WAndsWOrth Issue 2 Autumn 2010 neWsPAPer Advertise here 020 8516 7785 To Advertise Call Atheldene Centre ClOsin G We WAnt OUr Centre BACK d n a s r e r a c , Staff g n i e b e r a clients S E S A B o t t u kicked o y a t s o t t n a but many w 2 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. WAndsWOrth neWsPAPer COVer stOrY “People know what What they want and how We Want to spend the money” 1. Open it up to the community Just before going to press a meeting was held on the 23rd september in the dining hall in the Atheldene between managers Will Olmi, mark honan, staff and the clients. it was stated that the centre would be staying open past 31st march 2010. We are unclear as to the reason why? 2. Let the first floor out for offices 3. Keep the bottom floor open for people with disabilities 4. Specialist services for people with complex needs 5. College courses for 18+ Are there going to be meaningful activities for the clients? 6. Proper canteen, new drink and snack machines 7. Older people can come 8. Clubs and groups can use it, to hold meetings 9. Hire it out in evenings and weekends 10. Everyone can help repair and decorate it 11. Caretaker could live in the flat, or rent it out to a couple We want to know how much is in the amenities fund. 12. Partition the stairs off for easy access to the flat from the ground 13. Raise money for a new roof WAndsWOrth neWsPAPer Issue 2 Autumn 2010 | 3 don’t be shy, Get in touch. We want your opinion. COVer stOrY Hannah Baker I helped with the Atheldene story and I made sure everything came together for the Word Up newspaper. I work at Wandsworth Care Alliance. I support people with learning disabilities. Jason Samuels: I interviewed 32 people for the Atheldene cover story. I work at the Atheldene Centre and as a Travel Mate. Let’s get straight to the point. Councillors, Directors and a lot of managers you are not ready to hear what people with learning disabilities are trying to say. You need to be ready. We are all human beings and it is time to start hearing each other for REAL. We are talking about peoples lives here. “A lot of people said to me, I want to know why they didn’t tell us before so we had a chance to speak out. It happened so fast but they have been planning it for a long time”. It’s not fair on the clients. Why didn’t managers fight to keep Atheldene open? I want to know the true answer of why it is closing down. It is good the Atheldene is big. It gives people space to move around instead of staring at four walls. T he Atheldene Centre on 305 Garratt Lane has been open for 34 years. It is well used by different groups in our community. School groups, dance groups, carers, older people, staff. There are computer courses, ceramics, art and cooking classes. It’s a place where people come to relax, feel safe, or go out with staff so they can learn to become more independent. What is a day centre for? The Centre is located with easy they take good care of me,” access to buses 44, 77 and 270. says a woman coming to the Clapham Junction and Tooting Atheldene for many years. Broadway underground are all close by. It is a welcoming centre for people with learning disabilities to meet friends and learn life skills. Clients say they know shop keepers, doctors, dentist and hospital, they are all close by.“They all know me, In January 2010 all staff were told that the Atheldene will be closing for good. “It all happened so fast”, says one woman who helps people at the centre. Many people have already lost their jobs and there will be more staff cuts. 4 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. WAndsWOrth neWsPAPer COVer stOrY “I think there’s a lot of people who don’t have a voice”. WhY is it ClOsinG “This is hard on the clients, one minute she (staff) was there, next minute she’s gone. She was a lovely lady, she knew what she was doing and a lot of people confided in her”. Some staff are unhappy about the closure but they do not want us to use their names as they are afraid of losing their jobs. The council’s plan is to move people out of the Atheldene and open up other places in Putney, Wandsworth Common and Tooting. Andrew Pook, a staff member for 30 years says, “The new bases at Putney and Wandsworth Common are isolated and in need of plenty work. Valuing People Now was so people could be out in the community more. But the community does not always accept them. The clients were not asked if they wanted to move. I thought the point of Valuing People Now is to give people more choices”. At the time of writing this article, Wandsworth Common Residents Association said no to the move. V aluing People Now is a government three year big plan to improve the lives of carers and people with learning disabilities. This plan on paper looks good but what happens after three years, and what about the people that do not fit into this plan? Everyone is different