Bringing Books to Life Shared Reading NSW – Vision Australia ‘Reading for Wellbeing’ Telelink Project Report 2012 – 2013 ‘I can no longer see to read and I really miss it. If somebody could just read with me like this for one hour each day then I would be very happy.’ Shared Reading Telelink participant i Bringing Books to Life For oft, when on my couch I lie In vacant or in pensive mood, They flash upon that inward eye Which is the bliss of solitude; And then my heart with pleasure fills, And dances with the daffodils. (From ‘I wandered lonely as a cloud’ by William Wordsworth) ii Bringing Books to Life Summary Shared Reading, as a concept is both brand new and ancient. The power of books and words to be involved in the wellbeing and regeneration of people has historical precedents dating back to Ancient Greece. Apollo was god of both medicine and poetry, with the implication that they share an indivorceable association. Aristotle introduced the notion of Catharsis – of purging oneself of fear and anxiety through the action of drama and poetry; and many writers and readers throughout the ages have waxed lyrical about the effect of Literature to provide points of connection, assuage loneliness and give us a vocabulary with which to articulate our joy and sorrow. As C. S. Lewis said ‘we read to know that we are not alone.’ And anybody that reads will tell of the benefits that they personally derive from it. For some however the reading life is prematurely or unfairly curtailed. It may be as early as their school days, that due to slower development, lack of perceived relevance of Literature being read or a fear of appearing stupid, people switch off or disengage from reading – the demons so tightly bound into the very fabric of books that adult life is navigated in relative illiteracy. For others, some chance occurrence – an illness, injury or chronic condition prevents their access to Literature, the motivation to read a casualty of circumstance as priorities commensurate with survival supersede it. It is to the latter that this report turns its attention. For the participants of Vision Australia’s (VA) Telelink program, their weekly activities represent a lifeline. Connecting people across Australia (some in remote regions) via telephone interest groups, VA groups are able to moderate the effects of isolation that can be so prevalent for people living with visual impairment. VA’s Telelink program was an ideal experiment to test the effects of Shared Reading on a population at risk of social isolation (with some housebound). A three-week pilot project was set up as a special interest program for participants with the aim of facilitating their access to Literature and providing a gateway to the range of benefits that this offers. As will be apparent throughout the report and in the final conclusion, Shared Reading exceeded expectations. Two more projects were organized for the Telelink special interest program following a successful pilot, with participants reporting: a feeling that they gained iii Bringing Books to Life something back that had been lost, a greater sense of purpose, improvements in memory and mental stimulation, a sense of meaningful connection, greater relaxation and a new or renewed appreciation for Literature, along with increased motivation to seek out assistive technologies in order to incorporate reading into their lives. The following report looks at the process of Shared Reading as a Telelink project, its specific aims and objectives, its findings and the challenges with running groups of this type. It is intended as both a validation of the efficacy of providing Shared Reading groups to population at risk of isolation and as a guide for the development of future projects of a similar nature. As project manager and facilitator of this particular Shared Reading project, all that remains for me to say is how enjoyable – on a personal level – I found the experience. The discussions added new dimensions to Literature that I thought I new well and the stories shared with participants contributed to a special sense of community within each group and I would like to thank all of the participants for their contributions to making the group a success. Best Wishes Christopher Smith Project Manager Shared Reading NSW iv Bringing Books to Life Introduction Shared Reading NSW Shared Reading NSW is an organisation that aims to develop community and enhance individual well being through the provision of literature based interventions collectively known as Shared Reading. Shared Reading is a unique social activity that aims to make Literature accessible for people regardless of their level of literacy; confidence with reading; background; age; level of Health or social circumstances. In Shared Reading sessions people are encouraged to examine their responses to a piece of Literature as it is read aloud in a group; and– at their own pace – to share the thoughts, feelings and experiences that the text stimulates. As discussions develop, points of connection emerge between the perspectives of the individuals, which in turn build layers of meaning for the text that have real significance to the lives of the participants. Vision Australia Vision Australia is a partnership between people who are blind, sighted or have low vision. We are united by our passion that people who are blind or have low vision will have access to and fully participate in every part of life they choose. Vision Australia will achieve this through creating a community partnership of knowledge, skills and expertise to enrich the participation in life of people who are blind or have low vision and their families. We will ensure that the community recognises their capabilities and contributions. About the partnership Shared Reading was identified as an activity that was consistent with VA’s mission of providing stimulating and meaningful activities for people at risk of isolation due to