Gender Identity Dysphoria– Legal Issues: “A debate about being child centred or hearing the child’s voice” Paper presented at the 6th World Congress on Family Law and Children’s Rights Sydney Convention and Exhibition Centre, Darling Harbour, 19 March 2013 Roderick Best, Executive Director, Vulnerable Children and Families Department of Family and Community Services, Community Services1 2 Introduction NSW has identified in its legislation principles3 of care and protection which the State considers to be fundamental to any action impacting on a child.4 These are to look to the child’s safety, welfare and well-being and seek the child’s participation. Where new situations arise for children the question must be answered as to how these principles are to apply. In this paper I want to look at how the courts have applied these principles when dealing with new ways of responding to a core element of a child’s identity – gender. This paper looks at the interplay between the welfare of the child and the participation of the child in deciding what should occur. There is no disagreement that gender5 is fundamental to an individual’s identity. In exceptional instances, an individual’s personal sense of gender does not correspond with their biological sex. Gender Identity Dysphoria (GID) is used to describe this situation where it results in an individual having a persistent and profound discomfort with their biological sex and a strong identification with the gender of the opposite sex as manifested by unrelenting cross gender thought and behaviour. A clinic has now existed in Australia to respond to GID in children for just over a decade. Much international debate has arisen as to the aetiology, basis for the diagnosis and treatment of GID in children. In Australia, one particular point of contention is who provides consent to undertake sex reassignment procedures for children. Gender Identity Dysphoria Defining features Deciding whether a child has GID can be difficult because gender is fluid and crossgender profiles may change over time for a variety of reasons.6 While extreme cases 1 The comments in this Paper are those of the author and are not, nor do they necessarily reflect, the views of the State of NSW, the Minister for Family and Community Services or the Department of Family and Community Services. 2 I thank Jane Smith for assistance in preparing this paper. All mistakes, are mine. 3 Children and Young Persons (Care and Protection) Act 1998 ss 9(1), 10 4 A child refers to any person under the age of 18 years and so includes reference to a ‘young person’. 5 Although gender is often used interchangeably with the term ‘sex’, in this paper I have used the term ‘gender’ to describe how a person presents socially and culturally and used the term ‘sex’ to refer to biological differences as determined by such things as chromosomes, hormonal profiles or internal and external sex organs. 6 Cohen-Kettenis, P T & Pfafflin F, Transgenderism and Intersexuality in Childhood and Adolescence: Making Choices (2003), Sage Publications, Inc., 106. 1 are not difficult to identify, children present anywhere from ‘typical for boys’ to ‘typical for girls’ on various dimensions.7 According to the DSM-IV, TR,8 there are 2 components of GID, both of which must be present to make the determination. Firstly, there must be evidence of a strong and persistent desire to be of the other sex. In children this is manifested by 4 or more of the following: Repeatedly stating a desire to be, or insisting that he or she is, the other sex In boys, a preference for cross-dressing or simulating female attire; in girls, an insistence on wearing only stereotypical masculine clothing Strong and persistent preferences for cross-sex roles in make believe play or persistent fantasies of being the other sex Intense desire to participate in the stereotypical games and pastimes of the other sex, Strong preference for playmates of the other sex. Secondly, there must be evidence of persistent discomfort about one’s assigned sex or a sense of inappropriateness in the gender role of that sex. In children, the disturbance is manifested by any of the following: In boys: Assertion that his penis or testes are disgusting or will disappear, or Assertion that it would be better not to have a penis, or Aversion toward rough-and-tumble play, or Rejection of male stereotypical toys, games, and activities. In girls: Rejection of urinating in a sitting position Assertion that she has or will grow a penis, or Assertion that she does not want to grow breasts or menstruate, or Marked aversion toward stereotypical feminine clothing. The individual must be exhibiting clinically significant distress or impairment in social, occupational, or other important areas of functioning. The diagnosis is not made if the individual has a concurrent intersex condition.9 It has been shown that children with GID also present with co-morbid features including separation anxiety, depression and behavioural difficulties.10 Suicidal 7 Ibid. In classifying the diagnosis rather than the child, there is much debate about whether GID should be reported as a disorder or just a ‘normal’ variant of gendered behaviour. See: Zucker, K. J, ‘Gender Identity Disorder’, In Behavioural and Emotional Disorders in Adolescents: Nature, Assessment and Treatment (eds Wolfe, D A & Mash, E J ) (2006) The Guildford Press, New York, 535-562, 553-554. Consistent with the leading Australian case laws referred to below this paper proceeds on the basis that GID is one aspect of gendered beghaviour, rather than it being a disorder. This is contrary to DSM-IV TR. 8 American Psychiatric Association, Diagnostic and statistical manual of mental disorders, Fourth Edition, Text Revision (2000), Washington, American Psychiatric Publishing, 576-582. 9 For example, partial androgen insensitivity syndrome or congenital adrenal hyperplasia. 2 ideation, self-harm and attempts at suicide have been reported. In a survey of the first 124 cases referred to the Gender Identity Development Service at the Portman Clinic in London, the most common associated features present in the children who were referred included: relationship difficulties with parents or carers; relationship difficulties with peers; depression/misery; family mental health problems; family physical health problems; being the victim of harassment or persecution, and social sensitivity.11 Prevalence GID can appear in early infancy with a variable degree of severity. 12 Onset of crossgender interests and activities can usually be noticed when the child is between ages 2 and 4 years, although some parents report that their child always had cross-gender interests.13 Only a very small number of children diagnosed with GID will continue to have symptoms that meet the criteria for GID in adolescence or adulthood, 14 however it has been reported that GID in children that intensifies with the onset of puberty rarely subsides.15 The more likely outcome is that children who do not have persistent GID into adolescent and adulthood will eventually identify as gay or lesbian or bisexual. One longitudinal study found that from a group of 66 males in the original ‘feminine boy’ group, two-thirds were re-interviewed in adolescence or young adulthood, with three-quarters of them found to be gay or bi-sexual and only 1 male from the study having a transsexual outcome.16 The prevalence of GID in childhood and adolescence has been characterised as a ‘rare phenomenon’17 and reported to be below 1 per cent. More male children have been diagnosed with GID than female children. 18 Over the past 10 years, the number of children with GID referred to Australia’s only GID clinic, at the Royal Children’s Hospital Melbourne (‘RCHM’),19 has risen steadily.20 During 2003 to 2011, 39 children and adolescents were referred to the Coates, S & Spector Person, E, ‘Extreme boyhood femininity: isolated behaviour or pervasive disorder?’ Journal of the American Academy of Child and Adolescent Psychiatry (1985) 24:702-709. High levels of psychiatric comorbidity in gender dysphoric adolescents might also be expected secondary to the distress associated with GID, as the incongruence between experienced and desired gender becomes more salient. See: Vries, et al, ‘Psychiatric comorbidity in gender dysphoric adolescents, The Journal of Child Psychology and Psychiatry (2011) 52(11)” 1195-202. 11 Di Ceglie, D, ‘Gender identity disorder in young people’, Advances in Psychiatric Treatment (2000) 6: 458466, 461. 12 Korte, A et al., ‘Gender Identity Disorders in Childhood and Adolescence’, Deutsches Arzteblatt International (2008) 105(48): 834 – 841, 834. 13 Above n 8, 579. 14 Above n 8, 579. 15 Zucker, K J, ‘The DSM diagnostic criteria for gender identity disorder in children’, ArchSex Behav (2010) 39(2): 477-498. 16 Green, R, et al, ‘Specific cross-gender behaviour in boyhood and later homosexual orientation’, British Journal of Psychiatry (1987) 151: 84-88. 17 Meyer-Bahlburg, H F L, ‘Gender identity disorder of childhood: Introduction’, Journal of the American Academy of Child Psychiatry (1985) 24, 681-683. 18 Above n 12, 834. 19 The Clinic at RCHM is the only specialist clinic for child and adolescent GID in Australia. Specialist clinics have also been established in Canada, the United States, the UK and several European countries. 20 Hewitt, J K, et al, ‘Hormone treatment of gender identity disorder in a cohort of children and adolescents, MJA (2012) 196(9): 578-581, 578. 10 3 service and assessed, with 1 child being referred in 2003 and 8 referred in 2011. It is believed that that the increase in referrals is due to improved awareness of a medical service for children with GID rather than any increase in the incidence of GID.21 Aetiology No single cause has yet been identified with any certainty for why some children have GID.22 Some possible causes suggested include hormonal influences on the brain during foetal development,23 parent characteristics such as psychopathology,24 general behavioural difficulties in the child,25 the child’s psychological make-up, life events or a combination of predisposing influences.26 Treatment Given that symptoms of GID at pre-pubertal ages decrease or even disappear in a high percentage of children (estimates range from 80 to 95 per cent), it is generally accepted that any medical intervention in early childhood would seem premature and inappropriate.27 As noted above, GID continuing into early puberty appears to establish that GID will be highly persistent, which is why medical intervention is considered at the adolescent/early or post pubertal stage. International consensus guidelines for hormonal treatment of adolescents with GID have been published28 as have standards of care for children and adolescents with GID.29 Information supplied by the GID clinic at the RCHM states that appropriate care and treatment of children with GID and its related issues requires a comprehensive assessment and a multidisciplinary approach to support and management.30 The general approach to the management of GID in children can be categorised into 4 stages. During management, the child receives continual psychological support and physical monitoring before progressing to each stage of intervention. 21 Ibid, 580. Above n 11, 461. 23 Above n 11, 461. 24 Above n 7, 552. 25 Zucker, K J, ‘Gender identity development and issues’, Child and Adolescent Psychiatric Clinics of North America (2004) 13(3): 551-568. 26 Ibid. 27 Cohen-Kettenis, P T et al., ‘The treatment of adolescent transsexuals: Changing insights,’ Journal of Sexual Medicine (2008) 5: 1892–1897, 1895. 28 Hembree WC, et al., ‘Endocrine treatment of transsexual persons: an Endocrine Society Clinical Practice Guideline’ J Clin Endocrinal Metab (2009) 94:3132-3154. 29 The World Professional Association for Transfer Health, Standards of Care for the Health of Transsexual, Transgender, and Gender Nonconforming People 7 th Version (2012). 