A report on the health/health promotion needs of the Black and Minority Ethnic Communities in North Wales Author: Hilary Nicholas Public Health Practitioner, Conwy & Denbighshire Local Public Health Team, Public Health Wales Date: 9th June 2010 Version: 1 Publication/ Distribution: Betsi Cadwaladr University Health Board (BCU HB) Public Health Wales Local Public Health Teams Purpose and Summary of Document: To inform BCU HB and Public Health Wales Local Public Health Teams of the health needs of Black and Minority Ethnic Groups in North Wales, health promotion approaches to address these needs and recommendations for improving equity of access to health promotion services. Recommendations include the need to: establish more effective methods of engaging with BME communities through links with the voluntary sector, the North Wales Race Equality Network and other local BME networks provide cultural awareness training for staff and identify opportunities for joint training, networking and the development of joint initiatives identify existing examples of good practice and opportunities to raise awareness of health promotion activities and health issues consider joint approaches to health promotion and health needs assessment between Public Health Wales, BCU HB, local authorities and the voluntary sector. Contents 1 Summary 3 2 Introduction 3 3 Methodology 4 4 Demographic data 5 5 The health needs of BME groups 6 6 Access to health promotion services 8 7 Conclusions and recommendations 10 References 12 Public Health Wales 1 Improving access to health promotion for BME communities Summary Demographic and health needs data on black and minority ethnic (BME) communities in North Wales is limited. Evidence from wider studies suggests that the health needs of BME groups are similar to those of the majority white population, especially in relation to common health problems, although some conditions are more common in BME populations. Research has shown that approaches to health promotion may not adequately meet the needs of BME communities and that further consideration should be given to methods of engagement and communication in relation to health promotion activity. It is suggested that a muliti agency approach is taken to identify opportunities for engagement with BME communities to promote physical and mental wellbeing. 2 Introduction This report has been produced in response to the following action set out within Denbighshire Local Health Board’s Race Equality Scheme Action Plan 2008 – 2011: Take account of the health needs of racial groups in the development of health promotion and disease prevention programmes and establish appropriate health promotion and disease prevention programmes. The report provides a brief overview of: local demographic data on Black and Minority Ethnic (BME) communities common health problems and lifestyle issues amongst BME groups access to health promotion and disease prevention services guidance and recommendations that may be used to inform health promotion and disease prevention activities. The report does not include the health needs of white migrant groups nor the health needs of Asylum Seekers/Refugees and Gypsy Travellers. A recent publication from the National Public Health Service (NPHS) provides updated guidance for healthcare planning relating to the latter population groups1. During the preparation of the report it was considered reasonable to extend its geographical focus beyond Denbighshire for the following reasons: Date: 9 June 2010 Version: 1 Page: 3 of 12 Public Health Wales Improving access to health promotion for BME communities Issues highlighted in the report are likely to be of general relevance to North Wales Relevant statistical data for Denbighshire is limited The recent formation of Betsi Cadwaladr University Health Board (BCUHB) takes a North Wales approach to health service planning and delivery, including the delivery of actions to promote health and wellbeing. It is intended that the recommendations from this report may be used to inform the Upstream Prevention and Wellbeing activities of Public Health Wales and BCUHB and in the preparation of local Health, Social Care and Wellbeing strategies. 3 Methodology Two themes were used for literature searches: The health needs of Black and Minority Ethnic (BME) groups in Wales Health promotion and illness specifically at BME groups prevention programmes targeted Consultation with Public Health Wales’ Library, Knowledge and Information Service highlighted a small number of reports produced by respected bodies. Of specific interest and relevance were the following publications: Welsh Assembly Government (2005) Health ASERT Programme Wales Enhancing the Health Promotion Evidence base on Minority Ethnic Groups, Refugees/Asylum Seekers and Gypsy Travellers Equality issues in Wales: a research review (2009) Equality and Human Rights Commission. The Bevan Foundation Gill, P. et al, Health Care Needs Assessment Third Series (2007) Black and Minority Ethnic Groups, University of Birmingham Additional information was gathered from local demographic data, needs assessments and from consultation with the North Wales Race Equality Network (NWREN), a regional organisation that supports BME communities in North Wales. For consistency the term ‘health promotion’ is used throughout this report to refer to services and interventions in the community that aim to promote physical and mental wellbeing, encourage the uptake of ill health Date: 9 June 2010 Version: 1 Page: 4 of 12 Public Health Wales Improving access to health promotion for BME communities prevention services such as screening and immunisation and encourage participation in self-help approaches to condition to condition management. 