Health,disease and unemployment: The Bermuda Triangle of Society Jonathan Shapiro Emma Hill Julia Manning Supported by a grant from Health,disease and unemployment: The Bermuda Triangle of Society Jonathan Shapiro Emma Hill Julia Manning Supported by a grant from Contents 01 02 03 04 05 06 07 08 09 10 11 About this Publication Executive Summary Background and Context Medical view Good work versus bad work Occupational health and vocational rehabilitation Summary of Programmes designed to assist in reducing unemployment Broader costs Methodology Why a Bermuda Triangle? Themes Generic Points British attitudes to work Illness and unemployment are not separate issues Other themes Prevention is better than cure,even with long term ill health Occupational Health:whose services are they anyway? Where welfare is concerned,small is beautiful General practice:tinker,tailor,provider,landlord, case manager,or none of the above? The flexible workplace:oxymoron or aspiration Incentivising the return to work Summary of key messages The British andWork Prevention is better than cure,even with long term ill health Occupational health:it is broke,so let’s fix it Where welfare is concerned,small is beautiful The role of general practice The flexible workplace:oxymoron or aspiration Incentivising the return to work Conclusions Footnotes Appendices Appendix 1 –Work Outcomes Interview Schedule Appendix 2 – Interviewees 3 4 6 10 12 13 14 15 16 18 20 20 20 21 22 22 23 24 25 26 26 28 28 29 29 30 30 30 31 32 34 35 35 35 Bibliography 38 Health,disease and unemployment: The Bermuda Triangle of society 01 About this Publication The measure of successful NHS treatment is increasingly not a case of whether a process target has been met, but whether that treatment was a success. In other words, what was the final ‘outcome’? Did the patient get better and stay well? Added to this is the crucial question for the working age population – how quickly did they get back to work? This project looked at whether being at work is or could be considered a clinical ‘outcome’ of successful health treatment. Can keeping people in work or returning them to work find its place as an indicator of a successful health intervention on which professionals or institutions can be measured? We make fourteen recommendations and observations that we believe will be of value to policy makers. The overall challenge is increasing the visibility to frontline professionals and employers of those trapped in the ‘Bermuda Triangle’ of illness, wanting to work and unemployment - rescuing or preventing them from getting lost there in the first place. We are indebted to Abbott Healthcare who enabled this research to be undertaken, and to all our sponsors for their unrestricted funding on which we depend. As well as driving our on-going work of involving frontline professionals in policy ideas and development, sponsorship enables us to communicate with and involve officials and policymakers in the work that we do. Involvement in the work of 2020health.org is never conditional on being a sponsor. Julia Manning Chief Executive June 2010 www.2020health.org 83 Victoria Street London SW1H 0HW T 020 3170 7702 E admin@2020health.org The views expressed in this document are those of the authors alone. All facts have been checked for accuracy as far as possible. Sponsored by Abbott. The views expressed in this document do not necessarily reflect those of Abbott. 2020health.org Disclaimer Published by 2020health.org © 2010 2020health.org All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted in any form or by any means without the prior written permission of the publisher. 3 Health,disease and unemployment: The Bermuda Triangle of society The recommendations and observations that came out of the interviews, discussions and analysis were: 02 Executive 01 The first aim of any policy change should ensure that it is in the interests of the individual, the employer, and society at large to align the incentives and close the loop between health, illness, and unemployment. Summary 02 Raising the perception of control is key to Recent reports have made a huge contribution to raising the profile of the relationship between health and work. They have highlighted how important it is that we have a healthy workforce, that health and wellbeing are intrinsically connected and that intervening early in illness is a key factor to recovery and the return to work, whether in the same or a different role. improving productivity, and all the work on leadership, engagement, and so on is actually trying to do this. An overt focus on improving this culture would reap rapid and sustainable benefits. 03 Getting patients back to productive and sustainable work should become a key objective and outcome indicator for all health services, particularly the NHS. All forms of clinical education need to include this aim from their outset, and throughout both undergraduate and continuing training. With the increased calls for the NHS to be held accountable for health ‘outcomes’, the aim of this study was to establish whether being at work is or could be considered a clinical ‘outcome’ of successful health treatment. Could keeping people in work or returning them to work find its place as an indicator of a successful health intervention on which professionals or institutions could be judged? This report describes how we identified the recommendations previously made with a view to delivering improved health and wellbeing in the workforce. We then used these recommendations as a basis for interviewing experts in the field as to their awareness of and /or agreement with them. Their responses prompted two particular themes that were then taken to the front line, to test them with people working in health, welfare and back-to-work programmes. These were: 04 An important aspect of this emphasis must be the inclusion in the diagnostic process of the social and psychological aspects of an illness as well as its physical manifestations, and treatment should be aimed at ameliorating patients’ ability to return to work as part of returning them to better health. 05 One essential in this regard would be the strengthening of direct links between the NHS and the Department of Work and Pensions (DWP), not damaging the formal links and relationships that have been established between the departments by outsourcing the joint working. 06 There needs to be an acceptance on the part of the employer and of wider society that it is normal for the work environment and job roles to change as people’s careers progress, even if that entails physical change (seating, instrumentation, etc), and changes to the terms as well as the conditions of employment. 07 OH services should be made more widely available, less focused on the needs of the employer, and more widely based than on Occupational Health (OH)doctors alone. This has only been partly addressed by the DH’s advice lines for small and mid-sized enterprises (SMEs). 01 ‘Occupational health medicine is irrelevant to the link between health and work.’ 02 ‘How may a return to work be incentivised, to the benefit of the individual, their employer, and the state?’ 4 08 Clearly, whilst there is an economy of scale in This list reflects both that significant progress has already been made in the understanding of the relationship between work and health, but also that there are noteworthy challenges ahead in changing the culture. There was universal agreement that being able to work should be considered a health ‘outcome’. The challenge is increasing the visibility to frontline professionals and employers of those trapped in the ‘Bermuda Triangle’ of illness, wanting to work and unemployment, and rescuing them from there – or preventing them from getting lost there in the first place. providing services that help people back to work, the clear message from this work is that any benefits of size are more than offset by their disbenefits in terms of intimidation and lack of involvement. 09 There was consensus concerning the use of GP facilities as a venue for the work and advice required to help the workless get back to work. Their local nature and size and relative informality are helpful, and they could be populated by staff from private and/or voluntary organisations. The idea of linking the tasks associated with the return to work to specific health care issues at a single venue was also appealing. 10 However, predicting the absence of sickness or a reduction in turnover require a leap of faith, and such faith is often the missing ingredient in introducing some of these changes. This may be one area where legislation concerning the employee benefits mentioned above may be appropriate. 11 It should be possible to introduce some kind of tapering scale as health and workfullness improve, by which welfare payments reduce as ‘real’ income grows without any step changes being triggered in a way that avoids the classic benefits trap. 12 What is required is genuine early intervention, preferably in time to preempt the whole workless phase, particularly when predictable health issues are causing the problem. There needs to be increased awareness of how important appropriate prescribing is in helping people return to work as quickly as possible. 13 It may be that medical support for such interventions could be an extension of the ‘fit note’ idea, using the GP’s imprimatur to validate such discussions, and preempt any punitive reaction by less enlightened employers. 14 With the rising awareness of and interest in work related stress, it may be that increasing the profile of the Health and Safety Executive (HSE) in this area could bring sufficient pressure to bear on employers on its prevention and more effective treatment of stress. Fear of liability and of compensation may be a useful adjunct to the moral high ground. 5 Health,disease and unemployment: The Bermuda Triangle of society As the demography of the developed world changes, there is a need to reconsider our attitudes to work and unemployment, and to explore the interventions that lead to and maintain sustainable employment. An ageing population means a growing incidence of chronic illness will affect those in work as well as those with caring responsibilities. There is overwhelming evidence that long periods away from work is detrimental to patients’ health. The annual cost of absence and the worklessness associated with working-age ill-health is estimated to be over £100 billion. It has been shown that musculoskeletal disease (MSDs) and stress are the most common health reasons for people taking time off of work but there is also clear evidence of how not working is detrimental to health. This review of existing publications explores some of the recommendations that have been made in the past few years, building largely on four major pieces of work: 03 Background & Context 01 In spring 2008 the Director for Health and Work, Dame Carol Black, published Working for a Healthier Tomorrow, the first review of its kind that examined the health of Britain’s working age population. It was the culmination of a crossgovernmental initiative that started in 2005 and saw the formation of the Work, Health and Wellbeing Directorate. The Black report made a number of recommendations, amongst which a number stood out: the adaptation of GP advice, the initiation of pilots for Fit for Work service,1 a health and wellbeing consultancy service, and more health information about the relationship between health and work. 02 The government’s response to this review, Improving Health and Work: Changing Lives fully accepted Black’s advice, making both a social and economic commitment to the 2.6 million people on incapacity benefits and the 600,000 people who make a new claim each year. Part of this commitment was the intention to transform the medical ‘sick note’, the introduction of mental health co-ordinators in Job Centres, the creation of occupational health advice lines for small and mid-sized enterprises (SMEs) and a National Centre for working age health and wellbeing.2 03 Acting on the aforementioned government response, Dr Steve Boorman, Chief Medical Adviser to Royal Mail Group, oversaw an NHS review in the autumn of 2009. In its efforts to ‘get its own house in order’ the NHS fully accepted the need to improve the health and wellbeing of its staff. Boorman’s report suggested that improving the health and wellbeing of NHS staff could save over 3.4 million working days annually, the equivalent of 14,900 full time staff. As Europe’s largest employer, the annual cost of staff sickness to 6 the NHS is estimated to be a staggering £555 million.3 His recommendations include a ‘prevention focused health and wellbeing strategy’ with staff health and wellbeing becoming a key factor in senior management performance assessments. The NHS intends to support early interventions especially in the areas of MSDs and mental illness, in order to facilitate earlier returns to work. This is in line with the NHS constitution’s intention to help keep staff fit and healthy. However, it should be remembered that there is a deep inherent cynicism amongst those working in the NHS, so the notion that staff health and wellbeing are significant priorities is likely to take considerable time and effort to implement effectively. • Key Facts and Figures • • • • 04 The Marmot Review (Spring 2010), commissioned by the Government, looked at health inequalities, and stated six key policy objectives, one of which was to ‘create fair employment and good work for all’. The review recommended prioritising employment programmes, ensuring that equality legislation is upheld, implementing existing guidance on stress management, and generally creating greater security and flexibility in employment. • • • Several of the Marmot Review’s policy objectives link directly to the ‘world of work’; these include: enabling people to maximise their capabilities and maintain control of their lives; ensuring healthy standards of living for everyone; creating healthy and sustainable places and communities; and strengthening the role and impact of ill health prevention.4 • • As the Chief Executive of the Royal College of Nursing commented on the Marmot Review: “As a nation we simply must not tolerate the difference in life expectancy shown in this report, or the many years spent in preventable poor health...of course individuals need to make health choices for themselves, but to tackle this inequality, government, public services and communities need to work together”.5 The relationship between work and health is multifaceted, and impacts on areas of social justice, generational poverty and health inequalities. There is an archetypal public health issue in trying to get people to stay at work, back to work or into work, and to achieve these aims requires the adoption of new perspectives to create open dialogues between Government, healthcare practitioners, employers and the individual. The traditional bio-medical model of disease is insufficient to explain and to deal with the complexity of the underlying issues, and a new bio-psycho-social model is required to help understand the importance of wider preventative measures such as job design and skills analysis. 