visual impairment. It aligned with VA’s facilitated program of activities delivered by Tele-link to people across Australia. Shared Reading NSW then created a specialized Shared Reading project for Tele-link delivery as part an extra-curricula special interest program. The project was named ‘Reading for Wellbeing’ v Bringing Books to Life Project Aims and Objectives The ‘Reading for Wellbeing’ project was developed with the following main objectives in mind: Overall aim To improve the wellbeing of visually impaired people at risk of isolation. Specific aims • • • • • To explore whether Shared Reading is an appropriate activity for a Tele-link group. To provide a stimulating, interesting activity facilitating social interaction between participants. For participants to discover/rediscover reading Literature. To Measure what impact Shared Reading has on the wellbeing of people at risk of isolation due to visual impairment. To encourage participants to seek other support/services that aid learning, community participation and/or wellbeing. Objective To provide Shared Reading activities for a specialized Tele-link program for people at risk of isolation due to visual impairment. vi Bringing Books to Life Timeline The project was initiated with a pilot phase of four weeks from Jan – Feb 2012, the success of which lead to two further special interest Reading for Wellbeing courses in Jan 2013 and July 2013. Evaluation process The project was monitored by using a tri-evaluative framework consisting of feedback from: • • • The Tele-link project coordinator at VA Group participants for each separate project The Shared Reading Facilitator The participants Participants were sourced from members attending existing VA Tele-link activity groups such as Music Appreciation and Current Affairs. vii Bringing Books to Life Meeting the project aims Delivering Shared Reading activities Why have Shared Reading? Much research has shown that reading has a number of potential benefits for people. These benefits are often associated with educational outcomes and professional advancement, with literacy level being a good indictor of a successful career. There is now however an increasingly comprehensive body of research indicating that there are wider benefits that reading – especially reading ‘Literature’ – may have on people’s psychological, social and even physical health. Shared Reading activities aim to ensure that these benefits can be accessed by people regardless of their level of literacy, confidence with reading, level of health, age or social circumstances. What is Shared Reading? Shared Reading refers to techniques and interventions that aim to make reading – especially reading Literature – accessible to people who may face barriers to reading such material. It is usually conducted in a group setting whereby a piece or pieces of Literature are read out loud in the group. Sessions are led by a trained facilitator who, at appropriate times will stop the reading and encourage discussion amongst participants. Gradually – guided by the facilitator and as confidence is developed in the group the participants will begin to share personal thoughts, feelings and experiences stimulated by the material being read. It is in light of the insights of the group that the material is understood. What did Shared Reading offer Vision Australia? Shared Reading sessions offered VA clients an opportunity to reengage or engage for the first time with Literary texts that, as a consequence of chronic visual problems they had lost connection with. Many participants remarked that as their eyesight had diminished they had withdrawn from reading. Some of the participants had a real sense that Shared Reading sessions were ‘giving them something back’. viii Bringing Books to Life Project Specific Aims Please see the table below for details of how the Reading for Wellbeing project faired against its specific aims. Please note that he system used here is a Green Amber or Red to denote the relative success for each project aim. Green = Aim met with no challenges Amber = Aim met with some challenges Red = Aim not met Project Aim To explore whether Shared Reading is an appropriate activity for a Tele-link group. Green, Amber or Red Amber Comments Challenges encountered here were mainly technical and logistical in nature. Some participants experienced static on the line from time to time which made listening to the story difficult, also noise in the background in some instances contributed to some difficulty for participants in listening to the stories. It is assumed that whatever the content, owing to the nature of tele-link groups these challenges would be encountered. Participants also remarked that a system of enabling them to hear who was talking (by people saying their name before commenting) would have been useful to know who was saying what – this will be incorporated into facilitators practice for future tele-link groups. Overall the tele-link format worked very well for Shared Reading. Participants commented that ‘you got a sense that everyone was connected because they were listening to the story’. Participants also enjoyed the opportunity to get to know other participants. To provide a stimulating, interesting activity facilitating social interaction between participants. Green Participants across all three separate courses remarked that one of the best aspects of Shared Reading was listening to each other’s points of view. Participants remarked that sharing stories really added to the overall experience. Lots of rich themes were brought up in discussion, such as: Tolerance, differences between generations, personal choices VS circumstance, how much you ix Bringing Books to Life should listen to others, concentrating on the present, the ways people show love, the types of love, adapting to change, loneliness and fear, money worries, selfishness, greed, human nature and happiness. Many participants