Asian American Donor Program (AADP) Asian American Donor Program (AADP) is one of only a handful of organizations that is an official recruitment group of the National Marrow Donor Program network. AADP is a non-profit community organization based in Oakland, California. AADP recruits potential marrow/stem cell donors and educate the community about the need for more ethnic minorities to join the National Registry, specifically in the Asian and Pacific Islander community. Asian American Donor Program 2169 Harbor Bay Parkway Alameda, CA 94502 1800-59-DONOR Telephone 510-568-3700 Fax 510-568-2700 In 1989, two Asian leukemia patients, Amanda Chiang, 9 months, and Judith Jang Berkoltz, 32, were in desperate need of bone marrow transplants. Both patients were unable to find a match within their own families. Turning to the National Marrow Donor Program® (NMDP) Registry, the patients hoped to find unrelated marrow donors. With only 123 Asian donors listed on the National Registry, they were told that the prospects of finding compatible donors were virtually impossible. Determined family and friends of the two patients made a statewide appeal to recruit more Asians onto the Registry. Despite the tremendous emotional and financial sacrifice, which led to the successful recruitment of more than 2,000 Asians, no matches were found. However, the unfortunate deaths of these two people gave birth to the compelling mission of the Asian American Donor Program (AADP) and the hope of new life to others. The Need For More Minority Donors BOARD OF DIRECTORS Jonathan Leong Chairman Fiona Ma President Art Louie Vice President Artina Chinn Secretary Carol Gillespie Treasurer Each year, over 30,000 people are diagnosed with leukemia, aplastic anemia, and other life threatening blood disorders. For many of these patients, their only chance for long-term survival is through a marrow/stem cell transplant. Transplants require matching certain tissue traits of the donor to the patient. Because some of these traits are unique to people of specific ancestry, the most likely donor match is from the patient's same racial or ethnic group. Unfortunately, of the over 5 million potential donors registered through the NMDP, ethnic minorities make up only 26% of the National Registry. To ensure that all patients have an equal chance of finding a matched donor, the NMDP has several ongoing minority recruitment programs. To register you need to: • Be between the ages of 18-60 years old and in good general health • Give a cheek swab sample • Give consent to be entered on the NMDP Registry, which is searched internationally • Provide the contact information of two contacts who do not live with you About the National Marrow Donor Program The National Marrow Donor Program (NMDP) is the international leader in the facilitation of unrelated marrow and blood stem cell transplantation. A non-profit organization based in Minneapolis, Minn., the NMDP facilitates unrelated marrow and blood stem cell transplants for patients with life-threatening diseases who do not have matching donors in their families. Since its founding in 1986, the NMDP has facilitated more than 15,000 unrelated transplants for patients with blood disorders, such as leukemia and aplastic anemia, as well as certain immune system and genetic disorders. The NMDP offers a single point of access for all sources of stem cells used in transplantation: marrow, peripheral blood and umbilical cord blood. Through an extensive network of national and international affiliates, the NMDP currently facilitates more than 160 transplants each month. The Network includes apheresis centers, collection centers, cooperative registries, cord blood banks, donor centers, laboratories, recruitment groups, repositories and transplant centers. Another partner, The Marrow Foundation®, also supports the NMDP through strategic fundraising efforts with individuals and corporations. Approximately 40 percent of the transplants facilitated by the NMDP now involve either a U.S. patient receiving stem cells from an international donor or an international patient receiving stem cells from a U.S. donor. Planning for a Donor Recruitment Campaign A volunteer must be well-informed about donation before deciding to join the NMDP Registry. One of the primary goals of a recruitment drive is to create opportunities to inform employees about the importance of blood stem cell donation and ask for their involvement. Another important goal of a donor recruitment drive is to encourage more minorities (Asian and Pacific Islanders, African Americans, Hispanics and Latinos and Native Americans) to register to better serve all patients in need of a life saving transplant. To have a donor recruitment campaign, we simply ask for the help of the appropriate corporate parties to act as liaison to AADP and to help with the planning process of the drive. Plans must be made for: Logistics o Tables and chairs o Drive location o Pre Sign-Ups o Insurance requirements (AADP can provide Certificates of Insurance covering Professional Liability and Worker’s Compensation) Volunteer donor education o Education and awareness of the drive beforehand through publicity materials (AADP can provide the publicity materials) o AADP is responsible for making sure every volunteer donor is well educated about joining the NMDP registry Recruitment o Possible volunteer involvement on the day of the drive by the liaison/s AADP will help plan and schedule employee and donor recruitment events. We recommend a lead time of at least two months to plan a one or two-day drive on campus. How a Donor Drive Works The NMDP is working to recruit committed individuals from diverse racial and ethnic communities to add new tissue types on the Registry. By diversifying the Registry, the NMDP will be able to improve the chance of finding an unrelated donor for all patients. There is a critical need to add more committed donors who identify themselves as Asian or Pacific Islander, Black or African American, American Indian, or Hispanic or Latino. Because of this need, most of the government funds have been allocated to covering the recruitment and tissue