7 175 million working days in Britain are lost due to ill health annually Cost of sickness absence and worklessness in Britain estimated at £100 billion annually The World Health Organisation estimates that by 2020, depression will have become the second leading cause of disability in the world6 80% of the adult population will suffer with back pain at some time in their working lives Approximately 6.9 million people of working age report themselves as disabled; this equates to 19% of the working population 7.6% of the working age population (2.6 million people) claim incapacity benefit with 607,000 new cases annually; 1.5 million of these have been in receipt of this benefit for more than 5 years7 One quarter of GP consultations are work related 5.4 million people declare a work-limiting disability, of whom 50% are in employment 1.2 million people who worked during 2009 were suffering from an illness (long-standing as well as new cases) that they believed was caused or made worse by their current or past work; 551 000 of these were new cases8 Around 46% of people with disabilities are economically inactive9 Health,disease and unemployment: The Bermuda Triangle of society In 2006 an NHS Musculoskeletal Framework was devised as part of the Government’s strategy for long term conditions, which set out a vision in which people with musculoskeletal conditions could access effective clinical advice, assessment, diagnosis and treatment. It was proposed that this would be accomplished through systematically planned and integrated services13. As it stands, the key service recommendation of the framework remains woefully unheeded, with the national average for implementation of the proposals at only 16%.14 03 Background & Context Health conditions are not static but can change over time, and the means of managing these also need to be flexible; a medical model might be appropriate during a period of acute ill health, but within a short time psychosocial issues are likely to predominate. After several months, the whole nature of the illness may have changed again, as the impact of prolonged worklessness takes its toll10. Two of the most pervasive reasons for employees absence from work are mental illness and musculoskeletal disease, and these services need to be considered differently in the context of patients, their friends and families, employers, GPs and the wider NHS. In 2007 the National Rheumatoid Arthritis (RA) Society surveyed over 700 RA sufferers about their working lives. Of those people not working, the survey found that nearly two thirds (64.8%) were not in employment because they gave up work early as a result of their RA, this included people above and below the statutory retirement age1. With 387,000 RA sufferers in the UK, the costs generated by this burden of disease are expected to exceed £3.8 billion annually. However Rheumatoid Arthritis is just one specific musculoskeletal problem, and many other people suffer with more generalised conditions like ‘back pain’. Overall Musculoskeletal Disorders (MSDs) affect over a million people in the UK, accounting for 9.5 million lost working days and a cost to society of over £7 billion in real terms15. Apart from the purely economic costs, there are genuine inequities as people with RA (and MSDs more broadly) miss out on other opportunities through their lives. Musculoskeletal Diseases (MSDs) are common, may be progressive and are a leading cause of disability and sickness absence, affecting twice as many people as stress. Despite 80% of adults suffering some form of back pain at some point in their lives, spending per patient can vary dramatically between parts of the country from £95 per person in Lewisham PCT to £1379 at Western Cheshire PCT,11 a variation that is not easily explained. In addition to such obvious healthcare inequalities there are also widely varying views about the MSD sufferer’s ability to work, perhaps because MSDs are the most prevalent cause of work-related ill health and vary enormously in their severity, duration, and psychological impact. In 2009 both ARMA (the Arthritis and Musculoskeletal Alliance) and the National Audit Office evaluated the progress of the Musculoskeletal Framework and recommended that a national clinical director be appointed for musculoskeletal services and that there should be clear lines of accountability for the implementation of the 2006 Musculoskeletal Framework. They also suggested drawing on the existing strategies for other specific conditions (such as cancer) to create a model that would establish service priorities, delivery models and funding streams1, and advised that PCTs should not commission musculoskeletal services without first making an accurate assessment of the needs of their population in terms of their quality of services, life, information, training and development16.The UK has yet to succeed in promoting the cost effectiveness of early intervention. One person’s ‘aches and pains’ will be another’s ‘acute sciatica’ and yet another’s ‘arthritis’. There is often a strong psychological overlay to MSD symptoms, particularly if they are protracted. The Work Foundation has analysed the fitness of various European countries labour force with respect to musculoskeletal disorders. One report concludes that up to 2% of GDP is lost to MSDs and that there is an even higher cost in human terms with respect to sufferers’ quality of life.12 8 forum in which to discuss their difficulties. A research report for the Department of Work and Pensions (DWP) that surveyed line managers’ attitudes found that they felt that supporting employees with mental health problems placed significant demands on their time and was hard to keep confidential21. A report for managers on stigma claimed that ‘most of the ideas are ordinary good management practice. The way forward is to bring mental wellbeing within the boundaries of ordinary working life.’22 Mental Illness had a dedicated National Service Framework (NSF) on Mental Health introduced over ten years ago which promised to deliver mental health promotion and support services specifically to meet the needs of the working age population. Since 2001 there has been an increase of £1.7 billion on the expenditure for adult mental health services. This has meant 64% more consultant psychiatrists, 71% more clinical psychologists and 21% more mental health nurses than in 199717. In spite of this, mental illness has become the biggest cause of sickness absence and of incapacity benefit, with claims for the latter rising 15% proportionately between 1996 and 2006, so that despite an overall drop in incapacity benefit claims, mental health claims have increased. Of the 600,000 new incapacity benefit claims each year, 200,000 are related to mental illness sufferers, many of whom feel that they would have the potential to remain in work with the help of their employers and GPs. The economic costs of mental illness linked to people’s ability to work have ranged from £789m in Northern Ireland, through £2.3 billion in Scotland, to £23.1 billion for England. These figures include nonemployment (unemployment and economic inactivity), sickness absence, unpaid work and premature mortality. Around 60% of people who have a common mental illness are working, compared with 70% of people who do not23. Conversely, mental illness sufferers have argued that the welfare state actively discriminates against claimants without a physical disability, who are more likely to be branded malingerers.24 There are often mental health consequences of unemployment for other reasons; people who become unemployed because of a physical health condition are much more susceptible to mental health problems, and indeed, unemployment itself may be considered as a factor that can precipitate mental illness. In 2009, Rachel Perkins was commissioned by the Department of Work and Pensions to undertake a review of mental health and employment. In her report she suggested a vision with three central objectives: increasing capacity; providing support and monitoring effectively. To achieve these, the report recommended improving ‘welfare to work’ services, commissioning employment specialists and providing short unpaid ‘internships’ to help patients familiarise themselves with the world of work18. In March 2010 the Department of Health published its report New Horizon: towards a new vision for mental health. It suggested that looking at the root causes of mental illness was fundamental to national economic success.19 The benefits of working in a socially inclusive way are self evident and include the removal of the severe effects that stigma has on the individual and their family. The RCPsych says that to achieve this, there is a need for ‘recognition of the range of interventions that can improve both clinical and social outcomes for service users, and ensuring that these are commissioned’.25 Rachel Perkins’ DWP review stated that ‘people with mental health conditions remain among the most excluded within our society, particularly in the workplace. We know that work improves mental health and wellbeing and most people with a mental health condition would like to be in work and pursue a career’.26 At the end of 2009 the Department of Health launched its New Horizons programme which built on the 2000 NSF for Mental Health. This identified multi-agency commissioning and value for money as central strategies to mitigate the societal, individual and economic burden of mental illness. Proposed actions included better work place support and employment opportunities for people with a mental health problem, and the report identified work as an ‘important outcome of the treatment of mental illness in health settings.’27 It is reported that one in six workers will experience stress, depression or anxiety at any one time, with one in four of the whole population having a diagnosable mental illness some time during their life. The vast majority of these continue or return to work successfully. Despite the NSF on Mental Health and the 1995 Disability Discrimination Act (DDA), many of those with mental illness never declare their health problems to their employers, and the enduring stigma that surrounds mental illness still results in employment discrimination. The Royal College of Psychiatrists (RCPsych) has said that the continued stigmatisation of mental illness in the work arena means that many potential recruits may be denied entry into employment as they are seen as unsuitable, even though they meet all the competencies for the profession20. Linked to this point is that those with mental illness who are in employment often find the work environment an unsuitable and inappropriate At the same time, the Government launched the first mental health and employment strategy Working our Way to Better Mental Health: a framework for action. This proposed a framework which aspired to transform the ways we as individuals think about mental health and work; and the ways in which employers and public bodies support people with mental health problems. 9 Health,disease and unemployment: The Bermuda Triangle of society 03 Background & Context The Sainsbury Centre for Mental Health calculated some specific statistics which estimated the sickness absence costs of this kind of illness to employers annually: • • • • Mental health services and localism In December 2009, Health for Work Advicelines (jointly delivered by the DWP and the NHS) began operating in England, Scotland and Wales in order to help SMEs support their employees (although this is project not mental health specific). The Mental Health Co-ordinator Network was also launched, which aims to put a co-ordinator in every Job Centre Plus district. This is hoped to help to develop links between health and employment services locally. £8.4 billion a year in sickness absence of up to 70 million lost working days £15.1 billion in productivity losses or ‘presentee-ism’ (when employees come to work in spite of illness) which costs more because it is more common among higher-paid staff £2.4 billion a year to replace the staff who leave their jobs because of mental ill health Tomorrow’s People, a voluntary organisation that helps people back into work has been recognised as an exemplary model. In a report evaluating how worklessness can impact on mental health, Tomorrow’s People were able to drive down anti-depressant drug prescription by means of a new referral process they formed with a local GP. Mindful Employer is another initiative, consisting of a charter supported by over 660 employers to think positive about mental health. This has become a network of supporting organisation to adopt a good practice on mental health.1 £8 billion could be saved by British businesses if mental health was managed more effectively at work.28 An example of these figures being turned into action is illustrated by the fact that BT has reported that its mental wellbeing strategy has led to a reduction of 30% in mental health-related sickness absence, and a return to work rate of 75% for people absent for more than six months.29 Employment is recognised as an important component of recovery from illness, both physically and, by dint of its impact on confidence and self management, psychologically. It allows a person to step out of the sick/dependent role and so is central to self esteem and self motivation. However there is some concern that work could become a faddish ‘panacea’, and work as the only acceptable outcome to an episode (be it of illness or unemployment) could add pressure to an individual’s situation by excluding any other possible solutions.30 Medical view Encouraging GPs and others to recognise the part that they play in making work a potential outcome of treatment has been an ongoing challenge. They could be key contributors to achieving a healthier workforce and