International Consortium for Mental Health Policy and S e r v ic e s Supported by the Global Forum for Health Research, and the governments of Australia, United Kingdom, United States of America MENTAL HEALTH POLICY TEMPLATE DOMAINS AND ELEMENTS FOR MENTAL HEALTH POLICY FORMULATION INTRODUCTION “Public policy consists of a plan of action or program and a statement of objectives.” (1) “An explicit health policy achieves several things: it defines a vision for the future which in turn helps establish benchmarks for the short and medium term. It outlines priorities and the expected roles of different groups. It builds consensus and informs people, and in doing so fulfils an important role of governance.” (2) A mental health policy is a concise statement by government intended to set clear directions to improve the mental health of the community, for the future development of mental health services “and other aspects of care provided by the family, community and other relevant agencies.” (3) Some countries include within their national mental health policy a Mission Statement or Vision that captures the thrust or direction of the policy. “Mental health policy is concerned with a diverse agenda that aims to improve the mental health status of populations by providing clinical services and treatment, preventing mental illness or minimizing progression of emotional distress to mental disorder and promoting mental health.” (4) Mental health plans, programmes and strategies are developed from the mental health policy and outline the way in which mental health policy objectives will be achieved. Mental health policies “coordinate through a common vision and plan, all programmes and services related to these objectives. Without this type of organization, programmes and services are likely to be inefficient and fragmented.” (5) “It is widely recognized that national policy, programme and legislation on mental health are basic requirements for the mental health care in any country.” (6) Despite wide recognition of the importance of national mental health policies, data collected by the World Health Organization (WHO) reveals that of the 181 countries of the world, covering 98.7% of the world’s population, 43% (78) have no mental health policy and 23% (37) have no mental health legislation. (7) For example, about half of the WHO African and Western Pacific region countries do not have a mental health policy. (8) As a result while there are increasingly effective interventions available to reduce the burden of mental illness, many countries do not have the policy and planning frameworks in place to identify and deliver mental health interventions, even when resources are available. As a result, people with serious and chronic mental illness, such as schizophrenia, and their families, suffer extreme 1 personal, social and economic hardship and disempowerment, often on a life-long basis. Experience in many countries and that of organizations such as WHO and the World Bank has shown that sector wide reform, in both health and mental health, has been more successful when undertaken within a clear, long term policy framework, supported by government and major stakeholders. Both WHO and the World Bank have emphasized the need for ready access to the basic tools for mental health policy formulation, implementation and sustained development. At present such tools are extremely limited. (9) The Mental Health Policy Template aims to provide the user with a basic tool or framework upon which to base the formulation of a mental health policy. It is intended to be generalizable across countries and regions and to include what is common to all countries. The Template is not prescriptive in terms of measures to be used or actions to be taken in relation to policy development or implementation. The Template identifies the essential domains and elements that need to be considered when formulating mental health policy. It consists of four major domains. Within each domain are elements that form part of the overall domain. The title given to each domain and element aims to be generic enough to be applicable for all countries. The Template is a non-recursive as opposed to linear model. The information collected in the Outcomes Domain serves to inform the action undertaken in the Context, Resources and Provision Domains. The Template uses language, concepts and terminology consistent as possible with mainstream health sector reform and aims to be consistent with the World Health Report 2000-Health Template. (10) While countries may wish to use terminology that is country specific, the generic terminology, consistent with the World Health Organization, will provide a common language that may facilitate communication between countries, regions, and organizations associated with mental health policy and servicing. Mental health stakeholders at meetings convened by the International Consortium for Mental Health Policy and Services and held in Eastern Europe, Africa, Latin America, the Eastern Mediterranean, South East Asian and Western Pacific Regions of the world during 2000/2001 have considered all terminology. Explanatory notes have been developed for each domain and element. The explanatory notes define the way the term is used within the Template and the scope that the term is meant to cover. The explanatory notes also discuss the importance of each domain and element in relation to mental health and suggest why mental health policy makers may wish to consider a domain or element when formulating mental health policy. Country specific examples are provided for a number of the elements. In addition, extracts from existing mental health policies are provided for a number of elements. These extracts provide examples of how countries have formulated policy for specific domains and elements. 2 International Consortium for Mental Health Policy and S e r v ic e s Supported by the Global Forum for Health Research, and the governments of Australia, United Kingdom, United States of America MENTAL HEALTH POLICY TEMPLATE DOMAINS AND ELEMENTS FOR MENTAL HEALTH POLICY FORMULATION EXPLANATORY NOTES 3 CONTEXT DOMAIN The Context Domain focuses on the environment in which policy formulation will occur. It includes the environmental factors in a country that influence the health of the population and within which interventions are delivered. This includes factors outside the health system that will influence the performance of the mental health elements and determine some outcomes. “Although the links between social forces and ill health are complex and varied, close inspection suggests that mental health concerns almost always relate to more general concerns that have to do with economic welfare of a family or community, the environment in which a person lives and the kinds of resources that he or she can draw upon. In general–enduring political and economic structures-both within and between societies-contribute to the perpetuation of poverty, hunger, and despair. Demographic and environmental pressures, spark regional and intrastate conflicts which in turn lead to personal trauma, social demoralization, and dislocation.” (11,12) The Context Domain consists of four elements: 1. Societal Organization and Culture 2. Public Policy 3. Governance 4. Population Need and Demand 1. Societal Organization & Culture Demography Demography is the study of human population statistics. (13) Demographic characteristics include: population, age, gender, rates of divorce and homelessness, parenting patterns, household composition, ethnic composition, education and literacy, urbanization, refugee populations, migration and unemployment rates. Demographic characteristics assist the policy maker to better understand the prevailing conditions within which a policy is to be implemented and to identify areas of need. For example, an understanding of population density levels may assist in informing mental health financing policy issues. “Higher population densities are indicative of a more developed private sector because large numbers of even very poor people can provide a sufficient market for certain types of private sector providers.” (14) Example 1. The significance of demographics for mental health policy can be seen in the examples of Africa, Asia, and Latin America where there are increasing numbers of elderly people within country populations. “These demographic changes influence mental health in several ways. The growth in the elderly population means an inevitable increase in age-related diseases, such as the dementias. In addition, changes in social patterns will alter the role of the 4 elderly and the ways they are valued. These changes can lead to poor mental health outcomes, such as depression, anxiety, suicide and serious constraints on the quality of life among elderly individuals. In addition, the high prevalence of multiple co-existing physical conditions, such as incontinence, hip fracture, and sensory loss influence mental health through the loss of self-esteem and independence. Finally, families will also be affected by the increased demand for care-giving.” (15) The economic environment The economic environment is that part of society pertaining to systems of production, consumption and management of resources. Elements within these systems include financial systems operating within a country, money, industry, goods and services, employment and the various stakeholders associated with these elements. Policy makers will need to consider the economic environment in which mental health policy is to be designed and implemented and the effect of this environment on mental health and well-being. This is seen as significant in countries where new economic models are emerging in countries with new democratic governments. (First Meeting of the Latin America and Caribbean Region, Consortium for Mental Health Policy and Services, Chile 8-10, Nov, 2000) “Economic issues acting at the country level influence clinical practice. In terms of public expenditure on mental health services, the overall level of economic development (along with the relative importance attached to mental health in relation to other medical specialties) has a profound effect upon the extent and quality of the clinical services available.