Information Bulletin March 2014 National Day of Action Against Atos – Manchester Joins In On 19 February, over 100 disabled people and nondisabled allies made their feelings known in a lively demonstration outside the Atos office, at Albert Bridge House in central Manchester. There was a good representation of organisations from Manchester, including Photo by Tom Armstrong, banner by GMCDP, WCA Action Group, Steve Graby, Daira Hopwood, Allie Cat Unite, members of mental & Greta Schultz. health user groups, other disabled people’s groups and disabled individuals. Anne Rae from GMCDP and Tom Griffiths from WCA Action Group both spoke about the injustice of the Work Capability Assessment and the inhumane and humiliating way the assessments are carried out. The demonstration was friendly and upbeat, with protest songs performed by a musician, and demonstrators chanting. A minute’s silence was held in respect for and remembrance of those who have died shortly after, and committed suicide because of, WCA assessments. Katie Cragg, Project Worker in the Including Young Disabled People’s Project at GMCDP, said: “It was good to see such a great number of people coming together to make their voices heard and share their experiences of the WCA and Atos, the feeling of solidarity was marvellous. Expressing our anger and outrage at how disabled people are being treated was only one element of the demonstration. The feeling of shared experience and making links with each other for peer support was also invaluable. I would definitely encourage anyone to get out and join a demo.” 1 The Sad Loss of Two GMCDP Members Bev Burkitt We are sorry to tell you that Bev Burkitt died at the end of December. Bev was one of the first young disabled people’s project workers for GMCDP in the early 90s, and continued her involvement for several years before moving away from Manchester. Bev’s contribution to disability arts through her writing and performance with the Nasty Girls will also be remembered. GMCDP’s thoughts are with Bev’s daughter Jasmine, her parents and family. Marion Wood Marion was a member of GMCDP for many years, almost since GMCDP’s inception. Although Marion was not well enough to be involved in GMCDP for the last few years, her earlier contribution will be remembered. Marion was also on the Board of New Breed Theatre Company. GMCDP’s thoughts are with Marion’s partner, Lizzy Gent. Victory over Access to Theatre Doug Pauli and a group of other disabled people from a Leonard Cheshire residential home in Leeds have successfully challenged the SMG entertainment group over theatre tickets for Personal Assistants (PAs). The York Barbican wanted to charge the group full price for tickets for their PAs when going to see Bill Bailey. Doug argued that this is discriminatory because it means disabled people who need PAs pay double to see the same show as non-disabled people not requiring a PA. On the night before the case was due to go to court the SMG entertainment group acknowledged that they had discriminated against disabled people. This should have a wider impact on theatre ticket policies. An article can be found on The York Press website: http://www.yorkpress.co.uk/news/10991417.Disabled_customer_wins_Yor k_Barbican_legal_challenge/?ref=ms 2 New Platform for Debate around Independent Living A WordPress blog has been set up as a space for debate around independent living. The information on the page says: “This blog has been created by Neil Crowther as an open platform to share thoughts and ideas about the future of independent living. It operates according to one main rule: contributions must seek to, ‘make hope possible rather than despair convincing’.” The blog is at: http://theindependentlivingdebate.wordpress.com Neil Crowther Human Rights Committee Criticises Government over Independent Living In a report published on 27 January, the Joint Committee on Human Rights suggested the government should use the Care Bill going through Parliament to ensure that, “all providers of publicly arranged or paid-for social care services are bound by the Human Rights Act.” This would include support provided in people’s homes and residential homes. It also includes all support not classified under the National Assistance Act 1948. The committee said it is disappointed that the government did not use this Bill to ensure, “a free-standing, enforceable right to independent living.” The committee suggested an amendment should be put forward at the Commons Report stage to remedy this, and the Wellbeing Principle in part 1 of the Bill should refer to independent living. This would not enshrine the right in law, but would give leverage to challenge a local authority. For more detail, and links to the report, go to: http://www.parliament.uk/business/committees/committees-a-z/jointselect/human-rights-committee/news/care-bill-substantive/ 3 Legal Commentary on