saving scarce welfare resources, by changing the emphasis of their involvement when presented with a patient absent from work from incapacity to capacity. The ‘statement of fitness for work’ (or ‘fit note’) was 10 introduced in April 2010, and is hoped to save £240million or more over ten years. Unlike its predecessor sick note, this new form allows GPs to state whether a patient ‘may be fit for some work’. about patients’ use of other specialist services. The conclusions of this pilot study emphasised the need for GPs to increase their awareness of the therapeutic value of work and the availability of support for them, although employers had previously argued that GPs do not understand the problems that long term sickness absence can cause. Although the British Medical Association (BMA) welcomed the new move as a more intuitive way of giving patients advice, there were reservations about employers having the awareness and responsibility to act on the changes. The qualification of GPs to advise on this topic was also mentioned by BMA General Practice Committee Chairman Dr Laurence Buckman, who was reported as saying that ‘GPs need to be careful they are not drawn into making comments they are not qualified to make, because, unlike Occupational Health doctors, they are rarely in a position to know the precise details of a patient’s working conditions, neither do they have specialist knowledge of workplace hazards’. The idea of ‘fit notes’ was also received critically by Local Medical Committees who thought that they might be open to forgery.31 To this end, there have been increasing efforts to boost GPs’ awareness of their enhanced role in patient employment issues. The Royal College of General Practitioners (RCGP) is running a national education programme (in the form of half day workshops across the country) to tackle this knowledge deficit. Their aim is to equip up to 4500 GPs with a better understanding of how their duty of care extends beyond clinical outcomes. By May 2010, roughly 1000 GPs had received this training.34 Another requirement of the ‘fit note’ is that line managers will need to be equipped to deal with GPs’ advice. In order to do this effectively, employers will need to have access to current information about their employees.35 However UK society still struggles to grasp that health and wellbeing at work are not just medical issues, but extend far beyond, to areas such as engagement, and self worth, making the information needed much greater than mere medical records. To emphasise the point, there seems to be a clear link between the perceived effectiveness of management at work and employees’ feelings of wellbeing. The problem in engaging companies and their managers is how to deal with the apparent conflict of interests that arises when employees at work are affected by health problems, especially when they may have arisen from the work environment itself. Clarifying this conflict, and finding ways of dealing with it is key to improving health at work and clinical interventions that have work in mind. It may be that occupational health services could have an enhanced role in this function. Another anxiety in primary care was that an undue focus on the ‘return to work’ might conflict with the traditional role of the GP as patient advocate, and that although the eventual work outcome would be beneficial to patients, patients may not view it as such. GPs are increasingly aware how job retention or an early return to work can be beneficial to patients, but reforming the medical statement is clearly only a part of changing this mindset. Society also needs to review how GPs and the other health agencies could intervene earlier and in a different manner in order to encourage selfmanagement, and prevent the decline into ‘victim’ role that often goes with illness and unemployment alike. This will inevitably challenge traditional health thinking to go beyond physical symptoms with its impending catastrophes and over-medicalisation.32 A pilot to assess GPs’ interaction with their patients around the subject of sick leave was intended33 to ascertain how GPs understood their remit in this area, the mode of their discussions with patients, and how well connected they were with the appropriate local specialists and organisations. Several issues were identified as barriers to GPs’ involvement in the ‘return to work’ process. Foremost was their perceived need to preserve the trust of the doctor-patient relationship, as they often felt trapped between their patients and the benefits system or the employers (or all three). Other factors that emerged as obstacles included the time needed to do this work properly, the problems of maintaining continuity of care, funding the new system, GPs’ limited occupational health expertise and patients’ lack of knowledge of the system. As far as understanding the other organisations that might have been involved, there were mixed messages about GPs’ knowledge of these, but misunderstanding of the role of the Job Centre Plus system was widespread, as was scepticism 11 Health,disease and unemployment: The Bermuda Triangle of society 03 Background & Context Although there is often an assumption that work during illness is harmful and rest away from work is therapeutic, the converse notion, that work is good and unemployment is bad, is simplistic. High quality employment is important in maintaining employees’ satisfaction and hence their performance, but the equal opportunities implied by ‘high quality employment’ also help to address any inequalities that arise around access to good working opportunities. Good jobs have long had an association with good quality education, and education is linked to longevity.36 Good work versus bad work Men’s working health There is an additional benefit in incorporating health services at the workplace. As National Men’s Health week highlighted, men generally visit their GPs less often than woman, work for longer hours, do more overtime, and retire at older ages. More men than women have symptoms without formal diagnosis, and they are more likely to become alcohol dependent, abuse drugs and commit suicide. There are huge disparities between the sexes in areas such as mental illness too, probably more in the reporting of illness than in its incidence. Even without formal research, it makes intuitive sense that wellbeing at work is likely to be an important contributory factor to this disparity, as men are exposed to the lack of job satisfaction, work related stress, and the pressures of long working hours more than women, even in today’s emancipated society. Inequalities are also amplified by the fact that employers give lower priority to job retention for unskilled employees than for their more highly skilled ones. Smaller companies often have less flexibility than large companies to change employees’ roles as their health varies, or to adjunct the skill mix in different roles. SMEs are also less likely to be aware of issues surrounding disability legislation. Thus, the workplace may be considered an excellent setting for public health practice, for men in particular, and this work should include looking at gender specific variations of health and wellbeing. Royal Mail’s workforce, for example, is 85% male, and so the company focused on raising health awareness amongst staff to see if this would reduce absenteeism. Part of this initiative was to circulate health pamphlets in a similar format to the ‘Haynes’ car maintenance manuals, and work by the London School of Economics showed that absence reduced from 7% to 5% as a result. (Men’s Health Forum, National Men’s Health Week 2008) The factors associated with good jobs have been categorised as control, security, diversity of work, rewards, fair procedures and social capital37. The Work Foundation’s 2009 report Good Jobs suggests that most employers recognise the value of ‘good jobs’, realising that they have much to gain from them in terms of maintaining a more productive, healthier, stable and committed workforce. One factor that that seems to remain relatively unrecognised is the impact on productivity and the ‘health’ of the organisation of sickness absence, presentee-ism and staff replacement. Health and safety at work is another area that affects employees’ health and wellbeing, and is still probably underdeveloped (despite the urban myths!). The Health and Safety Executive (HSE) reported that for 2008/9 over 1.2 million employees suffering a health condition felt that this was made worse by work, with over half a million reporting new issues. This meant a total loss of 24.6 million working days due to work related ill health alone.38 Alongside health and safety and job design it is evident that in repositioning work as a health outcome there needs to be an ability to match skills for a particular job 12 with the aptitudes of the employees. BUPA, for instance, published a report on the future opportunities and challenges for workplace health up to 2030 - a paper that analysed how UK demographics, disease trends, and the economy were likely to interact with the nature of employment.39 The report anticipated that a knowledge based economy was likely to change job design and that this would have consequent effects as ‘knowledge workers’ (often required to apply their skills flexibly and be accessible around the clock) often have a poorer sense of wellbeing and quality of life than other groups with more routine in their work. Mismatches of skill sets and job requirements will affect workers’ wellbeing. Theresa May MP, (writing as the then shadow Secretary of State for welfare) emphasised how a skilled workforce would be an essential part of any welfare reforms, and that in developing these skills, it was vital that nobody got left behind.40 long term rehabilitation. Employers have become increasingly aware of the benefits of OH which is perceived as part of an employer’s duty of care to its employees. However, the practicability of this philosophy depends on the size of the company, the costs of providing such a service, and the local perception of health as a business priority. Employers look to government promotion to widen access to OH services, as well as wishing for reform of the costly legal processes that accompany compensation claims. Removal of tax disincentives such as the current ‘benefits in kind’ system would also go a long way toward ensuring that employers invest in their employee’s health.1 From the employee perspective, OH has been seen as a management tool, whereas it is self evident that OH professionals should be more sensitive to both employee and management concerns. It would be helpful if some of the routine health checks were redesigned, and focused more on health promotion than preemployment checks and health surveillance,1 as access to these services is a vital component of any early intervention. Previously it has been suggested that early intervention itself should be streamlined with nationally agreed service standards, taking into consideration that professional expertise is key to reform. The need for better referral systems and greater OH provision has also been highlighted.1 In the context of increasing globalisation, companies need to focus ever more tightly on communication and the development of organisational ‘emotional intelligence’. This should include the consideration of mental health issues in the work place, and the organisation of clear responsibilities at work, and for the ‘return to work pathway’ for those who have been unwell.41 The key seems to be that a holistic approach is vital, and needs to be consciously maintained at all times. Line managers are not just extensions of their corporation’s arm, they are the tangible human link to the organisation for all employees. Vocational rehabilitation (VR) has often been seen as separate from the usual OH working but is actually synonymous with many of the overall aims of OH. It is designed to assist in whatever way possible those with health conditions to return to or remain in work by taking an individual approach on the return to work, workplace accommodation and early intervention. This “process of facilitation”42 is fundamental to the maintenance of mental health. “Rehabilitation cannot be a second stage after healthcare has failed” – Palmer and Fox 2007 Occupational health and vocational rehabilitation Traditionally Occupational Health (OH) departments have been responsible for the health of workers, and for a safe environment, in terms of hazard assessment. The Black Review highlighted the fact that only one in eight workers currently have access to any form of OH. The review recommended a greater emphasis on OH, even extending its reach to people who are not presently in employment. This could be part of a new early intervention process. In recent years much OH has been outsourced, and internal OH departments have increasingly been disbanded. It has yet to be seen how this has affected employee accessibility and satisfaction with services. Setting up a UK framework for vocational rehabilitation was suggested in 2004 by the HSC (now HSE) in its ‘A strategy for workplace health and safety in Great Britain to 2010’ but there has been little mention of progress. The Government has said that it was not in a position to implement a new approach for VR, but that it fully supports stakeholders who want to do so. The huge challenge to OH is to overcome its historical detachment from mainstream healthcare. Traditional OH departments can do various things, and a number of measures have been recognised as helping to prevent the drift of employees onto long term benefits. These include risk assessment, disease and absence management, health prevention and promotion, and 13 Health,disease and unemployment: The Bermuda Triangle of society incapacity benefits must attend five further WFIs. The Pathways programme comprises a ‘choices’ package to improve individuals’ work readiness, a £40 return to work credit and a discretionary fund that advisers can allocate to increase the chances of clients finding work. 03 Background Although the programme was hailed as a success when it was originally piloted in 2003, attempts to expand and replicate the programme in 2006 showed that the Pathways had had no statistically significant impact on work, earnings or health outcomes. Within the original pilot areas however, analysis showed that Pathways increased the proportion of clients who were in paid employment 19 months after they made an incapacity benefit enquiry and reduced