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Society for Disability Studies 26th Annual Conference:
(Re)creating Our Lived Realities
June 26 - 29, 2013 • Orlando, Florida
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Overall Schedule
Wednesday, June 26th, 2013
Registration Open
1 - 8 pm
Welcome Reception
6 - 7 pm
Opening Plenary Session 7 - 8:15 pm
Thursday, June 27th, 2013
Registration Open
8 am - 6 pm
Concurrent Sessions (1) 8:30 - 10 am
Refresh & Relocate (R&R) 10 – 10:30 am
Concurrent Sessions (2) 10:30 am - Noon
Lunch on your own
Noon – 1:30 pm
Silent Auction Open
Noon – 6 pm
Concurrent Sessions (3) 1:30 – 3 pm
R&R
3 – 3:30 pm
Concurrent Sessions (4) 3:30 – 5 pm
New Book & Poster Session Reception 5 – 6:30 pm
Plenary Session
8 – 9:30 pm
Friday, June 28th, 2013
Registration Open
Silent Auction Open
Concurrent Sessions (5)
R&R
Concurrent Sessions (6)
Lunch on your own
Concurrent Sessions (7)
R&R
Concurrent Sessions (8)
Optional Meetings
8 am – 5 pm
8 am – 5 pm
8:30 – 10 am
10 – 10:30 am
10:30 am – Noon
Noon – 1:30 pm
1:30 – 3 pm
3 – 3:30 pm
3:30 – 5 pm
5:15 – 6:15 pm
Saturday, June 29th, 2013
Registration Open
8 am – 6 pm
Silent Auction Open
8 am – Noon
Concurrent Sessions (9) 8:30 – 10 am
R&R
10 – 10:30 am
Concurrent Sessions (10) 10:30 am – Noon
R&R
Noon – 12:15 pm
Silent Auction Pick Up
2:30 – 6:00 pm
Luncheon & Plenary
12:15 – 1:30 pm
Awards & Business Meeting 1:30 – 2:30 pm
R&R
2:30 – 3 pm
Concurrent Sessions (11) 3:30 – 5 pm
Optional Meetings
5:15 – 6:15 pm
SDS Dance
9 pm – Midnight
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Table of Contents
About the Society
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About the 2013 Conference
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Welcome From the SDS President
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Conference Acknowledgments
9 - 11
SDS 2013 Award Recipients
11 - 13
Conference Services
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Rooms & Locations
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Detailed Program Schedule
Wednesday, June 26
Thursday, June 27
Poster Sessions
Book Reception List
Friday, June 28
Saturday, June 29
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17 - 27
26 - 27
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28 - 38
39 - 47
Attendee Directory
48 - 54
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About the Society
Executive Office
107 Commerce Centre Drive, Suite 204
Huntersville, North Carolina, 28078, USA
http://www.disstudies.org
Executive Office Staff
Tri Do
Oanh H. Huynh
Jeremy Jarrell
Jane Ayres Johnston
Stephan J. Smith
Valerie Spears-Jarrell
DS Conference Program Co-Chairs
Michael Rembis
Samantha Schalk
Phil Smith
DSQ Co-Editors
Bruce Henderson
Noam Ostrander
www.dsq-sds.org
SDS Founders
Daryl Evans
Steve Hey
Gary Kiger
John Seidel
Irving Kenneth Zola
SDS Presidents
Tammy Berberi 2012 - 2013
Devva Kasnitz 2010 - 2012
Pamela Block 2009 - 2010
Noam Ostrander 2008-2009
Chris Bell 2006-2007
Corbett O’Toole 2006
Jim Ferris 2005-2006
Anne Finger 2002-2005
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Phil Ferguson 2000-2002
David Mitchell 1998-2000
Adrienne Asch 1996-1998
Corinne Kirchner 1995-1996
Richard Scotch 1994-1995
Sharon Barnartt 1993-1994
David Pfeiffer 1991-1993
Barbara Altman 1990-1991
Daryl Evans 1989-1990
Irving Zola 1986-1989
2012 - 2013 SDS Board of Directors
Tammy Berberi, President; berberit@morris.umn.edu
Frank Wyman, Vice President; chips314@aol.com
Allison Carey, Secretary; ACCare@ship.edu
Joan Ostrove, Treasurer; ostrove@macalester.edu
Funmi Akinpelu, Director; funmiakinpelu2000@yahoo.com
Liat Ben Moshe, Director; lbenmosh@uic.edu
Devva Kasnitz, Ex Officio; devva@earthlink.net
Michael Rembis, Director; mrembis@gmail.com
Sami Schalk, Director; sami.schalk@gmail.com
Phil Smith, Director; psmith16@emich.edu
Sunaura Taylor, Director; Sunaurataylor@gmail.com
Russell Vickery, Director; russell@rjv.co.nz
Gregor Wolbring, Director; gwolbrin@ucalgary.ca
Stephan J. Smith, Executive Director, ex-officio; stephan@ahead.org
SDS Mission
The Society for Disability Studies (SDS) is an international non-profit organization that is
dedicated to the cause of promoting disability studies as an academic discipline.
Disability Studies recognizes that disability is a key aspect of the human experience,
and that the study of disability has important political, social, and economic implications
for society as a whole, including both disabled and nondisabled people. Through
research, artistic production, teaching and activism, SDS seeks to augment
understanding of disability in all cultures and historical periods, to promote greater
awareness of the experiences of disabled people, and to advocate for social change.
About SDS
SDS was founded in 1982 by a core of dedicated sociologists, advocates, and experts
in the field of disability studies, and was originally named the Section for the Study of
Chronic Illness, Impairment, and Disability (SSCIID). The organization was renamed the
Society for Disability Studies in 1986. The Society maintains affiliation status with the
Western Social Science Association (WSSA) through its Chronic Disease and Disability
Section. SDS currently has hundreds of national and international members who
contribute their time, energy and expertise to making disability studies a large part of
academic conversations.
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The Society has more than 400 members from around the world, and is governed by a
Board of Directors elected by members of the Society. Efforts are made to ensure that
the composition of the Board reflects a diversity of disabilities, academic disciplines,
gender, age, race, ethnicity and education.
SDS Thanks:
SDS extends gratitude to the following individuals and organizations for their time,
energy, and expertise contributed in support of the access and logistics of the 2013
conference:
2013 SDS Interpreter Team
2013 CART Writers
Alternative Communication Services, LLC
Anthony Verdeja & Tracy Villinski
Jim Kessler
Michael T. Smith, Experient, Inc.
Jay Varner & Dalton Morgan
Rick Prickett
Lakshmi Ford
The Artism Ensemble
Thank You to SDS Conference Sponsors:
A2 Deaf Psychological Services, LLC
Canadian Scholars’ Press Inc.
Liverpool University Press
Lynne Rienner Publishers
Syracuse University Press
Routledge
The University of Minnesota, Morris
Temple University Press
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About the 26th Annual SDS Conference
Welcome to the Society for Disability Studies 26th Annual Conference! We are so
excited to be in Orlando, Florida to celebrate another great year of excellent scholarship
and community together.
This year’s theme is “(Re)creating Our Lived Realities.” Playing off our particular
location of Orlando– the home of Disney World, Universal Studios, and Epcot Center –
this year’s conference theme seeks to explore the myriad ways in which we work to
(de)construct the various realities in our lives. Whether through laws, policies, militaries,
language, rituals and customs, or the many decisions we make in our daily lives, we are
constantly transforming and being transformed by the built material, social, and cultural
environment(s) around us. The presentations, workshops, and discussions included in
this year’s program engage with disability in its various cultural and historical contexts
as well as the many social relations, identities, and communities with which it interacts.
We hope that our chosen theme will make for a creative and intellectually invigorating
conference experience.
The 2013 conference program includes many wonderful highlights such as:
A performance by local music group, The Artism Ensemble
A plenary organized by Jeff Brune reflecting on the 25th anniversary of Goffman’s
Stigma
Hundreds of presenters from a variety of disciplines, states, and countries
Three thematic conference strands. The Professional Development strand provides
opportunity for emerging scholars, artists, activists, and practitioners to learn from our
established and experienced members. The Power and Privilege strand reflects on
issues of central concern to our membership: how power, privilege, oppression, and
marginalization impact our world. Finally, the Translational Research strand, funded by
an NIH grant, will demonstrate how disability studies theory contributes to the
conception of health sciences research and practice and provide best practice
examples of disability studies translational research and practice.
An exciting poster session and New Book/New Work Reception
A fun silent auction funding SDS travel scholarships for our many student and lowincome members
The infamous Saturday night SDS annual dance!
We hope that you have a fabulous experience at the 2013 Society for Disability Studies
conference. We thank you for attending, participating, and continuing to improve the
field of disability studies.
Sincerely,
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Sami Schalk, Mike Rembis, and Phil Smith
Program Committee
Welcome From the SDS President
Dear SDS,
It is a pleasure to join you here in Orlando! First and foremost, let me acknowledge Mike
Rembis, Sami Schalk, and Phil Smith for their hard work as this year’s program
committee co-chairs. We are going to have a terrific time this year thanks to their hard
work and to the many others who have contributed to this gathering. Thanks also to the
many SDS members who contributed time and energy to committees and / or items to
the SDS silent auction, the proceeds of which go directly to scholarships for next year’s
attendees. Your generosity keeps SDS looking forward.
What has SDS been up to since the last time we met, in Denver? Just a few projects of
note: First, we’re rolling out SDS’ completely redesigned web site: we hope it will
improve information sharing, board functionality, member relations, and SDS’ relations
with the world outside of disability studies. Second, while you are here in Orlando, pick
up a draft of the proposed guidelines for developing a special interest group (SIG) within
SDS. SIGs are a terrific way for you to network with others who share your interests;
they’re also a great way to shape SDS’ agenda as an organization. Have a look and
send your constructive comments via email to SIG@disstudies.org . Third, this fall in
anticipation of the projects described below, SDS will be promoting its organizational /
institutional membership, bundling up to fifteen months for the price of twelve.
Organizational / institutional members of SDS may designate two “named” members
annually; any person affiliated with the organization may register for the SDS annual
conference at member rates (if you haven’t checked lately, that’s significant savings!).
Stay tuned to the SDS listserv for more information about this promotion.
Finally, I’d like to take this chance to look ahead. As you know, SDS is looking forward
to celebrating the 25th Anniversary of the Americans with Disabilities Act with the ADA
Legacy Project in Atlanta, June 10-13, 2015. Lucky for us, Kristen Vincent from the
Legacy Project is here this year to let SDS members know how we can help. Kristen is
hosting session 11B “The ADA Legacy Project: Exploring Partnership Opportunities,” on
Saturday at 3:00 p.m. If you miss the Legacy session, it won’t be your last chance to
meet Kristen or to get involved: she’ll be around all weekend. Next year in Minneapolis
(June 11-14, 2014), we’re planning to feature at least one strand dedicated to the
anniversary of the ADA. In addition, on behalf of DSQ and special editor Dr. Richard K.
Scotch (this year’s winner of the SDS Senior Scholar Award), I’m pleased to announce
a special issue of DSQ that will also honor the anniversary of the ADA. Please watch
the SDS listserv for a call for contributions!
In closing, I hope you will join me in wishing one of our program chairs, Sami Schalk, a
very happy birthday on Saturday at the dance.
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All best wishes for a lovely conference!
Tammy Berberi
SDS President 2012-2014
berberit@morris.umn.edu
Conference Acknowledgements
The SDS Conference is always the product of numerous individuals who strive to
produce a terrific conference, and this year we have many people to thank. We give our
heartfelt thanks to:
2012 – 2013 SDS Committees
We thank all of you who serve on SDS Committees. If you are interested in volunteering
for an SDS committee, please contact the chair of the committee of interest or SDS
President, Tammy Berberi.
ADA Legacy Project: Tammy Berberi, berberit@morris.umn.edu; Kristen Vincent,
kevincent619@gmail.com
Affiliated Scholar Program: Michael Rembis, mrembis@gmail.com
Awards: Liat Ben-Moshe, lbenmosh@uic.edu; Sunaura Taylor,
sunaurataylor@gmail.com
Fundraising: Joan Ostrove, ostrove@macalester.edu
Membership: Joan Ostrove, ostrove@macalester.edu,
Newsletter: Funmi Akinpelu, funmiakinpelu2000@yahoo.com
Nominations/Elections: Liat Ben-Moshe, lbenmosh@uic.edu
Program: Sami Schalk, sami.schalk@gmail.com; Michael Rembis,
mrembis@gmail.com; and Phil Smith psmith16@emich.edu
Research and Publications: Tammy Berberi, berberit@morris.umn.edu; Gregor
Wolbring, gwolbrin@ucalgary.ca
Site (Minneapolis): Tammy Berberi, berberit@morris.umn.edu
Web development & maintenance: Tammy Berberi, berberit@morris.umn.edu; Jeremy
Jarrell, jeremy@ahead.org
2013 SDS Program Committee & Reviewers
Tammy Berberi
Arthur Blasser
Sue Butte
K. Caldwell
Ally Day
Matthew Eichler
Nirmala Erevelles
Joshua Eyler
Jim Ferris
Carol Goldin
Andrew Granite
Alberto Guzman
Aimi Hamrai
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Paul Harpur
Sheila Johnson
Devva Kasnitz
John Kinder
Petra Kuppers
Priya Lalvani
Dennis Lang
Carla L. Lewis-Irizarry
Elizabeth Lockwood
Tina Naami
Adam Newman
Sara Scalenghe
Angela Smith
Kala Srikala Naraian
Amy Taklif
Miranda Sue Terry
Alisha Vasquez
Nicole Wedgwood
Tara K. Wood
Translational Research in Disability Studies and the Health Sciences Strand
Description:
The conference strand within the Society for Disability Studies 2013 and 2014 meetings
is funded through the National Institutes of Health (NIH), Eunice Kennedy Shriver
National Center for Child Health and Human Development. It addresses a call for
increased “translational research” in the Health Sciences. The NIH has asked for the
development of interdisciplinary research teams that include basic, applied, clinical, and
social scientists. We define disability studies translational research as endeavors where
disability studies investigators from two or more of the above branches of health and
applied social sciences research are collaborating on four different levels of research:
(1) Basic, (2) Applied, (3) Clinical Training & Practice, and (4) Policy.