the Care Bill Belinda Schweh, a consultant and trainer on health and law, has put free commentary on her website about the Care Bill, which is currently going through Parliament. To find links to the documents, go to: http://ec2-54-247-64-73.eu-west1.compute.amazonaws.com/Public/PublicPublication.aspx European Commitment to Reduce Institutional Living In December 2013, the European Council and European Parliament formed a commitment to support “transition from institutional to, community-based care,” in the new regulations for the EU Cohesion Policy Investment. This is funding available to all EU countries. This means between 2014 and 2020, European funds should not be used to continue institutions, but to introduce more community-based living opportunities for disabled people. It gives European states the chance to use European funding to cover the cost of transition from residential living to community-based living choices for disabled people – which is crucial at a time when all governments are looking for ways to reduce costs – and disabled people’s independent living seems to be an easy target. For more information, go to the European Network on Independent Living website: www.enil.eu Older People being Moved from Europe to Thailand The BBC has highlighted an emerging trend in some European countries, of moving older people, particularly with dementia, to residential and nursing homes in other countries such as Thailand. The argument is that the cost is much less than in, for example, Sweden or Germany, and the quality of care given much higher than in those countries. 4 For more detail, and a link to an Alzheimer’s Society report showing that around 80% of older people in residential homes have significant memory loss or dementia, go to: http://www.bbc.co.uk/news/health-25438325 Proud, Strong and Visible – Promoting Choice, Control and Participation of Disabled People in Europe This project, led by the European Network on Independent Living, will run during 2014 and will support the implementation of Article 19 (living independently and being included in the community) of the UN Convention on the Rights of Persons with Disabilities (CRPD). This obliges states to facilitate the full inclusion and participation of disabled people in the community, by ensuring that they, “have access to a range of in-home, residential and other community support services, including personal assistance necessary to support living and inclusion in the community.” ENIL has identified several main objectives for the project, including: To provide evidence based advice to policy and decision makers at the national and EU level about making the transition from institutional care to community living, with a focus on personal assistance; To build a business case for the transition from institutional care to community living by comparing the cost of personal assistance and residential care through a European survey; To strengthen the involvement of young disabled people in the Independent Living movement at the local, national and European level and to identify the key challenges in accessing employment and education; To monitor the situation of disabled people in the EU, candidate and potential candidate countries, focusing on progress towards deinstitutionalisation and the impact of austerity measures on disabled people; To tackle discrimination against disabled people by raising awareness about disability hate crime. For more information, go to: www.enil.eu 5 Further Court Case over Bedroom Tax A couple from Sandwell are challenging the ‘bedroom tax’ in court. This is after an Appeal Court decided in January that the ‘bedroom tax’ is justifiable discrimination against disabled adults, because Discretionary Housing Payments are available. Sandwell take Disability Living Allowance into account when assessing disabled people for Discretionary Housing Payments (DHP). The Solicitors, Irwin Mitchell, are assisting the couple to argue that it is against equality and human rights legislation. The couple receives less Discretionary Housing Payment because they receive Disability Living Allowance, and so have to use some of their DLA to pay their rent. The couple is willing to move to a smaller property, but none is available. To see the detail of the case, go to: http://www.irwinmitchell.com/newsandmedia/2014/January/Green-LightFor-Judicial-Review-Into-Sandwell-Councils-Housing-Benefit-Assessment To see more information about the previous court cases, go to the Disability Rights UK website: http://www.disabilityrightsuk.org/news/2013/july/appeal-court-hearbedroom-tax-human-rights-case UN Rapporteur’s Report on UK Housing - Damning of Government Policy In a report which has been savagely criticised by the government, Raquel Rollin, the United Nations special rapporteur for housing, has made suggestions about government policy. Firstly, that welfare reforms