Diabetes Champion Handbook Reaches parts of the community other services don’t reach 1 Log on to the Volunteer Resources section of our website to access expenses forms and other materials www.knowdiabetes.org.uk © Triborough Public Health London 2013. This publication may not be reproduced without permission from the publisher. 2 Contents Introduction 5 The Diabetes Champion Project What is a diabetes champion? Our commitment Your commitment Health and safety of champions Guidelines If things go wrong Complaints Expenses 6 6 7 8 8 9 9 Undertaking the role of Diabetes Champion Key Messages What is Diabetes? Symptoms of undiagnosed Diabetes Risk Factors Complications Treating Diabetes Prevalence Healthy Lifestyles Support and Health Checks Outreach Organising events – a stall, community event, faith group and coffee morning Appendices Appendix 1: Additional information Type 1 diabetes summary 10 10 11 12 12 13 15 16 18 20 20 3 What is clinical / medical advice Urgent health concerns or ‘red flag’ situations Appendix 2: Other Resources Diabetes Champion role description Key qualities of a champion Event Record Sheet Diabetes Quiz Food Pictures Eat Well Plate Caribbean Eat Well Plate Eat Well Key Points Body Map GP letter Involvement form Diabetes Mentor Self Referral form Myths and Beliefs 21 21 22 23 24 25 26 33 34 35 36 37 38 39 40 4 Introduction Welcome to your role as a Diabetes Champion. We hope you will find this handbook, which you helped to develop is helpful. We have included some useful guidance, procedures, signposting information and relevant forms. The procedures described here are new and may change as the project develops in partnership with the champions and project partners, so the handbook should be used together with what you learnt from your training to support you in providing a good quality service. Remember you can contact us if you have any questions and queries. Enjoy the experience of championing. You will make a valuable difference. Judith Ralphs Peter Gilbert Public Health Manager Senior Diabetes Volunteer 020 7641 4663 020 7736 0044 jralphs@westminster.gov.uk peterhgilbert@gmail.com Howard Tingle Champions Co-ordinator 07984 410 569 howardetingle@yahoo.co.uk 5 Diabetes Champion project What is the Diabetes champion project? The Diabetes Champion Project developed from the Hammersmith and Fulham Diabetes Service User Group, as a way local people could raise awareness of diabetes in their communities and help reduce the growing number of people developing type 2 diabetes. The Group recognised that people living with diabetes and their carers and family members have valuable knowledge and experience, which enables them to work with those with type 2 diabetes in what is an innovative and peer led approach. What is a diabetes champion? Diabetes Champions are people who…. Are members of our local communities, who have experience of diabetes in some way. They will raise awareness in the community about diabetes, the risk factors associated with diabetes, how to reduce or delay the possibility of developing diabetes, and how to test for diabetes. They will sign post those with diabetes to appropriate support and healthy lifestyles to prevent complications. See page 22 for the role profile in full Our commitment to you The Champion Coordinator will Provide you with support to ensure you feel confident in your championing role and are able to be a great champion! Provide you with any relevant information, updates and leaflets Run quarterly group supervision meetings Deal with any problems, concerns or complaints Prompt you to return activity sheets Ensure your expenses are paid 6 Your commitment to us You will Be a champion for at least 1year following your training Attend the group supervision meetings Undertake at least four events over 12 months Be reliable, well organised and trustworthy, e.g. working well with your fellow champions, doing your part, turning up on time Complete the activity documents and other necessary records Contact the Champion Coordinator if you have any problems, concerns or complaints Follow procedures and good practice as outlined in this handbook Work within Westminster City policies of confidentiality, dignity and respect and within the limits of your role (see Role Description on page 22). You will not give clinical / medical advice about treatment or medication. This can only be given by a trained medical professional (see page 21 for further information on clinical / medical advice). 