DR JOYCE NALUGYA SSERUNJOGI’S COMMON WEALTH FELLOWSHIP REPORT 5TH OCTOBER 2009 TO 4TH APRIL 2010 HOSTED BY THE EAST LONDON NHS MENTAL HEALTH FOUNDATION TRUST REF: UGCP-2009-20 Introduction As a consultant psychiatrist, this six-months professional fellowship has given me great opportunity to experience a range of community and specialist child and adolescent services in the UK, as well as to improve diagnostic and treatment skills in a range of disorders in children of all ages with both the breadth and depth required to train others, develop the planned Post –graduate Diploma in Child Mental Health and provide the strategic overview and leadership required. My placement has been related to the essential role i will fulfil on my return to Uganda. I will be leading the development of specialist child and adolescent mental health services at the Butabika National Psychiatric Referral Hospital and the country at large. This is a big challenge but with team work and continued support through the Butabika – ELFT link and the Uganda Ministry of Health as well as training others in child and adolescent mental health i believe we shall be able to strengthen the existing services. This fellowship was timely and has given me great opportunity to improve on my specialism in child and adolescent psychiatry as well as mental health of deaf people and their families. I believe it will go a long way in helping us as we strive to strengthen child and adolescent mental health services in Uganda. Background to fellowship Butabika Hospital – The State funded, National Referral Centre for psychiatric care in Uganda is a founding partner of the Butabika Link, the training and development collaboration with East London NHS Foundation Trust. This five year relationship has been successful in creating training for all disciplines and in a range of clinical specialities including post traumatic stress disorder and child and adolescent health. The Hospital, itself is a hub for mental health development in Uganda providing experience and teaching to all cadres of workers plus developing speciality expertise for wider use. East London NHS Foundation Trust (ELFT) ELFT is a UK mental health trust which provides services to the City of London, the London Boroughs of Hackney, Tower Hamlets and Newham. The Trust also provides forensic services to other London. ELFT provides a range of community, outpatient and inpatient services for children and young people, adults and older people and operate from 47 community sites, four main inpatient sites and have 660 inpatient beds. The objectives of the trust include to ensure the meaningful participation of service users, their carers and families in the shaping, delivery and evaluation of their care and the future direction of services and to develop a highly skilled, motivated and culturally capable workforce. 1 My placement was at the Coborn centre for adolescent mental health in Newham, the child and adolescent mental health East team (Emanuel Miller Centre) and the west team at Greateorex street), Help4u (for looked after children) in Tower hamlets, the paediatric liaison team at the Royal London Hospital and the John Denmark Unit in Manchester for mental health services for deaf people. REASONS FOR THE FELLOWSHIP The main reason for the six months fellowship was related to the essential role i will fulfil on my return to Uganda which is to lead the development of specialist child and adolescent mental health services at the Nationaly focused Butabika Hospital and the country at large. Identified needs for child and adolescent mental health services in Uganda - - Need for Child and adolescent mental health policy and infra structure Need for trained health personnel in child and adolescent psychiatry i.e. psychiatrists, family therapists, psychologists, occupational therapists, social workers- there is currently one child and adolescent psychiatrist Need to establish community, rehabilitation and liaison services as well scale outpatient and inpatient services for the children and adolescents Education needs of the young service users need to be met Research to inform policy makers is highly required Need for access to the available services and to information Study leave I am so grateful to the Ministry of Health and the Jinja Regional referral hospital for offering me a study leave for the six months. OBJECTIVES OF THE FELLOWSHIP Main objectiveTo acquire skills to enable me lead the strengthening of specialist child and adolescent mental health services at the nationally focused Butabika Hospital. Specific objectives: a) Skill learning- to experience a range of community and specialist services as well as develop diagnostic and treatment skills in a range of disorders in children and adolescent assessment, medication, CBT, psychotherapy, behavioural management, family therapy plus planning and evaluating interventions. b) Gain understanding of multi agency working and child welfare issues- attending weekly referrals meetings, professional and multiagency meetings as well as child protection conferences 2 c) Management skills- attend clinical and managerial sessions with consultant child and adolescent psychiatrists d) Develop the planned post graduate diploma in child mental health and provide the strategic overview and leadership required- Develop teaching materials for teaching and service development e) Mental health and deafness orientation – start a mental health service for deaf children and adolescents How objectives were achieved (planned activities) - Induction training Academic PMs at the Family