30 See Gender Identity Service, Royal Children’s Hospital Melbourne: <http://ww2.rch.org.au/outpatient/directory/index.cfm?fuseaction=home.full&id=127>. 22 4 The first stage of the process for children and adolescents involves a therapeutic exploration.31 If the symptoms of GID persist and are indicative of an evolution to transsexualism, then physical interventions are considered with caution. The second stage entails wholly reversible intervention. Hypothalamic blockers are used to suppress the production of oestrogens or testosterone and produce a state of biological neutrality.32 Hormonal treatment to suppress puberty is aimed to reduce the psychological distress related to unwanted pubertal developments in the biological sex and allows additional time for support of the adolescent during the process of either resolving GID or coping with its persistence. Such hormonal treatment can also prevent irreversible secondary sex changes which may be difficult to address later on.33 The third stage involves partially reversible interventions such as hormonal treatment that masculinises or feminises the body. The fourth stage includes irreversible interventions such as surgical sex reassignment procedures. While accepting that further research is required, particularly in understanding what might be the best physical interventions, clinicians in Australia follow the 6 guidelines concerning the treatment of adolescent transsexuals that are referred to in the Endocrine Society’s Clinical Guidelines.34 These guidelines have been endorsed by the Australasian Paediatric Endocrine Group: 1. We recommend that adolescents who fulfil eligibility and readiness criteria for gender reassignment initially undergo treatment to suppress pubertal development 2. We recommend that suppression of pubertal hormones start when girls and boys first exhibit physical changes of puberty (confirmed by pubertal levels of estradiol and testosterone, respectively) but no earlier than Tanner stages 2–335 3. We recommend that GnRH analogues be used to achieve suppression of pubertal hormones 4. We suggest that pubertal development of the desired opposite sex be initiated at about the age of 16 years, using a gradually increasing dose schedule of cross-sex steroids 31 Above n 11, 464. This ranges from individual to family and group therapy which aims, amongst other matters, to foster recognition and non-judgmental acceptance of gender identity issues and to ameliorate associated behavioural, emotional and relationship difficulties. 32 Above n 11, 464. 33 Above n 20, 578. 34 Above n 28. 35 Pubertal maturation can be described in terms of sequence, timing and tempo (puberty consists of a series of predictable events, and the sequence of changes in secondary sexual characteristics has been categorised by several groups). The staging system utilised most frequently is commonly referred to as the Tanner stages. 5 5. We recommend referring hormone-treated adolescents for surgery when 1) the real-life experience (RLE) has resulted in a satisfactory social role change; 2) the individual is satisfied about the hormonal effects; and 3) the individual desires definitive surgical changes 6. We suggest deferring surgery until the individual is at least 18 years old. In relation to surgical intervention, these are consistent with guidance from the UK Royal College of Psychiatrists which also does not recommend that surgical intervention prior to adulthood, or at least prior to real-life experience for at least 2 years of living in the gender with which they identify.36 The rationale behind requiring real-life experience is to prepare the person as well as possible to make a fully informed decision about irreversible surgery. 37 Since changing one's gender presentation has immediate profound personal and social consequences, the decision to do so should be preceded by an awareness of what all of the predictable consequences are likely to be and assists all parties in working out how to proceed. While, as noted below, the long term psychological and health outcomes of cross-sex hormone treatment for children are unknown, as is the rate of ‘regret’ with reversal of gender identity, the real-life experience can assist in testing a person’s resolve, including feelings about the social transformation and coping with the response of others.38 Outcomes of treatment and the need for further research A recent US study of children and adolescents with GID found that psychological functioning improves with medical intervention and that the patient’s psychiatric symptoms might be secondary to a medical incongruence between mind and body, which is not primarily psychiatric.39 It was identified that further research was required in relation to psychological functioning of patients once they had achieved a physical appearance similar to (or indistinguishable from) their affirmed gender peers after early pubertal suppression and cross-sex hormone therapy.40 In the Australian study conducted by the GID clinic at the RCHM, of 21 adolescents who were assessed for consideration for hormone treatment between 2003 and 2011, 4 experienced a resolution of gender identity dysphoria or acceptance of gender variance with ongoing psychological counselling. Seventeen had profound GID with increased distress following the onset of puberty and were considered eligible for hormone treatment. Of this group of 17, 11 had made or were planning to make an application to the Family Court for approval of hormone treatment. Seven Royal College of Psychiatrists, Gender Identity Disorders in Children and Adolescents – Guidance for Management, Council Report CR63 (1998) London: Royal College of Psychiatrists, 6. 37 Bocktin, W, ‘Psychotherapy and the real-life experience: From gender dichotomy to gender diversity, Sexologies (2008) 7(4): 211-224, 211. 38 Above n 29, 9. 39 Spack, et al., ‘Children and Adolescents With Gender Identity Disorder Referred to a Pediatric Medical Center’, Pediatrics (2012) 129:418-425. 40 Ibid, 423. 36 6 young people commenced court-approved hormone treatment.41 A follow up of the young people found that none had stopped hormone treatment. It was acknowledged in this study that the long term psychological and health outcomes following hormonal treatment of children and adolescents with GID are currently unknown. 42 A follow-up study of Dutch adolescents that began cross-sex hormone therapy between 16 to 18 years of age found that none had GID and, 1 to 5 years after sex reassignment surgery were both psychologically and socially ‘not very different’ from their peers.43 A retrospective, descriptive Dutch study of 10,152 transsexual patients who received cross-sex hormone treatment from a knowledgeable physician found that it was an acceptably safe practice in the short and medium term. While there were side effects, as with any pharmaceutical therapy, mortality was not higher than a comparison group of age and gender-adjusted Dutch citizens.44 There is however a lack of evidence as to long term side effects of cross-sex hormone treatment. Some have gone so far as to argue that because the risks are partially unpredictable it is not possible to give informed consent to engaging in hormonal suppression of puberty and cross-sex hormones.45 As well as the consequences of intervention, which on a long term basis are largely unknown, the consequences of not treating a child or adolescent with GID also needs to be considered. As noted above, children with GID often present with anxiety, depression and behavioural problems. These children are more likely to be unhappy, lonely, isolated and stigmatised by peers. The distress and negative psychological implications of non-treatment has certainly been a factor taken into account by Australian courts when determining whether to approve the commencement of hormone treatment for adolescents diagnosed with GID. The Australian approach to consent Medical treatment for children generally For understanding what is required prior to any medical treatment proceeding, a statement from Mr Justice Cardoza, one of the world’s great common law judges, made almost 100 years ago deserves repeating: ‘Every human being of adult years and sound mind has a right to determine what shall be done with his own body; and a surgeon who performs an operation without his patient’s consent commits an assault…’46 41 As far as is known by the GID clinic at RCHM, these 7 children represent the entire population of children receiving puberty suppression and cross-gender hormone treatment for GID in Australia. There was 1 adolescent who purchased oestrogen independently overseas without court approval. The number of adolescents that purchase hormones through overseas internet sites cannot be accounted for. 42 Above n 18, 580. 43 Above n 27, 1893. 44 Gooren, L J et al., ‘Long term treatment of transsexuals with cross-sex hormones: Extensive personal experience’, Journal of Clinical Endocrinology and Metabolism (2008), 93(1), 19–25. 45 Above n 27, 1896. 46 Schloendorff v Society of New York Hospital (1914) 105 NE 92 at 93 7 This general statement applicable to adults must be qualified when applied to children by considering both capacity to make the determination and ensuring the welfare of the child. On capacity, Australian law is: ‘a minor is capable of giving informed consent when he or she achieves a sufficient understanding and intelligence to enable him or her to fully understand what is proposed.’47 This test adopts one of the majority decisions (that of Lord Scarman) in the English House of Lords decision of Gillick v West Norfolk and Wisbech Area Health Authority.48 It should be noted that this test differs from that of determining adult capacity to consent to their own medical treatment, because the adult need only establish a capacity to make the decision, rather than also establishing an understanding of the consequences of what is proposed.49 The child must have not just a capacity to make the decision but also an understanding of what is proposed. In NSW, this common law test is supplemented by three pieces of legislation. The first protects medical and dental practitioners from legal action for assault or battery50 if they provide medical or dental treatment to a child: who is 14 or over and has consented (having the adult definition of capacity), or who is under 16 and a parent or guardian has consented on their behalf.51 The second, permits a guardian to be appointed to consent to medical decisions.52 The third, allows a medical practitioner or a dentist to carry out medical treatment without consent where the practitioner is of the opinion that it is a matter of urgency 53 to carry out the treatment in order to save the child’s life or prevent serious damage to the child’s health.54 In commenting on this provision the courts have said: ‘As a test of necessity it is a rather stringent requirement, but it would be incorrect to introduce elements not found in the subsection, such as imminence of danger. Further, there should not be introduced some concept of inescapable essentiality Secretary, Department of Health and Community Services v JWB and SMB (Marion’s Case) (1992) 175 CLR 218 at 237-8. 48 [1986] AC 112. 49 For example: Re B (Adult: refusal of medical treatment) [2002] 2 AllER 449. Also see: Potter, J ‘Rewriting the competency rules for children: full recognition of the young person as a rights bearer’ Journal of Law and Medicine (2006) 14, 64 50 It may not be a good defence to an obligation to obtain ‘informed consent’ where that is the obligation: Cavell, R ‘Towards a better consent form’ Journal of Law and Medicine (2007) 14, 326. 51 Minors (Property and Contracts) Act 1970 (NSW), s 49. These provisions do not confer a general capacity on young people to consent to (or refuse) medical treatment. 