AUTISM What is Autism? Autism is a complex disorder that affects the way a person communicates, forms relationships with others and is characterised by the presence of repetitive and stereotypic patterns of behaviours and interests. Autism is a Spectrum Disorder varying in symptoms, severity and impact from individual to individual. Autism can affect individuals of all levels of ability. The exact cause of autism is uncertain, which makes finding effective interventions difficult. What is Asperger Syndrome? Asperger Syndrome is not ‘mild’ autism. It includes individuals with the same characteristics of autism to a greater or lesser extent, but are of average or above average intelligence. Many go through life building up their own informal support systems whilst others may require more specialised support. Characteristics The onset of symptoms of Autism is typically before the first 3 years of a child’s life. Amongst researchers, it is generally agreed that there are three main characteristics of autism and anyone who has received a diagnosis of Autistic Spectrum Disorder will exhibit some or all these characteristics to some extent. Social Interaction The Triad of Impairment in Autism Social Imagination Social Communication Social Interaction Impaired ability to engage in social relationships Lack of ability to respond to name, affection and avoidance of eye contact Lack of empathy and inability to take on another’s perspective Impaired ability to recognise, process and appreciate the feelings and emotions of others Crave predictability and function better in highly structured environments Do not respond well to change and transition Unaware of social rules and so lack social tact Social Imagination Find it hard to separate fantasy from reality May engage in repetitive, stereotyped body movements (hand flicking, spinning, rocking) Need for sameness might extend to food (dislike certain colours or textures) Narrow range of interests Intrigued with 1 or 2 objects and have extensive knowledge about it Contingency planning poses a problem Social Communication Requires support in using and understanding verbal and non-verbal communication (eye contact, facial expressions, smiling) and require additional time to process information Unlikely to initiate or sustain conversations Impaired development of spoken language Stereotypical and repetitive use of language Abnormalities in pitch, stress, rate, rhythm and tone of speech Literal understanding of speech Other Potential Issues Hypersensitivity to stimulation (noise, touch, smell) Poor organisational skills Poor motor control Problems with handwriting Disrupted sleeping patterns Strengths and Abilities Often have good memories Do not generally have the ability to lie or deceive Refreshingly frank view of the world Function well in a structured environment Adapt well to routines Able to work well on their own Full range of strengths and weaknesses in personalities Very dependable Make a positive contribution to family, work and daily life May have a encyclopaedic knowledge of subject matters Diagnosis As Autism is a developmental disorder and not a mental disorder there is no medication, no blood test, no brain scan and no biological test which can be used to identify or recognise the condition in order to diagnose. Therefore, it is important to look at the behaviour of the individual and how they process information in the brain. If a parent or carer has concerns regarding their child’s behaviour, it is recommended to keep a diary of the behaviour, to note anything that may appear unusual and to make an appointment with the GP. A formal diagnosis may involve a multi-disciplinary team made up of health professionals and different doctors. Gaining a diagnosis as an adult isn’t easy; however, the official route is through the GP and subsequently a referral to a psychiatrist or clinical psychologist. It is important to make an appointment to specifically discuss this and to describe the characteristics clearly. A diagnosis describes the behaviours which are happening but does not explain why they are happening. However, a diagnosis can help an individual to plan ahead, tell people what type of behaviours to expect and it may open doors to autistic-specific services. Helpful Strategies It is important to organise the environment to suit the individual’s needs and characteristics. The aim is not to change the challenging behaviour but to adapt the environment which leads to the challenging behaviour. The following approaches can be useful: Communicate at a level that is understood, don’t overload Be clear and precise in your instructions, be aware of literal understanding Give time for processing information Organise environments: define areas and have clear boundaries A structured environment which includes strategies for generalisation of learning Block out unnecessary distractions Encourage a positive, consistent routine Predictability and routine to help child transfer from one act to another Give warning about changes in advance Focus on specific skills that the child needs to learn Family involvement is central to overall programme Emphasis on promoting communication Emphasis on visual approach Teaching programmes should adapt to the family lifestyle if stress in families is to be reduced It is important to understand as much as you can about Autism. According to researchers, early identification followed by consistent intervention is important for positive changes in the development of the individual with Autism. Successful intervention requires a multitude of professionals and agencies working together with the family at the core. Health Education Family at the Centre Social Vocational Useful Tips: There are lots of interventions available so seek as much information about each one. Do not rush judgement on which approach to go with Different approaches have been known to work for some people with Autistic Spectrum Disorder, it may not work for others Any intervention should be positive, build on people’s strengths, help to discover their potential and provide opportunity Be wary of any intervention that claims to ‘cure’ autism or is the only and best method to use Employment tips for interviewing People with Autism and Aspergers Syndrome Interviewing an individual with Autistic Spectrum Disorder may be more successful if the following adjustments are made: Ask closed questions and avoid open answers Ask candidates questions based on real or past experiences Avoid hypothetical or abstract questions and try and relate questions to past experience for a more productive answer Candidates may require prompting in order to give all the relevant information Be aware that individuals with Autistic Spectrum Disorder may interpret language literally Be aware that eye contact may be fleeting or prolonged depending on the individual as it can be painful for the candidate to force direct eye contact Be aware the candidate may have difficulty interpreting non-verbal communication such as body language and facial expressions Support There has been an emergence of a variety of Autism Organisations in Northern Ireland over the years. Aspire (Asperger Syndrome Assoc of Ireland) www.aspire-irl.org Autism NI & Autism Initiative www.autisminitiative.org Knockbracken Healthcare Park Saintfield Road Belfast BT8 8BH 02890 791875 www.autism.org CEAT (Centre for early Autism Treatment) Develops and delivers a range of specialised individualised and systematic ABA interventions for families in NI. Centre for Early Autism Treatment 60 Belmont Ave Belfast BT4 3DE 02890 659678 www.ceatni.org Disability Action Portside Business Park 189 Airport Road west Belfast BT3 9ED 02890 297880 www.disabilityaction.org Irish Society for Autism www.iol.ie/~isa1/ MENCAP Segal House 4 Annadale Ave Belfast BT7 3JH Belfast: 02890 691351 Ballymoney: 02827 666666 Armagh: 02837 528767 Derry: 02871 262227 www.mencap.org.uk Middletown Centre for Autism 35 Church Street Middletown Co Armagh BT60 4HZ O2837 515750 admin@middletownautism.com National Autistic Society Northern Ireland 59 Malone Road Belfast BT9 6SA 02890 236235 www.nas.org.uk Orchardville Society Voluntary organisation which assists people with learning disabilities realise their full potential and ambitions. This organisation provides support to those with Autism who are in training and employment. Lagan Village Tower 144-152 Ravenhill Road Belfast BT6 8ED 02890 732326 www.orchardville.com PEAT (Parents Education as Autism Therapists) Provides specialist ABA intervention, support and advice to parents. Simple Steps (PEAT) Multimedia Parent Support Package which is designed and produced by parents and professionals to inform others about ASD and ABA. PEAT Upper Springfield Development Co.Ltd Belfast Co. Antrim BT12 7FP 02890 324882 www.peatni.org