OUTREACH PROGRAM
RESOURCE GUIDE
Greater Iowa Chapter
JDRF Outreach Department
Resource Guide
Updated May 2010
1
TABLE OF CONTENTS
INTRODUCTION
ABOUT JDRF
WHEN YOUR CHILD IS DIAGNOSED
NATIONAL TYPE 1 RESOURCES
SUPPORT AND INFORMATION WEB SITES AND BLOGS
DIABETES PRODUCT INFORMATION
MEDICAL ALERT JEWELRY/ID
HEALTH INSURANCE
COMPANIES THAT DONATE SUPPLIES
RESOURCE/ASSISTANCE AGENCIES
SCHOOL INFORMATION
COLLEGE INFO
JDRF.ORG RESOURCES
DIABETES CAMPS INFO
FOREIGN LANGUAGE RESOURCES
EMERGENCY PREPAREDNESS
TRAVELING WITH DIABETES
CELIAC DISEASE
LOCAL TYPE 1 RESOURCES
OUTREACH MENTORS
DIABETES EDUCATORS
LOCAL DIABETES MEDICAL SERVICES
LOCAL TYPE 1 PEDIATRIC ENDOCRINOLOGIST
SUPPORT GROUPS
JDRF CHAPTER EVENTS
BOOKS AVAILABLE AT JDRF
JDRF Outreach Department
Resource Guide
Updated May 2010
2
INTRODUCTION
The Mission of the Juvenile Diabetes Research Foundation (JDRF) is to find a cure for diabetes
and its complications through the support of research.
The Outreach Program enhances the JDRF mission when it supports and engages the type 1
community by creating new partners for JDRF chapters. Outreach brings together people who
share our vision for a cure, and who will actively work with us to achieve this goal.
ABOUT JDRF
JDRF began in 1970, when parents of children with diabetes founded the organization to raise
money and awareness for diabetes research. JRDF has a clear mission: to find a cure for
diabetes and its complications through the support of research. Approximately 85%
of every dollar currently funds diabetes research or education, making JDRF one of the world’s
most efficient charities. JDRF gives more resources to diabetes research than any other
nonprofit, nongovernmental organization in the world – more than $1 Billion since 1970.
To cure, treat, and prevent type 1 diabetes, we must achieve several things:
• Arrest the immune attack on the insulin-producing beta cells
• Restore or replace beta cell function
• Better control blood sugar levels
• Protect people from – or reverse – complications
Accomplishing all of this requires that our research encompass multiple areas. Within each area,
we seek to discover and develop new drugs and devices that can be combined in therapeutic
regimens, based on an individual’s stage of disease. JDRF’s four areas of emphasis for
therapeutics development are:
1. Immune Therapies
• Stop the immune system attack on the insulin-producing beta cells
• Prevent an immune attack on regenerated beta cells or other insulin-producing cells used to
replace beta cells
2. Beta Cell Therapies
• Restore the body’s ability to make insulin through:
• Regeneration of insulin-producing beta cells (i.e. triggering the body to re-grow beta cells) and
• Replacement of the beta cells lost to diabetes
3. Glucose Control
• Dramatically improve blood glucose control while avoiding dangerous highs and lows in people
at all stages of type 1 diabetes
4. Complications Therapies
• Free people from the devastating long-term complications of type 1 diabetes, including
diseases of the eyes, nerves, kidneys, and heart
JDRF leverages research funds by partnering with government agencies around the world. Its
focus is obtaining the best research, anywhere in the world in the quickest timetable.
Approximately 1/3 of the research is now outside the United States. JDRF helps scientists to
collaborate, communicate, and share information across research disciplines and across
traditional research lines.
Disclaimer: This information is not endorsed by JDRF or any other organization. It is provided only as a general resource and
should be used only as a guide. Always consult your physician.
JDRF Outreach Department
Resource Guide
Updated May 2010
1
WHEN YOUR CHILD IS DIAGNOSED
This section is especially for parents of children with diabetes. Hearing that your child has a
chronic, incurable disease is likely the most traumatic news that a parent could receive.
Managing the day-to-day routine of diabetes care is difficult enough, but in combination with
the knowledge of diabetes complications, the disease can be overwhelming. Some tips for
coping:
Lose the guilt. Diabetes is a autoimmune disease that is not caused by feeing a child wrong or
any other parental action– you were not responsible! Focus on providing care rather than
assuming blame.
Reach out for help. This document provides a list of diabetes professionals and support groups.
There is no need to go it alone. JDRF has a wealth of adults with Type 1 and parents of children
with Type 1 who know what you are going through and can help you at any step of the way.
Don’t be afraid to ask questions. Write down and ask your child’s doctor any questions that
you have about the disease or your child’s care. Many fears are borne of ignorance.
Educate yourself. This resource guide lists websites and books on diabetes.
Take care of yourself and your family. Don’t let diabetes rule your family. Cope with as best you
can and live your life as normally as possible.
Fight back! Raise funds for research by getting involved in local JDRF programs, briefly
described in this resource guide. For many families, attending a local JDRF Walk to Cure
Diabetes provides hope and is often very emotional and uplifting.
JDRF Outreach Department
Resource Guide
Updated May 2010
2
DIABETES WEBSITES TO EXPLORE
Organizational websites
 JDRF Website - www.jdrf.org
Juvenile Diabetes Research Foundation website. Includes the latest news and
breakthroughs in diabetes research, the activities of JDRF and “Kids Online”, a special
section devoted to children with diabetes.

JDRF Kids Online – http://kids.jdrf.org/index.cfm

JDRF Online Diabetes Support Team –
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=4C02
5132-2A5E-7B6E-1AC40A9846C3960A . One to one support, a sympathetic ear,
and some practical suggestions from JDRF volunteers who have “been there”.