The SDS conference strand in “Translational Research in Disability Studies and the
Health Sciences” has three objectives: Objective #1: Provide a series of panels and
workshops where senior scholars and investigators can discuss the history, current
status, and future of translational disability studies research as it interacts with the
health sciences. Objective #2: Mentor emerging disability studies scholars and
investigators. Objective #3: Build the capacity of the Society for Disability Studies to
sustain this dialogue on translational research by organizing a network of disability
studies translational researchers who are committed to organizing to meet and present
annually at the Society for Disability Studies meetings.
Research reported during this conference was supported by the Eunice Kennedy
Shriver National Institute Of Child Health & Human Development of the National
Institutes of Health under Award Number R13HD074329. The content is solely the
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responsibility of the authors and does not necessarily represent the official views of the
National Institutes of Health.
2013 SDS Award Recipients
2013 Senior Scholar Award
The 2013 recipient of the Senior Scholar Award is Richard K. Scotch, Professor of
Sociology, Public Policy, and Political Economy at the University of Texas at Dallas,
where he coordinates the programs in Sociology and Evaluation Research. Here are
some excerpts from Prof. Scotch’s nomination and letters of support that capture his
essence as a Disability Studies senior scholar:
“He has been a member of SDS for decades, serving on the board of directors, as
President, and as Program Chair during the 1990s……. He has also been central to the
movement to interject disability studies into the field of sociology. He is currently the
Chair of the Disability and Society section of the American Sociological Association
(ASA), and was one of the founders of that section.”
“Through his organizational efforts in ASA and with the formation of the new section,
scholars in the field now have a home in their discipline, including sessions dedicated to
disability, an opportunity to network with each other, and a listserv for discussion and
news sharing. I cannot express how important this is for the growth and stability of
disability studies in sociology.”
“I will always be grateful to Richard for his constructive and supportive role at just the
right moments in my career. And I know that I am not alone—he gives freely of his time
and knowledge, helping to create a community of scholars doing critical disability
scholarship.”
“Scotch has mentored countless graduate students, chaired more than 40 dissertation
committees, and in his leadership roles helped to develop a cadre of disability studies
scholars.”
“His countless works on disability policy have shaped generations of scholars’
understandings of disability’s complex meanings. His fine scholarship is not limited to
policy work. In the spirit of interdisciplinary research, Richard has distinguished himself
for stellar works in history, sociology, and political economy.”
“He models high ethical standards and offers us the meaningful fusion of scholaractivist-community member. Gentle, witty, tirelessly committed to our causes in
disability studies and activism, he brings more assets than I could list in this letter.”
The SDS board congratulates Professor Scotch and thanks all of the individuals who
participated in the SDS Senior Scholar Award process.
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The Irving K. Zola Award for Emerging Scholarship in Disability Studies
Cassandra Hartblay is a Ph.D. student (ABD) at the University of North Carolina at
Chapel Hill, and an ally to peers with disabilities since the second day of kindergarten.
Her work resonates between cultural/medical anthropology, disability studies, critical
performance ethnography, queer/gender studies, Russian studies, and anthropology of
design, and is guided by a desire to overcome persistent inequities and trajectories of
domination. Cassandra spent 2012-2013 in Petrozavodsk, Russia conducting
dissertation fieldwork with support from the National Science Foundation. Her project,
an ethnography of contemporary disability activism, includes action research in the form
of collaborative creative projects that center the voices of young adults with disabilities.
Cassandra is a cofounder of the Carolina Coalition for Disability Justice at UNC-CH, an
informal network of faculty, staff, and students dedicated to promoting the perspective
that disability is a form of diversity.
DSQ’s Tyler Rigg Award
SDS and Disability Studies Quarterly will announce and present the Tyler Rigg Award
for outstanding scholarship in the field of disability studies and literature during the 2013
Business Meeting on Saturday, June 29th. Generously funded by the Tyler Rigg
Foundation, the purpose of the award is to facilitate, promote and encourage ongoing
scholarly exploration of disability issues, with emphasis on the examination of
representations of disability through the study of literature. The $500 prize is granted to
one outstanding paper published in DSQ each calendar year.
Tanis Doe Prize for Best Poster at SDS 2013
Each year, SDS proudly awards the Tanis Doe Prize for the best poster, which includes
a $100 cash award and a certificate of recognition. The Tanis Doe award is open to
everyone at all levels of education and experience. Additionally, in 2013, SDS will
confer an “Honorable Mention” at each level of education: K-12, community college,
undergraduate, and graduate. Authors of the posters earning Honorable mention will
likewise receive a certificate of recognition. All winners will be recognized on the SDS
website. Posters will be considered by a panel of judges appointed by members of the
conference program committee and/or awards committee. Awardees will be selected at
the Poster Session and announced at the business meeting. This year’s poster session
is on Thursday at 5 pm.
Chris Bell Memorial Scholarship
The new Chris Bell Memorial Scholarship honors the life and scholarship of Chris Bell,
disability scholar and activist, former Society for Disability Studies president and cofounder of the SDS People of Color Caucus. In his article “White Disability Studies” (in
the Disability Studies Reader) he was an early proponent of including issues of race
within the field of disability studies, and his essay “To Act is to be Committed” discusses
the challenges of activism with/in the academy. Chris’s work explored issues of race,
disability, AIDS, illness, class, and sexuality. A t the time of his death in 2009, he was
an ARRT Fellow at the Center for Human Policy, Law and Disability Studies at
Syracuse University. The Chris Bell Memorial Scholarship seeks to support people of
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color doing scholarly work in the field of disability studies, with preference for those
whose work aligns with Chris’s commitment to intersectionality, identity politics and
activism.
Eligible applicants must self-identify as a low income, student, or international person of
color who will present at the Society for Disability Studies annual conference.
Dependent on need, the scholarship will help cover some of the costs of travel to and
participation in the Society for Disability Studies annual conference. The award is
funded by a generous donation of $4,000 with a challenge to us to match that amount.
This year’s scholarships were awarded to:
Haydee Smith- Chris Bell Award Winner
Tania Xalitla Ruiz-Chapman- Honorable Mention
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Conference Services
Access and Accommodations
All areas utilized for the SDS Conference are fully wheelchair accessible.
This program is available in alternate formats: on disk in text format, and in large print,
and Braille by advance request. Also available online at www.disstudies.org
Some items for service dogs including water bowls, waste bags, and pet treats are
available at registration. We want to make sure all those participating in this year’s
conference are comfortable at the Doubletree Hotel by Hilton!
Accessibility in presentations is central to the philosophy of SDS. Presenters are
encouraged to explore ways to make physical, sensory, and intellectual access a
fundamental part of their presentation. All presenters are required to, at minimum,
provide e-text versions of papers in advance of the conference (for open captioning),
large-print hard copies (18 point font or larger) of all handouts, hard copies or outlines of
their talks in 12 point and 18 point fonts, audio description of visual images, charts, and
video/DVDs, and open or closed captioning of films and video clips. Conference staff is
available for assistance and questions regarding these requirements.
All SDS sessions feature real-time captioning. Any conference participants who
requested sign language interpretation as part of their registration by June 1st have
been contacted and arrangements for interpreters have been made.
For any accessibility questions, please stop by the registration desk.
Internet Access
Wireless internet is available at no cost to conference registrants in the conference
meeting rooms and adjacent public spaces. Conference attendees can receive the
necessary log-in credentials at registration.
Transportation and Local Information
Please consult with the hotel’s Front Desk and/or Concierge for all of your local
transportation, dining, or attraction questions.
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Rooms & Locations
Registration
Located in the Citrus Crown Foyer, registration tables will be staffed Wednesday 1:00
pm - 8:00 pm; Thursday 8:00 am - 6:00 pm; Friday 8:00 am - 5:00 pm; and Saturday
from 8:00 am - 6:00 pm. SDS Staff will be at your service during all open hours.
Breakout Sessions
Rooms designated for breakout sessions are: Citrus Crown Ballroom, Osceola, Lake,
Palm Beach/Broward, Dade, and Florida Keys. Each breakout room will have an LCD
projector and screen, projected CART, and seated and standing presentation areas.
Session moderators and room moderators will be available to assist presenters during
each session.
Special Events
The Welcome Reception on Wednesday evening will be held in the Citrus Crown Foyer.
The evening performance on Wednesday evening, Plenary Session on Thursday, the
Business Meeting & banquet, and the SDS Dance will be held in the Citrus Crown
Ballroom. The Poster Session and the New Book Reception will be held in the Citrus
Crown Foyer.
Book Display
Association Book Exhibits has arranged to display books of particular interest to SDS
Members and Conference attendees. The exhibit will be available Thursday and Friday
from 9:00 a.m. – 5:00 p.m. and Saturday from 9:00 a.m. - Noon.
Silent Auction
A silent auction to raise money for SDS conference scholarships will open on Thursday
afternoon and close Saturday at Noon. Winners will be posted on Saturday afternoon.
Winners need not be present to win, but all items must be paid for by cash, check, or
credit card and claimed by 5:00 pm on Saturday. The silent auction will be located near
the registration area.
Quiet Resting Space
If you need a place to relax a bit from the conference and de-stress, the Pinellas Room
is available to you during all SDS Conference event hours. Low lighting, reduced noise,
comfortable seating, and a place to stretch out a bit will be available here.
Conversations and computer use in this room are absolutely not permitted.
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Wednesday, June 26, 2013
1:00 pm - 8:00 pm Registration (Room: Citrus Crown Foyer )
8:00 am - 8:00 pm Quiet Room (Room: Pinellas)
6:00 pm - 7:00 pm Welcome Reception (Light Hors d’ Oeuvres & Cash Bar)
(Room: Citrus Crown Foyer)
7:00 pm - 8:15 pm Opening General Session
(Room: Citrus Crown Ballroom)
Opening Performance: The Artism Ensemble
The Artism Ensemble is a neurodiverse, intergenerational, and intercultural music
performance collective featuring children on the autism spectrum, their co-participating
parents, and professional musicians of diverse musicultural background who perform a
repertoire of original improvisation-driven music composed and arranged by the child
members of the group. ARTISM is an acronym for “Autism: Responding Together In
Sound and Movement,” and the Artism Music Project is directed toward reshaping
public perceptions of autism in ways that emphasize ability over disability, agency over
disorder, vitality over impairment, and joyfulness over despair. The Artism Music Project
is sponsored in part by the State of Florida, Department of State, Division of Cultural
Affairs and the Florida Council on Arts and Culture, with support from the National
Endowment for the Arts. Additional project sponsors include Florida State University,
the Tallahassee Youth Orchestras, the Council on Culture and Arts for
Tallahassee/Leon County (COCA), and the REMO instrument manufacturing company.
Artism’s signature musical facility, the Exploratory World Music Playground, or EWoMP, is made possible by the generous sponsorship of REMO and COCA and is
based in Tallahassee. Artism’s programs are directed by ethnomusicologist Michael
Bakan and the project represents an interdisciplinary collaborative enterprise involving
the College of Music, College of Medicine, Autism Institute, and Center for Autism and
Related Disabilities (CARD) at Florida State University. The Artism Ensemble would like
to thank SDS and the DoubleTree by Hilton Hotel in Orlando for hosting and sponsoring
tonight’s concert.
Thursday, June 27, 2013
8:00 am - 6:00 pm Registration (Room: Citrus Crown Foyer)
8:00 am - 8:00 pm Quiet Room (Room: Pinellas)
Noon - 6:00 pm Silent Auction Open (Room: Citrus Crown Foyer)
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Session 1 8:30 am - 10 am
1A A World of Difference: Typing to Communicate
Room: Osceola
Strand: Communities
Moderator: Omolara Akinpelu
This panel will present a large study that investigated the complexities of support and
independence for individuals that type to communicate. The study utilizes multiple data
collection methods during intensive educational sessions with a trainer, which include
qualitative observation, as well as facilitators and students’ reports on their experiences.
A quantitative aspect was also analyzed, including frequency and durations of
behaviors, questions, activities, conversations, and comments made across the
participant pair, or with the trainer. This panel will address the following questions: What
supports and strategies are important to develop a greater physical independence when
typing to communicate? What are the outcomes in the educational environment when
more independence in typing is achieved? How can we discuss the complexities of
support and relationships between user, facilitator, and trainer? Ongoing directed
training around skills necessary for increased independence in typing is effective in the
fading of physical support and has potential implications for greater independence in
other areas of daily life.
EunYoung Jung, “Understanding the Training Sessions: Qualitative Analysis of the
Activities”
Casey Reutemann, “Fading Support: Quantitative Outcomes and Trends”
Katherine Vroman, “Complexities of Support and Independence”
1B Care Is Where the Work Is
Room: Citrus Crown Ballroom
Strand: Power & Privilege
Moderator: Adrienne Asch
This panel investigates the radical possibilities of care from a multi-disciplinary
perspective including visual art, participant observation, textual and theoretical analysis.
We ask, how have our notions of individualized and communal care shaped the art and
scholarship we produce, and the communities and movements for social change we
create? How do we engage cynical dismissals of care that keep disabled, working class,
and other people at the fringes of social justice movements as well as disciplinary
institutions? What examples do we have of radical, anti-capitalist care-work? What kind
of force or affect frames interdependent relationships of care, and how do we attend to
the forms of injustice silenced therein? How might we fundamentally reorganize social
relations around demands of maintenance and care rather than productivity? Taken
together, the papers approach care (and the care industry) as an intimate and often
violent collision of experience, power, geography, and value. They theorize radical care
as the site where the ontological conditions of disability aesthetics and politics
crystallize. Finally, they explore how justice movements are currently struggling to
account for care in the face of burnout, exclusion, and an ableist politic of urgency.
These diverse approaches highlight the centrality of care not only to capitalism, but also
to anti-capitalist struggle and liberation.
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Akemi Nishida, “Critically Engaging with Interdependence”
Park McArthur, “Lathered Politics”
Lezlie Frye, “Self-Care: Not Dead Yet”
1C Critical Disability Studies in (Higher) Education
Room: Lake
Moderator: Tammy Berberi
This panel will explore issues related to access and experience in higher education.