remarked that in their day to day life they never get the chance to discuss such things and that they really liked getting to the heart of a story or poem. ‘It felt as though everyone was interested in the project and had things to say’. Group participant For participants to discover/rediscover reading Literature. Green Participants were often surprised by the stories and poems read in the group. The short story form worked well and there was a real sense of satisfaction in the group upon finishing a story each week. ‘I really like to get the end of a story, I can’t be left hanging all week, wondering what will happen’. Also the session reintroduced some participants to the short story as a reading choice: ‘I never used to read short stories, I always hated them, and these sessions have made me love them’. ‘Whenever I read short stories before I always found a sort of darkness in them, but the stories we have read have not had that, they have been positive’. Participants were often keen to know more about the authors and remarked that they would get books from the library service offered. To Measure what impact Shared Reading has on the wellbeing of people at risk of isolation due to visual impairment. Green Throughout the sessions, many of the participants talked about what they had lost both in the process of ageing and since experiencing loss of vision. The discussion was sometimes focused around things that people had formerly taken for granted such as reading, or looking at flowers. One participant remarked at the sadness they felt at no longer being able to see their partner. Although this was only a small part of the multitude of discussion points throughout the project, it seemed very important as a group to provide each other support around their visual impairment and was an element of connection that they all shared: x Bringing Books to Life ‘It is nice to know your not the only one going through this, not the only one missing things.’ Group participant Similarly the group gave examples of how they were able to transcend their circumstances and felt a lot of pride in things like ‘maintaining independence. Being able to attend activities and focused a lot on how lucky they were that other faculties were still present (i.e. mental and physical capability). Participants agreed that Shared Reading had given them something that they seemed to be missing. One participant remarked that the sessions stimulated memories: “I used to live on a farm, when we read that story (pennies in the dust by Ernest Buckler), I was right back there, in the dust, with the animals, I could really picture it all.’ One participant also said that she could see in pictures what was being described. Another participant suggested that the sessions had given her an added purpose “I wasn’t feeling very good earlier, I have had a bit of a cold and have stayed in bed but I wouldn’t miss the group, The session is relaxing and you feel like you are involved even if you are not talking’. Other participants said that it stimulated the brain ‘I love these session, they always get you thinking, it is really good for the grey matter’ Social interaction was also seen as a key aspect of the group, with participants remarking how the sessions encouraged communication and learning about each other. ‘I don’t get out much anymore, so I really like the contact with other people. It feels like you really get to know people in the group.’ Group participant In conclusion Shared Reading seemed to have a big impact on the wellbeing of participants – allowing them respite from isolation, giving them purpose, aiding relaxation, offering support and solidarity for difficulties, allowing them to slow down, concentrating on positive factors in their life and having fun and enjoyment. xi Bringing Books to Life To encourage participants to seek other support/services that aid learning, community participation and/or wellbeing. xii Green Shared Reading sessions aroused an interest in participants to use adaptive technology and to make use of the Vision Australia Library ‘Participants found it to be inspiring and encouraged them to seek further exploration of their interests.’ VA Project Manager Bringing Books to Life Beyond the Project Aims Certain effects that Shared Reading had on participants were not anticipated prior and so did not form part of the projects aims. Some of these effects are presented below: It Raised awareness of different perspectives Many times when discussing material people would change their views throughout the session. As more about the characters or situations became known and the richer the discussion became, the more motivations, influences and consequences could be explored. For instance, when discussing the curmudgeonly behaviour of a grandfather towards his granddaughter (in Doris Lessing’s Flight), most of the group suggested that he was a bitter, jealous old man. As more became known about his feelings and his past however a more sympathetic reading emerged. Such softening of perspective to characters was often then translated to people in participant’s own lives – they were able to see the behaviour of friends and family from different perspectives and with different eyes. One participant remarked that they felt that they did not receive much affection from their family but after reading the poem ‘those winter Sundays’ by Robert Hayden said that they always knew they were loved because there was food on the table and a warm bed to sleep in. Different approaches to raising children were also explored in the short story Welding with Children by Tim Gautreaux. Participants discussed their perceived successes and failures before concluding that parenting is a succession of doing the things ‘that you think are right in the situation’ and ‘using your judgment, which is sometimes good and sometimes bad.’ Gaining new perspectives seemed to equip participants in the group with new tools for dealing with situations. In one session after reading Leisure by WH Davies, participants discussed how the poem seemed to be telling you to slow down. This was something that the group related to, acknowledging that it was important to take time to do things for themselves. They also stated that their attendance in this group was important for them. Gave people a space to share their sorrows and happiness Some of the issues, characters, situations or words referred to in the material read caused some strong emotions amongst participants. Often participants would talk about a sense of grief or loss about a xiii Bringing Books to Life particular person or event in their life, as well as moments of joy or funny stories from their experience. The support of the group members and the relaxed, informal nature of participation seemed to contribute to members feeling comfortable enough to willingly share these experiences with each other. Sometimes participants were going through similar experiences and could support each other or give each other strategies on how they coped. For instance when discussing the theme of isolation (a recurrent theme in groups) participants often remarked on how they overcame the barrier of vision loss and associated low mood: ‘I make myself go out, even if I don’t want to because I always feel better after I have been out.’ The time and space to reflect on aspects of each other’s lives gave the participants a sense of community and developed a way for them to understand some potentially inaccessible material. For instance when reading the poem The Self-Unseeing by Thomas Hardy, the initial response from the group was silence, until someone stated that the poem made them feel that ‘time was passing’ and that often things are remembered ‘in a better way than they appear at the time’. This lead to discussions about living in the moment, not having regrets and cherishing the important things in life which made one participant remark ‘I had no idea what the poem was on about at the start, and now I understand.’ The very act of reading and discussing the emotions contained in the poem and what emotions this elicited in the participants enabled them – together – to form a deep understanding of a very difficult piece of poetry. xiv Bringing Books to Life Challenges As with the set up of any project the ‘Reading for Wellbeing’ initiative had its fair share of challenges and potential for improvement: Facilitating tele-link groups When evaluating the project group participants suggested that it was sometimes difficult to work out who was talking, it was felt that the facilitator could have asked at the beginning of each session that people state their name prior to making a comment so that it would be easier to understand who said what, and where remarks were coming from. Interference Participants generally understood that no technology is ever perfect and there were instances where static was affecting their experience in groups – however this was very rare. More obvious were instances where there might be a radio or television on in the background of somebodies house that would be a distracting influence – it was felt that a criteria of no background noise could be applied to people wishing to take part owing to the fragile nature of the listening process. Overall the nature of the challenges faced were deemed able to be met with modest adaptations to the process of running groups and only very minimally affected participants enjoyment of sessions. Not having the material to read Usually in Shared Reading sessions, participants are given a copy of the text to follow (if they wish) as the material is read. Owing to the fact that this was a teleconference group and the participants’ visual impairment, this was not possible. This meant that it was not always easy to refer discussions back to the text. It did not cause so much of a problem as participants’ remarked that they enjoyed that state of concentration that they got into. In future sessions if it is appropriate and useful perhaps VA’s assistive technology program could be utilized in a way that provides people with options for following the text if they wish. xv Bringing Books to Life Conclusion Overall Shared Reading proved to be a great success for Vision Australia’s Telelink special interest program. The participants found a variety of benefits and requested on numerous occasions that sessions form a part of the ongoing curriculum that is offered by VA’s Telelink project. Participants experienced a whole range of different emotions and shared with each other myriad reposes to the literature that they found at turns stimulating, exciting, relaxing, life affirming, sorrowful, dark, inspiring and above all interesting. Having conducted Shared Reading groups in both the UK and Australia, it is the opinion of the facilitator that Shared Reading is an extremely useful tool against the risk factors associated with isolation an social exclusion. Building community over stimulating texts offers an outlet for people to learn, share creative ideas, release tension and pain, develop friendships and ask questions about life that is very difficult to replicate with other activities. These sessions have proven that even people who have no previously stated interest in reading literature will find some value in attending groups that build cooperation, raise self-esteem and generally improve wellbeing of participants. xvi Bringing Books to Life Index – List of works read Short Stories The Evolution of Knowledge – Niccolo Tucci Welding with Children – Tim Gautreaux Powder – Tobias Wolfe Tea with the birds – Joanna Harris Through the tunnel – Doris Lessing Flight – Doris Lessing Pennies in the Dust – Ernest Buckler All the years of her life – Morley Callaghan The lottery ticket – Anton Chekhov A pair of silk stockings – Katherine Chopin Poems The self-unseeing – Thomas Hardy Leisure – W H Davies xvii