JDRF School Advisory Toolkit Request - www.jdrf.org/satrequest
JDRF’s School Advisory Toolkit for Families takes a proactive approach for school
personnel and families to work together through ongoing communication. Other
information regarding the Child’s Rights with diabetes, going to college, and daycare
information are also included.

www.who.int
The World Health Organization

American Association of Diabetes Educators (AADE)
http://www.aadenet.org/ General diabetes information; find a diabetes educator.

Diabetes Exercise and Sports Association (DESA)
http://www.diabetes-exercise.org/index.asp DESA exists to enhance the
quality of life for people with diabetes through exercise and physical fitness.

American Association of Clinical Endocrinologists (AACE)
http://www.aace.com/index.php A professional medical organization devoted to
the enhancement of the practice of clinical endocrinology.

National Institute for Diabetes Digestive and Kidney Disease www.niddk.com
National Institute of Health’s (NIH) Diabetes and Digestive Kidney division – site
includes lots of facts and information on type 1 diabetes.
JDRF Outreach Department
Resource Guide
Updated May 2010
2
Support Websites
 www.diabeteshealth.com
An online magazine dedicated to living a healthy life with diabetes

http://www.newtechumseth.library.on.ca/banting/
Banting Digital Library – History of discovery of insulin

www.max-life.org
Features the story of Max and the Max Life bracelet

www.type1tools.com
Features tools for children with diabetes

www.insulin-pumpers.org
Provides information and support for adults and children with diabetes and their
families interested in insulin pump therapy

www.childrenwithdiabetes.com

www.insulinfreeworld.com

www.fifty50.com

www.DiabetesStation.com

www.kidscamps.com

http://diabetesmonitor.com/
“Monitoring diabetes happenings everywhere in cyberspace”

www.dLife.com
dLife.com serves as a total diabetes hub, featuring the latest information and content
about both type 1 and 2 from many of the top experts in the world.

http://www.diabetesportal.com/
A gateway to 14 Web sites providing daily news updates, tips for living with diabetes, and
information about research findings and advanced treatments.

http://www.diabeteswellness.net/
Articles on treatment, diet and exercise, and lifestyle

Diabetes Dictionary available at:
http://diabetes.niddk.nih.gov/dm/pubs/dictionary/
JDRF Outreach Department
Resource Guide
Updated May 2010
3
Government/Insurance Websites

The National Diabetes Information Clearinghouse (NDIC), a service of the
National Institute of Diabetes and Digestive and Kidney diseases (NIDDK). Established
in 1978, the clearinghouse provides information about diabetes to people with diabetes
and to their families, Health care professionals, and the public. Their website is:
http://diabetes.niddk.nih.gov/

The National Diabetes Education Program
http://ndep.nih.gov/ The National Diabetes Education Program is a federallysponsored initiative that involves public and private partners to improve the treatment
and outcomes for people with diabetes, to promote early diagnosis, and to prevent the
onset of diabetes.

CDC’s Diabetes and Health Resource Page
http://www.cdc.gov/doc.do/id/0900f3ec802723eb The Centers for Disease
Control and Prevention (CDC), an agency of the Department of Health and Human
Services, provides answers to frequently asked questions about diabetes, along with
information about prevention and treatment.

US Food and Drug Administration – Diabetes Information
http://www.fda.gov/diabetes/ The FDA regulates the medical products used to treat
diabetes, including glucose meters, insulin pumps, diabetes medicines, and insulin. Its
Web site is an excellent source for new products that have received FDA approval and
other current information about diabetes care.
JDRF Outreach Department
Resource Guide
Updated May 2010
2
HEALTH INSURANCE
1. Insure Kids Now! – Every state in the nation has a health insurance program for people
under 18. This Website offered by the US health and Human Services Dept.
http://www.insurekidsnow.gov/ or call 1.877.KIDS.NOW.
2. www.themedicineprogram.com - Provides prescription medication for people who do
not have adequate insurance coverage or are experiencing financial hardship – no toll free
number but can be reached at 573.996.7300.
3. Pharmaceutical Research and Manufacturers Association – Assistance program
available to help offset the cost of supplies or prescription medicines.1.800.762.4636.
4. Institute for Health Care Research and Policy at Georgetown University –
“Consumer Guide for Getting and Keeping Health Insurance” for each of the 50 states. The
guides are available online at http://www.healthiinsuranceinfo.net/
INSERT LOCAL STATE HEALTH CARE COVERAGE FOR KIDS AND ADULTS (LOCAL
VERSIONS OF MEDICAID AND MEDICARE)
DIABETES SUPPLY INFORMATION
JDRF Outreach Department
Resource Guide
Updated May 2010
3
Insulin Manufacturers:
 Aventis - 1-800-633-1610
 Lilly – 1-800-545-5979
 Novo Nordisk – 1-800-727-6500
Glucose Meters:
 Abbott – 1-888-522-5226
 Bayer – 1-800-348-8100
 BD – 1-888-232-2737
 Lifescan – 1-800-227-8862
 Relion – 1-800-992-3612
 Roche – 1-800-858-8072
Insulin Pumps:
 Accu-Chek (Disetronic) - 1-800-280-7801
 Animas – 1-877-767-7373
 Dana Diabecare – 1-866-342-2322
 Insulet 1-800-591-3455
 Medtronic MiniMed – 1-800-646-4633
 Nipro – 1-888-651-7867
INSULIN PUMP COMPANIES
Animas Corporation
590 Lancaster Ave
Frazer, PA 19355
1-800- PUMP-YES
www.animascorp.com
Insulet Corporation
9 Oak Park Dr
Bedford, MA 01730
800-591-3455
www.myonmipos.com
Disetronic Medical Systems, Inc.
11800 Exit Five Parkway, Suit e 120
Fishers, IN 46038
1-800-280-7801
info@disetronic-usa.com
www.disetronic.com
Medtronic MiniMed
18000 Devonshire Street
Northridge, CA 91325-1219
1-800-MINIMED
www.medtronicminimed.com
CGM – Continuous Glucose Monitors:
JDRF Outreach Department
Resource Guide
Updated May 2010
4




Some current and future continuous glucose monitoring products include:
FreeStyle Navigator
Medtronic Minimed Paradigm Real Time Continuous Glucose Monitor
The Guardian by Medtronic Minimed
Dexcom
OTHER SUPPLIES
 Blood Ketone meter (Precision Xtra) by Abbott – to get a number instead of a
shade of pink. Need a prescription http://www.abbottdiabetescare.com

Dex4 Glucose Tabs – Name brand and some of the more expensive – but they do offer
GREAT flavors. Strawberries and Cream, Sour Apple, and Raspberry are some of our
favorites. And you can use Flex accounts for these. You can even get these at
Amazon.com!