7 Health and safety of champions It is vital that both you and your fellow champions are safe at all times. Here are some guidelines: Guidelines Risk assessments - will have been carried out in most Community Centres already, but you may need to do one if you are meeting in a non-health related venue for the first time. Please contact the Champion Coordinator for advice on risk-assessments if you are unsure.1 Where and how to meet - Ensure that you meet in a public space in which you feel comfortable. Do not meet at people’s homes. o Ensure you can contact other people in case of emergency e.g. by mobile phone. o Plan your seating arrangements so that you can see the door. o Find out where the fire exits are in the place that you are meeting. o If you feel unhappy about any aspect of your meeting, ring the Champion Coordinator for advice. You should not receive / give any money. Any gifts should be checked with the Champion Coordinator first before acceptance. Health and safety is everybody's responsibility. If you see something, report it or ask the relevant person. Do not lift anything you find too heavy or awkward If things go wrong… The training you have received, ongoing supervision and the guidance in this handbook will help us work together to make your role enjoyable and effective. However, if for any reason you do not keep to these commitments e.g. by breaking confidentiality, being consistently unreliable, acting inappropriately or behaving in a way not consistent with being a champion, we will terminate your honorary contract. This will be done immediately without notice, as outlined in your honorary contract because we have a duty to ensure we provide members of the public with a safe, confidential and high quality service. (A risk assessment is a systematic way of looking at a specific activity and deciding what the possible problems, dangers and risks are that are involved in that activity in a specific location and taking actions to reduce the risk.) 1 8 Complaints If you are unhappy about any part of the champion project please call the Judith Ralphs (Senior Public Health Officer) to talk about any concerns on. We will strive to sort matters out quickly. Members of the public can also be given this number if they are unhappy with any aspect of the project Expenses This is a volunteer role but it is important that you are not out of pocket and we will try to pay expenses quickly (Expenses form Appendices page 25) All payments will be paid directly into your bank account through BACS (Appendices page 26). 9 Undertaking the role of diabetes champion Key messages about diabetes to be given to participants at events What is Diabetes? What is Type 2 Diabetes? Carbohydrates (starchy and sugary foods) are converted to glucose by digestion which fuels the body. Insulin is a hormone produced by the pancreas, which helps the glucose enter the cells where it is used as fuel for energy, so we can work and play It is vital for life Diabetes mellitus is a condition where the amount of glucose in the blood is too high because the body is unable to use insulin effectively, or the pancreas is unable to make enough insulin In some cases the pancreas cannot make any insulin (Type 1) Type 2 Diabetes tends to develop after 40 but owing to changes in lifestyle is being seen in younger people including teenagers. Asian, Arab and Afro-Caribbean Cultural groups are most at risk from age 25 onwards. 10 Symptoms of undiagnosed diabetes Tiredness Frequent urination Thirst Blurred vision Cuts not healing Genital thrush/itching People may have one or more of these symptoms. Some people may report none of them despite developing diabetes. Risk Factors A close family member who has type 2 diabetes Damage to the pancreas High carbohydrate/calorie diet Obesity Apple shape; more than 31.5 cm waist in women 37cm in men Lack of exercise Stress Other health conditions e.g. high blood pressure, heart disease Developing diabetes during pregnancy People over 40, or over 25 and African-Caribbean, Asian or from a minority ethnic group Women with polycystic ovary syndrome who are overweight 11 Complications Neuropathy: damage to the nerves, erectile dysfunction Cardio vascular disease: stroke, heart attacks, poor circulation Kidney disease Obesity from tablets Slow wound healing, ulcers Eye problems: retinopathy Treating diabetes Diabetes is serious because it can lead to life-threatening complications. Although diabetes cannot be cured, the good news is it can be treated very successfully. The main aim of treatment of both types of diabetes is to achieve blood glucose, blood pressure and cholesterol levels as near to normal as possible. This, together with a healthy lifestyle, will help to improve wellbeing and protect against long-term damage to the eyes, kidneys, nerves, heart and major arteries. Type 2 diabetes is treated with lifestyle changes such as a healthier diet, weight loss and increased physical activity. Tablets and/or insulin may also be required to achieve normal blood glucose levels. There are several kinds of tablets for people with Type 2 diabetes. Some kinds help the pancreas to produce more insulin; other kinds help your body to make better use of the insulin that your pancreas produces. Another type of tablet slows down the speed at which the body absorbs glucose from the intestine. Type 2 diabetes is progressive. If diabetes cannot be controlled through lifestyle changes and tablets a doctor may recommend that a person takes insulin injections. Type 1 diabetes, which is caused by an auto-immune reaction, cannot be prevented and is treated either by insulin injections or by an insulin pump and a healthy diet, and regular exercise is