……Economic cycles of growth and recession which may affect different subgroups of the population in different ways, influence the direct funding of state mental health services (both capital and revenue), the provision of welfare benefits, expenditure on mental health research and such cycles have indirect effects mediated by levels of employment.” (16) “Economic perspectives contribute to policy at a macro-or system level, in terms of analysis of the overall organization and financing of mental health services, as well as consideration of the effects of mental ill-health on the economy as a whole (such as lost productivity and unemployment). At a more micro-level of service providers and users, key concerns include need assessment, the cost-effectiveness of different treatment strategies and elicitation of user preferences.” (17) The political environment The political environment is the state, government and its institutions and legislations and the public and private stakeholders who operate and interact with or influence that system. The stability of the political environment and government will impact on the prioritisation of mental health policy in relation to other policies, the funding available to mental health and the time frames in which policies and programmes can be realized. Political environment also includes the political culture i.e. “widely held views, beliefs and attitudes concerning what governments should try to do and how they should operate and the relationship between the citizen and the government.” (18) Political culture includes population participation and involvement in the electoral process and the level of government acceptance by the population. This is of 5 particular importance in countries where democratic processes are emerging. (First Meeting of the Latin America and Caribbean Region, Consortium for Mental Health Policy and Services, Chile Santiago, 8-10, Nov, 2000; First Meeting of the Eastern European Region, Consortium for Mental Health Policy and Services, Prague, Czech Republic, 1-4, Nov, 2000) The political process is extremely important in policy development, implementation and reform. “Policy reform is a profoundly political process. Politics affects the origins, the formulation and the implementation of public policy, especially when significant changes are involved…Policy reform is inevitably political because it seeks to change who gets valued goods in society.” (19,20) While policy makers may not formally address the political environment in a mental health policy it is important that the political environment in which a mental health policy is to be formulated and implemented is carefully considered if policy implementation and reform are to be successful. Social structures and systems (organization), including the role of religion, family, cultural perspectives, beliefs and values etc Social structures and systems together form a society. They include nuclear, extended families and kinship networks, community, neighbourhood and social networks, leadership patterns, religion, caste and class systems. Social structures and systems also include cultural perspectives on illness attribution and management. This includes the formal and informal belief systems that influence the understanding of mental health and mental illness in a culture and the culturally accepted methods by which help is sought. It has been argued, “every country must formulate a mental health policy based on its own social and cultural realities” (21) Example 1. Ito et al (1999) argue that true reform of mental health services has not yet occurred in Japan, despite a series of governmental, legal and financial initiatives.(22) Limited change is attributed to the impact of Japanese values and traditions on mental health reform. Ito et.al. argue that the success of policy and service reform is dependent on policies being “structured to respect the cultural differences between Japan and the West e.g. emphasis on the group over the individual, stress on social control and community safety and involvement of families.” (23) Two important features of social structure and systems that have been highlighted as critical determinants of mental health are stigmatisation and gender disparity and discrimination. (24) i) Stigma: The stigma associated with mental illness and disability constitutes a significant burden for the sufferer and those around him or her. Stigmatization often promotes under or non-reporting of mental illness by the sufferer (25) and underlies rejection by friends, relatives, neighbours and employers. It constitutes a barrier to reintegration into the community, adversely affecting family relationships, employment opportunities, access to quality treatment and leads to discrimination and human rights violations. (26) 6 Example 1 A contemporary example of the impact of stigma can be seen in Japan where mental illness evokes significant stigmatisation of entire families. High rates of long-term psychiatric hospitalisation are thought to be the result of this social stigma with hospitalisation a desirable solution for many families of the mentally ill. A 1989 survey undertaken by the Japanese Association of Neurology and Psychiatry found that 33% of persons who were hospitalised for more than 2 years were inpatients for social, not medical reasons. (27) Example 2. In many Eastern European countries mental health is not regarded as an important issue. Patients and psychiatrists are stigmatised. Psychiatrists are not perceived as expert professionals and there is a negative attitude to medical science generally and to psychiatrists in particular. Researchers in Eastern Europe have also found that psychiatrists and other mental health professionals are stigmatising of people with a mental illness, including those they treat. (ANAP 5th Working Conference, Vilnius, Lithuania, March 30 - April 3, 2001) “Gender roles are critical determinants of mental health that need to be considered in policies and programmes…..They affect the control men and women have over socio-economic determinants of their mental health, their social position, status and treatment in society. They also determine the susceptibility and exposure of men and women to specific mental health risks.” (28) Gender differences can be seen in the prevalence of mental disorders and there are gender specific risk factors for mental illness. Gender bias is also seen in the diagnosis and treatment of psychological disorders. ii) Gender Disparities: In response to these issues mental health policy makers may wish to consider whether their mental health policy addresses stigma and destigmatization e.g. through legislation, public information campaigns, support to nongovernmental organizations and education for professionals across a range of service sectors; and whether it is sensitive to gender issues and addresses gender specific risk factors necessary for (mental illness) prevention. (29) Social pathology: Social pathology includes: substance abuse, violence, abuses of women and children, crime, terrorism, corruption, criminality, discrimination, isolation, stigmatisation and human rights violations. “Many contemporary social problems are global in nature and are shared by many countries.” (30) 7 Example 1. “Violence against women is a public health concern in all countries. An estimated 20% to 50% of women have suffered domestic violence. Surveys in many countries reveal that 10% to 15% of women report that they are forced to have sex with their intimate partner. The high prevalence of sexual violence to which women of all ages are exposed, with the consequent high rate of posttraumatic stress disorder, explains why women are most affected by this disorder.”(31) Social pathologies “often lead to a flood of social, economic and psychological problems that undermine well-being.”(32) and therefore need to be considered in developing a mental health policy that promotes population mental health well-being and addresses issues that contribute to mental illness. Other environmental influences Other environmental influences include: natural disasters, nutrition levels, and endemic disease. Environmental influences, whether constant, regularly occurring or singular in nature may have direct impact on the well-being of a population and may have implications for mental health policy formulation, financing and service provision. Example 1. Prevalence of mental health problems can rise significantly after natural disasters and conflict. Sharon et al (33) assessed survivors in 23 households in three villages in India affected by an earthquake, and found 59% to have a psychiatric diagnosis. In a study of Bosnian refugees, 45% reported psychiatric symptoms and 25% disability associated with these symptoms (34). A study of 854 Rwandans and Burundese in 23 refugee camps found a 50% prevalence for serious mental health problems (35). The amount of violence to which refugees are exposed tends to predict the level of functioning associated with mental disorder (36). Other factors can also affect prevalence. For example, rates of service utilization for substance abuse in the USA increased following the aggressive introduction of cocaine and the associated increase in the prevalence of disorders resulting from its use (37). Example 2 Of the 3 billion people affected by disasters from 1967 to 1991, about 85% lived in Asia. Roughly 11% lived in Africa and 4% in the Americas. Only 0.4% lived in Europe. (38) “Much of Bangladesh’s population, for instance, lives in areas of repeated flooding: they therefore must contend with recurring natural calamities as an expected (and highly feared) part of the annual cycle of life, which is already constrained by poverty.” Suffering associated with disasters includes psychological distress. “Mental health care, along with basic humanitarian care, is essential in the wake of disasters.” De Girolamo and McFarlane , quoted in Desjarlis (1995) estimate that “Roughly 36% of those affected by disasters suffer some form of mental distress” with few receiving needed mental health treatment. (39) 8 Example 3 The psychosocial impact of communicable diseases, e.g. the HIV/AIDS pandemic, must be taken into account in mental health policy. This is particularly important in African countries where the number of people currently affected by HIV/ AIDS is of overwhelming proportions e.g. 50% of women aged between 25-35 are HIV positive. This situation has huge implications for mental health and well-being of whole communities over the next ten years. (First Meeting of the African Region, Consortium for Mental Health Policy and Services, Lusaka, Zambia 27-29, Nov, 2000) 2. Public Policy Public policy defines the government’s actions in a certain area. For health this is usually found in the national health policy. A national health policy framework: Identifies objectives and addresses major policy issues; Defines respective roles of the public and private sectors in financing and provision; Identifies policy instruments and organizational arrangements required in both the public and private sectors to meet system objectives; Sets the agenda for capacity building and organizational development; Provides guidance for prioritising expenditure, thus linking analysis of problems to decisions about resource allocation; (40) There are other enactments of government that impact on mental health policy including, employment, housing and education. 3. Governance Governance is the role of the state in the health sector. It involves the “regulatory and supervisory dimensions of public policy.”(41) The manner in which governments undertake the role of governance will vary and policy makers may wish to consider existing and alternative methods of governance and the implications for policy formulation. Many observers agree “governments should be the ‘stewards’ of their national resources, maintaining and improving them for the benefit of their populations. “ (42) In health this means: Government takes ultimate responsibility for careful management of the well being of the population; Government establishes the best and fairest health systems; Government makes health a national priority; This form of governance has been termed ‘stewardship’. It combines ethics, legitimacy and trust with accountability, efficiency and substantive outcomes. “Outside of government, stewardship is also a responsibility for purchasers and providers of health services who must ensure that as much health as possible results 9 from their spending. In addition, stewardship in health has an international dimension, relating to external assistance.”