Learning English with CBC Listening Lessons for Intermediate Students Based on CBC Manitoba Radio Broadcasts February 26, 2013 Lesson 87: Self Study Edition Topic: Blood, Tissue and Organ Donation Level: CLB 6 and up Language Skills and Functions: Listening – listening to a short interview for inference Speaking – expressing opinions Reading – reading a text for detail; reading a letter for tone Writing – filling in a form Language Competencies: Language Tasks: Vocabulary, Pronunciation, Listening and Speaking Strategies, Socio-cultural/sociolinguistic Competence Express opinions, ideas and reservations on the topic of blood and organ donation Use new vocabulary in context to tell a story Listen to a radio interview with the father of a young girl who needs a stem cell transplant and predict how the public will respond and the story will end Read information about stem cell donation and answer detail questions Read a letter from the family asking people to be stem cell donors for tone Fill out an organ donor card Essential Skills: Reading text, oral communication, writing Appendices: Transcript of the podcast Learn about Stem Cell Donation Sign Up for Life Frequently Asked Questions Answers to Worksheets Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 1 of 20 Manitoba Memo Although the first blood transfusions date back to the 1600’s, it wasn’t until the 1800’s that human blood was used instead of animal blood. It was 1907 before scientists figured out the basics of blood typing and matching. The first successful bone marrow transplants were completed in 1968 and it took an additional twenty years for stem cell transplants to begin. Blood transfusions, bone marrow and stem cells transplants are common in countries around the world today. Although part of standard medical practice, these procedures can also be controversial. For example, Jehovah Witnesses do not believe in blood transfusion, even to save a life. This belief has put them at odds with the medical community and the law, particularly when the patient is a child. There have been cases where the courts have over-ruled the family’s wishes and ordered a transfusion to save a child’s life. Organ transplants do not have as long a history as blood transfusions. The first successful organ transplant was when a kidney was transplanted from one identical twin to another in 1954. In 1962, the first successful transplant from a dead donor was completed. Today, there are far more people waiting to receive organs than there are organs available for transplant. The concept of organ donation at the time of imminent death or after death can be difficult for members of certain faiths. For example, people of Jewish and Muslim faith believe in quick burials. Some members of these faiths may be concerned that organ donation could delay burial. Another reason members of certain faiths may oppose organ donation is because they see it as a violation of the human body. This is contrary to their beliefs. Organ donation practices in some countries can be very controversial. Until recently, organ transplants in China relied on the availability of organs from executed prisoners. This policy was criticized internationally and is being phased out. In other parts of the world, there is a black market for organs. According to the World Health Organization, an organ is sold on the black market every hour of every day. Kidneys are frequently sold on the black market in some countries. There are cases where wealthy people have paid large sums of money to gangs in China, India and Pakistan to harvest kidneys from poor and desperate people. The organ donors receive only a small amount of the money and often suffer a lack of proper medical care both during and after the operation. Most countries, including Canada, have strict legal rules around organ donation. These rules include a “double veto system.” This means that even if you sign up to donate an organ, if your death is imminent and your family is opposed to donating your organs, they can veto your decision and go against your wishes. That’s why it’s important not only to sign up to donate on the online registry, but also to discuss your wishes with your family in advance. Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 2 of 20 Background 1. Can you express your opinions and reservations about a sensitive topic? How would you answer the following questions about blood, tissue and organ donation? What is your opinion of organ transplants? What about blood transfusions? Would you ever consider donating an organ or blood? Why or why not? Would you have any reservations about being the recipient of an organ, bone marrow or a blood transfusion? Explain your answer. How would you react if a family member signed a donor card saying that they would want as many organs as possible harvested from their body if they died? 2. Vocabulary definitions Here are some words you need to know to understand the CBC interview. to donate blood When someone volunteers to donate blood in Canada, it is removed from their body through a needle and stored so it can be used in a