ENABLE-CKD
Enhancing Care and Saving Lives of People with CKD
CKD - THE IMPORTANCE OF PATIENT INVOLVEMENT IN A STUDY TEAM
This CKD Quality Improvement project aims to improve the variability in managing CKD using
a care bundle (a set of evidence-based activities grouped together and carried out at the same
time) as a quality improvement intervention. Our bundle comprises three clinical interventions,
plus one self-management intervention developed and delivered by a Patient Advisory Group.
26 GP Practices received self-management training, with 420 patients (75% of those asked)
utilising the self-management packages. This project is especially innovative in the way it was
driven by people with kidney disease, whose professional skills and personal experience
enabled them to increase the value of the intervention for both practitioners and people with
early CKD.
This presentation describes how patient involvement enhanced the quality of the work:
• the development, content, and delivery by patients of training sessions for practitioners
on facilitating self-management
• a self-management package for people who have CKD including a self efficacy
questionnaire, educational materials for different learning styles, a prompt sheet to
address patients’ concerns at consultation
• the development and delivery of group education for people with CKD
• the Patient Advisory Group composition and terms of reference
• what practitioners gained from the patient involvement in the study team
• what people with CKD gained from this patient-driven approach
Fiona Loud, Director Kidney Alliance and Study team lead, ENABLE project
Project Support:
Key contact: Jo Moore, Project Manager
www.kidneyresearchuk.org
jo@jcm-associates.co.uk Tel : 07803 956452
Registered Charity No. 252892 Scottish Charity No. SC039245