Jo Ann Oravec (University of Wisconsin at Whitewater), “Accessibility in Distance
Education, Moocs, and Social Media: Emerging Issues in Academic Interaction and
Workplace Training”
Jennifer Randhare Ashton (SUNY The College at Brockport), “Beneath the Veneer:
Marginalization and Exclusion in an ‘Inclusive’ Co-Teaching Context”
Kathleen M. Hulgin (College of Mount St. Joseph), “Disability Studies and Critical
Pedagogy: Pathways for Student Meaning Making”
1D Performance and Identity
Room: Palm Beach / Broward
Moderator: Ann Fox
Casey Reutemann (Syracuse University, Institute on Communication and Inclusion), “All
it Takes: Notions of Competence, Communication and Support In Experiences of Three
High School Students Who Type to Communicate.”
Michael B. Bakan (Florida State University), “Different Drummers: Making Music and
Rethinking Disability in the Ethnomusicology of Autism”
Stuart A. Read (University of Exeter), Thomas A. Morton (University of Exeter), &
Michelle K. Ryan (University of Exeter) “The Help-Seeking Paradox in Cerebral Palsy:
Exploring the Role of Identity Performance”
Steven Singer, “The Representation of Normative Societal Concepts in American Sign
Language”
Session 2 10:30 am - 12 pm
2A Disability, Art, and Artists
Room: Citrus Crown Ballroom
Moderator: Krystal Cleary
Brenda Jo Brueggemann (Ohio State University), “Constructing James Castle: Deaf?
Art?”
Jeffry J. Iovannone (SUNY Fredonia), “The Beautiful Brain: Elizabeth Jameson and
Visuals Rhetorics of Neuroscience”
Jim Ferris (University of Toledo), “Ars Gratia Artis: Disability, Art, and Something Like
Consciousness”
Gail Werblood, “A Dream Is A Wish Your Heart Makes: Flights of Fantasy and Make
Believe in Frida Kahlo’s Diary”
2B Disability Studies: Building a Collegiate Community
Room: Osceola
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Strand: Professional
Moderator: Lydia Fectau
We are not all fortunate enough to be employed at colleges and universities where there
is a cadre of DS scholars; therefore, it is challenging to negotiate with colleagues who
are not aware or invested in DS. This session will identify and discuss various
approaches that can alleviate discontinuity in teaching DS with particular attention to the
circumstances of occasional, adjunct and standalone disability studies faculty.
Presenters: Mike Dorn (SUNY Stony Brook; Long Island University), Lydia Fecteau
(Atlantic Cape Community College; Richard Stockton College of New Jersey), Joe
Amoroso (New Jersey Director of Disability Services; College of New Jersey), Millie
Gonzalez (Kean University), Carol Marfisi (Temple University)
2C Disability, Law, and the United Nations
Room: Lake
Moderator: Phil Smith
Timothy Lillie (The University of Akron), “Disability Rights: Self Evident
or Special?”
Jun Nakagawa, “Normative Basis of Reasonable Accommodation for Employees with
Disabilities”
Tara D. Flanagan (McGill University), Marisol Marfull J. (McGill University) & Carlos
Ossa (University of Bìo-Bìo) “Post-Secondary Inclusion in Chile: Notes from the
Field”
Christine Kelly (University of Ottawa), “Revealing the Lived Realities of Canadian
Disability Movements: Disability Activism Outside of the Non-Profit Sector” [Virtual
Presentation]
2D Disability and Literature
Room: Palm Beach / Broward
Moderator: Anne Finger
Jessica Groper (Glendale Community College), “‘He Was Took Very Bad to Be Sure’:
The Epileptic Experience in Nineteenth-Century Literature”
Rebecah Pulsifer (University of Illinois at Urbana-Champaign), “‘It was a Strange and
Unreal Sight’?: Disability and (Re)production in Olive Moore’s Spleen”
Jennifer Justice, “Wallace Thurman’s Tomorrow’s Children and The Interne: The
Medical Fiction of a Harlem Renaissance”
2E New Members Welcome and Q&A
Room: Dade
Moderator: Mallory Kay Nelson (Disability Design Specialist, Los Angeles)
This session will serve as an opportunity to welcome new members and give them a
sense of what the SDS conference entails, offering them advice for new members as
well as an opportunity to pose their own inquiries.
Presenters: Steven Kapp, Tammy Berberi, Ana Ruffino Darrow, & Elaine Gerber
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2F Methodology Meets Lived Reality: Re-imagining “Access” in Survey, Interview,
and Ethnographic Research
Room: Florida Keys
Strand: Translational
Moderator: Arthur Blaser
This panel, focusing on mixed-method (both quantitative and qualitative) and multidisciplinary (rhetoric/composition, rehabilitative psychology, education) disability studies
research, attempts to open new questions that will help shape the future of disability
studies’ methodology. Among the questions we raise are: In human-subjects research,
who is labeled a “vulnerable population”; who controls that labeling; and why? What
does “validity” mean in studies when researcher and participant occupy vastly different
positions of power and privilege? In what ways can disability studies theories of
interdependence and vulnerability affirm, but also challenge, existing methodological
concepts including reciprocity and peer review? In narrative/interview research, how are
narratives invited, and what positions are constructed between teller and audience in
relating a story? What kind of audiences do interviewers enact during interviews vis-àvis disability disclosure? And how are narratives analyzed not only for their referential
content, but also their rhetorical and performative dimensions? Finally, in pedagogical
research, how can instructors develop methods that enable all members of the
classroom community to develop a standpoint from which to speak regarding disability
and ableism? Although we report on several different empirical studies in the course of
this panel, our aim is more to inspire a rich discussion *about* disability studies
research, asking, “What does ‘accessible’ disability studies research mean in the here
and now?”
Margaret Price (Spelman), “Getting Specific About Disability Studies Methodology:
Negotiating Reciprocity, Safety, and Vulnerability in Quantitative and Qualitative Studies
of Mental Disability”
Stephanie Kerschbaum, “Imagining and Accessing Lived Realities in Research
Interviews”
Hilary Selznick, “Investigating Students’ Reception and Production of Normalizing
Discourses in an Advanced Composition Course”
12:00 pm - 1:30 pm Lunch on your own
12:15 pm - 1:15 pm Optional Meetings and Discussions
(Open to all, no CART except upon request)
People of Color Caucus
Room: Dade
Moderator: Jane Dunham
The People of Color Caucus and Allies meet to review the experience of people of color
at the SDS conference, their role and responsibility to SDS, and to provide a vehicle for
possible systems change within the greater disability community.
People of Color Caucus Allies
Room: Florida Keys
Moderator: Corbett O’Toole
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The People of Color Caucus and Allies meet to review the experience of people of color
at the SDS conference, their role and responsibility to SDS, and to provide a vehicle for
possible systems change within the greater disability community.
Health Care Professionals/Clinicians Discussion Group
Room: Palm Beach / Broward
Strand: Translational
Moderators: Stanley F. Wainapel (Montefiore Medical Center/ Albert Einstein College of
Medicine) & Pamela Block (Stony Brook)
This discussion group will include clinicians and other providers of health care services
who have disabilities. The goal of this meeting is to identify common issues affecting the
activities of health care professionals who have physical or mental disabilities. Among
the topics to be explored will be: challenges to daily work activities; obtaining
appropriate accommodation for disabilities; ADA compliance of employers; useful
technology for maintaining productivity; the role of stigma in interaction with other
professionals or patients; presentation of disability during hiring process; issues related
to job discrimination related to disability; and recommendations for optimal integration of
health care professionals into clinical and/or academic practice. Drs. Wainapel and
Block will serve as facilitators of a freewheeling discussion about the challenges and
rewards of careers in health care for individuals with disabilities. At the conclusion of
this Forum, the group will formulate a series of recommendations designed to provide
greater opportunity for professional enrichment and accessibility.
Session 3 1:30 pm - 3 pm
3A Disability Politics and Disability Rights
Room: Citrus Crown Ballroom
Strand: Power & Privilege
Moderator: David Mitchell (George Washington University)
People with disabilities and the organizations that represent them have actively
presented their concerns to government for many years. In recent decades, disability
advocates have sought government protection for rights of citizenship, including political
participation, and have sought legal protection from discrimination. This political
engagement has involved participation as voters and as political candidates, lobbying
for policy changes to promote disability rights, and the support of initiatives to promote
broader conceptions of citizenship that encompass disability status. The proposed panel
will explore different facets of disability politics and rights and their implications for
governmental policy and political activity in the United States, Japan, and globally.
Richard K. Scotch (University of Texas at Dallas), “Politicians with Disabilities: Do They
Have Distinctive Presentation Styles and Disability Policy Positions?”
Lisa Schur & Meera Adya, “Polling Place Accessibility in the 2012 Elections”
Jun Nakagawa, “The Quota System and Reasonable Accommodation for Persons with
Disabilities in Japan”
Sara E. Green, “Re-imagining Inclusive Citizenship for a Changing World: Contributions
from Disability Scholarship”
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3B Disability Studies and User-Centered Design: An Interdisciplinary
Conversation
Room: Lake
Moderator: Elaine Gerber
This session will take the format of a conversation between four scholars -- Rosemarie
Garland-Thomson, Sara Hendren, Aimi Hamraie, Graham Pullin, and Christopher Smit - on the topic of user-centered design. The session builds upon ongoing conversations
about theoretical and practical approaches to user-centered design between Hendren,
an artist and designer working on adaptive technologies and research-based design,
and Hamraie, a scholar of the history and philosophy of Universal Design. Pullin, an
interaction designer and author of Design Meets Disability, will share perspectives on
people, design, and technology. Garland-Thomson will offer a feminist disability studies
perspective on inclusive and eugenic design in the 20th century.
Presenters: Aimi Hamraie (Emory University), Rosemarie Garland-Thomson (Emory
University), Sara Hendren (Harvard Graduate School of Design),
Graham Pullin (University of Dundee), & Chris Smit (Calvin College)
3C Multimedia Representations of Disability
Room: Palm Beach / Broward
Moderator: Elizabeth Grace
Tyler Zoanni, “Childhood Difference as Blessing?: American Evangelical Media and the
Politics of Disability”
Corey Goergen, “Embodied Avatars: Depictions of Disability in the Emergent Narratives
of Video Games”
Jeffrey M. Preston (University of Western Ontario), “Fantasizing Loss: The Construction
and Maintenance of the Fantasy of Disability in Popular Television and Film”
Doris Fleischer, “The Myth of Perfection and Biodiversity”
3D FIXED: The Science/Fiction of Human Enhancement
Room: Osceola
Moderator & Presenter: Regan P. Brashear
FIXED: The Science/Fiction of Human Enhancement is a 52-minute documentary film
that explores ableism, disability, transhumanism and the body in the context of
emerging human enhancement technologies. Our goal with this film is to challenge
entrenched notions of “normal” by supporting new ways of thinking about disability,
ability and difference. FIXED looks at the blurring line between therapeutic and
augmentation applications of technology. Featuring: Gregor Wolbring, John
Hockenberry, Patty Berne, Hugh Herr, Fernanda Castelo, James Hughes, Jamais
Cascio, Marcy Darnovsky, Silvia Yee, Rodney Brooks, Ed Boyden, & more...
3E A Dangerous Enterprise: Reinterpreting Scripture Through the Hermeneutic of
Disability
Room: Dade
Moderator: Jennifer Sarrett
As theologians with disabilities and with experience in cross-disability environments, we
will introduce original works that exemplify ways to re-create a paradigm that includes
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the realities of our lives. A theology of disability must be broad enough to address many
different circumstances in life, not just pain, suffering, loss, or the afterlife. It has to
embrace the needs and questions of individuals with disabilities, family members,
religious institutions, and the larger socio-economic community. As liberal progressive
Christians this panel will present some imaginative new perspectives from liberation
theology that illustrate a life giving message of freedom, reconciliation and justice for all
humankind, especially for peoples who have long been excluded and oppressed.
Carolyn Thompson, “Diversity of Creation, Healing, and Wholeness”
Cyndi Jones, “Revealing Disability in Nondescript Bible Stories”
William Bradford, “Blindness, Sin and Holy Mud: The Symbolic and Rhetorical Uses of
John
9:1-11”
Lisa McKee, “Marginality and the Trinity”
3F Criponomics: Re-imagining the Crip Economy
Room: Florida Keys
Moderator: Robert McRuer (George Washington University)
How do disabled bodies subvert normative forms, patterns, and structures of economic
consumption? How can we imagine sites of “crip economic” practices arising in
transnational contexts and disrupting a range of em/bodied, im/material, in/active, and
in/visible representations? How does the presupposition of an ideological global “crip
currency” interact or manifest within and between local interstices of cultural
production? What forms of self-expression arise out of spontaneous moments within the
shifting frame of interdependence in the “crip economy”? In order to interrogate the “crip
economy,” presenters rely upon a variety of critical discourses including disability
studies, queer studies, critical race theory, feminism/s, and Marxist traditions. In
entering into a larger “crip” conversation, the “crip economy” attempts to accomplish
several things: first, interdependence dismantles an array of signifiers and the broader
discourses of dependency; second, the “crip dollar” re-inscribes cultural, material,
sensual, and affective exchanges; third, “crip economics” necessitate a radically reimagined “laborer” that departs from normalizing treatments of the body à la early
Marxist traditions; fourth, the meta(phorical) “crip(ple/d) economy” obliges us to
deconstruct economic narratives and the exploitation of disability as metaphor; finally,
the “crip economy” re-configures nationalism and citizenry through an array of
transnational lived realities.
Louise Hickman, “Cripping the Tweets, Tweeting the Crips: Twitter and the ‘Crip
Economy’”
Haydee Smith, “When Push Comes to Love: Fetishism and the (Crip) Economies of
Desire in ‘Push Girls’”
Gina M. Altavilla, “Circulating: Riding the Bus in a ‘Crip Economy’”
Session 4 3:30 pm - 5 pm
4A Animals and Disability
Room: Lake
Moderator: Sunaura Taylor
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This panel examines the intersections of critical disability studies and animal studies.
Stephanie Jenkins argues that contemporary moral theory is premised on an ableist and
speciest conception of the subject. She proposes that disability studies and critical
animal studies share a common interest in developing a robust and expansive
understanding of moral considerability beyond the limits of species-typical performance
criteria. Haylie Swenson examines the 14th century British poet John Gower’s work as a
site where the human/animal binary is both affirmed and subverted. Through this
subversion, Gower’s poetry opens up new venues for exploring the experience of nonnomate human and animal bodies. John Derby analyzes the relationship of ableism,
speciesm, and partriarchy in Foucault’s Madness and Civilization. He argues that, for
Foucault, a discourse of animality-patriarchy worked to marginalize and inflict violence
on the mentally disabled. He claims that art provides a space to formulate alternatives
to this violent discourse. Mara Green examines her relationship to her disabled pitbull,
Phoebe. This relationship serves as a starting point to examine the relation of speciesmembership, race, class, gender, and ability. Through her study, she examines how the
“good life” for both Phoebe and herself is negotiated and redefined over the course of
their inter-species relationship. Together, these papers show that disability studies and
animal studies can be jointly applied to provide a powerful analytic framework for
understanding contemporary and historical problems.