recommended. Insulin cannot be taken by mouth because it is destroyed by the digestive juices in the stomach. People with this type of diabetes commonly take two to four or more injections of insulin each day. If someone has Type 1 diabetes, insulin injections are vital to keep them alive and they must have them every day. For more detailed information on Diabetes see Appendices page 20 12 Prevalence 13 14 Summary of key points Around 850,000 people in UK have Type 2 diabetes but are unaware of it. Diabetes is serious. If left untreated it can lead to serious sometimes life-threatening complications. The good news is that early diagnosis of Type 2 diabetes can reduce the risk of complications People from Black, Asian and Minority Ethnic communities are likely to develop long term complications 5 years sooner. People from the South Asian, Arab and Black African Caribbean communities are at risk of developing diabetes from the age of 25 Four hundred people in the UK are diagnosed with diabetes every day. You can lead a full and healthy life with diabetes, but the key is getting diagnosed as early as possible Being overweight is a risk factor of Type 2 diabetes To reduce your risk of Type 2 diabetes, eat a healthy balanced diet, maintain a healthy weight and be physically active It is estimated that 10 per cent of the NHS budget is currently spent on diabetes. Healthy Lifestyles We know that those at risk of and living with diabetes will benefit from healthier lifestyles Key messages • Think about changing an aspect of lifestyle • Eat more fruit and vegetables • Reduce saturated fats e.g. animal fats • Follow a high fibre diet • Think total carbohydrates not just sugar • Eat three meals a day with smaller portion sizes • Lower intake of salt and alcohol • Engage in physical activity: sport, dancing, walking, gardening, climbing stairs… • Take steps to improve emotional well being • Make links and connect in the Community 15 Support and Health Checks We know too that people will improve their health if they are diagnosed with diabetes as early as possible Key messages to give to communities and individuals; • Go and get tested if you become aware you are at risk of developing diabetes • GPs are able to check for diabetes and provide good management for the condition • For those with diabetes, ensure you have regular health checks and support at your GP Practice, this includes; • Long term blood glucose and fats • Blood pressure • Eyes (Retinopathy screening) • Foot examination • Kidneys/urine tests GPs should also offer the following support options Weight measured and weight management support offered Smoking status recorded and support to stop smoking Emotional & psychological support Referral to a local diabetes education course Information and specialist care if you are planning a baby Opportunity to see a diabetes specialist Champions can also signpost to the following relevant services • Diabetes Education • Diabetes Mentoring • NHS Stop smoking services • Health trainers • Back on track psychological services • Physical activity • Healthy eating advice 16 17 Outreach work, “Going boldly where none has gone before” Champions in training identified the following activities needed to arrange events; Organising events - a stall, community event, faith group or coffee morning Keep a look out for local events and use existing networks. You may be e-mailed details by the Champion coordinator Here are some pointers and guidelines to help you prepare and facilitate your session Coffee Morning Preparation Come along as a Peer Role model Decide on a venue: community centre? library? Be tactful, use approach appropriate to audience: e.g. a talk or more of a discussion if group is small Help group to set targets Agree time and place Agree to come back another time to discuss progress. Make contact with local group; own networks word of mouth Contact organiser and alter in case s/he is not around. Agenda and timings: set up, duration, clear up What resources are provided: tables, stall, chairs etc Look at the community make up, numbers expected, position of stall Stall Delivery and Engagement Is there a cost? Negotiate as a non profit health awareness cause Prepare stand to look interesting and inviting Agree method of delivery, where are champs to stand Brochures/leaflets/poster in appropriate languages Ask engaging questions to passers-by e.g. what do you know about diabetes? Have you any questions about diabetes? Conversations can be brief or long, perhaps just a leaflet given Agree: budget, methods of transportation, number of champions needed Engage with other stall holders to build up links and contacts for other events Resources: water cups and bin bags, tape measure balloons, table cloth/cover, goody bag, pens, note pads Pack away Transport materials 18 Identify a faith group and place of worship Enlist help of Pastor/Secretary/Priest/Imam Faith Group Venue? Identify audience; whole congregation or specific group? Ice breaker Use open discussion e.g. anyone know what is T1 or T”, what is diabetes? What are the common symptoms? What are the