4 Demographic data on BME communities The most reliable source of demographic data for local BME populations is the 2001 Census. However, this does not take account of recent changes in migration of population groups. Different datasets and population projections have been developed since 2001 but these show a lack of consistency with definitions and categories of racial groupings2. Based on 2001 Census figures the non-white BME population of the BCUHB region is 1.2% of the total population. This compares with a population of 2.1% for Wales and 7.9% for the UK as a whole. A more recent report produced by Conwy Local Health Board and North Wales Race Equality Network (NWREN)3 suggests that the entire BME population of North Wales has risen by between 30 - 50% since 2001. The diversity of ethnicity in the area, including white minority groups, is represented in the diagram below based upon 2001 Census figures: BME population and makeup of North Wales3 The BME population in North Wales is dispersed widely in both rural areas and towns. BME populations are clustered also in parts of the University City of Bangor along with Cardiff, Central Newport and parts of Swansea4. Date: 9 June 2010 Version: 1 Page: 5 of 12 Public Health Wales Improving access to health promotion for BME communities The development of Wrexham as a University town may also suggest a presence of higher numbers of BME groups. NWREN states also ‘the BME population of North Wales is not a homogenous entity and the potential for isolation and /or rural racism is evident’5. 5 The health needs of BME groups As with the majority white population group, the health status of BME populations is influenced by a range of wider factors including age, gender, disability, lifestyle, cultural issues and socio-economic and environmental factors; all of which should be taken into account when interpreting epidemiological data. For the BME population it is acknowledged also that experiences of discrimination and racism may contribute to health inequalities and poorer health outcomes. Reliable, health specific information on BME communities in Wales is limited. The evidence referred to below relates to the BME population generally and is included with the assumption that it is relevant also to population groups in Wales. 5.1 Health status Data 6 7 8 suggest that BME groups suffer from the same common health conditions as experienced by the majority white population i.e. cancers, circulatory diseases, diabetes and mental illness. However of these diseases and conditions some are more common amongst BME groups than amongst the indigenous population and which have implications for lifestyle and health promotion interventions. These include: Diabetes Mellitus. This is much more common in Afro-Caribbean and South Asian minority groups than in the population as a whole. Diabetes UK9 suggests that it is up to six times more common in people of South Asian descent. Causes of the high rates are likely to be a mix of genetic, lifestyle, environmental and socioeconomic factors. Coronary Heart Disease. This is moderately higher in South Asian groups than in the population as a whole, with increasing evidence that the poorest groups of Pakistani and Bangladeshi origin have the highest rates. Reasons for this are not fully understood but evidence suggests that socio-economic and lifestyle factors are important. Coronary heart disease is also a main cause of mortality in other ethnic groups, including Afro-Caribbean and Chinese, even though the rates are lower than in the population as a whole. Date: 9 June 2010 Version: 1 Page: 6 of 12 Public Health Wales Improving access to health promotion for BME communities Stroke. This is highest in Afro-Caribbean men but rates are relatively high in the Chinese and South Asian groups. The major known associated risk factor is high blood pressure, which is extremely common in Afro-Caribbeans. Lung cancer; cancer of the liver; cancer of the prostate. Overall, cancers tend to be less common in BME groups than in the ‘white’ comparison population but should still remain a consideration. Lung cancer remains the top ranking cancer in men, particularly in South Asian groups where smoking rates are higher than the majority population. Infectious diseases such as tuberculosis and malaria. The likelihood is that these are linked to travel, migration, immunity and living conditions in the UK. Mental Illness: Data on prevalence of mental illness amongst BME groups is conflicting particularly when trying to distinguish ethnic differences linked to psychoses and neuroses. In the United Kingdom African-Caribbeans have higher admission rates to psychiatric units and receive a diagnosis of schizophrenia more often than do members of other ethnic groups. Studies on the use of treatments have suggested that African-Caribbeans have low rates of depression and South Asians have low rates of all mental illnesses. Mental Health Race Equality Schemes developed in North Wales provide a more detail account of the local situation and how it is monitored. Nutrition. Studies have shown that Black and Asian women are more likely to have calcium intakes below recommended levels, compared with white women. Other diet-related problems that are more common in BME groups include vitamin D and iron deficiencies amongst South Asian children under 2 years. 