52 Guardianship Act, 1987 53 Urgency involves continuation as well as institution and so medical treatment is no less urgent because it is to extend over a period, for example, of 4 weeks: Re ELM (2006) 69 NSWLR 145 at 150 per Brereton J. 54 Children and Young Persons (Care and Protection) Act 1998 s174 47 8 of the treatment, or the exclusion of any possibility of the child’s survival without the treatment.’55 Where a child is not competent to make a decision about health care, Australian law recognises that it is generally within the ambit of a parent’s responsibility to be able to consent to medical treatment for and on behalf of his or her child.56 On the welfare of the child, this element arises in three ways: the child’s decision where the child has capacity the parent’s decision where the child does not have capacity where the welfare of the child necessitates that neither the child nor the parent should be the one making the decision. Looking at each in turn: a) the child’s decision and the child’s welfare An adult can withhold (or give) consent even where this does not promote their best interests.57 A child can only exercise capacity to decide where the treatment is in the child’s welfare.58 This is so even where the power to consent is an element of the statutory protection of medical practitioners and dentists.59 Whereas there is authority in some jurisdictions that a child has a power to consent but not a power to refuse treatment, this distinction has not been adopted in NSW.60 The insertion of a welfare element in this situation has been criticised and instead it has been proposed that there should instead be a requirement that where the child has provided an informed consent, the court’s role should be limited to ensuring that the child is competent and has made an informed decision.61 55 Birkett v Director-General of Family and Community Services unreported 3 February 1994 per Bryson J NSWSC affirmed on appeal unreported 18 November 1996 per NSWCA. 56 Secretary, Department of Health and Community Services v JWB and SMB (Marion’s Case) [1992] HCA 15, [26]. 57 Re MB [1997] 2 FCR 541: 8 MedLR 21; Re B (adult: refusal of medical treatment) [2002] All ER 449; Re T (adult: refusal of treatment) [1993] Fam 95; St George’s Healthcare NHS Trust v S [1998] 3 WLR 936; Re B (adult): refusal of medical treatment) [2002] 2 AllER 449; Malette v Schulman (1990) 67DLR (4th) 321; Schloendorff v Society of New York Hospital (1914) 211 NY 125 at 129-130; Matter of Storar 52 NY2d 363; Rivers v Katz 67 NY2d 485; Matter of Westchester County Medical Center [O’Conner] 72 NY2d 517; Matter of Eichner v Dillon 52 NY2d 363. The consent cannot however be to a non-therapeutic removal of tissue as that would amount to the criminal offence of maiming and it is not possible to consent to the commission of a crime against oneself: Saul, P, McPhee, J & Kerridge, I “Organ donation and transplantation in Australia” in Freckleton, I & Petersen, K (eds) (eds) Disputes and Dilemmas in Health Law (Sydney, 2006) 349; McIlwraith J & Madden B Health Care and the Law (Sydney, 2006) 564. 58 DoCS v Y unreported 30 June 1999 per Austin J NSWSC: [1999] NSWSC 644; Re R (A Minor) (Wardship: Consent to treatment) [1992] 1 FLR 190 at 202 per Staughton LJ (CA). 59 Re W (A Minor) (Medical Treatment: Court’s jurisdiction) [1992] 3 WLR 758; Re R (A Minor) (Wardship: Consent to treatment) [1991] 3 WLR 592; Re K, W and H (Minors) (Medical Treatment) [1993] 1 FLR 854; South Glamorgan County Council v W and B [1993] 1 FLR 574. 60 For example Re: Alex Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503: [2004] FamCA 297, [170] (Nicholson CJ). 61 Bunney, L, ‘The Capacity of Competent Minors to Consent to And Refuse Medical Treatment’ Journal of Law and Medicine (1997) 5:52. 9 b) the parent’s decision and the child’s welfare Where a parent is consenting on behalf of the child, then this consent exists to further the welfare of the child and can be overridden if this test is not satisfied. 62 A court will be loathe to displace parental responsibility to consent and only do so where this is positively demanded.63 Examples of where a court has intervened include the separation of conjoint twins,64 authorizing the withholding of medical treatment65 and the termination of a child’s pregnancy.66 Another way that the courts have expressed this is to say that a parent can elect to make a martyr of themselves but they cannot make a martyr of their child.67 From these decisions it will be seen that most courts only intervene in exceptional circumstances where the child’s welfare positively demands such intervention to overturn a decision by parents. When approached to make an order in lieu of a parent, where there is no evidence that the person is acting contrary to the child’s welfare the Court has been known to order costs against the applicant. 68 This approach appears to be changing as at least three recent decisions assert that the court should exercise its jurisdiction where an applicant seeks it – including when parents are uncertain how to exercise a power resting with the parents: ‘it is by no means fanciful that parents may seek to have the court give approval (or disapproval) to a decision which falls within the limits of their parental responsibility but which they have agonised but may be ambivalent.’69 c) the paramountcy of the child’s welfare Finally, the welfare of the child may necessitate that the decision not be made by either the child or a parent but by an independent third party: a court. In NSW this will be either the Supreme or Family Court.70 This notion can be traced back to at least 1690 when John Locke argued that parental power extended for the child’s “help, instruction and preservation” but did not extend to questions about the child’s life, death or liberties.71 More recently, the High Court in Marion’s Case stated that 62 Re Carroll (No2) [1930] AllER 192 at 201; J v C [1970] AC 668. Re O’Hara [1900] 2 IR 232 at 240; Re K (a minor)(custody) [1990] 2 FLR 64 at 68. 64 Re A(conjoined twins: medical treatment) [2001] 1 FLR 1: [2001] 2 WLR 480; Queensland v Nolan (an infant, by her litigation guardian Nolan) [2001] QSC 174. 65 In re J (a minor) CA [1992] WLR 507; Re B (Medical Treatment) [2009] 1 FLR 1264. 66 Re B (wardship: abortion) [1991] 2 FLR 426. 67 R v Senior [1899] 1 QB 283; People (ex rel Wallace) v Labrenz (1952) 104 NE 2d 769; Re S (a minor) (medical treatment) [1993] 1 FLR 376; Re O (a minor) (medical treatment) [1993] 2 FLR 149; Re S (a minor) (medical treatment) [1993] 1 FLR 376; 68 Birkett v Director-General of Family and Community Services unreported 3 February 1994 per Bryson J NSWSC. 69 Re Sean & Russell (Special Medical Procedures) [2010] FamCA 948, per Murphy J [67]; Re Baby D (No2) [2011] FamCA 176 per Young J [196]; Re Natalie [2012] NSWSC 1109 per White J ; Re W (a minor) (medical treatment) [1992] 4 AllER 627 at 635. 70 In the Supreme Court it is part of the Court’s inherent power. For the Family Court Family Law Act 1975 (Cth) s 67ZC, permits the Family Court to make orders relating to the welfare of children. 71 J Locke Two treatises of government and a letter concerning toleration reprinted I Shapiro (ed) Yale University Press, New Haven, 2003 p 176 and quoted in B Matthews & D C Bross “Mandatory reporting is still 63 10 the nature of certain types of medical treatment or the consequences of the treatment are such as would necessitate a decision of a court rather than the parents. Broadly, this welfare principle is said to apply where it is a significant medical procedure for a child, which is invasive or irreversible in nature, and is not for the purpose of treating a bodily malfunction or disease.72 The vesting of the decision in a court rather than a parent, seeks to permit a child centred decision free of any suggestion of conflict of interest and approached judicially with evidence tested. The intervention of the court has been held necessary for particular children in medical situations of sterilization,73 heart surgery,74 tissue donation,75 male circumcision,76 to restrain and medicate without the child’s consent77 and the use of a contraceptive to delay puberty.78 In non-medical situations the power has been used to protecting a child’s confidentiality;79 restrain communications in an undesirable relationship;80 restrain domestic violence to protect a child;81 exclude a parent from the family home;82 injunct the removal of children from the home;83 require a parent to return the child to the jurisdiction;84 protect a child from entry into marriage85 and order paternity tests.86 It is also the basis for holding that consent to gender re-assignment can only be given by a court.87 This is a separate and conceptually different application of the situation where a welfare test to that where the parent is exercising capacity to consent contrary to the child’s welfare.88 The breadth of this welfare power was emphasised in Marion’s Case: ‘No doubt the jurisdiction over infants is for the most part supervisory in the sense that the courts are supervising the exercise of care and control of infants by parents and guardians. However, to say this is not to assert that the a policy with reason: empirical evidence and philosophical grounds” (2008) 32 Child Abuse & Neglect 511 at 514 72 Re Baby D (No.2) [2011] FamCS 176, [202], [204] (Young J).; Re Angela (Special Medical Treatment) (2010) 43 FamLR 98 per Cronin J 73 P v P (1994) 181 CLR 583 74 Re Michael (1994) FLC 92-471 75 In the marriage of GMW and CMW (1997) 21 Fam LR 612 per Hannon J Family Court of Australia 76 Re J (child’s religious upbringing and circumcision) [2000] 1 FLR 571 but see In the marriage of Boldt unreported 25 January 2008 per Supreme Court of Oregan holding that circumcision is a matter for the parent holding parental responsibility. 77 Re Thomas (2009) 41 FamLR 220 per Brereton J (NSWSC): [2009] NSWSC 217 78 Re Alex (2004) 31 FamLR 503 79 In re X (a minor) (wardship: restriction on publication) [1975] 1 AllER 697; X County Council v A [1985] 1 AllER 53. 80 In re B (JA) (an infant) [1965] 1 Ch 1112 81 Re V (a minor)(wardship) (1979) 123 Sol J 201 82 Richards v Richards [1984] 1 AC 174 at 207 per Lord Scarman. 83 Lv L [1969] P 25 84 Re N (infants) [1967] Ch 612 85 A Local Authority v Ma [2006] 1 FLR 867 86 In re L (an infant) [1968] P 119 87 Re A (gender reassignment) (1993) FLC 92-402 88 Director-General, Department of Community Services; Re Thomas (2009) 41 FamLR 220: [2009] NSWSC 217, [27], (Brereton J) [27]. 11 jurisdiction is essentially supervisory or that the courts are merely supervising or reviewing parental or guardian care and control. As already explained, the parens patriae jurisdiction springs from the direct responsibility of the Crown for those who cannot look after themselves; it includes infants as well as those of unsound mind. So the courts can exercise jurisdiction in cases where parents have no power to consent to an operation, as well as cases in which they have the power.’89 There are some comments in Marion’s Case which if read in isolation appear to suggest that the power is reserved to the Court because the level of significance lies in the type of decision rather than the consequence to the welfare of the child. This has led some subsequent courts to confine the circumstances of the court’s intervention. In Re Bernadette, a case where the central argument before the Court was that the parents rather than the court had the power to consent, the court responded by saying that it was required to have responsibility to pursue the welfare of the child because ‘until there is a clear cut line of authority within the medical profession it would be difficult for parents to reach an informed conclusion’ 90 implying that once the medical evidence was clear then it becomes a matter for parental decisionmaking. This does not appear to be consistent with the High Court because the evidence in Marion’s Case was clear as to the nature and consequences of sterilisation and yet the High Court held that the child’s welfare necessitated a court consent. In Re GWW & CMW the Court’s position was: ‘court authorisation is required because of the significant risk of making the wrong decision and secondly because the consequences of a wrong decision are particularly grave.’91 Again, the source of this comment can clearly be seen in Marion’s Case but with respect it again appears to unnecessarily restrict a general power arising from the Court’s interest in the welfare of those who might otherwise be voiceless. It is important to recognise that in NSW, and unlike some other jurisdictions, the parens patriae jurisdiction is broader than the court assuming wardship.92 It is a jurisdiction in which the Supreme Court can interfere with the actions of the person exercising parental responsibility without first making the child a ward. 93 Whatever Secretary, Department of Health and Community Services v JWB and SMB (Marion’s Case) [1992] HCA 15, [71], (Mason CJ, Dawson, Toohey and Gaudron JJ). While the judgments distinguish between ‘welfare’ and ‘best interests’ the distinctions being drawn are not relevant for the current argument and the term ‘welfare’ is consistent with the Children and Young Persons (Care and Protection) Act 1998. 