectual disability research I am recognised as having particular expertise in the areas of family research, deinstitutionalisation, parenting by people with intellectual disability and health and health education for people with intellectual disability. I am an experienced qualitative researcher and have a strong commitment to ensuring that disabled people, their families and supporters, and the disability service sector all have a voice within and through research. To facilitate this, my research frequently includes a person-centred, participatory framework and approach. 1e. Total years research experience 16 years 1f. Professional distinctions and memberships (including honours, prizes, scholarships, boards or governance roles, etc) Member, Rehabilitation and Disability Research Theme Management Group, 2008–> Advisor to the People First National Committee, 2008–> Council Member. New Zealand Association for the Study of Intellectual Disability, 2007–> Working Party Member on Access to Primary, Secondary and Tertiary Health Care for People with Intellectual Disabilities, Otago District Health Board 2007–>International Association for the Scientific Study of Intellectual Disability. Member, Special Interest Group on Parenting by Adults with Intellectual disability. International Association for the Scientific Study of Intellectual Disability, 2000–> Working Party Member, National Working Group on Parenting by People with an Intellectual Disability (Hosted by CYF National Office) 2005-2008 Trustee, PACT Group (Intellectual disability and mental health service provider) 2002–> Journal articles 11 Books, book chapters, books edited 6 Conference proceedings 8 JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL Patents – 30 Partnership Programme 1991 1991 2005 HRC Ref ID: 11/833 First NI: Hale PART 2 2a. Research publications and dissemination Peer-reviewed journal articles JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 31 Partnership Programme Conder, J., Mirfin-Veitch, B., Sanders, J. & Munford, R. (2010). Planned pregnancy, planned parenthood: Enabling choice for adults with learning disabilities. British Journal of Learning Disabilities. doi:10.1111/j.1468-3156.2010.00625.x Conder, J., Mirfin-Veitch, B., Sanders, J. & Munford, R. (2008). I’ve got to think of him”: Relationships between parents with an intellectual disability and foster parents. Developing Practice: The Child, Youth and Family Work Journal. 21, Winter. Munford, R., Sanders, J., Mirfin-Veitch, B., & Conder, J. (2008). Ethics and research: Searching for ethical practice in research. Ethics and Social Welfare, 2(1), 50-66. Munford, R., Sanders, J., Mirfin-Veitch, B., & Conder, J. (2008). Looking inside the bag of tools: Creating research encounters for people with learning disabilities. Disability & Society, 23(4), 334347. Conder, J. & Mirfin-Veitch, B. (2008). Giving and receiving personal care: What does it mean for clients and carers? Kai Tiaki Nursing New Zealand, 14(10), pp. 20-22. Conder, J., Mirfin-Veitch, B. & Bray, A. (2007). Meeting the primary health needs of adults with an intellectual disability. Practice Nurse Journal, pp34-39. February. Johnston, H., Henaghan, M. & Mirfin-Veitch, B. (2007). The experiences of parents with an intellectual disability within the New Zealand Family Court System. New Zealand Family Law Journal, 5(9), pp. 226-236. Mirfin-Veitch, B. Bray, A., & Ross, N. (2003). “It was the hardest and most painful decision of my life!” Seeking permanent out-of-home placement for sons and daughters with intellectual disabilities. Journal of Intellectual and Developmental Disability. 28(2), 99-111. Mirfin-Veitch, B., Bray, A., Williams, S., Clarkson, J. & Belton, A. (1999). Supporting parents with intellectual disabilities. New Zealand Journal of Disability Studies, 6, 60-74. Mirfin-Veitch, B. & Bray, A. (1997). “We’re just that sort of family”: Intergenerational relationships in families including children with disabilities. Family Relations: Journal of Applied Family and Child Studies, 46(3), 305-311. Mirfin-Veitch, B., Bray, D.A., & Watson, M. (1996). They really do care: Grandparents as informal support sources for families of children with disabilities. New Zealand Journal of Disability Studies, 2, 136-148. Peer