hospital to help someone who is ill or injured. stem cells Stem cells are a special type of cell in the body. Stem cells have the potential to develop into multiple types of cells that the body needs. bone marrow The soft substance in the hollow centre of human bones is called bone marrow. an organ donor An organ donor is someone who gives an organ (e.g. a kidney) to be used in an organ transplant to another human being. Sign Up for Life Sign Up for Life is the name of a website Manitobans can use to register as organ and tissue donors. leukemia Leukemia is a type of cancer of the blood. a transplant A transplant is a medical operation where an organ or tissue (e.g. skin) is moved from one person’s body to another person’s body. chemotherapy Chemotherapy is the use of drugs to control/cure cancer. to knock down an immune system Patients who are going to receive a transplanted organ or tissue are given drugs to reduce the likelihood that their own immune system will reject / attack the transplanted organ or tissue. Their own immune system is “knocked down” so that it won’t attack the transplanted organ or tissue. Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 3 of 20 to re-inject A re-injection is when a substance is taken from the body and later returned to the body. Needles are used for this procedure. For example, with leukemia, a patient’s stem cells can be removed before chemotherapy and then re-injected back into their body after treatment is completed. a donor registry A donor registry is a list or data bank of people who have agreed to donate something from their body, e.g. stem cells, an organ. a match In a transplant situation, someone is considered a match or potential donor for a recipient if specific proteins within their blood match those of the recipient (the person receiving the transplant). an antigen Examples of antigens in the body are toxins, bacteria, foreign blood cells, and the cells of transplanted organs. a needle in a haystack This idiom is used to talk about situations where something is very rare or hard to find. For example: Alex has a rare blood type. Finding a stem cell donor for her is like looking for a needle in a haystack because it will be very difficult for to find a match. to put out an appeal If you put out an appeal for something, you make a public request. For example, you might ask the public for money, information or for assistance. Canadian Blood Services Canadian Blood Services is a charitable organization. The organization’s job is to manage the blood and blood products supply for Canadians. to be astonishing If something is described as astonishing, it is very surprising and unexpected. a ton of something A ton of something is a lot of something. For example: Winnipeg has a ton of snow this winter. There’s a lot more snow than there was last year. a kit A kit is a set of tools or equipment that you use for a particular purpose, e.g. a first aid kit. a swab A swab is a small piece of material or cotton (like a Q-tip) that is used to take a small amount of a substance (e.g. saliva) from someone’s body so it can be tested. to be registered for something If you are registered for something, it means you have your name on an official list. For example: Joelle is registered for an English class that starts in April. She signed up for the class last week. Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 4 of 20 3. Can you match the vocabulary words with the correct meaning? Learning vocabulary before you listen helps you understand the podcast. Can you match each vocabulary word or phrase with its meaning? You can use an English Language Learner’s Dictionary to help you. The first one is completed for you as an example. Vocabulary Word Meaning 1. _d stem cells a) what we call toxins, bacteria or foreign blood cells in the body 2. __ bone marrow b) the name of the organization that manages blood donations/ blood products for Canadians 3. __ an organ donor c) a list or data bank of people who are willing to donate something from their body, e.g. stem cells 4. __ leukemia d) special cells in the body that can develop into multiple types of cells 5. __ a transplant e) a set of tools or equipment that is used for a particular purpose 6. __ chemotherapy f) someone who agrees to donate an organ for transplant purposes 7. __ a donor registry g) a small piece of material (e.g. like that on the end of a Q-tip) that is used for a particular purpose 8. __ to be a match h) a procedure where drugs are used to treat/cure cancer 9. __ an antigen i) the soft substance in the hollow centre of human bones 10. __ to put out an appeal j) to have your name on an official list for something 11. __ Canadian Blood Services k) a lot of something 12. __ to be astonishing l) to be very surprising or unexpected 13. __ a ton of something m) a type of cancer of the blood 14. __ a kit n) when a donor’s blood type is the same as the recipients’ blood type in a transplant situation 15. __ a swab o) to ask the public to do something for you 16. __ to be registered for something p) a medical operation where an organ or tissue (e.g. skin) is removed from one person’s body to another person’s body Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 5 of 20 4. Predict what the interview is about In this interview, Marcy Markusa interviews Stuart Blake. Stuart’s daughter Alex has leukemia. She needs a bone marrow transplant and has a very rare blood type. Her family is appealing to the public to help. Can you predict how the family is asking the public to help? I think the family will ask the public to…sign up to donate their bone marrow. Maybe they’ll ask the public to…spread the word about bone marrow donation to everyone they know. Perhaps they’ll appeal to the public…to donate money for leukemia research. 