ITEM 7 BOROUGH OF POOLE REPORT TO THE COMMUNITY SUPPORT AND EDUCATION SCRUTINY COMMITTEE 29th JUNE 2004 MULTI-AGENCY REVIEW OF SERVICES FOR DISABLED CHILDREN 1. PURPOSE OF REPORT To inform members of the key messages from the Review and proposed next steps to implement recommendations. 2. ACTION REQUIRED 2.1 That the contents of the report be noted. 3. BACKGROUND / INFORMATION 3.1. The Multi-agency Review was commissioned by a range of statutory agencies working with disabled children across Poole, Bournemouth and Dorset, including Pupil and Parent Support, Children and Family Services and Poole Primary Care Trust. Progress of the Review has been tracked through a Multi-agency Steering Group, the Children and Young People’s Strategic Partnership and interim findings were presented to January 6th Community Support Overview Committee. 3.2. A Final Report has been produced and accepted by the Review Steering Group on 17th March. (Executive Summary Attached) A recommendation to establish multi-agency planning structures was considered by a multi-agency chief officers meeting on May 18th which agreed; to establish a strategic planning group for Dorset, Bournemouth and Poole for disabled children, a further implementation phase of the project (to April 2005) and the continuation of the database which provides planning information on severely disabled children. 4. KEY MESSAGES FROM REVIEW 4.1. The definition of severely disabled children used for the Review was; Children with profound and severe disabilities (severe physical disability / severe sensory loss), severe learning disability, autism and those with long term life threatening illnesses. It does not cover children who have a mental illness or behavioural disorder 4.2 The needs of disabled children are changing with an increase in the numbers of children with autistic spectrum disorders and those with complex medical/health needs. Severely Disabled Children in Poole 459 of whom; Autistic Spectrum Disorder 113 Complex Medical/Health Needs 66 Comparative data relating to the above information will be presented to the Committee at the meeting on the 29th June 2004. 4.2. 4.3. 5. From consultations, parents priorities for changing services are; Better co-ordinated multi-agency services A single key worker Access to out of school and holiday activities Better co-ordinated behaviour support services Young disabled people’s priorities are; Better understanding of disability by non-disabled people and help in addressing bullying. Access to leisure and play opportunities. More choice at transition MAIN RECOMMENDATIONS 5.1. Planning and Commissioning to be developed on a multi-agency basis for disabled children with most complex needs. 5.2. Re-provision residential short break services with other short break services to better meet need and to bring Health and Social Care resources under same access route 5.3. Early Support improved through introduction of key working, service coordination and early emotional and practical support to families. 5.4. Behaviour support improved through better co-ordination of services 5.5. Participation by Young Disabled People- supporting the development of selfadvocacy groups and links to planning fora. 5.6. Out of school activities and access to leisure- developing a range of provision which can be accessed by children with complex needs. 5.7. Service Integration- bringing together Health and Social Services children’s occupational therapy services. Consider further integration of services (in 2 context of Poole Children’s Services Review) Introduce single assessment and care planning process. 5.8. SEN and schools- ensure multi-agency planning and agreements are part of any re-provison/school developments for disabled children, increase access to therapy services for disabled children in mainstream schools, increase understanding of disability amongst staff and non-disabled peers. 5.9. Transition- introduction of person centred planning at Transition to adult services with better co-ordination between key agencies. 6. IMPLEMENTATION OF REVIEW 6.1. A number of multi-agency working groups have been established to plan and implement service improvements. All groups have parental involvement. The Review recommendations will be considered as part of Poole’s Review of Children’s Services. 6.2. 6.3. Any changes planned as a result of the Review will need to be agreed through the Children and Young People’s Strategic Partnership and Poole’s business planning and political approval processes. Contact Officer: Nick Wharam, Project Manager Telephone No: 01929 557078 Date: 15th June 2004 3 Executive Summary About the Review Terms of reference To conduct a comprehensive review of the needs of disabled children To produce a five year multiagency improvement plan To implement the initial phase of the plan Progress to date Project Manager recruited Interim report detailing issues and option for change Consultation with young disabled people and parents on findings and options Final report produced Needs Analysis A multi-agency database of disabled children has been compiled to inform local and strategic planning. The definition of disability for the review is tightly focused; Children with profound and severe disabilities, severe and moderate learning disability, autism (ASD and Aspergers Syndrome) and children with life threatening or life limiting illnesses. Key messages from database; (2,495 children-Dorset, Bournemouth