reviewed books, book chapters, books edited Mirfin-Veitch, B. (2010). Citizenship and community participation. (pp. 95-106). In Llewellyn, G., Traustadottir, R., McConnell, D. & Sigurjonsdottir, H.B. (Eds) Parents with Intellectual Disabilities: Past, Present and Futures. Chichester, UK: John Wiley & Sons Mirfin-Veitch, B. & Ballard, K. (2005). Says who? Supporting participation in disability research. In P. O’Brien and M. Sullivan (Eds). Allies in emancipation: Shifting from providing service to being of support. (pp. 189-198). Hunter, A., Mirfin-Veitch, B. (2005). I’ve been in hospital all my life. In K. Johnson and R. Traustadottir (Eds). Deinstitutionalisation and people with intellectual disability.Wellington: National Health Committee. Mirfin-Veitch, B. (2005). Dislocation: Deinstitutionalisation in the lives of families of people with an intellectual disability. (Doctoral Thesis, University of Otago). Bray, A. & Mirfin-Veitch, B. (2003). Research involving families with a disabled member. In R. Munford and J. Sanders (Eds). Making a difference: Research and families, (pp. 74-92). NSW, Australia: Allen & Unwin. Mirfin-Veitch, B. & Bray, A. (1997). Grandparents: Part of the Family. In B. Carpenter (Ed). Families in Context: Emerging trends in family support and early intervention. London: David Fulton Publishers. Refereed conference proceedings Mirfin-Veitch, B. (2010). “He’s like a brother to me” – Friendships and relationships in residential group homes. Paper presented at the No One Alone Conference, Auckland, September. Mirfin-Veitch, B. (2010). Critical transitions in the journey to parenthood and beyond for people with intellectual disability. Invited Keynote Address at the “Transitions, Perspective and Practices” Conference, New Zealand Association for the Study of Intellectual Disability, Dunedin, August. Conder, J., Gates, S., & Mirfin-Veitch, B. (2010). Maintaining the mental health and wellbeing of women with intellectual disability through life transitions. Paper presented at the “Transitions, Perspective and Practices” Conference, New Zealand Association for the Study of Intellectual Disability, Dunedin, August. HRC Ref ID: 11/833 First NI: Hale JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 32 Partnership Programme Evans-Turner, T., Milner, P., Gates, S., Mirfin-Veitch, B., Higgins, N. (2010). The Maslach Burnout Inventory and its relationship with staff transition in and out of the intellectual disability workforce. Paper presented at the “Transitions, Perspective and Practices” Conference, New Zealand Association for the Study of Intellectual Disability, Dunedin, August. Raffensperger, M., Miller, J., & Mirfin-Veitch, B. (2010). A rewarding but complex practice environment. Paper presented to the Pacific Counselling Hui, September. Home, A., Carter, I. & Mirfin-Veitch, B. (2009) Parenting and disability: International perspectives on parent need and community response. CASWE/ACFTS Conference, Ottawa, May. Mirfin-Veitch, B. & Conder, J. (2009). “What difference does it make?”: Citizenship and community participation in the lives of adults with intellectual disability. Paper presented at the “From Theory to Practice: Knowledge and Practices” Conference, New Zealand Association for the Study of Intellectual Disability, Hamilton, August. Conder, J. & Mirfin-Veitch, B. (2009). “He will be just like his Mum and Dad”: The children of parents with an intellectual disability. Paper presented at the “From Theory to Practice: Knowledge and Practices” Conference, New Zealand Association for the Study of Intellectual Disability, Hamilton, August. Higgins, N., Evans-Turner, T., Milner, P. & Mirfin-Veitch, B. (2009). Working in intellectual disability services in New Zealand: An overview of current research. Paper presented at the “From Theory to Practice: Knowledge and Practices” Conference, New Zealand Association for the Study of Intellectual Disability, Hamilton, August. Mirfin-Veitch, B. (2009). What does the research tell us about relationships in the lives of disabled people and their families? Workshop presented to Standards Plus Family Leadership Series, Dunedin, 2009. Conder, J., Mirfin-Veitch, B., Sanders, J., & Munford, R. (2008). Planned pregnancy, planned parenting: evidence for policy and