Breast Cancer As I Lived It By Mary Scanlon Acknowledgements This true story was written by Mary Scanlon, a former student at Somerville Community Adult Learning Experiences (S.C.A.L.E.) in Joyce Ralph’s class. It was adapted for students with limited English literacy by Loren McGrail. Illustrations are by Rosa Aimée González. It was created in collaboration with the Massachusetts Cancer Education and Literacy Initiative Curriculum Sourcebook, funded by the National Cancer Institute. We wish to thank Mary Scanlon for allowing us to adapt her story so that it may reach an audience beyond the classroom. We also wish to thank the Central Resource Center and the System for Adult Basic Education Support (SABES) at World Education for the use of their facilities and funds to publish this testimony of courage. Waking Up I can still recall very vividly waking up in the middle of the night and having a pain in my left breast. A Lump I suddenly felt a lump as big as a quarter. It startled the life out of me. Calling the Doctor When I got up the next morning, I went to work as usual but I called my doctor right away to tell my story. The Mammogram He said to come in and see him immediately. So I did. He examined me and then ordered a mammogram. A Tumor My doctor called me at work a few days later. The mammogram was read at one of the top hospitals in Boston. He told me I had a tumor. Calling Dr. Susan Love He urged me to call Dr. Susan Love. She supports lumpectomy. So I called her. Waiting…Waiting… I was told I had to wait six months for an appointment. I called my doctor back. He told me to call her associate. I did. I still had to wait a few weeks for an appointment. Biopsy Those few weeks seemed like months. It was agonizing just waiting all this time. The day finally came. She examined me. A few days later she did a biopsy. My Options More days went by waiting for the results of the biopsy. She called me with the results of the biopsy. She asked me to come in and talk about my options. She wanted my husband to come in too. He did. Anxious and Ignorant I started to feel more and more anxious and ignorant. The doctor told me it wasn’t good news but it was good that the cancer was found at an early stage. She said the prognosis should be good. The Choice She told me I had a choice between a mastectomy or lumpectomy with eight weeks of radiation therapy. She told me and my husband the results would be the same for mastectomy or lumpectomy. A Lumpectomy Again there was a wait, this time for an operation time as an outpatient. Ten days later I had a lumpectomy. Nine Positive Nodes I was home recovering when my doctor called with more bad news. I had nine positive nodes. She said I had to have four months of chemotherapy! I hung up the phone and cried. Another Appointment My doctor made another appointment for me with an oncologist. She was a sympathetic and delightful woman, but I was stressed out. I had a lot of blood tests. The nurse set up a schedule for my chemotherapy. The Treatment I had to go to the hospital four times a month. I drove myself each time. I had some nausea after the treatment, but the worst was feeling very, very tired. My body was weakened by those powerful drugs. I didn’t have the energy I used to have. Everything was an effort. I Forced Myself… Many days my tiredness was overwhelming. I forced myself each day to get out of bed and go to work. I felt good that I could still contribute to society. Why Me? I worked at not feeling sorry for myself. I did keep asking myself, “Why me?” I had never smoked. I kept a good diet and I exercised. Love, Medicine, and Miracles Then I read a book called Love, Medicine, and Miracles by Dr. Bernie Siegel. It was my story. He said women who get this disease sometimes are women who worry too much about other people. They don’t take care of themselves. God, My Family, and Friends I got through this time by being optimistic. The good Lord gave me courage and strength. My friends and family helped and supported me. One incredible friend cooked a fancy meal for me every time I went for chemotherapy. Help Other Women I have most of my energy and strength back now. I always felt, deep in my mind, that everything would work out fine. I would like to somehow help other women cope with this dreaded disease. I learned a lot from all these experiences. They taught me to open my eyes and be thankful for each day. I studied at the Somerville Community Adult Learning Experiences (S.C.A.L.E.) for four months to get my GED. I am very proud of achieving that goal. I am also very fortunate to have met Joyce Ralph, who encouraged and guided me to attain this. I feel wonderful, and now I’m studying to be a nurse. When I graduate, please God, I will be able to help many people who are ill, if I continue to get my health and strength. Every day that I get out of bed and see the sun shine I’m happy. My words of wisdom are: don’t ever quit. Life is too great. -Mary Scanlon Glossary Lump: a hardness in your breast. May be small like a chickpea or larger. (Most lumps are not cancer.) Mammogram: a low-dose x-ray of the breast Tumor: swollen or distorted part of body tissue Lumpectomy: surgeon removes only the lump; this is followed by radiation therapy to the chest. Biopsy: when the doctor takes out part or all of the lump to see if it is cancerous. Options: choices Cancer: abnormal growth of cells in the body. Prognosis: to fortell something Disease: sickness Mastectomy: the surgeon removes the whole breast. Operation: when a doctor opens up the body to fix a sickness or problem inside. This sometimes means cutting off sick body parts or sewing up parts that are open. Out-patient: a patient who doesn’t stay at a hospital. To recover: to get better Nodes: points inside the body where blood cells fight sickness. These can become lumpy or swollen when you are sick. (Also called glands.) Chemotherapy: radiation treatment Oncologist: cancer specialist Nausea: feeling sick to your stomach Treatment: a substance or technique used in treating diseases. Associate: someone who works with someone else.