90 Re Bernadette (2010) 43 FamLR 467: [2010] FamCA 94, [124] 91 (1997) FLC 92-748, 84,108 92 J Seymour “Parens patriae and wardship powers: their nature and origins” (1994) 14 Oxford Journal of Legal Studies 159; Re Paul [2008] NSWSC 960, [5] 93 K v Minister for Youth and Community Services [1982] 1 NSWLR 311; In re Jane (1989) FLC 92-007 at 77,256 per Nicholson CJ; Carseldine v Director-General, Department of Children’s Services (1974) 133 CLR 345 at 367 per Mason J (Barwick CJ and Stephen J concurring); Director-General of Social Welfare v J [1976] 89 12 the respective jurisdictional histories, and without diminishing the importance of those histories in shaping the jurisdiction, it is now accepted that wardship is “the result of, and not the ground for, the exercise of the jurisdiction”.94 There is no limit to the jurisdiction95 other than the welfare principle, that is, the power is to be exercised “in the best interests of the child”.96 It is the court which determines these best interests: not necessarily in accordance with the wishes of the parents97 or of the child.98 The court is not to take into account an argument that the State has a legitimate interest in maintaining institutions that are efficient and less costly.99 Some matters, such as organ donation, may not be seen as beneficial to the donor child however the court has held that this can benefit the donor child as well as the recipient.100 This emphasis on the welfare of the child can lead some courts into saying that the priority which the court is obliged to give to the welfare of the child means that the child’s rights become superior to those of others, such as mothers.101 Similarly, there are some cases which state that the priority given to the welfare of the child means that other rights of the child, such as to participation in decision making are subsumed. This is most frequently raised in cases where the child would otherwise appear to have the capacity to consent and, in exercise of that capacity has elected not to proceed with medical treatment with the consequence of that decision being that the child is likely to shortly die.102 In these circumstances the VR 89 at 96; In re L (an infant) [1968] P 119 at 156; DoCS v Y unreported 30 June 1999 per Austin J NSWSC; Minister for Health v AS (2005) 33 FamLR 223 at 227. 94 In re N (Infants) [1967] Ch 512 at 531 per Stamp J. Similarly see: Cary v Bertie (1696) 2 Vern 333: 23 ER 814 at 818; Wellesley v Wellesley (1828) 4 ER 1078 at 1081 per Lord Redesdale. Similarly In re L (an infant) [1968] P 119 at 156-7 per Lord Denning quoting In re Spence (1847) 2 Ph 247 but see In re Agar-Ellis (1883) 24 Ch 317 at 328, 332 per Brett MR and Cotton LJ for a contrary view. 95 This is true to the extent that the order is necessary for the welfare of the child rather than merely promoting the welfare of the child: Re X (a minor) [1975] 1 AllER 697 at 703, 705, 706; Re Eve (1986) 31 DLR (4th) 1; Re W (a minor)(medical treatment) [1992] 4 AllER 627 at 637 per Lord Donaldson and 641 per Balcombe LJ. This has been followed in Australia: Fountain v Alexander (1982) 150 CLR 615 at 633; In the marriage of Brown and Pedersen (1988) 12 FamLR 506 at 511; Marion’s Case per Deane J; AMS v AIF (1999) 24 FamLR 756 at 777; Lv T [1999[ FLC 92-875. Because there is no limit to the jurisdiction the Court has held that it should only be exercised in exceptional circumstances: Re Victoria (2002) 29 FamLR 157. 96 Dalton v Skuthorpe unreported 27 November 1989 per McLelland J NSWSC; Director-General, Department of Community Services v BB unreported 19 November 1999 per Santow J NSWSC. 97 Minister for Health v AS (2005) 33FamLR 223; Re A (children) (conjoined twins: surgical separation) [2000] 4 AllER 961; Re B (a minor) (wardship:medical treatment) [1990] 3 AllER 927. 98 Minister for Health v AS (2005) 33FamLR 223; Re L [1998] 2 FLR 810. 99 Davis v Hubbard (1980) 506 F Supp 915. Similarly the opinion of a medical practitioner is not determinative of a child’s welfare however a court would not order a medical practioner to do something the practitioner considered unethical: AVS v NHS Foundation Trust [2011] 1 FLR 967. 100 In the matter of GWW (husband) and CMW (wife) (1997) 21 FamLR 612; Strunk v Strunk (1969) 445 SW 2d 145 (Kentucky CA); In re Y (adult patient) [1997] 2 WLR 556. 101 Those cases which say that this is the consequence are: Re Baby A unreported 26 July 1999 per Young J NSWSC: [1999] NSWSC 787; Re S (Adult: Refusal of Medical Treatment)[1993] 1 FLR 26; Bolton Hospitals NSH v O [2003] 1 FLR 824. For the contrary see: S v McC [1972] AC 24; In re X (a minor) [1975] 1 AllER 697; In re K (infants) [1965] AC 201. 102 In at least one decision “serious and imminent risk that the child will suffer grave and irreversible mental or physical harm” was held sufficient: Re W (a minor)(Medical treatment: court’s jurisdiction) [1992] 3 WLR 758 per Nolan LJ at 781. These cases do not apply where it is acknowledged that the child will die in any event and it is a question of minimising pain: see for example Re Natalie [2012] NSWSC 1109. For a contrary decision 13 Court will not accept that death is ever in the child’s welfare. Even where the child is proven to have sufficient understanding of the consequences the child’s decision will not be determinative.103 Being child-centred, that is focussing on the child’s welfare, is being argued as necessarily denying the child a voice. By way of illustration, in one case the Court accepted as evidence the notes of a solicitor concerning his conversation with his client in which he recorded that the 15 year old girl said: “Death is final – I know that I can’t change my mind. I don’t want to die, but I would rather die than have the transplant and have someone else’s heart. I would rather die with 15 years of my own heart. If I had someone else’s heart, I would be different from anybody else – being dead would not make me different from anybody else. I would feel different with someone else’s heart, that is good enough reason not to have a heart transplant, even if it saved my life…” 104 Despite this clear expression of understanding and intent the Court ordered a heart transplant to proceed. In a variation of this approach there are cases where the court has found, as a question of fact, that the medical condition of the child is such that it vitiates consent. Anorexia Nervosa has been described as ‘destroying the ability to make an informed choice.’105 In another a ‘fluctuating mental disability’ was held to remove all capacity even though this was contrary to the evidence of the consulting child psychiatrist.106 In another the child’s views “had been conditioned by the very powerful expressions of faith.”107 Or further that the child who made a clear statement of intent had been ‘overtaken’ and ‘overwhelmed’ by events so that “she has not been able to come to terms with her situation.”108 No matter the approach (whether ignoring or minimising the voice of the child) the court is applying the welfare principle to reach the conclusion that “it is the duty of that the sanctity of leave is fundamental but not absolute see: Airedale NHS Trust v Bland [1993] AC 789; Re K (medical treatment: declaration) [2006] 2 FLR 883. 103 Rolands v Rolands (1983) 9 FamLR 320; Dalton v Skuthorpe unreported 17 November 1989 per McLelland J NSWSC; Director-General of the Department of Community Services v BB unreported 19 November 1999 per Santow J NSWSC: [1999] NSWSC 1169; Minister for Health v AS (2004) 33 Fam LR 223; Royal Alexandra Hospital v Joseph unreported 27 April 2005 per Gzell J NSWSC: [2005] NSWSC 422; Royal Alexandra Hospital for Children (trading as Children’s Hospital at Westmead) v J (2005) 33 FamLR 448 at 456-457 per Einstein J; Minister for Health v AS (2004) 33FamLR 223; Re E(A Minor) (Wardship: Medical Treatment) [1993] 1 FLR 386 per Ward J; Re KW and H (Minors) (Medical Treatment) [1993] 1 FLR 854; Re O (A Minor)(Medical Treatment) [1993] 2 FLR 149; Re S [1994] 2 FLR 1065; Re L [1998] 2 FLR 810; Re P [2004] 2 FLR 1117 at 1120 per Johnson J. Instances where the child was not a Jehovah’s Witness include: Marchant v Finney unreported 31 July 1992 per Waddell CJ in Eq NSWSC; Re Heather unreported 12 June 2003 per Campbell J NSWSC: [2003] NSWSC 532; Re M [1999] 2 FLR 1097. Also see: Archard, D & Skivenes, M “Balancing a child’s best interests and a child’s views” (2009) 17 IJCR 1 104 Re M (Medical Treatment: consent) [1999] 2 FLR 1097 per Johnson J 105 In re W (a minor) (medical treatment: court’s jurisdiction) [1992] 3 WLR 758 106 In re R (a minor) (wardship: consent to treatment) [1991] 3 WLR 592 107 In re E (a minor)(wardship: medical treatment) [1993] 1 FLR 386. 108 Re M (medical treatment: consent) [1999] 2 FLR 1097 14 the court to ensure so far as it can that children survive to attain that age [ie 18 years].”109 In a number of these cases the court has permitted, and often encouraged, the participation of the child in the proceedings. However the application of the welfare principle can be so entrenched that there are also occasions where the court can conclude: “I have no doubt, on the material before the court, that it is in Joseph’s best interests that he have the blood transfusion. He will die otherwise. His life ought to be spared.”110. This was a case in which His Honour made the initial decisions without any participation by a child welfare agency and without having heard from the boy. No independent children’s representative was appointed for the boy. No counsellor or other report by someone independent of the parties and who met the child was put before the court. Evidence of the boy’s views were only provided to the court by medical practitioners from the children’s hospital which had commenced the proceedings and the boy’s parents. The parents were not legally represented. The hospital used senior counsel.111 Hearing the child’s voice The importance of child participation While the expression ‘participation’ is not used, a child’s right to participate is clearly set out in UN CROC as one of the guiding principles of the Convention, as well as one of its basic challenges.112 The UN Committee on the Rights of the Child has made the following statement about the meaning of participation: A widespread practice has emerged in recent years, which has been broadly conceptualized as “participation”, although this term itself does not appear in the text of article 12. This term has evolved and is now widely used to describe ongoing processes, which include information-sharing and dialogue between children and adults based on mutual respect, and in which children can learn how their views and those of adults are taken into account and shape the outcome of such processes.113 109 Re P [2004] 2 FLR 1117 at 1120 per Johnson J. Also see Minister for Health v AS (2005) 33 FamLR 223; Re B (a minor) (wardship: medical treatment) [1990] 3 AllER 927. 