Emla – Numbing cream, use it for CGM insertions and blood draws. Works but you
need to put it on a good hour or two before you want it to work. A 5% emulsion
preparation, containing 2.5% each of lidocaine/prilocaine. Need a prescription

Frio – to keep insulin cool without refrigeration – re-chargeable with simple tap water.
Lots of sizes available. Available from lots of vendors (Even Amazon)

GlucoPhone – A phone with a built in glucose meter that will automatically e-mail or
text the reading to a pre-designated number. Cool – but only avail with limited cell
providers and I don’t think strips are covered by insurance yet.
http://www.healthpia.us/tech.jsp or http://www.healthpia.us/product.jsp

Groovy Patches – To make wearing a pump more fun and fashionable!
http://www.groovypatches.com/ No prescription needed, about $1.00 each.

I-Port – a “port” that is inserted and changed every 3 days similar to a pump site and
then insulin injections are delivered through it. One “shot” every 3 days instead of
multiple daily injections. http://www.i-port.com/

Inject-Ease – Hides the needle and does the injection at the push of a button – but the
“snap” sound it makes may make it scarier than just doing the injection for a young
child. Also a bit clunky and hard to set up – but works well for folks looking for
alternative injections sites they can not currently reach.

Insulin Pen – Several companies make insulin pens including Novo Nordisk, Aventis
and Eli Lilly. These companies produce pens for most of their insulins, including
NovoLog/NovoRapid, Humalog, Levemir and Lantus. They are very common with
adults. Prescription is needed

Insulin Pen cartridges – Made for use with the pens – but can be used with syringes
too. If you don’t use much insulin monthly you could get 5 month supply of insulin for 1
co-pay! Prescription needed.
JDRF Outreach Department
Resource Guide
Updated May 2010
2

I.V. 3000 Transparent Dressing - Clear, transparent tape dressing for covering
infusion sites. Useful if you pull out a lot of sites and for covering Emla while waiting the
2 hours. (AKA Tagaderm OTC) If you are a pumper this may be covered by insurance.

Leg sleeve (Pump Bands) – another way to wear a pump
http://www.pumpwearinc.com No prescription needed – I have heard control top panty
hose work too.

Medicool - To keep insulin cool without refrigeration (Needs pre-cooled freezer pack.)
Lots of sizes available. Available from lots of vendors (Even Amazon)

MultiClix- by Accu-Check – Easier lancet management (Daycares & schools love these!)
Available at most drug stores and lots of on-line vendors. Can get a prescription for the
lancets. Normal shelf price is about $30 but they go on sale at Wal-Mart every so often
for $10.00-ish.

My Other Checkbook –Easily record carbs, insulin doses, oral medications and
exercise on our convenient Smart Charts. Graph your blood sugars to quickly spot
patterns. Try 4 months for $8.95 or go for a year supply for $21.45.
http://www.diabetesnet.com/mocb1.php

Needle clipper – by BD – Easier used syringe management and travel
Available from lots of vendors (Even Amazon) about $4.00

Pajama – With Velcro openings to arms and legs for easy access for shots.
http://www.licketysplitclothingworks.com

Pump Dresses – dresses for little girls with pockets for the pump that Velcro on the
inside so you don’t have to run tubing all over the place. http://www.alanamireilleapparel.com

Pump Packs – to hold the pump for young kids that don’t have belts to clip them too.
Lots of on-line vendors if you Google “insulin pump pack”.
http://www.licketysplitclothingworks.com http://www.pumpwearinc.com/

Pump skins – To make wearing a pump more fun and fashionable! Looks like they are
only available with Accucheck and Medtronic pumps.
http://www.minimed.com/products/insulinpumps/skins/

Skin Tac™ Wipes – This latex-free, hypo-allergenic wipe aids in the adhesion between
skin and adhesive tape. Helpful if you pull out a lot of sites. We got ours through our
pump company.

Soup thermos – Can be used for quick trips with insulin in the summer. Smaller,
cheaper and can be bought almost anywhere.

Spoon – makes giving little ones with needle aversions shots easier. Chances are you
already have one of these – just pop it in the freezer should be ready in an hour or two!
JDRF Outreach Department
Resource Guide
Updated May 2010
3

Syringes with ½ unit markings – A must for little ones with tiny insulin doses. Most
pharmacies do not carry them but they can order them for you. Ask for “BD Ultra-Fine™
Insulin Syringe with Short Needle, 3/10 cc (30 units) with half-unit scale” BD catalog
number #328440. UPC number #08290-328440

Uni-Solve adhesive remover by Smith and Nephew. Helps remove sticky pump sites.
Getting the sites OFF was more difficult than getting them ON! Walgreen’s can order it
for you. Not covered by insurance but well worth the $8-ish it cost.
COMPANIES THAT DONATE SUPPLIES
JDRF Outreach Department
Resource Guide
Updated May 2010
4

NIDDK – Publication called “Financial Help for Diabetes Care” which offers
information about resources such as Medicare, Medicaid, and health insurance
programs which may provide coverage for medical expenses for a person with diabetes.
The publication can be viewed online at
http://www.nicck.nih.gov/health/diabetes/summary/finhelp/finhelp/htm or to
order copies call 1.800.860.8747.

National Institutes of Health - Diabetes Program: 1.800.860.8747. For
pharmaceutical assistance programs.