practice. Paper presented at the “Principles, Policies & Practices: The search for evidence” Conference, Australasian Society for the Study of Intellectual Disability, Melbourne, November. Higgins, N., Milner, P., Evans-Turner, T., Mirfin-Veitch, B. & Gates, S. (2008). Working in intellectual disability services in New Zealand: Who are we and why do we work? Paper presented at the “Principles, Policies & Practices: The search for evidence” Conference, Australasian Society for the Study of Intellectual Disability, Melbourne, Nov. Mirfin-Veitch, B. (2007) The importance of active citizenship and community engagement in the lives of parents with intellectual disability. Paper presented at the Australasian Association for the Scientific Study of Intellectual Disability, Fremantle, Western Australia. November. Mirfin-Veitch, B. (2006). Exploring the support needs of New Zealand fathers who have an intellectual disability. Paper presented to International Association of the Scientific Study of Intellectual Disability, European Congress, Maastrict, Netherlands, August. Mirfin-Veitch, B. (2005). “Well my brother means a lot to me: Understanding the views and experiences of siblings of people who have intellectual disability. Paper presented at the Australasian Association for the Scientific Study of Intellectual Disability, Auckland, New Zealand. October. Mirfin-Veitch, B., & Conder, J. (2005). Exploring the support needs of New Zealand parents who have an intellectual disability. Paper presented at the Australasian Association for the Scientific Study of Intellectual Disability, October, Auckland, New Zealand. Mirfin-Veitch, B., Bray, A. & Ross, N. (2000). “Family decision making within the process of deinstitutionalization” at the 11th World Congress of the IASSID. “New Millenium: Research to Practice. Seattle, USA, 1-6 August. Mirfin-Veitch, B., Bray, A. & Ross, N. (2000). Promoting awareness of women’s health: Health education for women with intellectual disabilities at the 11th World Congress of the IASSID, New Millenium: Research to Practice. Seattle, USA, 1-6 August. Mirfin-Veitch, B. (2000). Action research with women with intellectual disabilities: Lessons for health educators. Paper presented at the New Zealand Action Research Network (NZARN) Conference, Christchurch, 18 September. Watson, M. & Mirfin-Veitch, B. (1996). Unique ways of coping: Qualitative research with parents and grandparents of children with intellectual disabilities. In N. Taylor and A. Smith (Eds). Investing in Children: Primary Prevention Strategies. Proceedings of the Children’s Issues Centre Inaugural Child and Family Policy Conference, Dunedin. Patents N.A. Other forms of dissemination (reports for clients, technical reports, popular press, etc) Conder, J., Milner, P., Mirfin-Veitch, B., & Schumeyer, D. (2009). The Great Life Project. A Report prepared for IHC/IDEA Services by the Donald Beasley Institute in collaboration with the HRC Ref ID: 11/833 IHC Self Advocacy Advisory Committee. Milner, P., Gates, S., Mirfin-Veitch, B., & Stewart, C. (2008). An examination of the outcome of the resettlement of residents from the Kimberley Centre. Dunedin: Donald Beasley Institute. Gates, S., Stewart, C., Milner, P., Mirfin-Veitch, B. & Schumayer, D. (2008). The impact of deinstitutionalisation on the staff of the Kimberley Centre Residents. Dunedin: Donald Beasley Institute. Stewart, C., Gates, S., Milner, P., Mirfin-Veitch, B. & Schumayer, D. (2008). The impact of deinstitutionalisation on the families of the Kimberley Centre Residents. Dunedin: Donald Beasley Institute. Mirfin-Veitch, B., Bray, A., Stewart, C., Sharp, S., Cleland, G., Kelly, B., Siataga, P., Kirk, R. & Hogan, S. (2006). Evaluation of intersectoral disability needs assessment and service coordination trials. 