(43) This “approach, is substantially more interventionist than the economically driven agency approach to state regulation which some health economists have proposed.” (44) While stewardship may be considered an ‘ideal’ approach to governance by many observers it is not necessarily the mission or ethos of all governments. In addition, the term “Stewardship” does not translate well for many languages and a more appropriate, alternative term may be necessary. (First Meeting of the Latin America and Caribbean Region, Consortium for Mental Health Policy and Services, Chile 8-10, Nov, 2000; First Meeting of the Eastern Mediterranean Region, Pakistan, January 20-31 January, 2001, Consortium for Mental Health Policy and Services; First Meeting of the Western Pacific Region, India, 2-3 March, 2001 Consortium for Mental Health Policy and Services) Stewardship has been divided into six sub functions in the World Health Report 2000 that are useful for the policy maker to consider in relation to the role of government and governance in mental health policy formulation. We have added a seventh subfunction, Research, based on feedback from Regional Meetings convened by the Consortium for Mental Health Policy and Services during 2000/2001. i. Overall system design Overall system design is “Policy formation at the broadest level. It involves the way in which all other health system functions are put together” …and…“the organization of all the other functions of a health system.”(45) It also includes governmental organization. ii. Regulation Regulation involves the setting of rules/standards. Regulation “covers both the framing of the rules to govern the behaviour of actors in the health system and ensuring compliance with them.” (46) This includes the public/governmental sector and private provision and financing. The setting of consistent rules and standards across regions and jurisdictions and the public and private sectors ensure that people with mental illness have similar rights and expectations about the mental health treatment they will receive and protection from fraudulent or harmful practices. There are significant opportunity costs associated with the enactment of regulation by government. Strategies to achieve regulation may include: Regulatory oversight; Contractual strategies; The use of measures to ensure desired standards of care; Protocols for clinical treatment; Accreditation; Consistency with the UN Resolution on the Protection of the Rights of People with a Mental Illness; Reporting procedures at all levels; 10 Example 1. In many African countries, the proportion of finance and provision that is private is rising. “Central issues for health policy and health systems reform over the coming decade include the proper roles of governments to improve the accessibility to and quality of services offered by the private sector.” (47) iii. Consumer Rights/Consumer Protection Consumer rights and consumer protection could be regarded as a subset of ii. Regulation. They have particular importance because “persons with mental illness are especially vulnerable and require particular protection as their rights are often restricted.”(48) In many countries e.g. in Eastern Europe patient/consumer movements are extremely embryonic and there is little community or self- perception of consumers or carers as partners in the mental health policy development process. (5th ANAP Working Conference, Vilnius, Lithuania, March 30 - April 3, 2001.) As a result stewardship involves government leadership in “Achieving equality between consumers and producers and other stakeholders within the mental health system.” (49) Consumer rights/legislation can define and protect the rights of those with mental disorders alongside the community’s legitimate expectation that it be protected from harm. Examples Consumer rights/legislation that may be incorporated into a mental health policy include: Adherence to international human rights including the United Nations Resolution 46/119 on the Rights of People With Mental Illness and the Improvement of Mental Health Care Dec 1991. UN Standard Rules on Equalization of Opportunities for Persons with Disabilities Status on mental health legislation for the involuntary treatment of persons with mental illness. The way in which other legislation (e.g. anti-discrimination; disability) encompasses people with a mental illness or disability. National Human Rights Commissions. Involvement of consumers and carers, in policy design and in the design and implementation of consumer protection mechanisms. iv. Performance assessment An essential ingredient for providing strategic direction and assuring a level playing field is to assess the performance of institutions involved in revenue collection, provision and resource development within the mental health system.” (50) in terms of what could have been achieved with the available mental health resources. Systems for performance assessment and accountability may be prescribed in policy. For example, policy may prescribe agreed performance indicators in relation to policy goals and objectives or the operation of licensing agencies that grant treatment licenses to traditional and clinical care providers. 11 v. Priority setting “Choosing criteria for setting priorities and building a consensus around them” (51) is an important role of governance. Policy makers are confronted with the fact that mental health systems cannot meet all existing and projected health needs in a population. Due to the limited resources available for health and mental health, rationing will always occur. “So either there must be conscious choices of what services should have priority, or the services actually may bear little relation to any reasonable criterion of what is most important.” (52) As a result they may become determined by powerful interest groups and partisan interests. (53) “Determining the priorities for a health system is an exercise that draws on a variety of technical, ethical and political criteria and is always subject to modification as a result of experience in implementation, the reaction of the public and the inertia of financing and investment.” (54) In setting priorities policy makers may prioritise particular consumer groups e.g. people with the most severe mental health problems, young people, public health interventions or clinical interventions and services within these categories. Example 1. “The perceived impact of mental health on societies suggests that some form of public attention is warranted. Public attention (regulation, mandates, information, service provision, financing, etc) is, however also solicited with the same urgency for a wide and competing variety of health issues. It is essential, in particular in resource- strapped economies, that public policy priorities be determined by a decision-making process that is rational and that resists partisan motivation from the many stakeholders in the health sector”. (55) iv. Intersectoral advocacy “Specialized mental health services can meet only some of the varied needs of people with severe mental health problems and mental disorders. Access to housing, accommodation support, social support, community and domiciliary care, income security and employment and training opportunities have a significant impact on the capacity of a person with a severe mental health problem or disorder to manage in the community.” (56). One role of stewardship is to ensure that there is “promotion of mental health policies in other social systems that will advance mental health goals”(57) thereby significantly impacting on the overall well-being of people with a mental illness. vii. Research Mental health research is an activity that will not necessarily be privately funded or promoted by private enterprise agendas. As a result, government has an important role in ensuring that ethical research is fostered and adequately maintained. Governance, in relation to health research, is important from a clinical perspective. Good governance will ensure that ‘state of the art’ treatments and understanding of mental 12 illness and mental health at individual and population levels is available and deliverable to consumers. In turn “research should have an important role in the policy process, providing evidence for identifying issues and prioritising them, laying out the options for addressing policy problems, and feeding back the appropriateness of those directions.”(58). In addition, anticipated breakthroughs in science and technology, and their potential impact on prevention and treatment of disease, need to be incorporated into thinking about health policy. (59) Good governance can ensure that appropriate research is funded and undertaken to facilitate decision-making that is made “on the basis of fact and less on the basis of political expediency and ideology”. (60). In summary, to ensure that valid research data is available to inform and substantiate policy, good governance will not only use research but will ensure that research is promoted and monitored. (61) 4. Population Need and Demand Population need is informed by epidemiological information on mortality, prevalence, severity, impairment, risk factors (e.g. gender and social class) burden associated with mental illness within general populations and service utilization of people with mental illness. While prevalence statistics are of limited value to mental health in terms of causal inquiry they do provide the descriptive statistics that are highly informative as indicators of population need and can assist in developing accurate needs-based policy and planning. (62). Population demand is informed by epidemiological information on the level of intervention that is sought by members of the population to assist with an identified mental health need. Population demand is influenced by factors such as mental health literacy, social and cultural attitudes to mental illness, gender and stigma. (63) Kessler (64) cautions that contemporary psychiatric epidemiology has focused on the description of mental disorders and prevalence rates and has not addressed issues of risk, prevention and cross-country comparisons. Within psychiatric epidemiology there exists “uncertainty regarding diagnostic categories and criteria and underreporting due to respondent reluctance to admit symptoms …and….additional problems exist in studies of special populations.” As a result population need and demand data has been limited in its scope. Weiss et. al.2001 emphasize “The need for additional frameworks to clarify cultural features of illness in a cultural epidemiology of illness experience, meaning and behaviour” that can contribute to the shaping of “policy and practice in diverse settings or among diverse populations “ (65) The World Mental Health 2000 (WMH200) Initiative, a project of the Assessment, Classification and Epidemiology (ACE) Group of WHO and the Consortium for Psychiatric Epidemiology stress the need for a move from epidemiological estimates and projections “based largely on literature reviews and limited and isolated studies rather than on cross-national epidemiological surveys” to “general population surveys that estimate the prevalences of mental disorders, evaluate risk factors for purposes of 13 targeting interventions , study patterns of and barriers to service use, and validate estimates of burden world-wide.”