5. Get ready to listen In this podcast, you will hear two speakers. You will hear: Marcy Markusa – host and interviewer Stuart Blake – father of a young girl with leukemia After-listening activities 1. Review pre-listening predictions Were you able to predict how the family is asking the public to help? 2. Use inference to predict how the story might end Listen to the interview with Alex’s father again. Do you have the vocabulary you need to predict how Alex’s story might end? Are there clues in the interview that you can use to help you make your prediction? Think about Alex and her family. There are so many factors involved in their situation. Do think it is likely that a stem cell match will be found for Alex? Do you feel optimistic or pessimistic about how the public will respond in a situation like this one? Why do you think members of the public respond the way they do? For example, some may respond passionately and others may be indifferent to a case like Alex’s. Sometimes how we think a story will end is different from how we hope a story will end. Is there a difference in how you think Alex’s story will end and how you hope her story will end? Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 6 of 20 3. Can you use vocabulary in context to re-tell a story? Think about the story you heard in the interview. Use the vocabulary that you practised to re-tell the story of Alex. By reading the sentence you will get clues that will help you to choose the correct words to complete the sentences. This is the story of Alex, a young girl who is suffering from a disease called [a] leukemia. To help Alex, doctors are frantically trying to find someone who can be a [b]_______ _________ donor. The stem cells from the donor’s bone marrow will be used to create a new immune system for Alex. This is very difficult, because Alex has a very [c] ______ type of blood which is hard to match. There are 20 million people on the donor list or [d] __________, but so far there is no match. Alex’s family is appealing to the community and they are happy that the response has been [e] __________________. It is unbelievable how many people have registered. If you want [f] ___ _______, just go online to www.blood.ca and they will send you everything that you need packed in a [g] _______. Maybe you are the [h] ___________ that Alex is waiting for. donor leukemia kit bone marrow astonishing Self Study: Libraries Are More than Books to register rare registry Learning English with CBC Page 7 of 20 4. Read about stem cell donation and answer detail questions The text in Appendix 2 is adapted from the Canadian Blood Services website. It provides basic information about the stem cell donation registry that Stuart Blake talks about in the CBC interview. Read the questions below to get a sense of what information you are looking for. Then read Appendix 2. Can you find the details you need to correctly answer the following questions? 1. The name of the stem cell donation program is OneMatch. True False 2. Over seventy percent of patients who need a stem cell transplant are unable to find a match from their own family. True False 3. Canadian patients can receive stem cells from around the world because the registry is international. True False 4. Anyone can be a OneMatch donor. True False 5. Ethnicity is not a significant factor in finding a matching stem cell donor. True False 6. OneMatch likes its donors to be well-informed. True False 7. If you want to be a donor, the first steps to take are to complete an on-line knowledge test and consent form. True False 8. Potential donors send in a swab from their cheek. True False 9. There is no cost to you if you are selected to donate stem cells. True False 10. There are two ways stem cells can be donated. True False 11. Both donation procedures involve surgery that is performed under general anaesthesia. True False Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 8 of 20 4. Read a letter from Alex’s family and find examples of tone Alex’s family wrote a letter to their friends, families and colleagues to encourage them to donate stem cells to Canadian Blood Services. Can you read the letter and infer the tone the family is using to make this appeal? Follow these steps: 1. Read the email letter on the next page. Think about the language and tone the family uses to make their appeal. 