therapy training Workshops (family therapy, trauma workshops, CBT) Conferences ( child protection conferences) Attend court sessions Planned placements ( inpatient, community, paediatric liaison teams and John Denmark Unit for deaf mental health services) - Liaison with schools e.g. Phoenix school for autistic children, liaison with social care, - developing materials for post graduate diploma - visit a mental health unit for deaf people Progress with activities (i) Induction training at the Trust headquarters at East One (22 Commercial street, E1 6LP) This was a two weeks induction training including information on structures and policies of the trust. Areas covered included the following: - Working with service users - Human resource development and staff motivation - Communication skills - Defensive media management - Safeguarding adults and domestic abuse - Trust policy and legislation - Safeguarding children levels 1,2,3 - Risk management techniques - Health ,safety and security - The care programme approach- the frame work of multidisciplinary care - Fire safety - Infection control - MAPA training ( break away skills at unit 8 kings wharf) - Mental health act training 1983 - Part 3 of the mental health act 1983 (ii) Academic programs at the Institute of child health, 30 Guildford street, London WC1N 1EH I attended academic afternoons with the specialist psychiatric registrars (SpR) at the institute of child health 30 Guildford Street. We discussed a wide range of topics as follows: - Drug treatment in autism spectrum disorders 3 - Chronic disability- learning disability(Dr Mosun Dorgu consultant child and adolescent psychiatrist ) - Chronic disability – mental health and deafness ( by Dr Nicoletta Gentili consultant child and adolescent psychiatrist national deaf child and family services, corner house inpatient unit) - Eating disorders in children and adolescents ( Dr Dasha Nicholls consultant child and adolescent psychiatrist) - Childhood disability: chronic illnesses , on call supervision( Dr Birgit Westaphal consultant child and adolescent psychiatrist) - Psychopharmacology1 basic principles, including psychodynamics, pharmacokinetics, and prescribing in child and adolescent psychiatry - Attachment theory and attachment disorders (Dr Margret Dejong Consultant child and adolescent psychiatrist) - Long term sequalae of preterm birth (Prof. Neil Marlow , Prof of neonatal medicine UCL) - Base line investigations in psychopharmacology - Developmental assessment (Dr Mirsada Smailbegovic- Consultant community paediatrician) - Giving feedback ( Dr Helen Stewart Consultant child and adolescent psychiatrist) - Perinatal psychiatry (Dr Charles Musters consultant perinatal psychiatrist) - Fostering and adoption ( Dr Margaret Dejong) - Basic Psychodynamic theory ( Jill Hodges- Consultant Child psychotherapist) Barts Academic afternoons I had opportunity to attend academic afternoons at the Robin Brooke Center St Barthlomews Hospital as outlined below: 1. communication in psychiatry- understanding communication essential for managing behaviour problems associated with mental disorders; do deaf people hear voices?, psychotic illness in people with hearing impairment; dangerous behaviour as communication: a forensic case study; the pathoplastic effect of ASDs on the presentation and management of psychosis 2. Trust Research and development day 3. Culture and psychiatry 4. Cultural consultation process- person centred interventions for culturally diverse societies (iii) Placements The placements enabled me acquire a wide range of clinical as well as management skills. The psychopharmacology meetings every three months where consultant child and adolescent psychiatrists meet to discuss developments in psychopharmacology and drug management of complicated cases e.g. conduct disorders, ASD etc were very helpful. In addition research days at St Bartholomew’s university hospital and CAMHS research days exposed me to research opportunities. More to that i benefited from the wealth of knowledge and expertise from the consultants whom i worked with for example attending Prof. Scott inaugural lecture with Dr Alyson Hallcan we improve parenting and benefit society- parenting interventions, Family court session at East Croydon where DR Alyson Hall was giving expert witness as well as working on the post graduate diploma. I describe here below the various placements: 4 , The Corbon Centre for Adolescent mental health (cherry tree way, glen road, Plaistow, London E13 8SP) with Dr Rafik Reefat, Dr Navina Evans and Dr Ereni Skouta This unit was established in 2001 operated at tier 4 level. It has a 24 hour inpatient service, operating a Psychiatric intensive care unit (PICU), a day service and acute patient unit and a school. It’s a 12 bed unit with about 2 new admissions per week. Its well equipped for the school programmes, occupational therapy, music and art therapies. There are 2 consultant child and adolescent psychiatrists, 40 nurses and administrative staff, teachers, psychologists, a family therapist, a pharmacist, occupational therapists, a social worker. There are SHOs and specialist psychiatric registrars (SPRs). Each patient is allocated a primary nurse who is responsible for his well being. All the staff have access to information from the trust wide intranet which also makes communication much easier. The activities include: hand over of patients at 9.00am every day, clinical review meetings (equivalent to ward rounds in my country); Care program approach (CPA) meetings, management meetings, patient tribunals, professionals meetings, mental