and this plan will not suit everyone. The plan says: “This strategy is inclusive of those groups who are least often heard and most often excluded”. “I did not even know the Atheldene was closing”. Staff at a home where Atheldene clients live – But yet VALUING PEOPLE NOW does not say day centres should close. It says local councils must make sure people with learning disabilities and their families should have more opportunities for better lives. That includes giving clients a choice, or involving them in important decisions like where their centre should be based and what it is used for. WAndsWOrth neWsPAPer Issue 2 Autumn 2010 | 5 don’t be shy, Get in touch. We want your opinion. COVer stOrY my friends are here Chris Albury, supports Family Carers and clients at Mencap. “Their concerns about the new hubs are health and safety,staffing levels and if people will be accepted. Our office at Atheldene is based near the managers so communication is direct, we help to prevent crisis, we can get on the case straight away. Staff ask us for help a lot”. “i like it here, i want to keep it open. But the art class does not have paints anymore or paper.” matthew “People with special needs get a raw deal. You build them up and say you can do this, you can do that. At the end of the day it’s not their choice. None of it is. Regardless of what we think or Jason Cochrane thinks, the decision is already made. It’s almost like being made redundant”. Julie Maguire. She is a carer and used to drive the green buses and volunteers for Gateway clubs. Many staff say - The land is very valuable. It benefits the council to sell the building. Staff - “There is a lot of pressure from above. Things are different now. People are not communicating”. Staff - “It’s not fair on the clients what is happening”. Staff - “If you want my honest opinion, I think the council is doing it for the money. They let the building go”. Client - “I have been coming to the Atheldene a long time. It’s fun and I’ve met lots of friends here”. It’s good here because my boyfriend is always at St. George’s and it is close by, he is in there all the time. We have been together for four years and we are going to get married. A Manager and Assistant Director of Adult Social Services say - The decision to close Atheldene was based on the Paradigm Review 2006 HUSH HUSH Fuji, Client - “We can’t have people going to different places. This place (Atheldene) is helpful to everybody”. Client - “It’s got to do with the money. We want to keep it open. We would like answers. It’s sad”. On page 40 of the Paradigm Report 2006 it states, “There should not be a closure plan for Atheldene.” “Someone with autism, routines are very important, we are talking about peoples lives here”. A carer “For as long as I have been working with people who have learning disabilities, there are always changes being made and nobody is told about it. I am worried about it closing”. Marie Woods has been helping people with learning disabilities 6 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. WAndsWOrth neWsPAPer COVer stOrY Shirley, Terry and Connie a Group of friends: “No one told us where we are going next. We would like answers. We think it’s a good place here. Everything you need is close by, we want to stay together”. Amazingly it took the Word Up team, 2 weeks to interview 27 people. A total of 46 people were interviewed between July and September What the Managers and Directors should do now. Tell the truth to people. Ask clients what they really think and what they’re feeling. Sit down with them and let them ask you everything they want. “Jason my brother absolutely loves the Atheldene. He’s always loved it. It’s like a big social for him. It was like a community. He’s known everyone for many years, all the people there are his friends. No one is giving you the answers. There is no one to answer these questions”. Listen to the staff and carers. (They know more what they’re talking about because they’re with the clients most of the time). Ask them to tell you their real feeling from the heart. Make time to listen to people. It is your duty. “No one ever asked me what I thought. I like it here” Jim Johnson: “Managers discuss Fuji, client: “We should have done something about the centre before. If we sorted it out before this never would have happened. This place is helpful to everyone. When we have a meeting I’m going to say something”. FOR US where we are going and when. But people are clever and can make their own decisions. It’s not right not to let us know. I have been coming here 6 or 7 years”. WAndsWOrth neWsPAPer Issue 2 Autumn 2010 | 7 don’t be shy, Get in touch. We want your opinion. COVer stOrY “ Let the community run Atheldene for you. ” This is what people told the Word Up team. After talking with so many people Word Up thinks people know what they want and how to spend the money