QOF Mental Health and Depression Toolkit Updated Feb 09 Simon Bennett Mental Health Facilitator Simon.Bennett@sheffieldpct.nhs.uk 0114 3051687 Aims of the toolkit This toolkit is designed to answer some questions about the mental health and depression parts of QOF, to offer practical advice on how to find the patients who should be included and what to do with them when you have found them. Why have a SMI Registers. As between a half and a third of patients on a practices mental health register will not be currently known to secondary care, primary care could be the only contact some of this group of patients have to meet their health needs. The register will enable practices to offer realistic advice to a vulnerable group of patients allowing them to make healthy choices. The Register will allow proactive care to patients including monitoring medication and care co-ordination. The register and care plan will enable a practice to intervene earlier if the patient shows a deterioration, therefore reducing the impact and duration of any impact. The register helps practices meet some of the requirements of QOF. People with severe mental health problems have a shorter life expectancy than the rest of the population with a higher incidence of cardiovascular and respiratory disease. Physical health is poorer for this group of patients with higher incidence of hypertension, obesity and smoking. People with long term physical health problems are more vulnerable to depression and if this depression is alleviated then the symptoms of the physical condition can be improved. Mental Health MH8 The practice can produce a register of people with schizophrenia, bipolar disorder and other psychosis Compiling the register The SMI register should consist of all the people in the practice who have a recorded diagnosis of schizophrenia, bi-polar disorder or other long term psychotic illness. The register should include patients with chronic conditions not people who have experienced a short term mental health problem some time in the past. Patients currently prescribed Lithium should also be included. Typically, between ½-1% of the practice population will be included in a mental health register. QOF2 specifies that people with chronic depression and personality disorder are excluded as are people with dementia. Inclusion codes 9H8 and 9H6 and exclusion codes 9H7 remain unchanged. There is no longer a need to get permission for inclusion in the register. Searching Initial searches of the practice system should be carried out looking for people who have a diagnosis of schizophrenia, bipolar disorder or long term psychosis. However some practices do not always have this information read coded. The clinicians’ knowledge of the patients and searching for particular drugs may also help identify candidates for inclusion on the register. Letters in the paper notes may be able to verify if patients have a particular diagnosis. It is worth noting that when searching drugs that in the same family as drugs for psychosis as drugs used for morning sickness and for tranquillisation. Read Codes Diagnosis Eu20 – schizophrenia E10 – schizophrenic disorders Eu31 – Bipolar affective disorders E11 – Affective Psychosis Drugs Anti psychotic drugs Anti manic drugs Depot injection Lithium Coding problems Over the years there have been people with diagnosis coding that are inappropriate for their condition, for example people who have been given a code for a ‘major depressive episode’ some time in the past, which is in one of the psychosis coding trees. These patients will be identified when a search is done for the mental health register. There are several options for overcoming this problem. See appendix 2 for further information. For more help with this contact your PRIMIS facilitator. It is important that the practice agrees appropriate diagnosis codes for depression. MH9 % of all patients with schizophrenia, bipolar disorder and other psychosis with a review recorded in the preceding 15 months. In the review there should be evidence that the patient has been offered routine health promotion and prevention advice appropriate to their age, gender and health status. Engaging with patients Because of the nature of the illness of patients on the register, motivation can be a problem. Some of the patients will also experience a chaotic lifestyle. The practice will have to take account of this and be more proactive in getting people in than it may have to be for other groups. QOF recognises the difficulties of this and asks that non-attenders be followed up within a twoweek period. As well as a letter inviting people to review appointments it has shown to increase attendance to make telephone contact close to the appointment to remind the patients of the time and date of the appointment. It may also be helpful to take advantage of patients opportunistically attending the surgery. Appendix 3 sample letter Mental Health Review Physical health checks, Health promotion and prevention advice There is no prescribed list of physical health checks for the mental health reviews as the clinician sat with the patient when undertaking the review is the best person to decide what is and what is not appropriate for that patient. Some suggestions of what to include could be o BP o Height, weight, BMI o Smoking Status – consider referral to Stop smoking services o Alcohol intake o Contraception advice o Smears o Advice about healthy living, exercise, healthy eating – consider exercise referral scheme o Employment opportunities – consider signposting to FST, bridge employment etc. Medication Review A check should be made on the appropriateness of the patients prescriptions of medications and side effects. Consideration should be given to non-psychiatric drugs. As some of these patients get their medication prescribed in different places this is an opportunity to consider interactions. LUNSERS could be used as an objective measure of side effects. Mental Health checks & care plan Liaison with secondary care Carers details