212 pages). Dunedin: Donald Beasley Institute. Mirfin-Veitch, B. (2003). Education for adults with an intellectual disability (including transition to adulthood). Review of the literature prepared for the National Advisory Committee on Health and Disability to inform its project on service for adults with an intellectual disability. Wellington: National Health Committee. Mirfin-Veitch, B. (2003). Income for adults with an intellectual disability.Review of the literature prepared for the National Advisory Committee on Health and Disability to inform its project on service for adults with an intellectual disability. Wellington: National Health Committee. Mirfin-Veitch, B. (2003). Relationships and adults with an intellectual disability. Review of the literature prepared for the National Advisory Committee on health and Disability to inform its project on service for adults with an intellectual disability. Wellington: National Health Committee. Mirfin-Veitch, B. (2001). Taking More Control of our Health. A Health Education guide for women. Dunedin: Donald Beasley Institute. Mirfin-Veitch, B., Ross, N. & Bray, A. (2000). Templeton resettlement family experiences project: Preliminary report – Phase two. Dunedin: Donald Beasley Institute. Mirfin-Veitch, B., Ross, N. & Bray, A. (1998). Templeton resettlement family experiences project: Preliminary report – Phase one. Dunedin: Donald Beasley Institute. Watson, M., Mirfin-Veitch, B., Holton, D. & Tomkins, A. (1997). Professional development for staff involved with students with disabilities. Dunedin. Donald Beasley Institute. JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 33 Partnership Programme First NI: Hale HRC Ref ID: 11/833 First NI: Hale MODULE 7. ADMINISTRATION Do not copy any sections in MODULE 7. Send with original application only. Section 7A – Ethical and Regulatory Agreement Requires human ethical approval? Yes No If this application does not require ethical approval, please briefly provide reason; If this application requires consent from other regulatory bodies such as ERMA, MAF, DOC, GTAC, SCOTT or Biosafety, please provide reason; No Note: Information on the structure and operating guidelines of the HRC’s DMCC are available from the HRC website. For further information please contact the Secretary to the DMCC, ethics@hrc.govt.nz. The applicant has read the ‘Guidelines on Ethics in Health Research’, available from the HRC website (http://www.hrc.govt.nz/assets/pdfs/ethgdlns.pdf) and agrees to abide by the principles outlined in it. The undersigned also agrees to provide written evidence before any research procedures commence, that in any study involving animal or human subjects, animal or human materials or personal information, a properly constituted accredited Ethics committee (a list of currently accredited Ethics Committees is available on the HRC website) has examined and agreed to the ethics of the proposal outlined in this proposal. If minor changes in the research design or procedures have been required for ethical reasons, the HRC must be informed of them. The undersigned also undertakes to ensure that all regulatory consents are gained before research commences. For further information regarding the ethical approval process, please contact the Secretary to the HRC Ethics Committee, ethics@hrc.govt.nz, or the appropriate accredited Ethics Committee. First Named Investigator Name: Signed: Assoc. Prof. Leigh Hale Head of Department/School/Faculty or Hospital Name: Signed: Prof. David Baxter JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL Date: Date: 34 Partnership Programme The following information will be used for administrative purposes. Yes Is the proposed research a clinical trial, a community intervention study or innovative treatment? If yes to the above, do you intend to have an independent Data Monitoring Committee? If yes to the above, will this be through the HRC’s Data Monitoring Core Committee (DMCC)? HRC Ref ID: 11/833 First NI: Hale Section 7B – Administrative Agreement Only the signed copy of this page is required. This form must be returned to the HRC with the original copy of the contract application. Applications that do not have a fully completed administrative agreement will not be accepted. We the undersigned have read the above administrative agreement and undertake to abide by the conditions of this agreement in respect of any contract made by the Health Research Council of New Zealand as a result of this application. We the undersigned confirm that the information provided in this application is to the best of our knowledge true, that all sections are correct at the time of application submission, that each NI agrees to the stated FTE% contribution and that funding to any NI from