(66,67) Existing epidemiological data and future work will contribute to the policy maker’s understanding of the severity, chronicity, morbidity and mortality associated with mental illness. It will contribute to the understanding of the impact of mental illness on the population. It will also highlight risk factors, and provide data regarding the type and quantity of treatment needs, patterns of demand and help seeking behaviour. Such data can assist in the formulation of policy in areas of population mental health, promotion and prevention, service resourcing, and provision that is evidence-based and assists in the development of realistic policy goals and objectives at varying degrees of geographical aggregation. (68) Examples 1, 2, 3 & 4 highlight the importance of epidemiological data for policy makers in understanding population need and demand at national and crossnational levels and in formulating evidence based policy. They highlight some of the ongoing challenges associated with the compiling and use of this data. Example 1. “The increase in psychiatric morbidity in the 21st century will have important repercussions for the social development of Latin American countries and in the planning and provision of health services. The complexity of psychosocial factors in the causation and triggering of mental health disorders calls for the establishment of clear policies for prevention, education and rehabilitation. Broadening of services may be based not only on demographic growth but also on the increase of prevalence rates.” (69) Example 2. Studies of the determinants of help-seeking in the USA show that “financial barriers are important impediments to treatment and that treatment rates increase substantially when these barriers are removed”. (70) At the same time, “a recent comparative study of help-seeking in the USA and Canada found that the same low proportion of people with mental disorders seek treatment in the two countries even though Canadians enjoy free access to mental health treatment while people in the USA do not.” (71) An investigation of the reasons for not seeking treatment carried out in this comparative study found that the typical mentally ill person not in treatment reported a number of reasons for not seeking help, including perceived lack of efficacy of treatment believing that the problem will eventually go away by itself, and the feeling that he/she wants to handle the problem himself/herself without outside help. “These and related findings in other epidemiological studies of the helpseeking process strongly suggest that misunderstandings about the nature of mental illness and perceived stigma continue to interfere with the help-seeking process. Public education campaigns have been launched in some countries to address these problems.” (72) Example 3. “Use of alcohol and other drugs has significant consequences for morbidity and mortality but does not necessarily lead to dependence. Ambivalent attitudes toward abuse and the abuser, the stigma associated with substance abuse and the criminal nature of the drug trade have led to a serious and 14 pervasive lack of systematic, objective, comparable, and precise datagathering among countries.” (73) In addition, “the results obtained from many country epidemiological surveys cannot be compared because of the differences in sampling and research methods, and the lack of a standard nomenclature such as ICD-10. Consequently pure distinctions between varying levels of use and dependence are not clear.” (74) Example 4. In many Eastern European countries need and demand data are either not collected or difficult to access and highly sensitive. What data is available is frequently invalid and there are “official” and “real” versions of the same data. No country in Eastern Europe has national incidence data and statistical data regarding registered patients often pertains to patients who have not been treated for long periods, sometimes many years. (5th ANAP Working Conference, Vilnius, Lithuania, March 30 - April 3, 2001) 15 RESOURCES DOMAIN Resources are those elements that are injected into the total mental health system, and which need to be distinguished from the activities that take place within that system in providing mental health care. (75) The Resources Domain consists of 5 elements: 1. Financing a) b) i. ii. iii. c) 2. 3. 4. 5. Public financing of services (direct & indirect taxation, government owned insurance schemes) Private financing of services (insurance-for profit/not-for-profit) Private financing (for-profit companies e.g. pharmaceuticals) Private financing (not for profit e.g. charity, donors) Personal purchasing Human Resources Physical Capital Consumables Social Capital 1. Financing The financing of health and mental health services is derived from a combination of sources within the public and private sector. Public financing is derived from taxation, from government owned insurance schemes and from profit and non-profit donors and grants. Private financing is derived from privately owned for- profit and nonprofit health insurance schemes, private financiers and charity and donors. In addition, financing is derived, particularly in developing countries, from out-of-pocket spending by consumers and their families and carers. “Much of what is included in the financing function occurs outside what is usually considered to be the health system.”(76) It is argued that the financial arrangements for mental health should be incorporated into the general health financing arrangements but that mental health resources should remain identifiable and be allocated through a mental health programme, regardless of where the services are located. (77) Those developing mental health policy may look at how mental health is presently being financed in a country, how this impacts on the equity and efficiency of the existing mental health delivery system and on the distribution of the economic burden. Policy makers may wish to determine in what direction a country should proceed in relation to its financing of mental health services, in part, to meet the goals within the mental health policy. “Health system financing is the process by which revenues are collected from primary and secondary sources, accumulated in fund pools and allocated to provider activities. For the purposes of analysis it is useful to divide health system financing into three sub functions: revenue collection, fund pooling and purchasing.” (78) and to consider these sub-functions within public and private domains. 16 a) Public Financing Revenue collection “Revenue for public health funding is generally collected through direct and indirect taxation and from secondary sources (governments and donor agencies)”(79) Taxes can be levied on individuals, households and firms (known as direct taxes) or on transactions and commodities (known as indirect taxes).The design of revenue collection mechanisms has a potentially profound effect on health system performance. (80) Once revenue is collected it is used to purchase physical capital or to fund pool. Fund pooling (recurrent) Pooling is the accumulation and management of revenues in such a way as to ensure that the risk of having to pay for health care is borne by all members of the pool and not by each contributor individually. (81) “Important issues include: the size and number of fund pools, mechanisms for transferring funds among pools; choice and competition among fund pools for enrolment and governance of institutions maintaining fund pools.”(82) An issue of importance in relation to mental health is whether there is comprehensive health coverage or mental health is excluded. In some countries mental health may not be covered or covered to a lesser degree than for other illnesses. “Policy makers must decide, in the context of existing systems, whether medical insurance can be expanded to cover mental illness. If no health insurance exists, it is unlikely that a mental health insurance plan can be sustained.”(83) Example 1. In the Philippines, government health insurance does not cover mental illness. Families pool their resources to pay for private care, which is very expensive (pers. comm. Conde, B., February 2001) Example 2. In Kenya, hospital insurance excludes mental illness and the psychiatrists of that country have reportedly stated that “failure by hospitals to provide cover for mental illness allowed patients to develop worse conditions from otherwise simple diseases.” (84) Example 3. In Singapore the government insurance scheme Medisaid enables contributors to use funds to pay for health services including mental health however the amount available for mental illness is 50% less than for other illnesses. (Presentation: Meeting of the Western Pacific Region, Consortium for Mental Health Policy and Services, Beijing, February, 2001) Purchasing Purchasing is the “Process through which revenues that have been collected in fund pools are allocated to institutional or individual providers to deliver a set of interventions…Purchasing can range from simple budgeting exercises in highly integrated public systems…to more complicated strategies where specified units of inputs, outputs or outcomes are purchased.” (85) 17 b) Private Financing has been divided into three groups i. Private financing of services (insurance: for profit/not-for-profit) Hospital and out-of-hospital services may be funded through private health insurance or other sources of funding such as work insurance schemes or individual copayments. As with public provision, private provision can be divided into three sub functions: revenue collection from members of the insurance scheme or health benefits fund, fund pooling and purchasing through the fund. It has been found however that “Health insurance companies discriminate between mental and physical disorders and provide inadequate coverage for mental health care.” (86) In addition, “many people influenced by the stigma that society attaches to mental illness and the perception that “one cannot contract mental illness”, do not believe they are at risk. As a result they are unlikely to pay for others who might require treatment. Recent developments have been made in high-income countries to circumvent this problem by incorporating mental health conditions into existing plans and producing payment parity.” (87) ii. Private financing (for-profit companies e.g. pharmaceuticals) In some countries for-profit organizations play an important role in providing financial input for mental health and service provision. iii. Private financing (not for profit e.g. charity, donors) This arrangement for financing is usually through formal organizations independent of government including religious groupings. Although they may earn surpluses they do not distribute this surplus to shareholders or owners. Historically, these groups dominated mental health care provision in developing countries and they continue to provide a variety of services. Example 1. “Donor contributions as a source of revenue for the health system, are of key importance for some developing countries….Several countries in Africa depend on donors for a large share of total expenditure on health…..Most aid comes in the form of projects, which are separately developed and negotiated between each donor and the national authorities.” (88) Past donor aid programmes in poor countries have involved accumulation of physical capital that the countries have been unable to maintain or operate. “There are often incentives in less developed countries for decision makers to accept donor support irrespective of the long-term consequences on the balance among existing resources or between investments and recurrent costs…. Competing agendas among donors have led to further fragmentation in responsibility and short-term thinking.” (89) 18 c) Personal Purchasing of services Out of Pocket expenditure In many countries of the world there is minimal or no well-organized or private insurance for provision of services. “Private financing, particularly in developing countries, is largely synonymous with out-of-pocket spending or with contributions to small, voluntary and often highly fragmented pools.” (90) Lower income countries have health systems that are more private – in finance and provision-than higherincome countries. In Asia and especially India, health care is mainly purchased “out of pocket” from private doctors and clinics. (91) Services must be bought by the individual through various methods (e.g. personal payment, bartering). Initial research into public-private mix for health care in Less Developed Countries (LDC) indicated that, “In countries with very low levels of private sector provision, individuals’ outof-pocket payment for health services often exceeded one-third of the national health expenditure.”