5.2 Lifestyles As with other areas of health there is limited data and research on lifestyles of ethnic minority communities10. For example, the Welsh Health Survey provides information on mortality, morbidity and lifestyles but does not capture large enough groups to merit analysis by ethnicity. In relation to smoking prevalence, self reported smoking amongst Bangladeshi men was 44% in the 1999 Health Survey for England compared with 27% in the general population7. Gill et al6 suggest that a Date: 9 June 2010 Version: 1 Page: 7 of 12 Public Health Wales Improving access to health promotion for BME communities smaller proportion of BME population groups have given up smoking compared with the majority population. Research on diet and nutrition8 has shown that the average Body Mass Index (BMI) of BME groups from South Asia and China was lower generally than that of the majority white population. Amongst the Afro Caribbean communities the BMI is higher. Use of salt in cooking was higher in most minority ethnic groups than among the majority population and knowledge of the links between diet and cardiovascular and other specific diseases was poor in general, particularly among Bangladeshi people. 6 Access to Health Promotion Services Evidence suggests that BME population groups experience the same range of common health problems as the majority white population. This suggests that the health promotion needs of BME groups may be very similar to the majority population. To improve equity of access to services Gill et al6 suggests that the methods for targeting and delivery may require a different, flexible approach. 6.1 Barriers to accessing health promotion Of the limited research available, the health ASERT study7 explores the evidence base for health promotion services for BME populations, identifies barriers to access and suggests solutions to issues of inequity. Themes are consistent with those identified by Gill et al6 and include: Policy and strategy development Obstacles to developing policies and strategies relate in the main to lack of consistent data, insufficient assessment of health promotion needs, small numbers of BME populations or the lack of knowledge about how to engage with BME communities. It is suggested also that services are reticent to invest in specific and or small communities. Communication Approaches to communication require the same generic considerations in common with the majority population. For example, the importance of being given time, listened to and being offered advice and information appropriate to cultural and linguistic needs. Other areas of concern include the availability of interpretation services for face to face or telephone conversations and opportunities to talk with health professionals in a shared language. Date: 9 June 2010 Version: 1 Page: 8 of 12 Public Health Wales Improving access to health promotion for BME communities Provision of information Health related information can be provided in a number of different ways for example: leaflets, books, letters, T.V., video, internet, face to face, or phone. Fluency in English, literacy levels and access to various forms of media must be considered when disseminating both targeted and generic health promotion information. Provision of information in community languages may be also be appropriate. Physical access to services As with the majority population, services need to be physically accessible in terms of location and disability access. A preference for community based services has been stated amongst groups for whom cultural and religious factors should be taken into account. Gill et al6 refer to two randomised trials on the uptake of breast and cervical screening and although results may not be generalisable there is evidence that home visits were effective. Cultural competence of service providers and health professionals Health professionals’ awareness of cultural issues is important in all areas of service delivery including the delivery of health promotion interventions. An example given by Winckler10 shows that diabetes health promotion amongst BME groups is more effective if dietary advice accorded with their usual or traditional diet. 6.2 Improving access to and uptake of health promotion programmes Summarised below is a range of solutions for improving local access to health promotion activity by the BME population, identified by both the Health ASERT research programme. Develop a stronger evidence base to support action: Ensure that new approaches to health promotion are based upon existing evidence where available Approaches and methodology should be evaluated for effectiveness Encourage individuals and communities to participate in research, evaluation and needs assessment activities Establish the community’s views and aspirations on health promotion and lifestyle issues Strategies and policies to address health promotion needs should straddle all public services Date: 9 June 2010 Version: 1 Page: 9 of 12 Public Health Wales Improving access to health promotion for BME communities