any source will not exceed 100 FTE%. First Named Investigator Name: Signed: Assoc. Prof. Leigh Hale Head of Department/School/Faculty or Hospital Name: Signed: Prof. David Baxter Authorised official on behalf of host institution Name: Signed: Position: Date: Date: Date: Host name: JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 35 Partnership Programme All HRC applications must include an undertaking to abide by the following administrative agreement: 1. It is understood and agreed that this application and any contract awarded as a result of this application is subject to the Health Research Council of New Zealand Rules (“Permissible Use of Research Funding and Operation of Contracts”). Funds will not be expended for any other purpose than described in this application. 2. The host institution agrees and undertakes to bear all risk and claims connected with any operation covered by this application and to indemnify and hold harmless the Council against any and all liability suits, actions, demands, costs or fees on account of death, injuries to persons or property, or any other losses resulting from or connected with any act or omission performed in the course of the research. 3. The host institution agrees and undertakes to support for the duration of any contract, the work described in this application by making available accommodation, basic facilities for research and the services necessary for its fulfilment. 4. The Head of Department agrees to accept this research within his/her department if a contract is made, agrees to provide workload relief for research staff working on this contract (Principles of Full Cost Funding), and is aware that s/he may be requested by the HRC to provide a confidential assessment of the research during the term of the contract. 5. The host institution official designated below agrees to ensure that the research will have been approved, where necessary, by the appropriate institutional biosafety committee and/or all other required regulatory agencies before research is commenced. 6. The applicant(s) agrees to allow specified personal information to be used for statutory and publicity purposes. 7. The host institution has in place policies and processes to ensure that consultation with Maori has occurred and the application is responsive to the needs and diversity of Maori. HRC Ref ID: 11/833 First NI: Hale MODULE 8. CLASSIFICATION OF RESEARCH This module is mandatory; incomplete applications will not be processed. Do not copy any sections in MODULE 8. Send with original application only. HRC Discipline and Fields of Research classifications are for HRC purposes only. ANZSRC information is for HRC and MoRST purposes. Section 8A – Australian and New Zealand Standard Research Classification (ANZSRC) and HRC Classification Applicants are required to categorise their research in two ways. The HRC Discipline and HRC Fields of Research categories are listed in Appendix 1 and 2 of the Guidelines. The ANZSRC codes for FOR and SEO classifications can be found on the HRC weblink (http://classifications.hrc.govt.nz/) or the ANZSRC website – find the appropriate code(s) and description; insert in the table below. MoRST Fields of Research (FOR) (ANZSRC code) 111703 Care For Disabled 111713 Mäori Health 169904 Studies Of Maori Society MoRST Socioeconomic Objective (SEO) (ANZSRC code) C 920306 Mäori Health- Health System Performance (incl. Effectiveness Of Interventions) C 920503 Health Related To Specific Ethnic Groups C 920299 Health And Support Services Not Elsewhere Classified Keywords Māori Health Accessibility Disability Services Weighting (%) 45 45 10 Weighting (%) 30 30 40 Section 8B – Mapping Categories Tick the box () next to the category that best describes the starting point of your research: Gene Cell biology Diagnostics Physiology Pharmaceuticals/Treatments Clinical studies Clinical trials Health economics Clinical services Knowledge Resources Risk factors Interventions At-risk populations Community services JV210 Application form © 2010 Health Research Council of New Zealand. All rights reserved. CONFIDENTIAL 36 Partnership Programme Research Descriptors HRC Discipline (see Guidelines) Rehabilitation Medicine HRC Fields of Research (see Guidelines) Disability Māori Health