health assessments for the young people, community meetings, case discussions. I had good experience in managing psychosis, bipolar disorders, depression, attachment disorders, emerging personality disorders, self harm, eating disorders, OCD, etc Working at this unit helped me improve my clinical skills, management skills, managing staff, proper documentation and data management as well as reporting, application of the mental health treatment act, appreciate importance of school programme at the inpatient unit, team work and linking with the various community teams, continued training for all the staff, the CAMHs research day gave me opportunity and new ideas in research. Tower Hamlets CAMHS East, Emanuel Miller Centre, 11 Gill street with Dr Dorner Hanspeter This is a multi disciplinary tier 2/3 mental health service working with children and their families. The service provides comprehensive assessment and treatment to children and young people from a wide variety of cultural and ethnic backgrounds and with a high level of deprivation. The team includes two psychiatrists child psychotherapist, clinical psychologists, family therapists, psychiatric nurses, social workers and administrators and interpreters. Working with this team gave experience in assessment and management of key conditions in child psychiatry including ADHD, ASD, emotional and affective disorders, early onset psychosis, conduct disorders, etc as well as working with families. I had regular weekly clinical and educational supervision with DR Dorner which involved providing a good standard of practice and care, using results of clinical assessment to ensure effective patient management, managing emergencies, maintaining good medical practice, working with colleagues and writing reports. We put much emphasis on the standards for better health that include: safety, clinical and cost effectiveness, Governance, patient focus, accessible and responsive care, care of environment and amenities and public health. The availability of a National service frame work and National Institute for Clinical excellence (NICE) were very helpful. 5 I had good exposure at working with Help 4 U a service for looked after children, attending child protection conferences, attending family court sessions, home visits and school visits as well as management of referrals. Tower hamlets integrated service for disabled children (Wellington Way Centre, 1A Wellington Way, Bow E3 4NE) This is an integrated service for disabled children in the borough provided by professionals from health, education and social care services building an effective joint working process to meet the needs of disabled children and their families in a timely manner. This service is made up of : the children with disabilities team( provides social care service to children and families), the portage team ( a home based teaching service for children under 5 who have special needs, the child development team( provides assessment and advise on care management of children with developmental difficulties from birth to 19 years, the physical impairment team (consists of teachers who provide education support service to young people with physical impairment or severe medical condition) and the community children’s nursing team( specialist children’s nurses provide nursing care to children and young people with nursing needs in partnership with their parents), the school medical service(provided by community paediatricians and school nurses- they assess school children who have health and developmental problems that may impact on their ability to learn. The Paediatric liaison team with Dr Birgit Westaphal (Royal London Hospital) This team is made up of child and adolescent psychiatrist, child and adolescent clinical and neuro-psychologists, child and adolescent social worker, clinical nurse specialists, family therapist and bilingual co-worker (Bengali). The team sees young people from age 0 to 18 years who experience psychological difficulties adjusting to and managing medical conditions. The neural psychologist specialises in the link between neurological conditions and a child’s development learning and behaviour. Young people who present at hospital having self-harmed or attempted suicide are managed by this team. This team like all others works closely with other health teams and professionals. While at this placement i attended the paediatric neurology clinic (manages epilepsy and other neurological disorders), HIV clinic with Dr Anna who worked in Uganda for 3 years, feeding clinic, attended neuro- psychology meetings, school visits, referrals meetings. i witnessed management of epilepsy and complicated cases for example Rett’s syndrome, psychosis in cushings syndrome, Duchene muscular dystrophy (DMD), Xeroderma pigmentosa and many more. The importance of working with siblings of children with chronic illnesses is emphasized. Adolescent Mental Health Team (Greateorex Street) with Dr Ruma Bose This is a specialist tier 3 service comprising of a community multidisciplinary team responsible for assessment and treatment of psychiatric and neuro developmental disorders for young people. These include psychosis, depressive disorders, ADHD, ASD, tourettes and complex tic disorders, self harm and suicide attempts, eating disorders, OCD, anxiety disorders, mental health problems secondary to abusive experiences, mental health problems associated with physical problems and somatoform disorders. I was happy to follow up young people i had seen at the Corbon. 