Medisense Meter – donates free meters and strips. 800.527.3339

Lilly Care – donates free insulin – a patient can apply for a 3 month supply of insulin
for free. A patient must submit a new application each time he/she is applying. The
patient need the doctor’s involvement or letter stating the need for insulin
1.800.545.6962

Medic Alert – donates free sterling silver bracelets or necklaces. 800.432.5378

Aventis– donates Lantis insulin. 800.221.4025

Ciba Pharmaceuticals – can be covered by Medicare, Medicaid or third party
insurance as long as prescriptions are not covered. Eligibility is determined by the
physician based on company guidelines. 800.257.3273

Door-to-Door Medical Supply, Inc. The Diabetes Specialists, 866.589.1300,
www.doortodoormedicalsupply.com

Beckton Dickinson – Money saving coupons for syringes and patients just need to
call and request coupons. The company also offers a one time only coupon for a free
box of syringes. 1.800.237.4554.

Lifescan – Contact for assistance with glucose monitor supplies.
http://www.lifescan.com/hk/products.ssts.html

Freemeds.com – 1-888-722-7556 works really well. You can not have an insurance
prescription card and access this program, but you can have insurance and this
program.
SAVINGS PROGRAMS
Some of the pharmaceutical companies and other organizations have established money-saving
programs for those in need:
JDRF Outreach Department
Resource Guide
Updated May 2010
5

The Pharmaceutical Research and Manufacturers of America (PhRMA) has an online
database to help patients without prescription drug coverage access user friendly
information about more than 1,400 medicines offered free through patient assistance
programs sponsored by the pharmaceutical industry and others. In English the
website is: http://www.helpingpatients.org and in Spanish it is:
http://espanol.helpingpatients.org/

Pfizer has a Share Card Program that enables needy patients to purchase a 30-day
supply of any Pfizer prescription medicine they need for a flat $15.00 per medication.
http://www.pfizer.com/pfizerinc/aboutsharecared/sharecard.html

Diabetes-Meds is an advocate program that works with low-income patients on a caseby-case basis with every drug manufacturer to provide nearly every medication a
patient requires for chronic illness. Diabetes-Meds, a service of ElderMeds, works with
over 161 pharmaceutical companies and is not confined to people of any age. Every
U.S. citizen is eligible, regardless of age or medication prescribed. The URL is:
http://www.diabetesmeds.org/

You can also buy meters and test strips at a deep discount on eBay in the area
“Everything Else: Health and Beauty: Medical, Special Needs: Monitoring, Testing:
http://listings.ebay.com/aw/plistings/list/category11780/index.html

Together Rx: Together Rx Access™ Program, a free prescription savings program for
qualified individuals and families without prescription drug coverage.
http://www.togetherrx.com

You may obtain some meters, test strips and other diabetes supplies other people no
longer need them from the “Angel Network.” http://www.mendosa.com/dwsfree_drugs.htm

“Free Drugs” The URL is:
http://www.mendosa.com/dws-free_drugs.htm

Financial Help:
http://www.diabetes.org/main/community/info_news/web/dec15.jdp

Free Prescription Drug Programs:
www.rxassist.org
www.freemedicinefoundation.com
www.needymeds.com
www.ncsl.org/programs/health/drugaid.htm
CARB COUNTING RESOURCES
JDRF Outreach Department
Resource Guide
Updated May 2010
6

CalorieKing.com – Easily searchable (and free) on-line nutritional database
website. Can even buy software database to be loaded on a palm pilot/blackberry or
other fancy phones. http://www.calorieking.com

Carb Factors – The carb factor is the percentage of carbohydrate present in a food.
For instance, the carb factor of an apple is 0.13. This means that 13% of an apple's
weight is carbohydrate. An apple weighing exactly 100 grams would contain 13 grams
of carbs. Especially useful for pizza – we use .27 to .29 depending on the thickness of
the crust. http://www.medexplorer.com/nutrition/nutrition.dbm (This data base lists
everything based on 100g servings which can be easily converted to a carb factor by
moving the decimal point.)

Travel scale – useful for carb counting on the go. Especially useful for French Fries
(1oz=10 carbs), Buns (Weigh the bun in grams and then divide by 2 and that equals the
carbs), & Pizza (Weigh in g and then use a carb factor of .27 or .28 depending on
thickness of crust to get a carb count.)
http://www.amazon.com/Polder-Pocket-Size-Digital-Scale/dp/B0002EXVH8

Kitchen scale (We use the Salter Kitchen Nutritional Scale) – Makes fruits and
veggies easy to count! Available from lots of vendors (Even Amazon)
MISCELLANEOUS RESOURCES

Children’s Special Health Care Services – 800.359.3722

Life Crisis Services – Nation wide hotline for any personal crisis oriented problems
and addictions. Including gambling, depression, suicide, alcohol, abuse, neglect,
parental problems, and others. 1-800-784-2433 or 1-800-273-8255
http://www.suicidepreventionlifeline.org/

United Way - go to http://national.unitedway.org/myuw/ to find your local chapter
of the United Way.

Diabetic Driver/passenger vehicle stickers – Incase of an emergency on the
road might be nice to have something to alert the professionals that there maybe
someone with a medical condition involved.
http://www.dadinnovations.com/products.html
MEDIC ID BRACELETS
Laurens Hope – Finally…a medic ID bracelet that combines safety with style
JDRF Outreach Department
Resource Guide
Updated May 2010
7
1-800-360-8680
www.laurenshope.com
Proceeds benefit JDRF
Children with Diabetes - Medic ID Product Section
http://www.childrenwithdiabetes.com/d_06_700.htm
Fifty50 – Medic ID Bracelets
www.fifty50pharmacy.com
Med Alert Kits – providing vital information to Medics
www.medalertkits.com
Additional Medic Alert Bracelets – Lots to choose from Google “Medical Alert”.
http://www.medicalert.org
http://www.petitebaublesboutique.com/
http://www.rescuemeids.com/
http://www.missbrooke.com
DIABETES CAMPS
Diabetes Education & Camping Association
JDRF Outreach Department
Resource Guide
Updated May 2010
8
Lorne Abramson– Executive Director
256-883-2556
www.diabetescamps.org
Adult Camps
Spin, Stroke, Spin, and Stride’s
A week-long summer camp for grown-ups
Camp founder Matthew Corcoran, M.D
www.diabetestrainingcamp.com
GO TO THE ABOVE SITE (www.diabetescamps.org) TO FIND YOUR LOCAL CAMPS – THEN
INSERT THE DETAILS ON THIS PAGE IN ADDITION TO THE ABOVE.
MINORITY RESOURCES
Spanish Resources
JDRF Outreach Department
Resource Guide
Updated May 2010
2