the chances of individuals reporting day to day health problems. This disparity was explained by possible variations between the studies.47 & Context Summary of Programmes designed to assist in reducing unemployment In May 2009 the DWP estimated that there were 4.97 million out-of-work benefit claimants of working age, of whom 2.62m were claimants of Employment and Support Allowance (ESA) and/or Incapacity Benefits (IB).43 From October 2008, ESA replaced Incapacity Benefit and Income Support paid on the grounds of incapacity. This benefit attempted to cut costs and change the culture of long term sick leave, and it included a new work capability assessment. Of 292,300 people tested since October 2008, only 89,600 were assessed as unable to carry out full time work, which left 69% who were considered well enough to work, and hence moved onto the Job Seeker’s Allowance (JSA).44 Presently, Pathways contracts have been assigned to multiple organisations, the largest of which is A4e, a multinational recruitment and training service. Questions still remain about the cost-benefit of the Pathways programme. If calculated conservatively, it has been estimated that the net return to the exchequer was £1.51 for every £1 spent on the Pathways programme. However some costs were not incorporated in this analysis (such as administration, tax losses and utilisation of the NHS) and this calls the results into question.48 Interagency concerns about the Pathways work remain, as is shown by the fact that over half of PCTs have not made links with their local scheme.49 Furthermore Pathways is said to have failed for those with mental health issues and the National Audit Office have said that the programme provides poor value for money.50 The Welfare Reform Act 2009 aimed to reduce benefit dependency and strengthen the benefit contract. Despite public anxiety about benefit fraud, there was more concern among policy makers that the degree of conditionality in the benefit system might work in a perverse way and actually lead to less support for the people who needed it most. It was felt that getting people off welfare benefits should not in itself be perceived as the goal.45 Access to Work is another Government scheme that helps employers to make assessments and provides funding for alterations to be made to the working environment. This benefit contributes towards the costs of equipment an individual may need at work, offers a communicator at job interviews, helps to adapt premises where necessary, and can pay for a support worker. It can also pay towards the cost of getting to work if an individual cannot use public transport. Reportedly between April and September 2009, this scheme helped 26,540 individuals.51 Helping this group depends on a greater understanding of why people make these particular benefit claims, and adaptation of national strategies may be required to allow a ‘fit’ in local areas. Overall there has been a decline in the total number of claims, but with a shift from musculoskeletal problems to mental health issues. DWP studies have shown that alcoholism and drug abuse have increased alongside Invalidity Benefit claims due to mental ill health. It has been suggested that other associated factors like poor employment history were linked to this trend and should be taken into account when looking at localised groups.46 Two major programmes were initiated as part of the overarching ‘work for your benefit’ scheme; these were Pathways to Work and Access to Work. From April 2008, everyone on Incapacity Benefits has been able to access Pathways to Work. Under Pathways, any individual aged between 18 and 60 who claims incapacity benefits must attend an initial work-focused interview (WFI) with an IB personal advisor eight weeks after making their claim. Most people remaining on 14 The costs and effects of absence from work have been widely documented, but the costs of presenteeism, poor productivity of replacement labour, and extra management costs often go undetected. The Chartered Institute for Personnel Development (CIPD) and the Confederation of British Industry (CBI) found that very few organisations make rigorous assessments of the costs associated with employee absence, and that when they do they tend to take an ‘accountancy approach’ without mention of impact on productivity and profitability.52 There are clear gains to be made by improving absence management, but this has yet to be fully grasped by organisations in the UK. In their report the CBI also noted that ‘Annual absence surveys are not rocket science, but a blend of systematic use of absence procedures and improved communication between staff and management, supported by employee wellbeing policies’.53 Broader costs This ‘improved communication’ may simply comprise earlier one-to-one follow up procedures after incidents such as sickness absence. Employee wellness programmes have been slow to be taken up as employers have not perceived any impact in improving the health and wellbeing of their workforce. This is expected to change as the focus on corporate social responsibility increases. A study of workplace wellness programmes found promising cost benefits in important areas such as sickness absence, staff turnover and accidents. These programmes were found to be far more successful when they were tailored to employee needs.54 It has also been suggested that the National Institute for Clinical Excellence (NICE) guidelines on the cost effectiveness of new medical treatments should consider incorporating social and work factors into their calculations as well, so that the broader benefits of new treatments may be recognised. This raises the perpetual public sector issue of whether the department whose budget funds an intervention should also be the one that reaps its rewards. A classic example would be the potential cost shifting when the DWP saves in benefit payments because of expenditure from NHS budget for treatment that accelerated a patient’s return to work. This consideration was addressed and rejected by the Kennedy Review55 but other reports have found that a more cross cutting approach resonates better with both professionals and the public56. Taking this approach to the frontline would mean that those who held local health budgets could start thinking about savings to the entire welfare budget and which clinical treatments have the most impact on ability to work, hence the question about ‘horizontal integration’ posed during this project. 15 Health,disease and unemployment: The Bermuda Triangle of society This report is built on the foundations of a selective literature review which was based on expert recommendation, selective news streams and self published, publicly available literature from various organisations. Many of the fact and figures come from programme specific searches from the Department of Health and the Department of Work and Pensions. Other statistics have been drawn from independent studies. 04 Methodology Ideas that emerged from the literature were then drawn together to inform a semi-structured interview schedule designed to combine non-directive questioning with the opportunity to explore specific issues in some depth (see appendix 1). The second stage of our research was to conduct over 25 expert interviews with senior figures from a number of diverse organisations, including the NHS, voluntary sector, health insurance providers, private healthcare companies, employee service providers and case management organisations. We spoke not only to Chief Executives, but also to local managers and health professionals (full list available appendix 2). In each case, interviews took place either in person or over the telephone, and were set out relatively informally on a semi structured basis that allowed the interviewee to lead or elaborate. Interviewees were assured that their comments would remain unattributed and were encouraged to express their true opinions, even if they were not in keeping with their organisation’s views. 16 The two themes discussed in each case were drawn from the findings of the interviews, and were: From the interviews were synthesised a number of recurring themes which were tested in local communities by carrying out a short series of workshops. In the event three workshops were carried out, in Coventry, Newcastle and Exeter in the period from December 2009 to January 2010. These were attended by a diverse range of people including physiotherapists, occupational therapists, occupational health physicians, health industry representatives as well as people providing employment services to mental health users and members of professional bodies. These workshops were designed on a ‘confirm and challenge’ approach, intended to encourage a number of groups to take part in active discussion on several different topics. Originally, it had been intended to run four discussions in each session, but the number of people attending each of the workshops made this impractical. Instead the participants in each workshop were divided into two groups, each asked to discuss one of two themes. Half way through the session, the members of each group (except one) rotated, the remaining one acting as the designated ‘guardian’ of the theme. They were also responsible for facilitating and reflecting the findings of each discussion to a plenary session at the end of the workshop. 01 ‘Occupational health medicine is irrelevant to the link between health and work’ 02 ‘How may a return to work be incentivised, to the benefit of the individual, their employer, and the state?’ The findings of the workshops were collated along with the themes emerging from the interviews, and amalgamated into this report. The project was supported by an external steering group of unpaid experts with whom the process and the findings of the work were discussed on several occasions; we would like to acknowledge their invaluable help, and thank them for their contributions. 17 Health,disease and unemployment: The Bermuda Triangle of society The original hypothesis that underpinned this piece of work concerned the specific link between ill health and work, in the knowledge that long term chronic conditions such as muscular skeletal disease and mental illness have a dramatic impact on the workforce and its productivity. However, it soon became apparent that the linkages are more complex, and that there is a striking relationship between unemployment, ill health and work. 05 Why a Bermuda Triangle? This is quite hard to explain in concrete terms, but it is clear that unemployment causes ill health just as ill health causes unemployment, and that a return to work can (but only if used appropriately) improve the health of both groups. Thus, for example, someone with a chronic condition such as rheumatoid arthritis (RA) or endogenous depression risks losing their job in the current work environment because there is rising unemployment (and so replacing them is easy). There are no real incentives for an employer to adapt work circumstances to suit the needs of the disabled person, whether in terms of flexible hours (depressed people usually function more effectively in the latter part of the day) or physical changes (such as special taps in washrooms to suit the needs of those with physical frailty). This makes getting such people back to work highly problematic. The issues get worse if unemployment (for any reason, not just for those with a chronic illness) continues for any protracted period of time, as the chances of the unemployed person getting back to work diminish rapidly and those who have been unemployed for longer than six months (for any reason) have a lesser chance of ever getting back into permanent employment. Studies have shown that although these limits are unclear, the best window of opportunity for a return to work is between one month and six months.57 The next loop in the downward spiral is that there is a clear link between long term unemployment (for any reason) and the illnesses of low self esteem such as depression. Ever since the rise of the Puritan work ethic, Western societies have used employment as a key indicator of worth, particularly where men are concerned, so that we tend to adjust our assessment of a person’s status according to the work that they do, and we apply that measure to ourselves as well as to others. Put starkly, those who are unemployed are seen (and see themselves) as having less value as people than those in work. This is bad enough, but the phenomenon is more marked amongst those who have been in work and then become unemployed. They tend quickly to adjust their self esteem downwards, with the rise of self doubt and the loss of confidence that is bound to make their affect worsen, along with their ability to get back into work, and the longer the 18 unemployment goes on, the worse it becomes, both in their own minds, and in the minds of potential employers. In our society, it is this final twist that completes the vicious circle that creates and perpetuates a lacuna of isolation and neglect, a kind of metaphorical Bermuda Triangle. It may be more helpful to illustrate this dynamic diagrammatically, as shown below: Unemployment Work Ill Health The Bermuda Triangle There is a certain invisibility to the group caught between the three pillars of work, ill health and unemployment, and it was that isolation and sense of mysterious disappearance that led to the coining of the ‘Bermuda Triangle’ phrase, and most of the themes and messages that came out of the interviews and workshops were aimed at increasing the visibility of those trapped in the triangle, and helping to rescue them from there. The themes are generally arranged in no particular order, although there are one or two generic points to be made first. 