6 MENTAL HEALTH AND DEAFNESS SERVICES (Supported by Rodney Clark Chairman Sign Health UK) Sign health UK is supporting mental health and deafness services in Uganda through sister organisation Sign Health Uganda. The deaf world exhibition at Southampton Rose Bowl cricket square I attended this exhibition together with Paul the development manager sign health Uganda. Paul was doing his two weeks induction with Sign health UK. The exhibition provided exposure to a total of 40 exhibitors dealing with different aspects of deafness in one stop centre. We were exposed to a wide range of assistive devices for deaf people e.g. Hearing Aids, fire alarms, door bells, loops and vibrating clocks offered by Deaf plus and the Royal National Institute for Deaf (RNID). In addition we interacted with people who offer services for deaf in education and family support. Hampshire deaf association: This organisation has various projects which include Fun for you which organises play days for children and their families including hearing children in a school setting during holidays; Happy Tots which is a project for deaf parents with hearing children and hearing parents with deaf children. The parents get together and share experiences; Deaf features project- supports young deaf people aged 16- 25 organising workshops to develop their life skills; Role model project- gives opportunity to young deaf children to meet successful deaf adults and many more. The National Deaf Children’s Society (NDCS): This aims at creating a world without barriers for deaf children and young people, campaigns for the rights of all deaf children and young people, working with parents, teachers and other bodies they also produce materials for deaf friendly teaching, parenting etc. We attended Sign health and Sign Translate workshop on web based access to health services for deaf people where the deaf can access interpreter services on line. The National Centre for mental health and deafness, John Denmark Unit (Greater Manchester West Mental Health NHS Foundation Trust (Bury New Road, Prestwich, Manchester M25 3BL) Here i worked with Dr Hilary Vowels and the MDT that included deaf staff (Nurse and psychotherapist and occupational therapist as well as hearing staff who are fluent in sign language. I visited a sign health house at Urmston (community rehabilitation centre for deaf people), attended clinical review meeting for the inpatients, shadowed CPN on community visit, attended video conference with Dr Hilary, had sessions 7 with psychotherapist and the sex offenders team, attended a paper presentation on influences of maternal depression on early child development- a global perspective. I also had orientation at the Gardener unit - forensic service for adolescents in same hospital with Dr Andy Clark – consultant child and adolescent forensic psychiatrist. Deaf Chid Worldwide and NDCS: I was so happy to meet Julia Pecket and Katy McCoy with whom we discussed in detail how to work with parents and families of deaf children. Lessons learnt from deaf services: - Like any other human deaf people also have mental health needs We need to learn sign language in order to integrate mental health needs of the deaf and their families into the existing mental health services in Uganda. Deaf people can be trained to become professionals in health(Nurses, social workers, occupational therapists, psychotherapists, etc) There is need to develop and integrate deaf mental health services into the existing services Other activities: - - - - Butabika link activities: i participated in all Butabika- ELFT link activities including work on the PCO BID which was successful; attending and participating in link meetings, At the Butabika exhibition we were visited by the minister for international development and we briefed him about child and adolescent mental health services in Uganda which article was published in one of the local news papers. Common wealth activities: The welcome day programme for common wealth scholars and new award holders(9th November 2009) at west minister followed by a reception at Lancaster house ( great opportunity for me to meet chairman Prof T Urwin, Mike Bray, and others, interacting with other fellows, helped me discover my hidden abilities. The common wealth observance day observance at Westminster abbey (Monday 8th March 2010). In the morning we had in-depth discussions of our awards together with our award administrators at the British council. I was so happy to meet and interact with Mike Bray, Mariken Schipper and Deborah Benet from the common wealth scholarships commission as well as other fellows most of whom had joined in January 2010. The Cerebrations were very eventful, with songs of praise to God and prayers from various religious denominations, attended by the Queen of England and the Duke of Edniborough and other dignitaries and the promotion and recognition of science and technology 8 Leisure activities Despite the busy schedule we often had time in the evenings and weekends to visit some places and touristic attractions as well as meeting friends. - The Stonehenge, eidnibrough castle, museums, west minister, Queens palace, London eye, etc Some parks and squares in London such as Piccadilly square, oxford circus etc The opera at the Lawry centre in Manchester and national theatre, Shopping centres Visiting friends in London, Shrewsbury, Edinburgh, Homewood park in Bath, Leicester, Dartford, Barking, Bristol, oxford and many others Feedback i got from my mentor and other Colleagues This fellowship helped me discover my hidden potential! I could not believe when my London colleagues described my professional