Visit the JDRF Intranet Outreach Resources page for JDRF Diabetes information and
publications in Spanish.
http://diabetes.niddk.nih.gov/spanish/indexsp.asp

There are two books on amazon.com website: a Spanish version of the Joslin diabetes
book, and they list another one – “Diabetes: el enemigo que acecha en silencio” by
Emerito M Roncali, Instituto de Salud.

There is also a coloring workbook for children in Spanish. It is called “Libro Para
Colorear Sobre la Diabetes” and has a summary before each chapter for parents to help
them learn about diabetes. It is published by Barbara Davis Center for Childhood
Diabetes: University of Colorado Health Sciences Center 4200 East Ninth Ave., Box
B140 Denver, CO 80262 303-315-8796

The following website from the US Department of Health and Human Sersvices has
information on Diabetes Care in Spanish http://www.ahrq.gov/browse/diabetes.htm

There are two books on the amazon.com website: a Spanish version of the Joslin
diabetes book; the other is written by Elisa Hendel and is available in both English and
Spanish: http://www.amazon.com/gp/product/0971861226/sr=13/qid=1154016063/ref=sr_1_3/103-5602780-3751025?ie=UTF8&s=books

There is also a coloring workbook in Spanish. It is called “Libro Para colorear sobre la diabetes”
and has a summary before each chapter for parents to help them learn about diabetes.
It is published by:
Barbara Davis Center
1775 North Ursula Street, Aurora, CO 80010
US Mail should be addressed to:
Mail Stop B140, PO Box 6511, Aurora, Colorado 80045-6511
(303) 724-2323
www.barbaradaviscenter.org

NIDDK: http://diabetes.niddk.nih.gov/spanish/indexsp.asp

National Diabetes Education Program:
http://ndep.nih.gov/diabetes/pubs/catalog.htm#PubsHispLatino

University of Maryland Medical Center:
http://www.umm.edu/esp_ency/article/000305.htm
Spanish Language: Diabetes Management Materials
http://www.bddiabetes.com/us/download/download.asp
JDRF Outreach Department
Resource Guide
Updated May 2010
3
BD (Beckton Dickenson) has booklets that are downloadable at the link below. These booklets
are available in both English and Spanish are on such topics as:
Drawing and Injecting Insulin
Site Selection
Hypoglycemia and Diabetes
Self-Monitoring of Blood Glucose
Exercise and Diabetes
Stress and Diabetes
Planning Your Diabetes Care During Disaster Conditions
Personal Diabetes Care Card
Dining Out Guide (includes ethnic foods)
Know the Difference: High Blood Sugar And Low Blood Sugar
Sick Days
Travel, Vacations and Diabetes
Straight Answers for Kids with Type 1 Diabetes
Straight Answers for Parents of Children with Type1 Diabetes
SCHOLARSHIP OPPORTUNITIES
JDRF Outreach Department
Resource Guide
Updated May 2010
4

Two Scholarships offered annually to two kids with type 1. It is presented through the
Billie Jean King Foundation in cooperation with the American Diabetes Association to a
male or female scholar athlete ages 14-21 who plays interscholastic, intercollegiate, or
intramural tennis and has type 1 diabetes. The URL is:
http://www.worldteamtennis.com/wt5_offhtml/donnelly.html

LifeScan Inc. awards $500 Diabetes Camp Scholarships to 20 children. They will be
selected at random and will also get a new blood glucose meter. Successful applicants
must have diabetes, be under 18 years of age and be a U.S. resident. Scholarship winners
agree to share their camp experiences in words and pictures with LifeScan for
promotional purposes. Call 1-866-238-8301 or visit http://www.lifescan.com