so everyone can have Better Lives. “There’s loads you can do for that building. “If I win the lottery I’d buy that place and do it up for them’. A modern place, keep some of the features, make it friendly for them, like benches outside, do the garden up. You can make a new car park, electric gate so they can come in and out easy. I’d move into the flat upstairs and be a caretaker myself” Paul Reekie KeeP OUr Centre OPen Mike Reynolds, neighbour: They used to play football and do the flowers. I talked sometimes with a nice young man from the centre. Its a shame it’s closing down but they call this progress. If they had a petition we’d be willing to sign it.” Q. Why can’t we keep the Atheldene open? A. i don’t see why that could not happen. But i am not sure why people would want that happen. A Senior Manager 8 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. heAlth I f you eat too much you get big. But lots of people do not care. We want chicken and chips, fizzy drinks and McDonalds. Sometimes we can’t be bothered to cook our own dinner at home and have a treat instead. “Hmm, nice day to have food.” Suddenly, oh no! I remember what the nurse said. Oh dear. What have I done? Nurse told me to do a lot of exercising and enough walking up and down. Alright then, I’ll go out and walk. I pull the curtain but it’s raining again. Aww, no. I’ll stay in and do it tomorrow. Soon you are lonely, crying and upset. I don’t like my body. I’m too big, I’m too fat. I want to go to the gym, but I’m scared. WAndsWOrth neWsPAPer Caroline has a certificate in Leadership and Management from the Chartered Management Institute. She also advises the Wandsworth Health Action Group at the Joan Bicknell Centre. Learn more about what this group is doing in the next issue. Advice for health and well being - Look at the labels for the ingredients - Watch out for sugar and salt - Walk instead of taking the bus - Use your Freedom Pass to get a discount at gyms in the borough. Maybe you want a friend or an advisor to help you get up and go. There are two dieticians in the Community Learning Disability Team and they are very good. But you could be on the waiting list for 7 months. So what else can you do? People eat because of stress or they are bored. Maybe you don’t like your body. You go to the doctors and they say, “You’re overweight! If you don’t be careful, we’ll see what happens to you.” You hear the words heart attack, stroke, diabetes and you feel nervous, scared and not happy. We don’t want to die young. The nurse says you have to be careful with what you eat and do a lot of exercise. You think that’s good advice. Alright then, from today, I will eat healthily. So you leave and go home. You sit down and relax. Next thing, you are hungry. Oh yes, you go in the fridge and start looking, picking the food. Caroline Ogundeji “I live independently which I enjoy very much. I am a travel buddy for the last five months. Help me start a support group. Your health matters. If you would like to join the group or help out, you can call and leave your name and contact details on 020 8516 7773. It’s up to you. We’ll get back to you soon. Watch this DVD ‘Staying Healthy’ is the name of an excellent movie I saw at Brixton Ritzy Cinema. It was made by people with learning disabilities. We have 7 free DVDs available. If you would like one please call me. Look at these websites You can see and print for free lots of easy to read and colourful information about 75 health issues Go to www.easyhealth.org.uk or www.advocateforhealth.org.uk I help people to get to where they are going safely. Tinu and I work with Hannah on Mondays on health issues including dieting. I am able to talk about health issues in Word Up so that people who read it will understand that eating well is important to your health”. Issue 2 Autumn 2010 | WAndsWOrth neWsPAPer 9 don’t be shy, Get in touch. We want your opinion. Though some people may not believe us, what we are about to tell you did happen. Brian Easton & Joe Wallace in conversation. Weird BelieVe And it Or WACKY nOt Wandsworth Believe it or not? I was standing in the gardens in Battersea in 1964 and there was an object in the sky. It didn’t fly very low or very high and you couldn’t hear the motors going as it glided across the sky. I thought it was unusual to see a flying object at this time of evening (about 4.30-5.30) and I just stood there staring at it. It was a silver object and I had never seen anything like it before. I could see it for about ten minutes before it got too far away to see.” Joe Wallace: “Seven years ago my mum and I saw a flying object through our sky light. It flew very fast with no sound. It was a dark silver oval shape. The day was Tuesday. I finished my breakfast, came up the stairs and I looked up at the sky light. My mum saw it too. The thing had no wings. It was not a plane or anything I’ve