(92) Within this ‘out-of-pocket’ expenditure for health services, payments for mental health is likely to be overly represented because, as discussed in the previous page, insurance schemes often do not cover mental health to the same degree as for other conditions. The absence of public provision and the need for personal purchasing of mental health care can lead to individual and family poverty. Without a firm funding base countries may have to consider what mental health policy initiatives are realistic and whether this must be a major focus of policy formulation. Example 1. In Uganda the “total per capita health expenditure is in the range of US$7 to US$12, with only US$3.95 attributed to government and donor spending, the balance coming from individual out-of-pocket payments”(93) Example 2. In Ghana payment for traditional and ‘western type’ mental health care is increasingly borne by the individual. “Changes in the cost of living coupled with the introduction of licence fees (has) meant that traditional practitioners are increasingly demanding monetary payments for their services-though significantly, capacity to pay remains an important element in the fee structure” The government is responsible for hospital infrastructure and the costs of medical and nursing services whilst the patient pays for drugs, food and other consumables. As a result “only a few people in Ghana can afford Western-type health care.” (94) Time spent by individuals and families negotiating the service system and providing care. Cost of illness estimates indicate that, in quantitative terms, individuals and families are generally the largest provider group of hours of support in all countries of the world. (95) In addition to providing care and support families, particularly in LDC’s, report significant time is spent negotiating service systems to secure care for their family members. This includes locating services, obtaining appointments for family members, providing transport and accessing inaccessible services. 19 2. Human Resources Human resources includes: Mental Health Care Personnel: Clinical staff Non-clinical staff Complimentary Religious/ traditional healers Non-Governmental Organizations Families and carers Clinical staff & Non-clinical staff Human resources are the most important of the health system’s inputs. “The performance of the health care system depends ultimately on the knowledge, skills and motivation of the people responsible for delivering services.’ (96) In most countries regardless of GDP, (the exceptions being countries such as Russia and the USA where there is an undeveloped General Practitioner system) the majority of health care is delivered at the primary health care level by General Practitioners. “Psychiatrists and psychiatric nurses as well as allied health professionals (including social workers, clinical psychologists and occupational therapists) are a key component of specialized mental health services”. (97) There are also professional groupings specific to different countries. For example, Clinical Officer, Medical Licentiate /Assistant Medical Officer (Africa) have been created to address clinical human resource needs. Administrators and managers in government and nongovernment sectors also form an important part of human resources. In most parts of the world however there are severe shortages in trained personnel, including those specialising in areas such as youth, child and refugee mental health. This shortage has been compounded by ‘brain drain’ of professionals from developing to developed countries. (98) Complimentary &Religious/ traditional healers There are an increasing variety of lay trained mental health care providers who compliment and/or substitute for conventionally trained mental health professionals. (99) In many countries traditional and faith healers provide much of the care provided to people with a mental illness. “There is a lack of adequate information on the practice of faith and traditional healers and few programmes articulate collaborative linkages between traditional and modern medicine systems.” (100) Example 1. In 1990, it was estimated that in Uganda up to 80% of patients were attending traditional healers before reporting to the allopathic health system. (Pers. Comm. Baingana, F. 2000) Example 2. In Ethiopia about 85% of emotionally disturbed people were estimated to seek help from traditional healers partly in response to the lack of formally trained mental health care providers e.g. 10 psychiatrists for the population of 61 20 million. This situation has been reflected in policy. (101) Gureje & Alem (2000) argue however that although “many policies makers in Africa talk about the need to integrate traditional health care into orthodox service delivery little success has been achieved because the policy for integration has not been well articulated...Policies have commonly failed to specify the service needs which can be met by the traditional approach or show how specific traditional interventions are to be assessed for efficiency or to give some idea of how good standards in service delivery can be achieved and maintained.”(102) “Clearly the future of traditional medicine in mental health is a question that must be addressed by policy makers in Africa.” (103) Example 3. “In Nepali folk medicine, symptoms of distress are both somatic and psychological and are explained as attacks or possession by demons, ghosts or spirits. The origin of these attacks or possession may be the random malevolence of ghosts etc. or may result from conflicts within the community which cause an aggrieved party to direct a demon to bring misery to a member of the responsible family. Regardless of the specific cause, a family may hire a Jhankri or Dhami to expunge the demon and cure the patient. It is generally the case that patients who utilize the modern forms of health treatment in Nepal have visited indigenous healers prior to seeking modern forms (Subedi, 1989,1992; Subedi and Subedi, 1995). The modern trained psychiatrists in Katmandu report no conflicts with folk healers and indeed have found them to be cooperative in that Jhankries/Dhamis sometimes refer patients to the modern mental health system.”(104) Example 4. A report from the Assistant of the General Director of Mental Health and Social Services, MOH, Saudi Arabia outlined plans for cooperative action in that country between government services and traditional healers to minimize stigma toward mental illness among the population and to encourage people to seek mental health treatment. (First Meeting of the Eastern Mediterranean Region, Consortium for Mental Health Policy and Services, Rawalpindi, Pakistan, 29-31,Jan, 2001) Non-government organizations NGO’s are non-government organizations that provide services including treatment, rehabilitation and advocacy. NGOs can be formal registered bodies or unregistered groups. “The presence of NGOs in a majority of countries is reassuring, since they serve an important function, especially where the governmental sector response has been slow and inadequate.” (105) However, the participation of the nongovernmental sector still needs further expansion in many parts of the world. (106) Example 1. “In a large country like India, with its population at the one billion mark, national policy has begun to recognize the value of the commitment and activities of NGOs. In some cases, where their work is closely linked to community development, they may be especially well placed to formulate strategies not only for treating but also preventing mental disorders and promoting mental health, contributing to a comprehensive mental health 21 agenda beyond curative services. Less encumbered by the constraints of a clinically orientated health service system and without direct responsibility in the organizational structure of the government health and other ministries, many NGOs operate effectively. Cross-cutting programmes of NGO’s are better able to deal with the social aspects of many issues related to mental health, such as gender, alcohol and other substance abuse, and mental retardation.” (107) Families Families are also important human resources in mental health provision, particularly in developing countries (108,109,110) where family involvement has been identified by researchers as contributing to improved mental health outcomes that equal or are superior to more developed countries. (111,112) Example 1. “The magnitude of unpaid caring is enormous. The United Nations Development Programme estimated that US$ 16 trillion of unpaid caring work was missing from the 1995 global GDP of US$ 24 trillion (United Nations Development Programme, 1995). This emphasises the broader social costs of illness and disability.” (113) Policy directions that policy makers may pursue in relation to Human Resources include: Policies that seek to make more efficient use of available personnel through geographic redistribution, the use of multi-skilled personnel and close matching of skills to functions. (114) Policies that seek to ensure that there is consistency between the mental health needs of the country and the number of health personnel that are trained and their skills and functions. (115) e.g. “about 71% of all people in the world have access to less than one psychiatrist per 100,000 people. Access to psychiatric nurses is also poor; 46% have access to less than one nurse per 100,000. (116) Policies that optimise/establish the role of traditional and complimentary mental health personnel in the mental health system Optimal use and support of NGOs, carers and families. 