Appendix 4 Equality Impact Assessment summary report Each of the numbered sections below must be completed 1. Title of plan, policy or strategy being assessed. NHS Lothian Disability Equality Scheme 2009-12: Impact on patients, carers, families and communities (see separate EQIA report for impacts on staff) 2. What will change as a result of this proposal? The Disability Equality Scheme aims to address the barriers that disable people and prevent them from accessing effective health care and information about their health, and from gaining fulfilling employment with NHS Lothian. It includes a detailed action plan that sets out the steps that NHS Lothian will take over the next 3 years to eliminate discrimination, promote equal opportunities for disabled people, tackle harassment related to disability, and meet the requirements of the Disability Equality Duty. The Disability Equality Scheme is built around the UK Equalities Measurement Framework to make it easier to measure progress towards our commitments. It tries to focus on end results rather than processes and policies. This is a report of an assessment of the impact of the Scheme on patients, carers, family members and communities. A separate impact assessment is available for impact on staff. 3. Date of RIA 6 November 2009 4. Who was present at the RIA? Name Job Title/ representing Date of RIA training Email Lesley Boyd (facilitating) Health Inequalities Manager, CHPs and REAS, NHS Lothian Gordon Mungall Disability West Lothian; West Lothian Disability Forum - Contact equality lead for details Catherine Garrod Lothian Centre for Integrated Living - Contact equality lead for details John Murdoch Lothian Centre for Integrated Living - Contact equality lead for details Wilma Lawrie Lothian Patient - Contact equality lead for details Lesley.boyd@nhslothian.scot.nhs. uk Appendix 4 Public Partnership Network Michael Pisanek Patient Information Centre Manager, NHS Lothian Jim Robinson Health Inclusion Facilitator, NHS Lothian Richard Walter Complaints Officer, NHS Lothian CHP/REAS Team michael.f.pisanek@luht.scot.nhs.u k james.robinson@luht.scot.nhs.uk Richard.walter@nhslothian.scot.nh s.uk - Susan Tennyson Senior Charge Nurse, Advanced Practitioner REAS Lui Giacomello Partnership representative, NHS Lothian Lui.giacomello@luht.scot.nhs.uk James Glover Head of Equality & Diversity, NHS Lothian James.glover@nhslothian.scot.nhs .uk - Susan.tennyson@nhslothian.scot. nhs.uk Nov 08 5. Population groups considered Potential differential impacts minority ethnic people (incl. The Disability Equality Scheme (DES) will gypsy/travellers, refugees & asylum impact on people from this group, as 1 person seekers) in 5 in Scotland is disabled. The issue of different attitudes to disability in some communities was discussed. It is possible that NHS Lothian’s promotion of the social model of disability might conflict with a more medical model adopted in some cultures. women, men and transgender Yes. As incidence of disability increases with people age there may be differential impact on older women. people in religious/faith groups Yes. Some people may have religious beliefs (or the culture they feel a part of may have those beliefs) about disability that are different to others. disabled people Yes. The DES will impact on disabled people. As it is based on the social model of disability, it will have a wide impact, potentially affecting all people who are disabled by societal barriers. older people, children and young Yes. It was noted that there would be Appendix 4 people lesbian, gay and bisexual people people of low income people with mental health problems homeless people people involved in criminal justice system staff carers Other groups (please specify) potential for differential impact dependent on whether the person concerned was in their early years, of school age, in transition between school age and adulthood, an adult of working age or an older person. Yes, for example in terms of mental health conditions among patients, carers and others in the community who are gay, lesbian or bisexual. Yes. Some types of impairment are more likely to occur in people living on low incomes which may lead to some people being at higher risk. Yes. People with mental health problems face particular barriers in accessing and benefiting from health services. Yes. Homeless people are likely to face significant barriers in accessing and benefiting from health services and face significant health inequalities. Yes. This will particularly be the case when NHS Boards take over responsibility for health service provision to prisoners during 2010. Yes (see Staff EQIA for a fuller exploration of the impacts on NHS staff) Yes. Carers face well-documented health inequalities and poor health outcomes, and are often themselves disabled. Other groups discussed included: Potential staff (i.e. people interested in a career in NHS Lothian) The general public Visitors Volunteers Contractors and agency staff Looked-after children and young people Personal assistants employed by disabled people Rurally isolated people 6. What positive impacts were identified and which groups will