Development of Person Centred Approaches across the East Midlands Person centred approaches were first formally introduced across the Region in 2001 following the publication of Valuing People. This white paper set out a number of ambitious targets that areas were required to address. Valuing people required that by : By 2002 each area would have a local framework outlining their approach to the implementation of person centred approaches, these were to be driven by local implementation groups and would include a training programme and action plan to meet the needs of the priority groups. By 2003 both people living in long-stay hospitals and young people in transition would have benefited from person centred approaches. By 2004 there would be significant progress in extending the person centred approaches to people using large day centres, those living with carers over the age of 70 and people still living in NHS campuses. Dependant on how you interpret this requirement , in the main most areas have made significant progress towards this targets, whilst not all the people in those target groups have plans significant levels of work has been undertaken to work towards achieving this goal. This report presents an overview of the progress based on the information provided by each local area and sets out recommendations for priority action required to support the future development across the region. The regional position Dedicated support and budget All areas except Rutland have some investment in additional support to develop person centred approaches through a co – ordinator type role, three of which are called Training and Development workers though perform similar roles to their colleagues and the majority have additional support staff ranging from none in Derbyshire and Rutland to 11 in Northamptonshire. Many have been in post a number of years but Derby City have just only just appointed a co –ordinator who will in turn be recruiting a support team. Leicester City employ two people with learning disabilities as planning assistants but they don’t carry out the full role as facilitators. Rutland did have a co-ordinator and when the post holder left looked to embed in other roles within the organisation but are now considering a dedicated post again to be shared between children’s and adult services. The majority of the posts are funded via LDDF or other transitional grant programmes. Whilst some areas Leicestershire and Northamptonshire have used some mainstream funding to supplement teams it is only short term investment. Only Derby City has made the commitment to use long term mainstream funding to support their team. Even though identified funding is only short term all co-ordinators except two, Derbyshire and Leicester City have permanent contracts. Only one area, Northamptonshire has secured investment directly from children’s services, which has been used to fund a team that is looking at wider implementation of PCA approaches across children’s services. All the co-ordinators have a role in developing and delivering training, co-ordinating local approaches and driving forward the agenda within their localities alongside some individual planning responsibility which is an important part of their role.. The Facilitators have a combined role of supporting individuals to plan , most have some role in training and some are targeted at coaching and mentoring but job descriptions don’t currently reflect this practice. Four areas have a small budget within their direct control whilst others have access to funding via training budgets. There is some concern from co-ordinators about reported investment by LDPB’s in PCP as in some areas this doesn’t appear to be related to the PCP teams or their work. Current strategies Whilst the majority of areas had developed early plans in line with the recommendations from Valuing People, most are out of date and need updating in line with Valuing People Now. Nottingham City has already held a visioning day with key stakeholders, Lincolnshire has a draft plan in place. An area for exploration is the development of local strategies that support the development of planning across children and adults services as it is recognised that introducing person centred approaches at an earlier age will assist in a embedding a person centred culture and therefore speed up the change process, as families will have raised expectations and aspirations for their child’s future and the response that key services offer. Current focus and priorities This is where areas differ. All have focused on ensuring that people living in NHS campus have good plans , 2 areas have dedicated posts to do this, all areas are addressing young people in transition and 3 areas are focusing on people accessing days services. None have specific posts targeted at supporting older carers by where specific projects exist they do work alongside them to promote access to planning. Where the teams support individual planning none have a targeted approach and accept referrals for people who are want or who are deemed as needing a plan. Nottingham city are focusing on supporting planning across all client groups in line with personalisation agenda through the delivery of Person Centred Thinking training. To some extent this is being mirrored in Northamptonshire. Northamptonshire’s children’s team are working with children in the care system and early years and are planning to target primary school children in the near future. Leicester City are now starting work with looked after children. Derby City are a Good 2 Great pilot site so have focused on achieving wider organisational change. This has included a number of key organisations signing up to the pilot project , this includes Derbyshire County Council , MH trust and a large independent sector provider. Research has demonstrated nationally that whilst planning is happening that it tends to be in pockets but is not spreading at the rate that it was originally intended. Equity remains a major challenge with people with more complex needs and those experiencing mental ill health are often not deriving the same benefit of opportunities to be supported to plan. Since the publication of Valuing People nationally thinking has moved away from developing person centred planning for all towards the use of person centred information and person centred reviews as a first step a way of promoting the wider development of person centred approaches for a greater number of people and the introduction of wider scale change within organisations. Planning for transition All areas are addressing planning at the transition stage , predominately through the use of PC reviews, with varying levels of success. There is increasing recognition of the need for investment in supporting planning at an earlier stage and four areas have decided resource in children’s services focused primarily on transition. In Nottingham City and Nottinghamshire the work is being driven by Connexions with Educational