John Derby, “The Discourse of Animality-patriarchy: Representations of Madness and
Mad Art”
E. Mara Green, “The Phoebe Meditations: Pitbulls, Disability, and the Good Canine Life”
Daniel Salomon, “Getting To Solidarity: Towards the Adjudicating of the Conflict
Between the Animal Rights Movements and the Autistic Pride Movements”
4B Translational Research in Disability Studies in the Health Sciences (Part 1)
Room: Palm Beach / Broward
Strand: Translational
Moderator: Kathleen McGoldrick
The NIH has asked for the development of interdisciplinary research teams that include
basic, applied, clinical, and social scientists. We define disability studies translational
research as endeavors where disability studies investigators from two or more of the
above branches of health and applied social sciences research are collaborating on four
different levels of research: (1) Basic, (2) Applied, (3) Clinical Training & Practice, and
(4) Policy. Presenters in this two-part session will provide examples of disability studies
translational research being undertaken in the United States and internationally.”
Eloise Tyler (The Clara Cantrell Clemmons Assistance Center), “African-American
Disabled Women and the Experience of Disability: A Minority Within A Minority”
Pam Block & Fatima Cavalcante, “Biosociality, Biological Citizenship and Autistic
Identity in Brazil”
Annicia Gayle-Geddes, “A Situational Analysis of Persons with Disabilities in Jamaica
and Trinidad & Tobago: Policy Imperatives for the 21st Century”
Laura Maudlin, “Constructing Deafness: The Cultural work of Neuroscientific Discourse”
4C Gender, Disability, and Rights
Room: Osceola
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Moderator: Esther Ignani
Dana H. Krementz (Northern Arizona University) & Matthew Wangeman (Northern
Arizona University), “(In)visibly Present: Sexual Violence Against Homeless Women
with Disabilities and the Disciplining Capitalistic Panopticon.”
Katherine M.J. Vroman (Syracuse University), “A Post-Colonial Feminist Disability
Studies framework: Beginning to Deconstruct Internal Colonization”
Maria Town (Independent Scholar), “Disability Rights 24/7: Reflections from the US Jordan Young Women with Disabilities Leadership Exchange Program”
Vipin Malhotra, “Quest for a New Legal and Ethical Framework for Educated Persons
with Disabilities (PWDs) in A Neo Liberalized, Privatized and Globalized (LPG)
Paradigm in India”
4D Rhetoric and Representation
Room: Dade
Moderator: Jeffry Iovannone
Kate Jenkins, “Authentic, Legitimate, Expert: Diagnosis and Identity in Autism
Representations”
Hilary Selznick, “Forbidden Pain Behaviors and the “Problem” of the Chronic Pain
Patient”
Stephanie Wheeler, “Language, Eugenics, and Accessible Pedagogies: Towards an
Anti-Eugenicist Discipline”
Sandy Sufian (University of Illinois-Chicago), Placing the Less than Perfect Child: Views
on Risk and Disclosure in American Adoption, 1945-1980
4E Between Disability Rights and Transhumanism
Room: Florida Keys
Moderator: Katerina Kolarova
Erez Solomon, “Abject Habit, Autoimmune: Disability Narrative and Genotext in Kazuo
Isiguro’s Never Let Me Go”
Melinda C. Hall (Vanderbilt University), “What Enhancements and Why: The Tangled
Relationship Between Disability Rights and Transhumanism”
Christopher Smit (Calvin College), “The Things of Disability: A Technological
Phenomenology”
Victor Pineda (University of California Berkley) “Comparative Measures for Disability
Policy: A Framework for Implementing the United Nations CRPD”
4F Toward a Feminist Disability Methodology: Working Across Disciplines and
Within Communities
Room: Citrus Crown Ballroom
Strand: Power & Privilege
Moderator: Ally Day
Is there such a thing as a Feminist Disability Methodology? We understand this
workshop as part of the Power and Privilege Strand of SDS, theorizing that central to a
Feminist Disability Methodology is a demystification of power/privilege as they work
systemically through sexism, ableism, racism, classism, heterosexism, and nationalism.
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Presenters: Ally Day (The Ohio State University), Sami Schalk (Indiana University),
Kate Caldwell (University of Illinois at Chicago), Aimi Hamraie (Emory)
5 - 6:30 pm Poster Sessions
(Light Hors d’ Oeuvres & Cash Bar)
Room: Duval/St. Johns/Sarasota/Hillsboro
Adam M. Pacton (University of Wisconsin-Milwaukee), “Asperger’s Syndrome,
Composition, and Self-Identification: A Model for Curricular Negotiation”
Priya Lalvani (Montclair State University), “Squeaky Wheels, Mothers from Hell, and
CEO’s of the IEP: Parents’ role in the education of their children with disabilities”
Martha Sarmiento, “A Qualitative Study of User Initiated Design Proposed By People
Who Have Had a Stroke and the Impact On Their Home, Community and Social
Participation”
Stephanie Patterson (Stony Brook University), “Sharing the Lived Reality: The US
History of Disability and Employment”
Alexandra Ntouka,s “The Spectrum of Ideologies”
Victor S. Pineda (University of California, Berkeley), “Attitudes Towards People with
Disabilities in the Emirate of Dubai”
Rochelle A. Baer (LCSW University), “A New Lens of Beauty: One Woman’s Journey to
an Integrated Disability Identity”
Ann Marie Hill (Queen’s University), Lauren Anstey (Queen’s University), Katherine
Gallinger (Loyalist College) & Alexander Penn (Durham College), “Authentic Learning
Situations for Secondary Students with Developmental Disabilities”
Esther Ignagni, “Producing Fragile Citizens: The Paradoxes of Participatory Methods
with Disabled Young People”
Amber N. Johnson (Michigan State University), “Cycled Experiences: Race, Disability,
and Special Education”
Lisa A. Johnson (University of Minnesota), “Charity and Reality Collide: One Woman’s
Journey”
Sara P. Johnston (University of Iowa), “Unequal Treatment and Uneven Consequence:
A Content Analysis of Judicial Discourse in ADA Disparate Impact Cases”
Valerie L. Karr (Adelphi University), “Exploring Ableism Through Artistic Expression: A
University Course”
Michael Cottingham (University of Houston), Nikki Saltzburg (Florida Atlantic
University), Kevin Byon (University of Georgia), & Michael Carroll (University of Troy),
Examining the Influence of Relationship to Disability on the Motivations of Wheelchair
Basketball Spectators
Marisol Marfull, “Life skills workshops for individuals with disability in the Bio-Region of
Chile”
5 - 6:30 pm New Book Reception
Room: Citrus Crown Foyer
The following authors will be featured during the New Book Reception. We look forward
to all conference attendees being able to interact one-on-one with these authors and
learn about their newly published works.
Tammy Berberi, Morris MN
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Regan Brashear, Oakland CA
Brenda Brueggemann, Columbus OH
Jeff Brune, Washington DC
Doris Zames Fleischer, Newark NJ
Douglas Kruse, Piscataway NJ
Jill Le Clair, Toronto, Ontario Canada
Melania Moscoso, Madrid, Spain
Corbett Joan O’Toole, Richmond CA
Harilyn Rousso, New York NY
Daniel Salomon, Rockville MD
Lisa Schur, New Brunswick NJ
Christopher Smit , Grand Rapids MI
Tanya Titchkosky, Toronto, Ontario Canada
8 - 9:30 pm Plenary Session
Room: Citrus Crown Ballroom
Reflections on the Fiftieth Anniversary of Irving Goffman’s Stigma
2013 marks the fiftieth anniversary of Erving Goffman’s Stigma, which offers an
opportunity to reflect on the book and its legacy. Although it was published before
disability studies emerged as a prominent discipline, it remains one of the most cited
and influential works in the field. This plenary panel will offer some reflection on one of
the most important works in disability studies and examine its origins and uses over the
past decades. Panelists will address how the book has affected their own research and
understandings of disability, as well as what role Stigma might play as disability studies
continues to evolve.
Presenters: Rosemarie Garland-Thomson (Emory University), Jeffrey A. Brune
(Gallaudet University), Susan Schweik (UC Berkeley), Tanya Titchkosky (University of
Toronto), Heather Love (University of Pennsylvania), & Adrienne Asch
(Yeshiva University)
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Friday, June 28, 2013
8:00 am - 5:00 pm Registration (Room: Citrus Crown Foyer)
8:00 am - 5:00 pm Silent Auction Open (Room: Citrus Crown Foyer)
8:00 am - 8:00 pm Quiet Room (Room: Pinellas)
Session 5 8:30 am - 10 am
5A Biopolitics and Disability: Neoliberal (Dis)Appearances (Part 1)
Room: Dade
Moderator & Discussant: Anne McGuire
This panel explores how disability appears and disappears within the context of
neoliberalism. Fritsch questions the ways in which neoliberalism has functioned to
accommodate and capacitate disability when disability appears and is contained as a
wheelchair user. Aubrecht examines the governance of student life in university settings
through a critical disability studies analysis of discourses of wellness and resilience.
Kaul attempts a preliminary analysis of labor conditions in the academy and their effect
on the realization of principles of equality and access, not only for students but for the
individual instructors who are expected to deliver them. Together, these papers
question how the biopolitical disabled body is both made to appear and disappear within
neoliberal economies, and what is at stake in intervening in these appearances and
disappearances. This panel is in conversation with Biopolitics and Disability: Neoliberal
(Dis)Appearances Part 2.
Kelly Fritsch (York University), “Neoliberalism and Capacitating Disability
as Wheelchair”
Katie Aubrecht, “Positive Psychology, ‘Resilience,’ and the Neoliberal Government of
Disability”
Kate Kaul, “Disability and Academic Labour”
5B Undergraduate Panel: Disability in a Global Context
Room: Osceola
Moderator: Sara Vogt
Liora Roffman (Bar Ilan University), “Rethinking the Human Rights Discourse of People
With Disabilities - A Critical Approach”
Zoe S. Silverberg, “Reexamining Narratives of Disability: A Transnational Analysis”
Staci Jean Forrest (Undergraduate Student, Kutztown University of Pennsylvania),
“Why Their Voice Matters: Integrating Body Image Issues of Women with Disabilities
into a Feminist World”
5C Recovering and Narrating Histories: In and Out of Institutions
Room: Lake
Strand: Communities
Moderator: Dana Krementz
Though significant work has been done on 19th and early 20th century people with
psychiatric and intellectual disability labels, much of it remains focused on asylums,
doctors, and diagnostic labels. While incredibly valuable, the literature on 19th century
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and early 20th century asylum inmates reveals little about their lived experiences. We
seek to uncover particular pieces of that history. How do contemporary expressions of
disability history - particularly the disability rights perspectives - intersect with inmate
histories? Michael Rembis offers a “meditation” of sorts on the importance of life writing
in mad and disability studies. Joanne Woiak’s paper considers the strategies and
challenges for disability historians and activists working in the archives, in public history,
and at the intersection of those activities. Corbett Joan O’Toole uses artwork to look into
the eyes of people who lived in state schools for people with cognitive disabilities in the
early 20th century. Using a disability rights lens, she examines questions of agency,
appropriation and remembrance in uncovering and rediscovering our disability
ancestors.
Corbett O’Toole, “Institutional Ancestors: Honoring Our Past”
Michael Rembis, “A Secret Worth Knowing”: Writing Mad Lives in the United States”
Joanne Woiak, “Public History, Privacy, and the Archive”
5D Unproductive “Others” and “Wasteful” Knowledge: Deconstructing Urban and
Special Education
Room: Florida Keys
Moderator: Jill Le Clair
This interdisciplinary panel uses a Foucauldian framework to critique how neoliberal
discourse within urban and special education contexts, reproduces the norm vs. “these
kids” and maintains standardized testing logics. This panel will unpack neoliberal
discourses regarding urban, minority, and students with disability and its effects on
exclusion, testing, and knowledge.
Fernanda Orsati, “Exclusion in Special Education: Do Not Disturb, Production Under
Way!”
Carrie Rood, “Reconstructing Knowledge: Offering an Alternative Framework from/to
the Neoliberal Discourse”
Chris Chapman (York University), “The ‘Disability to Know’: Disability Studies Readings
of Critical Work on Normalized Complicity in Oppression”
Angel Love Miles (University of Maryland, College Park), “The Housing Experiences of
African American Women with Physical Disabilities”
5E What to do When Reporters Call: Effective Media Advocacy for Academics and
Activists
Room: Osceola
Strand: Professional
Moderator: Carla Lewis-Irizarry
With an increasing number of opportunities available to create and shape our own
media, and leverage coverage by traditional media, we envision a discussion session
that delves into the nitty-gritty, born from actual experience, that can help academics
and activists be more effective and persuasive when called on to translate academic
jargon and insider language to the news media. Discussion topics will include: pitching
story ideas to journalists, using social media to reach or even ‘scoop” traditional news
media, staying on message in interview situations, translating “monys” and “isms” to
non-academics, and writing effective news releases and opinion pieces. After 30
30
minutes discussing these specific topics, it will become a Q&A session so as to address
the specific media advocacy needs of those in attendance.
Presenters: Beth Haller & Shawn Burns
Session 6 10:30 am - 12 pm
6B Narratives of Disability: Scars, Pain, Autism, and Kinship
Room: Osceola
Moderator: Carol Marfisi
The stories we tell about disability help us understand how it is constructed. Autistic
autobiographies and caretaker narratives sometimes defer to clinical models of the
imagination. Alternative kinship structures for families with disabilities are essential. We
need to explore representations of pain and disability in narrative works and their utility
in discussions of disability rights and healthcare access in the US. Scars narrate
complicated stories of the body originating from layering three rhetors who inscribe
meaning onto scars: the self, the medical professional, and surrounding culture.