they affect? Impacts Impact on discrimination The Scheme was felt to be likely to have a positive impact on discrimination, not just against disable people but against other groups too. This is because the Scheme communicates strong messages about equality, diversity, dignity and respect for Human Rights. The Scheme includes commitments on accessibility of services, Affected populations All groups, including as patients, family members, personal assistants, carers and the wider population. Appendix 4 involvement of disabled people and other stakeholders, communication support and staff training and attitudes. Impact on equality of opportunity The Scheme promotes equal opportunities for disabled people and other groups. It takes a Human Rights based approach to encourage equality of opportunity for all individuals. Significant commitments are included in the Scheme to improve employment of disabled people and access to services. Impact on relations between different groups There will be a positive impact on relations between disabled people and NHS Lothian staff. The Scheme does not specifically tackle relations between different racial groups but it does promote a Human Rights-based approach to ensure that all individuals are treated with dignity and respect. Impact on harassment The Scheme will have a positive impact on harassment of disabled people. It includes commitments to improve dignity at work and address workplace harassment and bullying of disabled staff. It also promotes plans such as those to protect vulnerable adults from harassment and abuse. The scheme should hopefully also have a impact on the harassment of carers and families of disabled adults and children, which has been reported within Lothian when carers and families act as advocates for their disabled family members. Impact on positive attitudes to disability The Scheme promotes the social model of disability, and includes specific actins to promote a positive image of disability through the Communications Strategy. The Scheme also includes actions to improve the profile of disabled people among managers and senior staff in NHS Lothian. This was felt to be a positive impact. Impact on taking account of disabled people’s disabilities The Scheme will have a positive impact on the way NHS Lothian takes account of disabled people’s disabilities. Through improving awareness of disability issues and promoting a strong person-centred care approach to delivering health services, the Scheme will result in more responsive services. Through actions to develop the support that disabled staff receive in employment – including in redeployment and recruitment – the Scheme will have a positive impact on taking into account disabled staff’s disabilities. All groups, including as patients, family members, personal assistants, carers and the wider population. Disabled people, NHS Lothian staff All groups, including as patients, family members, personal assistants, carers and the wider population. All groups, including disabled people as staff, patients, family members, personal assistants, carers and the wider population. All groups, including disabled people as staff, as patients, family members, personal assistants, carers and the wider population. Appendix 4 Impact on encouraging the participation of disabled people in public life The Scheme promotes involvement of disabled people in decision making about health services, and as members of public participation groups. It also encourages disabled people to develop in their careers and as high profile members of staff. In addition, the Scheme supports work to improve the diversity of Board members. These were felt to be likely to have a positive impact on encouraging disabled people to participate in public life. Other positive impacts The Scheme will have a positive impact on diet and nutrition of disabled people through links with the Nutritional Strategy. There is likely to be a positive impact on disabled people’s ability to determine their own health care. The Scheme was also felt likely to have a positive impact on the social status of disabled people; on their employment opportunities; on their income levels; and on their participation and inclusion in wider society. All groups of disabled people, including as patients, family members, personal assistants, carers and the wider population. Disabled staff, disabled people who wish to become Board members. All groups of disabled people, including as patients, family members, personal assistants, carers and the wider population. Disabled staff. 