110 Royal Alexandra Hospital v Joseph unreported 27 April 2005 per Gzell J NSWSC: [2005] NSWSC 422 111 In a subsequent decision concerning the same child a different judge said: “On the material it is clearly in his best interests that the orders be made. His life ought to be spared. He may well die in the absence of the order being made. Notwithstanding that he is over 16 years old and that his wishes must be given serious consideration, in law he is still a child. What must guide the court is its consideration of his best interests.” Royal Alexandra Hospital for Children (trading as Children’s Hospital at Westmead) v J (2005) 33 FamLR 448 at 456-457 per Einstein J. For a case in which the court made a positive decision not to appoint an independent children’s lawyer in favour of hearing solely from the medical practitioner see: Re Angela (Special Medical Procedure) (2010) 43 FamLR 98. For further discussion of this aspect see: Best, R, ‘The pre-eminence of child safety in controversial medical decisions’, Paper presented at the 11 th Australasian Conference on Child Abuse and Neglect, Gold Coast, Queensland, 1 November 2007, 6112 UNICEF Fact sheet: the right to participation:< http://www.unicef.org/crc/files/Right-to-Participation.pdf>, 1. 113 UN Committee on the Rights of the Child, General Comment No. 12: The child’s right to be heard, 20 July 2009, CRC/C/GC/12, [3]. 15 The right of a child to participate as upheld in the Convention does not promise that decisions of young people will be accepted or that decision-making will be transferred entirely to the child.114 The Convention is concerned with rights of participation, not rights of control.115 The UN Committee on the Rights of the Child has identified a child’s right to be heard and taken seriously as one of the 4 general principles of the Convention, the others being the right to non-discrimination, the right to life and development, and the primary consideration of the child’s best interests.116 This right to participate is not only a right in itself, but should also be considered in context of the interpretation and implementation of all other rights. The principle of child participation affirms rather that children are full-fledged persons who have the right to express their views in all matters affecting them and requires that this should not be perfunctory but those views are to be heard and given due weight in accordance with the child’s age and maturity. 117 No age limit is attached to this principle, although participation is placed in the context of the age and maturity of the child. Children’s levels of understanding are not necessarily linked to their biological age. Research has shown that information, experience, environment, social and cultural expectations, and levels of support all contribute to the development of a child’s capacities to form a view. 118 For this reason, the views of the child have to be assessed on a case-by-case examination. The Convention acknowledges that children can and do form views from a very early age and refers to children’s’ 'evolving capacity' for decision-making. Historically children contributed little to major decision making in society. In an era where they have moved from invisible objects to subjects with legitimate voices of their own,119 children are now more widely consulted and entitled to have their views considered. The following has been said in an English case in relation to the judicious balance to be struck in the UK’s Children Act 1989: First is the principle, to be honoured and respected, that children are human beings in their own right with individual minds and wills, views and emotions, which should command serious attention. A child’s wishes are not to be discounted or dismissed simply because he is a child. He should be free to express them and decision-makers should listen. Second is the fact that a child is, after all, a child. The reason why the law is particularly solicitous in protecting the interests of children is because they are liable to be vulnerable and impressionable, lacking the maturity to weigh the longer term against the shorter, lacking the insight to know how they will react and the imagination to know how others will react in certain situations, lacking the experience to 114 Alderson, P & Montgomery J, Health Care Choices: Making decisions with children (2001), IPPR, London. Thomas, N & O’Kane, C, ‘When children’s wishes and feelings clash with their “best interests”’, International Journal of Children’s Rights (1998) 6: 137-154, 150. 116 Above n 112, [2]. 117 Above n 111. 118 Above n 112, [29]. 119 Neale, B & Flowerdew, J, ‘New structures, new agency: The dynamic of parent child relationships after divorce,’ International Journal of Children’s Rights, (2007) 15(1), 25–42. 115 16 measure the probable against the possible. Everything of course depends on the individual child in his actual situation.120 Children can actually benefit from the experience of decision making even if their skill in generating and expressing reasons for their decisions is underdeveloped. It could then be argued that immaturity and incompetence is an insufficient rationale for denial of the opportunity for children to participate. The effectiveness of children’s participation in life and society in later years is built upon early encouragement of participation.121 Children’s participation has important implications for their well-being.122 Research shows children attribute a great deal of importance to being acknowledged as individuals with opinions and feelings of their own and as being able to constructively contribute to and shape decisions made in their everyday lives. 123 The NSW Commission for Children and Young People conducted a study involving 126 children and young people from across NSW about what well-being meant to them. In this study, participants identified how it was important to their wellbeing to be involved in decisions about their lives and that a degree of control was highly relevant to achieving significant important goals.124 It was identified in the study that children want to be involved in and be a party to making decisions that affect their lives, both immediate everyday decisions and those with longer term consequences. This is especially so when they have to live with the outcomes of the decision. 125 It was found that children having some control was also important for achieving goals, being able to negotiate and solve problems, and developing moral orientation and sense of self.126 Approaches to child participation have been characterised as protectionist, liberationist and pragmatist. The protectionist model supports adults as decision makers to prevent the child from making an unwise decision, and therefore protecting the child from the consequences of such a decision.127 The liberationist approach respects the child’s autonomy, thereby acknowledging his or her decisions as competent.128 The pragmatist approach falls somewhere between the two valuing the child’s own preferences and protecting them from questionable decisions. 129 120 Re S (A Minor) (Independent Representation) (CA) [1993] 2 FLR 437, 448E (Sir Thomas Bingham MR). Bellamy, C, The State of the World’s Children, 2003: Child Participation (2003) UNICEF The Stationary Office, New York, 20. 122 Lister, R, ‘Unpacking children’s citizenship’ In A. Invernizzi & J. Williams (Eds.) Children and citizenship (2007) Sage, London, 9-19. 123 Bagshaw, D et al., ‘Children & families in transition: towards a child-centred integrated model of practice’, Research Report by the Hawke Research Institute for Sustainable Societies, University of South Australia (2006) Magill, University of South Australia. 124 NSW Commission for Children and Young People, Ask the children: Overview of Children’s Understandings of Well-being (2007), < http://www.kids.nsw.gov.au/uploads/documents/ATC_wellbeing.pdf>, 2-3. 125 Ibid, 4. 126 Above n 111, 4. 127 Benporath, S, ‘Autonomy and vulnerability: on just relations between adults and children’, Journal of Philosophy of Education (2003), 37:127-145. 128 Baston, J, ‘Healthcare decisions: a review of children’s involvement, Paediatric nursing (2008) 20(3):24-26, 24-25. 129 Ibid, 25. 121 17 Each of these gives the child information, allows the child to speak and gives due weight to what is said. Whilst there are various models and approaches to including children in decision making, what has been emphasised at an international human rights level is the need to develop and implement programs to promote meaningful participation by children in decision making.130 Being child centred therefore includes hearing the child’s voice. In considering how to encourage the participation of the child, another aspect to be considered is the structure of the hearing. The litigious and strictly adversarial approach of most court hearings, high costs of proceedings, and delays which cause painful inconvenience associated with cases involving children with disabilities were all acknowledged by the majority in Marion’s case. The majority stressed the need for legislative reform and a more appropriate process for decision-making in cases of this nature.131 Nicholson CJ adopted a different approach in Re Alex, which avoided the formalism and adversarialism of typical litigation, and encouraged a child-centred experience. The approach adopted by Nicholson CJ was seen by the parties to the proceedings to “enhance the depth and richness of the evidence and thereby better served the aim of an outcome which will be in Alex’s best interests”.132 His Honour recommended this as the preferred approach in special medical procedure cases. His Honour noted that the hearing was different in the following ways: The hearing was conducted in an inquisitorial rather than adversarial format The hearing was conducted in a private conference room setting around a table using portable recording equipment The hearing often took the form of an orderly discussion between witnesses and legal representatives (including, sometimes, instructing solicitors) and His Honour The nature of the proceedings lent themselves to more than one hearing date rather than a single continuous fixture. This enabled parties to provide further expert material and for witnesses to consider the evidence of other witnesses and to respond in a considered way to material points of difference, and At Alex’s wish, Alex met with His Honour in private and without objection, and aspects of the conversation remained confidential.133 Court proceedings under parens patriae have also been recognised as requiring a different approach. “[The Court] is really sitting primarily to guard the interests of the ward … Its jurisdiction is in this respect parental and administrative, and the disposal of controverted questions is an incident only in the jurisdiction”134 130 Above n 112, [88]. Secretary, Department of Health and Community Services v JWB and SMB (Marion’s Case) [1992] HCA 15, [54] (Mason CJ, Dawson, Toohey and Gaudron JJ). 132 Re Alex Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503: [2004] FamCA 297, [41] (Nicholson CJ). 133 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004)31 FamLR 503: [2004] FamCA 297, [43] (Nicholson CJ). 