Megan E. Friddle (Emory University), “‘Pain has an Element of Blank’?: Chronic Pain,
Disability, and Narrative”
Sara Marie DiRienzo (University of Wyoming), “Embodied Narratives: Exploring the
Layered Stories of Scars”
Marion Quirici, “Geniuses Without Imagination: Autism and the Problem of
Representation”
Harold Braswell, “My Two Moms: Alternative Kinship Structures for Families with
Disabilities”
6C Madness: Views from Queer, Critical, and Narrative Perspectives
Room: Lake
Strand: Communities
Moderator: Kathleen McGoldrick
Cultural representations of mad people have an enormous impact on all people. A
critical exploration reveals neoliberal family-oriented discourse around the management
of schizophrenia. Through Queer Studies and Disability Studies, Foucault can be
understood as a mentally disabled person whose work on madness exemplifies how
disability begets indispensable cultural productivity. Contemporary narratives have
failed to capture the “lived realities”” of mad-identified people. Storying theses narratives
outside of medical discourse enables disability and mad communities to emerge.
Amber P. Reid (University of Toronto), “A Multiplicity of Truths: Storying Madness
Narratives around (our) Lived Realities”
John Derby (University of Kansas), “Disabling (the Other) Foucault”
Vincent Patalano, “Future Modalities of Disability: Contemporary Management of
Schizophrenia In the Family”
6D Disability and Relationships, Social Support, and Care
Room: Florida Keys
Moderator: Anne McGuire
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Relationships, social support, and care are critical features for disabled people and their
families. Relations of care are manifestly different depending on local cultural norms,
but are also clearly enmeshed within the logic of globalized capital. Materialist
philosophy can help rethink family dynamics in families with disabilities. Support groups
for young women with disabilities influence their sense of belonging both within and
outside the group. Relational approaches for understanding how disability is enacted in
relationships between siblings can be powerful.
Norma Jane Mejias (University of Illinois at Chicago), “Influence of a Support Group for
Young Women with Disabilities on Sense of Belonging”
Ariella Meltzer (Social Policy Research Centre), “Living Disability Relationally: Thinking
About the Interplay Between Disability, Relationality, and Sibling Relationships”
Helen Meekosha (UNSW) & Russ Shuttleworth (Deakin University), “Theorising the
Intersection of Care and Disability”
Kira Walsh, “House Stories: Conflict and Care Between Parents with Disabilities and
their Children”
6E Cripping Text, Literature, and Media
Room: Citrus Crown Ballroom
Moderator: Adam Newman
Critical explorations of text, literature, and media can help us understand disability. This
can be accomplished through projects as diverse as an investigation of the reading
history, opportunities, identities, and role of reading and texts in the life of an individual
labeled with a reading disability, or an examination of narratives of temporary disability
in youth-oriented television and the depiction of recovery as the only route to regain
sexual expression. Applications of crip theory can be used to analyze characters
constructively, honoring their identities, humanity, and distinct lived realities.
Ana R. Darrow (Smith College), “Hyperkinesis and the World of Tomorrow”
Devin Roberts (Indiana University), “Lungs that Suck at Being Lungs: Using Humor as a
Coping Mechanism in John Green’s Novel The Fault in Our Stars”
Erin Tatum (UC Berkeley), “Adolescence, Disability, and Sex: The Consequences of
Finite Disability as the Sole Path to Erotic Legitimacy” [Virtual Presentation]
Stephanie Larson, “More than an ‘Angel of Gawd’: The Dynamic Nature of Deafness in
Flannery O’Connor’s The Life You Save May Be Your Own”
6F Translational Research in Disability Studies in the Health Sciences (Part 2)
Room: Dade
Strand: Translational
Moderator: Sharon Cuff
The NIH has asked for the development of interdisciplinary research teams that include
basic, applied, clinical, and social scientists. We define disability studies translational
research as endeavors where disability studies investigators from two or more of the
above branches of health and applied social sciences research are collaborating on four
different levels of research: (1) Basic, (2) Applied, (3) Clinical Training & Practice, and
(4) Policy. Presenters in this two-part session will provide examples of disability studies
translational research being undertaken in the United States and internationally.
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Annicia L. Gayle-Geddes, “A Situational Analysis of Persons with Disabilities in Jamaica
and Trinidad & Tobago: Policy Imperatives for the 21st Century”
Steven Kapp, “Merging Science and Advocacy: Expanding the Influence of Disability
Studies”
Mansha Mirza (University of Illinois at Chicago) & Joe Feinglas (Northwestern
University), “Role of Socioeconomic Factors on the Healthcare Access and Social
Participation of Low-Income Children with Disabilities”
Anahi Guedes de Mello (Universidade Federal Santa Catarina), Adriano Henrique
Nuernberg (Universidade Federal Santa Catarina), & Pamela Block (Stony Brook
University) “Brazilian Disability Studies: Past, Present, Future”
12:00 pm - 1:30 pm Lunch on your own
12:15 pm - 1:15 pm Optional Meetings and Discussions
Queer Caucus
Room: Palm Beach / Broward
Moderator: Sumi Colligan (Massachusetts College of Liberal Arts)
This meeting provides a forum for GLBTQIA people and allies to meet each other,
exchange ideas, and plan future panels and events.
Disability Access on College Campuses Through a Universal Design Lens
Room: Florida Keys
Moderators: April Coughlin, Carla Lewis-Irizarry, Yue Wu,
Laura Laria, & Peter Trojic
This workshop aims to address current issues in disability and higher education. We will
present a variety of first-hand accounts from students, faculty, and staff with disabilities
in the college setting in both urban and rural areas of the United States. Participants will
have the opportunity to share their own concerns and knowledge about disability access
in higher education and ask questions of the workshop leaders. After a large group
discussion, participants will break into smaller groups to discuss, problem-solve, and
process through specific anecdotal experiences of individuals with disabilities (college
students, students transitioning from high school to college, graduate teaching
assistants, professors, as well as other faculty and staff within the university setting).
Each group will develop practical methods to increase college enrollment, create
positive educational experiences (inclusive classes, full-participation in college life and
student activities, as well as living and working on campus) and increase work
opportunities for individuals with disabilities in higher education. Groups will be given
time to share these methods and ideas with other participants through an informal group
share at the conclusion of the session.
Session 7 1:30 pm - 3 pm
7A “Miracle” or Misrepresentation: Technology Takes on Communication
Disabilities
Room: Dade
Moderator: Beth Haller
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This panel will explore the intersection of communication disabilities and the new
twenty-first century technologies that enhance or allow for speech, such as Apple
products, smartphones, tablets, and other augmentative communication options. Topics
covered will be print news media coverage of iTechnology in the United States and
Canada and a disabled child’s experience with switch technology for communicating in
Morse code, as well as an exploration of what is considered “appropriate”
communication within the autistic community. The panel will also map what we know
and we don’t know about the use of assistive technology, particularly as AT is used by
diverse people with disabilities of different ages.
Beth Haller, Chelsea Jones, Vishaya Naidoo, “iTechnology as Cure or iTechnology as
Empowerment: What Does Print Media Report?”
Gina Burns, “iPossibilities for Disabled People: A Mother’s Perspective”
Rhonda Greenhaw, “Including ‘Inappropriate’: Communication as Valid in Our MultiModal Society”
Art Blaser, “Assistive Technology Across the Life Span: Multiple Images and Multiple
Realities”
7B Intersectionalities in Autistic Culture(s): A Discussion Instigated by This
Posse of Autistics and Friends
Room: Palm Beach / Broward
Moderator: Zach Richter
Elizabeth J. Grace (organizer/moderator) is a flaming disabled Autistic, gay, and butch.
She is also old (classic?) enough to think the latter carries kind of a cool chivalric code,
and to remember when it was a problem because it was then considered “mimicry” and
therefore even worse than “the dominant paradigm” so thus a failure in appropriate
same-hair lesbianism. She is fascinated and delighted by the way many folks are
currently rejecting the binary and blowing the whole thing up, which is one of the
reasons she put together this discussion panel. Another reason is the changing nature
of the racial and heritage landscape and discourse in society today. Elizabeth (Ib) is
Northern-European American, but not everyone around here is as “white” as it may at
first appear, though (to some people’s apparent surprise) that doesn’t magically make
“What are you?” the right thing to say. These are some of the intersections that interest
her, and as a member of Autistic Culture-much, much more than as a member of
Academia, she’s discovered to her unending joy-she can just flat out talk about this stuff
and get other people to talk about it with her. She has assembled the cast of excellently
diverse characters below, all associated with Autistic Culture in some way, and all also
Intersectional either in Racial or LGTBQIA/Other Space or Both or More in some
perhaps surprising ways not even listed, to get the discussion started, inviting everyone
in the room to partake freely. It can be argued (as well as clearly seen by joining us, Ib
thinks) that in Autistic Culture, wildly honest inquiry is a natural part of the discourse.
Welcome, one and all! Our time will be used bringing up the myriad taboo interstitial
spaces that are our lived lives and starting startling conversations about them. Note: Ib
Grace as an experienced professor/moderator will be responsible for keeping the
conversation an emotionally safe space while at the same time being open for some
magnificent intellectual danger. This is the opposite of an oxymoron. Flap!
Presenters: Elizabeth Grace, Aiyana Bailin, Zach Richter, Allegra Stout, & Alyssa Z
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7C Bioethics and Disability Studies
Room: Lake
Strand: Translational
Moderator: Jo Ann Oravec
There has long been unease between bioethicists and disability studies scholars.
Disability studies scholars have charged that bioethical categories, though putatively
neutral, contain judgments of persons with disabilities that are negative and even
violent. Bioethicists, though sometimes sympathetic to disability studies critiques, have
struggled to integrate them into bioethical research and practice. This panel contributes
to attempts by disability studies scholars to bridge these fields. Meghan Schrader
examines the controversy surrounding the recent bioethical article “After-Birth Abortion,”
which argues in favor of infanticide. She criticizes bioethicist Julian Savalescu’s claim
that the heated responses to this article were inappropriate by situating them within a
broader tradition of hyperbolic rhetoric. She claims that hyperbole is an effective tool for
disability activists and scholars. Joelle Ryan examines the relationship of
transgenderism and transableism. By exploring the similarities and differences between
transgender and transability, she reconsiders and redefines the very conception of the
“human” underlying bioethics and medicine. Michael Dorn provides survival skills and
translation strategies for those making the switch from disability studies to bioethics.
The result makes bioethics more responsive to the needs of persons with disabilities
condemned to ‘social death,” as well as those of grieving families mourning their loved
ones. Through their diverse methods, these papers showcase the breadth of disability
studies, and reorient bioethics to be not only more interdisciplinary, but also less ableist.
Meghan Schrader, “The Rhetoric of Justice: Defending Hyperbolic Responses to
Oppression in Art, Music and Culture”
Joelle Ryan, “Transgender and Transability: Exploring the Bioethics of Radical Body
Modification and the Postmodern Promise of Shape-Shifting Identities”
Michael Dorn, “Switch Hitting: Or, What is a Disability Studies Scholar Doing in a
Bioethics Program?”
7D Disability Studies: Beyond the Academy
Room: Palm Beach / Broward
Strand: Professional
Moderator: Elaine Gerber
While many small community groups do not think they need “research” or have the
training/staff to conduct it, they do need data (e.g., needs assessments, program
evaluation, social marketing, etc). In trying to bridge some of the unmet research needs
by non-profits, government agencies, and other constituencies, building capacity for
applied research may also broaden the job prospects for our emerging scholars, while
simultaneously spreading a pro-disability perspective in the world. This issue seems
particularly timely given the growing concerns with student debt and the lack of tenuretrack jobs available. As Dr. Cathy Kudlick recently wrote to the DIS-HUM listserv, “How
to balance the appropriate dose of reality while keeping the dreams and passions for
the field of disability studies alive? If we agree that a PhD is an important, laudable goal
for individuals and for our field, what do job options beyond the academy look like for
PhDs doing disability studies in the humanities?” What “real world” career options exist
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for people with a social science PhD? How might disability studies reach out to local
and national organizations and institutions to generate employment for our scholars?
What strategies should we utilize and how can we promote these efforts? Are there
things SDS could be doing to better promote our scholarship and/or prepare our
scholars? Each panelist will speak briefly (5-7 mins) to introduce specific disciplinary
concerns and suggestions, but the vast majority of the session will be a brainstorming
session based on community input. The discussion will be moderated.
Presenters: Elaine Gerber (Montclair State University), Elizabeth Lockwood (University
of Arizona), & Devva Kasnitz (Association on Higher Education And Disability)
7E Disability Studies and Education Around the World
Room: Florida Keys
Moderator: Phil Smith
An exploration of teachers’ beliefs about the education of students with disabilities and
their conceptualizations of inclusive education is made. The barriers being faced by
students with disabilities in the North-Central zone of Nigeria is outlined.
Priya Lalvani, “Privilege, Compromise, or Social Justice? Teachers’ Conceptualizations
of Inclusive Education”
Bolanle Olabisi Olawuyi (University of Ilorin) & Ebenezer Idowu Olawuyi (THF), “A
Survey of Barriers Faced by Pupils and Students with Disabilities in Schools Within the
North-Central Zone of Nigeria”
Maryl A. Randel (Michigan State University), “Labeled Reading Disabled and ‘Doing’
Reading”
Session 8 3:30 pm - 5 pm
8A Emergent Scholarship in Disability History
Room: Dade
Moderator: Sarah Rose
Disability studies is no longer merely an emergent field, but has now become an
established presence at numerous institutions, with majors, minors, and independent
courses being offered at both the graduate and undergraduate level. This panel features
research papers by undergraduate students who have benefited from the insights of
disability studies and have now undertaken their own research in the field of disability
history. The papers that make up this panel productively interrogate such varied and
forward-looking issues as the intersection of disability studies with the history of Native
Americans and those conditions at the contested limits of being legally counted as
disability, such as tallness or childlessness. Finally, all these papers fruitfully use
historical evidence to produce their arguments, revealing both the continuing benefits of
historical thinking for disability studies as well as the increasingly recognized value of
disability as a category for historical analysis. This panel is sponsored by the Student
Interest Group and constitutes a crucial opportunity through which to welcome new,
developing scholars into SDS and encourage their continued work in the field.
