Anticoagulation Service This leaflet will provide you with important information about the anticoagulant service, how it is provided, what to expect when you attend the clinic, and important information about your anticoagulant treatment. Please take a few minutes to read through all sections of this leaflet. If you have any questions, or need help to understand any of this leaflet, please ask your anticoagulant specialist nurse. If you do not take your anticoagulation treatment as prescribed, You may be putting yourself at serious risk of harm Working in partnership with the anticoagulant nurse Who needs anticoagulation treatment? Anticoagulant drugs help prevent the formation of harmful clots in blood vessels anywhere the that body. They work delaying the nurse time itiftakes It is very within important you inform thebyanticoagulant you for the blood to clot. the Anticoagulant Clinic, including we see patients who need anticoagulation therapy haveAtchanged any medication, the amount you take or either to: use of any existing medication or have any changes to your Prevent developing a clot or medical condition. Treat an existing clot There are many conditions requiring anticoagulation treatment, which include: Deep vein thrombosis (DVT - an abnormal clot in a deep vein) Atrial fibrillation (an irregular heart rate) Pulmonary embolism (a blood clot in the lungs) Mechanical valve fitted What is an anticoagulant? Anticoagulants are prescribed drugs that may be given as a tablet or sometimes an injection. The most widely used tablet is called warfarin. Why do I need to attend an outpatient appointment for anticoagulation treatment? You will need regular blood tests to see whether the prescribed oral anticoagulant dose is maintaining your INR (international normalised ratio) within range. INR is the measurement of the time it takes for the blood to clot. The normal range is 1.0 –1.2, so if your INR is 2, the blood is taking twice as long as normal to clot. Your doctor will advise on the required INR range for your medical condition. Anticoagulant tablets may take several days to work and it may take one, two or three weeks before your blood test results show the required level. It is very important that you continue to take your treatment, even if you do not feel any different. What will happen at the first appointment? We will post you details of the date, time and venue of your first appointment which will always be at Barnet Hospital. Follow up appointments could be organised in an 1 out reach site if there is one nearer to you. At your first appointment you will see a specialist nurse who will discuss your medical condition with you, arrange for a blood test and discuss the medication you need to take. You will be able to ask the nurse any questions you may have at this appointment. You will need to provide the nurse with a list of all your medication including whether you are on: the contraceptive pill Hormone replacement therapy as these increase the risk of a blood clot forming. The ‘mini pill’ may be suitable but needs to be discussed with the person who prescribed it. If you are not sure who to ask, speak to your own GP. You will also need to tell the nurse if you are taking any herbal remedies or multivitamins, whether you smoke and the amount of alcohol you drink on a weekly/daily basis. It is important that you are as honest with the nurse as possible, as the treatment you are given will depend upon the answers you give. You will be given a yellow form which is for you to keep safely. This will be used to record your: Appointments Test results Dosage What if I am having other medical or dental treatment? If you are having other medical or dental treatment, show the doctor your latest dosage instruction letter. It is very important that the doctor or dentist treating you knows that you are on anticoagulant therapy. Provide the dentist with the Anticoagulation Clinic’s number so that the dentist can get in touch with the Team if there are any queries. Tell your doctor or dentist if you are: Pregnant or planning to become pregnant Due to have an operation Immobilised in bed for any reason, or your leg is immobilised (eg in plaster due to an injury or fracture) All these can increase the risk of a blood clot forming. In pregnancy, warfarin can harm the unborn baby, so if you think you may be at risk of becoming pregnant whilst on this treatment, please speak to the specialist nurse or your own GP for advice before starting the course. How often will I need to attend clinic? At first, you will need to attend once or twice a week. We understand it might be very difficult to make the time to attend the Clinic, but at the beginning of your treatment it is very important to your health and well being that you are checked regularly. Once we have found the correct anticoagulation dose for you, you will not need to attend so often. As and when your INR stabilises you may only need to attend every four, eight or 12 weeks. However if the INR becomes unstable due to changes in medication or medical condition, you will need to be monitored at least once a week or whatever frequency that is required. 2 What will happen at future appointments? You must inform the clinic if you are unable to attend an appointment so your appointment can be given to another patient and we can organise a new appointment for you. The clinics are very busy, with up to 80 patients attending each one. We have introduced an appointments system at Barnet & Chase Farm Hospital to avoid patients having to wait a long time at the busiest periods, such as at the beginning or the end of the day. We did this in response to feedback we received from patients. We will do our very best to allocate appointments to suit the particular needs of patients. However this may not be possible if the majority of appointments for a particular clinic have already been allocated. To keep your waiting time to a minimum, please note the following: You must inform us of anything that affects your treatment or appointments (eg, changes to medication, holiday