ever seen before. Then in August 2010 I went to see my dad at work. We were on the car park roof in Southside shopping centre and I happened to look up in the sky and saw three flying objects. My dad saw them too. The time was between 5:00 and 5:15. They were shaped like stealth planes below the clouds, moving side to side, and then just disappeared. “There is no way anyone could film things like this because it happens too quickly and you don’t always have a camera with you”. I have worked at the Atheldene Centre for many years. I make and stain picture frames. When I was young I used to do boxing and running. A life guard once saved me from drowning. I thought I could swim and jumped in, but I sunk. I was about 10 years old. I live with my girlfriend Christine. I enjoy coming to the Word Up meetings and I find it very interesting working on this article. I am sure that there are other people beside us on this planet. Brian Easton I work as a travel mate for a company called Hail. I started to work there at the end of September and I really enjoy it. My job is very important. I help people get around London, from the green buses on to the regular buses. Hobbies include wildlife, parakeets are my favourite birds, reading, my favourite author is Ray Gordon, and films. I think Word Up is an important newspaper because it gives people information about what’s going on and it is written in a very readable language. Joe Wallace 10 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. WAndsWOrth neWsPAPer rOehAmPtOn UniVersitY A Breath of Fresh Air at Roehampton University On 27th August the Word Up Team took a trip to the beautiful campus at Roehampton University. Jackie Brown treated us to lunch, a tour of the campus and an interview with Pauline. Pauline and her team of 7 people help them find a note taker. run a disability service for students We help sort out disabled student allowance or timetables. on campus. Q: What do you like best about Roehampton A: I love the lakes and the trees here. It is also close to London. Q: Why do people come to see you? A: People find out what support they can get or have an assessment. Some people come to us because they’re lonely or they’re behind on their course-work. Q: What sorts of disabilities can you help? A: A whole range of disabilities and learning disabilities. We see a lot of people who have dyslexia or autism. We talk to their lecturers or Q: How many people come to you? A: There are 8000 students. About 1000 students live here. We see about 6oo people for disability issues every year. Jackie is a senior lecturer in the department of Social Sciences and she is now involved in disability studies. She has been a supporter of Word Up and Wandsworth Care Alliance from the start. A huge Thank You to Jackie from the Word Up Team Anna Brickwood I work as a travel mate for a company called Hail. I have worked there for the last 13 months. I work six days a week and really enjoy every day. My colleagues and clients are very helpful and nice and always ask how I am. At weekends I enjoy socialising with my friends. We go for ten pin bowling, drinks and racing. The newspaper is very important. It allows people to get to know who we are and what we do. WAndsWOrth neWsPAPer Issue 2 Autumn 2010 | 11 don’t be shy, Get in touch. We want your opinion. PrOFiles CARERS AND FAMILIES WE NEED YOU ! Carers and parents and family play a huge part in the lives of people with disabilities. In the next issue we want to spend some time talking about what it’s like being a parent or carer. What sorts of things would you like to see us research or print in this newspaper? How can this newspaper be helpful to you? Call Janice on 020 8516 7773 or email yourviews@wordup.co.uk Paul Reekie Sapna Patel I am a football fan. My team is Chelsea. I work for Hail as a travel mate. I enjoy doing that job because it allows me to get out and meet people, and it gives me confidence. I look after my mum who will be 80 next year. I have a 3 year old beautiful daughter. I live with my parents who help me out a lot with my daughter. The closure of the Atheldene Centre is sad. She walks with the help of a walking frame. ‘Word Up’ is a good newspaper. I have one in my bedroom. I read it all the time. It’s handy for lots of people who meet there. I enjoy going on the internet to watch the Steve Wilkos show. The Word Up newspaper is a very good idea. Janice Durham “I have worked at New Beacon Books in Finsbury Park for the last 30 years. I am also a carer for a man with Alzheimer’s. Word Up lets people know what help is needed in the community to support people with learning disabilities and their carers. Parents and carers are very important and play a huge part in the lives of people with disabilities”. Will Aslan Cindy Soso I am a Project Support Worker. I have been working on this project for the last ten weeks, I have had a really great time, getting to know all the clients. I am very proud of their hard work in bringing together the ‘Word Up’ magazine. I wish the team of ‘Word Up all the best. I am a graphic designer, and I have been doing this for over fifteen years. I was asked by Hannah to get involved with the production of Word Up. I feel that the newspaper is providing a very important role in letting people have their voice heard. I appreciate the hard work being done by the whole team and I am glad to be part of this process. 