MH7 % of patients with schizophrenia, bipolar affective disorder and other psychosis who do not attend the practice for their annual review, who are identified and followed up within 14 days of their non attendance. Following up non attenders Read Code for non-attendance for annual review is 9N4t One of the requirements of the mental health parts of QOF is that people who do not attend for their annual review are followed up within 14 days by the practice teams. This means in practical terms that the practice should contact these patients if they miss their appointments to rearrange another one. As this group of clients have problems that affect their motivation this has the potential to happen. In these circumstances the patient may benefit from the personal contact of a telephone call, if this is not appropriate then a letter offering a further appointment or advising contact with the practice could be sent. The number of non attenders is not a QOF scoring indicator, the points are earned by the follow up within 14 days. Appendix 3 sample letter MH4 % of patients on lithium therapy with a record of serum creatinine and thyroid stimulating hormone in the preceding 15 months MH5% of patients on lithium therapy with a record of lithium levels in the therapeutic range within the previous 6 months. Lithium These indicators remain unchanged. Relatively few people take lithium, however for those who do it is important that there is clarity about who is prescribing the medication, who is monitoring the medication and how frequently the patient is required to have appropriate blood tests. In Sheffield we have a different therapeutic range than in other areas of the country (0.4 to 0.8 mmol/l). MH6 % of patients on the register who have a comprehensive care plan documented in the records agreed between individuals, their family and/or carers ass appropriate. As up to 50% of patients on the register will not be in contact with secondary care services, the practice needs to develop a care plan. For those people on Enhanced Care Programming Approach (eCPA), the CPA care plan is sufficient evidence that a comprehensive care plan exists. Appendix 4 is an example of a care plan the practice could use (More involved care plans are available and can be forwarded if requested). It could be sent out to the patient in advance of the review meeting and the patient and carer could begin filling in parts of it, this will allow the patient and carer to take more time and care over the content of the care plan. However for some people this will not be appropriate and it will need to be completely filled in during the review meeting. The practice representative carrying out the review meeting will have to agree a course of action with the patient and carer of how they can receive appropriate help in circumstances that they require it. It will be important to use the systems that already exist within the practice so that consistency is maintained. Depression DEP1 % of patients with diabetes and/or heart disease for whom case finding for depression has been undertaken on one occasion during the previous 15 months using the two standard screening questions. As part of an annual review of people with diabetes and heart disease the two question screening should be used. The Questions are During the past month Have you often been bothered by feeling down depressed or hopeless? Have you often been bothered by little interest or pleasure in doing things? It is important to emphasise the word often whilst asking the questions. If this is not done there is potential for patients to answer yes to the question without there being sufficient reason for them to need to be followed up more thoroughly. If the patient answers yes to either question then they should be investigated further so appropriate interventions can be given. A validated questionnaire such as the PHQ-9 could be used to assist the clinician who sees the patient to assess the severity of the condition and therefore the intervention that will be best suited for them. Read code for screening 6896 DEP2 In those patients with a new diagnosis of depression, recorded between the preceding 1 April and 31 march, the percentage of patients who have had an assessment of severity at the outset of treatment using as assessment tool validated for use in primary care. There are several tools that have been validated for use in primary care. The most common ones are the Beck Depression Inventory (BDI), the Hospital Anxiety and Depression Scale (HADS) and the Patient Health Questionnaire (PHQ-9). The first two are available from different publishers and cost between 30p and 50p per copy, usually bought in batches of 50 or 100. The PHQ-9 is the scale that was specifically designed for use in the primary care environment and is free to use. It measures severity and can be used for initial diagnosis, to monitor progress and to highlight specific areas of concern for the patient. Appendix 1 includes a copy of the scale and scoring instructions. Read Codes 388f. Patient health questionnaire (PHQ-9) score 388g. BDI second edition score 388P. HAD scale: depression score Appendix 1. 2. 3. 4. PHQ-9 and scoring Paper by Simon Clay Letters Care plan sheet and crib sheet Appendix 1 Appendix 2 Depression, Mental Health & avoiding writing unnecessary Mental Health Care plans in QOF 2006 – How to sort out the mess: The problem. Until April 06, it really didn’t matter what Read code GP’s used for depression. However since depression has been included in QOF, it matters a lot, because of a potentially messy duplication between depression codes & mental health codes. The Mental Health (MH) register: Under QOF rules before April 06, the only pts who were on the MH register were deliberately put there by the active addition of one of 2 Read codes that defined the presence of a “Mental illness” (9H6 or 9H8, - “On NSF Mental Health register” or “On Severe Mental illness register”, respectively). Under QOF 06, there are now 3 different ways by which pts may end up on the MH register: 1. The presence of a “psychosis” Read code as defined by the MH ruleset, anywhere in the record. 