psychology frequently using MAP and PATH. Within Nottinghamshire and Leicestershire year 9 reviews are well established and there is increasing use of year 10 citizenship reviews. Three areas are working with schools to develop local implementation strategies. In Leicestershire all special schools are now signed up to PC reviews and in Leicester City Westgate school is looking at adapting their curriculum to support planning at an earlier age. Despite the requirement in Valuing People to support all young people in transition to have a person centred plan progress has been slow in some areas, common challenges still remain in the engagement of schools within the process, particularly where young people are within mainstream schools and the lack of engagement of children’s services at a more strategic level. Types of planning Most areas are supporting people to use the full range of planning tools including person centred thinking tools, MAP, PATH ,ELP and One Page Profiles. In some Person Centred reviews are being extended to adult services and are being actively being used for people accessing day services. All people in Nottinghamshire accessing day services have had this type of review. Leicestershire are piloting these with their review teams and Derby City are using for all adults currently accessing services. The further development of person centred reviews within adult services are seen as a key way of widening peoples access to person centred approaches and a key step towards indentifying what is important to the person both now and for their future. Training All areas offer a regular training programme including Person centred thinking and a range of tools e.g MAP/ PATH/ ELP either directly delivered or commissioned. Most areas now offer PC review training and 4 areas offer courses in person centred risk. A key area of development has been an increased move towards bespoke training that is designed and targeted at the audience, this is particularly valuable when working with teams and services where time is a key factor. The co-ordinators have a long established relationship supporting each other across boundaries to co train where required this has ensured that training is a particular strength in the region as there are people who can deliver most of the majority of the training that will be required which reduces the reliance on costly external facilitation. In all except two areas people with learning disabilities are involved in delivering many of the training programmes, though paying people is still an issue, Nottinghamshire have set up to community interest company to address this . There is little involvement of carers in delivery of training with only Leicestershire currently reporting this as common place. Most areas have some parts of their programme as mandatory training for staff within the Local Authorities, in Nottingham City all managers have been through Person Centred Thinking training and as part of the Good to Great programme Derbyshire MH trust ensures that all its staff have both person centred thinking and person centred risk training. All except one area operates an open training policy and will train people from other local organisations at no cost . In the majority of areas the training is still delivered directly by the co-ordinators and their teams. There is little evidence of training needs analysis or links to workforce development, these needs to be addressed as part of the strategy development. Information to people with learning disabilities and families The region has its own PCP website www.empcp.org which is maintained by Leicester City on behalf of the group. It contains lots of information but people have to know its there and have access to the internet. Most areas supplement this with dedicated pages on their LDPB websites. Four areas have produced DVD’s , the Leicester and Leicestershire Lets Plan Together which incorporates Health Action Plans, Communications Passports and PCP is available in a variety of community languages. A number of other areas have a range of leaflets and promote PCA through local events, Leicestershire is working with the library service to develop information to be distributed through their local resources. Whilst areas are reporting that information is available this needs to be tested with people with learning disabilities and their families to ensure that information is being shared in their area. Nationally it is recognised that people with learning disabilities and their families play a key role not only in developing their own plans but offering leadership to others who want to plan so access to good quality information and training is key. Audit, Quantity and Quality of plans Most areas have either done some work in this area or are currently looking at this but all have recognised it is an area for development. Most are using or looking at recognised audit models developed by Helen Sanderson Associates or National Development Team . Leicester City has developed a local system that is being implemented in residential services by people with learning disabilities employed in the team. Northamptonshire is carrying out an audit of plans within day services and Leicestershire are piloting with adult social care providers. Good to Great does involve a quality audit process for the providers that are part of the programme which is being followed in Derby. There is no consistent performance information though some areas keep a variety of databases of information on one page profiles , training and active plans. Whilst it is widely recognised that purely counting the number of plans can be counter productive unless it is linked to a clear quality auditing process, there needs to be some way of quantifying progress connected alongside a process for checking the quality of the plans or processes like person centred reviews that are being used. Links to Personalisation Teams All areas are now looking at offering personal or individual budgets to people with learning disabilities but this is at different stages across the region. All except two of the person centred planning co-ordinators, Nottingham City and Northamptonshire, reported that the links between the teams are not well developed and this was echoed by the regional PCP network . Rutland and Derby City are planning to offer individual budgets to all new people in the near future. Person centred thinking and information is the key to developing the personalisation agenda and links between the teams needs to be developed. Organisational capacity Whilst there has been a lot of progress across the region since 2001, there are some key organisational issues that are hampering further development. As part of the review this was considered over 3 main areas- Leadership, Support and Commissioning/ Contracting. Leadership- All except 3 areas still have implementation groups though not all are meeting regularly or has an agreed current work programme. The PCP champions role on LDPB’s