typing costs for minorities. Non-minorities may be asked to cover all or part of their own tissue typing cost. AADP will arrive one hour beforehand to set-up. We are able to provide the necessary insurance, materials and professional staff to conduct the drive. An interested volunteer donor is able to sign up beforehand to minimize time spent on the actual day of the drive to register. The designated liaison/s at Chevron may have available sign-up sheets and consent forms to be filled out prior to the drive. Upon completion of the consent form, the volunteer donor will then proceed to a medical review conducted by a member of the AADP staff who will assess the donor’s medical suitability. A simple cheek swab sample is taken and sent to an NMDP laboratory to complete the donor’s tissue typing. The tissue type is then placed on the Registry and is available to all patients searching for a matching donor. Frequently Asked Questions 1.) What are the advantages of having a donor recruitment drive at my company? Unique benefit: By initiating a marrow donor recruitment campaign, your company is offering employees a unique benefit, one that may offer them the opportunity to help save the life of a patient suffering from leukemia or more than 70 other blood-related and genetic diseases. Effective recruitment: Recent studies conclude that volunteers recruited in the corporate setting are more often available as donors when they are identified as a match than those recruited in some other settings. Corporate citizenship: Having a marrow/blood stem cell drive publicly positions your company and organization as a good corporate citizen. It demonstrates that your company supports efforts that can save lives around the world and in your own backyard. In particular, you are being responsive to the needs of a diverse workforce. Your company and your employees are raising awareness and helping patients in need of life-saving marrow/blood stem cell transplants. 2.) When we have our recruitment drive, what are our responsibilities? To make an education and recruitment drive as productive as possible, you will want to seek several volunteers to assist with planning, promoting and holding the drive. AADP will work with you to define specifically the type of volunteer assistance you will need. As a sponsor, other responsibilities include providing: A large, open room Some tables and chairs Once again, AADP will be able to give you detailed requirements according to your drive location and size. AADP will work with you to provide ideas to help in all aspects of planning, promoting and holding the drive. 3.) How much space is needed for a recruitment drive? The amount of space required for a drive depends on the number of donors you expect to have at your drive. In any instance, the ideal is to have an open room or space, free of obstructions. It is also possible to hold the drive in an open, outdoor location that is centrally accessible. 4.) Can we open our drive to the public? Some employers choose to open their education and recruitment drives to include employees’ eligible family members, friends or members of the community. 5.) How much time will each employee need to join the NMDP registry? Generally speaking, the average time to join the registry is about 20 minutes. 6.) What else can we do to promote the drive? Repetition is key when it comes to publicizing and promoting an education and recruitment drive. Think about the various ways you already communicate with other employees: electronic messaging, internal newsletters, internal television monitors, paycheck stuffers, etc. All could be valuable tools to raise awareness and encourage employees to get involved. The more an employee hears about an upcoming drive and the opportunity to become a donor, the more inclined an employee may be to participate. 7.) Why does the NMDP focus on recruiting minorities? The NMDP is working to recruit committed individuals from diverse racial and ethnic communities to add new tissue types to the Registry. By diversifying the Registry, the NMDP will be able to improve the chance of finding an unrelated donor for all patients. There is a critical need to add more committed donors who identify themselves as Asian or Pacific Islander, Black or African American, American Indian, or Hispanic or Latino. The AADP specializes in outreaching to the Asian and Pacific Islander community – it’s patients and donors. However, our drives are open to all minorities who are medically able and willing to volunteer. Nationally, all government funds have gone into covering the cost of recruiting all those of minority descent. Non-minorities may be asked to cover all or part of the cost of their own tissue typing. This is not meant to discriminate against anyone, but is intended to better help all patients in need. Selected Corporations and Organizations Supporting Donor Recruitment for the NMDP Registry 3M Abbott Laboratories A.G. Edwards & Sons Ameren Corporation American Airlines/AMR Foundation American Express Company Amgen Anheuser-Busch Inc. Ashland Inc. Bank of America Baxter Healthcare Bell Atlantic/Verizon Brown Shoe Company Carpet One Coin Acceptors Comerica, Inc. Cummins Engine Company CWA (Communications Workers of America) DaimlerChrysler Edward Jones Enterprise Rent-A-Car Family Circle Magazine Ford Motor Company Fujisawa Healthcare, Inc. General Motors Corporation Graybar Electric Company Great West Harbour Group Health Resources & Services Administration (HRSA) Hendrick Motorsports Home Depot IAFF Kraft Foods Lowe’s Home Improvement Warehouse M&T Bank May Department Stores Medtronic, Inc. MetLife The Midland Company Monsanto National City Corporation NASCAR Nestle Purina PetCare New York City Fire Department (FDNY) Nike Northwest Airlines Peabody Energy Pfizer PG&E (Asian Employees Association) Raskas Foods, Inc. St. Louis University SBC Communications Siemens Stifel Nicolas & Co. Thompson Coburn United Auto Workers (UAW) UAW – National Ford Department UAW – GM United States Postal Service U.S. Bancorp U.S. Department of Health and Human Services (HHS) Washington University Wells Fargo Company XM Satellite Radio