TheraSense funds scholarships for children to participate in nationwide diabetes
summer cmaps. A Certified Diabetes Educator (CDE) must submit a nomination. The
URL is: http://www.therasense.com/nominat_child/nominate_1.htm
WHAT IS A CLINICAL TRIAL?
JDRF Outreach Department
Resource Guide
Updated May 2010
5
Clinical trials are research studies used to determine whether new drugs or treatments are both
safe and effective. The National Institutes of Health (NIH) ClinicalTrials.gov Web site answers
some of the most frequently asked questions about these studies.
The decision to participate in a clinical trial is very personal and should be made only after
speaking with your health care provider and other individuals you trust. You can stop
participation in a clinical trial at any time if new concerns arise or you lose confidence that its
potential benefits outweigh its risks.
Current Clinical Trials:
 Current clinical trials for prevention, new onset, and complications of type 1 diabetes. All
JDRF trials have been reviewed and approved by appropriate human subjects review boards
and have been reviewed by both scientific and lay review committees.
http://www.jdrf.org/index.cfm?page_id=101324
 Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment
of type 1 diabetes. This site provides information about ongoing and completed TrialNet
Studies.TrialNet performs trials for newly diagnosed or at risk individuals for type 1
diabetes. http://www.diabetestrialnet.org/
 ClinicalTrials.gov also lists NIH-sponsored trials that have been scientifically reviewed
through NIH mechanisms and approved by government council.
http://www.clinicaltrials.gov/
Although NIH-sponsored trials may be of scientific and medical value, JDRF has not reviewed
these studies and therefore cannot endorse participation in them. JDRF does not take
responsibility for the trial conduct, liability lies within the sponsoring
University/Hospital/Clinic. Inquiries regarding trials should be directed to the trials contact
person or institution not JDRF. JDRF does not take responsibility for accuracy of clinical trial
information provided.
TRAVELING WITH DIABETES
Federal Aviation Administration Regulations
JDRF Outreach Department
Resource Guide
Updated May 2010
6
The Federal Aviation Administration (FAA) has increased security measures at airports
throughout the nation due to the events of September 11. Some of the precautions taken by the
FAA, as well as by individual airlines, will likely affect passengers with diabetes, who must carry
their medical supplies when they travel. JDRF continues to monitor the situation and provide
updates whenever available.
This information represents the minimum requirements for passengers, and JDRF and the FAA
recommend calling the individual airline for further information, at least one day in advance of
the scheduled flight.
1.
Passengers may board with syringes or insulin delivery systems only if they can produce a
vial of insulin with a professional, pharmaceutical pre-printed label that clearly identifies
the medication. No exceptions will be made. Since the prescription label is on the outside
of the box containing the vial of insulin, the FAA recommends that passengers refrain from
discarding their insulin box and come prepared with their vial of insulin in its original
pharmaceutically labeled box.
2.
For passengers who have diabetes and must test their blood glucose levels but who do not
require insulin, boarding with their lancets is acceptable as long as the lancets are capped,
and as long as the lancets are brought on with the glucose meter that has the
manufacturer's name embossed on the meter (i.e. One Touch meters say "One Touch,"
Accucheck meters say "Accucheck").
3.
Glucagon is dispensed and normally kept in a pre-printed labeled plastic container or box.
We advise travelers with diabetes to keep their glucagon kits intact in the original preprinted, pharmaceutically labeled containers.
4.
Contrary to what we were told previously, because of forgery concerns, prescriptions and
letters of medical necessity will not be accepted.
5.
FAA security measures apply to travel within the 50 United States only. Passengers should
consult their individual air carriers for both domestic (US) and international travel
regulations. Be advised that the FAA's policy and the policy of each airline are subject to
change.
In the event that travelers with diabetes encounter problems boarding their flights, they should
contact the FAA Grounds Security Commissioner at the airport for assistance. We recommend
not packing diabetes supplies in checked baggage, as cargo hold temperatures vary greatly, and
the passenger may need the supplies in flight.
JDRF will continue to stay abreast of FAA policy regarding these issues. We wish all travelers
safe and pleasant trips. For more information from the FAA, go to www.faa.gov or call
866.289.9673.
Flying with Diabetes Supplies
This information along with other travel tips is located on the Transportation Security
administration (TSA) website at http://www.tsa.dot.gov all travelers, and particularly those who
travel infrequently are encouraged to visit the section on travel tips before heir trip. Frequent
JDRF Outreach Department
Resource Guide
Updated May 2010
7
flyers should review the information periodically for changes and updates. You can go directly to
these tips at http://www.TSATravelTips.us
You should always notify your air carrier of your special screening needs before you arrive at the
airport. This should include any assistance you will need with connecting flights. You might also
want to take a copy of these tips with you when you travel. If you encounter problems with the
screening process, ask to speak with the TSA security supervisor. You can report problems
encountered while traveling by calling the TSA Consumer Response Center toll free at 1-866289-9673.
Persons with Diabetes
 Notify the screener that you have diabetes and are carrying your supplies with you. The
following diabetes-related supplies and equipment are allowed through the checkpoint once
they have been screened:
 Insulin and insulin loaded dispensing products, syringes, lancets, blood glucose
meters, blood glucose meter test strips, alcohol swabs, meter-testing solutions; insulin
pump and insulin pump supplies (cleaning agents, batteries, plastic tubing, infusion
kit, catheter, and needle); Glucagon emergency kit; Urine ketone test strips; unlimited
number of used syringes when transported in Sharps disposal container or other
similar hard-surface container. Sharps disposal containers or similar hard-surface
disposal container for storing used syringes and test strips.

Insulin in any form or dispenser must be clearly identified.

If you are concerned or uncomfortable about going through the walk-through metal detector
with your insulin pump, notify the screener that you are wearing an insulin pump and would
like a full-body pat-down and a visual inspection of your pump.

Advise the screener that the insulin pump cannot be removed because it is inserted with a
catheter (needle) under the skin.

Insulin pumps and supplies must be accompanied by insulin.

Advise screeners if you are experiencing low blood sugar and are in need of medical
assistance.
Note on Diabetes technology: Pumps usually do not set off security alarms, nor do security
officials ask you to remove them. If you do set off an alarm, show your pump and explain what it
is. Your back up insulin bottle with prescription should help. Also, a CGM does not need to be
turned off during a flight CGM does use some radio frequency; it is not the type that would
interfere with a flight. You may leave it running during your entire flight.
Persons with Disabilities & Medical Conditions - Before You Go...

Provide advance notice to your airline or travel agent if you require assistance at the
airport.
JDRF Outreach Department
Resource Guide
Updated May 2010
8

If you require a companion or assistant to accompany you through the security checkpoint
to reach your gate speak with your airline representative about obtaining a gate pass for your
companion before entering the security checkpoint.

The limit of one carry-on and one personal item (purse briefcase or computer case) does not
apply to medical supplies, equipment, and mobility aids, and/or assistive devices carried by
and/or used by a person with a disability.

Make sure all your carry-on items; equipment, mobility aids, and devices have an
identification tag attached.

Disability-related items permitted through the security checkpoint include:
o Wheelchairs, scooters, crutches, casts, canes, walkers, prosthetic devices, support
braces, exterior medical devices
o Orthopedic shoes and appliances, augmentation devices, Braille note takers, slate
and stylus
o All diabetes related equipment and supplies
Tips for the Screening Process

If a personal search is required you may choose to remain in the public area or go to a
private area for your screening. If you refuse either option you will not be able to fly.

You should be offered a private screening before the beginning of a pat-down inspection if
the pat down will require the lifting of clothing and/or display of a covered medical device.