and Poole) Rising numbers of children with complex needs Rising numbers of children with Autistic Spectrum Disorder Potential to plan informed by need Consultation with young disabled people Key messages They want their peers, teachers and the public to have better understanding of disability. They do not want to be bullied because of their disability and want support from adults and peers They want the same access to leisure opportunities, activities with friends as their non-disabled peers They want to be heard- in individual planning and in service planning. They wanted access to self-advocacy groups and to work with non-disabled peers. Consultation Carers with Parents and Key Messages Parents fully support the range of recommendations made in this Report. They want effective key working and Care Co-ordination They want access to information, emotional and practical support especially in Early Years They want more holiday, after schools and weekend support through day care and playschemes etc. Parents want effective behaviour management services that can work in the home. They want availability of leisure activities for children with complex needs. 4 RecommendationsKey Principles to be adopted; Maximum inclusion supported by specialist services Preventative focus with early identification and intervention Clear key working arrangements Single, integrated processes assessment Child and family focused services which are effective Services focused on need not service led and delivered as locally as possible. Family empowered to maximum control of care have Person centred, well co-ordinated, smooth transition to adult services Strategic planning involving young people and parents based on accurate analysis of need. Parents and young people fully involved in individual planning and planning service developments. Increased participation by young disabled people and their parents in individual planning and planing forums. Support for self-advocacy groups Multi-agency strategic planning for disabled children supported by new commissioning group. Improved data collection and sharing maintain database of severely disabled children Multi-disciplinary working and service integration by combining social services and health therapy services, pooling of equipment budgets, closer links between Child and Adolescent Mental Health services and specialist disability services. Early Years support through emotional and practical support workers, improving social care assessment and implementation of Together from the Start Guidance. Access to Short Term Breaks and Leisure Activities- developing holiday playschemes for complex needs, opportunities for teenagers, more use of Direct Payments, development of more over night respite care focussed on most disabled. Behavioural Support- clearer care pathways for autism and attention deficit disorder, team approach to behaviour management including ‘in home’ support Joint Training on disability awareness- for teachers and other staff to support inclusion in mainstream schools and in community settings. Transition to adulthood- multiagency team approach. Introduction of person centred planning for young people. Sensory Loss- combining Social Services rehabilitation service with Education support service. Health Appointments –arranging Health appointments to be more child and family friendly Service Co-ordination through; Single assessment process One ‘family care plan’ One care co-ordinator Parent held record 5 Next Steps Interim Report Recommendations accepted and Project Manager for Implementation phase appointed Final Report presented to partner agencies Final Report published Draft Improvement Plan based on Review recommendations to Chief Officers of Partner Agencies, work plan for service priorities agreed Agreement of Improvement Plan by all agencies Progress against Implementation Plan Reviewed Jan 2004 April 2004 April 2004 May 2004 Sept 2004 Jan 2005 The Implementation Plan will need to go through various strategic planning groups within each partner agency for agreement and detailed planning but work on priority service improvements will start immediately. These are; Priority Service Improvements Supporting participation- of young disabled people and parents in planning and service development. Service co-ordination- introducing care co-ordination, single assessments and ‘family plans’ Behaviour co-ordination- ensuring that children who need help with their behaviour have a co-ordinated multi-agency service. Early support – providing early emotional and practical support to families. Increasing access to out of school activities- providing more opportunities for disabled children to access holiday play schemes, Saturday clubs and leisure activities. Improving residential short break provision- developing the short break provision to better match the needs of children and families. School/ Special Educational Needs- ensuring that disabled children have the range of multi-disciplinary services and appropriate school environment to achieve their potential. Some developments need to take place to support service improvements these are; Planning and commissioning- putting in place structures so that agencies can commission services and plan together. The multi-agency database prepared for the Review will be maintained and developed. The implementation of the Review will be supported by a project manager and assistant up to April 2005. 6