12 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. WAndsWOrth neWsPAPer GAllerY | AdVOCACY PArtners | WhO’s WhO Sadiq Khan Labour MP Earlsfield, Balham, Furzedown, Tooting and Wandsworth Common the Parents information Group for people with learning disabilities and difficulties 0207 219 6967 Work 0208 682 2897 Work sadiqkhan@sadiqkhan.org.uk self advocacy can support big changes in your life Councillor James Maddan Cabinet Member (Adult Care) meet and talk to other parents say how you feel jmaddan@wandsworth.gov.uk The Members’ Room, The Town Hall, Wandsworth High Street, London SW18 2PU email Keesha on keesha.sinclair@advocacypartners.org Come and Join today! Chris Buss Director of Finance Valarie Campbell My favourite hobby is eight ball. My husband Clive and I play it often. Clive is in an eight ball competition. My passion is drawing, I started this year. The Word Up! newspaper helps people to get to know what’s going on and it’s written in an easy way to read. I work as a travel mate. I help people travel safely. 0208 871 8300 Work cbuss@wandsworth.gov.uk Town Hall Wandsworth High Street London SW18 2PU Contact Keesha on 0207 924 7772 Dawn Warwick Director of Adult Social Services 0208 871 6291 Work dwarwick@wandsworth.gov.uk Fairfield Annex, Town hall Wandsworth High Street London SW18 2PU Will Olmi Printed by harmsworth Printing derby, northcliffe house, meadow road, derby, de1 2Bh Wandsworth Borough Council Day Centre Manager 0208 871 7779 Work wolmi@wandsworth.gov.uk Colin Thorne I work at the Atheldene Centre. I have lots of friends here. I have worked here for three years. I really like working here. Everyone is nice to me. I enjoy working on the newspaper. WAndsWOrth neWsPAPer Issue 2 Autumn 2010 | 13 don’t be shy, Get in touch. We want your opinion. trAnsPOrt I help people with walking difficulties and I make sure they can feel confident and independent. Do you need support to travel? I can help. My name is Tope and I work for HAIL as a travel mate. Travel mates help people with learning disabilities get around on public transport. All the travel mates look after their clients and make sure they are safe. They teach them to cross the roads safely and find a seat on the bus. Police know travel mates, so if there are any problems on the bus, there is help nearby. Police also come to the First Route training days where clients learn to use the bus. Travel mates are trained on their own bus, on a route from the Green Man Pub in Putney to Roehampton. Anyone can get a job as a travel mate including people in wheelchairs, blind or deaf people. There are 30 people working for HAIL Travel Mates and 16 of the staff have learning disabilities. by Tope Olaofe Travel Mates started in North London before coming to Wandsworth two years ago and this year they won an award. If you want to know more, talk to your social worker, stop into the Atheldene or contact us. Wandsworth transport Action Group (WtAG) is doing a travel survey. We want to hear from you. do you like travelling by bus, tube or train or are you having problems? Facebook or email wtag2010@hotmail.com Call 0208 874 7279. Wandsworth travel mate c/o Generate Shop 229 Garratt Lane London SW18 4DU tel: 020 8874 7279 mob: 07765 252410 You can also contact southside travel Buddies: 31-33 Lumiere Court 209 Balham High Road Balham London SW17 7BQ tel: 020 8772 6222 email: info@southsidepartnership.org.uk Tope Olaofe I enjoy coming to the meetings, talking about issues to go into the Word Up! newspaper. My main interest in the newspaper is the transport issues. I go to share ideas and I enjoy playing football in Wandsworth. 