You should be offered a disposable paper drape for additional privacy before the beginning
of a pat down.

You may request a private area for your personal search at any time during the screening
process.

Your companion, assistant, or family member may accompany you and assist you during a
private or public screening. After providing this assistance, the companion, assistant, or
family member will need to be re-screened.

You may ask for a chair if you need to sit down during the screening process.
UNDERSTANDING CELIAC DISEASE
JDRF Outreach Department
Resource Guide
Updated May 2010
9
Studies show that celiac disease (CD) occurs in almost 1 in 10 children with diabetes. So if your
child has diabetes, you should know the signs and symptoms of celiac (also known as "sprue").
Here are some answers to common questions about celiac disease and diabetes:
What Is Celiac Disease?
Celiac Disease (also known as "sprue") is an allergic reaction to gluten proteins found in wheat,
rye and barley. The reaction occurs in the intestine, skin, and other tissues. Common symptoms
can include stomach pain, diarrhea, gas, and, in children, failure to grow and thrive. Celiac
causes the body to absorb nutrients inefficiently, which sometimes leads to bone loss.
Other symptoms may include:








Loss of appetite
Weight loss
Weakness
Depression or irritability
Anemia
Skin rash
Cramping
Unexplained low blood glucose levels
Most often, however, there are no symptoms. Celiac is diagnosed using a blood test and then
confirmed with an intestinal biopsy.
Celiac causes damage to the small intestine. In the early stages of untreated celiac disease, the
small intestine becomes irritated and damaged, but still functions. Problems with food
absorption become apparent right away. Celiac often develops after a viral illness and the
symptoms are similar to the flu, so celiac onset is often mistaken for the flu in its early stages.
Over time, the continued and repeated exposure to gluten makes the intestinal irritation worse.
Problems with food absorption continue until celiac is diagnosed and treatment begins. If celiac
disease goes untreated, a person can become very malnourished and literally starve to death.
How is Celiac Treated?
Celiac is treated by removing all products containing gluten from the diet completely. These
include primarily wheat, rye and barley. Rice, corn, and oats, are generally gluten-free and can
still be eaten.
It takes time for the gluten-induced damage to heal, and it's the intestinal damage that causes
symptoms. So introduction of even one serving of a gluten-containing food can cause symptoms.
Thus the person with celiac disease must completely remove all gluten-containing foods from
their diets entirely.
Adults who are asymptomatic often go untreated. Left untreated, over the long term celiac can
cause gastrointestinal tumors. There have been a few case reports of adults who have died with a
cancer of the intestine where celiac disease has been found.
How does Celiac Relate to Diabetes?
Type I diabetes occurs at a rate of about 0.5% in the general population, but at a rate estimated
at 5-10% among people with celiac. Celiac is a genetic disease carried on one of the genes that
causes high risk for type 1 diabetes. Thus, People with with type 1 diabetes are 20 times more
likely to also have celiac disease, and vice-versa.
JDRF Outreach Department
Resource Guide
Updated May 2010
10
Additionally, research from the Genetic and Environmental Causes of Celiac Disease (CEDAR)
has shown that 10% of diabetic children and adults, 3% of their relatives and 1% of the general
population have celiac disease.
Some studies have indicated that a gluten-free diet may improve glycemic control in children
with diabetes and celiac disease. However, risk for type 1 diabetes in first-degree relatives of
children with IDDM is not reduced by a gluten-free diet.
Like type 1 diabetes, celiac disease is also more commonly found in those of Northern European
extraction. No connection has been found between type 2 diabetes and celiac disease.
SCHOOL INFORMATION
When your child returns to school after being diagnosed with diabetes, it is vitally important
that the school is aware of their condition and knows how to deal with it. For a guide on
JDRF Outreach Department
Resource Guide
Updated May 2010
11
diabetes in the school setting (including daycare and college information) go to
www.jdrf.org/satrequest to get your copy of the JDRF School Advisory Toolkit for Families.
Also, every family is encouraged to download a copy of helping the Student with Diabetes
Succeed: A Guide for School Personnel from the website of the National Institutes of Health
and the Centers for Disease Control and Prevention. If the 88-page PDF file is too large for you
to download, you can request a free copy of the document by printing the order form and faxing
or mailing it to the NDEP. Go to: http://www.ndep.nih.go/resources/school.htm
You can also go to www.nasn.org for more info on what is required of a school nurse, a school
system and the need for 504 plans.
JDRF Outreach Department
Resource Guide
Updated May 2010
12
JDRF RESOURCES
At www.jdrf.org, you will find a wide variety of resource. Click on “Publications” for books and
periodicals. The following resources can be found by clicking on “Life with Diabetes” and then
“Resources”.
RESEARCH UPDATE
Since diabetes research is such a rapidly changing area, the reader is referred to the JDRF
website (www.JDRF.org), select the “research” tab.
JDRF LOCAL CHAPTER INFORMATION
Our volunteers and professional staff are focused on one mission: to raise funds for research.
We do this through the combined efforts of our special events; Walk to Cure Diabetes, Ride
to Cure Diabetes, Gala, and JDRF Golf as well as, major gifts, planned giving, third party
events, committees and board work.
The Chapter looks to our volunteer partners to provide their expertise, passion and working
assistance in the following areas:
●Administrative Support: volunteer partners who assist the Chapter office with
administrative tasks such as large mailing projects, data entry and pre-event logistics. This
assistance is on an “as need” basis and is generally supported by student and retiree groups.
●Team Captains: volunteer partners who drive our fund raising efforts for our Walk to Cure