should be suspended – particularly the ‘bedroom tax’ – and secondly, rights for tenants of private landlords should be strengthened. To see an article from the Guardian newspaper, go to: http://www.theguardian.com/society/2014/feb/03/ministers-savage-unreport-abolition-bedroom-tax To see the report, go to: http://dpac.uk.net/wpcontent/uploads/2014/02/A_HRC_25_54_Add.2_ENG.doc?ae59cd 6 Survey – Experiences of Community Care Assessments Carer Watch is working with some supportive MPs to look at disabled people’s experiences of Community Care Assessments. To see the survey, go to: http://fluidsurveys.com/surveys/carerwatch/community-care-assessments/ Consultation on Joining Health and Social Care Services in Stockport NHS Stockport Clinical Commissioning Group and the Local Authority are looking at joining up health and social care services across Stockport. This new model of combining health and social care services has already been launched in the Marple and Werneth locality, they are now wanting to roll out this new way of working into the whole of Stockport. Events are being organised for people to hear about the plans: 19 March, 10am - 12.00 noon, St Peter’s Church, Hazel Grove 25 March, 18.30pm - 20.30pm, The Centrepoint, Bramhall 27 March,10am - 12.00 noon, The Rudyard Hotel, Wellington Road North To book a place: phone 0161 426 5660 email stoccg.haveyoursay@nhs.net Deaf People’s Right to Qualified Interpreters Our Health in Your Hands are running a campaign to make sure Deaf people who use British Sign Language know they are entitled to have a fully qualified British Sign Language Interpreter when going to GP or hospital appointments. To contact Our Health in Your Hands, email info@ohiyh.org.uk For more information, including an explanation of the campaign in British Sign Language, go to: www.ohyh.org.uk 7 Deaf Woman Denied Interpreter during Birth of Son This news story highlights the poor quality of support many Deaf people still receive from the NHS. University College Hospital in London did not provide a qualified British Sign Language interpreter to Nadia Hassan and her partner Hulusi Bati during the birth of their son in December. For more information and other cases, go to: http://www.theguardian.com/commentisfree/2014/jan/20/deaf-personhospital-interpreter-nhs-equality Don’t forget the consultation the NHS is currently undertaking about improving access to information for disabled patients, at: http://www.england.nhs.uk/ourwork/patients/accessibleinfo-2/ To see a survey of Sign Language Users, go to: http://www.actiononhearingloss.org.uk/get-involved/campaign/equaltreatment/the-problem/survey-of-bsl-users.aspx Two campaigns you may wish to check out are: Spit the Dummy and Campaign for a BSL Act https://www.facebook.com/groups/bslact/ which is campaigning for an Act giving legal protection to BSL and Pardon? I’m Deaf. When Will You Listen? https://www.facebook.com/groups/493428380692725/?fref=ts which campaigns for the communication support needs of Deaf people who do not use BSL. Lipreading Classes Manchester Centre for Deaf Studies is running free lipreading classes on Wednesday afternoons. The classes are for people with a hearing loss, but family and friends who wish to improve their communication with the person with a hearing loss may join. 8 The classes are held at London Scottish House, and are informal and friendly. They offer: • Lipreading practice in a friendly atmosphere; • Strategies and tactics for difficult situations; • A chance to share problems with others with similar difficulties; • Information about assistive devices (such as flashing door bells); • Information on hearing aids and how to look after them; • Information about useful organisations (such as Hearing Link or Action on Hearing Loss). The classes are free, but tea and biscuits cost 50p, and people joining the class will need a ring-binder for information given out. For more information, contact: Manchester Centre for Deaf Studies, London Scottish House, 24 Mount Street, Manchester, M2 3NN Email enquiries@manchesterdeafstudies.org Phone 0161 796 1621 Mobile 07539 359 718 More Service User Input in Mental Health Strategy The National Survivor User Network (NSUN) announced that there has been an increase in the influence mental health service users will have over the government’s mental health strategy. NSUN and five other mental health service users and carers are already part of the Department of Health Ministerial Advisory Group (MAG) for the Mental Health Strategy. They have now also received agreement for regular meetings with both Jon Rouse, the DH director general for social care, local government and care partnerships, and Dr Geraldine Strathdee, the clinical mental health lead at NHS England (which is responsible for commissioning primary care, prison health and specialist mental health services). For more detail, go to the