complications? Can you help yourself? Pictures e.g. food pictures in appendix or down load some Agenda with timings. How long will you talk for? Show DVD Facilities; e.g. microphone, refreshments Accessing services, education info packs Sign posting preventative measures How to get there Introduction/Ice breakers What is diabetes? T2 Diabetes Community Event Symptoms Target a group e.g. a Somali or Nigerian cultural organisation *Risk Factors see page 11 in this hand book Identify a venue Sign post them e.g. diabetic screening Make personal contact with manager Lifestyle issues: increased activity, diet, handling stress, healthy principles, lose weight Undertake risk assessment Tea break Management Test Use quizzes Community diabetes courses support Show DVD story of person with diabetes Other helpful resources: Diabetes UK website for a list of resources which can be ordered online e.g. leaflets, tape measures; Diabetes UK 15 points of care, different language booklets Also British Heart Foundation Website for resources. See Volunteer Resources section of www.knowdiabetes.org.uk 19 Appendices Appendix 1: Additional Information Type 1 diabetes summary (for reference) Definition People with Type 1 diabetes have insulin deficiency. Insulin is a hormone and, in Type 1 diabetes, the cells in the pancreas which produce insulin are attacked by antibodies leading to loss of function. Insulin is necessary for life and people with Type 1 diabetes must inject insulin daily to replace the lost hormone. Most people use an insulin pen for delivery, although an increasing number are using an insulin pump attached to their bodies, which usually provides tighter control. Good Control To achieve good glucose control people with Type 1 diabetes need to test their blood glucose regularly by pricking their fingers, mainly before meals and before bed, need to count the carbohydrate content of meals and snacks and take account of exercise. Sharps bins are available on prescription for disposal of lancets, needles and used test strips. Pregnancy Type 1s planning to become pregnant need to achieve and maintain particularly tight control and should discuss their plans with their doctor. Hypoglycaemia (Hypos) Like some people with Type 2 diabetes who also inject insulin, people with Type 1 diabetes are prone to low blood sugars (hypoglycaemia), when they have too much circulating insulin and not enough glucose in the bloodstream. (Some tablets for Type 2s, which stimulate the pancreas to produce more insulin, particularly the sulphonylureas, may also cause hypos.) They should always carry glucose tablets with them for emergencies. The two best-known brands are Glucotabs which come in a plastic tube and Dextro-Energy which comes in a paper wrapper. Excessive alcohol consumption may cause hypos up to 24 hours later. Over time people with Type 1 diabetes may become less aware of when they are going low. Frequent injection into the same spot causes lumps under the skin which interfere with the release of insulin and may cause hypoglycaemia. If called to a serious hypo, the ambulance service will usually administer a glucagon injection, which causes the liver to release stored glucose. Carers can obtain a glucagon kit from their GP but need to be shown how to use it by a diabetes specialist nurse. Ketones If the blood glucose is high in Type 1 diabetes, cells become starved of glucose and switch to fat metabolism causing Diabetic KetoAcidosis (DKA). If the blood glucose readings are above 14 mmol/L, people with Type 1 diabetes should test their urine or blood for ketones. Test strips for this are available on prescription. 20 People who use insulin must tell the Driver & Vehicle Licensing Agency (DVLA) and their insurance companies. Education for Type 1s Everyone with Type 1 diabetes should be offered a carbohydrate counting course to improve self-management. These courses are offered in the community and by the surrounding hospital diabetes clinics. Booklets can be purchased in book stores on carbohydrate values and several apps are available for mobile phones. You can also look up information on Type 1 diabetes on the Diabetes UK website. What is clinical / medical advice? The difference between what is and what is not clinical / medical advice depends on both the answer and the question. If a complete answer to the question may be given without interpretation of the condition, it is acceptable to answer the question e.g. ‘Is burning pain a sign of neuropathy?’ If an interpretation of a medical condition is necessary for a complete answer, the question is asking for some form of diagnosis or treatment advice, which is clinical/medical advice e.g. ‘I have burning pain. Do you think it is neuropathy?’ Any questions about medicines, dose adjustment, alternative therapies or any question that requires information about healthcare delivery should be referred back to the person’s GP. Urgent health concerns or ‘red flag’ situations If you are speaking to someone with diabetes who is feeling dizzy, hungry, sweaty, trembling or finding it hard to concentrate or express themselves, they may be having a ‘hypo’ (hypoglycaemia) and you must get them to take some glucose tablets, or some fizzy drinks (not diet drinks) or some sweets like jelly babies. If you speak to someone with diabetes who has any of the following problems, you should recommend that they go and see their GP as soon as possible: They are suffering from worsening mood, depression or anxiety They have a new foot problem or an existing foot problem getting worse, They have sudden and sustained raised blood glucose levels, particularly if they have another illness or infection at the same time. They are experiencing any loss of vision or sudden or severe change in eyesight; They should contact the Western Eye Hospital Casualty Department (details on page 20) or go direct to their nearest eye casualty department. NB: This list is not comprehensive. If you are concerned, recommend to the person that they see their GP as soon as possible. 21 Appendix 2: Other Resources Diabetes Champions Role Description Main Aim: To raise awareness in the community about diabetes, the risk factors associated with diabetes, how to reduce or delay the possibility of developing diabetes, and how to test for diabetes. Sign post those with diabetes to appropriate support and healthy lifestyles to prevent complications. Role description: 1. To attend two days of training on diabetes and on how to give a talk to a group. 2. To set up and organise diabetes awareness meetings with community groups including networking outreach with the support of the coordinator. 3. To give 4 - 6 talks a year on diabetes at community groups or at health fairs. 4. To act as a signposting person on diabetes for local community groups. 5. To report back to the coordinator after any group meeting on the numbers attending and how the meeting went. Person Specification: 1. Preferably living with diabetes, Type 1 or Type 2, or a carer of someone with diabetes or very interested in Diabetes. 2. Willing to be trained to deliver a standard presentation. 3. Able to talk to a small group of people about diabetes. 4. Links with people or groups in the community e.g. member of a community organisation, linked to schools, member of an activity group. 5. Outreach and networking skills 6. Able to give a talk both in English, and in own community language; particularly useful to have champions who can speak Somali, Arabic or Polish as well as English. 7. Outgoing with good communication skills 8. Interested in preventing the steep rise in diabetes. 9. Interested in helping those with diabetes to access services and make changes in lifestyle to prevent complications 10. Aware of the limits of their knowledge about diabetes and able to signpost someone to their healthcare practitioner or to the Diabetes UK helpline if they have questions the champion cannot answer or questions about medication. 11. Willing to signpost people in the community into testing services and healthcare services. 12. Able to display the following personal qualities: trustworthy, professional, reliable, confidential, caring and efficient. 13. Willing to attend at least four meetings a year of all diabetes champions. 22 Key Qualities for a Diabetes Champion include Good listener Open body language Passionate Inspirational Approachable Trust builder- able to connect with people To speak the common language, be it mother tongue or just in a way your audience understands Reliable Flexible Able to influence Confident Organised Able to work within role boundaries, know own limits Sensitive to cultural needs Maintain confidentiality Net-working Realistic Honest Non judgemental Well informed about key messages regarding diabetes and available services Of course you do not have to have them all; you will have your own personal strength 23 Tri-Borough Diabetes Champion Event Record Sheet Champion Name/s; Please complete this form, so we have a record of your work after each event you do, either as a paper copy or as an electronic version and return by the last Friday of every month by email to Howard Tingle howardetingle@yahoo.co.uk or by post to; Judith Ralphs, Senior Public Health Officer, Behaviour Change Team, Triborough Public Health, Westminster City Hall, 64 Victoria Street, London SW1E 6QP Q1 Date of event Q2. Type of community interaction: (Please Circle or X) Q3 In which borough did the interaction happen? community meeting health fairs/events GP surgery place of worship coffee morning other conversations Hammersmith and Fulham Kensington and Chelsea Westminster Other Q4 In which postcode was this meeting? Give full post code eg NW15JD Q5 How many people were engaged at the interaction? Q6 Approximately what percentage of attendees was BME? Q7 Approximately what percentage of attendees had diabetes? Q8 At which cultural group was this event aimed? Please be specific (i.e. Jamaican rather than Caribbean, Tamil rather than Indian) Any other comments? 