Diabetes program
●Committee Members: volunteer partners who actively participated on one or more of the
Chapter’s special event or executive committees. Responsibilities include, but are not limited to,
strategic planning, logistics, sponsorship, budgets and proposals.
Special Event Committees
 Walk to Cure Diabetes
 Gala
 JDRF Golf
 Ride to Cure
Executive Committees
 Special Events
 Major Gifts/Planned Giving
 Strategic Planning/Finance
 Government Relations
 Community Outreach/Communications
 Nominating
 Outreach
●Board members: volunteers generally qualify to seek nomination to serve on the Chapter
Board of Directors after actively participating on one or more of the Chapter committees for at
least a year.
JDRF Outreach Department
Resource Guide
Updated May 2010
13
DIABETES EDUCATORS
This information is provided to you strictly as a resource. JDRF does not evaluate or
recommend specific programs, corporations, organizations, institutions, or medical care
providers.
INSERT LIST OF ALL DIABETES EDUCATORS IN YOUR CHAPTER TERRITORY- A
COMPREHENSIVE LIST OF DIABETES EDUCATORS IN YOUR AREA CAN BE FOUND AT
www.diabeteseducator.org
JDRF Outreach Department
Resource Guide
Updated May 2010
14
DIABETES MEDICAL SERVICES
This information is provided to you strictly as a resource. JDRF does not evaluate or
recommend specific programs, corporations, organizations, institutions, or medical care
providers.
INSERT LIST OF ALL MEDICAL INSTITUTIONS SERVING TYPE 1 DIABETES IN YOUR
COMMUNIY.
JDRF Outreach Department
Resource Guide
Updated May 2010
15
LOCAL ENDROCRINOLOGISTS SERVING TYPE 1 DIABETES
This information is provided to you strictly as a resource; JDRF does not evaluate or
recommend specific programs, corporations, organizations, institutions, or medical care
providers.
INSERT LIST ALL LOCAL ENDOCRINOLOGIST SERVING THE TYPE 1 POPULATION IN
YOUR AREA. YOU CAN BUILD THIS LIST BY GOING TO www.aace.com
JDRF Outreach Department
Resource Guide
Updated May 2010
2
PSYCHOLOGICAL SERVICES
This information is provided to you strictly as a resource; JDRF does not evaluate or
recommend specific programs, corporations, organizations, institutions, or medical care
provider.
INSERT LIST ALL LOCAL PSYCHOSOCIAL PROFESSIONALS (Counselors, Social Workers,
Family Therapist, etc.) SERVING THE TYPE 1/CHRONIC ILLNESS POPULATION IN YOUR
AREA.
JDRF Outreach Department
Resource Guide
Updated May 2010
2
SUPPORT GROUPS FOR PARENTS & CHILDREN
The Greater Iowa Chapter conducts monthly Time to Talk meetings.
What is Time to Talk?
Time to Talk is for parents, children and individuals, with a connection to diabetes, who want to
get together with other families going through similar experiences. These gatherings will provide
information and a setting for families to talk with each other.
Time to Talk will generally take place on the
second Tuesday of each month with exceptions
during those months where special events might take place.
JDRF Outreach Department
Resource Guide
Updated May 2010
2
LOCAL COMMUNITY HEALTH CENTERS
Primary Health Care Inc.
Who We Are
We are a nonprofit community health center dedicated to serving the medically insured,
uninsured and underinsured with their health care needs. We strive to find and
successfully treat medical conditions before they become serious enough to require
hospitalization or emergency treatment. We also provide follow-up, continuity of care,
pharmacy assistance, and supportive services to help patients in need. Through case
management and social work advocacy, we work to assure that our clients have greater
access to resources in the community.
This health center is a Health Center Program grantee under 42 U.S.C. 254b, and a
deemed Public Health Service employee under 42 U.S.C. 233(g)-(n).
East Side Medical
3509 E. 29th St.
Des Moines, Iowa 50317
515-248-1600
Fax 515-248-1630
Clinic Director: Lorna Hines
Clinic Hours
M - Th 8am - 8pm F 8am - 5pm Sa 9am - 1pm
Marshalltown Medical Clinic
412 E. Church St.
Marshalltown, Iowa 50158
641-753-4021
Fax 641-753-4025
Clinic Director; Susan Vititoe
Jackie Pippin, Lead Prevention Coordinator, 641-754-5336
Clinic Hours
M, W, F 8am - 6pm T, Th 8am - 8pm
JDRF Outreach Department
Resource Guide
Updated May 2010
2
JDRF MEMBERSHIP INFORMATION
Your support of JDRF is greatly appreciated. The Juvenile Diabetes Research Foundation
(JDRF) provides 86 cents of every dollar to research and education about research. By becoming
a Member of JDRF you are helping to find a cure for diabetes and its complications. We hope
you'll take the time to find out more about JDRF-funded diabetes research by visiting the
research portion of our web site.
JDRF is an accredited 501(c)(3) nonprofit agency; all donations (including membership
donations) are tax deductible. A receipt will be provided via e-mail. Additionally, donations of
$250 or more will receive a letter of acknowledgment.
Benefits of Membership
A JDRF Membership is accompanied by a one-year subscription to Countdown Magazine
and its accompanying Countdown For Kids, and various other premiums.
JDRF Outreach Department
Resource Guide
Updated May 2010
3
To register on-line to become a member, go to the JDRF website (www.JDRF.org), select the
“support jdrf” tab, become a member. Or call JDRF (800) 533-CURE (2873).
PRINT MATERIALS
A number of JDRF Educational Brochures contain information that is useful for teachers,
nurses, and administrative staff at a school attended by a child with diabetes.
Parents and teachers who would like additional information or have other concerns about
students with diabetes are invited to contact
JDRF Public Information:
Phone – 800.533.CURE
E-Mail – info@jdrf.org
BOOKS
Through our line of books, you can help raise more money to find a cure and learn to manage
your diabetes. 20 percent discount for JDRF Members only! Call 1-800-533-CURE to place
your order. To order online see the JDRF website (www.JDRF.org), select the “publications” tab.
Produced by the JDRF National Outreach Department and updated/customized by your local
chapter of the JDRF. We make every effort to keep this document as up to date if possible. If
you find any information is incorrect or outdated, please notify your local JDRF chapter or the
National Outreach department at outreach@jdrf.org. Thank you!
JDRF Outreach Department
Resource Guide
Updated May 2010
4