news section of NSUN’s website: www.nsun.org.uk 9 Support with Mental Health for European Nationals Europia is an organisation which offers European nationals support and advice around many issues, including welfare entitlement, applying for British citizenship, housing and employment. ‘Teatime’ is a monthly support group, which has particular focus on European nationals with mental health issues or who feel isolated. The group meets on the first Saturday of each month. For more information, contact Europia by: Website www.europia.co.uk email hello@europia.org.uk phone 07763 711 888 write to: Ada House, 77 Thompson St, Manchester, M4 5FY Free Telephone Coaching Service for People Living with HIV Who Feel Isolated Result CIC has received funding from Awards for All, part of the Big Lottery Fund, to deliver telephone coaching for people living with HIV across England. If you are interested in applying for coaching through this service: Email info@resultcic.com phone 07582 629 560. Black, Asian and Minority Ethnic Issues and Dementia A ‘listening event’ is being held at Salford University for people with dementia and their family and friends, specifically for people from Black, Asian and Ethnic Minority Communities. The event is on Monday 10 March, 10am – 2pm, at Salford University. For more information, contact Dr Elizabeth Collier, of the School of Nursing, Midwifery, Social Work & Social Sciences, University of Salford. Phone: 0161 295 2729 10 Online Money Advice The Money Advice Service has produced a new online tool for people who are newly ill or have acquired an impairment. The website includes information and sign-posting to other services around managing money, working out what people are entitled to, and covering the extra costs of living as a disabled person. You will find the web page at: https://www.moneyadviceservice.org.uk/en/categories/becoming-ill-ordisabled Low Cost Paint for Low Income Families and Community Groups Community Repaint is a network which collects donations of re-usable paint and distributes it to people on low incomes or benefits, and community groups. In the Greater Manchester area there are three schemes: in Bury, Rochdale and Manchester (Wythenshawe). For more information, go to the website:www.communityrepaint.org.uk Support from Care and Repair in Manchester Care and Repair in Manchester offer more than assistance with minor repairs to your home. If you are over 60 and live in Manchester, their short-term visiting service may be able to assist with: Listening to your concerns and worries and helping you to work out what to do about them; identifying and applying for the benefits you are entitled to; arranging for aids and adaptations to your home; arranging for assistance with cleaning or shopping; accompanying you on GP or hospital appointments; providing information about different housing options. For more information, contact: Phone 0161 872 5500 Website www.careandrepair-manchester.org.uk If you live in another area of Greater Manchester, contact the GMCDP office and we will assist you to find Care and Repair in your area. 11 Find a Helpline This new online search directory has been set up by the Helplines Partnership. The intention is to make it easy for anyone to locate the helpline they need. Go to: http://search.helplines.org/ Level Playing Field Weeks of Action 2014 Level Playing Field promotes disabled people’s access to football, rugby and other stadia in the UK. Every year LPF has weeks of action to encourage football clubs to show the work they are doing to welcome disabled fans and make it plain to all that they do not tolerate hostility to or abuse of disabled fans. Their Weeks of Action 2014 are from 15 to 30 March. LPF say: “There is a lot of positive work going on around the sports world and Level Playing Field feels that clubs should use the weeks of action to show their fans and other clubs what they are doing.” LPF also support the setting up of disabled supporter’s groups with their Working Together project, run a match buddying scheme and offer access audits of stadia. For more information about the Weeks of Action, a link to suggested activities and a link to the timetable of events, go to: http://www.levelplayingfield.org.uk/lpf-weeks-action Greater Manchester Disability Sport Network This burgeoning network, which is part of Greater Sport, aims to share information with all disabled people across Greater Manchester about sport and physical activity opportunities, and to find out what opportunities disabled people are looking for. For more information: http://www.greatersport.co.uk/getinvolved/disability-sport/join-the-gm-disability-network/ 12 From Le Court to Strasbourg – Fighting for Independent Living for 30 Years This new publication has been produced to record the development of independent living during the 30 years since John Evans and other founders of Project 81 left Le Court Leonard Cheshire home and moved into their own homes. The book was presented to John Evans on 17 January, at a celebration organised by Spectrum CIL (formerly Southampton CIL) to celebrate the 30 year anniversary of John leaving Le Court. To read more, and find a link to the book, go to: ENIL: http://www.enil.eu/news/from-le-court-to-strasbourg-fighting-forindependent-living-for-30-years/ ‘How was School?’ – New Resources Available This project by the Alliance for Inclusive Education (ALFIE), which shares disabled people’s experience of schools, has some new resources available. The ‘How Was School?’ full oral interview recordings are now available online. The interview catalogue is at: http://sounds.bl.uk/Oralhistory/Disability-Voices School Resource Packs are available from: www.howwasschool.org.uk The website also contains: information about the project; around 400 audio and video excerpts from over 50 interviews; a timeline. Interview clips with young people are being added, to give a current perspective. A set of 6 postcards is available free of charge. 13 Disabled People Utilising 3D Printing The BBC Ouch website ran an article at the end of January featuring a German man who printed a pair of temporary ramps from his 3D printer, and discuss some other designs which have been shared on 3D printing design websites. To read the article, go to: http://www.bbc.co.uk/news/blogsouch-25947021 Stop! Press Atos Seeking to Stop Doing WCA Assessments A BBC article, following on from a report in the Financial Times, confirms that the company Atos, which has been carrying out Work Capability Assessments for the Department of Work and Pensions, is seeking to end its contract for this work earlier than planned. For more detail, see: Atos seeks early exit from fit-to-work tests contract http://www.bbc.co.uk/news/uk-politics-26287199#story_continues_2 Law Centre for Deaf People Closed The RAD (Royal Association for Deaf People) Law Centre closed on 28 February 2014. This is because of cuts to funding for legal aid and legal support services. This means there will no longer be a dedicated legal support service for Deaf people in British Sign Language. RAD will still provide other advice services, and training / assessment for the Deaf Law Quality Mark, for legal services who wish to be accessible to Deaf people. For more information, go to: www.royaldeaf.org.uk 14 GMCDP Meetings GMCDP Members’ Group Meeting Are you a member of GMCDP? Do you want to meet up with other members of GMCDP? Do you want to share ideas and be involved in shaping the organisation? Then come along to our first Members’ Group meeting on 29 March 2014 and find out what’s in store for the next twelve months. The meeting will be from 1 – 3pm, in GMCDP’s new office at the Windrush Millennium Centre. Please let us know if you are coming, and what access requirements you have to make these meetings accessible to you. Phone: 0161 636 7534 Email: info@gmcdp.com Young Disabled Women’s Group This new group is for young disabled women aged 15-25 living in the Manchester area. It is a chance for young disabled women to come together, talk about issues that matter to them, get information on a range of health and wellbeing topics and give and receive support. The group meets on the first Saturday of each month, 10am – 12 noon in GMCDP’s office at the Windrush Millennium Centre. Places are on a first come first served basis. Please book your place at least 4 days before the meeting. It is not a drop-in because of limited space. To find out more or book a place, contact Maureen Day, on Monday, Tuesday or Wednesday, by: phone 0161 636 7537 email mday@gmcdp.com 15 Young Disabled Men’s Group This group is for young disabled men aged 15-25 living in Manchester. It is a chance for young disabled men to come together in a friendly atmosphere and talk about the issues which impact on their lives. The group meets on the last Friday of every month at the Power House, Moss Side. For more information and to book a place, contact Colin Floyd on Wednesdays, Thursdays or Fridays by: Phone 0161 636 7537 Email cfloyd@gmcdp.com ________________________________________________________ Next Information Bulletin Please send any news or events by 18 March 2014. If you need assistance to access any of the websites or information given in this bulletin, please contact the GMCDP office. Greater Manchester Coalition of Disabled People (GMCDP) Unit 4, Windrush Millennium Centre, 70 Alexandra Road, Moss Side, Manchester. M16 7WD Phone: 0161 636 7534 Email: info@gmcdp.com Website: www.gmcdp.com GMCDP does not necessarily support/promote any organisations, companies, publications or websites mentioned in this bulletin. GMCDP does not knowingly publish anything that may upset or offend. All GMCDP publications are available in standard print, large print, braille, audio and electronically. 16