3. Physical Capital Physical capital includes: Health facilities such as hospital beds and equipment, day treatment and rehabilitation facilities and community clinics; Non-health infrastructure (e.g. roads, schools, prisons) that meets the *primary intent criterion of improving mental health;. Information Technology e.g. electronic recording systems, graphical representation of clinical data, telemedicine, teleconsulting; (117) Other technology e.g. EEG & ECT; 22 (*Primary intent criterion: inclusion of an element within the mental health system is determined by whether the primary intent of the element is to improve or maintain mental health) 4. Consumables Medical Equipment Pharmaceuticals The availability, effectiveness and control of consumables such as pharmaceuticals can be an important issue for policy makers in developing and developed countries to consider. Advances made in psychopharmacology during the last 2 decades of the 20th century radically altered the treatability and treatment of most mental illness. (118) The newer classes of medications (e.g. atypical antipsychotics) however are “much more expensive than the older agents and many health plans (in developed countries) have chosen to severely limit their use”(119) due to this increased cost. In developing countries access to effective, affordable pharmaceuticals is a major challenge. “Pharmaceutical expenditures in poor countries typically account for between 10 and 30% of total recurrent costs of public sector health expenditures, ranking second after salaries. (120) These high expenditures and the involvement of the public and private sector at national and international levels, make drugs a high priority for policy makers. Policy makers in all countries may need to consider whether medication is available, effective and affordable and the political implications of policy development and reform in this area. (121) Example 1. In Africa access to modern psychotropic medication is extremely limited due to cost and patents on these compounds prohibit local production of the drugs in cheaper forms for local use. (122) Example 2. In Ghana “attempts to control the quality of herbal preparations through clinical trials and other biomedical research has meant that the costs of the final products have risen well beyond the means of many ordinary people, thereby undermining ease of access normally associated with traditional medicine.” (123) Example 3. In parts of Africa anti-depressants are extremely limited or unavailable. Cheaper medications are often more available but less effective. Policy makers need to consider not only the availability of medication but also the quality of the drugs that are available. (First Meeting of the African Region, Consortium for Mental Health Policy and Services, Lusaka, Zambia, 27-29 November, 2000) Example 4. “An estimated 39 million people in the world suffer from epilepsy, but some 30 million of them-almost three out of every four-get almost no help for the condition…In developing countries 60-90% of people with epilepsy are excluded from treatment” (124) despite the availability of low cost and effective treatments such as Phenobarbital. Inadequate supplies of anti-epileptic drugs 23 has been identified as one of the obstacles to people in poor countries receiving this needed treatment. 5. Social Capital Although there is not a definitive definition of social capital it is generally conceptualized as “the features of social organization such as civic participation, norms of reciprocity and trust in others that facilitate cooperation for mutual benefit”. (125) Social capital emerges from social interactions and shared norms that are external to the individual. It includes the nature and extent of relationships and networks within communities and between communities and also between communities and formal institutions. Social capital resides in relations rather than individuals and is a resource that can generate a stream of benefits for society over time. (126) Social capital is greater than the sum of the individual contributions to it, it is shared by a group and as a consequence it is a public (as opposed to private or individual) good that in turn enables the supply of other important public goods and the enhancement and amplification of other capital. Social capital is thought to have the capacity to bond or ‘glue’ like groups, create bridges between different groups in society and to create vertical links between groups of people and government and formal institutions. Social capital when combined with a “well-functioning state, compliments the state’s abilities and produces the fertile soil necessary for social and economic development.” (127) Correlations between social capital and health outcomes have been researched. There is good evidence that more socially cohesive societies are healthier with lower mortality. (128,129,130) The mechanisms by which this social capital is beneficial to health are not clearly delineated, but social networks are believed to promote better health education, better access to health services, informal caring and enforcing or changing societal norms that impact on public health. “In terms of mental health, little work has been done to specifically explore how it may interface independently with social capital, although this body of knowledge is growing” (131) The relationship between mental health and social structure, social isolation, poverty, life events and psychological stress has been demonstrated. (132,133,134) It is argued that social capital affects the mental health of individuals and groups. Social capital is thought to mediate against the downward social drift caused by mental illness and to reduce the impact of psychosocial stressors experienced by vulnerable people in socially disadvantaged situations, that trigger mental illness. Whether reduction and prevention of mental illness in turn generates benefits for the wider social group by increasing the store of social capital available within the community has yet to be investigated. (135) “In the context of mental health, adding the dimension of social capital integrates the biopsychosocial determinants of mental disorder (genetics, neurobiology, psychological factors, social environment etc) in a way which brings an understanding of population mental health beyond the aggregation of individual health characteristics or risk factors.” (136) Social capital mechanisms for improvement of mental health may occur at different levels of society. At the national level social mechanisms can address inequalities in 24 political participation that lead to a lack of political commitment to improving services for vulnerable groups. At a community level, community cohesion can facilitate the organization of groups and movements that agitate for increased access to services and amenities that can address the immediate and long-term needs of the mentally ill. (137) Bridging social capital can also unite marginalized groups with the mainstream and promote a more inclusive approach to the provision of mainstream services and resources to people with a mental illness. Social capital also promotes rapid diffusion of health information and therefore may affect mental health well being and may address issues of stigma and discrimination of the mentally ill. (138) At the individual level bridging social capital facilitates social integration that contributes to better health for the individual. Social capital is important for mental health policy makers to consider because it is a potential mechanism for preventing mental illness within the community. It is also thought to influence the health of individuals via psychosocial processes providing effective support and acting as a source of self-esteem and mutual respect (139) Social capital is also important to consider as a prerequisite for effective policy and successful policy implementation. Well-formed policy will, in turn, increase the store of social capital that will impact on individual and community well-being including mental health. Policy makers may therefore wish to consider the importance of social capital in the following areas: a) Its contribution to the overall mental health and well being of the population; b) Preventing social decline in individuals with mental illness c) Improving access to mental health services d) Improvement of mental health status and its impact on the building of social capital (eg in post–conflict populations). e) How the concept of social capital may inform social policy in general, including mental health policy and it’s implementation, including: Policies that strengthen social networks; Policies that build social organizations; Policies that strengthen community ties; Policies that strengthen civil society; Policies that address inequalities in political participation; Policies that increase community access to services; Policies that focus on individual social integration and reduction in exclusion; Policies that facilitate bridging social capital and thereby facilitate inclusion of minorities e.g. people with mental illness; 25 PROVISION DOMAIN “Providing services is something the system does: it is not what the system is.”(140) Health services aim to protect or improve health, whether they do so depends on which services are provided and how they are organized. At the centre of service delivery is the patient, in the case of clinical interventions, or a population in the case of population-based health services. (141) Within an environment of limited resources, mental health policy will be concerned with effective mental health service and programme provision at individual and population levels and to special needs groups e.g. women, children, indigenous people, both from within the health sector and intersectorially. The Provision Domain consists of 3 elements: 1. Personal Mental Health Services: 2. Population-based Mental Health Services 3. Intersectoral Linkages 1. Personal Mental Health Services: Personal mental health services are those “Services that are consumed directly by an individual, whether they are promotional, preventative, diagnostic, therapeutic or rehabilitative, and whether they generate externalities or not.”(142) These services include assessment, crisis intervention, acute inpatient services, specific psychological and social interventions, community outpatient clinics, mobile treatment teams, domiciliary services and living skills programmes, rehabilitation and vocational services. (143) 2. Population-based Mental Health Services Population-based mental health services are “actions that are applied either to collectivities (e.g. mass health education, promotion) or to the non-human components of the environment” (144) Examples of non-human components of the environment include; structures erected to prevent suicide from public buildings or bridges; blister packs on pharmaceuticals. 3. Intersectoral Linkages Intersectora1 linkages address the relationship between mental health services and those services that are not primarily mental health services but do impact on a person’s overall mental health outcome and general well being. “Mental health policies need to recognize and stress the importance of other areas of the social services which have strong implications for mental health.”