expertise from my Uganda experience, my approach to families and young people with calm, respectful and non judgemental attitude and hard work and willingness to learn more was very encouraging. I was liked by all teams which i also felt during my stay with the different teams and always felt that i needed more time with the teams. Changes i hope /expect to see in the service as a result of my fellowship A full time child and adolescent mental health service at the Butabika National referral hospital More trained health personnel in child and adolescent psychiatry at National level Decentralisation of services to the regions and districts through implementation of integration of child and adolescent mental health services into existing health services Integrating mental health services of deaf people into the existing services Multi disciplinary teams including paediatric liaison Family support and groups formation Access to information by staff (IT library) and to service users/families (flyers) Ongoing support supervision Ongoing research More advocacy for funding from the government and partner organisations Challenges: The biggest challenge ahead of me is how to apply the skills and expertise from a wealthy country to a country with limited resources! England has very good health service which is accessible even by the poorest communities. The human resource with the wide range of specialism and training of staff at all levels of care (tiers 1 to 9 4), the salaries for health professionals, the good access to information and technology, and the wonderful referral system facilitated by the good transport network, ambulance, and policies in place have always left me wondering about the implementations of services in our country. However with continued support from the Uganda Government and other organisations i trust that the experience i have gained from the UK will be very helpful as we work towards improving the existing child and adolescent mental health service in Uganda. Recommendations/ plans (short term and long term) - Training more child and adolescent psychiatrists, clinical psychologists, family therapists, social workers, occupational therapists, child and adolescent psychiatric nurses and others from Uganda - Continued support for the Butabika- ELFT link. Follow up with the people i worked with in the UK after my return to Uganda - - I am so happy that there is an established Butabika- ELFT link which is growing stronger I will continue working with my UK colleagues through email and ongoing consultation and reports, i have great hopes that the Butabika hospital website will be utilised. There is possibility of collaborative research and programs through the link Overview of how the fellowship went This fellowship was timely coming at a time when Uganda needs the specialism in child and adolescent psychiatry. I was impressed by the assessment and management of the common child and adolescent disorders skills in psychopharmacology, teamwork, liaison and community as well as management of the services. Comments on the travel arrangements/ accommodation I commend the British council staff in Uganda and the UK for the smooth travel arrangements. I had no trouble with the UK boarder agency or the health department and received money on my arrival at the airport with no problems. My award administrators Mike Bray and Mariken were always helpful. My award coordinator (Mr Cerdic Hall) was exceptionally good. About accommodation i would have preferred an independent accommodation. Other comments - My fellowship came at good time for me to taste and experience three seasons starting with end of autumn with the leaves turning orange and later falling off from trees, and then there came the long awaited winter which 10 locals described as the worst in the past 30 years! And the beginning of spring with the daffodils’ and blossoming of the trees. - I got a fair impression of preserving nature of all kinds - The good transport network of all kinds: Air including air ambulances, Water, Road and rail net works is amazing. - Access to services including health, education, security by all communities is worthy mention - Despite all this many people live stress full lives with minimal social contacts, there is excessive smoking on the streets, many don’t believe in God and most church buildings are mostly touristic attractions with most religious activities i attended were dominated by Black British. Acknowledgements - - - British council- for the financial and welfare support, the pre departure briefing from the Uganda British council staff and information on the flash disc and was particularly helpful Association of commonwealth scholarships commission – for nominating me East London NHS mental health foundation trustThe ministry of health- Uganda, Butabika and Jinja hospital management My award administrators (Mr. Mike bray and Mariken Schipper) Mr Cerdic Hall for the good coordination of the programme My mentors (Dr.Dorner Hanspeter and Dr Alyson Hall) and all Consultant Child and adolescent Psychiatrists and teams where i worked during my placements. My relatives and Uganda friends in the UK especially James, Faith, Carol, Moses, Hilda, Vanessa and Hulda may God bless you The Seventh Day Adventist churches at Holloway, Stratford, Becton Mr Rodney Clark and the Sign Health Staff Dr Hillary vowels and the staff at John Denmark Unit The families of Alyson and Ferelyth for all the support Last but not least my husband Josiah and children Dorcus, Deborah, Dan for your continued support and encouragement throughout the fellowship. 11