Lindsey Anderson, “Uranium Mining and Nuclear Radiation: Poisoning of the Navajo
People, 1940-2012”
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Leslie Rice, “Reproductively Disabled: An Examination of Infertility as a Disability, 19902008”
Zachary Richter & Matthew Eichler, “(De)Stabilizing Crip Theory: Anti-Normative
Intersections in Anarchist, Marxian, Disability, and Queer Theories”
Thomas Foster, “Creating ‘Giants’: People of Tall Stature and Spatial Accommodation,
1922-2006.”
8B Strategies for Federal Research Funding
Room: Palm Beach / Broward
Strand: Translational
Moderators: Pam Block & Devva Kasnitz
The purpose of this panel is to provide information and guidance to students, post
doctoral researchers, and emerging scholars about federal funding opportunities for
disability studies and disabled researchers. The goal is to provide practical information
and advice on how to access these funding mechanisms.
Presenters: Pamela Block, Richard Scotch, Kate Seelman, Devva Kasnitz,
& Adrienne Asch,
8C Disability in History
Room: Lake
Moderator: Joan Ostrove
Jitka Nelb Sinecka, “Peeping Over the Wall: Communism, Deinstitutionalisation, and the
Lived Experiences of Families with Members with Autism” [Virtual Presentation]
Elizabeth VanArragon (Calvin College), “Resistant Documentation: Photographs of the
Disability Rights Movement”
Kathryn N. Lawton, “Negotiating Deinstitutionalization: The Public, Parents, and the
State”
Casey Green (University of Connecticut), “Valuing the Body: Contractual Obligations
and Disabled Veterans Petitions in Colonial Massachusetts, 1727-1775”
8D Life Writing and Disability Identity
Room: Florida Keys
Moderator: Robert Osgood
Pinzon-Hulderman’s presentation examines a personal history and efforts to “recreate
lived reality” as a dancer with a Central Auditory Processing Disorder in Higher
Education. Franz looks at the overall value of cultural representation of the deaf
experience is explored with emphasis on the dissociation of bodily impairment and
identity in the deaf community. And Gibbons seeks to better understand the holistic
identities of college students who happen to have disabilities.
Cassandra L. Pinzon-Hulderman (Temple University,) “Illuminating Invisibility: A
Phenomenological Inquiry”
Sarah E. Franz (University of Illinois, Chicago), “The Value of Cohesive and Cultural
Representation Of Modern Deaf Communities”
Hailee M. Gibbons (Miami University of Ohio), “You Want to be Yourself and the World
Asks You to be Your Disability: Exploring the Holistic Identities of College Students with
Disabilities”
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James Overboe (Wilfrid Laurier University), “Re-imagining Both Disabled Lives and
Disability Studies Through New Materialisms.”
8E Literature and Disability
Room: Osceola
Strand: Communities
Moderator: Jeffrey Preston
Anson Koch-Rein (Emory University), “‘Frankenstein’ and the Disgusting Body: The
Monster’s View”
Chris Ewart, “How I Can Go On: The Displeasure of Modernity’s ‘Murphy’ and his
Textual Biopower”
Elizabeth Wheeler (University of Oregon), “Stare Management 101: Wonder by R.J.
Palacio”
David Mitchell (George Washington University), “The Capacities of Incapacity: Disability
in Neoliberal Novels of Embodiment”
8F Representing and Retailing Disability in News and Reality TV
Room: Citrus Crown Ballroom
Moderator: Anne Finger
Margaret L. Fink (University of Chicago), “Retailing Bodies: Disabled Realities, Reality
Television”
Shawn Burns (University of Wollongong), “Australian News Media Representation of
Disability: Advocates, Academics, and Journalists Collide”
Ellen Samuels (University of Wisconsin, Madison), “Consuming Conjoinment: The
Material Fascination of Extraordinary Bodily Experience”
Krystal Cleary, “‘The Most Amazing Thing About Us is We are Just Like Everyone Else!’
The Conjoined Discourse of Extraordinary Normalcy in TLC’s Abby and Brittany”
5:15 - 6:15 pm Optional Meetings and Discussions
Family Members of Persons with Disabilities Interest
Group Meeting
Room: Dade
Moderator: Harold Braswell
This interest group will provide a space for conversation and planning for family
members of persons with disabilities. “Family member” can entail relations of biological
as well as non-biological kinship. Potential questions to be discussed include: Is there a
unified identity of “family members of parents with disabilities?” What place do family
members of persons with disabilities have within disability studies and the wider
disability rights movement? What perspectives do we provide that are lacking in
disability studies? The discussion can be personal or scholarly to the extent that those
present feel comfortable—and, ideally, will contain and synthesize both personal and
scholarly dimensions. In addition, we will also discuss our role in the Society for
Disability Studies, and what requests we might have for the organization’s board of
directors.
International Caucus
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Room: Palm Beach / Broward
Moderator: Funmi Akinpelu & Bisi Olawuyi
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Saturday, June 29, 2013
8:00 am - 6:00 pm Registration (Room: Citrus Crown Foyer)
8:00 am - Noon Silent Auction Open (Room: Citrus Crown Foyer)
8:00 am - 8:00 pm Quiet Room (Room: Pinellas)
Session 9 8:30 am - 10 am
9A Disability Art: Cripping Culture, Questioning Canonicity, and Creating
Controversies
Room: Osceola
Strand: Communities
Moderator: Tammy Berberi
This panel explores these questions through three presentations that model diverse
approaches to considering disability art, and the different real-world implications of
each. Jessica Cooley’s presentation, “An Inartistic Interest: The Gross Clinic and
Postbellum Disability Identity,” examines nineteenth-century American painter Thomas
Eakins’s Portrait of Dr. Samuel D. Gross (The Gross Clinic) (1875), which uses a central
image of an open and bloody wound. Cooley argues that the 1876 censorship of the
painting constituted a cultural performance in which disability could be medicalized and
memorialized in a way that allowed normate society to redirect its own anxiety about the
body disabled by wartime trauma. Ann Fox’s presentation, “Everybody’s Bodies?
Alberto Giacometti and the Realness of the Surreal,” reconsiders the work of this
twentieth-century painter and sculptor through the lens of disability aesthetics, arguing
that it is possible to use a disability studies approach to Giacometti’s work to create a
reading that is radically different from the typical view of Giacometti as nihilistic. Instead
the work can invite us to imagine embodiment expansively. Carrie Sandahl’s
presentation, “Defining Disability/Defining Art: Controversial Questions Raised by the
Bodies of Work Festival of Disability Art and Culture,” explores lessons learned from the
Bodies of Work Festival of Disability Art and Culture in May 2013, which featured
professional disabled artists in prestigious venues across Chicago; Sandahl explores
the implications of choosing to include only the work of professional artists. Was this
elitist? Dismissive of those without access to formal training? And what is disability art
and culture, anyway?
Jessica A. Cooley, “An Inartistic Interest: The Gross Clinic and Postbellum Disability
Identity”
Ann M. Fox, “Current Questions about Disability Art and Performance: The Bodies of
Work Festival of Disability Arts and Culture 2013”
Carrie Sandahl, “Defining Disability/Defining Art: Controversial Questions Raised by the
Bodies of Work Festival of Disability Art and Culture”
9B From Idiocy to Mental Retardation? Cognitive Ability in Modern America
Room: Lake
Moderator: Adrienne Asch
In this panel, three disability historians explore the (limited) role of institutions in shaping
understandings of cognitive ability in nineteenth and twentieth century America; in doing
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so, they challenge some assumptions of their academic discipline. Kathryn Irving builds
a “ground-up” definition of idiocy by critically reading the case descriptions of pupils
admitted to the Elm Hill Private Institute for Feeble-Minded Youth in nineteenth-century
Massachusetts. Sarah Rose follows nineteenth-century pupils from the New York State
Idiot Asylum back into their communities, exposing contradictions between medico-legal
definitions of idiocy, the abilities of individuals deemed idiotic, and families’ expectations
of their children. Michael Green emphasizes the role of actors outside the institution in
constructing an understanding of mental retardation that, in fact, worked against
deinstitutionalization in twentieth-century Texas. Accordingly, this panel develops
several themes. First, it provides three case studies of how understandings of mental
ability always escape the bounds of medical diagnosis, because of their socio-cultural
dimensions and the variable agency of historical actors. Second, and somewhat
contradictorily, this panel questions the advisability of attempting to narrate a history of
cognitive ability: such a project would assume that intelligence is an ontological thing
that can be traced over time in its various manifestations, whereas our histories indicate
a range of human capacities so diverse as to defy easy categorization. Finally, through
their support of disability justice, these panelists demonstrate a methodological
commitment to using academic privilege to broaden the modern conversation about
disability: in particular, how we assign value to people’s lives based on their perceived
contributions to society.
Kathryn Irving, “A Peculiar Family: Creating Disability in a Nineteenth-Century American
Idiot School”
Sarah F. Rose, “’Her Mother Did Not Like to Have Her Work’: Defining Idiocy in
Nineteenth-Century Families”
Michael Green, “The Growth and Persistence of the State School System in Postwar
Texas, 1946-2011”
Robert L. Osgood (St. Norbert College), “Creating School-Based Disability: Cognitive
Disability as a Key Factor in the Development of Public Education in the United States”
9C Effects of Disability Simulations on Attitudes Towards Disability
Room: Florida Keys
Strand: Communities
Moderator: Devva Kasnitz
This panel will present three studies on the effects of disability simulations. One study
focused on simulations of blindness. Another study focused on simulations of dyslexia,
dysgraphia, and auditory processing disorder. The third study included simulations of
hearing, visual, and learning disabilities. The methods, participants, and results of all
three studies will be presented. The panel will engage the audience in a discussion on
the impact of using simulations, both positive and negative. Suggestions for alternatives
to simulations, methods to highlight adaptations for disabilities, and presenting profiles
of independent, successful individuals with disabilities will be discussed.
Arielle Silverman & Jason Gwinn, “Stumbling in Their Shoes: Ironic Effects of Simulating
Disability on Disability Attitudes”
Shana Hornstein, “Simulations of Learning Disabilities: Reflections by
Future Teachers”
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Michelle R. Nario-Redmond & Dobromir Gospodinov, “The Risks of Simulating
Disability: Increasing Stereotypes and Prejudice Even Among Disabled Students”
9D Emerging Disability Scholars in the Health Science Context
Room: Dade
Strand: Translational
Moderator: Pamela Block
Disability studies is an assembly of scholars dedicated to exploring the social, cultural,
and eco-political dynamics affecting the disabilities community. Having taken this
position, we are at the same time tearing down the barriers that limit the rights of
individuals who experience a disability. Since disability studies is currently in its first
phase, this places the scholars who take the newly-created positions within healthcare
at a unique crossroads. Working in “the belly of the beast,” these individuals are likely to
find themselves leading important policy changes that promote disability rights within
the stronghold of the medical model. This forum has been organized to allow for an
honest exchange of ideas and concerns affecting scholars whose work places them
directly in the field of Health Sciences. Panelists will begin by briefly sharing some of
their own experiences, but quickly open up the dialog to a town hall type meeting. This
discussion is aimed at supporting those charged with breaking down hierarchal systems
within hospitals to something manageable, addresses how to respond to the
marginalization of disability, job searching within the Health Sciences, along with
support. Please join this exciting conversation to discuss opportunities and advice for
the disability scholar inside the field of Health Sciences.
Presenters: Pamela Block (Stony Brook University), Jenna Hefferon, Akemi Nishida, &
Mansha Mirza
9E Exceptionalizing Disability: (Re)Inscribing the Norm, (Re)Creating Lives
Room: Palm Beach / Broward
Strand: Power & Privilege
Moderator: Jess Waggoner
Taking the concept of exceptionalism from contemporary theorists such as Giorgio
Agamben, Aihwa Ong, and others, the panel brings together different theoretical and
interpretative frameworks to examine how disability is constructed as a figure of
exception in order to reinscribe and reinforce structural inequalities. Panelists trace the
politics of inclusion and exclusion across different historical and geographic locations to
outline the role that the “tolerated” exceptional disabled figure plays in producing and
even policing the categories of the healthy, non-disabled, and productive citizen.
However, the panel also argues that these politics of tolerance and exceptional
incorporation can potentially create possibilities of resistance to the structures of
exclusion. Therefore, the panel asks how (or whether) we might view instances of
exceptionalism as sites of crip resistance through which alternative realities might be
(re)created. The panelist interrogate sites of exceptionalism as diverse as the body in
pain, body with/out transplant, the disabled eugenic fieldworker and the (discursive)
figure of the post-socialist crip to uncover instances where the re-inscription of structural
inequalities and the re-imagining of alternative ways of being/living in a world co-exist to
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form often contradictory narratives that can never fully be incorporated into or contained
within systems of compulsory ablebodiedness.
Alyson Patsavas, “The Exceptional and the Banal: Reading and Living the Body in Pain”
Kateřina Kolářová, “Cruel Optimism and the Neoliberal Exceptionalising Disability”
Margrit Shildrick, “The Body With/Out Transplant or the Bare Exceptionality of the
Disabled Body”
Sara Vogt, “Disabled Eugenic Field Workers and the Fulfillment of Able-Bodied
Femininity”
Session 10 10:30 am - 12 pm
10A Disability and Film
Room: Palm Beach / Broward
Moderator: Cassandra Hartbly
Mark W. O’Hara, “The Snake Pit and Girl, Interrupted: Foucauldian Truth in Films 50
Years Apart”
Charlene D. Gilbert (University of Toledo), “Foreign Bodies: Race, Disability and Gender
in James Cameron’s AVATAR”
Arumugam Sivakamasundari, “Disabilities in Tamil Cinema: An Inquiry into
Representation and Discourse”
Terri L. Thrower, “Overcoming the Need to “Overcome: Re-Creating Lived Reality
Through Film and Performance”
10B Disability in the Southern Literary Imagination
Room: Osceola
Moderator: Sami Schalk
As Jay Watson provocatively notes in his recent study Reading for the Body: The
Recalcitrant Materiality of Southern Fiction, 1893-1985, since the eighteenth century,
the South has been Othered in the national imagination in part through the constant
invocation of “visions of southern bodily alterity,” which he then argues has led to a
pervasive tradition both inside and outside the South of “figuring southerness as
disability, in pointed contrast to the disembodied conventions of democratic citizenship
that hold sway in the modern nation” (pp. 16-17). This being the case, it is notable just
how little scholarship in disability studies has taken the regional and specifically
Southern context seriously, but rather has continuously resorted to a more generalized
understanding of “American culture.” In the papers that make up this panel, however,
we suggest that prioritizing the social fiction of the nation and a uniform national cultural
imagination ignores the reality of complex regional differences--regional differences that
in this case provide very different contexts for narratives and representations of
disability. Thus, in our papers, we look variously to the South’s particular histories of
sexuality, urbanity, and race in order to better understand how they uniquely inflected
the experience and representation of disability in the region’s cultural imagination and
literary productions, particularly in the first half of the twentieth century. Works Cited:
Watson, J. (2012). Reading for the body: The recalcitrant materiality of southern fiction,
1893-1985. Athens: University of Georgia Press.