19 Health,disease and unemployment: The Bermuda Triangle of society Generic points 06 Themes Underpinning the whole of the study, and present in all the discussions that took place as part of it was the premise that ‘work of the right kind is good for you’. The evidence for this has already been cited, and there is a strong common sense element in that statement, and yet it quickly became clear that there was a dissonance between what people said about the subject and what they felt about it. In everyone’s tone of voice there was a wistfulness as they talked about the place of work in their own lives, as if work was a necessary evil, like medicine. British Attitude to work Anecdotally, this seems to be a widely prevalent attitude to work, that might be characterised in the statement ‘I know work is good for me, but if I won the lottery, I’d give it up like a shot and take up something I wanted to do’. Within that statement lie a couple of truisms: first, there does seem to be a ‘British attitude’ to work, that is different from (and a lot less keen than) say, an American view. The working population in the UK appear to demonstrate a curious paradox; they work longer hours than any other nationality in the developed world, and yet they are the least enthusiastic about what they do. The second truism is that people would rather be doing something that they enjoy, and when people feel obliged to do anything, they tend to resent it. The key to the paradox lies in the notion of control; if any of us want to do something, we tend to enjoy it more than if we have to do it. Studies show that productivity, sickness rates, staff turnover, even life expectancy all improve when people feel that are in some way in control of their destiny, and worsen when they feel ‘done to’ rather than ‘doing’, and the lower down the employment chain we work, the less sense of control we have58. Winning the lottery is a trite way of claiming control, and with it (in fantasy at least) comes the notion of doing something we enjoy, something that we control, rather than something someone else is obliging us to do. Quite why this should be more prevalent in the British population than elsewhere is a matter of speculation, but there does seem to be a non-conformist streak among us that means that whilst we rarely revolt (look at our French neighbours for comparison), we commonly subvert. We have a natural suspicion of authority that has generally served us well, even if it does mean that while we hate getting up on Monday mornings, we still do. In practice, the implications of this observation are that the more perception of control employees have, the more effectively they will work. Workers on a manufacturing line become more productive if they are allowed to stop the line when anything is wrong; it gives 20 them a sense of control. Loosening the rules about when breaks may be taken does the same, for the same reason. Professional workers generally devise their own work schedules and activities, and the clear control that this gives them means that they enjoy their work more. Similarly, self employed people generally enjoy their jobs more than employees. wellbeing is being adversely affected by their position) to be directly linked into the NHS. The best that the system can do is try to get them a job, or suggest that they refer themselves into the medical hierarchy. One essential that overcomes this arbitrary distinction is the direct link between the NHS and the Department of Work and Pensions (DWP) whose remit covers the management and welfare of the unemployed. Such ‘horizontal integration’ helps to remove bureaucratic barriers, and should make the holistic care of the workless easier to improve. As with many of the administrative processes that seem to get in the way of effective public services (another classic is the artificial barrier between the NHS and Social Services), the realities of running a large and complex welfare state make the simple conjunction of all these services a much harder task than first appears, but it is a point worth reiterating repeatedly that the welfare state was established to ‘do the right thing’, and should not let ‘doing things right’ subsume that aim. However, ‘outsourcing’ such joint ventures to external agencies (particularly when they are still being developed) risks broadcasting an entirely different, and less positive message. Nested within this idea of control is also the notion of ‘ownership’; if a task matters to me personally, then I will tend to do it better than if I don’t care about it at all. This idea will percolate through many of the findings of this study, in terms both of the ‘input’ (how events influence people) and ‘output’ (how people may influence events). This will show not only in the factors that influence peoples’ perceptions of work, but also in the most effective ways of changing these perceptions and improving their relationship with work. The conclusion to be drawn from this is that building in the perception of control (and it is the perception that matters, not the fact) helps increase productivity, reduce staff dissatisfaction, and improve morale. It also helps to engender a better sense of ‘ownership’ of a task, something that will be seen to be an important aspect of the links between work and health. These generic observations may colour some of the specific comments that were made during the interviews and seminars; these have been synthesised into a summary that attempts to sort a series of disparate impressions into some form of order, based on the ‘journey’ from work through illness to unemployment, and then back again. A key finding that appeared time and again through the work of this study was the fact that the distinction between illness and unemployment seems to be entirely artificial. Thus, although it is self evident that ill health is likely to result in some inability to work effectively, the notion of having the ability to work effectively as a suitable target to which NHS services could aspire is entirely missing from the lexicon of the NHS, indeed, our research found that it is often completely absent from the mindset of clinicians. Britain in not focused on rehabilitation, only 1 in 6 people return to work after a major injury compared to 50% in Scandanavia, a point conceded in Black’s review59. Thus, when doctors review their patients, their focus in on the amelioration of symptoms, and of the titration of medication, but their review is rarely carried out with the specific aim of getting patients back to work. This is particularly so in hospital settings; in general practice, effective practice is carried out in the context of the so called triple diagnosis, which includes the social and psychological aspects of any illness as well as its physical manifestations, and consultations may well include an assessment of patients’ ability to return to work. But even here, such an outcome seems to be a by-product of getting patients better, not an end in itself. Illness and unemployment are not separate issues Similarly, if the problem is approached from the unemployment end, there seem to be very few mechanisms available that allow workless people (whose 21 Health,disease and unemployment: The Bermuda Triangle of society the most appropriate medication. Whilst ‘early intervention’ was regularly cited, there was little questioning of whether the individual was receiving the best medical treatment for their particular condition. This is a very relevant supposition and omission, especially when the National Institute for Clinical Excellence (NICE) has significantly raised the awareness of medical choices.In many spheres involving the formal ‘professions’, our society has been moving away from an ‘age of deference’, but questioning the correctness of prescribed medication seems only to occur when there is an adverse side-effect. However, the fact that medications are becoming increasingly specialised points to the need for greater awareness that the correct medication shouldn’t be taken for granted. Appropriate prescribing can result in a more immediate return to work and so is a key factor in enabling work to be seen as a health outcome. 06 Themes Other themes Prevention is better than cure, even with long term ill health The welfare state as it is currently configured seems to take no account of the fact that chronic illness rarely comes completely out of the blue; whether one is considering rheumatoid arthritis, schizophrenia, blindness, multiple sclerosis, cancer or chronic obstructive pulmonary disease, these all develop over time, and their impact on sufferers’ lives may generally be predicted, even if the pace of their progress may be harder to define. Despite this, it is not part of our culture to consider the implications of illness at work except in the most binary of forms: a person can either work, or they can’t. People suffering from a long term condition (LTC) seem be obliged to struggle on at work until they have to give up and retire, with all the feelings of failure and loss of purpose that are associated with that sense of ‘giving up’. If they are very lucky, they may then be reemployed on a part time basis, but this is the exception rather than the rule. Generally, when we are ill we tend to deny it for a while, then consider the immediate crisis of treatment and diagnosis, and only much later consider the long term consequences of our condition. Partly, this is part of our hope and expectation for health and longevity, but there is also a genuine uncertainty about the path of most LTCs, so that we do not (and indeed, should not) consider ourselves as being crippled by arthritis at the first twinge of any joint pain. It takes time before an acute illness becomes seen as chronic, and so the challenge is to know when that change occurs (at an emotional level as well as a clinical one), and then intervene as soon as possible after that. On the part of the employer and of wider society, there would need to be an acceptance that it was normal for the work environment and job roles to change as people’s careers progressed, even if that entailed physical change (seating, instrumentation, etc), and changes to the terms as well as the conditions of employment. Not only would this be helpful in keeping those with LTC at work, but it would fit in with the emerging zeitgeist about deferring retirement; the same attitudinal changes could apply as age and energy (as well as motivation) affected people’s work abilities, thus helping to maintain people’s presence at work and optimising their effectiveness. There seem to be no general mechanisms whereby those who know that they have a LTC can work with their employer to plan for the future, and modify their working conditions appropriately; after all, someone with a LTC may well need to live with it for decades, and it is clearly a waste for (as well as a drain on) society to lose the benefit of that person’s contribution to the work place for all that time, to say nothing of the impact on their own sense of self worth and life satisfaction. Several interviewees who worked with organisations that championed the needs of patients with particular diseases made this point, and suggested that early intervention was a key example of prevention being better than cure: if people who knew that they had a LTC could negotiate the appropriate changes to their working conditions, then they would be able to lead a much more positive, contributory life to the benefit of society as a whole as well as to themselves and their families. To do so would take some cultural changes: the most important of these would be the need for those with potential LTCs themselves to consider this far earlier than happens at present. On reflection it was noticeable that the implicit assumption was made by most interviewees that individuals are automatically on 22 The third strand of poor perception was based on the apparent strong biomedical bias of OH services, that was seen to favour the physical aspects of disease and disability, rather than including the social and psychological aspects too. This probably originates from the medical roots of the specialty, and of the general human propensity to prefer those markers that lend themselves to easy measurement over those which (although conceivably important) are based on intuition and empathy. Thus, OH services were seen as being dominated by doctors whose interests lay in muscular ability and biochemical abnormality more than in the issues of affect and emotional disturbance. Occupational Health: whose services are they anyway? Both the interviews and the seminars exposed significant issues about the current nature and purpose of occupational health (OH), as well as offering some interesting and practical suggestions as to how these services might be improved. There was a general consensus that occupational health services are currently unwieldy, archaic, and of limited utility. The starting point for these perceptions is that the place of occupational health within the health sector ‘scheme of things’ is obscure and poorly understood. The NHS itself has an OH service, which applies to staff within the NHS, and is also offered to external companies on a commercial basis. Beyond that, some employers do provide an OH service (either in house, as large employers sometimes do, or on a contracted basis from the NHS (as described above) or from commercial OH companies, whilst others (usually SMEs that find the price of such a service too high to be cost effective) provide none at all. In summary (and with a degree of generalisation!), OH services were seen as patchy in their availability, partisan in their application, and narrow in the scope of ‘disease’ with which they could deal. However, there were several suggestions as to how these perceptions could be improved in order to allow more appropriate, useful models of OH to bloom: these are based on the notions of making OH services more widely available, less focused on the needs of the employer, and more widely based than on doctors alone. For example, the entire professional group of occupational therapists was notable in this study by its absence (although we had some stalwart attendees at the seminars), and there would seem to be a niche waiting to be carved out by them. A new cadre of occupational practitioners was mentioned in several of the interviews; another group not bound by the strictures of a very traditional medical training. In terms of their utility, it may be helpful to combine the input end of their function (‘what is going on?’) with the output end (‘what should we do about it?’), and such an approach might also help to establish and maintain the neutrality of such a service. The ‘OH helpline’ for SMEs, recommended by Carol Black’s report and introduced as a result by the Department of Health, are one step on this route, but most interviewees thought that this represented a first step towards a more enlightened OH service, rather than an end in itself. The second issue informing this perception is that there is confusion over the role of the OH service; is the service there to help the ill person, or to assist the employer? In other words, who is the client? This question was almost always posed in an adversarial way with the needs of the patient being perceived as diametrically opposite to those of the employer, and only rarely did anyone see them as aligned. Once again, this seems to link to the issue of ‘ownership’; in one of the workshops, for example, it was suggested that in a small company owned by its workers, it would be in everybody’s interests to minimise sickness, and that the occupational health needs of the company would be the same as those of the employees. It was only when the interests of the employees became separated from those of the company that the dichotomy arose, and so one way to obviate the issue is to remove that distinction, by increasing the sense of ‘ownership’ amongst employees. For most interviewees, OH services were largely seen as representing the employer, policing the sickness of the workforce to ensure that people returned to work as quickly as possible, or were helped to leave if return was seen to be uncertain or unduly delayed. Again, this view may partially be explained by the sometimes ambivalent British attitude to work. There was also a sense that ‘he who pays the piper calls the tune’, and that the needs of the employer were bound to take precedence over the needs of the employee. 