SHEFFIELD CLINICAL IMMUNOLOGY ALLERGY SERVICE AND These constitute guidelines for the diagnosis/management of the condition stated, for use by immunology doctors and nurses within the Sheffield Clinical Immunology and Allergy Service. Clinical judgement supersedes these guidelines whenever necessary. GUIDELINES FOR: TRANSITION FROM PAEDIATRIC TO ADULT SERVICE Index No: LG 55 Name, Designation Approved for local use at this centre by: Version No: Date LG 55.01 Signed Dr Egner/ Dr Shrimpton/ Dr Sargur Consultant Immunologist Date operational: Date for review: MARCH 2014 MARCH 2016 Filename: Status: Location of copies on this site: Operational /Controlled This is copy number: Summary of changes compared to previous version: Copy 1: Immunology Office CIAU Copy 2: Shared Drive Limited Access Copy 3: Nursing Station CIAU Nil - this is first version Information for patients and carers The Sheffield Clinical Immunology and Allergy Unit Transition Team Northern General Hospital 2 LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016 Sheffield Immunology and What is this leaflet about? We have written this leaflet to give you information about the Sheffield Clinical Immunology and Allergy transition team. It will tell you how the transitions team might help you, and the people who look after you. What does the word ‘transition’ mean? ‘Transition’ is another word for a change. The transition will be a gradual move from the Children’s service to the adult team; this will take place when you feel you are ready to transfer. As you become an adult there will be many changes in your life. For you, one of these changes is that you will be joining the adult Clinical Immunology and Allergy (CIAU) services at the Northern General Hospital here in Sheffield. Who do the Sheffield CIAU transitions team h e l p ? We offer help and support to all young people who are new to adult CIAU services. This will include: • Young people who are moving from children’s services to adult services. • Young people who are new to Immunology and Allergy services • The people who look after young adults who are new to Immunology and Allergy services. We will carry on offering you, and the people who look after you, support for as long as you need it in order to settle into adult services. What will happen when? We would normally start discussing transition from Children’s to adult care at the age of fourteen. This is to prepare you for the move to CIAU and the adult team We would usually expect to start talking about transition when you are about 14 years old. Although this sounds quite a young age to be thinking about moving to adult services, it’s just the starting point. We may ask you if you 3 LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016 want to come in to your regular consultation at the Children’s Hospital on your own to “practice” answering questions and telling us how you’ve been. You can do this without your mum or dad being there and they can be invited in later in the session. When you’re about 15, we will invite the Adult team over to the Children’s Hospital transition clinic from the Northern General Hospital. There will be 1 Doctor and 1 Nurse so it’s not too overwhelming. There will be other young people your age at the same clinic. Your second clinic will be at the Northern General Hospital, where you will see the same adult team you met at the Children’s but you will still see your team from the Children’s there too. If you are receiving treatment for your condition at home, the Children’s and adult nurse will do a joint visit at your home so you can meet her at home and ask any questions. After that, and if you feel ready, you will start to have your appointments at the Northern General Hospital with the adult team. What might t h e Sheffield CIAU transitions team d o to help me settle in? The move from Children’s services to adult services is a very important time for you and your family. The transitions team is here to make this change go as well as possible for you and the people who look after you. The transitions team will help and support you in many different ways. These may include: A named member of the transitions team to welcome you and to help you settle into adult services. They will show you around the unit and will keep working with you to help you to settle in, for as long as you feel you need their help. You may also be introduced to one of our patients who has already settled into the adult services. They can talk to you about the unit and may be able to answer some of your questions about adult services. Please ask us if you think this may help you. 4 LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016 Who is in the Sheffield CIAU transitions team? The transitions team has many different people in it. This includes: • Medical staff • Nursing staff • Other people working at the adult CIAU unit like dieticians and physiotherapists. You can find out a bit more about each member of the transitions team in our transitions team information folder. Please ask your named worker if you would like to look at a copy of this. Where is the Clinical Immunology and Allergy Unit? We are located at the Northern General Hospital. We have a dedicated unit to look after people with primary antibody deficiency and allergies. What happens if I do not find it easy to settle into adult services? Firstly, your named worker will talk to you and the people who look after you about what you are finding difficult in adult services. They will do everything they can to make things easier for you. You are free to ask any questions you wish and tell us about any anxieties you have about moving to the adult services in confidence. Then we can work together to improved things. What happens when I think I have settled into adult services? A meeting will be set up. You will be able to invite anyone you want to the meeting. Your named worker will come along too, and maybe anyone else at the hospital who knows you well. At this meeting, we will ask you how you think you have settled into adult services. We will also ask other people who know you how they think you have settled in. If everyone agrees that you do not need any more support to settle in to adult services then the transitions team will close your case. 5 LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016 The transitions team will still be there for you to contact in the future if you need them. How do I find out more about the Sheffield CIAU transitions team? You can ask any staff member here at the Sheffield Immunology and Allergy Unit. They should be able to put you in touch with their ward or department's link worker from the transitions team. You can also contact the transitions team directly using the contact details we have put on the next page. Can I still contact the Children’s team? You can contact the team until you feel you are comfortable with the team at the Northern General. Can my parents / carers attend my appointments with me? We would encourage you to have the consultation alone for experience but have your parents with you and they can be invited to the consultation at a time you wish them to be there. How do I contact the Sheffield CIAU transitions team? • You can ring Dr Egner via his secretary 0114 2269052 Sister Fran Ashworth 0114 2266964 or bleep 2918 • You can email Fran Ashworth Fran.ashworth@sth.nhs.uk 6 LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016 • You can write to us with our name and job title to: Clinical Immunology & Allergy Unit The Northern General Hospital Herries Road Sheffield S5 7AU You can also ask any member of staff at Sheffield Clinical Immunology and Allergy unit to contact Fran Ashworth. We hope to have reassured you by this information leaflet. We will support your at all times during your transfer to the adult service. Please feel free to contact us at any time for an informal chat. Clinical Immunology and Allergy Unit opening times Monday –Wednesday Tuesday –Thursday Friday 8am - 4.30 pm 8am - 5.30 pm 8am - 3pm This information can be made available on request in alternative formats including Braille, large print, audio, electronically and other languages. For further details email: alternativeformats@sth.nhs.uk © Sheffield Teaching Hospitals NHS Foundation Trust 2010. Re-use of all or any part of this document is governed by copyright and the “Re-use of Public Sector Information Regulations 2005” SI 2005 No.1515. Information on re-use can be obtained from the Information Governance De pa rtmen t , Sheffield Teaching Hospitals. Email infogov@sth.nhs.uk 7 LG 55 01 Transition from Paediatric to Adult Service – Expires March 2016