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Jessica Waggoner, “Reading Queer Disabled Intercorporeality in Truman Capote’s
Other Voices, Other Rooms”
Ann Fox, “Reclaiming the Ordinary Extraordinary Body: Or, The Importance of The
Glass Menagerie for Literary Disability Studies”
Adam P. Newman, “Rolling Through the Holy City on a Goat-Cart: Dubose Heyward’s
Porgy and the Rethinking of Race in the Urban South through the Disabled Black
Flaneur”
10C Gender/Sexuality/Identity/Passing
Room: Dade
Moderator: Jennifer Mosher
Krista E. Roberts (University of Puerto Rico-Mayagüez), “Body Politics and Breast
Cancer: Examining the NFL’s Breast Cancer Initiative”
Ashley J. Bickerton (Univeristy of Ottawa), “Normal’ Bodies, ‘Monsterous’ Minds and the
Medicalization of Gendered and Imperial Violence: The Ablelist Paradigm and the
Production of Militarized Masculinity”
Tania X. Ruiz-Chapman, “Becoming the Crip: Forming the Disabled Identity”
Jen Rinaldi (New York University), “‘I Was Anorexic:’ The Paradigm of Body
Management and the Problematics of Recovery”
10D Global Disability Research
Room: Florida Keys
Moderator: Gail Werblood
Valerie L. Karr (Adelphi University) & Stephen Meyers, “The Importance of Expanding
Inclusive Networks for Youth with Disabilities: A Cambodian Case Study”
Jennifer C. Sarrett, “The Ethics of Studying Autism Across Cultures”
Jamie Rau (University of California San Diego), “Collisions in Disability Discourse: A
Global Context”
Sumi Colligan, “’Fixed’ Identities in a Globalizing World: A Cross-Cultural Examination
of Theme Parks through Disability Studies and Postcolonial Perspectives”
10E Representation and the Body
Room: Lake
Moderator: Elaine Gerber
Rebecca R. Stone, “The Shaman in the Unusual Body: Ancient American Art as
Empowering ‘Dis’ability”
Amanda Cachia, “What Can a Body Do? Exhibition at Haverford College, PA”
Jill M Le Clair, PhD (Humber College Institute & Global Disability Research in Sport and
Health Network), “Contrasts in Canadian Print Media Images of the 2011 Lived Reality
of Persons with Disabilities and of 2012 Paralympiams: Invisibility Versus ‘Heroism’”
Meghan L Schrader, “Quasimodo’s Anguish: Privilege and the Role of Disability in the
Disney Animated Canon”
12:15 pm - 1:30 pm Luncheon and Plenary Speaker (Room: Citrus Crown Ballroom)
1:30 pm - 2:30 pm Awards & Business Meeting (Room: Citrus Crown Ballroom)
44
Session 10 3:30 pm - 5 pm
11A Biopolitics and Disability: Neoliberal (Dis)Appearances (Part 2)
Room: Dade
Moderator: Kate Kaul & Kelly Fritsch
This panel examines the cultural production of disability under neoliberal rule. Drawing
on a diverse array of cultural artifacts, media accounts of disability violence, civic
narratives of dirty water, legal discourses of addiction, and somatographic work of
artists with disabilities, the four papers look to how the category of disability is being
shaped by neoliberal conceptions of value and vitality. McGuire works to unveil how
grievous acts of normative violence not only become possible but probable in a
biopolitical cultural context focused on monitoring and measuring gradations of (good,
valuable) life. Snyder’s work traces narratives of addiction in legal and policy documents
so as to reveal an underlying biopolitical call for intervention into and incarceration of
those lives readily recognized as a dangerous threat to the overall vitality of the social
whole. Chandler’s paper further troubles our modes of valuing life by interrogating
disability as a geopolitical phenomenon governed by ongoing histories of environmental
racism, war and colonialism. Lastly, reading contemporary forms of disability art
together with Leder’s Absent Body, Parrey offers a mode of resistance to a neoliberal
logic that precludes disability’s existence as a vital form of life. Together, these papers
offer readings of how disability is rendered an unlivable life in these neoliberal times
and, at the same time, present possibilities for living in and with disability differently.
This panel is in conversation with Biopolitics and Disability: Neoliberal
(Dis)Appearances Part 2.
Anne McGuire, “Spectrums of Vitality: On Biopolitcal Violence in the ‘War On Autism’”
Sarah Snyder, “Victims of Biology and Enemies of the State: The Discursive Production
of Drug-User Subjectivities”
Ryan Parrey, “Occupying Disability: Dis-orientation and Embodiment”
11B The ADA Legacy Project: Exploring Partnership Opportunities
Room: Osceola
Moderator & Presenter: Kristen E. Vincent
In 2012, a group of advocates, scholars, museum curators, documentary filmmakers,
and others founded The ADA Legacy Project. The purpose of The Project is to preserve
and promote the history of the disability rights movement; celebrate the impact of the
Americans with Disabilities Act and other accomplishments; and educate and raise
awareness of the history, contributions, and issues still facing people with disabilities.
SDS has agreed to serve as a partner with The Project. This workshop will share plans
for The Project; detail opportunities for SDS to assist with various initiatives, including
those with the National Center for Civil and Human Rights and the Smithsonian
Institution; and enable participants to provide input in the development of The Project.
11C The Global Disability Rights Movement: Notes From Spain, India, Taiwan, and
Brazil
Room: Palm Beach / Broward
Strand: Power & Privilege
45
Moderator: Carol Marfisi
Researchers look at how the Spanish Conservative Party is using disability rights
discourse to undermine welfare state in Spain. An analysis is made of the role of key
players who have influenced the shaping of definition of disability in India under the
disability rights laws. Four strands have intertwined and shaped the Disability Movement
in Taiwan since 1990s, including Western politics. The discourses of responsibility for
justice are not uniform in Brazil, but they suggest that to move towards justice, both
disabled and nondisabled Brazilians need to dialogue.
Melania Moscoso, “Crip Washing: Undermining the Civil Liberties in the Name of
Disability Rights in Spain”
Jagdish Chander, “Disability Rights Movement in India and Definition of Disability Under
Persons with Disabilities Act, 1995 and Draft of the Revised Disability Rights Law”
Shulan Tien (Fu-Jen University, Taiwan), “From Victim to Citizen: In What Sense? The
Transformation of the Disability Movement in Taiwan”
Lyusyena Kirakosyan (Virginia Tech Institute for Policy and Governance), “Who is
Responsible for Justice? Views Articulated by Brazilians with Impairments”
11D Lived Realities in Visual Art
Room: Lake
Strand: Communities
Moderator: Sunaura Taylor
The panel on Lived Realities in Visual Art will explore the complex interactions between
disabled art practice, its disabled practitioners, and the contemporary art and fashion
world. Often there is conflict and misrepresentation on behalf of the disabled artists and
designers. We ask what are the ways in which stereotypes are promulgated and what
means do disabled artists have to unravel and dissolve them? The far reaching effects
that they might have on the way we view art and disability is investigated. The emphasis
on “lived experience” is greatly enhanced in the work of our presenting artist on this
panel. It is precisely because of the centrality of “lived experiences” to our own art
practice that these artistic projects are undertaken. Through each paper we transmit
how Lived Realities have influenced our research methods, theory, and the
underpinnings of disability scholarship and practice. Likewise we see our panel as being
part of the continuing thread carried from last year’s conference -Communities/
Identities and Disability Studies. Katherine Sherwood investigates the case of the artist
Judith Scott and her meteoric rise from outsider to insider artist from a disability studies
perspective. Riva Lehrer discusses her project in progress, Ghost Parade, portraits that
take medical experience as the springboard for depictions of bodily history Alva
Gardner’s Some Body Like Me serves to track how women with disabilities view their
role in an able-bodied society particularly acknowledging the force of advertising. Her
presentation will highlight the accessible fashions she has created for wheelchair users
such as herself.
Katherine Sherwood & Judith Scott, “Push to the Inside”
Riva Lehrer, “The Ghost Parade”
Alva Gardner, “Some Body Like Me”
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11E Radical Interventions in the Built Environment
Room: Florida Keys
Moderator: Amanda L. Cachia
What are the many ways in which disabled people have conceptualized and enacted
changes to the built environment and to the many things with which we interact on a
daily basis? The Modulor is an anthropometric scale of proportions devised by the
Swiss-born French architect Le Corbusier in 1943. It is based on the 6” height of an
English man with his arm raised. These measurements do not represent the diversity,
form, and shape of all bodies, and these measurements translated into architecture and
our built environment create barriers for disabled people. This panel explores these
issues and questions from various positions as scholar, artist, curator, educator within
the arts and disability sector. Topics include a collaborative presentation on the
exhibition “What Can a Body Do?” that opened at Haverford College, PA in 2012, that
featured the work of nine contemporary artists who invent and reframe disability across
a range of media. In this project, the gallery staff, the curator, and the artists worked
together to place access front and center, going well beyond ADA standards and
current museum and gallery protocols. Several artists on the panel explore how art and
design intersects with disability in relationship to adaptive and assistive technologies,
prosthetics, and all the political and cultural ways we comprehend and represent
disability. They also point to the efficiencies and inefficiencies of our collective response
to issues of disability and access through their art making. This panel also represents
these issues from the point of view of the institution. How are museums like the
Guggenheim shaping their specific built environments in response to disability? In
essence, this panel seeks to re-frame discussions around the future of the body and
how it inhabits space, in order to challenge and re-think access, spatial relationships,
and the built environment itself.
Amanda L. Cachia & Kristen Lindgren, “Pushing Access Further Down the Ramp”
Sara Hendren, “Slope: Intercept”
Georgia Krantz, “Reactivating the Museum Site through Lenses of Inclusion”
5:15 pm - 6:15 pm Optional Meetings and Discussions
Student Interest Group Meeting
Room: Osceola
Moderator: Adam Newman (Emory University)
Meeting for student members of SDS to meet, discuss concerns, and plan student-run
events for the 2014 conference.
Re-Imagining Citizenship for a Changing World Discussion
Room: Lake
Moderator: Sara Green
Historically, disability has challenged taken for granted notions of citizenship in
important ways. These challenges, purposive and accidental, have at various points in
history provoked debate over the appropriateness and justice of existing ideas about the
nature of citizenship, what constitutes a citizen, the rights and responsibilities of
citizenship and to whom these should be extended. Disability activists (including
47
professionals, parents of children with disabilities, advocates for the elderly, veteran’s
associations and self-advocacy groups of adults with a variety of mobility, sensory and,
more recently, intellectual impairments) have used the rhetoric of citizenship to frame
claims for their constituents. These challenges have garnered considerable returns for
some segments of the disability community – unfortunately sometimes at the expense
of others. The challenges have also pushed at the peripheries of the envelopes of
existing citizenship narratives. They have not, however, generally affected the core of
the narrative of citizenship prevailing at the time. Disability has, in effect, been the piece
of the puzzle of citizenship that is placed last and doesn’t quite fit – thereby challenging
the integrity of the overall picture. Rarely has the disability experience been given center
stage in the discourse on what citizenship could and/or should become in the context of
a rapidly shifting and increasingly global social, economic and political landscape. The
proposed meeting at the 2013 SDS conference will build upon a collaboration
established during a workshop sponsored by the University of South Florida’s
Citizenship Initiative in October of 2013. The workshop posed questions about how
disability might be used as a lens through which to view the meaning of citizenship in
global context. The goal of the workshop was not to provide definitive answers to these
complex questions. Rather, the purpose was to open a continuing dialogue about what
might emerge if disability were to be viewed as a core consideration, rather than as a
peripheral challenge, in the construction of a new citizenship narrative for the twentyfirst century and beyond. The purpose of the proposed meeting at the SDS conference
is to facilitate that continuing dialogue by giving the key participants a chance to build on
the themes developed during the workshop, solicit input and ideas from others in the
disability community, and develop “next steps” in this ongoing collaboration.
9:00 pm - Midnight SDS DANCE
(Light Hors d’ Oeuvres & Cash Bar)
Room: Citrus Crown Ballroom
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Attendee Directory
2013 SDS Conference Preregistered Attendees as of June 10, 2013 (Only those who
granted permission to be listed are included here, and each is listed exactly as they
provided their information when registering.)