131 18 “wardship proceedings are not like ordinary civil actions. There is no ‘lis’ between the parties. The plaintiffs are not asserting any rights; they are committing their child to the protection of the court.”135 “The court’s concern is predominantly for the welfare of the person’s involved. It is not a jurisdiction that is bogged down at all with any technicalities. It is a quite separate jurisdiction to the supervisory jurisdiction that is committed to this court by way of prerogative orders under which this court supervises inferior courts and tribunals to make sure that they do justice and right to all people before them. I agree with respect to what was said by Palmer J in Re Victoria (2002) 29 FamLR 157 that the parens patriae jurisdiction is only to be exercised in exceptional cases. However, one of those exception cases is where it is urgently required that some protective order may be made and the court can see that other curial processes may not be able to provide instant relief…….. [Just as under section 93, Children and Young Persons (Care and Protection) Act 1998] the Children’s Court may act on material which is not, strictly speaking, evidence. So may this court (see Roberts v Balancio (1987) 8 NSWLR 436).”136 There have been arguments made, that decision making for special medical procedure cases should be removed from the realms of court decision making. An alternative approach suggested is the option of having a specialist tribunal to make decisions in relation to special medical procedures. In support of this proposal, it has been submitted that the process for decision making should take into account the broader experiences of those who have had the same experiences, and as much as possible take into account the range of options available to children who identify with the opposite gender.137 Multi-disciplinary tribunals have been established in some Australian states, which are set up for the purpose of decision-making with respect to people with disabilities. In defence of the proposition that a tribunal should deal with these cases, it has been argued that the majority’s view in Re Marion may have underestimated the inquisitorial nature of Family Court proceedings where children’s welfare is concerned.138 In proceedings involving children before the Family Court and in exercising its parens patriae jurisdiction, the Court is not governed by the same adversarial procedures as other kinds of matters. The parens patriae jurisdiction provides one of the few examples of a common law jurisdiction which has considerable inquisitorial features and tends, in most cases, to be adversary in form only.139 A formal case planning approach, involving the child, the family, the child welfare authority, relevant medical practitioners and an independent representative for the 134 Scott v Scott [1913] AC 417 at 437 per Vicsount Haldane LC In re B (JA) (an infant) [1965] 1 Ch 1112 at 1117 per Cross J. 136 Re Frances and Benny unreported 22 November 2005 NSWSC per Young CJ in Eq [2005] NSWSC 1207. 137 Parlett, K & Weston-Scheuber, K-M, ‘Consent to treatment for transgender and intersex children’ Deakin Law Review (2004) 9(2):375-397, 395. 138 Nicholson, A, et al, ‘The Role of the Family Court in Medical Procedure Cases’, Australian Journal of Human Rights (1996) 2(2):242. 139 Ibid. 135 19 child could be another means of arriving at a decision which meets the welfare of the child. This process could involve alternative dispute resolution with the aim of agreement being reached as to a treatment plan for the child. If agreement is reached between the parties, the Court or a tribunal could still have a role in approving the plan and ensuring that it was consistent with the child’s best interests, without the commencement of formal proceedings. If there was a dispute as to what was in the child’s best interests between the parties, then there would still be a need for a forum for resolving that dispute, such as a court or a tribunal. Child participation in medical decision making Although parents and physicians have traditionally made most medical decisions on behalf of children, the development and autonomy of children is increasingly being recognised in medical decision making.140 The UN Committee on the Rights of the Child has provided some guidance in relation to how children can be heard in decisions relating to their own health care. The principle of child participation set out in the Convention requires respect for the child’s right to express his or her views and to participate in promoting the healthy development and well-being of children.141 The UN Committee has identified a number of related issues that need to be considered in respect of a child’s involvement in practices and decisions relating to his or her own health care: Children, including young children, should be included in decision-making processes, in a manner consistent with their evolving capacities. They should be provided with information about proposed treatments and their effects and outcomes, including in formats appropriate and accessible to children with disabilities Countries need to introduce legislation or regulations to ensure that children have access to confidential medical counselling and advice without parental consent, irrespective of the child’s age, where this is needed for the child’s safety or well-being. The right to counselling and advice is distinct from the right to give medical consent and should not be subject to any age limit Countries should arrange for the provision of clear and accessible information to children so as to help them participate in paediatric and clinical trials, and Countries should enable children to contribute their views and experiences to planning and programming health services. Notably, the UN Committee welcomes the introduction in some countries of a fixed age at which the right to consent transfers to the child. Children above that age would have an entitlement to give consent without the requirement for any individual professional assessment of capacity after consultation with an independent and competent expert. The UN Committee strongly recommends that countries ensure that, where a younger child can demonstrate capacity to express an informed view on her or his treatment, this view is given due weight. 142 Harrison, et al, ‘Bioethics for clinicians: 9. Involving children in medical decisions’, Can Med Assoc (1997) 156(6): 825-828, 825. 141 Above n 112, [98]. 142 Above n 112, [102]. 140 20 Guidelines from the Royal Australasian College of Physicians propose that a child’s ability to competently participate can be categorised into 1 of 4 areas: Being informed Being consulted Having views taken into account in decision-making, and Being respected as the main decision-maker.143 These guidelines also indicate that competence, like all forms of cognition, develops over time depending on the individual and it is important not to prejudge a child based on their age, as children, particularly those living with a life threatening illness, often possess a maturity in appreciating their circumstances that is beyond their chronological age. The older child, depending on maturity and family/whanau support, will often be able to influence or determine their treatment and should be actively encouraged to participate in decision-making.144 Gender re-assignment cases Procedure in the Family Court The procedure for these applications is set out in the Family Law Rules 2004 (Cth).145 An application can be made by: A parent of the child A person who has a parenting order in relation to the child The child The independent children’s lawyer, or Any other person concerned with the care, welfare and development of the child.146 Once an application is filed, evidence must be given (generally in the form of an affidavit) to the Court that the proposed medical procedure is in the best interests of the child.147 The evidence must include evidence from a medical, psychological or other relevant expert witness that establishes the following: The exact nature and purpose of the proposed medical procedure The particular condition of the child for which the procedure is required The likely long term physical, social and psychological effects on the child: o If the procedure is carried out, and o If the procedure is not carried out The nature and degree of any risk to the child from the procedure Royal Australasian College of Physicians, Paediatrics & Child Health Division, ‘Decision-Making at the End of Life in Infants, Children and Adolescents’, A Policy of the Paediatrics & Child Health Division of the Royal Australasian College of Physicians (2008), 7. 144 Ibid. 145 Family Law Rules 2004 (Cth), Ch 4, div 4.2.3. Applications for court authorisation of therapeutic secure indefinite care are usually made directly to the Supreme Court. 146 Family Law Rules 2004 (Cth), r 4.08(1). 147 Family Law Rules 2004 (Cth), r 4.09(1). Section 60CC, Family Law Act 1975 (Cth) sets out the matters that the Court considers in determining what is in the child’s best interests. 143 21 If alternative and less invasive treatment is available - the reason the procedure is recommended instead of the alternative treatments That the procedure is necessary for the welfare of the child If the child is capable of making an informed decision about the procedure whether the child agrees to the procedure If the child is incapable of making an informed decision about the procedure that the child: o Is currently incapable of making an informed decision, and o Is unlikely to develop sufficiently to be able to make an informed decision within the time in which the procedure should be carried out, or within the foreseeable future Whether the child's parents or carer agree to the procedure.148 Due to the sensitive nature of these types of proceedings, any identifying features of the case such as the names of parties, witnesses, and State in which proceedings are commenced are not published by order of the Court. The main purpose of the Family Law Rules is to ensure that each case is resolved in a just and timely manner at a cost to the parties and the court that is reasonable in the circumstances of the case.149 The timeframes for these applications as prescribed in the Family Law Rules recognises the importance of dealing with medical issues expeditiously, particularly as they relate to children.150 Practice is not always consistent with this intent so that in Re Bernadette151 judgment was delivered in January 2010, just before the child’s 18th birthday, whereas the evidence was entirely given in November 2007. Re Jamie152 commenced in January 2011 and while judgment was delivered expeditiously at first instance, no judgment has as yet been delivered in the appeal. An independent children’s lawyer is appointed to represent the child’s interests in these applications. It is the role of the independent children’s lawyer to form an independent view, based on the evidence available, of what is in the best interests of the child.153 Although the independent children’s lawyer must ensure that any views expressed by the child are fully put before the Court, the independent children’s lawyer is not the child’s legal representative and is not obliged to act on the child’s instructions.154 148 Family Law Rules 2004 (Cth), r 4.09(2). In Re Marion (No.2) (1994) FLC 92-448, Nicholson CJ proposed a number of particular matters to be considered when the Court is faced with a special medical procedure application, which are consistent with the prescribed matters required to be addressed in the evidence in support of such an application. Some of the judgments since handed down by the Family Court concerning cases of this nature have adopted a similar approach. 149 Family Law Rules 2004 (Cth), r 1.04. 150 On the filling of an application, the Registry Manager must fix a date for a hearing before a Judge of the Family Court as soon as possible after the date of filing, and if practicable, within 14 days after the date of filing.150 At the first court date for the application, the Court must either make procedural orders for the conduct of the case and adjourn the case to a fixed date of hearing, or hear and determine the application. See Family Law Rules 2004 (Cth), r 4.11, 4.12, 151 Re Bernadette (2010) 43 FamLR 467: [2010] FamCA 94 152 Re Jamie [2012] FamCAFC 8 153 Family Law Act 1975 (Cth), s 68LA(2)(a). 