2. Having a script for Lithium in the 6/12 before each “Reference date” (1st April each year.) 3. The presence, anywhere in the record, of one of the two “defining” MH codes listed above, 9H6 or 9H8. The Depression Read codes: The depression Read codes are roughly divided into a neurotic depression chapter & a psychotic depression chapter. So if GP’s have previously added any depression read codes that come from the psychotic depression chapter, they will now also have accidentally defined the pt as psychotic under QOF 06 & the pt will need a Mental Health care plan drawing up to score points. Many of these psychotic depression codes are not obvious, e.g. .E112 “Single Major depressive episode”, which may have the alternative rubric “Agitated depression”, or E1137 “Recurrent depression” There is no time window within which these psychosis codes must have been added, in order to trigger the psychosis definition. So codes added at any time in the past all “count” Once a psychosis code is added to the record, there is no easy way to remove the pt from the psychosis register under the MH disease category. This is because the original Read code that was introduced to remove pts from the MH group in the previous QOF (.9H7, “Removed from Mental illness register” ) does not remove the pt from the MH register if the reason the pt is on the register is the presence of a psychosis Read code. It only removes the pt if the only reason they are on the register is due solely to the presence of a 9H6 or 8 Read code – a very unlikely situation. (Most pts will have a psychosis code too!) The solution: Produce a list of all those pts with historic codes for depression that will now put the pt into the MH register. To do this run a report, searching for pts with the following codes added ever: 1. E1... & all subordinate codes EXCEPT the following 5: E118 SAD syndr’, E11z1 Rebound mood swings, E11z2 Masked depression, E140 to E140z Autism, E135. Agitated depression, 2. Eu204 [X] Post-Schizophrenic depression. 3. Eu323 [X] Severe depression with Psychosis. Then exclude those pts with a genuine reason to be in the list, perhaps by cross checking that list against last year’s list from your Mental health register. You will then be left with a list of pts, some of whom will have no active psychotic problem & who should not be in the MH register, & perhaps some who actually DO have an active psychotic problem, but were “missed” from your previous register of pts with a Mental illness, & therefore were not within the MH register last year due to the practice having previously added 9H6 or 8 to their record. A clinician is probably the only one who can differentiate these two groups, (though evidence of active antipsychotic medication being prescribed might be used as a screener perhaps?) Having derived a list of pts that should not apparently be in the list, you need to identify the code that’s putting them in there (remembering that they may have more than one code triggering insertion. You then have 4 choices: a.) Add the exception Read code 9h91 “Mental Health: patient unsuitable” to relevant pts’ records to remove them from the MH register. (You will need to do this annually as this is an expiring Exception Read code, and so lasts for one year only. b.) Change the triggering code(s) to another one with a similar meaning in terms of depression but not within the Psychotic depression chapter. (See below) c.) Leave their record alone, & do a Mental health care plan on lots of pts who have no need for one. d.) Don’t do anything much & waive some or all of the points available for the indicators involved (29 points for MH6 & 9.) Changing historic depression codes: Clearly, a practice needs to be clear about what they are doing if following this plan, as the record is being altered. However, one is able to alter a record if the record is factually incorrect, so if the practice feels that it can argue that depression codes were used previously when the clinicians were not aware that they were technically psychotic depression codes, it might be felt that that is a valid reason to alter the Read codes to ones which do not have that serious implication, neither clinically, nor with the additional false consequences foisted upon the practice & the patient by the new QOF Rulesets. Particular codes that we found had been used extensively in records included the following: E112 whose rubric variants included “Endogenous depression”, “Single major depressive episode” & “Agitated depression”. E113 “Recurrent Major depressive episode” E1137 – “Recurrent depression” A clinician needs to review the notes of patients with these codes – especially where they were added a long time ago & where the pt seems to have no recent Hx of any psychiatric illness, where suggesting to the pt that a Mental Health care plan should be drawn up would seem to be inappropriate & possibly offensive. Final task: The final section has nothing to do with the depression disease area or its Read codes. But we also found a number of pts who had had MH codes added in the past, which are technically psychosis codes, but where the illness had long-since resolved & again, a care plan was clearly unnecessary. Such pts usually had not had 9H6 or 8 on their records last year, & were therefore not in the MH register previously, but would be now, due to the presence of an historic psychosis code. Such codes included: Eu30. “Manic episode” Eu30z “Manic episode unspecified.” Again, as the rules stand, there is no code that may be added which would permanently except a pt with these codes from the MH register, & the best option may be to add the expiring exception code 9h91 “Mental Health: patient unsuitable” to the pt’s record & do it again next year unless the QOF rules are improved in the interim. Clinician record entries: It is important that all clinicians realise the relevance of psychotic depression codes & avoid adding