plans, change of address, hospital admission). Write these down on a piece of paper, together with your name, hospital number and appointment date. Staple this to your INR request form/ Write the message on the INR request form where there is a space for your messages. When you arrive at the clinic, report to the receptionist and wait to be called for your appointment You will be called for your blood test, be ready to take off your coat or jacket. After your blood test, you may leave the clinic. Your dosage instruction letter will be posted to you stating the dose of anticoagulant tablets you need to take and the date and time of your next appointment. Please do not telephone the clinic to ask if your dose has changed. We will phone you if you need to change your dosage urgently, otherwise carry on with the current dose until your dosage instruction letter arrives in the post. Keeping your clinic appointments It is vital that you continue to take your anticoagulation treatment until you have been advised to stop. The reason for visiting the clinic is to check your INR levels and to change your dose, if and when it might be necessary. If you fail to keep your appointment you will not be able to attend the clinic again without a pre-booked time. Therefore, if you are unable to keep your appointment please contact us with as much notice as possible so that your place can be given to someone else and an alternative appointment can be arranged. If you fail to keep three consecutive appointments, you GP will be informed. For health and safety reasons we are limited to the amount of patients we can see in each clinic, so keeping your appointment will help us to run our busy clinics as smoothly as possible for everyone. Points to remember for patients having their blood test in the GP surgery/ district nurse/nursing home /residential home/out patients blood test unit We would prefer the samples to be taken on Monday/Tuesday but never on a Friday. These patients will always be given a Tuesday date as the next appointment. 3 The result of the test, recommended dose of anticoagulant and date of next test will be recorded in the dosage instruction letter and sent by post to the patient. We will telephone the patient/carer if we recommend that the patient stops warfarin for one or more days because of high INR. We will not routinely telephone all changes in doses. When do you need to see the anticoagulant nurse specialist? You will see the anticoagulant specialist nurse: For your first appointment Before you stop anticoagulant therapy If you ask to see someone because of a medical problem linked to your anticoagulant therapy The nurse requests you to attend for consultation Are there any risks associated with anticoagulant therapy? As warfarin works by delaying the times it take to clot, the blood patients on warfarin may experience a slight increase in bruising and minor bleeding, for example from: Nose bleeds Bleeding gums Heavy periods Blood in urine or stools What else can I do to help reduce the risk from blood clots? There are no medical alternatives, but there are many things that you can do to help prevent a blood clot forming, for example: Give up smoking. This may be very difficult, but there are smoking cessation clinics held at GP clinics. Avoid or reduce drinking alcohol as this causes dehydration and increases the viscosity of your blood. Take regular exercise - this can be gentle and based in your own home If taking a long haul flight, exercise your feet every half hour and walk up and down the aisle every couple of hours. Wear compression stockings and drink plenty of non-alcoholic fluids Information about warfarin You will be given the initial prescription by your hospital. The hospital will only issue 0.5mg, 1mg or 3mg of warfarin. For future supplies of tablets please contact your GP. Make sure your GP has adequate notice and take your yellow form to the surgery so that the GP can see that you are being monitored Tablets can be used in any combination to make up the required dose. For example, if your warfarin dose is 6 / 7mg alternate days you can use two blue warfarin tablets and one 0.5mg warfarin tablet. You are advised not to break the tablets. The dose of warfarin you need to take will be on a printed dosage label in your dosage instruction letter. If you are in doubt, contact the anticoagulation clinic. 4 If you need any other information or advice, please contact: Anticoagulation Support line Monday- Friday 09.00- 17.00 Tel: 020 8216 4890 or Tel: 020 8216 5330 Fax: 020 8216 4216 For appointment changes Tel: 020 8216 4374 or Tel: 020 8216 4143 Below is a useful website for people on warfarin or other anticoagulation therapy: http://www.anticoagulationeurope.org Anticoagulation out patient follow up clinic times Barnet Hospital Monday 8.00 -11.45am Anticoagulation Clinic Wednesday 8.00 -12.00pm Follow up -Blood test unit level 0 Friday 8.00 -11.45am (Appointment Time Allocated) Barnet Hospital All other blood test Blood test unit- Level 0 (To book an appointment call: 0208 216 4394) Fairbrook Medical Centre – Wellswood Borehamwood (To book an appointment call: 0208 953 4515 between 1400-1600) Potters Bar Hospital (To book an appointment call: 01707 653 286, Extension 4001) Finchley Memorial Hospital (To book an appointment call: 020 8349 7461) Edgware Community Hospital Pathology Department Enfield Chase Farm Hospital Blood Test Unit (Rear of Clocktower Building) Cheshunt Cheshunt Community Hospital Monday to Friday 9.00 -1700 (Timed appointment only) Tuesday 8.00-12.00 Wednesday 8.00-12.00 (Timed Appointment only) Tuesday 8.30 -12.15 Wednesday 8.30 -12.15 Thursday 08.30-12.15 (Time appointment only) Monday 8.00 -10.30am (Timed Appointment only) Tuesday 8.00 - 11.00am Thursday 8.00 - 10.45am (Walk-In) Monday 12.00 - 5.00pm Tuesday 12.00 - 5.00pm Wednesday 12.00 - 5.00pm Thursday 12.00 - 4.00pm (Appointment Time Allocated) Mon to Fri 8.00 -15.30am (Walk-In and take a number) Anticoagulation patients are advised To have the test in the morning or early afternoon and avoid Fridays 5