154 Family Law Act 1975 (Cth), s 68LA(4)-(5). 22 Cases before the Family Court Between 2004 and 2012, there have been 7 children with GID in Australia who have successfully sought court approval from the Family Court to commence hormonal treatment or surgical intervention. On 12 December 2003, an application was filed in the Family Court on behalf of ‘Alex’ by Alex’s legal guardian for authorisation of medical treatment involving the administration of hormonal therapies that would be begin a sex reassignment process (Re Alex: Hormonal Treatment for Gender Identity Dysphoria (‘Re: Alex’)155). The treatment plan was for Alex to have reversible hormonal therapies until the age of 16 years,156 then to commence irreversible hormonal therapies continuing until age 18, and finally surgery to effect a change in sex as an adult (for which Court approval would no longer be required). Alex was 13 years old at the time and anatomically a girl. Alex, however, had GID including a profound and long-standing wish to undergo a transition to become male in appearance. It was Alex’s wish to commence hormonal treatment as he began secondary school. All parties and expert witnesses were in support of Alex commencing this treatment, and the evidence was consistent in relation to the distress that Alex was suffering in a body which ‘feels alien to him and disgusts him’.157 The possibility that Alex was a lesbian had also been considered and rejected by the expert witnesses. Nicholson CJ was satisfied that Alex was aware of the physical and social implications of the proposed treatment, but was also mindful of the risks to Alex’s well-being if the treatment was not permitted. That is, if treatment was not permitted, there was concern that Alex would revert to unhappiness, behavioural difficulties at home and self-harming behaviour.158 It was also foreseen that Alex would be significantly ill at ease with his body and self-image during his period of adolescent development and transition into a male public identity as an adult would be more difficult for Alex than if it occurred at the commencement of secondary school.159 Nicholson CJ was of the view that the evidence did not establish that Alex had the capacity to decide for himself whether to consent to the proposed treatment: It is one thing for a child or young person to have a general understanding of what is proposed and its effect but it is quite another to conclude that he/she has sufficient maturity to fully understand the grave nature and effects of the proposed treatment.160 155 [2004] FamCA 297. That is, the administration of a contraceptive pill containing oestrogen and progesterone to suppress Alex’s menses. 157 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503:[2004] FamCA 297, [205] (Nicholson CJ). 158 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503:[2004] FamCA 297, [209] (Nicholson CJ). 159 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503:[2004] FamCA 297, [209] (Nicholson CJ). 160 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503:[2004] FamCA 297, [168] (Nicholson CJ). 156 23 Nevertheless, His Honour acknowledged the ‘uncontroverted evidence’ that the proposed medical treatment was consistent with Alex’s wishes and the expert evidence, which left His Honour in no doubt that orders should be made authorising the first and second stage of the proposed treatment.161 In coming to this decision, his Honour did consider the possibility that Alex’s sense of gender identity may change, however was satisfied that the proposed course of treatment (which included ongoing psychological and psychiatric assistance) would identify any changes to Alex’s sense of self as and if they arose.162 For our purposes his Honour both made a number of preliminary findings of importance which were the foundations for this outcome and proceeded in a particular way. In terms of how he proceeded his Honour not only had evidence from expert witnesses who had directly spoken to Alex but in addition his Honour met with Alex and referred to the views that Alex directly conveyed.163 His Honour was not concerned at the state of the knowledge of GID being at an early stage or even experimental. For determining the question whether this was a matter for the court to decide his concern was about the significance of the consequences of the decision.164 Finally, he defined GID not as a disorder but as part of the biological nature of Alex. This meant that the decision, again, required a decision by the Court because it was not about therapeutic treatment.165 A further application was made on Alex’s behalf in July 2007 for the Court to authorise a bilateral mastectomy procedure on Alex. In a judgment handed down in May 2009 (after orders were made granting the application in October 2007) Bryant CJ acknowledged that Alex had lived as a male for 3 ½ years and that there had been significant improvements in Alex’s life following his positive response to the physical changes arising from the hormone therapy. Alex impressed Bryant CJ as an ‘intelligent, thoughtful, reflective and creative young person with well-developed adaptive skills’. 166 Taking into account these matters, Bryant CJ said that in her opinion Alex was competent to give his own consent however as no submissions had been made by any party on this issue, Her Honour refrained from making a positive finding to that effect. Her Honour approved the proposed surgery, noting that Alex’s views, arising from his maturity and competence, provided further support for the decision.167 161 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503:[2004] FamCA 297, [169] (Nicholson CJ). 162 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503: [2004] FamCA 297, [108] (Nicholson CJ). 163 For example: Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503: [2004] FamCA 297, [188] (Nicholson CJ). 164 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503: [2004] FamCA 297, [173] (Nicholson CJ). 165 Re Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503: [2004] FamCA 297, [195] (Nicholson CJ). 166 Re Alex (2009) 42 FamLR 645: [2009] FamCA 1292, [146] (Bryant CJ). 167 Re Alex (2009) 42 FamLR 645: [2009] FamCA 1292, [146]-[147] (Bryant CJ). 24 Subsequent cases have elaborated on the principles developed in these two judgments. In Re Bernadette168 the proceedings specifically challenged the question of whether court approval was required. The Court determined that it was unable on the evidence to determine whether the treatment was for therapeutic treatment of a disease and it was because of this level of medical uncertainty, rather than the significance of the consequence of the decision, that led to the Court concluding that it had to give consent: ‘I am satisfied that there still remains grave dispute within the medical community as to the best treatment that can be offered. I am satisfied that until there is a clear cut line of authority within the medical profession, it would be difficult for parents to reach an informed conclusion in every case’.169 This position is supported by commentators In relation to ‘gender-normalising surgery’ for intersexed infants. They have argued that parents are currently unable to give informed consent because the state of medical knowledge and research precludes a full disclosure of the information necessary to make an informed, voluntary and competent decision.170 It has been contended that there is not enough accurate information available on the benefits or consequences of gendernormalising surgery for even the most well-meaning and contemplative parents to make truly informed decisions for their infants.171 While this may be so for gender surgery for intersexed infants, the same lack of medical knowledge exists in relation to the long term outcomes for adolescents undergoing hormonal treatment related to GID. As noted above, due to the current state of medical knowledge, including the fact that the causes for GID are unknown, the Family Court has affirmed the Court’s role as decision-maker in these matters and has not deferred decision-making to parental authority. The inability to be in a position to determine whether GID is a disorder or one variant of gendered behaviour combined with the lack of medical certainty as to the appropriate response meant that the Court was not satisfied that ‘transsexualism is a condition that falls within the range of matters that can be addressed and seen as falling within the parameters of normal parental responsibility to authorise treatment’.172 An appeal against this decision was ruled incompetent because by the time the court was able to consider the appeal, Bernadette was an adult.173 168 [2010] FamCA 94. Re Bernadette (2010) 43 FamLR 467: [2010] FamCA 94, [124] (Collier J). 170 Lareau, A C, ‘Who Decides? Gender-Normalizing Surgery on Intersexed Infants’, Geo.L.J (2003-2004) 92: 129-151, 147. 171 Ford, K, ‘First Do No Harm – The Fiction of Legal Parental Consent to Genital-Normalizing Surgery on Intersexed Infants’, Yale Law and Policy Review (2001) 19(2): 469-488, 487-488. 172 Re Bernadette (2010) 43 FamLR 467: [2010] FamCA 94, [122]-[125] (Collier J). 173 Re Bernadette (2011) 45 FamLR 248: [2011] FamCAFC 50. 169 25 The case of Re: Jamie (Special medical procedure)174 involved a much younger child with GID than with the cases discussed above. At the time judgment ‘Jamie’ was still pre-pubescent at 10 years and 10 months. Jamie was anatomically male but presented as (and had been known exclusively as) a girl. The medical evidence filed in support of the application was unequivocal as to the urgency for Jamie to commence ‘stage 1’ treatment to suppress male puberty as she had the pubescent development of a 14 year old male, which was rapidly progressing. Concern was held that physiological developments would be irreversible unless treatment started. The applicant parents sought approval for both stage 1 and stage 2 175 treatments at the same time to avoid the expense to be incurred by the parents, and the uncertainty for Jamie of having to return to Court. Taking into account her long-standing wish to live a life as a female, the support of her close family members, and the real risks to Jamie if the treatment was not commenced, Dessau J determined that it was in Jamie’s best interests that the treatment should commence as a matter of urgency. 176 Dessau J however was not convinced that approval should be given for the proposed stage 2 treatment as this would not come into play for another 5 or 6 years, meaning that it was not possible to project that far into the future and determine what her best interests would be at age 16.177 The judgment records that her Honour considered that there was no dispute that consent was the responsibility of the Court.178 In relation to the case law for children with GID seeking court authorisation for special medical procedures, it can be seen that the Family Court has through its emphasis on the child’s welfare generally, adopted a child-centred approach, has actively sought the views of the child, placed a significant amount of weight on those views and strived to understand the circumstances unique to each child subject to the application. In individual judgments there has been the potential for the application of the principles to be clouded and conflicted. Nicholson CJ was of the view that it is necessary in each case where the wishes of a child or young person are seen to be significant, and not just medical procedure cases, to give careful consideration to the evidence and opinions concerning the bases for such wishes and the weight they should be accorded.179 As noted this same emphasis has not been seen in all subsequent cases. The Court has also often commented in these cases on the assistance of the independent children’s lawyers who have placed the child’s views before the Court as well as actively argued for what they believe is in the child’s best interests. On the other hand, it has been disputed that rather than taking this difficult decision away from parents, it should not be classified as a welfare concern at all and the decision should be a normal decision about everyday behavioural issues made by 174 [2011] FamCA 248. This decision is currently on appeal. Stage 2 treatment would be administered when Jamie was 16 years of age which would involve taking oral oestrogen to bring about feminisation of the body. 176 Re Jamie (Special medical procedure) [2011] FamCA 248, [119] (Dessau J). 