Communication: Consider providing health information in diverse media that are favoured by local BME communities Use existing communication methods and networks within local BME communities Health promotion information could be made more accessible by using local networks and trusted individuals or ‘champions’ Cultural competence: Ensure that staff receive relevant training aimed at enhancing cultural competence. This should be delivered in addition to mandatory equality and diversity training. It should be acknowledged here that the suggestions referred to above are applicable equally to the delivery of all healthcare services for BME populations and have been recognised to a great extent within Race Equality Schemes of the former Local Health Boards and NHS Trusts of North Wales and in the current Single Equality Scheme of BCU HB. 7 Conclusions and recommendations Population figures for BME groups in North Wales are relatively small compared with other areas of Wales and the UK. Discussions and research suggest that this may create a barrier to both recognising and understanding the local BME population’s health needs. Data collection on disease and ethnicity appears to be limited and inconsistent therefore measuring the effectiveness of interventions will be problematic until the quality and completeness of the data improves. Gill et al suggest that the challenge for health service planners is interpreting and using the existing data in ways that benefit the population. The BME population should be seen not as an homogenous group but as people with diverse needs based not only on ethnicity but also on disability, gender, sexual orientation, religion and wider social and economic determinants. Rather than concentrating on specific health issues relevant to one particular group in the community attention should be placed upon equitable service provision. Based upon both the available research and discussions locally with NWREN the following recommendations are made for consideration to improve access to health promotion interventions for BME communities in North Wales: Engaging with BME communities in North Wales Make the best use of expertise in the voluntary sector to access community groups Date: 9 June 2010 Version: 1 Page: 10 of 12 Public Health Wales Improving access to health promotion for BME communities Strengthen links with the North Wales Race Equality Network (NWREN) to identify opportunities for communicating with local groups in ways that do not over-burden the community with consultation With NWREN, identify existing local groups and networks through which to promote services and to identify preferred methods of delivery Consider the use of NWREN website to communicate on health related information and services Recognise that some individuals within the BME community also use Welsh as a first language When working with targeted groups on specific projects translation of materials should be considered Promote the use of language line to facilitate improved access to services such as smoking cessation. Workforce training Equality and diversity training provides staff with a broad knowledge of equalities issues and legislation and the importance of equality impact assessment of projects and strategies. Additional training should be considered locally to build confidence in cultural awareness and culturally sensitive issues Public Health Wales teams in North Wales should liaise with BCU HB to identify opportunities for networking, joint training and development of joint initiatives. Identify existing examples of good practice and opportunities for joint working Liaise with Screening Promotion Services to raise awareness of other activities and health issues e.g. smoking cessation, breast feeding, sexual health services and opportunities for promoting mental wellbeing Local agencies including Public Health Wales, BCU HB, local authorities, other public bodies and the voluntary sector should consider joint opportunities for health promotion activity and needs assessment work with BME communities. Date: 9 June 2010 Version: 1 Page: 11 of 12 Public Health Wales Improving access to health promotion for BME communities References 1. National Public Health Service for Wales, (2009). Healthcare planning and service development guidance for specific vulnerable groups in Wales. 2009 Update. 2. Public Health Wales (2009) Demography Profile 3. Conwy Local Health Board & NWREN (2007) ‘Race Equality in Practice’ Resource Pack 4. National Public Health Service for Wales, (2004). A Profile of the health of children and young people in Wales. 5. http://www.nwren.org.uk/english/info-population-allwales.htm 6. Gill, P. et al, Health Care Needs Assessment Third Series (2007) Black and Minority Ethnic Groups, University of Birmingham 7. Welsh Assembly Government, (2005) Health ASERT Programme Wales Enhancing the Health Promotion Evidence base on Minority Ethnic Groups, Refugees/Asylum Seekers and Gypsy Travellers 8. Stockley, L. (2009) Review of Dietary Intervention Models for Black and Minority Ethnic Groups. Food Standards Agency, Wales. 9. http://www.diabetes.org.uk/Professionals/Conferences_and_events/Te aching_aids/Diabetes_awareness_toolkit 10.Equality issues in Wales: a research review (2009). Research Report Equality and Human Rights Commission ed. Winckler, B. The Bevan Foundation Date: 9 June 2010 Version: 1 Page: 12 of 12