23 Health,disease and unemployment: The Bermuda Triangle of society By nurturing these in a relatively risk free way, the agencies are fulfilling a task far larger than merely ‘signposting’ the journey back to employment, or acting as brokers for available employment, which is how the larger, more impersonal agencies such as Job Centre Plus are perceived. They are helping to rebuild the skills and attitudes that are needed for survival and success in the work place. 06 Themes Clearly, there is an economy of scale in providing services that help people back to work (particularly those that are directly funded by the public purse, where thrift and probity are paramount), but the clear message from this work is that any benefit of size is more than offset by the dis benefits in terms of intimidation and lack of involvement that go with large scale. It may be that the compromise is to allow the commissioning of such services by public agencies through smaller, more nimble private and voluntary organisations that may be held to account on the basis of their results; such an approach would allow probity and efficiency to be served, whilst maintaining the human scale required for effectiveness, and injecting a measure of competition and contestability for good measure too. However, any such an approach would need to be ‘lubricated’ by simplifying the complex and bureaucratic tendering processes that currently discourage many suitable organisations from offering their services in the first place. In the struggle to move from worklessness (whether due to ill health or some other reason) back to full employment, an important observation that came out of all the work of this study was the inverse relationship between the size of a ‘helping’ organisation and its perceived utility. Time and again, interviewees and seminar attendees reinforced the daunting nature of dealing with State bureaucracies, and the relative relief felt when working with smaller, more focused organisations that were less formal and more human in their scale. Beyond the obvious link between the bureaucracy associated with size, it is hard to say why this was; perhaps the symbolism of size and State act as a subtle reflection of the link between self esteem and authority. Where welfare is concerned, small is beautiful Whatever the reason, it became increasingly clear through all the discussions (both with the helping organisations themselves and with the various lobby and expert groups involved) that people seeking assistance to get back to work found it more helpful to deal with small organisations than with large bureaucracies. ‘Job Centre Plus’ in particular was seen as by many as being particularly impersonal and unhelpful, whereas smaller, more directly involved groups such as Tomorrow’s People were seen as offering better advice and seemed to be more in tune with their users’ needs. This was especially marked when (as was the case with Tomorrow’s People) these agencies made use of clients to help in their running (often on a voluntary, unpaid basis). Such involvement seemed to help to build up clients’ confidence, perhaps because there was less ‘performance anxiety’ when there were no wages or formal obligations involved, and hence get them re-familiarised with the routines and rituals of the workplace: timekeeping, socialisation, formal tasks, and so on. At a more conceptual level, the involvement with a small organisation that was run by people who had themselves been in a similar position of unemployment, promoted a sense of ‘belonging’ and help to engender the sense of ownership (this time of the organisation) that is needed if the responsibility, motivation, and pride that are vital for sustainable and satisfying employment are to be developed. 24 Taken one step further, is there a role for GPs to take up such a function more formally, and work as a ‘neutral agent’ in the area of occupational health? General practice: tinker, tailor, provider, landlord, case manager, or none of the above? In the area of general health care, much is written about the place of primary care in the delivery of services, and many of the policies of the past twenty years have been predicated on the transfer of activity and responsibility to primary care in general, and general practice in particular. During our work on the ‘Bermuda Triangle of society’, the place of general practice was raised in a number of ways, and these are discussed below: General practice as venue for case management: finally, bringing together the idea of care ‘closer to home’, case management, and the notion of ‘small is beautiful, interviewees had some interesting views regarding the use of general practice (or other community based facilities) as the local base for the provision of services and advice. General Practitioner as case manager: the GP has a Interestingly, there was little consensus as to the place of general practice in solving the conundrum of the Bermuda Triangle. Where the issue of case management was concerned, whilst most people acknowledged the place of GP as the conceptual case manager in a medical context, there was not much support for the idea of letting him/her act as case manager in the field of unemployment and the return to work. Some put this down to a perceived lack of skills and interest amongst GPs, whilst others felt that this approach would be medicalising a social issue in an inappropriate way. Others again liked the notion, but felt that GPs were already overwhelmed with their current tasks without taking on a new burden. central place within the NHS as the co-ordinator of care. They are the person who ‘holds the ring’ of what is provided to their patients, and keeping a record so that the overall provision of care is appropriate, co-ordinated, and contextualised by the GP’s knowledge of their patients in terms of their physical, social, and psychological needs (the so-called ‘triple diagnosis’ already discussed above). How well could this concept be applied to the area of health and unemployment, where the complexity of issues is at least as diverse as in ‘ordinary’ illness, and where the case for continuity and someone to act as mentor and guide is at least as strong? GP as social security fundholder: in the medical field, there has been a growing awareness that GPs effectively control hospital activity by dint of their referrals, and this has been used as the basis of a number of initiatives that linked their clinical control to a financial interest. By giving these ‘fundholding’ GPs a vested interest in the outcome of their actions (inducing the same sense of ownership that has already been mentioned in a number of different contexts), the theory was that these GPs would feel more involved and act more responsibly in carrying out their referrals. Where returning patients to the world of work is concerned, there is an hypothesis that giving GPs a similar vested interest in the outcome (of a healthy and sustainable return to work) by giving them control of the resources to manage that return might reap the same benefits. A similar logic informed interviewees’ responses to the idea of GP as fundholder in the field of worklessness; in addition to the perceived lack of interest/expertise/time, there was a feeling that there might be political difficulties in allocating public funds to GPs to disburse as they saw fit without enough accountability. Where GPs as OH physicians was concerned, views were more mixed; there was a theoretical agreement with the move away from ‘sick notes’ towards the idea of defining how well a person was, but there were mixed views about the specific notion: one positive view expressed was based on the idea of the GP merely defining that the patient was fit for ‘some’ work, and letting the employer then decide how best to utilise the patient’s working abilities. However, interviewees were concerned that if GPs were expected to define the extent of their patient’s fitness, they would have to develop a sense of all the skills required by local employers, a full understanding of occupational health, and be prepared to accept a degree of accountability (including, presumably, legal liability) for their decisions. Once again, there were doubts expressed about GPs’ inclinations/expertise/time to carry out this role. One interesting view expressed was the idea of incorporating some work related targets into GPs’ Quality and Outcomes Framework (QOF), whose achievement is linked to their practice income. So interviewees were asked their views about GPs being given (at least some of) the social security budget to allow them to spend it more flexibly (say in treatments such as physiotherapy, occupational therapy, or even other less conventional approaches) in the attempt to get patients back to work more quickly. GP as occupational health physician: part of the report produced by Carol Black introduced the notion of the ‘wellness note’, by which GPs signal their patients’ ability to return to some measure of work activity. This idea is currently being developed and rolled out, so interviewees were asked their views on the idea of GP as OH diagnostician, deciding who is able to work, and to what level. 25 Health,disease and unemployment: The Bermuda Triangle of society hours and a variety of permutations of chairs, desks, and equipment, its ability to do even this would depend on its size; a company of 300 employees should be able to offer more flexibility in any of these factors than a company of ten employees. Conversely, it would be hard for a construction company to take on (or retain) labouring staff with conditions such as rheumatoid arthritis, unless those staff were able and willing to be completely retrained in desk jobs that might be totally alien to them. 06 Themes The area in which there was most consensus concerning the role of general practice was in the use of GP facilities as a venue for the work and advice required to help the workless get back to work. The local nature of such facilities means that such services may be provided in ways suitable for each local community; they are also small and informal enough to avoid the sense of bureaucracy and disempowerment linked to the enormous edifices of the State. Such centres could be populated by staff from private and/or voluntary organisations, or by more traditional providers of advice, but the idea of linking the tasks associated with the return to work to the specific health issues at a single venue was appealing to most who expressed a view. Part of the problem is perceptual and commercial; there is good evidence that supportive companies that treat their staff well and are prepared to be flexible have reduced staff turnover (and hence lower training time and costs), increased productivity, and better longevity. However, commercial pressures are often perceived as being overwhelming, and many companies take a very short term view of staff welfare. This is particularly so at the unskilled end of the market, where training, and professional judgment may matter less than sheer muscle, and where recruitment is relatively easy and retention therefore less important. To make matter worse, in trying to persuade companies to (say) initiate an occupational health function, it is difficult to demonstrate that they would reap benefits because those benefits are measured in absences, and negatives are always much harder to prove: predicting the absence of sickness or a reduction in turnover require a leap of faith, and such faith is often the missing ingredient in introducing some of these changes. If we continue categorising the findings of the study in a notional chronology, then the next stop after the support and rehabilitation offered during worklessness should be the re-entry to work, and here we come up against the fact that the variety of workplaces is almost infinite, making specific responses to bringing people back to work impossible to prescribe. The flexible workplace: oxymoron or aspiration Finally, to close the circle that runs from the occurrence of illness through worklessness and back to the workplace, it is worth noting interviewees’ thoughts on the incentives (both positive and perverse) that exist to aid and abet in the this process. In this, there is a strong politicial element, as peoples’ views on welfare payments vary considerably. Most participants agreed however that those who were workless through no fault of their own needed support; the challenge was how to wean them off it without creating unnecessary hardship. Incentivising the return to work However, there are probably a number of generic principles that one could apply to the manner in which employers respond when their staff are unable to work due to ill health, or to the way in which they might respond to applications to work from those who are chronically workless. These might include: • • • • Be prepared to be flexible in the working conditions (physical and temporal) that you offer Intrinsic to this puzzle is the eternal welfare conundrum: make benefits too good, and nobody wants to give them up; make them too poor, and people suffer. This paper is not the place for a detailed answer, but out of the interviews emerged the notion of some kind of tapering scale, that married a welfare payment that reduced as ‘real’ income grew without any ‘step changes’ being