A
Adebiyi, Adekunle; kunleodunbiyi@yahoo.com
Ademola Rauf, Salami; demolarauf2012@gmail.com
Akinpelu, Omolara; funmiakinpelu2000@yahoo.com
Altavilla, Gina; gmaltavilla@hotmail.com
Alyanakian, Jac; jalyanakian@prescott.edu
Anderson, Lindsey; lindsey.anderson@mavs.uta.edu
Asch, Adrienne; asch@yu.edu
Ashton, Jennifer; jashton@brockport.edu
Aubrecht, Katie; katieaubrecht@gmail.com
B
Baer, Shelly; rbaer@med.miami.edu
Bakan, Michael; michaelbakan@gmail.com
Bates, Mariette; Mariette.Bates@mail.cuny.edu
Berberi, Tammy; berberit@morris.umn.edu
Bickerton, Ashley; abick034@uottawa.ca
Blaser, Arthur; blaser@chapman.edu
Block, Pamela; pamela.block@stonybrook.edu
Bradford, William; wbradford@mail.harvard.edu
Brashear, Regan; reganpb@gmail.com
Braswell, Harold; hsbrasw@emory.edu
Brown, Claire; cdbrown@smith.edu
Brozman, Wallis; Wdbrozman@gmail.com
Brueggemann, Brenda; brendabrueggemann@gmail.com
Brune, Jeff; jeff.brune@gallaudet.edu
Burke, Chris; lavendar1@aol.com
Burns, Shawn; shawn@uow.edu.au
C
Cachia, Amanda; amanda_cachia@hotmail.com
Caldwell, Katherine; kcaldw3@uic.edu
Carter-Long, Lawrence; Lawrence@Cripster.com
Chandler, Eliza; eliza3mc@gmail.com
Chapman, Chris; chrischapman@hotmail.ca
Cleary, Krystal; krystalcleary@gmail.com
Coffman-Rosen, Stacey; staceycoffman@gmail.com
Colligan, Sumi; s.colligan@mcla.edu
Cooke, Siobhan; cookes1989@gmail.com
Cooley, Jessica; jessica.cooley@gmail.com
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Cottingham, Michael; mcotting@central.uh.edu
Coughlin, April; abcteachny@gmail.com
Cuff, Sharon; sharon.cuff@stonybrook.edu
D
Darrow, Ana; adarrow@smith.edu
Darrow, Sherri; darrow@buffalo.edu
Day, Allyson; day.345@osu.edu
DeFoe, Katie; Kathleen.Defoe@mail.cuny.edu
Derby, John; johnderby@ku.edu
DiRienzo, Sara; sdirienz@uwyo.edu
Do, Tri; tri@ahead.org
Dorn, Michael Leverett; michael.dorn@stonybrook.edu
Drutz, Karlie; karlie.drutz@gmail.com
Dunhamn, Jane; jdunhamn@gmail.com
E
Eichler, Matthew; me21@txstate.edu
Ewart, Chris; cmewart@gmail.com
F
Fecteau, Lydia; fecteaul@stockton.edu
Ferris, Jim; jvferris@yahoo.com
Finger, Anne; AnnieDigit@gmail.com
Fink, Margaret; margaretlouise@gmail.com
Fitzmaurice, Teddy; susanfitzm@gmail.com
Fitzmaurice, Susan; susanfitzm@gmail.com
Flanagan, Tara; tara.flanagan@mcgill.ca
Fleischer, Doris Zames; sirod@optonline.net
Forrest, Lois; foofy425@hotmail.com
Forrest, Staci; sforr909@live.kutztown.edu
Foster, Hayden; htg04@yahoo.com
Fox, Ann; anfox@davidson.edu
Franz, Sarah; sfranz4@uic.edu
Frederick, Angela; fredericka@rhodes.edu
Friddle, Megan; megan.friddle@gmail.com
Fritsch, Kelly; kellyfritsch@gmail.com
Frye, Lezlie; lezliefrye@gmail.com
G
G Mello, Anahi; anahigm75@gmail.com
Gallinger, Katherine; k.gallinger@queensu.ca
Gardner, Alva; alvaegardner@gmail.com
Garland-Thomson, Rosemarie; rgarlan@emory.edu
Gayle-Geddes, Annicia; gannicia@gmail.com
Gerber, Elaine; gerbere@mail.montclair.edu
50
Gibbons, Hailee; gibbonhm@MiamiOH.edu
Gilbert, Charlene; charlene.gilbert@utoledo.edu
Gluntz, Adam; adam.gluntz@gmail.com
Goergen, Corey; corey.goergen@emory.edu
Grace, Elizabeth; elizabeth.grace@nl.edu
Green, Casey; casey.green@uconn.edu
Green, Michael; michael.e.green@tcu.edu
Green, E. Mara; emaragreen@berkeley.edu
Green, Sara; sagreen@usf.edu
Groper, Jessica; JGroper@glendale.edu
H
Hall, Melinda; hall.melinda@gmail.com
Haller, Beth; bhaller@towson.edu
Hamraie, Aimi; aimi.hamraie@gmail.com
Harper, Kate; harper.kate@gmail.com
Hartblay, Cassandra; cassandra.hartblay@gmail.com
Harwood, Catherine; kandnbichon@verizon.net
Healey, Katherrine; katherrine.healey@yale.edu
Henderson, Bruce; henderso@ithaca.edu
Hendren, Sara; sarahendren@gmail.com
Hickman, Louise; lhickman@ucsd.edu
Hill, Ann Marie; annmarie.hill@queensu.ca
Hornstein, Shana; shana.hornstein@temple.edu
Hulgin, Kathleen; kathy_hulgin@mail.msj.edu
Hurlbut, Kelly; wangeman@npgcable.com
I
Ignagni, Esther; eignagni@ryerson.ca
Iovannone, Jeffry; jeffry.iovannone@gmail.com
Irving, Kathryn; kathryn.irving@yale.edu
J
Jasey, James; jjasey1@verizon.net
Jenkins, Kate; kjenkins@gc.cuny.edu
Johnson, Laurie Lee; LaurieLeeJohnson@msn.com
Johnson, Lisa; joh04896@umn.edu
Johnson, Jordan; jordan010690@gmail.com
Johnson, Amber N.; ambernj@msu.edu
Johnston, Sara; sara-johnston@uiowa.edu; sara_p_johnston@yahoo.com
Jones, Chelsea; chels.temp.jones@gmail.com
Jones, Cyndi; cyndi_jones@cox.net
Jung, Eun Young; ejung02@syr.edu
Justice, Jennifer; jenjusti11@gmail.com
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K
Kalergis, Virginia K; janiemejias@gmail.com
Kapp, Steven; kapp@ucla.edu
Karr, Valerie; vkarr@adelphi.edu
Kasnitz, Devva; devva@earthlink.net
Kaul, Kate; kk@yorku.ca
Kelly, Christine; christine.kelly@uottawa.ca
Kerschbaum, Stephanie; kersch@udel.edu
Kirakosyan, Lyusyena; lyusyena@vt.edu
Koch-Rein, Anson; akochre@emory.edu
Kolarova, Katerina; kater_kolar@gmx.de
Krantz, Georgia; gkrantz@guggenheim.org
Krementz, Dana; dkrementz@gmail.com
Kruse, Douglas; kruse@smlr.rutgers.edu
L
Lalvani, Priya; lalvanip@mail.montclair.edu
Larson, Stephanie; larson8@purdue.edu
Lawton, Kathryn; klawton@buffalo.edu
Le Clair, Jill; jill.leclair@sympatico.ca
Lehrer, Riva; rivalehrer@sbcglobal.net
Lewis-Irizarry, Carla; carlalewis34@gmail.com
Lillie, Timothy; tlillie@uakron.edu
Lindgren, Kristin; klindgre@haverford.edu
Linton, Simi; simi4@yahoo.com
Linton, David; dlinton@mmm.edu
Logsdon-Breakstone, Savannah; nicocoer@gmail.com
Love, Heather; loveh@english.upenn.edu
M
Makas, Elaine; makas@maine.edu
Malhotra, Vipin; vipin.malhotra@gmail.com
Marfisi, Carol; cmarfisi@temple.edu
Marfull-Jensen, Marisol; marisol.marfull@mail.mcgill.ca
Masiko, Monica; monimas@mail.regent.edu
Mauldin, Laura; laura.mauldin@gmail.com
May, Gary; gmay@usi.edu
McArthur, Park; pamcarthur@gmail.com
Mcgoldrick, Kathleen; kathleen.mcgoldrick.1@stony brook.edu
McGuire, Anne; anne.mcguire@utoronto.ca
McKee, Lisa; reverendgirl1996@yahoo.com
McKee, John; reverendgirl1996@yahoo.com
McMahon-Klosterman, Kathy; mcmahok@miamioh.edu
McRuer, Robert; rmcruer@gwu.edu
Meekosha, Helen; H.Meekosha@unsw.edu.au
Mejias, Norma Jane; janiemejias@gmail.com
52
Meltzer, Ariella; a.meltzer@unsw.edu.au
Meyers, Stephen; sjmeyers@ucsd.edu
Miles, Angel; amiles3@umd.edu
Mirza, Mansha; mmirza2@uic.edu
Mitchell, David; dtmitchel@gmail.com
Moscoso, Melania; melania.moscoso@cchs.csic.es
Mosher, Jennifer; jennym@vt.edu
Munger, Kelly; kmmunger@gmail.com
N
Naidoo, Vishaya; vishaya.n@gmail.com
Nakagawa, Jun; nakagawa@hokusei.ac.jp
Nario-Redmond, Michelle; nariomr@hiram.edu
Nelb Sinecka, Jitka; sineckaj@gmail.com
Nelson, Mallory Kay; malloryk@gmail.com
Neumeier, Shain; s.m.neumeier@gmail.com
Newman, Adam; adampnewman89@gmail.com
Nishida, Akemi; anishida922@gmail.com
Nocella, Anthony; nocellat@yahoo.com
Ntoukas, Alexandra; alex.ntoukas@hotmail.com
O
Ogunwale, Oluwatoyin; mamat4zure@yahoo.com
O’Hara, Mark; oharam@miamioh.edu
Olawuyi, Olabisi; olawuyiolabisi@yahoo.co.uk
Olawuyi, Idowu; yexministries@yahoo.co.uk
Oravec, Jo Ann; oravecj@uww.edu
Orsati, Fernanda; ftorsati@syr.edu
Osgood, Robert; robert.osgood@snc.edu
Ostrove, Joan; ostrove@macalester.edu
O’Toole, Corbett Joan; Mail2Corbett@yahoo.com
P
Pacione, Theresa; tpacio1@uic.edu
Pacton, Adam; ampacton@uwm.edu
Parrey, Ryan; rparrey@gmail.com
Patalano, Jimi; jimipatalano@gmail.com
Patsavas, Alyson; apatsa2@uic.edu
Patterson, Stephanie; stephanie.patterson@stonybrook.edu
Pineda, Victor; victorpineda@berkeley .edu
Pinzon-Hulderman, Cassandra; tub74693@temple.edu
Pitzer, Heidi; hkpitzer@syr.edu
Preston, Jeffrey; me@jeffpreston.ca
Price, Margaret; price.spelman@gmail.com
Pullin, Graham; g.pullin@dundee.ac.uk
Pulsifer, Rebecah; pulsife2@illinois.edu
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Q
Quirici, Marion; marionqu@buffalo.edu
R
Randel, Maryl; randelma@msu.edu
Rau, Jamie; jrau@ucsd.edu
Read, Stuart; sar212@exeter.ac.uk
Reid, Amber; amber.reid@mail.utoronto.ca
Rembis, Michael; mrembis@gmail.com
Reutemann, Casey; clreutem@syr.edu
Rice-Ford, Leslie; leslie.rice@mavs.uta.edu
Richter, Zach; cyruscyruscyruscyrus8@gmail.com
Rinaldi, Jen; jenrinaldister@gmail.com
Roberts, Devin; devrober@indiana.edu
Roberts, Krista; krista.roberts@upr.edu
Rood, Carrie; carrie.rood@gmail.com
Rose, Sarah; srose@uta.edu
Rousso, Harilyn; hrousso@nyc.rr.com
Ruffino, Renee; ruffino@buffalo.edu
Ruiz-Chapman, Tania; tania.xrc@gmail.com
Ryan, Joelle Ruby; joelle.ryan@unh.edu
S
Salami, Rauf; demolarauf2012@gmail.com
Salomon, Daniel; danielsalomon@comcast.net
Saltzburg, Nikki; drnikkisaltzburg@gmail.com
Samuels, Ellen; ejsamuels@wisc.edu
Sarmiento, Martha Patricia; msarmi2@uic.edu
Sarrett, Jennifer; jsarret@emory.edu
Schalk, Samantha; sami.schalk@gmail.com
Schrader, Meghan; meghanschrader@hotmail.com
Schur, Lisa; schur@work.rutgers.edu
Schweik, Susan; sschweik@berkeley.edu
Scotch, Richard; richard.scotch@utdallas.edu
Seelman, Katherine; kds31@pitt.edu
Selznick, Hilary; hfselzn@ilstu.edu
Shanouda, Fady; f.shanouda@gmail.com
Shek-Noble, Liz; eshe2108@uni.sydney.edu.au
Sherwood, Katherine; sherwood@berkeley.edu
Shuttleworth, Russell; r.shuttleworth@deakin.edu.au
Sibley, Alexandra; kassiane_alexandra@yahoo.com
Silverberg, Zoe; zoe.silverberg@gmail.com
Silverman, Arielle; arielle71@gmail.com
Simiyu Manyonge, Isaac; ncpwds@africaonline.co.ke
Singer, Steven; sjsinger@syr.edu
Sivakamasundari, Arumugam; sivakamasundaris99@gmail.com
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Smit, Christopher; csmit@calvin.edu
Smith, Haydee; hmsmith@ucsd.edu
Smith, Philip; philrobertovich@gmail.com
Snyder, Sarah; sarah.snyder@utoronto.ca
Solomon, Erez; eas2219@columbia.edu
Specht, Gretchen; gmspecht@optonline.net
Staeger-Wilson, Katheryne; katherynestaeger-wilson@missouristate.edu;
Stolz, Suzanne; sstolz@sandiego.edu
Stone, Rebecca ; rrstone@emory.edu
Sufian, Sandy; sufians@uic.edu
Sutaria, Sejal; sagesprite@gmail.com
T
Tatarian, Abigail; atataria@smith.edu
Tatum, Erin; erintatum91@gmail.com
Terry, Miranda; msterry@illinois.edu
Thompson, Carolyn Robbins; carolynrt@verizon.net
Thrower, Terri; territhrower@yahoo.com
Tien, Shulan; tshulan@gmail.com
Titchkosky, Tanya; tanya.titchkosky@utoronto.ca
Town, Maria; mmmtown@gmail.com
Trojic, Peter; ptrojic@gmail.com
Tusler, Anthony; ATusler@AboutDisability.com
Tyler, Eloise; etyler@cclemmonscenter.org
V
VanArragon, Elizabeth; ejv9@calvin.edu
Vogt, Sara; svogt1@uic.edu
Vroman, Katherine; kmvroman@syr.edu
W
Waggoner, Jessica; jrwaggon@indiana.edu
Wainapel, Stanley F.; swainape@montefiiore.org
Walsh, Kira; kira.walsh@gmail.com
Walsh, Samantha; samantha.lori.walsh@gmail.com
Wangeman, Matthew; matthew.wangeman@nau.edu
Werblood, Gail; gwerbl1@uic.edu
Wheeler, Elizabeth; ewheeler@uoregon.edu
Williams, Lisa; williamsl19@mail.montclair.edu
Woiak, Joanne; jwoiak@uw.edu
Wu, Yue; ywu23@syr.edu
Wyman, Franklin; Chips314@aol.com
Z
Zayas, Jose A; jaz2502@uic.edu
Zoanni, Tyler; tzoanni@nyu.edu