7. What negative impacts were identified and which groups will they affect? Impacts Impact on discrimination The Scheme should include more reference to improving the standards use din capital projects so that disabled people are not disadvantaged as a result of planners following minimum building standards, which may not be adequate for accessibility, e.g. toilet space requirements. Failure to address this may have a negative impact on disabled people. Impact on harassment It is possible that an improved awareness of harassment and disability equality might conflict with attitudes to disabled people that are held by some cultural groups. The Scheme promotes a positive attitude to disability as well as a more Human Rights based approach that encourages dignity and respect for all individuals. Impact on positive attitudes towards disabled people The Scheme promotes positive attitudes to disability that might conflict with the needs of carers. To mitigate this, the Scheme should link more closely with the Carer’s Strategy. Impact on personal choice The Scheme may negatively impact on the personal Affected populations All groups of disabled people, including as patients, family members, personal assistants, carers and the wider population. Disabled staff. Disabled people from some ethnic minorities. Their carers and families. Carers of disabled people. Some disabled people Appendix 4 choices of some disabled people, for example in relation to smoking and tobacco use. However the reason for this would be to improve overall health and wellbeing. Impact on carers and family members The Scheme may result in negative impact on carers and family members as it encourages disabled people to participate more in decisions about their own health care. This may cause tensions with some attitudes to disability among carers and family members. Some carers and family members. Impact on patients in long stay facilities It was felt that the Scheme would benefit from more explicit commitments to improve facilities and specialist equipment for disabled people who are in longer-term in-patient care. Disabled people in longer term care. Impact on safety of sites and services The Scheme was felt to be likely to have a positive impact on the safety of sites and services, but it was agreed that there should be more reference to ensuring that redevelopment or building sites are safer for disabled people and that accessibility is prioritised even for temporary modifications. All groups of disabled people, including as patients, family members, personal assistants, carers and the wider population. Disabled staff. 8. Evidence available at the time of the RIA Evidence Data on populations in need Available ? Yes Data on service uptake/access Data on quality/outcomes Yes Research/literature evidence Patient experience information Consultation findings No Yes Good practice guidelines Other (please specify) No No Yes Comments Some data available on incidence of disability among the wider population. Data on use of certain NHS Lothian services The Scheme includes actions to develop data of this nature. From involvement activities with patients From involvement and consultation activities carried out June-November 2009. See separate involvement report (Appendix 1 of Scheme). Appendix 4 9. Additional Information and Evidence Required None for the purposes of this impact assessment. Data availability will be improved following implementation of actions in Scheme. 10. What communications needs were identified? How will they be addressed? The Scheme includes a wide range of actions to promote effective communication, in different formats and languages. The Scheme itself is available in different formats on request. It will be promoted via the NHS Lothian website and articles in NHS Lothian publications. It will also be the subject of a press release for external media. 11. Recommendations The DES should link more explicitly with Lothian Carers’ Strategies to ensure that the needs of carers are not impacted on negatively by promotion of more positive attitudes to disability. The Scheme should include more reference to improving facilities, bathing and toilet equipment and other specialist provision for disabled people in long term care environments. The Scheme should make more explicit reference to prioritising accessibility when building modifications or redevelopments are being planned and carried out. Effective EQIA would encourage this to take place. The Scheme should include actions to develop understanding of financial implications of equality & diversity commitments. The Scheme should include actions to encourage planners of capital projects to go beyond minimum building standards when undertaking building design, particularly with respect to accessible toilet provision. This should include joint work with Local Authority building inspectorates to improve standards and compliance with these. 12. As a result of the EQIA what actions have been, or will be, undertaken and by when? Please complete: Specific actions (as a result of Who will take them Deadline for Review date the RIA) forward (name and progressing contact details) Amendments to the Scheme as listed in the recommendations James Glover, Head of Equality & Diversity 9 November 2009 June 2010 13. Who will be consulted about the findings of this impact assessment? Appendix 4 This impact assessment will be published online for wider consultation. It was also circulated among members of the Disability Equality Steering Group. Consultation responses received during the period 17 November – 1 December have been incorporated into this report. Manager’s Name: James Glover, Head of Equality & Diversity Date: 10 November 2009, revised 1 December 2009.