are held by a variety of people including the co-ordinators themselves in some areas and a family carer in one area, this isn’t really in line with original thinking and could be contributory factor where teams are struggling with impact at a senior level. Whilst some co-ordinators reported they did have senior management support others weren’t sure where they could successfully take issues for resolution. Another key feature of leadership is the embedding of PCA/ Thinking within the organisation, as a good 2 great site Derby city has progressed this but other areas are struggling. Apart from Derby City only Leicestershire reported PCA as a part of appraisal and supervision practice and this wasn’t across the whole service. Rutland have developed their job descriptions to include PC practice. Northamptonshire have tried to address leadership in provider services through only offering training to organisations once their senior managers have attended but this has only applied to independent sector. A common theme seems to be lack of links back to the local LDPB’s , this is primarily due to the way agendas are structured but it is a part of leadership that could assist with problem solving and addressing organisational cultural change. Some coordinators are board members but the majority are not. The most recent national research on the impact of person centred planning highlighted lack of leadership as key to the reason that planning has not be as widespread as it was originally envisaged in Valuing People. Improving local leadership and embedding person centred approaches needs to be a key part of the emerging local strategies. Support to Facilitators and Co-ordinators Areas have different approaches to supporting their trained facilitators, in some areas they offer one to one support via either the co –ordinator or a member of their team, eg in Leicester City the co-ordinator does follow up one to one session with all newly trained people , some areas like Derby City bring together their champions or trained staff in group sessions, Nottinghamshire offer coaching and mentoring as part of their person centred team work. . One area just responded to individual request for support. Nationally it has been recognised that training is not enough, trained facilitators need ongoing support and guidance to help them to develop and expand their skills. The Co-ordinators have established their own regional community of practice which provides them with the opportunity to share good practice and discuss challenges . This group works well and is valued by its membership. This model has been replicated by children’s workers though this network is still under development and securing representation from all localities. The Regional PCP network has been running for over 7 years , its membership includes the co-ordinators , LDPB leads and self advocate and family representation. Over the last few years this group has organised and run a successful regional event, but recently attendance has dropped off and this seems to be primarily as it doesn’t have a clear focus or workplan, which has led to people prioritising their time elsewhere. Bringing together the personalisation leads with the network seems positive way forward to build on the existing good practice, develop the much needed links and identify priorities for the future action. Commissioning and contracting The majority of services are now provided by external partners yet in the past PCA had not been seen as a key part of the contractual requirements. Most areas have now made links with their contracting sections and increasingly PCA is being built into the specifications of new contracts with contract monitoring officers and CM staff are part of the auditing process. Whilst this is a positive move the effectiveness of this approach will need to be tested as part of the quality audit system. A major challenge that remains is the link between outcomes of PC reviews and individual plans into strategic commissioning. In recent national consultation this has been highlighted as a source of frustration by many families that have been involved in planning as the actions identified in plans where not being delivered primary as the right kinds of supports were not available. Both Nottingham City and County have just started to how to link the outcomes of PC reviews into the commissioning process and this has been identified as an area for development by other localities. In summary Overall whilst as expected there is a need for major change and improvement, the East Midlands has made significant progress over the last few years , in the main the challenges are recognised and being addressed and the Region is well placed to meet the vision of transformation in Valuing People Now of using person centred approaches to deliver improved outcomes for people with learning disabilities and their families. Recommended Local Actions Local areas to : 1. Addresses the development of their local strategy in partnership with key stakeholders taking account of the key issues highlighted in this report alongside local priorities. Plans should include a clear implementation and development plan including locally agreed targets and monitoring arrangements 2. Review its investment in dedicated resources against the revised delivery plans and focus skilled specialist facilitator action on coaching and mentoring others 3. Consider how they will prioritise local resources taking account of national and local priority groups to fit with the vision of including everyone. 4. Ensure that PCP teams are closely linked with the teams working on the personalisation agenda to ensure that both the best use of resources and improved outcomes for people with learning disabilities and their families. 5. Build their commissioning strategies based on good person centred information gained from individual plans and reviews . 6. Address transition, and preferably the wider introduction of PCA into children’s services, as part of the local implementation strategy and to secure support and sign up from children’s services through the local children’s partnership arrangements 7. To develop training plans based on accurate training needs analysis to ensure that training offered matches local need and any areas of under or over provision can be identified. This needs to feed into the local and regional workforce plans 8. Extend the use of PC review and promoting the use of person centred tools to develop one page profiles for all these individuals in receipt of support from adult services 9. To address information, promotion and communication as part of their local strategy Priorities for regional action At a recent away day the Co –ordinators identified their key priorities for region development and action as: Developing audit processes that ensure quality Strengthening links with self directed support Improving leadership Developing their local plans Individual planning outcomes feeding into strategic commissioning