(145) These services may fall outside the responsibility of health departments. A comprehensive mental policy will explicitly encourage the development and maintenance of links and cooperation between mental health services and those services that meet the health and non-health needs of people with mental health problems or that play a part in maintaining individual and population well-being. Currently, in many countries service providers do not communicate sufficiently and intersectoral linkages are not well established. (First Meeting of the African Region, Consortium for Mental Health Policy and Services, Lusaka, Zambia, 27-29 November, 2000) “Policies aimed at improving 26 these social factors will inevitably have a bearing on the mental health status of the community. (146) Intersectoral linkages may be prescribed in mental health policy at national government levels between health sector and other public services (e.g. education and finance) and at service levels. Areas in which intersectoral linkages should exist include: Welfare, religious, education, rehabilitation, vocational and employment, accommodation, correctional, police and other social services required by people with mental illness and disability or with which they are likely to come into contact; Services within the workplace such as Human Resource Management, Training and Occupational Health and Safety that impact on mental health well being; 27 OUTCOMES DOMAIN Outcomes are used as indicators of the impact of the mental health system, services and mental health policy at individual and population levels. “Meaningful, comparable information on health system performance, and on key factors that explain performance variation, can strengthen the scientific foundations of health policy at international and national levels.” (147) “Appropriate indicators and frameworks for evaluating the structure and performance of mental health systems are badly needed to inform policy in low- and middle-income countries.” (148) Policy makers may wish to build into mental health policy, mechanisms to collect information that assess the impact of the policy and services. These data can help inform which policy elements need to be refined to enhance mental health and wellbeing. The Outcomes domain consists of four elements 1. Health a) Population b) Individual 2. Economic Outcomes 3. Service Outcomes 4. Social Outcomes 1. Health Mental health outcomes are generally considered to be changes in functioning, in morbidity and mortality, that are attributable to the treatment and care received. (149) Mental Health outcomes can be considered at the individual level or for whole populations. a) Population outcomes Population mental health outcomes are concerned with changes in the mental health status of the whole population that may be considered to be attributable, at least in part, to the range, quality and type of mental health services available to the community. Policy makers may wish to incorporate into policy a commitment to measure and review changes in the incidence and prevalence of mental health indicators and changes in mortality during the policy cycle and the relationship of these rates to policy actions. Population outcomes include general health and welfare of populations that can be attributed to good mental health. General population mental health indicators exist for some countries from local or nationally representative samples. Few routinely collected indicators are generally available. One such measure is suicide rates. “Until quite recently counting deaths was the only way to determine whether public health programmes were succeeding.” (150) A recent development in this area (although they need refinement) are the types of methods used in the Global Burden of Disease study. These methods combine mortality and morbidity measures making it possible to measure the impact of mental treatments on population health and the reduction in the burden of mental illness on the general population. (151) 28 b) Individual outcomes Individual outcomes are the changes in an individual, who has accessed a mental health intervention, that can be attributed wholly or partly to the intervention. “There is a large body of literature on the dimensions that should be included in the assessment of outcomes at the individual level (152) “ Ultimately the choice of what to measure will depend on the decisions that are to be made on the basis of the information obtained from the measure.” At the individual or “micro-level of decision-making the measures will be specific to the goals of treatment as designed in accordance with the needs of the consumer.” (153) It is generally accepted that all major stakeholders should be involved in the outcome measurement process and that accepted qualitative and quantitative measures be used e.g. Health of the Nation Outcomes Scales, Health of the Nation Outcomes Scales for Children and Adolescents, The Medical Outcomes Study Short Form; The Mental Health Inventory. Few countries currently collect individual outcome measures on a routine basis although there is broad agreement that this is a desirable step. Recent developments in Australia and the United Kingdom are moving in this direction. Similarly, initiatives have been taken in several United States jurisdictions to comprehensively collect individual outcome data on a regular basis. Individual outcome domains may include: Mental health status; Functional status (including: Social and vocational functioning) Quality of life; Satisfaction with access and interventions; Measuring individual outcomes has the potential to provide policy makers with reliable data about the efficiency and effectiveness of mental health services and interventions. These data can be used as an evidence base for decisions regarding resource allocation and service provision and overall policy direction and reform.(154) 2. Economic Outcomes Economic outcomes are the economic consequences of mental health intervention, or lack of intervention, to the community as a whole and include consideration of the overall cost to society of mental disorders. Economic outcomes also include the economic consequences of mental health intervention to the individual and their family and other carers. “The economic impact of mental disorders is wide-ranging, long-lasting and large. Measurable causes of economic burden include health and social services needs, impact on families and caregivers (indirect costs) lost employment and lost productivity, crime and public safety, and premature death.” (155) In the context of perennial pressures on resources, which is now perhaps also more widely acknowledged, more stakeholders in mental health care systems want economic evidence to guide their arguments, decisions and behaviours. “Costeffectiveness data can be compared to interventions for other physical conditions, in order to provide a firmer basis for new investment” of resources and greater parity between mental and physical health conditions. (156) However, “few economic 29 evaluations have been conducted outside Western Europe, North America or Australia.” (157) We have identified four key sub-elements that should be considered in assessing the economic outcomes resulting from the implementation of a mental health policy and service system. Direct Costs and Indirect Costs Productive Role Externalities Poverty levels at individual and population levels Direct and Indirect Costs Direct costs to the individual include the contributions made by service users, their families, employers and taxpayers or insurers towards the costs of treatment and care, and the productivity losses resulting from work disability, impaired work performance and mortality. At the individual level “The choice to seek treatment can result in catastrophic costs for individuals which may lead to poverty” (158) while successful treatments may reduce costs and improve the economic well-being of individuals and their families. At a community level studies from countries with established economies have shown that mental disorders consume more than 20% of all health service expenditure. Even in countries where the direct treatment costs are low it is likely that the indirect costs due to “productivity” loss account for a large proportion of overall costs. (159,160, 161) Indirect costs are less quantifiable costs such as the economic consequences of quality of life losses and informal care giving by family members and friends. (162) To understand the economic outcomes that result from mental health policy and service implementation, policy makers will consider the quantity of resources that are used for treatment of illness by individuals and the community and their cost during the policy cycle and whether these have been reduced and redirected as a result of mental health interventions. They will also consider changes in indirect costs as a result of mental health policy implementation. It is important to note that direct costs are rarely considered on their own as they provide only a small part of the picture of economic costs and benefits of mental health. “Cost of illness studies are not sufficient for policy making; whether treatments are effective and available to a population should also determine public investment.” (163) Productive Role In considering the effectiveness of the mental health policy and the service system, policy makers will also consider changes in levels of individual human capital and the consequent changes in the productive role of people who have used the mental health system and their families and carers. They may also wish to examine whether these changes impact on the economic status of individuals, households and the community. Human capital resides in individuals. The concept of human capital embodies “skills and other attributes of individuals which confer a range of personal, economic and 30 social benefits.” (164) Human capital includes acquired skills and competencies as well as innate capacities or attributes. Mental health and well-being contributes to the individual’s store of human capital which in turn contributes to an individual’s capacity to undertake a productive role in the community either in a renumerated or non-renumerated role. Effective mental health interventions will also contribute to the individual’s store of human capital. While difficulty still exists in “identifying the complex interactions through which human capital plays a role in the growth process” recent research indicates “human capital does have a substantial and positive impact on growth in GDP or income per capita”(165) Example 1: “Data from the US National Comorbidity Survey has shown that work impairment is one of the major adverse consequences of psychiatric disorder with approximately one billion lost days of productivity per year in the civilian workforce.” (166) In addition, the ability of an individual to contribute productively to a non-renumerated social role is as important as for those in a renumerated role. “Less ‘days out of role’ for individuals who do not have paid employment- non-wage production-has considerable social cost savings and also promotes economic development.” (167) The change in the level of productivity attributable to optimal or improved mental well being, and its impact on individual economic well-being and on the national economy as a whole is an important factor that policy makers may wish to consider within a policy formulation. Policy makers may wish to consider the number of people disabled by mental illness who have been returned to an increased productive role including non-remunerated roles (eg less ‘days out of role’) due to mental health interventions and to consider the economic implications of this data both at the level of individual households and at a more macro level. Externalities An externality is a significant effect of an intervention, on a non-purchaser or a person or group that is not the specific target of that intervention. Externalities can be positive or negative in terms of their effect on these players. (168,169) In terms of mental health policy, externalities are those outcomes experienced by part or all of the community due to mental health interventions that were not the direct aim of the intervention e.g. reduced crime rates. Some externalities generated by mental health interventions will contribute to economic outcomes or will result in direct economic outcomes for the community. The economic outcomes of a reduced rate of homelessness, for example, that was generated by mental health policy interventions could include reduced costs to the community in law enforcement and involvement of the judicial system in relation to vagrancy and squatting. Poverty “Poverty remains a reality for much of the world, and mostly affects women." (170) Poverty from an epidemiological perspective can be defined as: Low socio-economic status (SES) Unemployment Low levels of scholarship Low family standing. 