2. How would you describe the overall tone of the letter? How does the family talk about the challenges they face? What is their attitude toward the audience they are writing to? 3. Do you think the letter is effective? Do you think it will encourage people to register as donors? Why / why not? 4. Can you find examples of words, phrases or sentences in the letter from Alex’s family that express or convey the following: urgency ___________________________________________________________ ___________________________________________________________ candidness / straightforwardness: ___________________________________________________________ ___________________________________________________________ appreciation: ___________________________________________________________ ___________________________________________________________ Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 9 of 20 The Letter Dear Friends, Colleagues and Family Alex needs your help. As most of you already know, our daughter Alex has recently been diagnosed with Acute Myeloid Leukemia. This is a fairly rare side effect from one of the drugs Alex needed in order to help her successfully beat Ewing's Sarcoma last year. Treatment is now underway and Alex has already had 5 days of chemotherapy in hospital. The plan is to get the disease into remission and then proceed with a stem cell transplant. Alex has to have the transplant for long term survival. A suitable matching donor will be needed. Alex's doctor has told us this week that this may be difficult as she has a fairly rare HLA-A type. Please sign up to be a stem cell donor. Send this email to your friends and family and urge them to do likewise. It involves nothing more than a mouth swab and you may be the one to assist Alex or another child who is battling cancer. In Canada, go to www.blood.ca. Follow the link under What Can I Donate-Stem Cells. We have had amazing support from all of you over the past year. Many of you have asked, "What can I do?" This is the biggest gift you can give Alex. Donate your bone marrow. The time is NOW as decisions need to be made over the next week. Thank you so much. With love from, Lois, Stuart and Alex Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 10 of 20 5. Read information on organ donations and respond to scenarios Most health information websites have a question and answer section. It lists questions that people commonly or frequently ask about the topic and answers those questions. Can you read the questions and answers from the Manitoba Sign Up for Life website in Appendix 3 and use the information to solve the problems in the following scenarios? Scenario 1 Maxwell is considering filling in a donor card to donate his organs. However, he is worried that if he is critically ill and the staff knows about an emergency need for organs, he may not get as much medical care as possible. Is his concern valid? Scenario 2 Maxwell’s family disagrees with his decision to sign a donor card. They have told him that they would not give their consent. What will the hospital do if Maxwell dies and his family refuses to give their consent even if he signed the card and made his wishes known? Scenario 3 Josephine has had many chronic health problems. She is worried that her organs may not be suitable for transplants. Will the hospital still use her organs in some way? Scenario 4 Leonard is gay and people have told him that this fact alone may preclude his chance of becoming a donor. Will the hospital refuse someone’s offer to donate because of their sexual orientation? Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 11 of 20 6. Fill in a donor card Until recently, Manitobans who wished to donate organs or other parts of their body completed and signed a donor card. The donor card was wallet-sized and kept with the person’s driver’s license. While these donor cards continue to be used by many Manitobans (they are available at the offices of Autopac agents), donors are now being strongly encouraged to register their intent to donate online, on the website Sign Up for Life. This database will make it easier for hospitals and families to be sure of the wishes of potential donors. Do you have the language skills you need to complete a donor card? DONOR CARD Consent under The Human Tissue Gift Act C.C.S.M. c.H1801 I, ________________________________________________ consent to the use, after my death: (please check ) any needed organs or parts of my body; or the following specified organs or parts of my body, namely; for the following purposes transplant and other therapeutic purposes; medical education; scientific research Donor Signature Co-signature of parent or guardian where donor is under 18 years of age C.C.S.M. is the acronym for “Continuing Consolidation of the Statutes of Manitoba”. A statute is a law. This legal information is on the donor card to show that consent is given under a specific Manitoba law called The Human Tissue Gift Act. 1 Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 12 of 20 Want to know more…. The website for Canadian Blood Services is: www.bloodservices.ca The Sign Up for Life website is: www.signupforlife.ca/ The Transplant Manitoba website is: www.transplantmanitoba.ca/resources Background for the Manitoba Memo is from: www.ndt.oxfordjournals.org/content/early/2010/10/20/ndt.gfq628.full www.dailymail.co.uk/health/article-2150932/An-organ-sold-hour-WHO-warnsBrutal-black-market-rise-thanks-diseases-affluence.html CBC does not endorse and is not responsible for the content of external websites Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 13 of 20 Appendix 1: Transcript February 12, 2013 (broadcast date) Speaker Podcast Line Marcy Hi I'm Marcy Markusa and you're listening to Learning English with CBC. Have you ever donated blood? What about stem cells or bone marrow? Have you signed up as an organ donor on your driver’s license or through the website Sign Up for Life? Any or all of these actions can help save a life. In 5 today’s interview, we hear about a young girl with leukemia who needs a stem cell transplant. As her father, Stuart Blake, explains to me, the family is spreading the word far and wide to try and find a match for Alex’s rare type. Marcy So many people still probably don’t know much about stem cell 10 transplants. What’s involved? Stuart Um well it’s a variety of different things, but the most common is that you someone’s bone marrow from a donor and then you essentially, using chemotherapy, knock down one’s immune system, then re-inject new bone marrow which will essentially 15 ah create ah for the patient a new immune system which will fight off future cancer. Marcy And everyone has bone marrow to give, isn’t that correct? Stuart Correct, um, everyone has bone marrow, um there’s a currently about 20 million people on the donor registry um and 20 the searches that we’ve done to date on that registry have failed to come up with a match for Alex because she has one type of antigen that’s very rare, ah so that’s why we are just looking for that needle in a haystack, to get people into register and and you never know it may be someone across the street whose got the same type of blood as her. Marcy Since you put the appeal out and you’ve been ah in earnest trying to find, you know the match and the donor, what response have you had back from the community? Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 14 of 20 25 Stuart Canadian Blood Services has indicated to me that their 30 response, they’ve heard is astonishing, ah the number of people who have reached out um through my work and through friends so it’s been very good but we literally need a ton of people to register. It’s a simple process. You go on line, ah, to www.blood.ca, you click on How do I donate?, you go to 35 Stem Cell and you follow the links and ah you put in your information, OneMatch and Canadian Blood Services will send you a kit and ah you complete the kit just with a simple swab of your mouth, return it and then you are registered. And ah you know, it’s important for people not just to do this for Alex but to do it, but for you know thousands of other people who are also waiting for ah stem cells and bone marrow from people. Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 15 of 20 40 Appendix 2: Learn about Stem Cell Donation2 1. What is OneMatch all about? OneMatch Stem Cell and Marrow Network is responsible for finding and matching volunteer donors to patients who require stem cell transplants. Fewer than 30 per cent of patients who need stem cell transplants find a compatible donor within their own family. The rest rely on those who have volunteered to donate stem cells to anyone in need. There are more than 11 million donors around the world. International registries have significantly increased the odds of being able to find a matching donor for any patient, anywhere in the world. 2. Who is eligible to join OneMatch? You may be eligible to join if you are between 17 and 50 years old and meet certain health criteria. Some health problems could make you ineligible. There are also height and weight restrictions in place to protect both donors and recipients. A person's best chance of finding a matching donor is within his or her own ethnic group, As such, it is important that the donors on OneMatch reflect Canada's rich ethnic diversity. It is also important for the future of OneMatch to attract young donors. Right now, there is a special need for ethnic males aged 17 to 35. 3. How do I join OneMatch? Step 1: Complete the OneMatch Knowledge Test Being an informed donor is a vital part of the donation process. It is important that you have read the online Donor Information Package and completed the Knowledge Test before deciding to join. You will be asked to answer 10 True or False questions to ensure that you have a basic understanding of stem cell donation. Step 2: Online Health Assessment and Consent form Once you have submitted your Health Assessment and consent form online, you will receive an email confirming that we have received your information. We will then call you within 8-10 working days to discuss your eligibility to receive a buccal swab kit and proceed with your enrolment. Step 3: Swab your cheek and mail back the kit. The swab identifies DNA and whether you would be a match for someone. (There is a link to a video which shows you how to do this correctly on the website.) You are then fully registered! 