24 Diabetes Quiz T= True F= False The Liver produces insulin T F No insulin is produced with type 2 Diabetes T F Insulin allows the blood glucose to be used by body cells T F Type 1 is more serious than type 2 T F Only Type 1s inject insulin, Type 2s take tablets T F Diabetes increases you risk of heart attacks T F Thirst and drowsiness are signs of un-diagnosed diabetes T F Diabetes affects eyes T F More people have type 2 diabetes T F T F As it is incurable, there is no point visiting the doctor for check ups T F T1 can be prevented T F People with diabetes suffer higher levels of depression T F Diabetes effects sexual function T F T F The complications of diabetes can’t be reduced King Henry VIII died of diabetes’ complications Remember you can ask your audience to think of ways to make these meals healthier meals as an interactive exercise; you can also add culturally specific pictures for your events 25 26 27 28 29 30 31 32 33 34 35 You can ask participants to mark on this picture which parts are affected by diabetes as an interactive exercise 36 Date: Dear GP Practice ------------------------------------------------- Recently attended a community diabetes event run by Triborough Public Health NHS Diabetes Champions. At the event it was identified that your patient could be at risk of developing diabetes. It was recommended that your patient have a check for diabetes. We hope you can offer your patient an appointment. If you have any questions please contact: jralphs@westminster.gov.uk Judith Ralphs Senior Public Health Officer Behaviour Change Team Triborough Public Health Direct Line 020 7641 4663 Yours sincerely, Diabetes Champion 37 Do you want to keep involved? Are you interested in helping other people with diabetes? (Please circle) Yes No Perhaps We have several roles for volunteers e.g. Peer Educators, Champions, Champions and Diabetes Service User Involvement. If you are interested, please write your contact details below and we will get back to you with more information: Name: Address: Contact Phone Number: Email: Thank you for completing this form and please give to the Diabetes Champion. 38 Diabetes Mentor Project: Self-referral Form Do you have diabetes or have you been told you have pre-diabetes? Would you like some support in living with diabetes or preventing it, from someone who understands? If so, the free Diabetes Mentor Service could help. Diabetes mentors are local people living with diabetes or carers (or ex-carers) of people with diabetes. Mentors are trained volunteers, not healthcare professionals, and will not give clinical advice. Mentors can help by listening and working in partnership with you to move you forward. They can provide information and signpost you to useful services. The kinds of issues that can be covered might include: What is it like living with diabetes? I’ve just been diagnosed and am finding it difficult. What does healthy eating or healthy lifestyle mean? I find it really hard to keep to my diabetes care plan. What does taking exercise mean? Where do I go for information and help? I am feeling low or anxious about my diabetes and wish there was someone I could talk to about how I feel. Or you may have other issues you would like to discuss. If you are interested contact Peter Gilbert, Senior Diabetes Volunteer, with your details: email peterhgilbert@gmail.com Tel 020 7736 0044. Or complete the slip below and post to: Judith Ralphs Behaviour Change Team Triborough Public Health Westminter City Hall 64 Victoria Street, London SW1E 6QP Direct Line 020 7641 4663 Or email the information to judith.ralphs@westminster.gcsx.gov.uk _________________________________________________________________ I am interested in knowing more about seeing a diabetes mentor, please contact me. Name: ................................................................................................................................. Address: ................................................................................................................................. Phone number(s): ................................................................................................................ Email (if applicable): ................................................................................................................ Type of diabetes: .......................... GP Practice: ............................................................. 39 Myths and Beliefs T= True F=False You can’t prevent it T F It is good to be big; indicates prosperity T F It’s in my family; there is nothing I can do about it T F Our women are naturally round T F Diabetes only affects old people T F The type of diabetes you get as you get older is not so serious T F We have always had plenty of butter and salt in food and it never did us any harm T F People have been healthy on our food for years. Why change now! T F Lots of oil and sugar make food tasty. My family won’t eat it without T F If take-aways were really unhealthy, they wouldn’t allow them T F Western food must be better than food from back home T F Ideas about healthy food change all the time, there is no clear agreement T F Diabetes is just too much sugar, I can eat anything else T F Can you add any more you know of? 40 www.knowdiabetes.org.uk/ 2 October, 2013 41