31 Mental disabilities result in substantial burdens for individuals and societies. They constitute a significant drain on the economies of poor countries. Understanding the interrelationship between mental health and poverty is important for policy makers to consider in evaluating the effectiveness of existing policy and how to formulate future policy directions. (171) The relative risk for schizophrenia is estimated to be eight times higher for people from lowest socioeco status (SES) than those of the highest SES. Over past decades the relationship between poverty and mental illness has generated considerable epidemiological research. The literature posits a positive link between poverty and mental illness. (172,173) The classic studies of Faris and Dunham (174), Hollingshead and Redlick (175) Leighton (176) and Brown and Harris (177) demonstrated relationships between mental health and social structure, social isolation, poverty, life events and psychological stress. (178) Traditionally, two explanations have been put forward to explain the association between mental disorders and poor social circumstances. One explanation is that mental disorder impairs psychological and social functioning and this leads to downward “social drift”. (179,180) Thus individuals with mental disorder and psychiatric disability end up in more socially disadvantaged groupings. Some mental disorders, such as schizophrenia, can result in dramatic social decline as a result of impaired psychological and social functioning. The second explanation for the association between mental disorders and poor social circumstances is that individuals in socially disadvantaged situations are exposed to more psychosocial stressors (adverse life events) than those in more advantaged environments. These stressors act as triggers for the onset of symptoms and the loss of the individual psychological abilities necessary for social functioning (181). The psychosocial pathways to the development of mental disorders include higher levels of life events, anomie, learned helplessness, thwarted aspirations, low self-esteem, and less security (182) Research suggests that most of people with mental illnesses share the consequences of the environment of poverty including homelessness, mortality and substance abuse, (loss of employment and productivity), time lost and opportunity costs. (183) “Serious disability caused by mental disorders is often not considered for state disability benefits. Of the 74 countries where information about disability benefits is available, more than a quarter do not provide state or public disability benefits for mental illness. A large number of countries where benefits are available only provide limited assistance in the form of a small monetary allowance or pension benefits for government employees.” (184) With mental disorder, the burden of lost employment and days out of role for family members caring for a relative with mental health problems is well documented (185). Mental illness can cause poverty for families, particularly those families that have to: a) pay for out of pocket care and treatments; b) devote time and economic resources to negotiating the service system; c) who have to devote time that would be devoted to income generation in caring for their family member; 32 The material poverty of the individual associated with mental health has implications for the national economy, including the resources that must be devoted to service and treatment provision, financial support through social security payments and the loss of real or potential productivity contributed to the economy by the sufferer and family. Early identification of, and intervention to remove, target symptoms associated with the social and vocational decline in mental disorders is now possible (186). Good mental health policy can seek to address poverty in mental illness through provision of appropriate, accessible services, programs and intersectoral linkages, at individual and population levels that will: Reduce the economic burden or drain on individual sufferers and their families created by the need for out of pocket purchasing of services and treatments Reduce the economic burden on society through reduction of service need Facilitate the capacity for individual sufferers and families to return to renumerated and non-renumerated roles that will enhance the economic well being of individual and the family and the overall economy. Poverty is a correlate with mental illness in many countries. As a result policy makers may wish to incorporate into mental health policy consideration of changes in poverty levels amongst those people with a mental illness during the policy cycle as well as changes in the levels of economic burden on the overall community and whether this cab be attributed to the mental health policy. 3. Service Outcomes: Service outcomes are concerned with overall health system performance and the impact of service provision on the users of services. The focus here is on the efficiency and effectiveness of service provision in responding to the needs of people for whom mental health services are funded to serve, measured at the aggregate level rather than the individual consumer. Service outcomes are the typical province of performance indicators developed to assess the performance of health systems and whether value for money has been achieved in relation to the funds allocated. Service outcome measures include quantitative and qualitative aspects of service provision and are designed to address the question of ‘who receives what services from whom at what cost and with what effect’. (187) Indicators of service outcome include the following sub-elements: Efficiency, which concerns how well health systems use their resources to produce units of services. Typical measures used to include average bed day costs, cost per treatment episode and other unit cost indices. Access and Equity, which concern the extent to which people who need services actually receive those services. Indicators used to measure access and equity may include service timeliness, population treatment rates, and comparative service utilisation by particular subgroups within the population. Appropriateness, which concerns the extent to which services are delivered in a manner that conforms to pre-defined standards of good or acceptable care. As 33 such, measures of the health care quality are usually concerned with the inputs and processes of the health system. They typically involve qualitative measures targeted at specific aspects of clinical practice such as use of specific drug treatments, extent of use of involuntary treatment, compliance with clinical protocols and so forth. Quality, which in contrast to appropriateness, can be defined as those elements of treatment or services that have been empirically shown to affect individual outcomes. While appropriateness may be based on consensus or normative beliefs, quality requires a higher level of evidence. It is important to distinguish between quality and appropriateness because resources invested in improving the appropriateness of services may not result in better consumer outcomes. Given this higher standard of evidence there are fewer indicators of the quality of mental health services. Specific evidence based treatment of drug protocols are examples of quality standards as well as therapeutic alliance in psychotherapy. (Pers.Comm. Bickman, L., 2001) Effectiveness, which concerns how well the health system achieves its objectives in relation to the clinical populations targeted for treatment. Indicators of service effectiveness are usually derived as aggregate measures of individual consumer outcomes and may focus on the extent of improvement in clinical symptoms, consumer satisfaction with services or broader social outcomes such as employment and housing tenure. Developing measures of service outcomes provides critical information to policy makers to assist in making decisions about resource allocation and how to develop services in the future. 4. Social Outcomes Social outcomes are concerned with overall changes in the social environment, changes in relationships between individuals, and changes in the relationship between the individual and the environment that result from improved mental health and wellbeing. The positive and negative symptoms of schizophrenia can interfere with the person’s capacity to cope with the usual demands of interpersonal interaction and the decoding of social communication (188). Adverse effects on socialization can also arise from the more common mental disorders, such as depression and anxiety. These mental disorders have adverse consequences that include a breakdown in marital stability (189) increased teenage parenthood (190), more distant social relationships (191) and other factors associated with social deterioration. Enhanced mental health increases the capacity of the individual to access and interact with people and resources within their local communities. This includes, for example, the individual’s capacity to access to housing, vocational and recreational opportunities as well as socially supportive relationships. A number of standardised measures of social outcomes at the individual level have been developed for monitoring progress in these areas. These include improved relationships between individuals and groups, improvement in the quality of family relationships and community relationships and increased constructive participation in civil society. 34 These improved relationships contribute to enhanced social capital with benefits accruing to the wider social group. Other measures of social outcome at the population level may include indicators of family violence, stigma and discrimination, mental health literacy, housing availability. However, more research is needed to establish the relationship between improved mental health and social outcomes. 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