2 Information adapted from Canadian Blood Services website: www.blood.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/E_ubmdrPKG-intro?OpenDocument&p=OMFormE Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 16 of 20 4. Does joining OneMatch cost me anything? No. Joining OneMatch is free and you won't be charged for any part of the testing or donation process. 5. How do I donate stem cells? One way to donate stem cells is through your circulating blood. The stem cells are collected using a procedure where your blood is drawn through a needle. The stem cells are then separated from the rest of your blood, and the remaining blood is returned back into your body through another needle. This is a non-surgical procedure and the risks to the donor are very minimal. The second way is through bone marrow stem cell donation. This is a surgical procedure performed under anesthesia. A doctor uses special, hollow needles to withdraw liquid marrow from the back of your pelvic bones. The procedure usually lasts from 45-90 minutes. It is a safe procedure but there are some potential risks you can discuss with the doctor undertaking the procedure. Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 17 of 20 Appendix 3: Sign Up for Life Frequently Asked Questions3 If I have indicated my intent to be an organ and tissue donor, will medical staff still do everything possible to save my life? The first and foremost concern for healthcare professionals caring for critically ill patients is to do everything possible to save lives. The possibility of donation is only considered when all lifesaving efforts have failed. Will my family be asked about my intent to donate? If you become a candidate for organ donation, Transplant Manitoba – Gift of Life will ask your next of kin to give their consent to donation on your behalf. Once in hospital, there is usually no chance to discuss donation with the potential donor, which leaves the decision to the family. It is much easier for the family to make the decision if they know the wishes of their loved one beforehand. Can my family overrule my wishes to be a donor? It is the common practice of Manitoba's human tissue gift agencies to reaffirm an individual's consent to donate with the family. In almost all cases, families honour and respect their loved ones' donation decision if they have evidence that it's what they wanted. Therefore, it's important to register your consent to donate so that your family can be advised of your decision and feel confident about giving consent to donation on your behalf. Donation will not take place without your family's consent. How do you know if organs and/or tissues are suitable to donate? The health of the organs and tissues of a potential donor are all evaluated by medical professionals and must comply with Health Canada and if appropriate, FDA regulations in the United States. The suitability of an organ is not certain until the doctor sees it in the procurement surgery. Tissue suitability is assessed by a medical screening procedure (i.e., medical record review, medical and social history questionnaire) in accordance with policies and procedures within 24 hours of the death. Does my age, ethnicity, pre-existing medical condition or sexual orientation prevent me from being a donor? Everyone can register to be a donor regardless of age, medical condition or sexual orientation. Your decision to register should not be based on whether you think you would be eligible or not. A donor's eligibility is determined by the health care team upon their death. 3 You can find this information at: www.signupforlife.ca/faq.html Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 18 of 20 Answers to Worksheets Vocabulary Match 1. d 2. i 3. f 4. m 5. p 6. h 7. c 8. n 9. a 10. o 11. b 12. l 13. k 14. e 15. g 16. j Use Vocabulary in Context to Re-tell a Story a) b) c) d) e) f) g) h) leukemia bone marrow rare registry astonishing to register kit donor Read about Stem Cell Donation and Answer Detail Questions 1. 2. 3. 4. 5. 6. 7. 8. 9. 10. 11. T T T F F T T T T T F Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 19 of 20 Find Examples of Tone Answers will vary. urgency Alex needs your help. The time is now. candidness / straightforwardness Alex has to have the transplant for long term survival. This may be difficult. appreciation We have had amazing support from all of you. Thank you so much. Respond to Scenarios 1. No, his concern is not valid. The hospital will only consider organ donation after all lifesaving efforts have failed. 2. If the family refuses to give their consent, Maxwell’s organs will not be donated. 3. Whether someone’s organs are used for transplant is decided at the time, by medical professionals. 4. Sexual orientation is not a factor when a hospital determines whether an organ is acceptable for transplant. Self Study: Blood, Tissue and Organ Donation Learning English with CBC Page 20 of 20