triggered that would invoke the classic ‘benefits trap’. Take a long term view of staff morale and wellbeing: loyalty breeds profits Offer appropriate occupational health support Tailor the tasks to the abilities of your staff, and be prepared to modify these In reality, of course, the ability of companies to live up to these promises depends on many factors, some absolute, some relative, and many a matter of opinion and attitude. Thus, whilst an office based agency doing computer based work might be able to offer flexible Such a taper is clearly meant to be applied at the end of the story when ‘they lived happily ever after’. At the ‘once upon a time’ end, views from the respondents were fairly consistent that the current interventions happened 26 far too late: companies rarely identified potential health or performance issues in time to deal with them while employees were still working; state run interventions to get people back to work or to stabilize their payments happened only after they had been workless for several months. What was required was genuine early intervention, preferably in time to preempt the whole workless phase, particularly when it was a predictable health issue that was causing the problem. Thus, rather than waiting until the rheumatoid arthritis had become so bad that one’s usual work had become completely impossible, it would be better to have discussed with one’s employer the possible alternatives, and set them up so that work of some kind could be set up in a sustainable way that maintained continuity of income for the employee, continuity of output for the employer, and one less person on State Welfare. Of course, measures would have to be taken to ensure that employees would not be disadvantaged by their employer for their openness. It may be that medical support for such interventions could be an extension of the ‘fit note’ idea, using the GP’s imprimatur to validate such discussions, and preempt any punitive reaction by less enlightened employers. The incentives are fairly clear for both the victim and the State; however, as the system currently runs, it requires an enlightened employer to see that the long term advantages of looking after their employees far outweigh the short term costs of keeping them at work at a lower level of productivity whilst their problems are being resolved. Moreover, it takes a particularly enlightened company to be prepared to accept back into the workplace an employee with limited capacity, who may need physical adaptations as well as concessions in terms of working hours, job role and so on. One possible lever for change suggested by an interviewee was the HSE (Health and Safety Executive). Until now, most of the HSE’s recommendations have been based on physical changes to make the working environment safer for employees. However, with the rising awareness of and interest in work related stress, it may be that increasing the profile of the HSE in this area could bring sufficient pressure to bear on employers on their prevention and more effective treatment of the condition when it occurs at work. Fear of liability and of compensation, whilst not the most altruistic of drivers, may be a useful adjunct to the beatitudes of the moral high ground. 27 Health,disease and unemployment: The Bermuda Triangle of society 07 Summary of It is clear that unemployment causes ill health just as ill health causes unemployment, and that a return to work can (if used appropriately) improve health. Those who are unemployed are seen (and see themselves) as having less value as people than those in work. This phenomenon is more marked amongst those who have been in work and then become unemployed. There are currently no real incentives for employers to adapt work circumstances to suit the needs of the disabled person, which makes getting such people back to work highly problematic. The British and Work Key Messages 01 It would therefore seem sensible for the first aim of any policy change to make it in the interests of the individual, the employer, and society at large to align the incentives and close the loop between health, illness, and unemployment. There is a dissonance in British culture between what people say about the benefits of work and what they feel about it; work is often seen as a necessary evil. This view is more marked the lower the perceptions of control felt by workers; productivity, sickness rates, staff turnover, even life expectancy all worsen when employees feel ‘done to’ rather than ‘doing’, and the lower down the employment chain people work, the less sense of control they have. 02 Raising the perception of control is key to improving productivity, and all the work on leadership, engagement, and so on is actually trying to do this. An overt focus on improving this culture would reap rapid and sustainable benefits. Given that the distinction between illness and unemployment seems to be artificial, it is self evident that ill health is likely to result in some inability to work effectively. 03 Getting patients back to productive and sustainable work should become a key objective and outcome indicator for all health services, particularly the NHS. All forms of clinical education need to include this aim from their outset, and throughout both undergraduate and continuing training. 04 An important aspect of this emphasis must be the inclusion in the diagnostic process of the social and psychological aspects of an illness as well as its physical manifestations, and treatment should be aimed at ameliorating patients’ ability to return to work as part of returning them to better health. Conversely, increasing the awareness that unemployment per se adversely affects health would help to overcome the isolation surrounding the workless, and help to preempt the vicious circle of unemployment and chronic illness. 28 the employees are different to those of the company, that the dichotomy arises, and so one way to obviate the issue is to remove that distinction. 05 One essential in this regard would be the strengthening of direct links between the NHS and the Department of Work and Pensions (DWP). OH services are often seen as policing workforce sickness to ensure that people return to work as quickly as possible, or are helped to leave if return is seen to be unduly delayed. They are seen to have a strong biomedical bias, that favours the physical aspects of disease and disability, rather than including the social and psychological aspects. Such ‘horizontal integration’ will continue to make the holistic care of the workless (for whatever reason) easier to manage, and would signal the Government’s intentions to continue to tie health and work policies more closely together. Strengthening these links directly would also allow those working in either sector to begin to make the interpersonal contacts that are key to the development of effective and sustainable relationships. ‘Outsourcing’ such joint ventures to external agencies (particularly when they are still being developed) risks broadcasting an entirely different, and less positive message. Overall, OH services are seen as patchy in their availability, partisan in their application, and narrow in the scope of ‘dis-ease’ with which they currently deal. 07 These perceptions could be improved by making OH services more widely available, less focused on the needs of the employer, and more widely based than on OH doctors alone . In terms of their utility, it would be helpful to combine the input end of their function (‘what is going on?’) with the output end (‘what should we do about it?’), and such an approach might also help to establish and maintain the neutrality (real and perceived) of such a service. Prevention is better than cure, even with long term ill health Chronic illness rarely comes completely out of the blue yet our society seems only to consider the implications of illness at work in binary terms: a person can either work, or they can’t. If people who knew that they had a long term condition (LTC) could negotiate much earlier the appropriate changes to their working conditions, then they would be able to lead a much more positive, contributory life to the benefit of society as a whole as well as to themselves and their families. Early intervention is the LTC version of prevention being better than cure. 06 To do this, there needs to be an acceptance on the part of the employer and of wider society that it is normal for the work environment and job roles to change as people’s careers progressed, even if that entails physical change (seating, instrumentation, etc), and changes to the terms as well as the conditions of employment. Such a change would also chime with our changing attitudes to retirement; the same attitudinal changes could apply as age and energy (as well as motivation) affected people’s work abilities, thus helping to maintain people’s presence at work and optimising their effectiveness. Occupational Health (OH) services are currently seen as unwieldy, archaic, and of limited utility. Their position within the health sector is poorly understood, and employers vary in their OH provision. There is confusion about whether OH services are there to help the ill person, or to assist the employer. The needs of the patient are often perceived as opposing those of the employer; rarely are they seen as aligned, and then only when employees have a strong sense of ‘ownership’ of their jobs and their companies. It is when the interests of Occupational health: it is broke, so let’s fix it 29 Health,disease and unemployment: The Bermuda Triangle of society a new burden. Similar logic underpinned responses to the idea of GP as ‘fundholder’ in the field of worklessness; in addition to the perceived lack of interest and/or expertise and/or time, it was felt that there might be political difficulties in allocating public funds to GPs to disburse as they saw fit without much visible accountability. In principle, there was agreement with the move away from ‘sick notes’ towards the idea of defining how well a person was, but there were mixed views about the specific notion, and its practical difficulties in terms of skills, and accountability (including legal liability). 07 Summary of Key Messages There is an inverse relationship between the size of a ‘helping’ organisation and its perceived utility. Dealing with State bureaucracies is seen as daunting compared with working alongside smaller, more focused organisations that are less formal and more human in their scale. This is especially marked when such agencies make use of clients to help in their running. Involvement of this kind seems to help to build up clients’ confidence, and get them re-familiarised with the workplace, as well as promoting the sense of ‘belonging’ vital if sustainable and satisfying employment are to be developed. Where welfare is concerned, small is beautiful 09 There was more consensus concerning the use of GP facilities as a venue for the work and advice required to help the workless get back to work. Their local nature and size and relative informality are helpful, and they could be populated by staff from private and/or voluntary organisations. The idea of linking the tasks associated with the return to work to specific health care issues at a single venue was also appealing. Such agencies are fulfilling a task far more significant than merely ‘signposting’ the journey back to employment, or acting as brokers for available employment, which is how the larger, more impersonal agencies such as Job Centre Plus are perceived. In an ideal work/health world, employers should: The flexible workplace: oxymoron or aspiration • • 08 Clearly, whilst there is an economy of scale in providing services that help people back to work, the clear message from this work is that any benefits of size are more than offset by the disbenefits in terms of intimidation and lack of involvement that go with large scale. Allowing the commissioning of such services by public agencies through smaller, more nimble (yet accountable) private and voluntary organisations may overcome this apparent conundrum. • • Be prepared to show flexibility in the working conditions (physical and temporal) offered Take a long term view of staff morale and wellbeing: loyalty breeds profits Offer appropriate occupational health support Tailor work tasks to the abilities of their staff, and be prepared to modify these Whilst there may be practical difficulties in implementing all these aspirations in all companies, it is clear that companies that treat their staff well and are prepared to be flexible have reduced staff turnover, sick leave, and absenteeism. Such an approach would need to be ‘lubricated’ by simplifying the complex and bureaucratic tendering processes that currently discourage many suitable organisations from offering their services in the first place. 10 However, predicting the absence of sickness or a There was little consensus as to the place of general practice in solving the mystery of the Bermuda Triangle. There was not much support for the idea of letting GPs act as case managers in the field of unemployment and the return to work, partly because of their perceived lack of skills and interest, and partly because their approach might be medicalising a social issue. When the macro economy is struggling, persuading Governments to make this same leap of faith may be as difficult as doing it with reluctant companies. reduction in turnover require a leap of faith, and such faith is often the missing ingredient in introducing some of these changes. This may be one area where legislation concerning the employee benefits mentioned above may be appropriate. The role of general practice Others liked the notion, but felt that GPs were already overwhelmed with their current tasks without taking on 30 14 One possible lever for change raised by this study is the Health and Safety Executive (HSE). Currently, most HSE recommendations are based on physical changes needed to make the working environment safer for employees. However, with the rising awareness of and interest in work related stress, it may be that increasing the profile of the HSE in this area could bring sufficient pressure to bear on employers on their prevention and more effective treatment of stress. Fear of liability and of compensation may be a useful adjunct to the moral high ground. The eternal welfare conundrum (make benefits too good, and nobody wants to give them up; make them too poor, and people suffer), has always suffered from its position trapped between opposing political philosophies. In the current political climate, we may have a rare opportunity to allow it to escape and be solved. Incentivising the return to work 11 It should be possible to introduce some kind of tapering scale as health and workfullness improve, by which welfare payments reduce as ‘real’ income grows without any ‘step changes’ being triggered in a way that avoids the classic ‘benefits trap’. At the ‘front’ end of worklessness and ill health, helpful interventions currently happen far too late: companies rarely identify potential health or performance issues in time to deal with them while employees are still working; state run interventions to get people back to work or to stabilize their payments happen only after they have been workless for several months. 