177 Re Jamie (Special medical procedure) [2011] FamCA 248, [124], [130] (Dessau J). 178 Re Jamie (Special medical procedure) [2011] FamCA 248, [33] (Dessau J). 179 Re: Alex: Hormonal Treatment for Gender Identity Dysphoria (2004) 31 FamLR 503: [2004] FamCA 297, [224] (Nicholson CJ). 175 26 the parents and those closest to the child who have the greatest knowledge about the particular condition from which the child suffers, the specific cultural and religious environment in which the child was raised, the social community in which the child will develop and other relevant factors.180 Where there is an actual conflict of interest then the court can amange that conflict – but not to be the decision-maker in all cases. This is the position as set out in a number of the US authorities. In the United States, medical intervention for children with GID is a generally matter of parental authority. As is the case in NSW where parents can consent then they must act in accordance with the best interests of the child or when there is a conflict of interest within the decision.181 US Courts have established criteria for determining when it is their duty to intervene and overrule parents’ decisions in certain matters, including where parents attempt to deny medical treatment for religious or other reasons. In these matters, the court will look at the burden of risk of the treatment and the effectiveness of the treatment when determining if they will override the parental decision.182 The role of the child welfare authority For children in out-of-home care and under the parental responsibility of the Minister, the relevant child welfare authority will always be involved (if not the applicant) for children with GID that are subject of applications for special medical procedure. This is by virtue of the Minister’s role as legal parent. Even when a child is not under the guardianship of the State, the Court may request the relevant child welfare authority to intervene or the child welfare authority may seek to join the proceedings as an ‘intervener’.183 The prescribed child welfare authority for the state or territory in which the application is filed is always to be served with the application. 184 In cases before the Family Court, AHRC has also been permitted to intervene because of the live issue of a child’s human rights in these cases. A contentious role for the child welfare authority in NSW is consenting to a category of special medical treatment. Parents and children are not able to consent to special medical treatment which includes any medical treatment that involves the administration of a drug of addiction within the meaning of the Poisons and Therapeutic Goods Act 1966 (NSW) over a period or periods totalling more than 10 days in any period of 30 days.185 An exception to this requirement is where a written exemption is granted, either generally or in a particular case, by the Director-General of the Department of Family and Community Services, Community Services (‘the Director-General’) on the written request of the Director-General of the Ministry of Health.186 Aliabadi, S A, ‘You Make Me Feel Like a Natural Woman: Allowing Parents to Consent to Early Gender Assignment Surgeries for Their Intersexed Infants’, William & Mary Journal of Women and the Law (2005), 11(5): 427-459 181 Beh, HG & Diamond, M ‘David Reimer’s Legacy: limiting parental discretion’ Cardozo Journal of Law & Gender (2005) 12:5, 5. 182 Above n 170, 141. 183 Section 92(2), Family Law Act 1975 (Cth) allows any person to apply for leave to intervene in the proceedings, and the court may make an order entitling that person to intervene in the proceedings. 184 Family Law Rules 2004 (Cth), r 4.10. 185 Children and Young Persons (Care and Protection) Regulation 2012 (NSW), cl 25(1)(a). 186 Children and Young Persons (Care and Protection) Regulation 2012 (NSW), cl 25(2). 180 27 Approval, which rests with the Director-General, for the administration of drugs of addiction to children relates to all children not just children under the parental responsibility of the Minister, Family and Community Services. The child welfare authority in NSW therefore retains a role of approving the administration of one category of special medical treatment to all children in NSW. This provides a ‘checks and balances’ approach. Whilst raised as a possible area of reform during the consultation process for the remaking of the Children and Young Persons (Care and Protection) Regulation 2000 (NSW), it is notable that, in line with submissions made, this requirement was not amended at that time.187 Reform, and possible abolition of the current legislative provisions has again been raised in the current round of reforms.188 In the current appeal before the Full Court of the Family Court concerning ‘Jamie’,189 a public advocacy body sought to intervene in the appeal, despite not being party to the initial proceedings. The public advocacy body submitted that it should be permitted to intervene in the appeal on the following general grounds: The appeal raises a significant issue that affects the interests and statutory obligations of the public authority While the independent children’s lawyer must form an independent view of what is in a child’s best interests and act on that view in the proceedings, the public authority brings a broader focus on how the law will affect other children with a disability, and As the child has a disability, namely a mental disorder, and hence comes within the jurisdiction and concerns of the public authority as set out in the relevant State legislation. The public authority’s role in respect of children with a disability intersects repeatedly and importantly with the issues before the Court in relation to special medical procedures and that any decision by the Court which potentially redefines the parameters of special medical procedures impacts upon the public authority’s role in a significant way.190 In relation to specific intervention in Jamie’s case, it was submitted by the public advocacy body that: Particular emphasis should be placed upon the sequence of decisions relating to childhood GID, which it is said is a ‘controversial and complex psychiatric disorder’. The characterisation of that disorder and its treatment as a special medical procedure is fundamental as it distinguishes those cases to which parental acquiescence can be given without necessary court intervention, from those where the Court’s involvement needs to be orchestrated by a relevant party, and 187 It was proposed that for children not under the parental responsibility of the Minister, the Director-General of Health should have the final say rather than the Director-General. 188 Department of Family & Community Services Discussion Paper. Child Protection: Legislative Reform November 2012, 52-3 189 Re Jamie [2012] FamCAFC 8. 190 Re Jamie [2012] FamCAFC 8, [18]-[21]. 28 In the State it is on every occasion the public authority who has a series of statutory responsibilities in respect of the welfare and interests, not just of children, not just of persons who are incompetent, but of, in this instance, children with a disability. The public authority has assembled significant knowledge and expertise in respect of such matters and has been a significant party in respect of most of the cases that have come before the Court emanating from the State. Contrary to the position of Re Alex at first instance, the Court accepted the submission that childhood GID is a ‘mental disorder’ classified and as such within DSM-IV, TR.191 It was accepted that by definition Jamie has a disability, namely a mental disorder and hence comes within the jurisdiction and concerns of the public authority as set out under the relevant State legislation.192 The Court permitted intervention by the public advocacy body, but limited that intervention to written and oral submissions and did not permit any evidence to be called by it. The principle role of the Director-General of the Department of Family and Community Services, Community Services within NSW is to provide services and promote the development, adoption and evaluation of policies and procedures that accord with the objects and principles of the care legislation.193 While a child welfare authority may not intervene in every special medical procedure case involving a child with GID, if a case looks to have a significant impact on future of children with this disorder as well as the safety, welfare, and well-being of other children more widely, then it is appropriate for the child welfare authority to intervene. Conclusion The Family Court has acknowledged that every decision about a child carries a heavy weight of responsibility with it, and an order that will result in a young person living in one gender when born into another carries a particular onus.194 Moreover, requiring a Court to project a child’s best interests into the future, always weighs heavily, but never more heavily than when considering a special medical procedure, part of which may ultimately be irreversible.195 A decision to proceed or not to proceed with treatment can have life-long consequences on the child. The court considers that its authorisation remains necessary and is in essence a procedural safeguard.196 In doing this, both the emphasis on categorising this medical treatment for the purposes of deciding who can provide consent and what is the welfare of the child, so that a child centred approach can be implemented, can risk drowning the child’s voice. It is evident that much remains unknown in relation to the causes of GID in children and the long term outcomes of commencing a path of medical intervention for children with GID. Notwithstanding this uncertainty, it is of utmost importance to The DSM-IV,TR is a classification of mental disorders, and under ‘gender identity disorder’ is a subcategory of ‘sexual and gender identity disorders which classify it as a ‘clinical disorder’. 192 Re Jamie [2012] FamCAFC 8, [49]. 193 Children and Young Persons (Care and Protection) Act 1998 (NSW), s 16(1). 194 Re Rosie (Special medical procedure) [2011] FamCA 63, [110] (Dessau J). 195 Re O (Special medical procedure) [2010] FamCA 1153, [108] (Dessau J). 196 Re GWW and CMW (1997) FLC 92-748, 84,108 (Hannon J). 191 29 keep the child at the centre of such an important decision as well as acknowledging and respecting the family and circumstances surrounding the child. A pragmatic approach should be adopted, which recognises that a child’s welfare needs protection while at the same time allowing flexibility for the child’s emerging knowledge, maturity and capacity for self-determination. While the primary and overriding consideration in any decision will always be the welfare of the child, optimal child participation can still be achieved by ensuring a child is fully informed, involving the child in the decision making process in a meaningful way, listening to what the child has to say, and placing due weight on the child’s wishes in accordance with the child’s capacity. While a child’s participation need not be determinative, it should certainly be given due weight. January 2013 30