them unless they truly want to label a pt with a psychotic depression. Some clinical systems, e.g. Premier Synergy, will allow the addition of “hooks” which can be added to particular read codes, which, if chosen, pop up a message warning the clinician of the implications of their proposed code. e.g. to E112 “Agitated depression”. Summarising: It is also important that, once a practice has been through this tidying process, the good work is not undone by summarising staff adding psychosis codes to pts with a Hx of simple depression. Practices need to give summarisers a list of acceptable depression codes to use when needed, until such time as electronic record transfer comes about. Simon Clay. July 2006. Simon.Clay@Gmail.com Appendix 3 Sample letter of invitation Dear………………. As you are or have been receiving care for mental health difficulties we are writing to invite you to attend the practice for your annual review. In this review we will do a physical health check, a review of your medication and look for any advice we can give you to improve your health. If you are not on CPA please complete the enclosed care plan sheet as much as you can, this should be done with your carer if you have one. A carer can be a relative, friend, neighbour who helps you out or looks after you when you are unwell. Bring the care plan sheet to your appointment with you, the rest can be filled out at your appointment. You will know if you are on CPA as you will have regular reviews and a care co-ordinator. Your appointment is Or Please contact the surgery to arrange an appointment Or Please book an a double/triple appointment with Dr ………… Please contact the surgery if you are unable to attend or there is a problem with your appointment. Sample letter for people who do not attend initial appointment. Dear………….. As you missed your appointment on…………….. we have made a further appointment for you on…………. Please contact the surgery to re-arrange if this appointment is not suitable. This appointment is for an annual health check so we can monitor your health with things like blood pressure and to look for ways you can improve your health. Enclosed is a copy of a care plan sheet which we would like you to fill in as much as you can, with your carer if you have one, if you are not on enhanced CPA. Bring it to your appointment so it can be completed. This will help if you become ill again. Appendix 4 Mental Health Care Plan To be completed if you are not on enhanced CPA Your Details Name Address Your Carers Details Name(s) Address DOB Contact Numbers Contact No’s Filled in with carer Yes/ No Are you Employed Full Time (more than 30 Hours) Employed Part time Doing Voluntary work In education or training Unemployed Homemaker Tick appropriate Do you see a Doctor, Nurse or Social worker secondary care? Yes/No Name address phone number What are your social care needs? – Housing, benefits etc Who is helping you with these? Others Involved – eg voluntary or community agencies. Other Relatives or Friends Contact details What are your main symptoms Are your symptoms currently well managed? Yes / No List of previous symptoms Action to be taken if symptoms not controlled What signs are there that you could be becoming unwell again? Early Warning Sign What to do, who to contact 1 2 3 Longer Term Plans eg education training employment Useful contact numbers Signed and dated by patient, carer and practice representative Review date Copies to be taken away by patient and carer Notes on Care plan Do you see a Doctor, Nurse or Social Worker in secondary care.? If the patient has a care co-ordinator and is on a care programme this care plan is not needed for QOF as the care programme plan is sufficient. What are your social care needs? This could include housing difficulties and benefit or employment problems. The patient carer could be signposted to agencies to support them with this, such as CAB if they are not already engaged. Others involved This could include NHS non mental health workers, voluntary sector workers, church and faith groups, friends and informal support. This will help the practice judge how much support is being received by the patient. It will also give the practice an idea of who is involved and who they can contact if the patient has problems. What are your main symptoms Here a framework like HoNOS could be used, or the patients own description of their symptoms. However, this may have to be interpreted by the person carrying out the review so to aid communication with other members of the practice team if they needed to use the care plan. Action to be taken if symptoms not controlled Here is a record of the actions to be taken by the patient and practice team to help control the symptoms of the patient. This could include signposting or referral on to a specialist agency. Despite best efforts some symptoms can not be controlled better than they are, however a reappraisal may help to find better solutions. What signs are there that you could be becoming unwell again In developing a relapse signature the patient should be encouraged to seek help as early as possible so to potentially reduce the length and severity of the relapse. The earlier the warning signs are noticed and action taken to resolve the problem the better to prognosis. Early Warning Signs / What to do When an early warning sign has been identified a plan of action should be developed. This could include things the patient can do themselves, E.G. managing stress and relaxation more effectively or manage medication in a different way. It could also include what the practice could do. If an agreement is made about how a patient can contact the practice to highlight a potential relapse the usual practice systems should be used so that a consistent approach can be taken by all the practice. Longer term plans This could include things like access to education and employment. How current and potential social needs could be met, including housing issues. Who the patient has been signposted or referred to, to meet these needs.