14 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. Weird COmmUnitY And??????? WACKY neWs Voices for people with learning disabilities in Wandsworth A Centre for Independent Living in Wandsworth is possible Dawn Warwick, Director of Adult Social Services tells the CIL steering group she is very committed to see it happen A CIL is for disabled communities to give advice and support on information about groups, budgets and advocacy. The CIL would be open for people with any kind of disabilities and learning difficulties in Wandsworth. Disabled people will be running it, with peer support and professionals or carers. On 6th September, the CIL steering group gave a presentation to Dawn Warwick at Bridas House about the work it has been doing to make a Centre for Independent Living in Wandsworth. When we visited Dawn Warwick she said that she was “very committed to see it happen.” As there’s no money, finances or budget for this to happen at the moment we need evidence to show that the disabled will benefit from CIL. There are people on the steering group representing organisations with learning disabilities, physical and mental health. We still need a constitution, mission statement, business plan, development worker, volunteers, and development plans. We will also visit other CILs and present to the Health Commissioner. If you want to join us, please contact Susan Wheeler-Kiley on 0208 516 7768 freechoice@wandcareall.org.uk - LD Partnership Board is a group of professionals. - They meet every 8 weeks around the borough. - They are supposed to speak up for people who can’t speak and represent learning disabilities to the council so they know how to spend their money and LDDF fund. - Some people are not so clear about what it means - For more information about what they do you can contact: Mike Abel our co-chair and the Wandsworth Commissioning and Development officer on: mabel@wandsworth.gov.uk. 0208 8718900 WAndsWOrth neWsPAPer Valuing People Now Support Team What they do is 1 Communicate your views or problems to national government 2 Help you to be aware about issues you are worried about Transport Employment Housing Personal Budgets. When you come to meetings you Learn, Get skills, Become confident. If you want to go, contact Margaret Royle Margaret.royle@dh.gsi.gov.uk or 02079721240. For carers, professionals, people with learning disabilities Sister Act Says it is time to listen to us Sister Act is trying to motivate and encourage people to be more assertive, to speak up and get their voices heard. We know about changes in the government. We are very well trained from: Marigold Training and People First. Being User Led, Business Planning, Management, Equal Opportunities. We also get support from WCA. We want a place where people can feel safe, chat, get advice: A Drop in centre or CIL. We have a range of disabilities and difficulties We understand the issues. Michelle Albury “I volunteer my time going to meetings to support people with disabilities. I tell them where to go and how to get there. A lot of people do not know that the Atheldene Centre is closing, and the new hubs are all over the place. The reason why the Centre is closing is because Wandsworth Council wants to save lots of money and they are not thinking about people’s welfare. People with complex needs, we need to find a way to make sure they can understand what is in the Word Up newspaper”. WAndsWOrth neWsPAPer Issue 2 Autumn 2010 | 15 don’t be shy, Get in touch. We want your opinion. COVer stOrY so who is making the money out of Atheldene? T he Atheldene has a 27 rooms and a dining hall with a stage for about 200 people. There are four kitchens, showers, gardens and a greenhouse. There is also a 3 bedroom penthouse flat on the roof with large balcony and views. Clapham Junction trains, Putney and Tooting underground are minutes away. Two bedroom flats in the area go for about £350,000. Everyone we spoke to agrees the main problem is the roof. It must be replaced. Word Up has been told it can now cost 2, 3 or 6 million pounds to fix up the Atheldene. People want to know why repairs were not done properly and sooner. Wandsworth borough residents have a very low council tax “This building is solid. It could last another hundred years,” says a professional builder “If you want my honest opinion they’re doing it for the money” says one person. “But we are talking about people’s lives here,” says another. Go up to the 3 bedroom flat on top of the Atheldene and you have views from the balcony all the way to the river. Bus 270 takes you straight to the lovely Putney and Richmond Park. Dawn Warwick and Councillor Madden have not been able to talk to us on these matters. See page 12 on how to contact them yourself 16 Issue 2 Autumn 2010 | don’t be shy, Get in touch. We want your opinion. WAndsWOrth neWsPAPer WOrd UP teAm Welcome from Word Up Team W elcome. We are a group of people with learning disabilities with people supporting us. We are ready and able to listen. We respect your opinions and ideas. You can get support from us to express yourself. We can help you to speak, write, type or draw what you need people to understand. We use plain english and we are honest. We meAn BUsiness. how can we help you if you have a problem? You can contact us on: Word Up news, Wandsworth Care Alliance, trident Business Centre 89 Bickersteth road, newspaper@wandcareall.org.uk tooting london sW17 9sh www.yudu.com/item/details/202217/ Wandsworth-Word-Up-Issue-I - Please contact us if you need this on audio cassette, Braille or in large print. - To view us online 0208 516 7785