12 What is required is genuine early intervention, preferably in time to preempt the whole workless phase, particularly when predictable health issues are causing the problem. There needs to be increased awareness of how important appropriate prescribing is to helping people return to work as quickly as possible. It would be better at the outset of such a condition to discuss with one’s employer the possible alternatives, and arrange them so that work of some kind could be set up in a sustainable way that maintains continuity of income for the employee, continuity of output for the employer, and one less person on welfare for the State. Of course, measures would have to be taken to ensure that employees would not be disadvantaged by their employer for their openness. 13 It may be that medical support for such interventions could be an extension of the ‘fit note’ idea, using the GP’s imprimatur to validate such discussions, and preempt any punitive reaction by less enlightened employers. However, in the current system it requires an enlightened employer to see that the long term advantages of looking after employees far outweigh the short term costs of keeping them at work at a lower level of productivity whilst their problems are being resolved, or accepting into the workplace an employee with limited capacity who may need physical adaptations as well as concessions in terms of working hours, job role and so on. 31 Health,disease and unemployment: The Bermuda Triangle of society This project started by looking at the links between ill health and employment, under the working title of ‘work as a health outcome’. It soon became apparent that the issue was more complex than a simple linear relationship between these two, and the concept of the interaction between health, illness and unemployment arose, with a powerful image emerging of the Bermuda Triangle of isolated people invisible to the outside world, and almost impossible to rescue. The paper used a variety of methods to deconstruct some of the issues, and then reconstruct them through a series of interviews and seminars. 08 Conclusion The issue is too multifaceted to be able to produce a simple set of recommendations. Dame Carol Black’s Report has suggested a number of specific changes, some of which have been implemented. However, the overall impression taken away from the interviews was that uptake of the Report’s findings had been limited by lack of political interest. Thus for instance, one of the Black suggestions was the extension of OH services to cover organisations that would not currently be in a position to use them. The mechanism mooted was the introduction of telephone based OH assistance, which should be available to all employers. Whilst the idea is intriguing, and would clearly be useful, the problems with such a scheme lie in its extent. A telephone based service can never be substitute for proper physical examination, and the level of coverage required to make this anything other than a symbolic gesture is probably not feasible in the short term, especially in straitened financial circumstances, without the political clout to make it really fly. 32 Even with such a careful developmental approach, issues might still be raised about funding and organisational format; could employers be persuaded to pay for a service that was not beholden to them? Would it be reasonable to expect such a service to part of the NHS itself ? Is there a viable argument to suggest that users of such a service should contribute to its running costs? On the other hand, an approach that makes use of existing facilities is relatively cheap, and incremental, evolutionary development is usually more easily assimilated into the national (as well the professional) psyche than expensive, disruptive (and professionally threatening) large scale change. With this in mind, it may be that we should looking at basing relatively low level OH services in community settings (such as NHS facilities including community clinics and GP surgeries), to be run by a combination of staff who are able between them to cover both the assessment (‘diagnostic’) and delivery (‘treatment’) ends of the service. The use of that metaphor is ironic, and perversely highlights that it would be preferable for such a model to encompass the medical model without being confined to it, so that the other psychosocial factors that influence the interaction of work, health and illness in a far less linear way than simple ‘diagnosis’ and ‘treatment’ may be incorporated into the system. Funding also raises the issue of the place of the State in dealing with the Bermuda Triangle. Much of the work of both this study and its predecessors is predicated on the basis that lifting the fog of confusion that surrounds its murky centre would liberate the capacity and capability of those who were trapped there, thereby improving their situations as well as increasing the stock of society at large. The spending required to achieve this should be seen as an investment, not a cost, for in unraveling this knotty problem, not only will the individuals involved benefit, but the first steps will have been taken to change for the better Society’s paradigm of values where work, health, and illness come together. Such services would need to be seen as neutral agencies, looking after the needs of their attendees rather than those of the employing organisation, and this suggests a place for the private and voluntary sectors, with their small scale and local ownership. 33 Health,disease and unemployment: The Bermuda Triangle of society 09 Footnotes 1 2 3 4 5 6 7 8 9 Health, Wellbeing and Work Directorate 2005 32 McGee, Bevan and Quandrello pp 52 Boorman Review 2009 Exec Summary pp 2 34 RCGP. National Education Programme for General 33 Mowlam A, Lewis J. 2005 pp 2 Department of Health. 7th Dec 2009 practitioners. See http://www.rcgp.org.uk/news_and_events/ courses__events/health_and_work_training.aspx Marmot review 2010 pp 9-20 http://www.ucl.ac.uk/gheg/marmotreview/FairSocietyHealthyLives ExecSummary 35 Black C. pp17 36 Marmot Review 2009 pp 3 Rose D. 11th February 2010 37 Constable S et al. 2009 pp 6 Lichfield P. 2007 pp 3. 38 HSE. Health and Safety Statistics 2008/9 National Statistics DWP administrative data 2007 39 Vaughn-Jones H, Barham L. pp 38 HSE. National Statistics, Health and Safety 2008/9 40 May 2009. pp 4 Department of Work and Pensions, Vocational Rehabilitation 2004 pp 16 41 Palmer KT, Cox RAF, Brown I. 2007 pp 77 10 Aylward M. 2003, pp 287-299 42 Odonnell M, Reymon J. October 2009 11 ARMA 2007 pp 3 43 DWP 2009 http://research.dwp.gov.uk/asd/stats_summary.asp 12 See www.fitforworkeurope.eu 44 Wallop H. The Daily Telegraph 1st Feb 2010 13 Department of Health, Musculoskeletal services framework 45 SCMH. Briefing 40: Removing Barriers. July 22nd 2009 2006 46 Brown J, Hanlon P, Turok I, Webster D, Arnott J, Macdonald 14 ARMA 2009. pp 3 EB. Oct 2008:1-7 15 NAO 2009. pp 5 47 Bewley H, Dorsett R and Salis S. DWP Research Report 601 2008 16 ARMA 2009. pp 5 17 Department of Health, New Horizons 2009 48 Adam et al. DWP Research Summary 498 2008 19 http://www.direct.gov.uk/en/DisabledPeople/HealthAndSupport/ 50 Black C. pp 17 49 ARMA Joint Working 2006 18 Perkins R, Farmer P and Lichfield P. December 2009 pp 12 MentalHealth/DG_179325 51 DWP Access to Work Statistics January 2010 20 Fitch C, Daw R, Balmer N, Gray K and Skipper M. 2008 52 Marsden D, Marcioni S. pp 1 21 Sainsbury et al. Research report no. 513 2008 53 Ibid pp 17 22 SHiFT Line Manager’s Resource 2007 pp 6 54 PricewaterhouseCoopers 2008 pp 7 23 Fitch C, Daw R, Balmer N, Gray K and Skipper M. 2008 pp 11 55 Kennedy I. 2009 24 DWP. 56 Kanovos P, Manning J, Taylor D, Schurer W, Checchi K. 2010 25 RCPsych position statement 2009 pp 7 57 Wadell G, Burton K. 2006 pp 146 26 Perkins R, Farmer P and Lichfield P. December 2009 58 Constable S et al. 2009 pp 6 27 DH New Horizons 2009 pp 36, 42 59 Black C. pp 76 28 SCMH. Briefing 40: Removing Barriers July 2009 60 PricewaterhouseCoopers 2008 pp 7 29 Wilson A. 2007 30 SCMH. Shepard G, Boardman J and Slade M. SCMH 2008 pp 5 31 BMA press release April 20th 2010 34 Health,disease and unemployment: The Bermuda Triangle of society 10 Appendices Appendix 1 Work Outcomes Interview Schedule Interviewees asked about their name and position and introduced to the project in a preamble that confirmed that participants understood the objective of the review and their willingness to contribute. Questions 9. What (if anything) do you know about Carol Black’s ‘Working for a healthier tomorrow’, and the Government’s response ‘Improving Health andWork:changing lives’? (try to get their sense of these: recommendations, opinions on their relevance, usefulness, etc) 1. Personal details and role in your organisation (Brief outline of professional role and career path to date, Job title, role, CV, ambitions) 2. How (if at all) does your organisation’s work impinge on the ‘world of work’? (specific work in this area, keeping people at work, returning them there, etc) 10. Given a clean slate,what would you do to make work a health outcome? (personally and organisationally) 3. What do you think is the relationship between health and work? (personally and organisationally) 11. Have you any other thoughts or observations? 12. Closure (re-iterate confidentiality, future progress of project, feedback from process) 4. What are your views on the notion of ‘work as a health outcome’? (irrelevant, exciting, obvious; explore in some detail) 13. Emerging themes and messages (main issues, plus any other observations (e.g. interview dynamics etc)) 5. Are there any areas of ill health where this is more (in)appropriate? (musculoskeletal, mental health, social, disability, illness linked to unemployed etc) Jonathan Shapiro & Julia Manning October 2009 6. How could NHS mechanisms be better used to get people back to work more quickly,and in a sustainable way? (role of GP, clinical services (e.g. physio), referral process, 1°/2° care interface issues, technological solutions etc) 7. How could non-NHS mechanisms be better used to get people back to work more quickly,and in a sustainable way? (local authority, social security, voluntary/private sector: health insurers, employers, etc) 8. Have you heard of the ‘fit for work’schemes? (if so, can you describe them? Who should be responsible for their implementation? On what (if anything) is their success contingent?) 35 Health,disease and unemployment: The Bermuda Triangle of society 10 Appendices Appendix 2 Interviewees Name Title Organisation Samantha Peters CE British Society of Rheumatology Leonie Dawson Professional Advisor Chartered Society of Physiotherapy Rachel Hunter Clinical Director RehabWorks Delia Skan HSENI, civil servant Faculty of Occupational Medicine of the Royal College of Physicians Ann McCraken Chair International Stress Management Association UK Prof. Alan Maryon-Davis President Faculty of Public Health Dr Jed Boardman Consultant Clinical Psychiatrist SCMH Royal College of Psychiatrists Prof. Jonathan Ayres Environmental & Respiratory Medicine Professor and Director of the Institute of Occupational and Environmental Medicine University of Birmingham. Col.Malcolm Braithwaite Army Professor of Occupational Medicine and Honorary Senior Lecturer University of Birmingham. Mike Sobanja Chief Officer NHS Alliance Karen Charman Head of Employment Services NHS Employers Steve Shrubb Director of the Mental Health Network NHS Confederation David Colin Thome National Director of Primary Care Department of Health 36 Name Title Organisation Ros Meek Director Arthritis and Musculoskeletal Alliance Brian Kaiser CE British Occupational Health Research Foundation Helen Bunyan Membership Manager National Rheumatoid Arthritis Society Steve Swan Director of Welfare to Work Tomorrow's People Prof. Bob Grove Joint Chief Executive SCMH Paul Corry Director of Public Affairs Rethink Richard Frost Vocational Services Manager WorkWays David Hawley Operation Manager Working Links Andy Jones Medical Director Nuffield Health Dudley Lusted Head of Corporate Healthcare Development AXA PPP Healthcare Dr Mike O’Donnell Chief Medical Officer UNUM Helen Merfield CEO HCML Bronwen Williams Occupational Therapist UK QBE Kelly Du Preez Physiotherapist UK QBE 37 Health,disease and unemployment: The Bermuda Triangle of society Bewley H, Dorsett R and Salis S. 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The Royal Society of Medicine: London: 2009. 41 Health,disease and unemployment: The Bermuda Triangle of Society Jonathan Shapiro Emma Hill Julia Manning The measure of successful NHS treatment is increasingly not a case of whether a process target has been met, but whether that treatment was a success. In other words, what was the final ‘outcome’? Did the patient get better and stay well? Added to this is the crucial question for the working age population – how quickly did they get back to work? This project looked at whether being at work is or could be considered a clinical ‘outcome’ of successful health treatment. Can keeping people in work or returning them to work find its place as an indicator of a successful health intervention on which professionals or institutions can be measured? We make fourteen recommendations and observations that we believe will be of value to policy makers. The overall challenge is increasing the visibility to frontline professionals and employers of those trapped in the ‘Bermuda Triangle’ of illness, wanting to work and unemployment - rescuing or preventing them from getting lost there in the first place. 2020health.org 83 Victoria Street London SW1H 0HW T 020 3170 7702 E admin@2020health.org Published by 2020health.org © 2010 2020health.org Price £10 ISBN 978-1-907635-06-9